tv The Stream Al Jazeera February 9, 2022 7:30am-8:00am AST
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and is you see a much more international field of nominations drive my car, palo mothers, worst person, the world flee. these are movies that are outside the united states. i was really excited to see that diverse diversity, legally damping up in the oscar nominations. see each other denominations, again proving the power of streaming giant netflix with a total of $27.00. not the academy is yet to reveal who will play host. but there is pressure to put on a show that resonates with a younger, more diverse audience. when the ceremony takes place at the adobe theater auditorium in los angeles for the 1st time since 2018 join wolf al jazeera. ah, hello, are you watching out his ear? these are the top stories this our high level talks to avoid conflict in ukraine
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are continuing the ladies of france, germany and poland have met in berlin earlier french president emmanuel mac wrong called for come during your visit to the ukrainian capital here, the premier, the discussions i had with prison put in were to look at ways to lower the instability and insecurity in the region. this will take time, in particular, lowering attention related to military buildup. we have to find ways of bringing viewpoints together and lowering the tension. obviously the geopolitical order that was built at the end of world war 2. we need to address that. i think our communications over the past hours have helped us to address this old position and go and how to change. israel has launched air strikes in syria. the military says it's in response to cross border antiaircraft fire. earlier, syria said it's air defenses intercepted israeli missiles sent. you says one soldier has been killed. you as president,
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jo biden's pick to lead central command is wanting al qaeda and i feel i'm getting stronger. general michael carrillo appeared before the senate confirmation hearing the u. n. world food program says 13000000 people across the horn of africa facing severe hunger, kenya, somalia, ethiopian eritrea, a suffering from drought. 3 rainy seasons have failed and food prices arising, officials say urgent, humanitarian action is needed in the coming months. and the us has saved more than $3600000000.00 worth of stolen crypto currency, its largest ever financial seizure. a couple in new york has been arrested and charged with trying to launder that money. those are the headlines. i'm emily angland. the news continues. he on al jazeera, after this string to wild water we listen,
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design is making furious efforts in order to maintain and disrupt the trend of use making store based on the i us on the okay today on the stream of mysterious condition, or known as known as long cove, it will be looking at the physical and mental impact of long and how is research during how much more do we know at this stage? we start our conversation with robbie. i've now been seriously ill with long cove it for latin months, and this illness has taken my life away prior to falling ill, i was a healthy and active 22 year old. by now have to spend up to 16 hours a day in bed. i'm unable to do almost any of the things which used to make life meaningful from writing and seeing friends to dating. we are so much more to say
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about long covered with research. noreen dot aside, thank you all for being on the string to day. we should please introduce yourself to our audience. tell them who you are, what you do and your connection to long cove it. good evening, everyone. i maricia precarious. i'm from stanon bus university. i am a researcher in physiology and my interest long coded as started long before when i started looking at coagulation in various diseases. thank you for being with us, nor a nice to have you on the stream. please will you introduce yourself to our audience and your connection to long have it? my name's no engineer, i'm a journalist. i have been a foreign journalist for about 20 years and i ended up with okay, that last year. and i started podcast to try and disseminate installation because people don't know about this new disease at all. thank you for being with us and dr
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. sad. finally this, introduce yourself annual connection to long as it now good evening everyone. i'm a 2nd. i'm a respiratory position or as you would call them in the u. s. a pulmonologist for my connection with cove. it started off by a being a doctor in the beginning of the pandemic, or through the 1st and 2nd waves than i acquired acute coded in november 2020, which dental rested long coded, which i suffer from. but i have now become somewhat of a patient advocate and researcher. i would like to say i had cognitive impairment which may be reflected in what you see this evening if i have difficulty with words . all right, well thank you so much for sharing that with us. we're gonna did a little bit deeper into what long coded actually means with you audiences. while you have questions, you've got comments, you have experiences. the comment section is right here. do my best to wrap your thoughts, your ideas into the show. we have 3 excellent guess will do their best to answer
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your questions as well. first question for you then dr. sat, her not usual for somebody. he's not a doctor to ask me this, but how are you feeling? i am feeling better, but that is relative. ok. so at my worse back in august i was lying in the darkened room. i was a completely intolerant of light and sound and i was unable to tolerate any food or drink. i was rapidly losing weight and i felt like i was on my way out since coming to germany in september. and i have been here more or less all the time since then a part of a brief period over the new years where when i, within the paper a week and i read that, i have improved to the extent that i am now housebound. mostly, i would say i'm about 50 to 60 percent bed bound. i can function in that i can look
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up to myself, but that is about it. i cannot fully see the possibility of returning to work any time in the, in the foreseeable future. i have no role within family life and my social interaction extremely limited. i have to keep lying down every country 30 minutes, just to get enough blood to my brain, and that is an improvement. and this is somebody who is probably under the best team in the world, looking after don cobit and even they are struggling to get on top of my illness. why it's so important that we understand it, and we get an entry to early every time i also me about long has it or read about long covered the symptoms. the experience of it is very different knowing when did you know you how long i would, how could you even tell i couldn't. so i had
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a very mild case of it again in november 2020 i was i didn't even have a fever. i was out of bed after 3 days. i thought this is ok. i was quite lucky. about $6.00 to $8.00 weeks later, i found that i couldn't walk up the stairs without kind of being breathless. and you know, being a lady of a certain age in gender and race, i thought ok, so it's my heart. i better go and have this check now and i walked into cardiologists and i was really lucky. my husband has a good company that provides private healthcare and i was able during the pendency called you just sent me down to my symptoms. and he said, you are a typical patient i'm seeing now coming through my door, you know, coded. and that was shocking because i thought i couldn't wait with it and i didn't realize that my code it had cools these cardiac symptoms, and they're still ongoing today. and i had other symptoms that kind of progressed
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as, as the months went along. but yeah, that was the 1st time i heard the word on it and i was diagnosed very quickly, unlike so many people have no wish. i'm going to bring another voice here. this is lauren nichols. she's basically saying and talking about what long it does to your life, what the impact is, haven't listen to low and, and then i love your we actually meet in the back of the city and his lawyer. clear seeing suicidal ideation and the challenges of living this virus staying in out for months and for years for some of us without any treatment without a known prognosis. we're seeing depression as a result of having to adjust to a life of disability that for many of us is completely foreign and exceedingly difficult to navigate, including on this impact on our careers, on our family life and, and therefore on our mental health. his
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lauren a just tells it exactly how it is. one of the things that she mentioned is that she she failed the priest. but the issue, the reason why she is feeling depressed is because she probably didn't a get enough information from the health care professionals to look at a diagnostic. one of the important things for many of these individual suffering from long cove. it is that they will go feeling really devastating sick, but at the disease ravaging they bodies. and i do not kate, in some instances, a diagnosis. and that will impact not only on the body function, the physiology, how they feel, and as a sod mentioned really being very, very sick. it can also impact on the soccer psychology. however, the important thing that we need to to talk about is that the
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effects that long covert patience see is not because of the psychological states they psychological state is because of that demoralizing effects of the disease. and currently, unfortunately, they are no diagnosis for individual suffering from long co at that they can go to a regular pathology laboratory. it's wonderful that in some instances, individuals can infect and go to, to doctors and that they can tell a patient you have long covert. unfortunately, it's not the case for many people. i said, you know, when you got a 2nd. okay. yes. i guess what i was saying was that unfortunately, because there aren't any easily accessible diagnostic tests immediately we get
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labeled logically and well, i mean to me it's frustrating that 100000000 people over the world have suddenly signed a pact to become psychologically unwell and take to their beds, we need to understand that people can be very, very thick with normal tests. and normal tests is not a diagnosis. we are practicing lazy medicine. focus has becoming reassure and discharge and move on, rather than looking a bit deeper. and if you look harder, you will find that there are serious abnormalities affecting all parts of the body . and a lot of it is done to disorder, correlation, which is linked in with the work that has done knowing i had well, i just wanted say that lauren was right, people on demoralized because there is no out information out there. this is exactly why we started the long session so we can access the latest information,
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the doctors, the latest research, talk about symptoms, explain to people what is going on in their body, and trying to offer some kind of comfort in the idea that they're not alone there are people out there that are working hard to find out what's going on in their bodies. i'm, i'm really got. he said, i've got my i q is on the chief right now. when you say what is going on in your body? most it said, how do you treat long coded if everyone has different symptoms when you were doing your po, cost knowing is that something that you actually looked at like how, how do you look at treatment every week? every week i got the book us. so yeah, exactly, so i mean there's so many different people. i mean i said is right, there is this, there is the, the idea doctors are not taking it seriously, which is one aspect. but there are many other doctors that are working hard to try and find out what the mechanisms of on it. but at the moment, as with
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a lot of diseases, wilson grims and syndrome is an umbrella term for when a doctor doesn't know actually what's going on. so just just syndrome is included all the different treatment. so, so, i mean, i had that time and time again from the physicians, which is great because they're being very candid. but the idea is that we can give this it, give this information to people by just looking at an individual symptom. so ok, you have a cardiac symptom that's going to a cardiologist. what's going on? you know, your lunch was instant brain for, let's talk about what's going on in your brain and you know that anyway i, i agree. i absolutely agree that, that the, the conditions think it is a, a send the caller to syndrome. but the issue is that we must look closer and what happens to all of these individuals. if we look at the patients from a, from, from a, a physiological point of view,
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we have noted that they have got persistent symptoms that all can be found. traced back to what is happening in blood and in circulation. so in our research, we found that and if we look at the blood samples of these individuals, all of them, every single one and i have looked at that task heart, confirmed long cove, it has got my crew clots in circulation. and if you look at the micro clotting circulation for that is going to your site back up a little bit. so is this your ferry? this is your research because people are going to be watching this who have long cove it. so i want to be very careful about what we're doing here, right? this is like if, if this is a theory, i'm really happy to hear it and we happy to hear any research that is being done. but i do also, i'm very aware that people are vulnerable who are listening to this. so if you couch in your research and then what you believe you are seeing in your research,
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that will be very helpful. and then you can explain why you want microcosm. ok so during 2021. so let me let me talk about the research what we have found in what we have published. so during 2021. my research group in collaboration with various researches in can improve. his douglas kell found that in long covered patients in the blood, there are micro clots that are in circulation. and we found inside the micro clots trapped inside these micro clots or molecules. dec prevent the micro cloud from breaking down. and many other researches have found other types of molecules, insulation, for example, water antibodies that might be linked to, to the disease. but if we think about what are the micro clots or to antibodies and all of the molecules that might been suki nation, these molecules might be causing spells of the body to not to have enough oxygen,
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which is called hypoxia, saying that my was what i'm hearing is it might be causing multiple symptoms and, and, and couldn't get kind of kind of a story and the a may be linked to your, into the, but i want to make sure that this is accessible for everybody. i'm going to bring in. i said, i'm gonna, i'm going to put something to you. if i make, then you can come off the back of it immediately because i am wondering what we such is being done. and i know you want to come in on that. but i'm going to go via z at who is the chief of research and development at the v a st. louis health care system. what do we know now? what do we know for sure. now, i said he is z at festival. we the establishment of long go in clinics to the care of these patients. we also need more to refer to better understand long coded we've seen a few days ago that he lost by the us government of the cancer and one shot that's absolutely amazing is going to help advance research and treatment for cancer. we
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need an equivalent effort by the us government and other governments around the world to galvanize research on long, corbett, so we can better understand it and tweeted, we need a long cold moon shot. what we do know is that let me transfer. we'll talk about what this is not. okay. so it is not psychological just in the same with me and 5 romaji and put the not technological. what we do know is that exercise and talking therapies, i'm not going to fix this. what we do know is that every single patient with a clinician diagnosis of long coded whose blood has been looked at under for the microscopy has these micro clots and has these hyper activated pigments including myself. so those are my for clubs. i can't seem very well, but they look like little green dots on,
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on your thing. yes. and this is after 3 months of treatment. ok. the people's blood is flooded with these. and we know what to do with them. what we need, we have the drugs available. but the problem is that to trial these drugs, it takes so long to get the funding to get the ethical approval. and meanwhile, people are suffering and, and they are becoming depressed and suicidal as a result of that. so what we need are small, agile, quickly funded, quickly ethically approved trials that people can take part in that can then inform treatment because people are not going to get better on their own. we have to treat what we know is there, and there is no doubt that the cutting phenomena a present. now the longer we leave it, the harder it's going to get to eradicate things. then you will end up with things like viral to distance, like auto immune pathology, that is boring,
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difficult to control. so there is a real urgency had, this is a mass disabling event. and we are going to lose an entire generation to chronic illness and disability. if we do not get up at that site, then treat the threat away. can i can i just put my journalist hat on at this point and say, when you say everyone who's blood tested has park across the numbers of people who have the are being tested very small. and there are lots of different theories about what is happening in people with the betty roman at the or the clinic is working with accel cant mitochondria for example, which is the tiny cells that the engines of all bodies. and those seem to be in pad and they're working on that and the dr. akiko is the walk in. yeah, i was looking at vaccines and, and how that might help patients because of all the systems. they're all micro club . they have been found and certain people that have been lucky enough to be tested
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. but the mechanisms behind why people have the microphone is unknown. so i just say that you will write to me when you say that this is a very vulnerable cold people, millions of people, there's millions in the u. s. 1.3000000 in the u. k. a few extrapolate that out across the world. talking about a lot of people, and these are desperate people. and at the moment, all treatments for long coded are experimental. simply because it's such a new disease. and so and people are spending the life savings tried to go and have treatments like a doctor come in, germany, of which he's having his blood cream through his treatment called after recess, where the blood stilted out and the clot removed. but as you can see, he's not better. so it's really, you know, yes, we should be moving forward a pace. but we need to be also cautious and careful with what we say. you know? because for example, the sessions were really careful about what we give out to people in terms
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information to have solid medical information that we can share with people. because we're really acute when people are desperate, it's been 2 years now for somebody that does does more than one. i am better, i am better, but obviously i'm cured. and the numbers of patients where we have looked at my quotes are small, but then the logical thing to do is look at big numbers and replicate. let's go to us. i what i'm thinking is, here you are a somebody with long coded doing your research. i'm working on something to help you get better as a patient out of the could. there is a big picture here about if the stats i'm looking at is pops one in 10 as many as one in 10. people who have covey end up with long jose. so that is a huge global problem for all of us. even if we don't recognize at this stage,
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i'm going to bring in doctor is a few co because i also want to talk about the personal, the social part of having long cousin that is really important to his elizabeth festival. is about more than jobs. this is about financial and security and it's more than not being able to pay your bills. i've spoken with several people with who 1st lost their job and their income and then their home and have to live with the debilitating symptoms in their car or a tent. the system is broken, but we have the opportunity to fix it and employers to take the lead by enacting policies that treat people with long coded and other kind of invisible illnesses like humans instead of burdens. let's talk about how people treat you when you have long cause it's a sad you are not working right now. how did that go down with your job?
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i have to say that to my employer so far have been supportive and herb, but i don't know how long that's gonna last because in england certainly the legislation is that it's full pay for a year and and after that is the discretion of the employer. but if the government decides that, well, actually we're not gonna pay people any more than i could be out of a job any minute. and the tragedy here is that i got this from work and that this was entirely preventable. and as my colleague, doctor, yeah, colacho says, and as my treating bulletin got to be at ega, say the best treatment of long co it is to prevent it. so you stop people getting covered and what's happening, or take, for example, schools. okay, in the u. k. a we have one, had ran 17000 children with long cobit in the u. k. in
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a one of my closest friends at her daughter was a gymnast, and now she has have it with her just to get get out of the house. there is no master level or is no ventilation alliance. so we're not actually stop at stopping . people are getting covered that they are going to going to get runcle. i hold, let me, let me add another. so it's the story that you just sat and this is one from ela. sloman is on you chip. i've had a long covey for over a year. i can't work and things are desperate. all right, so i've got a couple of you chief questions and queries knowing i'm going to give one to you is this at long cove? this one comes from anna. is this situation justification for warp speed in the entire in gather, reset, speeding up research. we did this for the vaccines that were sped up. vaccines turned up before anybody thought we could have vaccines. should this be the same for long how they, what have you found from your pockets researching and the interviews that you've done? just lay briefly. yes, it is being actually,
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surprisingly what speed it like the the amount of resources and focus on long code . it is massive in terms of this scientific community. because if you look at diseases that are the pilot file diseases that work for us, any my logic and satellite is my and then on the cheeks and they were, they were neglected. bellanca has actually got some focus and that's positive. like we have to take the politics and we have to be positive because it's a new disease. and, you know, in this pandemic, in the 1st way people were dying and that thousands and they are still in the us today. i think it's still 2002000 and dying every day. and it's just, it's a, you know, the idea that long code it can wait is, is something that the government's like to promote. but the scientific community are not waiting. they are trying to make inroads into the disease. i think the
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tragedy here is that it's having to be pushed by people who are sick. one who don't have the reserve to do this. when actually this should be the focus and the responsibility of those in government because this is the next pandemic. it's ongoing. it's not over a quick somebody else wanted to know how to get tested from micro cost. is that even possible? that's going to be a yes or no from you lisa. is that possible? can that be done? currently it's only a research miss it, but the working very hard to get it in the u. s. a. the, the u. k. and the rest of the world. all right, thank you. russia no rain and dr aside, really talk about where we are with long coded from their personal experience and their research experience as well. thank you. chip commenters in part of the program tay. appreciate it. i see you next time take ah,
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really on our plates. food in glorious food on to, on al jazeera sediment and development have altered the course of the ribbon. it no longer flows to the sea. and around 10 years ago it became more susceptible to red tides. the boom of elk a causes discoloration in the water. i'm going to scoop some of this water out. and you can see there's a rust cala tinge to it. tests by the fisheries department show the al he in the getting river is of the alexandria species which produces toxins. ra, sleep in a bra, him is a fisherman from malaysia don't. but district in collecting, in the 19 ninety's, the giddy river was clear. you can see the said we didn't have any problems here. now the river is polluted and it smells bad. fisheries officials have a should notices, banning people from selling or eating malice found along the getting river. the
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