say you sa denominations, again proving the power of streaming giant. netflix with a total of $27.00 on the academy is yet to reveal who will play host. but there is pressure to put on a show that resonates with a younger, more diverse audience. when the ceremony takes place at the adobe theater auditorium in los angeles for the 1st time since 2018 join wolf al jazeera. ah, this is our da 0. these at the top stories leaders of germany, france and poland have discuss ways to deescalate tensions and ukraine's border with russia. speaking in berlin, they all agreed. their common goal is to prevent war in europe. assyrian soldiers being killed and several others have been wounded and then is rarely airstrike near the capitol, damascus. israel's military says the attack hit missile batteries and radar it says

it was in retaliation for cross border anti aircraft fire. earlier, syria said it's here. defense is intercepted is really missiles the u. s. is warning that i'll call you to and i said are getting stronger, they're general nominated to be the new boss of central command says on groups could use the anger of the lack of food and water in summer, middle east countries as a recruiting tool. so then schools in india's southern karnataka state have been ordered to close because of growing anger about a bond on religious head, scarves, lucifer, a tear gas to disperse, crowns this video, done. oh, give it back negative. all you gotta do. you are leading you to really dabbing this . got it. i know the other one is really bad because i did all those students who were there. he just started this ra 1st. if they ended, we will also ended the name to the president of democratic republic of congo,

says the serious evidence of a national security threat. it follows reports of a failed cure attempt to the weekend. the president spokesman's, appeared a national television warning that attempts to destabilize democratic institutions would not be tolerated. south korea has another record number of coven 19 cases. nearly 50000. you infections were reported on wednesday. deaths and hospital admissions are still low, but health officials expect them to increase beliefs in indonesia have arrested dozens of people taking part in a protest against plans for a rock mining site. it happened in central java. blue people have been trying to stop bullies entering the tone when things are set of turned violent. lose the headlines. news continues here on al jazeera after the stream. good bye. as the world's best athletes prepare for the winter olympics aging is bracing itself

for the arrival of an estimated 11000 people. kind of 0 tolerance corvette strategy work, and despite diplomatic boy clothes, which one is winter games? movies the latest date is 2022 winter olympics on al jazeera. i as ha, okay to day on the steam, a mysterious condition or illness known as lonely cove. it will be looking at the physical and mental impact of long code. and how is research during, how much more do we know at this stage? we start a conversation with, rather i've now been seriously ill with long kind of it for lack of months. and this illness has taken my life away. prior to falling ill, i was a healthy and active 22 year old. by now have to spend up to 16 hours a day in bed. i'm unable to do almost any of the things which used to make life

meaningful from writing and seeing friends to dating. we are so much more to say about long covered with russia, marine dot aside. thank you all for being on the stream today. we should please introduce yourself to our audience. tell them who you are, what you do and your connection to long cove it. good evening, everyone. i'm re shipper tourists. i'm from stunning bush university. i am a researcher in physiology and my interest to long cove it as started long before when i started looking at kirk elation in various diseases. thank you for being with us, maureen. nice to have you on the stream, please, will you introduce yourself to our audience and your connection to long as it? my name's no in jamil, i'm a journalist. i have been a foreign journalist for about 20 years. am i? that was okay. that last year and i started podcast to try and disseminate installation because people don't know about this new disease at all. thank you for

being with us and dr. sad. finally. this introduce yourself annual connection to long has it. now good evening everyone. i'm a 2nd. i'm a respiratory position or as you would call them in the u. s. a pulmonologist my connection with cov, it started off by a being a doctorate in the beginning of the pandemic, or through the 1st and 2nd waves than i acquired. acute coded in november 2020, which dental rested long coded, which i shall suffer from. but i have now become somewhat of a patient advocate and researcher. i would like to see i had cognitive impairment, which may be reflected in what you see this evening. if i have difficulty with words, i will thank you so much for sharing that with us. we're gonna did a little bit deeper into what long covered actually means with you? audiences? well, you have questions, you've got comments. you have experience is the comment section is right here. do my best to wrap your thoughts,

your ideas into the show. we have 3 excellent guess will do their best to answer your questions as well. first question for you, then dr. sat, her not usual for somebody. he's not a doctor to ask me this, but how are you feeling? i am feeling better, but that is relative. ok. so at my worse back in august i was lying in the back room. i was completely intolerant of light and sound and i was unable to tolerate any food or drink. i was rapidly losing weight and i felt like i was on my way out since coming to germany in september. and i have been here more or less all the time since then a part of a brief period over new years where we're now within the u. k. for a week. and i read that i have improved to the extent that i am now housebound. mostly, i would say i'm about 50 to 60 percent bed bound. i can function in that i can look

after myself, but that is about it. i cannot foresee the possibility of returning to work anytime in the, in the foreseeable future. i have no road within family life and my social interaction. thank stream limited. i have to keep lying down every country 30 minutes, just to get enough blood to my brain, and that had an improvement. and this is somebody who is probably under the best team in the world. looking after don cobit and even they are struggling to get on top of my illness. why it's so important that we understand it and we get an entry to early every time i also me about long co video or read about long kind of it. the symptoms, the experience of it is very different knowing when did you know you had a long time? how could you even tell i couldn't. so i had

a very mild case cove. again in november 2020 i was i didn't even have a fever. i was out of bed after 3 days. i thought this, you know, this is ok. i was quite lucky. about $6.00 to $8.00 weeks later i found that i couldn't walk up the stairs without kind of being breathless. and you know, being a lady of a certain age in gender and race, i thought ok, so it's my heart. i better go and have this check now and i walked into cardiologists and i was really lucky. my husband has a good company that provides private healthcare, and i was able, during the pandemic. cardiologist sent me down to my symptoms and he said, you are a typical patient i'm seeing now coming through my door. you have located and that was shocking because i thought in the way was coven, and i didn't realize that my cove it had cools these cardiac symptoms. and this

ongoing today. and i had other symptoms that kind of progressed as the months went along. but yeah, that was the 1st time i heard the word on coven and i was diagnosed very quickly on like so. many people have no wish. i'm going to bring another voice here. this is lauren nichols. he's basically saying and talking about what long coffee does to your life, what impact is, have a listen to low and, and then i love, you know, we actually meet in the back of the city and his loan. we're seeing suicidal ideation and the challenges of living this virus stay in and out for months and for years, for some of us without any treatment, without a known prognosis. we're seeing depression as a result of having to adjust to life a disability that for many of us is completely foreign and exceedingly difficult to navigate, including, i'm been hacked on our careers and our family life. and therefore on our mental

health he is lauren a just tells it exactly how it is. one of the things that she mentioned is that she, she failed the priest. but the issue, the reason why she is feeling depressed is because she probably didn't a get enough information from the a health care professionals to look at a diagnostic. one of the important things for many of these individual suffering from long cove. it is that they will go feeling really devastating sick and at the disease ravaging they bodies. and i do not cake or in some instances a diagnosis. and that will impact not only on the body function, the physiology, how they feel, and as a sod mentioned really being very, very sick. it can also impact on the soccer psychology. however,

the important thing that we need to to talk about is that the effects that long covert patience see is not because of the psychological states they psychological state is because of that demoralizing effects of the disease. and currently unfortunately, they are no diagnosis for individual suffering from long co that they can go to a regular pathology laboratory. and it's wonderful that in some instances, individuals can infect and go to, to doctors and that they can tell a patient you have long covert. unfortunately, it's not the case for many people. i said, you know, when you got a 2nd. ok, yes, no, i guess what i was saying was that unfortunately, because there aren't any easily accessible diagnostic test immediately we get

labeled attack logically and, well, i mean to me it's frustrating that 100000000 people over the world have suddenly signed a pact to become psychologically unwell and take to their beds. we need to understand that people can be very, very thick with normal tests. and normal tests is not a diagnosis. we have practicing lazy medicine. focus has becoming reassure and discharge and move on, rather than looking a bit deeper. and if you look harder, you will find that there are serious abnormalities affecting all parts of the body . and a lot of it is done to disorder, correlation, which is linked in with the work that has done knowing that well i just wanted to say that lauren was right. people are demoralized because there is no out information out there. this is exactly why why we started the long session,

so we can access the latest information, the doctors, the latest research, talk about symptoms, explain to people what is going on in their body, and trying to offer some kind of comfort in the idea that they're not alone and there are people out there that are working hard to find out what's going on in their bodies. i'm, i'm really going. he said, i've got a kid is on the chief right now when you say what is going on in your body? most it said, how do you treat long coded if everyone has different symptoms when you were doing your po, cost annoying, is that something that you actually looked at like how, how do you look at treatment every week? every week i got the book us. so yeah, exactly, so i mean, so there's so many different people. i mean i said is right, there is this, there is the, the idea doctors are not taking it seriously, which is one aspect. but there are many other doctors that are working hard to try and find out what the mechanisms of on it. but at the moment, as with

a lot of diseases, wilson grims and syndrome is an umbrella term for when the doctor doesn't know actually what's going on. they just just syndrome is included all the different treatment. so. so i mean, i had that time and time again from the physicians, which is great because they're being very candid. but the idea is that we can give us, give this information to people by just looking at individual symptom, say ok, you have a context. and let's talk to a cardiologist what's going on, you know, your logical sense and brain for, let's talk about what's going on in your brain and, you know, that family. i agree. i absolutely agree that, that the, the conditions think it is a, a send the caller to syndrome. but the issue is that we must look closer and what happens to all of these individuals. if we look at the patients from a, from, from a, a physiological point of view,

we have noted that they have got persistent symptoms that all can be found and traced back to what is happening in blood and in circulation. so in our research, we found that and if we look at the blood samples of these individuals, all of them, every single one and i have looked at that to has caught confirmed long cove, it has got my crew clots in circulation. and if you look at the micro clotting circulation for that is going to your site back up a little bit. so is this your ferry? this is your research because people are going to be watching these who have long cove it. so i want to be very careful about what we're doing here, right? this is like if, if this is a theory, i'm really happy to hear it and we happy to hear any research that is being done. but i do also a very aware that people are vulnerable who are listening to this. so if you couch in your research and then what you believe you are seeing in your research,

that will be very helpful. and then you can explain why you want microcosm. ok so during 2021. so let me let me talk about the research what we have found and what we have published. so during 2021. my research group in collaboration with various researches in can improve. his douglas kell found that in long covered patients in the blood, there are micro clots that are in circulation. and we found inside micro clots trapped inside these micro clots or molecules that prevent the micro clots from breaking down. and many other researches have found other types of molecules in circulation, for example, or to antibodies that might be linked to the disease. but if we think about the micro clots or to antibodies and all of the molecules that might been suki nation, these molecules might be causing spells of the body to not to have enough oxygen,

which is called hypoxia. i'd say that my was what i'm hearing is it might be causing multiple symptoms and, and, and, and can, i can kind of kind of a story and the it may be linked to your, into the, but i want to make sure that this is accessible for everybody i'm going to bring in, i said, i'm gonna, i'm going to put something to you. if i may, then you can come of the back of it immediately. because i am wondering what we such is being done. and i know you want to come in on that, but i'm going to go via z at who is the chief of research and development at the v a st. louis health care system. what do we know now? what do we know for sure. now i said he is the at festival we the establishment of blanco in clinics to the care of these patients. we also need more to refer to better understand long coded we've seen a few days ago that he lost by the us government of the cancer and one shot as an

absolutely amazing is going to have advanced research and treatment for cancer. we need an equivalent effort by the us government and other government around the world to galvanize research on long calls it so we can better understand it and treated. we need a long coded more shot. what we do know is that let me transfer. we'll talk about what this is not. okay. so it is not psychological just in the same way that me and 5 room algio and put them outside logical. what we do know is that exercise and talking therapies. i'm not going to fix this. what we do know is that every single patient with a clinician diagnosis of long coded whose blood has been looked at under for microscopy, has these micro clots and has these hyper activated pigments including myself. so this might, for clubs, i can't seem very well,

but they look like little green dogs. okay. on, on your phone. yes. and this is after 3 months of treatment. okay. the people's blood is flooded with these and we know what to do with them. what we need, we have the drugs available, but the problem is that to trial these drugs, it takes so long to get the funding to get the ethical approval. and meanwhile, people are suffering and then they are becoming depressed and suicidal as a result of that. so what we need a small agile, quickly funded, quickly ethically approved trials that people can take part in that can then inform treatment because people are not going to get better on their own. we have to treat what we know is there, and there is no doubt that the cutting phenomena a present. now the longer we leave it, the harder it's going to get to eradicate things. then you will end up with things like bio persistent like auto immune pathology. that is boring,

difficult to control. so there is a real urgency had this is a mass disabling event. and we are going to lose an entire generation to chronic and disability. if we do not get up at that site, then treat the threat away. can i can i just put my journalist hat on at this point and say, when you say everyone whose blood is tested, has park across the numbers of people that are being tested are very small. and there are lots of different theories about what is happening in people with betty roman at the clinic is working with accel la can't mitochondria for example, which is the tiny cells that the engines of all bodies and those seem to be in pad and they're working on that and the dr. akiko is to walk in. yeah, i was looking at vaccines and, and how that might help patients because evolve assistance. there are micro clock they have been found and certain people that have been lucky enough to be tested.

but the mechanisms behind why people have the microphone is unknown. so can i just say that you? all right, so when you say that this is a very vulnerable cold people, millions of people, there's millions in the u. s. 1.3000000 in the u. k. a few extrapolate that out across the world. talking about a lot of people, and these are desperate people at the moment, all treatments for long kind of it are experimental. simply because it's such a disease. and so and people are spending the life savings tried to go and have treatments like a doctor come in, germany, of which he's having his blood cream through his treatment called after recess, where the blood stilted out and the clubs are removed. but as you can see, he's not better. so it's really, you know, yes, we should be moving forward a pace. but we need to be also cautious and careful with what we say. you know? because for example,

the sessions were really careful about what we give out to people in terms information to have solid medical information that we can share with people. because we're really a key when people are desperate. it's been 2 years now for somebody that does does more than one. i am better, i am better, but obviously i'm not killed. and the numbers of patients where we have looked at microns are small, but then the logical thing to do is look at big numbers and replicate. let's go to us. i what i'm thinking is, here you are a somebody with long coded doing your research. i'm working on something to help you get better as a patient advocate. there is a bigger picture here about if the stats i'm looking at is paps one in 10 as many as one in 10 people who have cove it end up with long closing. so that is a huge global problem for all of us, even if we don't recognize it at this stage,

i'm going to bring in doctor elizabeth you code because i also want to talk about the personal, the social part of having long cousin that is really important to his a list of a festival. this is about more than jobs. this is about financial insecurity. and it's more than not being able to pay your bills. i've spoken with several people with 1st lost their job and their income and then their home and have to live with the debilitating symptoms in their car or attend. the system is broken, but we have the opportunity to fix it and employers to take the lead by enacting policies that treat people with long coded and other kind of invisible owners is like humans instead of burdens. let's talk about how people treat you when you have long cause it's a sad you are not working right now. how did that go down with your job?

i have to say that my employer so far have been supportive and herb, but i don't know how long that's gonna last because in england, certainly the legislation is that it's full pay for a year and and after that is the discretion of the employer. but if the government decides that, well, actually we're not gonna pay people any more than i could be out of a job any minute. and the tragedy here is that i got this from work and that this was entirely preventable. and as my colleague, doctor, yeah, colacho says, and as my treating britain got to be at ega, say the best treatment of long co it is to prevent it. so you stop people getting covered and what's happening, or take, for example, schools. okay, in the u. k, a we had one had been 17000 children with long cobit in the u. k. in

a one of my closest friends at her daughter was a gymnast, and now she has have it with her just to get get out of the house. there is no master level or is no ventilation alarms, so we're not actually stop at stopping people getting cobra that would be, are going to, going to get runcle. i hold, let me, let me add another story. it's the story that you just sat and this is one from ela sloman. as anew chief, i've had long covered for over a year. i can't work and things are desperate. all right, so i've got a couple of you chip questions and queries knowing i'm going to give one to you. is this at long cove or this one comes from anna. is this situation justification for warp speed in the entire endeavor? reset, speeding up, reset. we did this for the vaccines that was split up. vaccines turned up, we don't before anybody thought we could have vaccines. should this be the same for long how they, what have you found from your podcast researching and the interviews that you've

done? just lay briefly. yes, it is being actually surprising the speed it like the the amount of resources and focus on long code. it is massive in terms of this time to the community. because if you look at diseases, that other part of post bol diseases that work for us, any my logic and set the light is my and then on the cheeks and they were, they were neglected, long coded as i've got some focus. and that's positive, like we have to take the politics and we have to be positive because it's a new disease. and, you know, in this pandemic, in the 1st way people were dying and that thousands and they are still in the us today. i think it's still 2002000 and dying every day. and it's just, it's a, you know, the idea that long code it can wait is, is something that the government's like to promote. but the scientific community are not waiting. they are trying to make inroads into the disease. i think the

tragedy here is that is to having to be pushed by people who are sick. one who don't have the reserves to do this. when actually this should be the focus and the responsibility of those in government because this is the next pandemic. it's ongoing. it's not over. oh, i totally agree with. i saw it. yeah, just very quickly. some did eddie eddie wanted to know? can he get tested from micro clot? is that even possible? that's going to be a yes or no from you. we sure. is that possible? can that be done? currently, it's only a research method, but be working very hard to get it in the u. s. a, the, the u. k, and the rest of the world. all right, thank you. risha no rain and dr. aside, really talking about where we are with long coded from their personal experience and their research experience as well. thank you chip coming to us in part of the program to appreciate it. i see you next time take ah

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same then minutes later, once the earth is just a blurb below, it's time to free fall with ah, united against war, the leaders of france, germany and poland, discuss ways to defuse the ukrainian border crisis. ah, i'm about to say this is how does he rely from doha. also coming up, beware of i sold the man nominated to come on to us forces in the middle east.