[000:00:00;00] ology associated with fingers, for artyom, this is total syndoctelia and abnormal structure of the skull bones, they said that i was young, healthy, that i had a chance to give birth to another healthy child, why ruin your life, and did you think of following their advice? no, of course, this is the most sacred thing i have, artyom, this is the joy of our entire family, we simply adore him, and when your boy first appeared, you heard your son’s first cry. no, there was a double umbilical cord, and that’s why he didn’t cry for a while, i asked the doctors, why doesn’t my child cry, but for me it probably seemed much longer then than it really was, and after a while artyom began to cry, they immediately showed the baby to you, no, they immediately took him away, they measured his weight and height, and there they wrapped him up i was already in a diaper and rolled up to me in a special

hospital bed, for small children. the doctor said that the child does not have fingers and that his head is of the wrong shape, and you told the glad people about this, when i gave birth the phone was next to me, i called my mother, of course, had a lot of emotions, tears at that moment, my husband was next to my mother, and i explained to them what the doctors told me, they supported me and said don’t worry, i need to look for doctors, i need to look for money, i need... this what to do, the main thing is to restore artyom now, is artyom your firstborn? yes, artyom is my first child, was the diagnosis made quickly? well, right away in the maternity hospital, the doctors wrote to us that it was a question of apert syndrome, then of course, we already went to novosibirsk, we went through geneticists, went through doctors, and found this neurosurgeons who operated on us, where our diagnostician was finally confirmed. what’s strange is that there are a lot of

screenings... during pregnancy and that ’s why these diagnoses, which can already establish intrauterine pathology even before the birth of the child, are not accurate enough. elena, at what stage of pregnancy is it possible to detect pathology in a child? in fact , the pathology could be seen quite early, already at the twentieth week, the hands and feet were quite clearly formed, you can count the fingers, modern... this allows us to do it, we went through all the screenings, all the ultrasounds, i went to the hospital on time, i remember clearly the words of the doctors that the raft is developing without pathologies, even when my husband and i came for an ultrasound, when they told us half the child, where the fingers seemed to be we looked at all this, ksenya, but can you imagine the situation, you have a special child, the doctors

say, if you give him up, how would you react to this? when i myself was pregnant twice, when i underwent screenings during each pregnancy, such thoughts arose, but how would i behave, yes, in this situation, i can tell you that i don’t know, i don’t know how i would behave, i understand one thing, that when the light of your baby appears, when you feel him nearby, then, probably, all doubts disappear there and - that’s how you said, what are you saying, how can i abandon my baby, yes, but no one ever knows in advance, you can get scared, maybe different, i admit that doctors, maybe they it wasn’t out of malice that they suggested you refuse, but simply because, well, they were worried that maybe you wouldn’t cope, suddenly you are not as strong as you really turned out to be. valeria, did you tell your family that doctors advised you to give up your child? yes, of course, not only me, but also my husband was offered, well, as they were offered, they

simply said that... maybe you will refuse him there, but what did your husband say, but they didn’t refuse you? that is, your husband fully supported you in this situation, of course, of course, and at the time of pregnancy, how long had you been married to your husband? my husband and i got married on april 24, 2020, i gave birth to artyom on august 25, 2020. a, how old is your boy now? artyom turned 3 years old on august 25th. he still doesn't have any fingers. and problems with the skull, now we operate, every six months, we operate on one finger on each hand, and - the bones of the skull, yes, we already performed an operation where we had fused coronal sutures, where the skull was reassembled into the correct shape , but this is the structure of the skull, it is incorrect from birth, that is, it will be his whole life; his skull develops incorrectly, not like that of ordinary people, but your artyom is growing like the most ordinary

baby? yes, like the most ordinary person, he drinks, eats, plays, interacts with children, now we are going to go to kindergarten, look how smiling the baby is, the most important thing is that the child is happy. is in a family where everyone loves him, protects him, takes care of him, and for the child this is the most important thing, that he feels it, and i am sure that he was very lucky to be born in such a family and everything will be fine, valeria, well, since you are in today our studio, so we can help you with something? yes, artyom needs operations, which we do every six months, this is by division fingers, so we had the first operation, we separated the thumbs. literally in august we had a second operation to separate the little fingers, the next operation in february was on the index fingers, for one finger we have a quota, for the second finger we pay, we have to

pay for it ourselves, the operation costs 80,000 rubles. well, as i understand it, this is a decent amount for your family, yes, and now your whole family has rallied around artyom, of course, yes, all the grandparents, everyone is around him, artyom’s dad says that he loves his son and never him won’t quit, in the judge dmitry tatamirov, hello, hello, dmitry, you, like valeria, were shocked by your son’s diagnosis , well, naturally, as if you were definitely shocked , probably the first half of the year, i generally have a reboot in my head, i’m still probably , no matter how hard i believed it, remember the first call from my wife from home, my mother -in-law and i were alone in the city of neryungra, waiting for the call, i don’t even remember, we were sitting at the table, as if yes, i remember, we were sitting at the table, but i don’t remember who called, my mother-in-law is olga vladimirovna screamed very loudly, i thought i had a myocardial infarction, because i was very worried, i thought one of them actually just died, then she just screamed hysterically, i took the phone from her and lera

already told me what artyomka without fingers, well, as if i’m such a person on my own, that i’m going through everything inside, but i don’t show emotions and the fact that leri said that everything will be fine there, well, everything is being done, the main thing is that everyone is alive, i went to maternity hospital, there with relatives and they took me there alone, it turns out they changed everything and, as it were, i come in, he’s so small, he’s just so small, he’s screaming, and i also asked why he was screaming, i didn’t seem to understand it, but he said, it’s all normal, the fact that they didn’t let him support me, i say, yes, tell me correctly, what’s his name? hold everything, i took him for the first time, i was very happy, even despite the fact that there he was, well, without fingers or didn’t think about it at all, valeria told us that the doctors advised her to abandon the child. the doctors told me and you and i also talked about this, yes, but somehow not seriously they just asked how you would leave the child, i just jokingly asked them how they wouldn’t leave you, but i didn’t even have such a thought valery, when you arrived with your son from the maternity hospital, you immediately encountered

some problems, yes artyom, and about on the tenth day of his birth, he began to choke because the structure of the skull bones was incorrect and the structure of the middle of the facial part was incorrect. naturally, these are still narrow nasal passages, in general, our children do not initially know how to breathe through their mouths only through their nose, and artem could not breathe through his nose, because he simply didn’t let me breathe, so i had to eat milk and breathe through my mouth at the same time, so the child began to choke, and artyom and i went to the hospital, they examined us, artyom took all sorts of tests, artyom cried a lot because he was still crying, he gasped for air and breathed, just like that. we finally learned to breathe through our mouths, after which we were all put under oxygen in the hospital, artyom, and he lived under an oxygen mask and breathed under oxygen, but they explained to you how to behave correctly further so that the boy could

breathe? in nervinga no, we were told that we we can’t help you with anything, so my husband and i were looking for doctors already in novosibirsk, we found an ent specialist there, i phoned the doctor , who explained how we should do it now, how to act, and get tickets and fly, well, now directly to novosibirs for further examination, but did your husband help you care for your son? well, of course, there is what i said, the point is to introduce the mixture, feed it somewhere in the arms, carry it somewhere, but the first probably 10 months, dima still, well, somehow he was a little afraid, but a small child, this i probably had some kind of maternal instinct there, but for him, well, yes , he loved him, he helped, but still he had some other fear, like a little... i didn’t know, how to handle him too much, i didn’t seem to hold my head myself, i was afraid to do something to him, and how exactly, dima, did you help your wife? well, what my wife said, what i said, that’s what i did and didn’t sleep, i also sat there rocking him, they looked for doctors,

they looked for doctors, in the second week they flew away from nereningi, also with the child on the plane, and then that they were looking for the best doctors in novosibirsk, valeria, can you count how many doctors tyoma has already seen? oh, a lot. the first birth we immediately had ent, ophthalmologists, neurologists, then neurosurgeons and immediately orthopedists, surgeons, that is, we went to almost all the doctors who already for... we then came to a surgeon there, he said: “you need to see this to the doctor, we immediately went there and there, just like that, based on the discovery, based on a tip, we already found neurosurgeons, contacted a neurosurgeon in novosibirsk, then we found a neurosurgeon in moscow, mediocre, where we later flew to have surgery, and counted how much money we spent on our son’s treatment, the first months were quite a lot, because not all doctors could see us when we needed them in a public clinic, so we had no choice in going out, it was faster for us, for peace of mind, there was already a fee to go through, but

each doctor’s appointment costs from two to 5,000 rubles. quite a lot, and if in general, what amount was spent, well, i think 1,600-700 was definitely spent, plus we had flights, plus mixtures special, for a long time we could not find a mixture for him, plus some medications , doctors constantly prescribed new medications for us, it seems that now children’s are very expensive, but now you have some kind of quotas, some kind of support from the state? yes, the quota is allocated to us for one finger, and also according to the quota we underwent surgery on the head, dmitry, do you remember your son’s first operation? yes, of course, i remember, 10 months ago he had an operation on his head in moscow, valeria and her son flew, i couldn’t find a place for myself, that there was a difficult operation there, i understood the fact that they cut the head there, set the bones there, well, a difficult operation, in fact, valeria, and how long the operation lasted, almost 5 hours, after anesthesia, and, by the way,

it was very good, and the anesthesiologist came to see me, he said, he’s with you such a fighter, well done, he says, even after the operation he started breathing on his own, we didn’t need evl, artyom started breathing on his own, they took him from the operating room to the intensive care unit, where in the corridor i was even allowed to beat him there for 20 seconds, he’s all so small there bandaged in blood, they took him to the intensive care unit, and after the operation has yours stopped choking? well, of course, it has become easier for us to breathe, but even now artyom experiences discomfort with breathing, especially when he is sick, when his nose is stuffy, but he is already used to it, well, he was born this way and he only breathes like this, he doesn’t even know , as differently as possible, roughly speaking, larisa , such an operation can really improve the baby’s breathing, such operations are very helpful in solving this kind of problem, first of all , they increase the space of the skull and thereby reduce intracranial pressure, and

is this only one operation needed? it is craneopstics that is carried out once, regarding syndactyly, there is a really complex form of syndactyly, when exactly the fusion of all the fingers occurs, starting with soft structures, that is, skin and bone structures, first of all they are isolated, and the big toe, this operation, is already happening at the age of 6 months to 1 year, thereby we form a very important movement, this is a grasping movement, which allows some minimal actions to be performed with the help of a hand, and then everything happens subsequent operations also concern the separation of bones, bone structures, and then the separation of soft tissues. why is the operation

done in stages? first of all, of course, this concerns the body, that is, healing should occur in stages , when the bone structures heal, when the blood supply is already formed, the innervation is already formed, namely the nerve endings, and then plastic surgery of the skin begins, this is the second stage. and all these operations are performed under general anesthesia, right? yes, sure. of course, elena, but maybe kids endure anesthesia without consequences, because this is for an adult, anesthesia is stressful, and a small child, as a rule, is tolerated without consequences, since children have a very adaptive body, they can withstand a fairly large number of operations, absolutely without any consequences, valeria, and arttyom also needs to rely on his legs, the most important thing is that the wrong foot does not affect ... on the spine, so that there are no problems with

the back in the future, but for now there are no such problems, that is artyom completely steps on his foot, and we run, we jump, which is also hard for the front to even jump, because they have problems with coordination, at the moment for artyom, it doesn’t affect his body in any way, it’s just aesthetics, larisa, and this is really only an aesthetic problem, if the orthopedist already admits that the operation can not be performed... or can be performed at a later date, then of course, the children then people live with it, you told valeria that the husband, dmitry took care of you pregnancy time? is your husband still with you and your son now? no, my husband and i divorced, but he helps artyom, we are in contact with artyom, that is, how can artyom live like this with me, like with dima, but why did you divorce your husband, this has nothing to do with artyom or

something else, this concerns only some of our personal problems, maybe in everyday life, feelings, emotions disappeared and quarrels began, and we both thought... that we should not continue to live there like that, torment each other while we are young , we have every chance to find your own happiness and live your own life, who was the first to file for divorce? did we both go together to file for divorce? well, it’s just that we’ve been going towards this for probably almost a year, artyomka seems to have suffered enough, why does he need it, we’re doing this for him not at a loss, but for his benefit, so that he doesn’t see his parents quarreling, a divorce? the thing is so serious, i think that here in the hall there are also divorced couples who were separated, it’s not that i’m not judging, here you just need to make a decision about what attitude you will have towards your son, this is the most important thing, but the fact that you will build your life or you will build your own life, but this is normal, egor, and if you were dmitry, you would try to save the family for the sake of your son, i certainly believe that you had quarrels, like in

any family, sometimes it seems to us that we can continue to live together impossible, in fact it is possible, and the feeling may have passed , but beyond the feelings there are still a lot of things from which a family consists and is built, in general, so i would, i’m certainly not a matchmaker, but if you i haven’t decided on life there yet, i would think about why we adults people who have a common child, who treat each other with respect and communicate completely calmly, well, at least not think in the direction of returning everything to normal, i work with families with children, especially with families. according to statistics, 82% of families where there is a special child are susceptible to divorce, either the father leaves himself, or , as our wife says here, yes, that we decided so mutually, they are disingenuous, of course, they are disingenuous, because when you

were just partners, just partners, it was the same relationship when it was born child, woman goes into motherhood. leaves her partner when a special child is born, the mother leaves three times over and goes headlong into it, and of course the man moves away at that moment, and of course, quarrels begin, then we talk about the fact that there is just a quarrel in the family, but the depth of the events is there, the divorce of the parents is reflected on the child, well, the divorce of the parents is always reflected, no matter what age the child is, but divorce... can be different, there is a divorce when the child is traumatized and brings psychological trauma that lasts a lifetime, and it happens when they work with as a child, they work with parents, when psychologists, family specialists, when this situation is not escalated, when they are not hidden from the child, when they tell him, when he

understands, he lives this pain together with his mother, together with his father and accepts this situation. why did valeria's mother want her daughter to leave her newborn baby in the maternity hospital? i just screamed the phone, no , i didn’t understand at all what i was feeling, but that’s normal, we’re all human, this is a normal human reaction, this is beyond the bounds, to be continued in a couple of minutes, and you know this person, of course, they came together with tima, but where is this tima now, wait! and now this is your guy, zhurik, consider that he is already in the monkey barn, uh, i’m telling you, i didn’t even lay a finger on vadik, balabol, new season, let’s go for a ride, think about it, well,

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so close, nothing should stop you. tankatali premium is a symbol of male success and maximum sexual energy. get atali tank premium right now for free. find out like on the phone. 8800 2009 456 all conversations confidential balabol - new season today at 20:00 on ntv at him at him i look at him i understand i’m disappearing i don’t know anything anything about him i would listen to listen to a riddle

a fairy tale and some kind of mine... oh, nevermind i mean, the width of the wound coincides with the size of the blade that was used to kill your biologists, god, what’s going on, and we have five corpses, five, the criminal is armed very dangerously, and the light will kill me. he left his wife and proposed to me, but you really lost your mind in sochi, you need to be saved, what we will take, now we will take it, reckless driver, today at 22:15 on ntv, beyond, this is beyond, irregular head shape, fused fingers and toes, 3 years ago, dmitry and valeria tatamirov from novosibirsk have a son was born with a rare genetic disease. my son

was diagnosed with apert. of course, i was shocked by this diagnosis. the young parents were offered to leave the baby in the maternity hospital, but they responded with a decisive refusal and began to work closely on his treatment. already at 10 months, artyom underwent his first operation. have been operated on the bone and skull were disassembled and reassembled so that the brain would not be pinched anywhere, so that there would be no hemorrhage, in order to take hytercephaly. valeria, how long ago did you and your husband develop? we officially got a divorce on october 2. just recently, artyom realized that dad and mom no longer live together? yes, my child and i went to yakutia to live with my parents, it’s simpler, easier, easier for me and in all plans, and dima currently lives in novosibirsk, but artyom, he is in contact with both me and dima, let's say, in september, the whole arty i spent september with my dad, at the end of september i flew to pick him up, got in, now

at the moment artyom lives with me, the next stage of the operation, there in february after the operation artyom stays with his dad for several months, the child, he feels, he is on an unconscious level, at any level, he still knows that mom and dad are not together, and that for some reason he lives either with mom or with dad, and even if you don’t say it out loud, the child knows this for sure, moreover, and the worst thing is, if a child, if you don’t tell him the truth, he will draw his own stories, so here in this... case in your case, of course , it is better to tell the child the whole truth and not hide and say that it is hard for you and that you are grieving together and going through the period of separation. dmitry, you still help your wife financially, of course, unconditionally, i love artyom, but i won’t help, valeria, but you never had the idea of ​​making peace with dmitry, maybe

starting a family again, after the divorce, no. dmitry, did you have such thoughts? yes they were. valeria, who is helping you now with raising artyom? mom, my stepfather, my grandmother, who is the one we live in yakutia at the moment. your mother admitted that even she wanted you to leave your first-born in the maternity hospital, in the olga grigorieva studio. hello, hello, olga, is this really true, you wanted that. your daughter abandoned a child, a grandmother, who is over 50, who is preparing for a long-awaited grandson, they say on the phone, mother, this grandson has no fingers, no toes, my head is very deformed, has anyone listened to such words, when he waits from

month to month, day after day, for a beautiful, healthy grandson, i... i just screamed into the phone: no, i couldn’t say anything to my daughter, i i didn’t understand how i felt, it seemed to me that they weren’t telling me this, this wasn’t my daughter, this wasn’t happening to me, now lera would call and say that everything was fine with us, i screamed, no, i wanted to give up everything altogether , i don’t know, depending on the situation, just no, this is not happening to me, it happens, this is not happening to me, i’m dreaming, i i’ll wake up now, or how can i say, just no, everything is like this, there are no fingers, we have enough, people are no longer young, all generations are healthy, it was a shock for me, and when you talked to your daughter, she told you about it, dmitry tried calm you down, well, yes, i screamed loudly into the phone, dima came up and said olga vladimovna,

calm down, stop, let me talk to. and get ready, let's go to the maternity hospital, i had a huge anger at the doctors, for some reason then i already came up with the idea that the doctors were to blame, but someone must be to blame for the situation, when you can’t find an explanation why, why, maybe the birth went wrong , the assistance was provided incorrectly, in general, what , what’s going on, i probably even talked loudly there, you know, when something like that, so i’ll continue this is a shocking situation, i don’t even remember how thunderous i was... as i said, but i was probably aggressive towards the doctors, then i thought, we are a family, and now we need to tune in or somehow plan - discuss all this , further actions, what we will do, how we will live, what my grandson needs, so that he still grows normally, with a full life, olga, but you were,

of course, required to be there for your daughter’s discharge, first i saw my daughter. i was happy when my daughter was happy, that means i was happy too, of course, when they brought artyom everyone around , dimka laughs, smiles, happy, happy, i... i was happy, but of something for sure, because you were afraid at that moment ? probably everything scared me, even some people passed by, well, later, not on the day of labor at home, but we had already lived for some time, and for some reason the thought came to me, i think, suddenly young people he’ll say, but we’re tired, we’re tired, he ’s sick and sick, olya, i asked myself this question, olya herself, how ready are you for artyom? with you, yes, i’m ready, but we were probably worried about the boy’s health, now we’re worried, i believe that as long as we love him, that’s it, we’re close, we ’ll help and he’ll

live a full life with us, he’ll have family, i don’t even doubt it, because at the moment he is a very sunny child, even with children, when he plays, he can be shoved there, taken away a toy, he won’t cry and fight back, i would say that a healthy child, not as healthy... like our artyom, how he looks at life, how he perceives everything, although he doesn’t speak, but that’s even elementary we were flying on a plane today, my daughter fell asleep and turned sideways, they’re bringing food, i say, lerochka, lera, they’re bringing food, this is it, you’ll eat, she hasn’t fully woken up yet, i set up a table for myself, artyom sits next, artyom sets a table for himself and sets a table for lera, and since she’s sitting sideways, the table is already... i say, right now i say, they will put food on her, everything will fall down, he hit her on the knee, mom, the table is uneven , you understand, he is already like a man with us,

i suggest you look at your grandson, after her divorce from her husband, valeria tatamirova, together with three-year-old artyom, moved in with her parents in the city of neryungri in yakutia, a mother and son occupied a spacious room in an apartment, where they gradually transport their belongings. the theme here is a very small part of the clothing. because we keep half of it in boxes in the garage, the main thing we carry now is here , open your second drawer, open it, the baby’s wardrobe is constantly replenished; recently, artyom’s mother bought sandals for artyom, in which he now joyfully runs around the apartment. in addition to fashionable clothes, the boy has a lot of books and toys, dinosaurs, this is his favorite dinosaur, who is this? dad, this is dad, because dad bought it, and who is this? you love dad so much, yes, and this is mom, it’s because mom bought dinosaurs. artyom is an active boy, you need to watch him eye to eye. the mother does everything to direct the baby’s energy in

a peaceful direction, for example, she teaches him how to glue stickers, little by little, developing small hand motor skills, stick one football player on the football field, give me glue, glue the soccer ball, well done, give me a high five. artyom copes with stickers easily, but he doesn’t handle cutlery so confidently, fused fingers prevent him from holding a spoon tightly in his hands , sausages, let’s say, yes, he likes them, i cut them for him, and he pricks them himself with a fork, he eats this, and this it will be hard for him, because he turns the spoon over, he will just turn it all over, despite the illness, the boy is already learning to brush his teeth on his own, but for now under the strict guidance of his mother, he washes his hands without difficulty, just to reach the sink.

dad, we washed our hands among ourselves, valeria, dmitry, you have a wonderful, bright baby, ksenia, how do you like the plot, you know, i got lost in attention, i realized that at some point i was completely immersed there and even forgot where i was , the baby is happy, he is a happy person that he was born in this particular family and i really liked how grandma olga came out and honestly told her first emotion, shock, well , this is normal, we are all people, this is normal the person’s reaction, and i see how great everything is, and i’m straight, i see that the guy really, as in ler say, you don’t emphasize that he’s something special, he’s really a normal, good, happy guy who has there is a mother, a father, and there is a family that loves, dmitry, and are you grateful to yours? to your ex-wife that she devotes so much energy and time to your son, absolutely, i respect her very much in my own way, i love her, and does your family support valeria? yes,

of course, absolutely, yes, you are absolutely right, and your aunt is very worried that she doesn’t often i manage to see her beloved subject in the studio tatyana buevich, hello, hello, tatyana. baby, artyom is your favorite, right? of course, he is not only my favorite, we just adore him with our whole family, well, olga, valeria’s mother told us that. i wasn’t able to accept my grandson right away, and at first you didn’t have a negative reaction, when we found out about the birth of our special baby, of course there were mixed feelings, there was joy, there was happiness, but at the same time - some kind of fear, fear for the baby, how is it all will continue to happen, but we fell in love with him from the first minute of birth, we were waiting for the birth of the baby, it was love at first sight, it’s mutual for us. we cuddle with him, he

kisses my nose, we brush ourselves together, we are constantly in such quivering feelings. didn't you scold your nephew for deciding to divorce valeria? you know, well , somehow dima didn’t talk about this, i was very surprised by this, because somehow in our family this was never discussed; in principle, we don’t have any trash noticed. then i turned this question to lera, i said, lera, it’s not very convenient for me, of course, to get into your soul, but i would like to know if it’s really true that you and dima decided to separate, she said that yes, it’s true , what do you think, tatyana, will a situation happen that when valery and dmitry have new families, then dmitry’s communication with the child will come to naught, i think, on our part, i can. i can say for dima that i

think he was raised correctly, and i don’t think that he will abandon his child from his son, but you miss the boy, definitely, we miss the constant connection, we really hope that lera will eventually move to live in novosibirs, how did the life of the girl who was born 22 years ago with the same diagnosis as little artyom have, they separated my fingers now they work well, they move, but the only thing is, i can’t straighten them, i look at her, i directly see as if the future of my son, we find out after a short pause, a special issue of superstar, which is entirely dedicated to creativity composer viktor drobysh, today every assessment of the artist, it is somewhere in the soul, and my

assessment. why are you making us nervous all the time with lesha’s numbers? lord, my babe is turning on again, he’s a thrill for me today, i ’ll tell valeria right now how great it was. tomorrow at 20:20 on ntv. bolobal: new season, today at 20:00 on ntv. magic conditions - real rate, up to 15.5% per annum on a savings account at gazprom bank. your money. work, and you

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secrets of the immigrant pukachevy and her agent galkin. mom will be in london on november 26th for a party with her friends. how she left behind in the mud in november and what about it. we won’t take maxim, he’s done a lot of shit. who else has a spare israeli passport stashed away? i received my passport when the world around me began to collapse and it became clear what it would do for me. you need to protect yourself and your family. and whoever can run after bugacheva, you won’t get a ruble from me, remember, this is kozlovsky. alla escaped twice. sunday at 6 pm on ntv. beyond, beyond, fifty-six-year-old olga grigorieva from yakutia was looking forward to her grandson, but the boy was born with apert syndrome, his head is irregularly shaped, and his fingers and toes are fused. the grandmother admitted that at first

she wanted her daughter to give up the baby, the shock was so strong that i just said into the phone, no, no, no, young people parents dmitry and valery, the samirovs did not want to listen to anyone. now little artyom is already 3 years old. he says mom is a ray of sunshine in their family. artyom can now brush his own teeth, he plays on his own, he learns to hold a fork and spoon on his own, he can take off his own caps, his hat, and try to do something else to serve himself. valeria, will you allow us all to meet your boy? of course, then i will ask you to go backstage and return to us with the theme.

tyoma, hello, can you give him your hand, give it, he will say hello to you, hello, hello, where is my little gang, dear. and we have prepared a little surprise for you, we hope you like it, wow , what a tractor, thank you very much, give the doll here, tractors and dinosaurs have been our weakness lately, we generally have tractors from small to large , let’s then let tyoma play with his new toys, and we’ll talk a little more. erena, does this disease affect the length and quality of life? well, i think that on the quality of life, of course it is may have an impact because... that, although

corrective operations are still being done there, well, there will not be a complete recovery, as for life expectancy, we are basically talking about the fact that with upper syndrome the skull and arms and legs suffer, but in some cases, in some patients with this syndrome, and sometimes there may also be problems with other organs, that is, there may be sulfur defects. kidneys, but if there is this plus, then this, of course , can significantly affect the health of a long life, that is, the severity it happens that if you visit doctors on time, then in principle you can live an ordinary normal life, right? well, close to this, i would say, i want to invite a two-year-old girl, who was once also diagnosed with the same diagnosis, to join us in the anastasia

mezhorina studio. hello, anastasia, hello, are you studying or working? yes, i am a fifth-year journalism student at roggu. can you tell us about your health, how are you feeling? well, i was born diagnosed with the syndrome. maperta is a genetic disease that is a congenital genetic disease, it is characterized by developmental defects in the head, skull, legs, arms, but overall i feel very good, and did your parents abandon you when you were little? no, i’ll even tell you more, my mother is generally a heroine , she goes through the entire journey of life with me, she... helps me, we have gone through, have gone through

and are going through, a large stage of operations to improve my health, so that i lived like all people a full life, bravo, bravo, bravo, anastasi, how long have you been have undergone operations, well, to be honest, i’m already confused in the calculations, because i would have had my first operation when i was 6 months old, but about more than twenty operations, but now your fingers work like everyone else’s? well, like everyone else, yes, they are separated, that is, at birth i had fused fingers, as a child in st. petersburg my fingers were separated , now they work well, they move, but the only thing is that i cannot straighten them. because bend, because there are no phalanges, fingers, and you can write, type on

a computer, yes, of course, with a phone, yes, i i’m typing, i’m writing texts , various, writing various articles, in the section about travel, so you’re a traveler, yes, i’m an active traveler, but this is great, i started traveling recently. time - on group author’s tours for young students from with completely healthy ordinary young people, i travel around the side, i look at it, i ’m just so happy in my soul that i directly see as if the future of my son, that it exists, be it too 100 % successful that she tries so hard, i don’t know, i’m really proud of her, what a great guy she is, i want to tell you that you should never give up, even if it seems very difficult,

you only need to move forward towards your goals and motivate yourself with the fact that yes, it’s hard, yes, you may have to undergo a large number of operations, but they will lead - all these tests will lead to a positive result, will lead to a full, well, interesting life for artyom, where he, too... will be able to study at school with ordinary children, go to museums, exhibitions, theaters, live, travel and that it’s great, and you just need to believe in the best, and i just wish you not to give up and move forward, with great success and good luck, thank you, thank you very much, so that you don’t worry about valeria’s health. his son, tyoma, was already examined by specialists from the capital’s clinic, that’s

how it was. three-year-old artyom tatamirov walks hand in hand with his mother to the children's clinic. first of all, a small patient is given an akg. while the boy is actively playing with the tambourine, multi-colored sensors are attached to it. so, now let's see how your heart is working, right? next , at the neurologist’s appointment, the doctor asks valeria about the baby’s medical history, after which he measures the child’s head, checks reflexes, tone and strength of the head. hey, look at the flashlight i have. look, oh, do you want to touch it? now, oops! oh, how bright, come on now like this, knock-knock, and mom too, knock-knock, mom too, you see, mom didn’t cry, mom didn’t cry, and neither did tyoma, knock-knock, the boy has already gone through several operations, so the capital's surgeon examines his postoperative sutures and checks the functional condition of his hands, give

i’ll give you a piece and i’ll take it with another pen, we’ll evaluate it. the function of the hand, how much the grasping movement works. at the end of the examination, the doctor makes a conclusion: as a result of today’s examination, there is no criticality or threat to the patient’s life or condition, and he can undergo operations as usual. his health condition is stable and requires routine monitoring by specialists. valeria, tell me, did the same surgeon perform the surgery on your fingers? yes, after looking at vladimir’s work. who is operating on us now, i immediately decided that we will operate there, because for me his work is the most aesthetic and when the fingers are operated on, skin is needed, and let’s say the skin of the wrist is taken from arttyom, but there is a small stitch, but i think that it is much simpler and much more

painless , than let’s say the same skin is taken from the buttocks of children for transplantation, today he also came to us, i invite surgeon vladimir zavarokhin to the studio, hello, hello, tell us how is tyom’s health? his hand function has become significantly better because we performed two the most basic operations for hand function, we abducted the thumb and freed the little finger, that is, the child can now grasp both small and large objects. is the boy ready for another operation? of course, we usually take a break for... from 3 to 6 months, so that the child adapts after anesthesia and after that he is ready for the next operation. does the operation itself take long? well, usually it’s somewhere from one and a half to two hours, depending on the volume. tell us about the preparation process itself and directly about the operations. preparation begins at the pre-hospital stage; patients undergo tests in advance. after

the pediatrician has checked, we call, the patients come, and are examined that day. i, a pediatrician, anesthetologists, the next day the operation is performed, and if the next day the child already feels well, and there are no severe pain syndromes, then, in principle, we already prescribe them, but what critical moments may arise during the operation? in case of limb pathology, as a rule, this is more associated with general anesthesia, but this is a planned operation, the child arrives after being examined, so the risks are minimal, and are there any complications possible after the operation? well, complications are possible after any operation, but fortunately the elimination of syndectility or the only complication that can occur is the occurrence of inflammation, because in children with apert syndrome, very often the nail plates are fused, they grow into the skin and there is a constant source of infection that can develop, but probably in our patients with apert syndrome, probably out of 100

patients, two or three have these inflammations, but as a rule, all this can be cured with antibiotics. in the worst case , if a scar develops, it may simply require some additional correction during the next operation, but why is the operation done in several stages, why can’t the whole arm be done at once? firstly, with apert syndrome, the artery that passes between the fingers is very often one artery for two fingers; if we try to separate two adjacent spaces at once, then the finger that is located between these spaces may lose blood supply, we may lose it, and secondly, we need to transplant a fairly large one. skin, and lately we have been trying to take the skin of the wrist, there is not very much of it there, and it takes time for this skin to stretch a little again, so if we talk about getting a high-quality result, sometimes it is better to divide it into stages, maybe do it a little slower, but the end result will be a better result. is it possible

for artyom to have two fingers on both hands at once in one operation? you, valeria and tyoma date has been set. next operation, right? yes, of course, the most important thing is to always fight and not give up, watch right after the commercial. for some, the search is their whole life’s work, and it also happens that the search becomes a kind of testament. svetlana came to the studio to wait for me to find her cousin. whose will you came to fulfill, vaola ​​was my mother, my mother always thought about valentina. we are only one year apart, we had a tragic story, and i didn’t even suspect what a surprise would be waiting for her. what are yours impressions of. i was greeted so friendly, as if i was invited to visit, and also the incredible story of a boy

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flowers, parasite. who did the winter cherry star elena sofonova fall to her knees in front of? i was just on antibiotics all day now , how much? why is anatoly zhurravlev ready to sing in transitions? after your broadcast, i think they will now find out. you won't believe it, tomorrow, right after the superstar show on ntv. beyond, this is beyond the bounds. three years ago, twenty-five-year-old valeria tatamirova became a mother for the first time. during pregnancy. they assured her that the baby had no pathologies, but the boy was born with a rare genetic disease. my son has apert syndrome, which means pathologies such as fused synthetic fingers and an irregular shape of the skull of the head. now artyom is 3 years old. surgeon vladimir zavarrukhin has already performed several operations on him and separated four fingers. now, when the thumb and little finger are abducted, it is already

can like use fine motor skills. grasping between the thumb and the first finger, this is how gross motor skills are captured with the remaining fingers. do i understand correctly, vladimir, that you, valeria and tyoma have a date set for the next operation, right? yes, of course, but is it possible to make artyom two fingers at once in one operation, one on his left hand and the other on his right? this is all possible, and there is no problem in coordinating this with the administration in principle. thank you. sophia, i know that you also want to help this family with something, is not it? yes, i would like to express my admiration and respect for anastasia and valeria and dad, because such kind, good stories are necessary for those people who also faced similar difficulties, they should know that there is life beyond, it’s not the same , that is,

it is full-fledged, cool, so i want to say that we... are ready to exchange contacts with you, ask you for documents to put your boy in training and are ready to contact you today. oksana, do you have any wishes for this family? the most the main thing is to always fight and not give up. these are just difficult challenges, but no matter how hard it is, keep going. thank you very much and your program for bringing us here. that's what we're all here for, to help you. i want to turn to dad, dim, i believe in you, that you will not be included in the 82% that you spoke about, in those 18, because i see how you love your son, and love, let your theme will happen now, but in order for you to join