to and solve the differences through peaceful maintenance. and that's it for now. up next doc film looks at keep up with lyme disease and their struggle to get proper treatment. melissa chance, thanks for watching the votes. people have to say to the that's why we listen to based on the rituals every weekend on d w the,

[000:00:00;00] the, here's one, there's one here, here, here that's 81 larva in 130 meter drank the we have this project where we're testing tx from all over the country, these are checks that are coming into contact with people there in the south or in the far west. and that means that these things are everywhere. the, there is an epidemic disease spreading across the united states. it's called lyme

disease. it's serious and can be fatal. as it digs in for a meal of blood, it can inject the german carries right into your bloodstream, shaped like a corkscrew and coldest spiral keeps. first cousin, if this fire keeps it causes stimulus and equally elusive or disease causes centers that look like dementia, alzheimer's disease multiple sclerosis aos. meanwhile, debate is growing over the proper treatment for line disease. most cases respond to treatment presenter bionics, but others do not. whether they suffer from chronic form of the diseases operate, contested debate among doctors, patients and insurance companies. there is a public perception deadlines disease can retain the present in the marietta with. that is incorrect right now my hands are my see the burden every. it's joyce in my

body hurts. that's line this. last year there were cases reported in 24 states, 37 states, 43 states, 45 states. and it may be as close as your backyard. the

it's really hard to make people understand what's at stake. it's so much more than just suffering and disease. the 2nd a ton of trumps down on your life and just turns everything upside down. and as of medications, there's a pill organizers. the oxygen as the lead goes all full, this is what life became. i would let it all burn just to see julia walk. as a kid, i was very,

very active. lots to dance and loved to write those things about me started change. and i knew something was wrong. and there was a match the like a week before i started to take it seriously. oh, i started to notice. it was hard to get into bed in the morning. and you know, everybody has those days where they can't imagine waking up. but it was every day and it took me like an hour to get out of bed. the 2nd week and i was sick. i was just sitting in class and my legs when the school called me and they said something is seriously wrong with julie. you need to get here right away. when i got there, i found julia in the nurses office and she was just like, press 2 chair and they went to go notes julia, julia, julia, what's the matter?

what happened? she liked that i can't see. she said, i can't feel my arms and i can't feel my legs. so i took her straight to the hospital. julia was tested for everything several times. not just once and everything comes back negative. there was a very confusing time. i felt like julia was dying. so i spent a lot of time researching or symptoms. julie, stop or would come to me and say, did you find anything else that we could as far so i would give her a list and she would run tests for everything i gave her. again i, i put in the search for julie symptoms and lyme disease comes up and i said, i have to read this. and then i started researching the area that we vacation, then the area around our house. there's line disease in these areas. the story is told very clearly just looking at the medical records. you know,

julia got to buy a tech when she was 9 years old. she went on diagnosed for the next 2 years. i felt like somebody threw a bucket of ice water over my head. i called josephine i call the kids come i know what she's got. she's got lines. and when the doctor came in, it was like night and day she went from being this wonderful supporting doctor the willing to try anything to adam it. no possible is not at the me so nothing wrong in the laboratory test. and they figured she must be shaking hands. and they just hearing that, like, i couldn't believe it's like i'm having real symptoms. i was calling to say was losing my hair. fever last of proust of to should be faking fever. the color

blue choose bullet color. the doctor insisted that this type to be conversion central. the i came to the line disease controversy as an outside or as an investigative reporter who wanted to find out what was going on. i went into it intending to look at the trend in long disease cases. was government doing enough to control techs. i also wanted to know why i could get it back seemed for my dog, but there was none for my children to great. so the,

the main question is whether lyme disease is chronic or does it respond to the short parcels of antibiotics that are recommended by and large, a small group of researchers and government officials basically say short courses of antibiotics cure. there was another side down. i found patients who had been to 101520 doctors and they still had lingering serious symptom. edward, tired of what i found after 2 or 3 stories was that i had waited into one of the most controversial devices and vicious medical debates in medicine today.

the there was a medical detection story into making it deals with us writers and the possibility that a type of arthritis may have been uncovered, which is caused by an insect bite. the outbreak of arthritis is centered in lime, connecticut, a small town located on the connecticut river. so in the early 19 seventy's, ellen steer is the newly ment rheumatologist who is also studying epidemiology. mainly how do we define and count diseases. in 1977, he publishes a paper on the epidemic of arthritis. dr. steer found that 25 percent of the kind of original line disease groups have something a rach people's eyes. and he also links this to the bite. but as time went on,

his focus changed and dr. steer was recognized in one community, someone who was not there if a patient thinks that they have line to seize or being treated with antibiotic therapy and are not responding. the most common reason is that they actually have another jones as lyme disease, default doctors needed guidance. so a group got together all the infectious diseases society of america, where they stake to their claim that this disease was not chronic. fairly benign disease is treated early. it has on occasion in life is wrong, but i don't want to over emphasize that back as hard as the id s h

to solidify treat one way only the request that emerge over time. and these crafts, if you will, were you know, a doctors here doctors there who discovered the guidelines didn't always work or decided to return to westchester county around 1985 in the notes to me. westchester at that time was beginning to be a burgeoning at the time. i knew virtually nothing about lyme disease. when i went into practice, i knew the name, it's about it. what i was observing was like incredible. people get sick, you treat them to get better. and then the same symptoms would start creeping back . how kind of an organism survive these antibiotics? these are really in the early days when we were all looking for answers. i was having

a lot of patients coming into my office with poolside rashes and about 80 percent. we get better with standard antibiotics for 20 percent would not. so i would look at the guidelines, but unfortunately those guidelines were not specific enough to deal with the complexity of what i was seeing. so when i 1st was learning about lyme disease, i was really interested in an article that came out in 1999. grapevine urologist, andrew pac there his article was called lyme disease, the new great imitator. and in that article, he presented 6 cases that were fascinating with one case of an individual who had aggression helpers, a young child when he was treated, the c d went away. here we have a, an infectious illness that's causing psychiatric problems. so why was lives? he's called a new brain imitator because the 1st grade of material was syphilis. civilized is caused by a spiral shaped organism called the trip a name and disease caused by a spiral shaped organ. syphilis caused a huge variety of manifestations to mimic to other disease. one siege may be in the

great mass greater of 1989, and that it can do almost anything the lung disease, fire and key is cheaper than the cork squares. so it drills through your joints, cartilage. it quickly leaves the bloodstream, it goes to organs, it goes to the heart and the one disease bacteria really, but the door fries definitely one of the smartest bacteria on the planet. this organism knows how to change. it knows how to hide and the weight of age, the immune system. lime is more difficult to find on the blood test. and many of the conditions we're observing that patients that we strongly believe headlined disease, the standard test for lenses were negative. and as a result, it is easy for people to honestly, you know, confuse line for other conditions. the most common misdiagnosis that i've seen in

my practice or people have been diagnosed with chronic fatigue syndrome, fibromyalgia, rheumatoid arthritis lucas. multiple sclerosis is a big one. patients who have dimension alzheimer's line can imitate all of these different diseases. so it's a very, very complex organism and you really have to understand the biology to understand how to treat these patients effectively. we're now up to almost 500000 cases of one disease in america. every year. there are more cases of lyme disease and age and breast cancer combined. up 250-0000, about 10 to 20 percent will stay sick for some period. we now believe that something on the order of 2000000 people suffer the after effects of line disease in the united states. so 50 years later, here we are,

and we still haven't answered many of the most urgent and basic questions. chronic lyme disease is a rejected this term in american madison. the question is why it is my hotter to introduce snipes? keynote speaker? doctor neal specter doctor spectre is one of the rest campers changes in the country life community. so instead of going fortunate to have one of the smartest lives in research who's working towards better treatment and a camera to the line. right, this isn't just a problem in connecticut, new york, new jersey farm plans. and it's only getting worse. we've got people at the front of their lives are taken out of society,

and yet we have no clue what's going on with them. i'm coming up on the 10 years of a heart transplant recipient. there was an anything that i'll never forget friday if the surgeon walked into my room and he said to me, you'll be done by monday night on her transfer. the you can do all the right things in the world for the disconnect here to north carolina is 1998. to start a new job. our daughter was 3 weeks home. i had always been unbelievably healthy. i mean, i ran marathons who used to run 10 miles a day, 6 days a week. so there was a very,

for an experience for me to go from taking care of cancer patients to barely being able to walk 10 yards without having to stop. we went through on our end as a as loop as all the tests for now i get a completely fell through the cracks of the medical system and it wasn't until 4 years. and so my cell knows that i developed arthritis as i started piecing it together and found, you know, convinced i've lined it says, i got a call in my office, and the cardiologist said to me, is there a churn or by you know, you've got a severely damaged charge, you need to be evaluated for hard transplant. i'm not sure how i drove home just completely in tears. thinking this is that i cannot live beyond a certain edge. are guessing my daughter gribalder,

i'm not going to say and the milestones. and then i just realized, you know, barking to just roll over and let that be the answer. another, whatever it takes, a few minutes after telephone call. say you're a new hire. this doesn't sound a very hard time for all of us. we thought we were losing julia, have nobody to take care of julia. so my wife had to make a decision. one of us had a sale. my dad decided that he was gonna kind of go back to work and breaking my heart because i was running everybody's life. i couldn't control it. could do anything about it. we were struggling. elizabeth, how salary felt like an unwinnable battle?

and then something really extraordinary happened. the plane metal frame, frances year to new york city, for the very 1st time. it's almost like he needs to be like street the juliet realtor. i understand you're finding a to apply right. diagnosed for 4 months. and i have a clinical diagnosis that you come here today. i came here to meet the mirror. the she just garnered a lot of media attention. we started getting filters from every network. this is a strange, a story. vibrant, healthy, 12 year old girl. you know, certainly like a 2nd my life does change. mothers actually school,

they started this go from the page that was very successful. we started gave the letters from all different people who has one disease around the world. we went from being alone to being like expose and you know, we didn't realize it then, but we were in the middle of a tremendous controversy. convention julia had chronic lyme for father decided to find back only to find himself white in the middle of a mind boggling medical. there's a lot of this information out there about lyme disease treatment guidelines, followed by the cvc reason, way equated, some of the chronic lyme conversation to fake news. you'd ever treated julio. but he influenced many who did not too long. after that, julia was interviewed by the box 5, and i excitedly share this information with a list of my contacts. somehow, my

e mail was sent to dr. phillip baker. here's another man who has never met us. he has never had the opportunity to look at julie's medical records, and he rides, since the results of laboratory tests for the diagnosis of lyme disease were negative, were other possibilities considered to explain such symptoms? if not, wasn't this child denied the opportunity to get the medical treatment she deserved by obsessively focusing online disease? perhaps this is the most tragic outcome of the sad story. julia has been tested for everything under the sun. several times. i guess they have their own motives for being interested in julie story.

the tie science to like publish stuff, the 2nd one or the brand names, but this anti science articles to sort of make these broad claims. and then they make it like people like may here would question the testing the truth and try to lump man to people who believe, you know that the man doesn't exist in the world is flat and they're deflecting a real issues. we're kind of at the same as a down here, ostracized, by the very change in any i should be helping you. i don't think you have to have an end date of think there's something wrong here. what is it that these people

have in common? it can either send, they all have in common that they're praising for each site. if there's like something else, or if it's processed, the just maybe some of the 1st line science been done on this campus. and in fact, some of these projects are really the 1st to be done in this country. these are ideas that i've been working on and my colleagues have been working on the counselor field for 20 plus years. and now we're finally going to be applying us to live. this is what if i told you the weekend and the wind is in your body, the mean, just like it is for cancer, this would be revolutionary in the way we diagnose. and then the way retrain

the can i suppress this to receive a, to reflect the cold? when i was looking for answers for line patients, i discovered that there were multiple reasons why people stadium was like going to a doctor's office with 60 nails in your foot. saying you have foot to the doctor, pulls out one now and says come back in a month, you still have 15 nails in your foot. you're gonna have paint. some of it is that the lime organism is persisting, but part of it is also other infections, right? now they're released 18 different tick borne diseases that can be transmitted by the binding protect. one form of arthritis may be caused by a germ or virus that's being transmitted by 6. the insects that drive in wooded areas. research could at the same time in the distant future, leading to the development of

a vaccine against this one form of arthritis which is being called line arthritis the around 1980 a law called bundle was passed by don't change the patch of law to make it permissible for grand cheese of federal funds and also some of the federal agencies themselves to benefit from patents that were required to set the stage for people who waited one time than just pure sciences to actually make money from their research. and it set the stage for some pretty concerning conflict of interest. so okay, this is 1980. so guess what? 1982. that's when the really a organism was discovered. a delight, morgan is,

is arguably one of the most complex factory known to man. and be arguably, or maybe in an arguably it is the most heavily patented activity. hello, everybody has peace. expect the study out tonight concludes lab tests for lyme disease are strikingly inaccurate. experts, a test made by more than 30 companies who jump into the business are just not very good. it is now pumping money into developing a better blood test, a little late experts say, but a recognition that what was once the original problem is now a national one. so in 1999 age in the cities came together for a conference in dearborn michigan to develop a standard test. but the huge backdrop was

a vaccine vaccine was in development. and it would affect the way this test less construct the a wester blood as a test where they actually take a blotter and on this bladder they take the drop of your while. you're certainly put it on the block. it starts to move it migrate. the bacteria has proteins on the outside of its surface and your immune system recognizes some of these specific proteins. it's like a lock in a key. if you have 5 of the specific proteins that show you been exposed to line, you have a cdc positive west. one of these powers of one disease decided to do was to eliminate 2 of those key markers because they weren't going to be used in the development of the vaccine. those 2 markers, or just for the antibody response when you got to that. so they decided they needed

to remove them from the test so that if you had been vaccinated with non tested positive for life. and why is that important? when you take away the 31 and 34 bands, which are silent, specific for line, you're then taking away the possibility for those people who not have the vaccine to help diagnose this disease. so if you come to a doctor's office, doc, i got a swollen, ne, i can't walk, i'm tired, my memory is not working. i've seen 20 doctors, and they bring in the western block. and they've got 4 out of 5 bands. but you're 50 span happens to be the $31.00 or $34.00. they would call that a cdc, negative western one. yet you have why this is during the 1997, all this fighting going on. and i often wondered what is going to change people's minds?

what totally changed the world of blind disease. research was in 2008 when one of the world's best researchers alive, disease published a paper showing that despite antibiotics, treatment disparities can persist. when dealing with a very unique situation here, the current law, monday, biology, the adult teeth. are you ready, kate or any of bacteria? we find this standard lion phenomena. the lower is equivalent to the policy the chopped off the top part. but because the roots of this sort is still there, they can go back in these trucks targeting both parts in order to more effectively sure these positions the form of the disease, the 40, the federal government expenses very, to look into the problems of compare that to private foundations, which have spent something on the order of

a $100000000.00 in recent years on research that today is the answer. some of the key that warranty by the center, by the traditional mainstream researchers, the we have come a long way from when the same, like a pipe dream like yeah, wow, isn't this big creative freedom actually image for really are, and here we are, you know, 2 years later, for waiting to say this all important experiment, you know, a year from now the looking at a scan of the 1st patient cutting us hopefully to the current test. you know, only continue to feel the debate of whether a chronic sometimes are related to the persistence of living bacteria or whether they're related to or you know,

some other cause you could image this in the body. i think that removes salt out. i'm not sure there's a controversy anymore. that to me is pretty definitive evidence that you've got the bacteria and you need to be treated for an act of infection. i should have all these bacteria that the oh, the starry sky. look at the, oh my gosh. i didn't see it so you can see a little bit as

a bunch of 3 individuals. this is on the heart. yup. what if you could attach a tax? swipe size saw so that's the magic to show the target to normal to sure. this is a is like proof of concept the appropriate diagnosis and truth the and you know, of and vindication for everyone who has been denied care and told that there chris, this is like for you. it's all, it's all there has. it is all right there. the vendor has to near here

the good science will trump that behavior then with that change happens, hopefully it won't just be at the level of clinical practice of the public policy that will be insurance coverage and all the other injustices that i've really been perpetuate. as well, sort of fall by the way of side. the in the beginning there was opened. there was willingness to consider lots of possibilities. but over time, doors close. when i went back and looked at some of the early scientific literature, i found

a sort of familiar illness. so i'm just going to read from a 1994 letter by alan steer. it has become increasingly apparent that the line disease, fire, really bird offer a may persist in some patients for years of particular concern. recent studies have shown that the spiral key may persist in the nervous system and may cause chronic neurologic involvement. the word chronic is there a couple of times. once you get logged disease, revise immune system doesn't deal with it. care or it doesn't clear that sparky from your body and you can be infected for virtually for at a certain point in time that became dogma that there is no such thing as chronic the industry. that is a very scary disease. it doesn't really have to be, i think it's over emphasized how bad it can be with prompt treatments and recognition. it's not

a big deal. the, the 16th candle i've been told is for your greatest love or even your hero. when i thought about who that one person was, one person came to mind and that was you, dad, dad, the greatest doctors in the world weren't able to figure out what was wrong with me . but you were without you, i'm afraid i wouldn't be here today giving you guys a speech. thank you for holding my hands through every

blood test. every scary procedure and every single part time. you are my here. oh, my greatest love and my biggest inspiration, the other people ask me all the time. they were angry that they weren't diagnosed early on. and you kind of avoid that. i tell them i'm actually not angry. the i would certainly never wish what i went through on anyone but you know and on sense i feel like it was part of the bigger plan for me,

the big about people have died and that are dying. and the people who are alone, and i feel very guilty because i'm getting all this help and these people need help to feel like i'm obligated to jesus that this needs to happen in order for there to be a change. i was

a different person before line normal girl. now is the time for action. we must stand together as one of the people suffering right now. let us be there, boy. the can't give up. because if it is you the family, you can't just turn people away and say, there's no hope people are contacting me all the time from the i need to share this information because this is a wage white epidemic in the case of cove and we are expecting that there is something called long and difference is they are being taken seriously. but my husband is quite demick for decades. and yet for too long,

the problem has been minimized the settling. this debate is going to require a new research, new science. we need new ideas that we're interested in, people who are willing to challenge sale

the we have an early warning your health this morning scientist predicted this could be the worst that lyme disease season in years. the,

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reading gentleman has to go the business dw, news life from berlin, 6 months into the war in gaza. israel says it's reducing troop numbers in the south of the territory. the army says just one brigade remains in the area of prime minister benjamin netanyahu remains defiant, telling his cabinet. israel is a step away from victory, also coming up for one to march 30 years since it's genocide, more than 800000 people were killed in one of the most horrific episodes of the