you have a new future, so to speak, a new american dream, we will not show it there. but, by the way, you remember very well the future of america, when obama came, according to what slogan he came to power. remember i'm you ken we can guys and we can. i think that they will soon say about this, eat vk for some other reason. thank you for your attention. on the street , fingers are often pointed at conquest, that is, life expectancy. with this , you die without treatment for 8 years at 10 years old, looking at your dad, because he never had such a thing. he sanyu something everywhere approximately, because to transfer this to your child? you finger something it's very hard. you go to the school you

associate with. cool, but now, together with her mother oksana, she came to our studio. i think in order to hug already, finally. so you are familiar. good afternoon. we are all running somewhere all the time. and even now, when you look at the screen, you are already thinking what you will do, after this program ends, we are always trying to rush life, doing something, thinking about tomorrow

day. i think that this program will be useful for all of us to see those who, on the contrary, would very much like to stop time, but such an opportunity. unfortunately not, and all life. as if turned on by acceleration in these frames, 12-year-old anna korchagina from novosibirsk the girl knows firsthand how short life is and understands the price of every day and events. i have a lot of parks ahead of me and my stuff. maksim korchagin realizes that time is working against them; the man is doing everything possible to ensure that

his daughter's short life is filled with bright colors. childhood suffers thank you all for your activity. here is my account here i already have 358.000 subscribers today in the male/female program we will find out how children feel living in an aging body. is it possible to stop the rapid flow of life and what do people who

live in the moment dream about? today in our studio maxim korchagin from novosibirsk hello maxim. hello, you are the father of our today's heroine wonderful girl anya yes tell me why did you come to our program i always dreamed of being on the street. and when they point the finger they say, this girl, why is she like that? i wanted to point the finger and said that this girl was shown on tv. it's a famous girl somewhere. this is a girl who is not afraid, like a girl who enjoys life and is happy and gives happiness, joy and hope to others. tell us, please, about the diagnosis. i will diagnose ani for 3 years. first time.

this is a diagnosis. uh, normal kid. well , there was a small venous network on the body, that is, in principle, the first year it was full-term, yes, on time, full-term everything, as it should be, sit quite normally in weight. what is 2.5 kg. well, it was quite up to a year, for example, she was gaining weight quite normally, and her hair was bracelets, and everything was fine. well, here we have the first changes and left hairs. at us observed only each half a year spoke. well, six months later, come, they didn't even try to bet. they just watched. well, our life went on in its turn, and only by the age of three, after constant genetic consultations, we began to, uh, already talk to all the doctors that we communicated with, so that they could communicate with their circle, we tried to find. the main thing is that there should be a similar

case, that there should be a child. well, someone had a similar case and once they said that there is, it seems, one endocrinologist doctor had a similar case, and we found this doctor. we have in the city. she told us so that it does not mean absolutely, but she was the first to put it. called a spade a spade and said it was progiri progyra harp is a niche of harp diseases, that is, rare and, unfortunately, we have not yet heard a word about your wife. and this is very important with progeria, but she prefers not in public. he does not want to wear this publicly his feelings and his inner worlds. well, you are ready , i respect. this is the right of joint children. how much is two one healthy? uh-huh please tell me,

what locality are you and your wife from one yes, novosibirsk is the indigenous people of such areas, not even a district are places. and the kentrogay from pathological development pathological development, so this is our father. but this is what we say mother. i'm very bad at drawing quite clearly. everything is clear, if mother means

father, is there a dominant gene, it is very important for normal development. he's dominant, he suppresses the gene, check if they meet, so if we have a normal gene to meet with a normal one with a normal one, everything is fine. it's normal if this very curious one meets a pathological one. also normal, but such families are likely. so that's what happened, that's why this means that you have no idea, neither grandparents, have no idea. it is normal that

somewhere, somewhere in the generations, and now you have one normal one pathological and met, with the same wife of the same genotype, normal and pathological please tell me one child. please tell me, yes, before, well, roughly speaking, we study the genome and one and the other can be identified or not, it’s practically impossible, because if we are in generations and there you are relatives in the tenth fifteenth generation, a here in the family, in the family, i emphasize, the gene begins to roam, or so to speak, it is spreading all over, but within this family hmm tell me, is it possible to cure or at least somehow slow down the relief. let's ask maxim this. you are doing some kind of prevention, you go through, somehow something was found by this current illness, snot and diarrhea. well, as usual with all children and nothing

more. say that you can get a heart attack or stroke very early. yes, that is, well, it's a little different, yes, that is, the same diseases that persecute the elderly, this is the disease of our children. well, there, too, everything is different for all children , life expectancy is different and so there can be different manifestations. you found some kind of drug, but he found us rather like this. but when we were diagnosed for the first time for 3 years, even the doctor she is such a long-distance doctor. she connected us with the foundation. they showed us how very interesting to us and wanted to invite us for research and for coloring for us with medicine to participate. the edge of learning this medicine is so now they are getting their own drug, yes, but it is a medicine or it is just and what is a stimulant, it is neither at all. it is generally accepted

that the drug is actually used in diseases, but what is a prog, when this progerium, this one enters the cell, it is a protein, yes, and it interferes, it delays it a little. that is, it is less than it, it is permissible. in what sense is a protein blocker, which is called syndrome. yes, it's clearly not a cure. yes, he only slows him down, there he gives time. wait. excuse me for this question. of course it's me i can't ask him. ah, longevity everything is so individual. without treatment, 8 years in 10 years, this happens. lani, a friend, irina, died at the age of 10 as a child. and why i received mostly cordial constitutions depends on the symptomatic you

said that anya's mother does not want to speak in public and, uh, she does not shine in this matter. but yes. yes, listen to everyone, did you take on the responsibility of caring for the child correctly? it turns out so yes? let's see how you live. morning came and we go to wake up, otherwise anyuta good morning, sunshine, i don't think you've been sleeping. let's put on a hat. the mood is cheerful, then go ahead, as usual, school after school, and the lessons, because i can ride it for a very long time, that is, it’s very

good and my relatives help me wear it at school and even sometimes there are queues for someone to help. nothing really matters at all. dad, today we're making fried potatoes, i don't have to, i'll try not to call. peeling a clean potato yourself will be offended for half a day . let your daughter talk all the time. i'm already public person. i need to dress well, so the pursuit of fashion trends begins. her height is about four. well, a maximum of five years, respectively,

it is very difficult to find fashionable clothes to make a ball. now i'll show you beautiful ones. why is it better to take small steps, like that. all in growth, they are very important for us to grow here once a year. now look. here's something new means. i promise you to always be

with you every minute of every day. the girl was born before the nose and healthy 2.700. and this is happened to her, and your joint misha with inter was born not given that she was small and grew up a hero. he helps you. hello

funny bangs half the sky in the eyes there is a girl with a song on her lips voice children the tenth anniversary season today at the first treat to the festive table. we cook with the whole family. and, of course, special attention. we give sauce, mayonnaise, machiev, which will make festive dishes tastier. you see, someone who

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it before paying, and from each purchase we will transfer 1% of the family fund together for the construction of family houses so that children can be close to their parents during long-term treatment. when buying a kit for smartphones in beeline, i look at my eyes. they found the body of a woman, they say it's ours sitting at the stream in the square. naturally, folded to the left,

what is it like? oh yes, it seems to be over . you should be happy. good afternoon, mr. fonberg, military prosecutor's office. she's a nice girl, but she just worked for me. you understand that you are the main suspects, i order you both, and the existence of vonberg, forget to call him for any interrogations, according to the laws of wartime tv presents what will happen to the russian kingdom if the sovereign behaves like children and like an obsessed plays with soldiers. but it is these childish games that will lead to the appearance in russia of a new type of regular army, in order to create it, peter the great will reshape the entire state system and economy, then he will lead his army into battle against the most powerful

military force in europe . you know, we've been blocked. well, that's right, that just makes it even scarier. do you want to get infected too, the new series is the only one. in the new year's dreamland warm and cozy. we drink coffee, chat with friends and win even more winners every week starts wishing. good luck with your dreams. how old were you when your

sister was diagnosed with this diagnosis, respectively, 9 years old? well, that is, you already understood absolutely exactly everything that was not happening to the end, when for the first time you fully understood that your sister is not like everyone who turns around on the street pointing a finger at her, what was your reaction, how is the child? for a long time it dawned on me that something was still wrong, that is, at first my parents, apparently, are trying to do this somehow guard not to tell me and i think i fully realized this years only at 12:00. well, when some changes have already begun here. here, i realized it was hard to accept. it does not even represent, he is the worst option for development. i sometimes cried, that is, he simply could not restrain himself. it was very hard to accept it. it was hard, yes, sanyuta, and somehow, well, about

people. here i appear. well, you could say i was afraid. probably some kind of condemnation from people. yes, that's also what they show with their fingers. that is, i was very worried about this, but i think i was able to overcome precisely, looking at dad, because he never had such a thing. he sleds everywhere, anywhere. and here's an example. yes, dad became the prime minister in this and helped me also come to this sport, played hockey, and i, accordingly, carry everywhere, and we were always with us, everything was with me, she was a team. often parents close themselves with this pain at home and the child can sit locked up

so that no one sees him, because to transfer this to your child. you are a little finger. that's even a doctor nods his head knows such stories and most of them. it's very hard. you found the strength in yourself to overcome it. you are now talking about it all over the country. now you will help many people with your example, you understand for the whole country and i said it again, it’s just an amazingly right thing to do. yes, i think you are your wife. i'm uh, holding on to the mic, what's up with mom? well, also mom , only she is in the subject, it beats more emotionally than i do, probably, mom is needed. she should not discuss rags, clothes and the color of a hat with you. seriously. where is mom. well, it so happened that i'm a designer by profession in general, that is, i'm not really, i've been picking up rags for many years , you know, and this is not the will of a universal dad. true, but mother girl, please hear. mom

is life mom is vitality. and when we are talking about the duration of her life, almost everything depends on communication with her mother, she is suitable. she hugs. she puts on her hands. whether she contacts her or not, the field was like that. no, i can understand. no, i can understand exactly. i am i feel, yes, because it's mine and nothing else. such a position about mothers is, of course, you see, here it's more like a different story. it's just not accepting the situation, that's all. i can do it at home, but for someone to see, for sure, the mother does not walk with the child, right? well, this is exactly what the son was able to overcome. yes , looking at dad, you understand that, well, you are talking about the fact that he played hockey here. anyutka was with us in an absolutely

organic way for you. she is once again the mother at the heart of all the psychological problems lies with all your spouses. need help. the fact is that just here is the preparation for filming, home shooting, as if they caused such a catalyst that was ours. uh, here's to, well, i get it. i, in principle, literally for the eve of the trip. i know my questions. i found a psychologist. i even left what, please, a psychologist is not enough. let's psychiatrist psychotherapists go there, look, most likely, there is some kind of masked story in which you need to dig deeper and, probably, copper will be needed. who knowing help, contact, just a psychologist will be a little serious clinical psychologist, so i understand that you leave your phone. yes , of course, you can apply, because, well,

you really understand for all of you in the whole family, however, there is every chance that the family will be stable, that the child will also be fine, but within the framework of the disease. therefore, let's go back to the child and the disease . yulia quiz came to our program. tikhonovich, you are familiar with her in absentia, endocrinologist of the first gmo named after sechenov good afternoon. hello i understand that you have several such children, yes, three, and how many such children are in russia, well, look at the frequency of approximately 1x20 million of the population, so somewhere in the order, probably, well, 7-8 people. and, well, such children, first of all, should be observed by a multi-disciplinary team, because the main problems are the cardiovascular system. this team must include a pediatric cardiologist. these are problems with the nervous system, because the risk of stroke at

an early age. it must be a neurologist there must be an orthopedic doctor, because there are certain problems in the joints, including , well, and, accordingly, specialists, depending on some related problems. what can you wear, if in the long term, then in recent years a drug for therapy has been registered, and it increases life expectancy by several years and in principle. the device can be obtained, including in our country, for free under the controlled access program, fairly regular monitoring in the federal center and registration of a number of documents, because the drug is not registered. it is necessary to draw up documents for the import of the drug into the country to obtain permission from the ministry of trade. if everything is done correctly now, then the parents will not pay for the delivery. it's just that they will come to the doctor and receive, correctly, i understand that this is exactly what you are doing now in fact. and we can and

i appeal to mr. it's frosty now to speed up the process a little. i think so, all the papers will be collected simply, but this is a little bit we know our they take a cart, we know it a little bit , right? now i still want to see, well, in this studio. to us, please. tell him, thank you. show this snowman like that. this is who snowman snowman boy did

amazing? yes, there is a microphone. yes at all gordon look here. yes thank you my good programs you do yours we can see. thank you all for your activity in the best of all masters. i say thank you for your activity.

here is my account here i have 358.000 subscribers already 2 million and a half likes the most i have now popular video to its one and a half million flashmores 26.000 comments the greatest compliment here i am very pleased, all sorts of comments that support and beetroot, of course, i don’t understand that i want to shoot more and more videos now i’m shooting most often turns on more lamp. that's the headphones. i have my image on the blog and the nickname is approved. we first found a pike of my jewelry i

compared with it. i liked it. i make videos. sometimes i dress loose. hi all. we are now in moscow in it, the men's program female, you see him, how it all happened, please tell me about what you think, you are good and likes and subscribers are quite. and what do you want to do, in general, bloggers want to start making videos all my life. i like how others do it. i used to watch youtubers. hmm

i also wanted to do that all my life . that is, you still want your youtube channel. what will you do on it? what kind of content do you want to show people there when we go? where, for example, to shoot the wolf wrote down, then we can really shoot life hacks, it’s better to help a cool idea, it’s more to ask for life. there we can still spread that i don’t even know that i still have an offer for you. because i also want to promote. not all the same on the first channel to sit. i want to make my youtube channel, which would be called grandfather, gordon, it would be as follows. ah, they will ask questions. first question. and why is the green frog interesting if they are plants? well, that's all, and i got caught

right away, i'm looking for a specialist who can answer to this question. but i need an assistant. even if it’s remote, who can translate what the specialist said into children’s language, you still agree to such cooperation, of course. well, i've become famous. i've become famous. you will swim. sasha what fee will you pay you ask kovalyov, he decided her subscribers more than i answer you. if she promotes me, i will take 20%, she will take 80% normally.

and what is your dream destiny? what do you have to get into? at sea, probably, i would like, and you never been to the sea excellent desire heard. now wait, we'll get to the fulfillment of your desire to have a girlfriend with whom you communicate, which is also rarely phenomenal, let's say. so this is a deviation, how did you get to know each other correctly. what is your girlfriend's name and how do you communicate?

girls, her name is milan. tribute, we recently watched your e, your videos were cool. yes, we liked we made for you that little pigs. now i will show you an excellent sculpting done by yourself. specially here are the magnets on refrigerator. an melania also wants to show you her pet. oh, who is this? this is who lucy

meladnitsa, what a pretty girl, you want to show you how tall anya is, look at what marks they have grown. never seen. i can’t say yes in rostov-on-don, but she lives in rostov-on-don, but now, together with my mother oksana, she came to our studio in order to get to know you. let's call. i think

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in the us, once again imposed sanctions russia once again disposed of what we imposed on the us incomprehensible for the west, i generally think that the west hates the russians for this and is there a renaissance in my opinion, it will begin with russia, it will begin in the first person mikhail zadornov on sunday at the first you invited us to visit. let's see how you live.

let's change, let's go. you are my smart one.

please listen well, you give, of course, a girl with character. it's just your perpetual motion machine at home. yes, she will not give a second to sit still. yes? yes, so many cases so many cases. i you know very rarely met in 3 years. the child himself

told his mom. let's go brush your teeth. this is so, a clear excuse me, it takes time. yes, i see, i say, i'm sorry, but it's normal, that a child at 3 years old says, i love male female. she just made up her lips, well done you want, do you like to learn how to count letters there? you probably already, consider, it's for sure you know how, right? how far can you? a little bit 5 8 9 35 8 9 5 well done and you know that anya's favorite subject at school

is mathematics, so you know exactly who to contact with homework for mathematics. yes, i also do math. well done, whatever you want, baby, i want dad to give me. well, santa claus brought her a robot dog, but she wants plastic, well, plastic is so hard. uh-huh well, listen, when will santa claus come, and we have in the studio, uh, these people, you see, there are such adult men who, in my opinion, now want to say something, in fact sometimes. do you think do you think? how scary, but when you

see in a straight line and communicate with such children, do you understand? so where is the power? here is the will to that everything is fine. no need to be afraid, you need to show what others are afraid of. and of course, when today they said that we want to be at sea. well, as an honored artist of the republic of crimea, i could not. uh, this cannot be fulfilled, he turned to the head of the republic, sergei valerievich aksyonov. and, of course, you will be given time to call back. they will tell you when it is convenient for you to visit the sea, so that the children can see the sun, so that this smile is and we want to see this smile not only in your children. and you all have yours in general. thank you this is yours general certificate. let's go on holiday together. you know, uh, actually, uh, when they say that, uh,

there are not very many such wonderful kids in our country. yes, but they are, and hmm, and we are creating a working group in the state duma where we will invite the parents of such children. and representatives of the ministry of health and specialized experts in order to help quickly collect documents somewhere, get the right advice needed by the federal center and make sure that everything is done, how to. this will be a permanent working group, that is, such a decision has already been made by him, we also invite you. here in this line-up, this is such a more formal story, as it concerns today in the m-th speech. ani on the screen heard that she wants to become a confectioner. so why wait so long? i think that we will organize literally next week. e hmm your visit to a confectionery enterprise, either in novosibirsk or moscow no questions, so we are the most important thing, we will give here, when you already see how it is

happens in the area that you bake your first cake or pastries. so we will give you a certificate of an official adult confectioner. well, the robot dog will be today. you don’t play, dad has a dog there, anyway there will be two dogs, one from fr kovalev will not hurt. well what can i say? thank you for coming here. thank you for showing the world. how wonderful you are. this applies to both children and parents. if anything, call, write, you know so rarely in this studio such words are heard that are now i will say. we were very pleased to meet you. thank you very much for your optimism and love of life. today our studio was lit up so much.