Skip to main content

tv   Designer Sht  Deutsche Welle  April 13, 2024 1:02pm-2:01pm CEST

1:02 pm
a fast fashion as an environmental nightmare. a closing graveyard image of land desert. this is where things wealthy industrial nations no longer need, and the lightest textile waste gets stranded here. all about the final stuff in the global fashion industry. fast fashion. watch now on youtube. videos and thank you for the 77 percent comes who i just got on 65. follow us while your top 5 years, 31115. we are here to help you make up your mind. we are here on please find your mind. so the topics i'm much up to you from couple to fix the
1:03 pm
new culture and in 15 minutes, that's part of our community life on the research is now on the go go, go, go, please, quickly, before i so the pieces my life with all sort of collects an auto immune disease that attacks because of my condition. pit slips like this or regular
1:04 pm
stuff and i saw you last on but 2 months ago. the last time when your year who are having some symptoms. again, i know you have some in a blood mucus and you know, sometimes diarrhea. my gastroenterologist, dr. kim sees a lot of patients with my condition, many who require surgery and hospitalization. in comparison to these more severe cases, i sometimes feel that he views my concerns as trivial, but you look to the is not as severe as you know, other folks. i mean, your life's not in any way singularly impaired, right? because of the condition or this is my life severely impaired? well, i spend close to $500.00 a month on medication. some are taken orally, and some are taken. rectally, shook it up. pop it in. you could do it on your left side or just feeling frisky,
1:05 pm
face down. sometimes i have to take more severe drugs like steroids, which include side effects like acne and hair loss. while these medications help, they're not full proof. i have good days and bad days, and the longer i struggle with this illness, the more frequent and severe the bad they seem to get. obviously this makes me a very annoying person to share a bathroom with thank god, i have an understanding partner. like it's obviously like a frustrating thing to be dealing with. it's frustrating. see your best buddy. suffer. yeah. so back to dr. times question is my life severely impaired? my life isn't severely imperative. it is slightly impaired though 5 years of pain defied, no pun intended, you may need to change your mind said i don't want to believe that it's just chronic and will be forever. so i just always hold of this hope that one day to
1:06 pm
figure out. i hope i hope so. in the future someone will find a cure, elective, magical wandering for that to show this of we're having fun curia. he says that, but i'm always looking for ways to disprove them. i dream of being one of those people who bio hacks their health with a natural solution. and i wonder if this might be it a field transplant sounds like a pretty nasty joke. someone else has faces, could save your life. maybe you've heard about taking this to a sample from a healthy donor and transferring it into the got the recipient, but animal or capsule. the idea that the bacteria inner guts could play a role in auto immune diseases like mine, as well as autism, depression, obesity and more has been catching up. in the past 10 years, there's been a rapid boom in this area of medical research. the problem is, who is not yet fda approved and we're still not entirely sure how or if it works.
1:07 pm
maybe one day if your doctor will be able to prescribe it. for now, it's only available through clinical trials. when i hear successful gi i why stories like this, it makes me think why not meet the eye fly, which one is disgusted? so do i wait for big pharma to turn it into a pill? or do i take matters into my own hands? now, after dealing with this book for 9 years, i'm not willing to wait any longer. and i'm curious about people transplant because i have heard anecdotal stories of people who are able to get off medication and because of the case reports and i need to replace it. but i need proof from centurylink. you know, i think i twice, you know, what i figured you would say that, okay, i don't think i have any more questions. i don't wanna waste your time. could i get a prescription? you know, i don't ever want to have to ask him for another prescription again. so i've got to find a way to source my own product. if i want to get off all these meds,
1:08 pm
i need to figure out what went wrong with my body and the 1st place i started out as a normal healthy kid. what went wrong? is it all linked to this micro biome? everyone is pausing about the call when you get back to your area that lives in our guts. this thing is like an organ that we have just discovered that we didn't know existed. it's as if we discovered the liver for the 1st time, and we're just starting to understand its function in the body. we realizing there is quite a number of diseases that actually are associated with having less microwave. so less diversity in your micro bottom. so you have less microtubule chains. auto immune disease is to obesity and metabolic syndrome and punish about disease metabolic syndrome. a tracy multiple slurries has parkinson's, regressive autism, anxiety and depression. so all those people suffering from these conditions might have a lack of bacteria to blame. how did this happen? we have this increased incidence of all deciding and diseases like an epidemic infectious disease when down, i mean, if you want to visit didn't happen because we change genetics genes don't change
1:09 pm
that fact. something happened in the environment and living in a world that really isn't conducive to improving and promoting micro we'll diversity and the best way that i think we know how to, based on what the science is showing that the rest of the week is pretty bad for the micro diamond if you will micros control cuz they would tell you, please eat no 5, the farmers would eat food with the dirt still on it from the field. how much is the normal micro we'll diversity were people getting from that? we don't do that today. i mean, you can't think of not watching your food today nowadays, we sanitizer food as well as our hands and our homes on a regular basis. we've become so afraid of the bugs that can harm us, that we've inappropriately shielded ourselves from the ones that can actually help us. and balance of the perfect example of this is antibiotics. i can't imagine it as like this. you know, me rolling through what ref must've corresponds you just don't know what's going to survive and how much 90 boss has to live saving drugs. so it's never say to take
1:10 pm
100 politics because they haven't been use very much additionally and the cost and i think so that we're suffering damage that is being closed plants are going to take this sort of compounding of these generations so that now people like you know i, who's been exposed, trying to volunteer on whose parents to be in in space. 20 boss is probably have less microtubule diversity than our ends, just as he never saw an antibiotic before. and the long it seems like many kids today are already at a disadvantage. by simply being born at the tail end of several generations engaging and routine antibiotic use. among other things, the moment you're born, the 1st dose of hopeful that curious comes through the way your delivered all that gross lined covering a baby on its way into this world. we're only now realizing how important that is to establish an unhealthy colony of bacteria in the got. it seems like everyone in the western world has been exposed to at least some of these micro biome depleting factors. the question is: can people transplant save us the to
1:11 pm
meet mark smith and caroline edelstein looked into the flood. there an impressive young couple that sells poop for living. believe me, it's cooler than it sounds. it all started 5 or 6 years ago when my cousin got seed us, he ended up shooting himself at home with a single transplant using his roommate stool. and it was from that experience that mark who is working on related research at the time really got the idea. first of all bank hold on and my cousin got see this. let me explain that real quick. see this or see that the cell is a bacterial infection that wreaks havoc on your duct. this is not your average stomach buck. it can be deadly. the 1st line of treatment for see this is antibiotics. you know, till all the bad bacteria that's causing the infection. but in recent decades, seated has become more virulent and difficult to treat. it's kind of crazy that antibiotics which are like an atomic bomb for bacteria,
1:12 pm
or losing power against this got infection. and fiegel transplant which works the opposite way by inserting good bacteria into the got into or see different with a 90 percent success rate. it's astounding how well it works for this particular illness. and mark and caroline believe fecal transplants could unlock answers to more conditions beyond fetus. the greatest ambition that we have some organization that i have for, for, for my career, is here. we can try to reverse some of the broad trends and increasing these 2 things that basically didn't exist 50 years ago. well, if they believe fiegel transplants could potentially trade in illness like mine, maybe they can help me out if i wanted to do with them to, you know, would i be able to buy store samples from your lab directly? no. yeah, we will only providers samples to clinicians and specifically to connections for performing the procedure for patients who have see death and who have failed 2 or more rounds of antibiotics. that's right. see this is the only condition fiegel
1:13 pm
trans that is currently approved for other conditions or still in the research phase. you may be fortunate to have a clinical trial going on near you for your condition that you qualify for. if not, you're literally out of luck. and so we did have some people steak out our parking lot, trying to figure out who our donors were and trying to approach them directly. yeah, and i understand why open biome is known for having the most elite store donors. the day after my screening was done and the store sample was passed, this is a 3 percent chance of getting into this still donation program. and that's a bit more difficult than it is to get into harvard. so it was, uh, it was definitely something that was exciting. and a great thing to be partner with us is october. um and since then he's donated about 20 to nice little symbols. that's about 10 samples a week at 40 bucks. a pop. kershawn is breaking in about $400.00 a week. there was
1:14 pm
a little part time job. well, open biome won't give out their exact criteria, list natural pads to help people source their own donors can give us an idea of what to look out for. and it's a lot because what happens and it gets doesn't stay in the get. it affects everything your brain and affecting your joints, pen affecting your skin. so really i have people looking for the healthiest person that they can find. that would be my partner. i always considered as a pretty healthy person, but i never thought of him in terms of donor eligibility. someone who is not obese, it doesn't have any chronic or acute disease, no chronic infectious disease, no mood disorders, no history of cancer, know metabolic diseases or chronic fatigue or chronic pain, send drones. al checks, all those boxes that can have had antibiotics and at least 6 months they need to have a form bound moving every day or almost every day. and they need to not engage her
1:15 pm
behaviors to put the risk of infectious to the ok. he's good on all those to in addition, i tell people a daily you want a donor, so was badly delivered. and breast fred, who is clear skin and clear thinking. and we're just as a health superstar, it's a diet that is whole fluids based with diverse fiber fluids in there and is athletic. we are active. and when i go through that whole list, people say, where do you find anybody on earth that fits all those criteria? but we find them i guess i don't need open biome after all. i already share a bathroom with a great potential donor. wait a minute, what am i doing? this is weird. this is disgusting. and i would be so embarrassed if i tried it and failed. when it comes to these d i why success stories i see online. my biggest question is, how do you even get the guts to try? it was the end of the line for me where i was like,
1:16 pm
i have to do this if i want to be able to have a life. cuz what's the point of living is this is my life charlie curtis d i y fiegel transplant at home using his mother's guy as a donor who is going to the bathroom so much 40 times today. it could hardly walk, so it was a disgusting disease that was awful. a couple of months earlier, i was having gears with my buddies and having a good time university. and then next thing, you know, i'm like, living in the hospital, i lost like 75 to a 100 pounds. and i have doctors in front of me who are arguing about efficient taking my call in out or not. and for me, i knew i was done, and i knew i had to try something. and i'm sure that you've tried it. a 100 things, right? the difference between me and this guy is, i'm not hospitalized. my doctor thinks i should be happy to be able to manage my condition with this medication. but this medication isn't making me better to band aid. soon i'll be moved up to a higher class of drugs. and what happens when that fails? well, you know, i can't, i can't downplay the medical system,
1:17 pm
but did the medical system here save my life and give me my life back? no, they weren't even encouraging me to do my own research on it. it was a dead stop. so sky took a leap of faith and reached out to dr. brody on australia and gastroenterologist, who has performed more fecal transplant procedures than anyone in the world because they don't face the same f d a restrictions there. every doctor i've spoken to so far has been against the idea of taking on this procedure, d i y. but what is the guy who's overseen more than 16000 of these procedures have to say about it? so patients have collides as i would certainly want them to find a doctor who will sit device but just stop in person. getting better is not a physician is wrong, because you need to get better at a time when history doesn't have to mix use to do this with kind of legislation. within like a week or 2 i subs bleeding later i started to gain a little bit of weight. it gave me a new, you know, start button on life, which i'm grateful for, no symptoms and no medication,
1:18 pm
no symptoms and no medication. it's something that i would do a 100 times over in my life. i feel like i have a new system. i feel like i have a new body like a new digestive system and i feel like it's working on my behalf now. me, which is great. i feel normal again. i don't remember what it's like to feel normal over the past 10 years. it's been ingrained in my mind that i will never feel normal again. it seems like you have to believe i could never end up cured like charlie, which county has a unique situation. and he had a unique novice. most important is a mouse and there's my kids. he is a martian and i look to him and kind of go, oh my god, you're so lucky. it just the one last to prove there's life when miles. so here i am choosing to believe it could work. i'm terrified of what it might feel like to be proven wrong, but i'm willing myself to try anyway. 2 i do have something important to ask you
1:19 pm
and it has to do with this documentary that we're making. i just want to start by saying, i'm very grateful to have years. my partners are so kind and so generous. a very hillary no good. good will also have a great metabolism. you have no history of serious illness. you haven't had any antibiotics for over 20 years. you haven't gone to any foreign countries in the past 5 years. i'm working on it. does he have a passport? it's not like i'm, you know, some hillbillies was want to travel or kind of stuff. okay. all of this to say did you make me the happiest girl in the world and be nice to me for real. yes. sure. yeah. do
1:20 pm
you want some? i'll give you some buddy. you'll see mice. yeah. so i'll give you search. i'm your donor think. yeah, that's it. that's what yeah. how? larry's. i'm down being somebody. yeah. the 1st just to get out tested. i know where he's been, but it can never be to say the good is going on. bio hazards. that sensitive well out goes home to put up into these bio hazard containers. i'm moving on to step to gathering supplies.
1:21 pm
the fast plastic gloves lender 1999 milkshake functions. movie function. that's all i need for supplies are locked and loaded but we still haven't gotten the all clear yet on our blood install test. so on to step 3, waiting for the call, the we finally found the doctors who agreed to run test on as blood and store. okay. thank you. the good. good. so, was this the green light i was looking for. honestly, it's more like an amber,
1:22 pm
but i'm already in the intersection. i guess we got a barrel through. so what does that mean so that nobody wants to star good cleared for take off. the next step is on oh, i felt like approved midwife. i have a patient fly in from another part of the world or another state in the united states and say ok, i'm here for f m t. and the donor would not have a balance of it until like 9 o'clock at night. because you just can't predict that . and so they call me and they say the eagle has landed and i call up the patient. i'll be there in one hour. when i left the apartment 2 hours ago, all so if you may or may not have a deposit is waiting for me when i get past the
1:23 pm
hey how's it going? good. how are you? good. good. anything for me? yeah, i was in the fridge. they put it in the fridge. yeah, i said to give a fresh antenna ball in a ziploc bag and then uh, another bag as well. and then as in the bottom drawer. is it good? is it enough? yeah, yeah, it's not yeah, sure. yeah, no more. no. okay, so let's get into a blended up. let's get the hazmat suits out. let's do it. with all the prep work done. there's only one thing left to do with the way i
1:24 pm
started. it was also pretty broad. goes to the blender pushing button 1st time i did it, i regret it. i didn't have a no rang. i'm under pretty disastrous fix next time with a face shield as well. the 1st time i made gravy, i called my aunt and asked her how to do it. her directions were clear and concise, and i made great grade the 1st time. i couldn't really call my aunt about blending to spoons of to into the bottom of the blender. and i caught my breath and calmly poured the bottle of sterile se line solution over the pool until it was just covered. then i press liquefy, and i watched with
1:25 pm
a sort of horrified lea is my poor turned into well, frankly, it looked like crazy. i stared at it, thinking it patty would be proud of me for making such as smooth looking gravy. then i jolted back to reality. what a mess? first i wash my hands for far longer than the recommended 10 seconds. then i spent quite a long time cleaning up the bathroom floor, waiting down the sides of the toilet and busing. the tops was to add a septic white. i finished press spring, my whole body was slice off. not really. i felt like it though. and then i looked at what i done. it was perfect. i did, it very was lying on the futon, hiding behind the curtain side rig that i figured it had to work. i had to believe that i didn't really have an option. my other option was my son was gonna lose his colon. and that wasn't an option, so i had to believe that for what are the
1:26 pm
chances that this is going to work for me, the way it worked for charlie, though we don't have any conclusive answers yet. data from clinical trials starting to paint a clearer picture. fortunately for me, all sort of colliders has been one of the most heavily research thus far in the field transplant clinical trials. so for my condition, at least there are some steps to turn to. so we were the 1st in the world to register a study, a randomized trial, a fee to try and spends notes to try to just look to $75.00 people where the active list of clients are. so we randomized people transmittal to see then they had one trans, spent a week for 6 weeks at the end of the study. week 7, we checked symptoms. we define our mission is options for services, almost options, extensions of the complete feeling of about the we achieve about 1025 percent of people having faithful transplant compactor 5 percent feedback rate. this was just
1:27 pm
to be significant. and in fact, this works at the week 7 as well as occurrence or therapies that suppressed indian system like logics 25 percent retention rate at week 7 might not seem like a lot, but it's actually just as effective as many of the pharmaceutical drugs currently being prescribed for my condition, and what about side effects? they all pass and it said that the function smells differently, but nothing rather stopped anyone from using it and nothing major. yeah. but i don't feel anything at all. how many of these am i supposed to do before? i know if it works or not? the mcmaster university study does 8 treatments over an 8 week period. dr. perotti and mark davis recommend about 10 days. a charlie and sky followed a slightly different protocol and it involved a lot of proof transfers. and here we go again.
1:28 pm
okay, i got this, the. we went through this journey together and you know what she was going inside of me and what she was feeling was going inside of me. and the hormonal transfer was a very real thing. charlie dimension though, some side effects that he was experiencing hormonal side effects to remember. oh yeah. so that was pretty fun. so at the time i was going through menopause, and so as he covered in sweat, they read, i just know it was happening and we sort of put 2 into together. and so i learned how to manage my mind and post symptoms. in my case, it states reading and i can't say i'm cured yet. in fact, i can't say i've noticed much of
1:29 pm
a difference at all. i'm holding out hope that i'll see some improvement soon. as for al, he's taking his duties as school don't are very seriously. whenever i start questioning why i'm doing this, she encourages me to keep going. i'm so grateful that he has my back in this weird adventure the so if this is what life looks like right now, but at least bring it together. and when i'm not doing people transplant,
1:30 pm
i'm researching it. seriously. i can't stop thinking about and several studies of suggested. for example, the use of antibiotics that the young age made for dispos, a child to develop a basic piece, laser one 3rd. now, multiple animal studies showing that when you do a s m t from lean the mice into these monitors, so they will actually lose way to reduce the fat mass. and the reverse is also true . so wait a minute, wait, might have less to do with how many calories we consume and more to do with what the bugs do with those calories. we tell people who are obese is that a diet and exercise? what if the benefits of the diet works for the microbes are eating this process? food gets absorbed early on in the intestinal tract for the time. something percolates down to the colon. for it most make groups are they're not getting enough to eat. so they're sending signals back to the brain,
1:31 pm
we're hungry. so always more what other ways door got to communicate with our brains? for depression, for example, we know that it's a disease where there's usually a deficiency and a brand new or translate or cod serotonin. we assume that issue is a brain issue, except that most are saratoga and the receptors are actually not in your brain. they're actually in your got. we are aware of that of my groups, and i've got to look into a brain little bit, my science fiction, even a vocabulary, even though we don't know it. we have got feelings about things we have. you know, we get foster flies, most things we worry about things that everything is government in no brain by the way that we feel, you know, got hi, sorry, almost ready. or you just do thing is yes. how was it?
1:32 pm
it was good. really? yeah. what you mean, i mean there were no symptoms whatsoever, and this is like the 3rd day in a row with no symptoms. so i didn't want to say anything at 1st because i thought like, now maybe this is fluky, but i know this is gross. talk about what this is like so exciting re it was like it was perfect. that's great. so way, are you trying to say that this is like uh, yeah, i think it's working amazing. yeah. the key. okay. and i've talked to the excited about it. i try that again. it's and called at the risk of sounding like
1:33 pm
a pharmaceutical commercial. you should definitely ask your doctor about physical transplant today. this is the 1st time i've been symptom free in years. there is a huge difference in my outlook when i'm sick versus feeling well, like. i'm sick, it's really hard to think the on the next moment or the next bathroom. doing well. it's like hope for the future. we get a more beach space. yes. i didn't having variety and traffic on the way here. they're not even a bathroom on the beach. i didn't even think about that until i know there you go. i wouldn't have been able to do this. i'm saying life can be good, but i keep doing this for forever. if this is where it gets says i'm or the right now actually i can give you a deposit right now. well find you a little to the container here in the future. so half don't waste it. that's close to $200.00 on the water. ok,
1:34 pm
you go and i'll follow now to f m t is doing his job. i think it's safe for me to get off my medications. something i thought i would never be able to do up to this point. i haven't told anyone about my little freak of transplant experiment tonight and i are having dinner with my sister and my brother. i figured a safe place for me to start would be coming out to the people who are closest to me. but i better wait till we're done eating. so alan, i have been trying this thing that i've told you guys about before called f m t the cook up above the the but finally asked the ran isn't that oh eh, anyway, that's so hasn't been working. i feel great. i've had no symptoms whatsoever.
1:35 pm
now i'm off all medications, and this is the only time that i've ever been able to be on no medication and have no symptoms as awesome. so they've already seen that it can cure see to now they're working on other bower related issues. they are starting to find these. we are random side effect. this is going to create a whole new industry for models. i'm going to get rid of my c difficile, but i'm also going to guess we have the actors going to go here. if they could give you a tell or supplies toilet so that you would lose 10 pounds the next 3 months, but you do it? well that's, i mean that's a loaded question because there are told us that claim that i would never i mean, even from of any point i think i what am i guess my, that culture can be the healthy as it possibly could? would you, would you take us depository that major skin look better for 2 days? if i had an event? yeah. so the other question, how do you know what is good?
1:36 pm
like what research was done to figure out that his work for, you know, living with what research was done to make sure that that would be safe. there wasn't gonna be an enzymes in his was gonna give you additional to have it like medically, no, you can't use the whole thing. that's why we're doing it this way because i'm assuming you informed the doctors start. have you told your doctor that your start? no, it's good. it works. it's good that is helping but i mean, your doctor should be involved. this is not, is a change in her, in everything to do with the but you need to go to check in with the doctor. so go when she needs to go for her checkup or bigger. but if you can't just be like, oh my gosh, better. oh, what's the last 6 months? i don't know, you know, a change to pay. but charging, they should be involved. they should know. i will tell dr. kim essentially. but i
1:37 pm
know what his position is going to be. same as every other researcher i've spoken to. i used to get a lot of emails about how to do yourself, should i, can i how would this weight them be to have a lot of good medicines for me, for my son, what i would do easy for him to say. for the past 9 years, all i've ever wanted was to feel normal. not on chronic medications, not anxious every time. i leave my house, not scared of everything i eat. and now i finally feel like i found the solution. every one told me didn't exist. and then it happened. i've started noticing some symptoms coming back. sometimes i wonder, would this be easier of our part of a clinical trial? so then i find out the top researchers in the world don't have the answers yet either. here's a bizarre example of that. there was
1:38 pm
a study about my id point. 80 is a good friend. and he noticed that half the patients i think that he did with the single dyna made his trial work best seemed to be a better effect. and that one guy with this thing to do better than the others. so there were 5 terms in total. what we can say is no longer respond to, to don't a and most of our responses came from down at bay. and that was a big explanation. i can assign typic, well, they should come week food strong to. so what does donor be half that makes him or her so special? apparently the researchers aren't even quite sure. if you look at that down the stove, there was nothing special about that combat system available healthy down this way . we're using them. but this is obviously a focus of research going forward. do you see what i'm saying? even these researchers are admitting we don't really know what we're doing. maybe
1:39 pm
it's time for me to admit the same. but how do i break it to him? i still don't or that he may not be a donor be. i didn't mention it at 1st, but i have seen like a bit of symptoms come back for real. yeah. like in the past week. yeah. that's no bad. i went into field transplant, knowing there was only a 25 percent chance of it working for my condition. when it did start working, my thought the mentor was cured. so why am i flaring again? there's lot of technical unknowns. it talks about familiarity, right? and so he found that there was one donor that kind of worked but it's not like they all got better and it's quarter got their 75 percent did not. once they even have the right to. how do you transfer this micro community or how many times they have to do it from the perspective of a patient was quite as you say, you know,
1:40 pm
there's 75 percent chance don't work. they don't know whether they're the $75.00 or 25 percent unless they try it. and likewise, we don't know how many times it'll take. okay, fine. then i will do it a 100 times. if there's a 25 percent chance that it might get rid of this disease forever because it does happen. if it does get rid of this forever, that's much less than 25 percent of anecdotes. well, that's what charlie accomplished and spent like 6 years of no symptoms and no medication, no symptoms, and no medication. so that was the goal i set for myself, or my expectations too high to what i would emphasize actually, this isn't the cure at the moment, sir. everyone has been part of the shape of child support, child. they stopped. that's equal transference. all in that 1st trial have now relaxed as yet we have no longer here is completely well off of their medication for many years. so even don't or be didn't you or anyone fail relaxed?
1:41 pm
this is starting to feel like everything else. i've tried the works for a bit. i think i've figured it all out. and then i flare again. i better get back on my meds before this gets really bad. the whole point of this thing was to never have to ask for another prescription again. was a stupid for getting so excited. that is really is a double edged sword because we want people, as you ask about micro, by research and the potential. but he's also dangerous because if the general public or the broader community is under the impression that the micro biome is really close to carrying a multitude of diseases and then it doesn't. it's just such a disappointment. you know, it just, you crash down. and then you get mad i'm
1:42 pm
not feeling so good. it looks like microwave is, is back. i guess night flush thought that i wouldn't have to experience that kind of pain ever again. i was past it. and now i look forward and think how many more years am i gonna have to go through this before i find something that actually works with the i didn't want to have to continue taking prescription drugs and steroids a year after year. and my doctor was not going to help me accomplish that goal. so i felt the need to try something different. i research the people who had experience with this procedure and i learned from them. i made a decision which included some degree of risk because i felt that had the potential
1:43 pm
to help me more than the current treatments i was being offered. the problem is, people transplant wasn't the magic bullet. i hope that would be. which is hard for me to admit because i don't want the conclusion of this film to be that i should have just done what my doctor told me to do. as an audience member, i'm sure you're dying for me to answer one simple question. did it work or not? to answer that, i do need my doctor's help. i need to ask him to run some tests. hopefully his assistant jenny, can spot me in a hi jenny for jenny. hi jenny, it's suffer on cassidy calling again. this is suffering calling. it's for on calling again. if you could just call me back at your earliest convenience. i was hoping to talk to dr. kim. i left her a message a couple days ago for dr. kim plano, dr. kims very busy, but i'm just not feeling very well and i am calling looking for advice or advise me on what i should be doing. please just have him call me back as soon as possible.
1:44 pm
just have him call me or email me. thank you. bye. if you have an illness like mine or your husband had an illness like mine where he was just constantly full of an in chronic pain and on medications that made him feel terrible. would you not consider doing fm to with everything that you know about it now a, i'm not sure. actually it's so hard to say because i'm not in that situation. right . like to have my scientists have, but then i have a human hat and i love my husband and i would do anything. i think that i would be in a situation where i am the situation that a lot of people are in 1st like i would do anything. it goes back to this discussion of risk to benefit ratio too. so for this person who was sick for them, that risk benefit ratio may actually lee in their favor and it totally depends on
1:45 pm
their quality of life. mm hm. as a researcher participating in this phone, do you think it would be problematic to feature in this phone? somebody who is doing f m t at home for collide is to think that that would be irresponsible as a filmmaker to put that out into the public. an open people's eyes to the possibility that you can do this at home too. i wonder what the public perception would be to that. i think you're going to get a mix. they're going to get all types may be the majority of population does think it's weird and there's a big factor in, oh my god, i would never do this and is just the small proportion of desperate people who are watching it that may decide to take action the stories that are sensational makes the news. we just care about their story because they're passionate. and so like when you read reviews on a product, how much can you trust them? because it's usually the people who had a very, very good experience for a very, very bad experience with people who liked it, but weren't particularly touched by one way or the other art is likely to leave or
1:46 pm
review. yeah, and it's not a sensational story to say, i have quite as i tried this, it kind of worked not that well by kind of feel better, but that's it. but i think if that was the story, then that would be great because it's important for people to see that. well, maybe this is one reason why i shouldn't do at home. or maybe there's one reason why you need to wait for the science because we just don't know how it works and it could just not work at all. or let's recap for a 2nd. after being in a continuous flare for years, within 2 weeks of doing feel transplant, my symptoms went away. i stopped taking medication. i started leaning off fecal translate and it's 6 weeks my symptoms came back. i got into a really bad flare. i went back on my medications an 8 weeks i'm feeling better again. but not perfect. feel like my symptoms are milder than before the fecal transplant, but there's only one way to be sure the
1:47 pm
i o you estimate you. how are you? good. so how have you been um, so i've spoken to you about f m t a few times. yeah. i've actually started trying f m t. okay. using him as my donor. so how, how did you do it? did you have via anima, through like a blender to blend the stool with lakes water or sailing solution and then put it into an enema. okay, so i ended up getting sick anyway. yeah. but i do believe that while i was doing it, it was beneficial in some ways when it comes to ibd, especially, we do not have good evidence for that yet. mm hm. but anecdotally, you think it's working. mm hm. but the other thing is there's some placebo fact,
1:48 pm
even look at clint, good fires, you'd be surprised. okay, key doesn't seem convinced. but what does my colonoscopy show? so i to a kronos for look really good. nice. and with the by offices to looked at microscopic degree of information. biopsies from here, here, here, here, here, the content on really fantastic. that's the part of your racked is not really trusted. here we did assume with oscar p right extra unit and was more expensive. so in terms of extend was up to by here. okay. instead of just for you down here and was a little more in a severe involvement when we say, oh yeah, it, it just so there's more kind of grier changes a lot a lot there. there was a yeah, you know go so it's a much better than that. yeah. yeah. that looks great. yeah. it does have to stick together. the linked forever is doable.
1:49 pm
so it did work. maybe i'm not 100 percent symptom freaking, but there's definitely been some improvement. i begin this journey by hoping for a cure. is it giving up to be satisfied with less? al thinks we should keep trying. but i'm wary of getting my hopes up. how you feel about everything, just feel pretty good deal. we had too much of doing you sort of scans, they looked significantly better. we kept going. they must have looked even better than that. but what if we keep doing it and it still is what is, it never works for me the way it works. sure. never change. it's still not going anywhere. of
1:50 pm
the i saw this young woman in her late twenties, early thirties with feelings colliders. she needed her whole calling or moved to save her life, but she didn't weigh enough to be safe to do the surgery. and she said, could fmc help? and i said, i definitely would try it if i were in your shoes. dated 10 f and to your attention and it was and they saw doctor no benefit in clinical symptoms just as much pain just as much blood. it was horrible and we were still scared for her. and she had the cold ask if you're done and the and task was said, what every your doing shape doing it. because you have profound a coastal healing and the distal 3rd the last or if you're cool and 12 sheeted, 25 for 37 to your attention and it was before she started to see a significant benefit. i continued to make people transplants, and total did about $200.00 sequel transplants. over the course of 2 years,
1:51 pm
my symptoms continued to improve but never quite reached permission. i decided that despite my condition, life had to go. we got married. we travelled and in may of 2020 i got pregnant or 2 months into my pregnancy, michael light of symptoms completely disappeared. 3 years later, they still haven't come back. my most recent colonoscopy show complete has the logic remission. in layman terms, that means there is no longer any sign of calais to my body, except for a bit of scar tissue that remains in my rectum. i've chosen to remain on one form of mild medication for now. maybe one day i'll be able to get off medication entirely, but if not, i'm very happy with the state. i'm in. i truly feel that people transplant targeted the root cause of my condition. with each passing day, the benefits seem to increase. and dr. brody says that's not uncommon if people to
1:52 pm
fill in and then wait and wait and wait inside the lining of the val done as food can attach itself to the human tissue. and it takes, he is. so as you wait longer, longer the large number of people got permission to to see is an unusual phenomena of presenting rejection of, of the known compatible tissue called baby. and it also is luckily, immunosuppressive but the clauses maybe the fecal transplants were working slowly overtime and pregnancy provided the perfect environment for them to take whole. i know my case is anecdotal, but as dr. brody says, you just need one motion to prove there's life a mass unit. one reversal of colors like yourself. to know that the
1:53 pm
dancing works, studies continue to show fecal transplants can cure see death move up to 90 percent advocacy. and some pharmaceutical companies are close to developing an fda approved fecal transplant pills, which will eliminate the exact error and makes people transplant for see to far more accessible. for other conditions. dr. quartz thinks it will be a while before we have a designers product that works for individual indications. scientists have a history of messing around with stuff that's far more complex, that they understand. a common example with the breast milk. food industry comes out to a formula. why do the breast milk we can make formula? it's synthetic and scientific as a great to decades to learn. actually, we didn't quite come close to what the natural product is, but don't quite understand. all the intricacies and complexities dr. brody believes any 50 i approved pill will help accelerate research for all conditions. once you
1:54 pm
have an easy product to use, we're going to have numerous new trials and various conditions, such discoveries, etc. i encourage anyone who is interested in this treatment to start by seeing it. there are clinical trials going on in your area for your condition. you get the safety of doctor supervision and you can feel good about participating and research that advances this field. further, d i, y, physical transplant was a big mess. the experiment, a long term commitment full of ups and downs. you'd have to be crazy to take this on. but i know what it feels like to be desperate enough to try anything. i would do it all again in a heartbeat, because it gave me my life back the
1:55 pm
the
1:56 pm
shift your guide to life and it did to, to you know, the latest online trend to navigate your way through the digital jungle global perspective. we'll be your guide and show you what's possible. you decide what really message to you in 15 minutes on the w please.
1:57 pm
we're heading on down into the london underground. the 2 is the oldest subway in the world. it's full of surprises. so everyone on both please, and of course don't forget your an incessant minutes on dw, the landing on neighboring towns. here's the field as a huge success for instance, then it's personal veering in 75 minutes on d w. the
1:58 pm
green innovations for green and green chains, the holy gray off electron mobility and green revenue since global. so listen to all loud climate problem fixtures. i'm trying to tell the rest of those channels . we've got new videos every friday tried to plan. it's a vis the shadows of jumping color. these cod costs and video shed light on the dog is devastating. colonial har is infected by germany across and he employed a score farms and destroyed lights. what is the legacy of his wide spread races, depression? today, the screen we need to talk about here,
1:59 pm
the stories, shadows of german colonialism, project cassandra, re determined through our investigation that has below was operating like a global drug or not somebody normally theaters, organization, the object, financial needs ranges and bring them down to the team agents from the american drug enforcement agency means as well as another whole level. they wanted to go after their money. they had from lies themselves. we needed them to reveal that so world and to their own people. why did the us government suddenly shut down project? cassandra in 2016. 03 pod documentary series. i'm asking has paula stats may 4th on d, w. the
2:00 pm
. this is the w, use my from brother in knife wielding attack and killed 6 people in sidney police. shoot this to inspect it at the same. several people are injured in the attack in a shopping mold, including a baby, and iran sees is a condo, ship linked to waves, railed in the straight, a footboard that comes as us. we. the joe biden gives a one word warning to tehran, should i consider attacking news with the president on the schools you with the legions to as well pensions in the region are at the breaking point. the.

10 Views

info Stream Only

Uploaded by TV Archive on