the openness, confrontation, and that is your news update. this is our thank you so much for watching and stay tuned for our documentary coming up next about lyme disease. if it is more news you are after, you can always find that on our website at d. w dot com, the 1000000 people in what it's in just a 100 days. my parents because of my family. what cute. how was this age? i'm on a journey to find out about the russo the 19 there to put you on the site. but they spectrum system rhonda, my name is some way to ship me there. i'm afraid it makes sweet shaming history documentary stuffs. april 6th on dw the

news . here's one. there's one here, here, here. that's 81 live. in 130 meter drank the we have this project where we're testing tx from all over the country. these are checks that are coming into contact with people there in the south. they're in the far west and that means that these things are everywhere. the, there is an epidemic disease spreading across the united states. it's called lyme disease. it's serious and can be fatal. as it digs in for a meal of blood,

it can inject the german carries right into your bloodstream. shaped like a corkscrew and coldest spiral keeps. first cousin, if the spiral keeps it causes stimulus and equally illusive disease causes centers that look like dementia, alzheimer's disease multiple sclerosis aos. meanwhile, debate is growing over the proper treatment for long disease. most cases respond to treatment presented to the office, but others do not. whether they suffer from a chronic form of the diseases operate, contested debate among doctors, patients and insurance companies. there is a public perception that lyme disease can routine the present in the marietta with . that is incorrect. right now my hands are burning my see the burden every it's joyce in my body hurts. that's lines. this last year there were cases reported in

24 states. 37 states, 43 states, 45 states. and it may be as close as your back. yeah, the

it's really hard to make people understand what's at stake. it's so much more than just suffering and disease. the 2nd a ton of trucks down on your life and just turns everything upside down. and as of medications is a pill organizers, the oxygen and the meds. those are all full. this is what life became. i would let it all burn. just to see julie walk. as a kid, i was right. it was very active. i love to dance and

i loved to write those things about me started change knew something was wrong, never match the like a week before i started to take it seriously. oh, i started to notice. it was hard to go to bed in the morning and you know, everybody has those days where they can't imagine waking up. but it was every day and it took me like an hour to get out of bed. the 2nd week that i was sick, i was just sitting in class and my legs went to the school called me and they said something seriously wrong with julie and need to get here right away. when i got there, i found julia in the nurses office and she was just like press 2 chair and they

went to go notes julia, julia, julia, what's the matter? what happened? she liked that i can't see. she said, i can't feel my arms and i can't feel my legs. so i took her straight to the hospital. julia was tested for everything several times. not just once and everything comes back negative. there was a very confusing time. i felt like julia was dying. so i spent a lot of time researching or symptoms. julie's doctor would come to me and say, did you find anything else that we could as far? so i would give her a list and she would run tests for everything i gave her. and again, i put in the search for julie symptoms in lyme disease comes up and i said, i have to read this. and then i started researching the area that we vacation in the area around our house. there's lyme disease in these areas. the stories

told very clearly just looking at a medical records. you know, julia got the biotech when she was 9 years old. she went on diagnosed for the next 2 years. i felt like somebody threw a bucket of ice water over my head. i called josephine i call the kids come and know what she's got. she's got lines. and when the doctor came in, it was like night and day she went from being this wonderful supporting doctor, willing to try anything to adam it. no possible is not in the show, nothing wrong in the laboratory test. and they figured she must be shaking and just hearing that, like, i couldn't believe it. like i'm having real symptoms. i was calling to say was losing my hair. fever last of proust of to should be faking fever. the color

blue choose bullet color. the doctor insisted that this type should be conversion central. the and i came to the lyme disease controversy as an outsider, as an investigative reporter who wanted to find out what was going on. i went into it intending to look at the trend in long disease cases. was government doing enough to control tax. i also wanted to know why i could get his accede for my dog, but there was none for my children in. great. so the,

the main question is whether lyme disease is chronic. does it respond to the short courses of antibiotics that are records by and large, a small group of researchers and government officials basically say short courses of antibiotics cure. there was another side down. i found patients who had been to 101520 doctors and they still had lingering serious symptom. edward, tired of what i found after 2 or 3 stories was that i had waited into one of the most controversial devices and vicious medical debates in medicine today.

the there was a medical detection story into making it deals with us writers and the possibility that a type of arthritis may have been uncovered, which is caused by an insect bite. the outbreak of arthritis is centered in lime, connecticut, a small town located on the connecticut river. so in the early 19 seventy's allen steer is duly meant for metallic just to us, also study epidemiology. mainly how do we define and count diseases? in 1977, he publishes a paper on the epidemic of arthritis. dr. steer found that 25 percent of the kind of original line disease groups have something a rach people's eyebrows. and he also links this to the bite.

but as time went on, his focus changed and dr. steer was recognized in the line community, someone who was not there if a patient thinks that they have line to sees are being treated with antibiotic therapy and are not responding. the most common reason is that they actually have another jones as lyme disease, default doctors needed guidance. so a group got together all the infectious diseases society of america, where they stake to their claim that this disease was not chronic. fairly benign disease is treated early. it has on occasion, been life is wrong, but i don't want to over emphasize the fact as hard as the id s h

to solidify treat one way only. they were cracked that emerged over time. and these crafts, if you will, were you know, a doctors here and doctors there who discovered the guidelines didn't always work or decided to return to westchester county around 1985 or the notes need westchester at that time was beginning to be a burgeoning academic i knew virtually nothing about lyme disease. when i went into practice, i knew the name, it's about it. what i was observing was like, incredible. people get sick, you treat them, they get better, and then the same symptoms would start creeping back. how could an organism survive these antibiotics? these are really in the early days when we were all looking for answers. i was

having a lot of patients coming into my office with poolside rashes and about 80 percent. we get better with standard antibiotics for 20 percent would not. so i would look at the guidelines, but unfortunately those guidelines were not specific enough to deal with the complexity of what i was seeing. so when i 1st was learning about lyme disease, i was really interested in an article that came out in 1989 written by a relative standard tank. there is article is called lyme disease, the new great imitator. and in that article, he presented 6 cases. that were fascinating was one case of an individual who had aggression helpers, a young child when he was treated the o. c. d went away here we have a, an infectious illness that's causing psychiatric problems. so why was lives he's called a new breed imitator? because the 1st grade of material was syphilis civilized is caused by a spiral shaped organism called the trip a name and disease caused by a spiral shaped organ. syphilis caused a huge variety of manifestations to mimicked other diseases. lonzey may be the

great mass greater of 1989, and that it can do almost anything the lung disease, fire and key is cheaper than the corkscrew. so it drills through your joints, cartilage, it quickly, leaves the bloodstream, it goes to organs, it goes to the heart. and the one disease bacteria really over door fry is definitely one of the smartest bacteria on the planet. this organism knows how to change forms. it knows how to hide and the weight of age, the immune system, lime is more difficult to find on the blood tests. and many of the clinicians were observing that patients that we strongly believe headlined disease, their standard tests for lenses were negative. and as a result, it is easy for people to honestly, you know, confuse line for other conditions. the most common misdiagnosis that i've seen in

my practice or people have been diagnosed with chronic fatigue syndrome, fibromyalgia, rheumatoid arthritis lucas. multiple sclerosis is a big one. patients who have dimension alzheimer's line can imitate all of these different diseases. so it's a very, very complex organism and you really have to understand the biology to understand how to treat these patients effectively. we're now up to almost 500000 cases of one disease in america. every year. there are more cases of lyme disease and breast cancer combined up 250-0000, about 10 to 20 percent will stay sick for some periods. we now believe that something on the order of 2000000 people suffer the after effects of line disease in the united states. so 50 years later,

here we are, and we still haven't answered many of the most urgent and basic questions. chronic lyme disease is a rejected this term in american medicine. the question is why and it is my hotter to introduce describes keynote speaker. dr. munoz, the doctor, doctor specter is one of the top rest campers. height is in the country live community. so it kind of went fortunate to have one of the smartest mines in research who's working towards better treatment and a care of richard coronel news lines. right, this isn't just a problem in connecticut, new york, new jersey farm. and it's only getting worse stuff. people at the prime of their lives are taken out of society. and yet we have no clue

what's going on with them. i'm coming up on 10 years of a heart transplant recipient. that was an evening. i'll never forget friday if the surgeon walked into my room and she said to me, you'll be done by monday night on her transfer. the you can do all the right things in the world forever. the i just moved here to north carolina was 1998. to start a new job, our daughter was 2 weeks old. i had always been unbelievably healthy. i mean, i ran marathons who used to run 10 miles a day, 6 days a week. so there was a very,

for an experience for me to go from taking care of cancer patients to barely being able to walk 10 yards without having to stop. we went through on our end as a is as loop as all the tests for negative. i completely fell through the cracks of the medical system and it wasn't until 4 years. and so my illness that i developed arthritis started piecing it together and said, you know, i'm convinced i have lyme disease. i got a call in my office and the cardiologist said to me, is there a churn or by you know, you've got a severely damaged charge and if somebody evaluated for a heart transplant, i'm not sure how i drove home just completely in tears thinking this is that i cannot live beyond a certain age are gonna see my daughter gribalder and not gonna say the milestones

. and then i just realized, you know, are gonna just roll over and let that be the answer there or whatever it takes. a few minutes after telephone call. so here in new hardest and sound, i think about that a lot in our why may sometimes you feel the pressure of having to and love your life and an extraordinary way for those people here unfortunately don't have the opportunity you know, with all these unknowns, there is one now and, and not just that people are following through the cracks. so the medical system, the burden should not be on people who are a sect, proves that they're sec. it should be on us as medical professionals to better understand what's going on and to help them.

it was a very hard time for all of us. we thought we were losing julia, have nobody to take care of julia. so my wife had to make a decision. one of us had a sale. my dad decided that he was gonna kind of go back to work and freaking my heart. because i was running everybody's life. i could, i could show it. could you anything about it? we were struggling, elizabeth, how salary felt like an unwinnable battle? and then something really extraordinary happened.

the francis year to new york city for the very 1st time. it's almost like a b like street, the juliet realtor, i understand you're finding a tough study right. diagnosed for 4 months and i have a clinical diagnosis of mine. and why did you come here today? i came here to meet the mirror. the just garner a lot of media attention. we started getting filters from every network. this is a strange, a story. vibrant, healthy, 12 year old girl, you know, suddenly like a 2nd. my life does change. mothers actually school a started this go funding page that was very successful. we started gave the

letters from all different people who has line disease around the world. we went from being alone to being like expose and you know, we didn't realize it then, but we were in the middle of a tremendous controversy. and mesa julia had chronic lyme. her father decided to find back only to find himself white in the middle of a mind boggling medical. there's a lot of this information out there about lyme disease treatment guidelines followed by the cdc reason, way you created some of the chronic lyme conversation to fake news. you'd ever treated julio. but he influenced many who did not too long. after that, julia was interviewed by the box 5, and i excitedly share this information with a list of my contacts. somehow, my e mail was sent to dr. phillip baker. here's another man who has never met us. he

has never had the opportunity to look at julie's medical records, and he rides, since the results of laboratory tests for the diagnosis of lyme disease were negative, were other possibilities considered to explain such symptoms? if not, wasn't this child denied the opportunity to get the medical treatment she deserved by obsessively focusing on line disease. perhaps this is the most tragic outcome of the sad story. julia has been tested for everything under the sun several times. i guess they have their own motives for being interested in julie story. the

tie science a like published stuff the one of the problems with this anti science articles. i sort of make these broad claims. and then america, like people like may here, would question the testing treatment and try to lump man to people who believe you know that the man doesn't exist and the girl is flat and they're deflecting a real issues. we're trying to fit. this is ostracized by the very junior, and i think that should be helping you. i don't think you have an m date of thing. there's something wrong here. what is it that these people have in common?

it can either send, they all have in common that they're crazy. or you could say, if there's like something else through its process, the just maybe some of the 1st line science being done on this campus. and in fact, some of these projects are really the 1st to be done in this country. these are ideas that i've been working on and my colleagues have been working on the counselor field for 20 plus years. and now we're finally going to be applying us to live. this is what if i told share that we can in the wind is in your body. the mean, just like it is for cancer as a revolutionary and the way we diagnose and then the way retrain the

can i suppress this to receive a, to reflect the cold. when i was looking for answers for line patients, i discovered that there were multiple reasons why people stadium was like going to a doctor's office with 16 nails in your foot saying a foot thing. the doctor pulls out one now and says, come back in a month, you still at 15 nails in your foot, you're gonna have paint. some of it is that the lime oregon as of as persisting, but part of it is also other infections. right now there are at least 18 different tick borne diseases that can be transmitted by the by end of the tech. one form of arthritis may be caused by a germ or virus that's being transmitted by 6, the insects that drive and what are the areas. research code at the same time in the distant future, leading to the development of a vaccine against this one form of arthritis which as being called line arthritis

the around 1980 a law called bundle was passed by don't change the patch of law to make it permissible for grant, jeez, of federal funds, and also some of the federal agencies themselves, to benefit from pets that were required to set the stage for people who at one time didn't just pure sciences to actually make money from their research. and it set the stage for some pretty concerning conflict of interest. so okay, this is 1980. so guess what? 1982. that's when the really a organism was discovered. a july mortgages is arguably one of the most complex bacteria known to man. and be arguably,

or maybe in an arguably it is the most heavily patented bacteria. hello, everybody has peace. expect the study out tonight concludes lab tests for lyme disease are strikingly inaccurate. experts, a test made by more than 30 companies who jump into the business or just not very good. look at them, it is now pumping money into developing a better blood test, a little late experts, a lot of recognition that what was, was the regional problem is now a national one. so in 1990 and i age in the cities came together for a conference in dearborn michigan to develop a standard test. but a huge backdrop was a vaccine vaccine was in development. and it would have set the way this

test less construct a wester blad as a test where they actually take a blotter and on this bladder they take the drop of your blood. you're certainly put it on the block. it starts to move and migrate. the bacteria has proteins on the outside of its surface. and your immune system recognizes some of these specific proteins. it's like a lock in a key. if you have 5 of these specific proteins that show you've been exposed to line, you have a cdc positive west one. but what these powers of one disease decided to do was to eliminate 2 of those key markers because they weren't going to be used in the development on the vaccine. those 2 markers or be used to spur the antibody response when you got to that. so they decided they needed to remove them from the test so that if you had been vaccinated,

non test for life or why is that important? when you take away the 31 and 34 bands, which are highly specific for line, you're then taking away the possibility for those people who have not had the vaccine to help diagnose this disease. so if you come to a doctor's office, a dock, i got a swollen, ne, i can't walk, i'm tired, my memory is not working. i've seen 20 doctors, and they bring in the western block. and they've got 4 out of 5 bands. but you're 50 span happens to be the $31.00 or $34.00. they would call that a cdc, negative western one. yet you have why disease during the 1997, all this fighting going on. and i often wondered what is going to change people's minds? what totally changed the world of blind disease research was in 2008 when

one of the world's best researchers alive, disease published a paper showing that despite antibiotics, treatment aspire keys can persist when dealing with a very unique situation. here the current law, monday biology, the adult teeth are you ready for the effect? tyria? we find this standard lion phenomena. the lower is equivalent to the any biology the chopped off the top part. but because the roots of this are assumed there, the candle you needs trucks targeting both parts in order to more effectively. sure, these positions the form of the disease, the 4 zeros, the federal government, this type of bearing to look into the problems offline to compare that to private foundations, which have spent something on the order of a 100 $1000000.00 in recent years on research that today is answering some of the

key that warranty by the center, by the traditional mainstream researchers the we have come a long way from when to say like a pipe dream. like, yeah, wow, isn't as big creative freedom actually image for really are and here we are, you know, 2 years later for waiting to say this all important experiment you know, year from now the looking at a scan of the 1st patient cutting us. hopefully the current test, you know, only continue to fuel the debate of whether a chronic sometimes are related to the persistence of living bacteria or whether they're related to or you know, some other cause you get an image this in the body. i think that removes salt out.

i'm not sure there's a controversy anymore. that to me is pretty definitive evidence that you've got the bacteria and you need to be treated for an act of infection. i should have all these bacteria the. yeah. the oh, the starry sky. look at the oh my gosh. i didn't see an arrow. yes. you can see a little bit as the individual this isn't the heart. yep. what if you could attach a tax?

swipe side saw so as the magic bar killed the target for the normal tissue. this is just like proof of concept the appropriate diagnosis the and you know of an indication for everyone who has been denied care and told that there chris, this is like for you. it's all, it's all there has been around it is it's right there. and you're here the

good science which from that behavior and with that change happens, hopefully it won't just be at the level of clinical practice, but public policy that will be insurance coverage and all the other injustices that i've really been perpetuate as well. sort of fall by the way of sign. the in the beginning there was opened. there was willingness to consider lots of possibilities. but over time, door's closed. when i went back and looked at some of the early scientific literature, i found a sort of familiar illness. so i'm just going to read from

a 1994 letter by alan steer. and here's the coming pressingly apparent that the line disease fire, really bergdorf rates may persist in some patients for years of particular concern . recent studies have shown that the spiral key may persist in the nervous system and may cause chronic neurologic involvement. the word chronic is there a couple of times. once you get lined disease, revise immune system doesn't deal with it. terrible. it doesn't clear that sparky from your body and you can be infected for fortunately for him at a certain point in time that became dogman, that there is no such thing as chronic lunch to treat industry that has a very scary disease. it doesn't really have to be, i think it's over emphasized how bad it can be with prompt treatments and recognition. it's not a big deal. the,

the 16th candle i've been told is for your greatest love or even your hero. when i thought about who that one person was, one person came to mind and that was you, dad, dad, the greatest doctors in the world were unable to figure out what was wrong with me . but you work without you. i'm afraid i wouldn't be here today giving you guys a speech. thank you for holding my hands through every blood test. every scary procedure and every single part time.

you are my here. oh, my greatest love and my biggest inspiration, the. the funny people ask me all the time. they were angry that they weren't diagnosed early on. and you kind of avoid that. i tell them i'm actually not angry the i would certainly never wish what i went through and anyway. but you know, in some sense, i feel like it was part of the bigger plan for me. the

think about people have died and that are dying and the people who are alone, i feel very guilty because i'm getting on this health and these people need help to are still obligated to do this. and that this needs to happen in order for there to be a change. i was a different person before line. normal girl. now is the time for action.

we must stand together as one of the people suffering right now. let us be there, boy. the can't give up because if it is you the family, you can't just turn people away and say, there's no hope the people are contacting me all the time for the i need to share this information because this is a wage white f, a dennis in the case of coven, we are expecting that there is something called the difference is they are being taken seriously. but my husband is quite down there for decades. and yet for too long, the problem has been minimized the settling. this debate is going

to require new research. and new science we need new ideas. and people who are willing to challenge the all the,

the, we have an early warning your health this morning. scientists predicted this could be the worst at lyme disease these in, in years. the

answer is the kind of fix zone with jim sebastian presidential elections in russia of the usual full gun conclusion with nothing left to chalk, not even the best in jail as the leading opposition figure. i'll explain the valley, my guess is the russian come and say to andre collapsed, we call the economy he, russian, your agent center in moscow was nevada. is such a serious, correct? the bluetooth city has to be too complex in 30 minutes on the w. lots. make sure the diversity of

it's resident the the, and the commitment to one another. no matter what you're focus in 19 minutes, the crises, every single connection mapped out shows the geophysical reality. the on the board is what makes things the way they are mapped out. navigating a changing world. now on youtube, the,

you're watching due to the news coming to live from berlin, nato marks 75 years with a call for more assistance for ukraine to support your training. so try that is to for, to, to bring this investment of our own security. that is, as the kremlin warrens that russia ends, nita are now in direct confrontation. meanwhile, germany's defense ministers of securities for us to europe are rising. for us to story is vows to make them put in despair, a more effective allied within nato. so on the show, outrage grows over israel simply attacked on

a workers and gaza. the n g a world central kitchen is demanding on.