is mateo is now part of that statistic. but alicia, your, i thought if they, they were sergeant, why don't they come? but they concluded with the criminals, they don't take you into account. they only did when i investigated myself. the trial from a table's mode has been postponed. 14 times state prosecutor offices. we deal with the majority of mexico's homicides. tied them up. he actually spent 2 years traveling around the interviewing prosecutor's problem. he found huge problems, really basic things like extremely high workloads. there are prosecutors who are responsible for hundreds of cases at once, and a lack of basic resources and training. many of the crime scene technicians that we spoke to tells us that they aren't provided with basic materials that they need to go out and respond to a crime scene. rather than focusing on fixing that, successive mexican governments have gone down a different road,

sending soldiers on to the streets to stop crime. it's visible, an ineffective, off the 20 years of it. the violence goes on to my august month yochi. why the authorities don't change track fridays. some of the challenges that criminal justice operators across the country face are not very sexy. for example, many prosecutors and investigated police officers don't have gas to put in their cars to be able to drive to and from crime scenes. politicians like to present things like using an a computer model or something to determine how to investigate crimes which sounds like a great solution. but a lot of the solutions here really are very basic things a we also the government for their response to the report. at the time of filing

this piece, they had an onset. but without these basic, not some bolts, the human rights which report betrays of broken criminal justice system. with people that pasquale and her family cm quote and the rec you, this is where they go to the mr. b. joan home and how does it a mexico city? no. nope. it's the kind of way volcano has erupt cents for the 10th time on the big island of hawaii. fountains of lava have reached up to a 122 meters in the. busy kind of way, it is one of the most active volcanoes in the world has been erupt. thing on and off since december. that's it for me. my name's side to stay with us. the the

one in 64 worldwide lives with a disability. that's 1300000000 people and the world health organization says their conditions are often dismissed or ignored from being invisible on or these forces in this industry. the total issue, if you can stumble, i get the suitcases from the dispute in government. exceptional sense of oppressive on mind. yep. let me see with this ma'am. how is district doing that? and what was that?

on the letter to me, both of us will give you sorry about this. let me just a single and let me shoot this over to him. he says, when he's done it almost has somebody just hold up to the judgment, which happens. you test every budget a by the customized half a day when they pull down on the developmental. so anytime you see the dentist no, oh disabilities are visible. auto immune conditions, chronic illnesses, and even depression. anxiety can alter one's relationship with others and their experience of the world around them and living with an invisible disability. it comes with unique challenges beyond managing the environment itself. getting a diagnosis can sometimes be a long and difficult journey. joining us to discuss all of this, our amy data research are at cambridge university in volunteer with the invisible disability project. sophia countess, she's

a disabled writes campaigner and official may and architect who's focusing on accessibility. thank you all so much for your time. thank you for being with us here on the screen today. amy, can i start by asking you, so how does your organization define invisible disability? you there one definition for what it feels like a multitude of conditions and and realities. thank you for that question. we define and invisible disability as a physical or mental difference from a procedure norm which may very culturally, politically socially, depending on your medical framework and disability that's not immediately apparent . and that's very important. so in some ways we don't love the word invisible because the more you spend time with someone, let's say somebody with epilepsy or diabetes or depression, that disability does become visible in various ways. whether that through their

access needs, whether that's through their various patterns of speech or various kinds of habits . but we hold on to it because they want to recognize there is an immediate difference between someone um on the street who has a wheelchair or a hearing aid. and that person is immediately recognized as disabled, which does change the way that they experience the world. and the way they're treated, edit versus someone who have an invisible thank you so much for clarifying the the difficulties in using the word invisible, i think is very important. i want to to know also very briefly if you can list some of the areas of focus on the invisible disability project that you are part of. yeah, absolutely. we primarily focused on training employers who have a strong interest really in trying to understand what kind of structural interpersonal changes they can make at their organization to better accommodate

different kinds of employees with different kinds of access needs. and we also worked quite a bit with schools as well. so we're thinking about, you know, major institutions in society that if left unaccessible can have, you know, dire impacts someone's capacity for social mobility employment. and generally, just to, to live on a daily basis and contribute to society. absolutely, i'm. so here is that, is that i'm a bit of your focus as well. can i ask you about your work in terms of being an advocate? but also if this is a journey that is personal, a personal fight to you. yeah, thank you for the question. um, i would say the one of the key things about living with a disability. i live a physical on the invisible and what happens is that it's important to look at the

social level of disability. so a lot of my, what uh, focuses on working with dpi, is which are disable people's organizations which are run by and for disabled people. and it actually means that we look at what is society's impact. so we say that a disabled person, so we have in 10 minutes. so i commend so or invisible in time. and i'm, but it's actually society that disabled. so is looking at was a society sobari is and the social model kind of says, and we're looking focusing on things like attitudinal barriers, physical barriers, political barriers, the existence as icy. i'm to me personally, i have face and invisible and physical disabilities. so i should use a walking stick. so as any kind of pointed out that they'll be days when i don't have my walking stick in. and so it's perceived on either not as disabled or disabled in that capacity. i'm living with any disability means that you can have

very slight, very different kind of days. i was and minutes even a whole. so i think we are understanding of disability is something that needs to be improved upon in the disability isn't this kind of constant experience? it's very much in slo influx myself. i'm what's cool dynamically disabled. so i have different experiences everyday. every minutes, i think about something that needs to be highlighted like i'm a trusty up an organization could inclusion logged in. and we still focus completely on the social level. whereas the medical model looks that the disabled person is the thing that needs to be fixed. whereas we, because the size so far as needs to be fixed. and so that's kind of what it is. in a nut shell, every individual disabled person has a unique experience and say, speaking to one person with an indivisible condition that she doesn't give beautiful picture. we have to have a very person centered approached every pause, supporting and working with disabled people. oh, thank you so much for that and,

and thank you for this for this concept as well, in terms of what you have people have impairments, but society and the barriers the society imposes is what makes people disabled. i think that is very strong effect. can i ask you about your personal journey, particularly one incident about 5 years ago, and whether that has shaped you and your work? yes, of course. so just what's in the context of an architect, not qualified, based in london and uh, to qualify as an architect is about 70 is in the u. k. as around midway through my architectural johnny, i was involved in a hit and run across my lower right. like so i went from be able bodied to a disabled and ready. it's quite a hard uh uh, psychological adjustment. mm hm. so it's only in the past year or so that also

qualifying, i've know i've, i've been made aware of how accommodating architecture and the designing spaces, the public or even just a furniture. how accessible things are. so i'm at the start of trying to what to improve a disability design. alexis is on and we're going to ask you more about that. um, thank you for sharing your personal story with us. first of all we, we really wanted to have your voice is as part of this conversation because we believe that that is crucial in order to understanding and actually learning more about just how low to layered it all is. as we said at the start, there is a multitude of conditions and even getting to the bottom of one's condition can be difficult and for many a very expensive journey. take a look, something i wish more people understood about chronic illness and disability is

that it's not as simple as just going to the doctor is giving them our laundry list of symptoms and having them figure it out and give us the accommodations and treatments. it'll actually work. firstly, it takes ages to picture the weeds and find a doctor who's actually understanding and willing to write referrals to the people that you need to see. and then even when you do find that doctor, it takes ages to actually get each and every symptom looked into and manage. for example, i've been seeing my osteopathic pain management specialist since 2021. and she is the person who manages a lot of my h. e. a symptoms like my migraines, my m costs really anything to do with 80 s, even though she's a specialist herself. she often takes on the role of primary care provider. in my case, because she's the one who i get all of my referrals from in a 3 year time span. we've tried me on multiple different medications, multiple different specialists in each of them have their own. several treatment options that i have to go through and trial amy, 1st i wanted to ask you about how important it is to get the right diagnosis. but i, i also want you to, to touch upon an idea here because this is

a clip from social media. i would just say social media has played a positive or negative role in helping people navigate this and, and figuring out what it is that they may have. because, i mean, there are some disabilities that are even becoming trendy in a way. so i wanted you to, to give us your thoughts on that a yes, thank you for that question. i think social media has certainly played, i'd say, overall a positive role. and i, i say that understanding that there are also some teachers, the social media um, especially the spread of misinformation when it comes to various diagnoses. um, but overall i think especially touching on what's at the side. i mean, one of the most important things about the social model is that values the knowledge of the disabled person versus the medical model, which prioritizes medical model over at the disabled person king. and i think

that's very, very important about social media is it's created all these kinds of communities where disabled people, for whatever reason, who would never interact with one another, can now share their experiences. and this was very important. and in the early days of the cold, with 19 pandemic, in particular, when he was many disabled people who had experience immunocompromised, wearing masks having to shelter. and they could share that knowledge with other people. and so in that way, i think it's been quite important. and it's also allowed for these kinds of identities where people who grew up, never thinking of themselves as having a under a divergence or any kind of mentioned difference or any kind of difficult difference can now perhaps see their experience reflected another person. and of course this comes with the teachers. what do you usually advocate for? or when it comes to diagnosis is having kind of multiple points of affirmation. i'm not limiting yourself to just thinking, oh,

my experience aligns with my social media fees which is very algorithmically generated and not to be immediately attracted as a valid sources knowing you. um, but that so thinking about your medical experiences, your personal experience, talking to people who really know you're very well. so you're not just relying only on your own knowledge, having trusted sources of information. and i find can be really helpful to have a more holistic picture if you are, it's an important journey, isn't it? in terms of also empowering someone to identify if they want to, as, as someone who is disabled and then trying to go and seek potentially for the help and, and the kind of support that they might need. sophia, this journey however, can be made incredibly difficult. and i'm talking about i'm, i'm focusing now on the journey in terms of like seeking help and support that journey can be incredibly difficult. and also because of insurance companies. and

what have you learned, either from your experience or, or from the experience of others in terms of, of just how dismissive, sometimes these organizations institutions can be yeah, it's a really good question. i would say one of the key things is that when we look at and for example died the diagnostic pathways and as, as maybe so mentioned, they often follow the medical model. they don't look at kind of society barriers. they don't look at kind of how we can, how an organization or group can kind of improve a disabled person's experience. it's about what can, you know, a treatment and options, and often there aren't any. so on diagnosed with 5 or my alger and it took me now i'm used to be diagnosed, diagnosed, diagnosed with an demetrius this, which took me 9 years to be diagnosed. now if we're looking at any of the structures in place, we also have to look at gender,

the price to all of these things. because for women on people who have a way, oh i'll, i'll see, mail and presenting. and though it could be freedom for the a lot of people all have these gender experiences and experience i, the able is in or sexism when it comes to these things. so i was 18 when i suddenly started getting in much, most of a payment. i had full and it was considered, it's just a period, it's nothing. and so you get dismissed and dismissed and dismissed only until you find the right health professional that you suddenly conversation start to happen and you suddenly get that dialogue. well, the reason social media has been an important part of this is that people have seen the chinese about the people realize that they're not alone and these experiences, but also really been able to achieve into, okay, the actually could be what i'm looking at. so one of my experiences was a tv show called crazy ex girlfriend. i knew that she's diagnosed with borderline personality disorder. and this was something had never been mentioned to me before

. and when she list sort of the, my stuff up my tv, and i always thought that all my slow listing, all of the things that i was like, i have online and suddenly things clicked. but it wasn't the thing that made me go . i definitely have to, so i have to go for a price this i think that's really important. i'm so the way that the insurance companies kind of to come into play here and not to live in the case. we don't have as much respect as we have and the national health service in the u. k, which is free until point of service, although not disabled, people are paying out of pocket to get extra support and service which often happens, which is called the invisible cost of disability. and i'm for the insurance company . so, you know, worked around this is the more conditions you have, the higher premiums will be an item. what can american system so i can't say like, you know, an exact way of, of working. but my friends have been and he live in america. i've said it is just this just battery after battery after battery. yeah. mm hm. so i think what we really need to do to have these conversations to make sure that people are getting

the right care and support is to understand the accessibility and support and treatment isn't necessarily just the medical full treatment. what you said is very important because obviously determines in so many other aspects of your life in terms of getting a job, your integration staff is and, and so one um beyond these challenges, there's also the stigma and perhaps the most dangerous one is the one that's been internalized. take a look at this. honestly, anyone who lives within invisible illness or disability we've developed enable this mindset. we live in a very able to society. so it's easy to pick up. the ablest mindsets, the other people have feet personally when i 1st started getting sick, i definitely have the mindset of like, i'm not sick enough. i'm not disabled enough. there is no such thing. you're either disabled or not. you're either you either have an invisible, missouri or you don't, it's a spectrum. there's no such thing as not being sick enough, not being disabled or not for so that's very much like unable this mindset of you

have to be sick to a certain point or you have to be disabled to a certain point. and that's why we are kind of, we have an internal able, as of that, we have to kind of unpack and see from a different perspective and, and break out of that mindset because internalized abel is a, is a very real thing. if it can, you talk to us about able isn't the concept for those we're not familiar, but also just how much it can hurt a 100 percent. i mean, i think particularly what's been pointing in my, my journey is because i've go from someone to us to be able to having a disability, which i think sometimes we forget that can happen to us who and as we age of ability changes our mental a busy with the changes, so the way of that is, yeah, i'd say that in the becoming disabled because of your experiences about you,

you do feel a lot shame because you realize that, particularly in my case, the bill environment doesn't accommodate your needs. i'd spend is in and out of wheelchair and put down the ink cartridge, but also like to the i i used cartridge, but sometimes i can work with um with braces that allow me to work. and some people might not be aware. so i have a disability, but the main um the main issue i face is, is pain because of the type of injury that the pain is was debilitating. mm hm. um, oh as what we've been talking about, how's the size it can be obviously extremely harsh towards people, but there's also the case of some suggesting that the system is there to be taken advantage off. take a look at this. i just saw a video of some in phones are saying that

a travel hack was to get one of those lanyard. so let's say you have invisible disability so that you can skip all the lines at the airport. do we really have to explain why that's wrong? like i feel like they should be self explanatory. accommodations are put in place for only people that need them. they're not life hacks, they're not extra perks disabled people get, for example, i am artistic and i also travel a lot. and there's a good amount of resources and accommodations that i can get at an airport with my autism diagnosis. but i've never used to them because the way that my autism presents, i am totally capable of getting through an airport in less i am completely over stimulated or i'm having a meltdown. and thankfully, that's never happened when i've traveled. and so i've been able to go through lines just like everybody else. i haven't used those accommodations because i would be abusing the very little amount of resources that there are for disabled people. and

there are people that need it. amy, i'm going to put this question to you because during our chat, before the show you said something along the lines of how important it is not to focus on the minority who actually try and cheat the system in a way or another. because that is really a tiny minority, the vast majority of people actually just trying to actually get their conditions recognize i wanted to talk to you about that, but also looking ahead, how can we do better? what should we be focusing on now as a society in terms of nope, helping but align ourselves with people who are identified as disabled. yes, thank you for that. there is true that the, the midst of the saving staker is, is very old, and it's very long. and it is often weaponized to justify the cutting back of resources or custody. justifying increased surveillance or procedure of who can

actually apply for these resources who actually get them. and that's just put more and more onus on the disabled person who's already overburdened with administrative tasks just to justify their existence and their needs. so i think we need to be very wary about those, those stories of people taking advantage of accommodations on this. uh huh. a resources. uh huh. at sophia, we're almost out of time and i really want to actually give me a little bit of your hopes and dreams for the future in terms of again, what we can do to do better as society. you old mentioned the fact that it's not one condition is not one experience and it's a multitude of symptoms depending on the day. but obviously the governments and companies need to kind of have sort a certain hard lines, right? in terms of defining things as in order to speed up the process and, and function. how can we reconcile the to what can you do to protect people and to

help people and to make them part of society? yeah, i think that can be a danger sometimes. when was sort of looking at how do we define disability? it's one of those things where for example, and one of the ways that we talk about disability in general is that if you want to have like policies or pieces of what really fully are accessible and have disabled people in mind, it's really important to make sure that you have a co production model, which is essentially why disable people all parts of the bid, the whole project, the beginning, the, and the structural aspects, the implementation. i'm not sure what the true dollars, all right. nothing about this without does exactly said to you and unconventional, the rights of disabled people and some states this and it's really fundamental because any piece of policy, we can clearly see a piece of policy that has been done without disabled people or mind. oh,

it is without disable people's organizations being involved. absolutely, and i, i want to bring it in for one final word. what will you be focusing on in terms of crafting this new reality for everyone to feel like they are a part of society? what it's exactly is as amy and sophia said that typically the architects can no, no what directly we just decided that people when they're designing spaces and again architects typically with 52 things like building regulations which steps out accessibility. ready requirement, so in, in our wells, someone in a wheel change is what you used to design. but because it's done with someone who was not there so much last and sometimes it's, it can be really performance in the way. if you design a space because based on, based on the, the route for instance. mm hm. that this are much less than that. so i recently

attended the tool from just voice from the disciplinary architecture products. and they reduced the publication by expos, exactly that different abilities to disabilities and how architects and, and run a who is involved in that environment. could be a bit more sensitive to design in a way that actually works when it's not just a textbook exercise, which i think is, is definitely a step in the right direction. and what we're definitely watching your work as well . and following all of you in the next few years to see if we can improve the world together. effie, amy, i'm sophia, thank you so so much for your time. thank you for being part of the stream today. and thank you all for watching. stay in touch with us online, you can use the hash tag or the handle aging stream to connect with us. the

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