good afternoon, everyone in life is given a chance more than once. whether to use it or not. this is your choice, sometimes it is very difficult. today in our studio ksenia butakova and sverdlovsk region ksenia hello well, i won't ask you what happened? it's obvious, but we will try to help you. let's start with your diagnosis. and how long have you had this disease, and the diagnosis of kringhausen blester neurophyromatosis is gigantism, on the right of the lower limb, and it all started at birth, they took blood from the heel and began on the foot

a bump, and at the age of 3 she was operated on. yeah, and after the operation, the suture did not heal for a long time. you were assigned to a physical room after a physical room. and my leg grew 5 cm longer than the left one, and soon the tumor began to grow literally overnight at the age of 9. and my leg was leaking. at first we thought one night. yes, there was a tumor on the bottom of the leg. at first we thought maybe i hit it by accident in a dream or something else immediately went to the hospital, and they suspected oncology in the eleventh hospital of the city of yekaterinburg , they redirected me to another hospital, they did biopsy and they said they ruled out oncology completely, but they also said that you are not opiated with your diagnosis of surgery, any surgical intervention is prohibited.

please tell me, did your mother have something like that in your family. dad or some relatives had something like that. no, there was nothing like that. uh-huh well , in general, in principle, all these years you are now how old are you 27 you are 27 years old. what kind of treatment did you receive? when we contacted the hospital , the doctors told us that you are not operable anymore , we can’t do anything either, here in 2022 year in the month of january, and my leg got worse before that. at least i could walk on the fire myself with the help of the apparatus. but in the twenty-second year in the month of january, i caught a cold. uh, they called an ambulance, they put a hormone on me, and the next day my leg was flowing two times three times more, they said the temperature was 39 and i had to put the hormone. there is no other way to reduce it. as they explained to us in the twenty-second year, we were assigned to

yekaterinburg. in short, we went, and we had an ultrasound scan of veins, and he said that you were wrong. or i can't do anything at home, bandage my leg by yourself and drink tonic wine. that's all. how can i help you? a? how was your life, did you go to school in general, and i went to school in the first grade. i started walking first , literally. i studied, but it became difficult, because there are steps and the guys play there, it could also fall, something could hurt and they transferred me to home schooling. let's see how you deal with these challenges on a daily basis. for the past 2 years i have been chained to a sofa and a wheelchair . here, i can raise it so much already further. no, not in- and then, here, if you grab them, here for this is the place. big heavy yes, about 20 kg. that's just to

the toilet, which stands next to me at all. it just doesn't go up the mountain. here she goes to the bend. i have a sore leg 8 cm longer than a healthy leg . special shoes for a healthy leg on a high platform are made to even out the length of the legs, that is, here she has a platform. but i haven’t used boots on a sore leg for a long time. this is the device, it was the first one, it was originally made. yes, she used to climb there calmly, enough space, now even completely. before bandaging, we process the leg between the folds.

i go out into the street. i understand that you can’t get rid of all this, but i would like to at least reduce it a little, so that at least my leg can have a special apparatus together, and i can at least do something around the house. and what are you doing? do you have any hobbies at home doing needlework, collecting mosaic paintings, painting by numbers, cooking, i love animals very much. i know that you even volunteered. here, as i understand it, before the moment you sit in a wheelchair. yes, when they could still move independently.

i continue to continue to be a volunteer. i take animals for overexposure and treat them with caring hands. but in the story we saw a young man who cares for you. who is this? it is my husband. this is your husband. yes, and when did you get married 3 years ago? oh wow. tell us more about how it was together. we have known each other for 5 years. when he served under a contract, we met via the internet, m-m arrived, began to communicate, and so we decided to be together, great, and have been together for 5 years. yes, here it turns out now he is completely caring for you, yes, yes. good job a good salary, even a good one , is enough for your young family. yes,

enough. but when he is not at home, you cope on your own, and when he is not at home, either we are then my mother at home, or my sister, which helps me in the same way that there is to go to the toilet water bring or bring something. i 'll cut there to cook. and if there is no one at home at all, then we will borrow a neighbor to help, because one thing for me at home is not an option at all, understand? let's call your spouse to the studio. denis come to us. hello hello well, judging by the fact that you have been together for 5 years already, that is, the diagnosis from your wife did not initially bother you. no , i didn’t bother at all, as if all people have their shortcomings. it was impossible to hide it. you saw right away, right? well , as soon as we started talking, but we just talked to her for a couple of days, then she already wrote. well, that she has such a problem with a leg. i already, as it were, for these 2 days i liked to communicate with her, interestingly, an intelligent

person already fell in love too late. yes, did you communicate online? yes, we got to know each other very well. well, i had a vacation there in a few days. well, i asked for a visit . give permission. i'm from where i come along the contour, so you came further. how events developed. i came to see me at night, xenia's sister took everything. okay, to the shop. then, as it were, he also arrived, sincerely

began to live together. we've been together for five years married for three years, it turns out two years later he met, then i made a deadline. how did you make an offer? arbors were sitting in the month of august it will be warm, the ball, the little blue one took with the ball came. i understand that ksenia is in a wheelchair. you had already sat down with you before that, she could somehow move around on her own. yes, it was much less, damn it, go or not? yes, when i have a weekend we go for a walk, well, the weather, if it allows, i understand that you made a panda with your own hands. yes, i made a panda myself out of wood, a stroller and about 9 years old, probably, well, yes, they flew out of the way. tnicki and

i will look at the history of your acquaintance with this chair a little. i met through a dating site. he was not the first to write. hi let's get to know each other , we wanted to communicate and started spinning. literally the next day, i immediately told that i had problems with my leg, i reacted normally adequately, everyone has some kind of shortcomings . there weren’t even thoughts about changing my mind somehow, i still decided for myself that i would stay with this man. i will always help all the time. we decided to meet after two months. i realized that this is my man. listen interesting, kind very fond of

animals. i also love animals very much, we watch movies, listen to music, as if after i finished all my business in yekaterinburg , i arrived for about a year and decided to sign. i am grateful that he is always with me everywhere helps absolutely in everything , i will always help you. your mother always came to our studio. let's call anna. how is

mom? please tell me i understand that the baby is in her arms, yes, and they make a difficult diagnosis, how they reacted, what the doctors said, the doctors said right away that they would not live long. it must be put in a special institution. where will they look at such patients. uh-huh, i understand that all my life. work in the hospital, home work hospital home there was a period when she wanted to have her leg taken away, she agreed to have her leg removed, and i called the clinic, elizarova, they wrote us down, but when they found out the disease, they refused us correctly, they really use the ilizarov apparatus , and so on miracles they did, and you have something with a bone there, it's just to understand how we were then told that everything was destroyed on the floor, bones are cartilage, well

, not completely, and where there are no fractures , there is cartilage like that, but what fractures in general fractures, at the age of 11 she went out into the street slipped and broke the higher strength of the boat. yeah, i know that despair has brought you to psychics and grandparents to psychics. and everywhere they were in yekaterinburg , they went to the professor, they treated her music music yes soothing in the program, but professors, which music was not treated, listen, but i'm just even interested. but what did these psychics say? well, they probably bred it for money. yes, all the doctors have already told me that she will not live long, and he said that she will get sick, but she will still live , there is some sense of certainty from them. he obviously had everything for you. that's right. naturally, he lifted my spirits and

went on to fight, if not for denis , i don’t know what we were doing. why so we live in our own house, it's still a lot of work. earlier. dad did everything and plowed and firewood. who is now lucky. it's lucky here. denis and you can find out, i don't want to seem gita an antagonist. you can find out from you the first enemy and if you have children, as it were, yes, i have. well, it's just that you really are such a golden person. it seems to me that a man is ready to take on the responsibility of maintaining a healthy woman there. and you really wipe every crease. and well, it’s clear that the issue of offspring is still worth it, that is, you have children, so i’m asking. and how many and what age is older there in the first grade went it all then. communication is not itself does not

want to communicate too much. we have a studio of sergey sueveev, the head of the volunteer center sergey, we understand that at your suggestion, ksenia actually got into the media, as a result, she ended up in our studio. right. hello well, something like this, a girl friend told the story of ksyusha . we thought, we connected and decided through the media to bring this story to maximum publicity and from this story already go to moscow because moscow is her chance for life.

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because again practicing trying. falling from a height has never been so strange for a dari. novikova came to you yesterday morning at the hotel, dear ladies of casanova

, to take decisive action from the movie one tv , everything will be fine . we have changed the composition serum. now nothing can interfere with the successful completion of tasks. ghost who are you? why are you following me? a consultation with a lymphologist in one of the moscow clinics, let's see how xenia's examination went. hello

, it doesn't hurt clinically, i don't have the feeling that there are any problems with the calcaneus. well, that is, it is, as it were, covered with tissues, but it is palpable now , we will measure the legs there, please, we had a certain starting point. here we have 82 cm here, respectively, in the same area order, 32 immediately i do not agree, you need to understand what and in general, what is at stake. what can and cannot be said? what, is this exactly what will happen? no, come on, let's take the little ones now. i want a miracle, i want

my leg to be. well, at least as before, but at the same time you have a specific barrier to surgical intervention, i don’t want to. and if this is the only way really, when we were approached by uh from photographs. we had questions, what prevails here? that is , this change is associated with neurofibromatosis or uh, after all, we have some kind of lymphatic component. and you can just clarify here, even i suppose, well, not completely, you know what neuro-bromatosis is. this is a disease of which this is a genetic disease, in which one's own tissues grow and deformation of the bones can occur. uh, in principle , the vessels of the nerve points can be pinched, that is, and this disease is systemic, it goes throughout the body and a in this situation. uh, respectively, uh, a person may have changes in the area. those nagas might be in

area of ​​the arm, maybe only the hand is isolated there, for example. here it is important to find those specialists who understand what can be done and have experience working with such patients. with your permission, of course, we invited one of your patients to our studio, but let's first watch a video of how lilia, that's the name of this patient, follows the regimen after treatment, and then we will slowly get to know her right knee does not allow walking on her left leg.

168 kg i'm preparing my dinner. now i will hang up and put soup in the amount of 250 grams 120 g lettuce. here is my dinner. after that, i only drink water. if you want to eat, it's time to get acquainted with the lily, personally lily come to us, my savior. i know you and the doctor haven't seen each other in 9 months, right? well, how do you like the result? first of all, it's actually amazing for me too, because after all, the last time we saw each other, we were definitely in a different weight. well, and even in these 9 months, we have, well, radically, i think everything has changed, and this is very cool. right leo kiel well done. i saw your look. i saw,

what is most important for you is not dropped kilograms. and what exactly do the legs look like , see the result? yes, of course , hope appears. yes, thank god this is the most. the main thing is the operation or just a diet. no, this is not an operation, my disease has been occurring since the age of 25. ugh now. i am 50 years old. i fought for a very long time. i watched myself for a very long time, went to all the specialists of our city of ulyanovsk as a lymphologist and a vascular surgeon, because as each year progressed, my disease formed this increase. we can say that doctors do everything from god, ksenia has no doubts, doctors help, really. i'm not advertising anything real. i want to sharpen an important point with you right now, this is very important. it's not like that. no, you

went through pain through pain through tears through trial. first, you have to move a lot when bandaging is being treated. this is bandaging by the banding method. it can be said, generally unbearable pain to endure, it is necessary. for the first few days i cried with bitter licks, i couldn’t even refuse treatment, because it hurt, but i came to this conclusion that this is not for someone, but for myself, because i have two children and it was the meaning of my life to live for someone for children and i have five grandchildren now at the moment. and this is how i would fight all my life. i went everywhere, i did exercises and squats and inclinations on and on maz, everything that was prescribed and tablets of all interahs. this spleen-containing soup preparations were weighed on a scale. but it is also now

, yes. this is already in the process of one of the most important moments, because if a person does not does, no one will do it for him, that is. can a doctor help? maybe u somewhere to send somewhere to do something, but not u to keep the result. but the retention of the results is entirely the merit of the patient himself in january. i came to moscow for treatment on the 3rd of january of what year, the twenty-second year, the third of january? on january 3, 22, 2.5 months i received treatment at the lymph center and for 2.5 months. i dropped 35 kg. our legs are 40 centimeters by 40 cm, each now in the end. how many kilos have you dropped? i am now 94 kg lost 94 kg. i'm on a strict diet right now. flour juice salinity preservation.

salted fish is categorically that i can’t have all the lemonade. this is the most carbonated water i do not drink at all. this is how we discussed with ivan gennavich in the process of treatment, what we can and cannot do, and i kind of agreed with this treatment both myself and even at home i have a large family, it’s like a huge family relatives, but they bake enemies, like i press pancakes, a muslim woman, and, as it were, i bake, but i categorically sealed my mouth, no, no, you you listen, your feet obey. i understand that you dance. you can, that i can lift you freely, when i couldn’t with the help they lifted me, but some kind of compression underwear or something. yes, i found green underwear. ah, well, until here. uh-huh, let's get acquainted with another woman who has a similar ailment. and they suffered and suffer. this is

alfiya, she is being treated, just in kazan. let 's get to know her. hello so i see different legs too, yes. that is, you have the same disease as you have been suffering from it for 10 years in 2013, has risen temperature up to 40 ° and went more on the legs, redness of the face, put in a hospital in the sabinsky district. wow, i was there for 4 months. they couldn't help me there. i came to the kazan republican hospital. they put me there. well, for infostasis of the lower extremities. they just refused me, they said, we can’t help you with anything, you will lie in the ward, we will bandage it and that’s it, right? and

then how did events develop? i sort of locked myself in the house. i live in the country, but i didn't care. well, that's all, then some time passed, all the time the leg was flowing, swollen with every day i became. the temperature is constantly getting worse up to 40, my husband helped me in everything, and we arrived at the kazan hospital 2 years ago. and a surgeon examined me there and said that they could only help to scientifically investigate with a concentration. this is faikhanov aigi skameevich. we came to him, you could not start treatment right away. why did i have to come for treatment? in

the month of august of that year, but when i had a physical to get into this clinic, it turned out that i was pregnant and i was given 17 weeks, i was pregnant twins, and you missed the pregnancy of 17 weeks for some reason yes, because the doctors gave me menopause. they told me that i didn’t have it for a long time, but it’s understandable. so they said that you can’t have more children, and you were absolutely relaxed and calm. yes? yes listen well, the children were born, yes, they are a year and 3 months old, thank god you are running well. yes, what fasteners, right? let's watch a video where you share more. back

well, at first i moved around without sticks, it was easier. now it’s getting harder every year, but the leg is getting bigger, the fingers don’t move i feel pain when i press with my fingers. well, i haven’t been going to the village for 9 years now. perhaps i have not been in the village. we left the hospital, one man even took a picture of me and laughed. well, i cried about it was insulting, probably, for some reason , i’m all normal here. that’s how i don’t want to be pitied. i don’t need to feel sorry for everyone, their own fate, someone dies. and i still live. god gave children that i would get better and

move without a stick. alfiya continues treatment, but the main stage has already been passed, when it was necessary to cope with such a big volume. yes, there was a volume, remember, ah, there was more than 130 cm of circumference. this is even more than yours and uh, here we must pay tribute to the elf herself, the fact that she wanted to be healthy wanted to move forward and thanks to this joint work of the doctor and the patient. we did not achieve this result, because we went through a lot, that is, the year of treatment was not easy, that is, there were many difficulties. uh,

whole teams of specialists worked at the bottom. yes, and it really is. e had an effect, but due to the fact that her eyes burned and still burn since you i understand than talked about our program guests. did you have any thoughts? and yes, we studied the documents and looked, there, indeed, a very good examination was carried out in childhood, and neurofibrosis was diagnosed, but besides this, she has several other concomitant diseases that aggravated and at that time there was indeed an exacerbation of these diseases, and at that moment, yes , indeed, it was impossible to do. uh, some kind of surgery, because it's there were risks. yes, that is, uh, it is not difficult for us surgeons, yes, uh, to perform such and such an operation to remove some parts of the tissue, reduce it, and so on. here questions of risks that can occur as a result of some kind of a-a.

yes, yes, absolutely true, and at that time it was an exacerbation of the disease, but now at the moment, that is, she has, and according to what we see, there are no such obvious clinical manifestations, but in any case, this requires some kind of examination and definition and so on, but in any case it is possible and necessary to help a person. that is this case, because of which you can take. yes, xenia has a completely different story here. that is, here genetic caused diseases. it is proved here that histological studies were carried out, not the one that he had and had to do it. that is, it’s like yes, yes, yes, here the histology is proven, and here neurofibromatosis, which led , respectively, to changes, and finally, that is, if we take it purely, let’s say this from the point of view of abstract here, yes, and you can and need to. let's just say to reduce the volume of the limb. that is, this is one of the stages of treatment. but a leads what she has, besides e

, changes from the point of view. rheumatosis. there are other systems that are also genetically determined, that is, changes in the vessels, but they have certain interferences in this process. well, considering that our cinema is now 27 years old here, while warm sensibility is preserved. it still relies, that is, in any case, the function of preserving the compensatory ability to even provide such a volume limbs. it exists, yes, that is , accordingly, there are chances, but in any case , of course, examinations are required to make the final decision. factory about love is a good song right away with sharp gluing,

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you can connect, only with us activate megapower with 5g and be the fastest megafon number one mobile operator before breakfast. good compositions in bavarian i cook, cut and i serve succulent sauce in a lordly way, such juicy old-timers, really tasty. meet the new card for life from vtb friday is my turn and my cashback get cashback up to thirty percent. get a free card for life on vtb.ru. xenia now you have to answer. you are ready to accept the offer. eh, doctors, well, go with the rude. can you tell us point by point what ksenia will have to face and what costs await along the way? i

mean both financial and moral and physically. well, here, first of all, her moral settings should be, if we decide that really everything. uh, let's say the body can cope, but the volume of the process is rather big. yes, uh, and for this, surgical uh treatment and uh, like any operation , let’s say, maybe you were a syndrome and so on, we need to rehabilitate ourselves , restore ourselves, that is, it’s not not just the volume that matters to us less. yes, but to do it in such a way that, as much as possible in a different way, let's say, so independently provide for yourself from the point of view of finances, the operation, is it free or is this or is it a paid operation? there is an excellent option, otherwise we will spend it within the framework of compulsory medical insurance, how much can the compression underwear that is necessary after the operation actually cost? well, in this case , what is sold in general in salons, and in the public domain. it doesn't

work for this patient at all. yes, that is, it is a completely different kind of product. this it is ordered, individually sewn individually at the factory, but you don’t see it. this is not a cheap pleasure, after rehabilitation. can't do it all the time. i understand that there is a patient in your clinic, and be close to the clinic. so you need to rent an apartment some kind of fidelity. i will help. there is no need to be afraid of this operation. this is a massive operation, which is done in huge quantities, you know, a professional doctor. here they are, the results are not necessary, we already have to be afraid. and by the way, it is very good that people who suffer from this disease and are sure that they are curable will look at us. i will not see will see. i'll take a look at these women. i'm just shocked by he is absolutely absolutely when you come in. i think maybe, maybe it really is shown one thing, eh then the second, of course, miracles - miracles, some miracles, when we started, well , to deal with this problem it turned out that in our country there are not so many specialists who

really work with this, and in russia there are few of them, in principle, around the world a little. well , uh, well, every year, and thanks to the efforts of the gospel, it means, including uh, so these specialists become more and more every day and we train these specialists. in other words, this number of specialists is growing. if there is such a problem, then you can contact. e for help to the association of lymphologists of russia and specify a specialist who is located as close as possible to the region where the patient is located. thank you very much victoria you, as i understand it, did not come to us empty-handed. yes, it really is. so i didn't come empty. with my hands i want to renew your vehicle fleet so that it is more convenient for you to see this world faster and brighter adapt to it faster do not close, only at home ksenia i would like to wish you to remove your mistrust, because a it is noticeable that you have such

a skeptical attitude, even when doctors tell you that a lady will help you. we’ll do everything in your head, and the thought is that, come on, try it. yes, it will work or not, but it won’t work without you, therefore, in any case, you must believe that it will be, and in any case it will and they will help you. well, we see examples, but i think you will still need some time, and the stroller is ready. give you a nose after rehabilitation. and if there is anything else needed, of course, we will always be in touch and help you. the main thing is that you believe that everything will be fine with you, if everything is fine anyway. we met with xenia before filming, and as a psychologist, i can say that she did not demonstrate any directly strong distrust or disbelief. and the lack of faith in yourself. yes, yes today, and i saw that despite the fact that this disease still lasts almost from the very moment of her birth. there is no, there is no weakness of character, there is no disbelief in one's own

strength. and, despite the fact that here she is is in such a difficult position. you saw, and she walks. yes e at the same time, she was able to meet and get married. this demonstrates the strength of character, so it seemed to me a little that now our entire studio is knocking on open doors because just this phrase, when examined by a doctor , can be understood from the point of view of psychology, because a person when well, many are afraid of surgery, yes, and here it doesn't mean she doesn't want to do it. she's just afraid. she does not know the consequences of this. i'm right today i say yes, but in general, uh for me , uh, her psychological status was absolutely healthy yes, a person and healthy with a normal psyche, unbroken uh, we talked about the fact that she will have a rather long rehabilitation. she understands it, she knows what

it is. well, that is, it means that you have to suffer. yes, before we talked about the fact that the operation will take place. she wakes up in the morning with a jet, sonorous thin and ran into the fields there to collect daisies. that is , while it is clear that this is work. ah and xenia they understand this, i really want to wish you ksenia, here, i personally wish this on my own, because you are a rather capricious person. and they know it. here, as it were, therefore, i beg you very much. now, whims aside , be capricious, then you will, when i don’t know the dress, you will choose so that your legs can be seen, let your husband speak. this is what i don't really like. this is the stupid flower. and this is an idiotic bow. but now get together in treatment, discard whims. they are not your helpers on this path, cut down cut down knocking out cinderella yes, of course, i want to thank you so much for

being in this studio today and finding time in your very busy schedule. thank you very much. i call my grandmother not my grandmother, but my mother, because she gave me everything my biological mother, i almost never saw her from the age of 3. dad, where are you, i don’t know where either. forgive me, please, son, for everything. i am very guilty before you, your child was left undressed in only socks. you really beat her, hit her, poked with knives, she was a cook of the fifth category. i have a sore hand. i i never work with cleavers. where did you deprive her parents, this is guardianship, but she left. i became her for 4 years. why alina ended up in an orphanage, a chronic alcoholic, she stood to learn. well, a tragedy happened, a tragedy. yes , we drank and the children played. he sent me for more. even there were this crime. should be put in jail. what happened to arina for five years? good

afternoon on the air is a big game russia continues to strengthen relations with the countries of the world's majority, deputy prime minister dmitry chernyshenko. arrived in cuba today russian foreign minister sergei lavrov received a colleague from uganda in moscow in general africa is a very important part of the world majority, a very important economic partner friendly to russia, as well as a continent that is gaining more and more international subjectivity and confirmation of this is the african initiative to resolve the ukrainian conflict, which president of south africa silver cyril romafos recently said, moreover, as dmitry peskov said today after a telephone conversation between vladimir putin and syril romaphos. it took place, at the end of last week it was decided that a number of african countries would go to a local delegation for relevant negotiations, and

today sergey lavrov explained that russia , uh, plans to visit this mission in mid -june at the beginning of july, however. the minister also stressed that, unlike russia , the united states is not ready for any constructive action on a settlement in ukraine, not now nor in the foreseeable future. hear what he said. listen, they are not ready at this stage, in my opinion, in the foreseeable future. in the future, to some constructive, action regarding the settlement of the situation in ukraine, which they themselves created for many years, a and created a in the context of their strategic course of countering the objective formation of a multipolar world , maintaining their hegemony, subordinating their will to everyone and everything and ukraine is used within the framework of this course as an obedient instrument.