try and prevent the sabotage of data cables and pipelines. through london back to m 23 rebels are advancing on another city in eastern democratic republic of congo of the country in large areas of territory and recent weeks. com is returning to because my 20 people were killed as the rebels took the city on sunday. i don't know why connie is the incentives this report. those who died in because it is we can live with a local symmetry. all of them including children with shot dead. so you end up use this one, them, buck them for the 2 levels of big was possible. the global, known as commodity for allies, blooms, government soldiers were fleeing from the city of the fight as we're approaching for shooting in from the a faster off. so what happened in the city? we collected several bodies in different areas. we want to give the victims a dignified central city. i'm 20 to put a cover on sunday stuff. ask those will is here to get back to work. i don't think

it's down to because when the people are getting back to their identity life supposedly to spend the morning cleaning up thrust does have accumulated that on this, the 222 officials of us, one of them that will not have the full but these are 5th menu homes, businesses, government offices as well as you and the food warehouses will over the weekend. know this visit to say they just want to move on with the what difficulties in charge. now it's a lot, most of the work early for the cleaning as requested for our leaders and now everything's clean, including a market. we're happy with this new initiative. you just said you don't to be. i don't, i'm really about mama now, but everything is coming back to norman. we want security for all of us, including women and our children as soon as they will resume schooling from next week. for us out from 20 to fight, this continued the store to veto the sick and just as intuitive territory of south of cuba the photos the previous times on the on the ed warranty was on zillow.

kimberly is way into town, how old would fit into nibbling countries. if we had a photos i'm trying to, we love for the technical total of so to keep an eye on it. how does it all of the democratic republic of congo? a reco break is $700000.00 c titles have turned up on a beach in eastern india for annual mass investing event. each female will lay more than $100.00 x. that will hutch around 50 days later. local authorities of friends stuffy area to prevent them leaving during this time at olive olive release. the titles are an endangered species because of the declining dumps. that's it. for me, the stream is coming around the phone, counting the cost. as donald trump's term, his policies begin to take shape. we took

a look at the potential impact on american industry. consumers of the economy will increase inflation level the playing field, portions of the rules of the global trading system. counting the cost on which is 0 . 1 in 64 worldwide lives with a disability. that's 1300000000 people and the world health organization says their conditions are often dismissed or ignored from being invisible on or these forces. and this is the street, the total issue. if you can stumble, i get the suitcases from she's just doing the exceptional sense of the basic phone lines. yeah. and it's even different ma'am. how is district doing that? and what was that on the letter to just give me was sent over. she'll give you sorry about this, let me just a single and let me shoot this over to him. he says,

when they've done it for almost have somebody just hold up to the judgment which happens. you test every budget a by the customized half a day when they pull down on the developmental. so anytime you see the dentist no, oh disabilities are visible. auto immune conditions, chronic illnesses, and even depression. anxiety can alter one's relationship with others and their experience of the world around them and living with an invisible disability. it comes with unique challenges beyond managing the environment itself. getting a diagnosis can sometimes be a long and difficult journey. joining us to discuss all of this, our amy data research are at cambridge university in volunteer with the invisible disability project. sophia countess, she's a disabled writes campaigner and official may and architect who's focusing on accessibility. thank you all so much for your time. thank you for being with us

here on the screen today. amy, can i start by asking you, how does your organization define invisible disability? you there one definition for what it feels like a multitude of conditions and and realities. thank you for that question. we define and invisible disability as a physical or mental difference from a procedure norm which may very culturally, politically socially, depending on your medical framework and disability that's not immediately apparent . and that's very important. so in some ways we don't love the word invisible because the more you spend time with someone, let's say somebody with epilepsy or diabetes or depression, that disability does become visible in various ways. whether that through their access needs, whether that's through their various patterns of speech or various kinds of habits

. but we hold on to it difficult because they want to recognize there is an immediate difference between someone um on the street who has a wheelchair or a hearing aid. and that person is immediately recognized as disabled, which does change the way that they experience the world and the way they're treated, edit versus someone who have an invisible thank you so much for clarifying the the difficulties in using the word invisible, i think is very important. i want to to know also very briefly if you can list some of the areas of focus on the invisible disability project that you are part of. yeah, absolutely. we primarily focused on training employers who have a strong interest really in trying to understand what kind of structural interpersonal changes they can make at their organization to better accommodate different kinds of employees with different kinds of access needs. and we also

worked quite a bit with schools as well. so we're thinking about, you know, major institutions in society that if left unaccessible can have, you know, dire impacts someone's capacity for social mobility employment. and generally, just to, to live on a daily basis and contribute to society. absolutely, i'm. so here is that, is that i'm a bit of your focus as well. can i ask you about your work in terms of being an advocate? but also if this is a journey that is personal, a personal fight to you. yeah, thank you for the question. um, i would say the one of the key things about living with a disability. i live a physical on the invisible and what happens is that it's important to look at the social level of disability. so a lot of my, what uh, focuses on working with dpi, is which are disable people's organizations which are run by and for disabled

people. and it actually means that we look at what is society's impact. so we say that a disabled person, so we have in 10 minutes. so i commend so i'm or invisible in time and i'm, but it's actually society that disabled. so is looking at was a society sobari is and the social model kind of says, and we're looking focusing on things like attitudinal barriers, physical barriers, political barriers, the existence as icy. i'm to me personally, i have face and invisible and physical disabilities. so i should use a walking stick. so as any kind of pointed out that they'll be days when i don't have my walking stick in. and so it's perceived on either not as disabled or disabled in that capacity. i'm, i'm living with any disability means that you can have very slight, very different kind of days. i was and minutes even a whole. so i think we are understanding of disability is something that needs to

be improved upon in the disability isn't this kind of constant experience? it's very much in slo influx. i'm by myself. i'm what school? dynamically disabled. so i have different experiences every day, every minutes. i think about something that needs to be highlighted like i'm a trusty up an organization could inclusion logged in. and we still focus completely on the social level. whereas the medical model looks that the disabled person is the thing that needs to be fixed. whereas we, because the size so far as needs to be fixed. and so that's kind of what it is. in a nut shell, every individual disabled person has a unique experience and say, speaking to one person with an indivisible condition that she doesn't give beautiful picture. we have to have a very person centered approached every pause, supporting and working with disabled people. oh, thank you so much for that and, and thank you for this for this concept as well, in terms of what you have people have impairments, but society and the barriers the society imposes is what makes people disabled. i

think that is very strong effect. can i ask you about your personal journey, particularly one incident about 5 years ago, and whether that has shaped you and your work? yes, of course. so just that's in the context of an architect, not qualified, based in london and uh, to qualify as an architect is about 70 is in the u. k. as around midway through my architectural johnny, i was involved in a hit and run that across my level, right. like so i went from be able bodied to a disabled and that already it's quite a hard uh uh, psychological adjustment. mm hm. so it's only in the past year or so that also qualifying, i've know i've, i've been made aware of how accommodating architecture and the designing spaces,

the public or even just a furniture. how accessible things are. so i'm at the start of trying to what to improve a disability design, accessing this is on and we're going to ask you more about that. thank you for sharing your personal story with us. first of all we, we really wanted to have your voice is as part of this conversation because we believe that that is crucial in order to understanding and actually learning more about just how low to layered it all is. as we said at the start, there is a multitude of conditions and even getting to the bottom of one's condition can been difficult and for many a very expensive journey. take a look, something i wish more people understood about chronic illness and disability is that it's not as simple as just going to the doctor is giving them our laundry list of symptoms and having them figure it out and give us the accommodations and treatments. it will actually work. firstly,

it takes ages to picture the weeds and find a doctor who's actually understanding and willing to write referrals to the people that you need to see. and then even when you do find that doctor, it takes ages to actually get each and every symptom looked into and manage. for example, i've been seeing my osteopathic pain management specialist since 2021. and she is the person who manages a lot of my h. e. a symptoms like my migraines, my m costs really anything to do with a d. s. even though she's a specialist herself, she often takes on the role of primary care provider in my case, because she's the one who i get all of my referrals from in a 3 year time span. we've tried me on multiple different medications, multiple different specialists in each of them have their own, several treatment options that i have to go through and trial. amy, 1st i wanted to ask you about how important it is to get the right diagnosis. but i, i also want you to, to touch upon an idea here because this is a clip from social media. i would just say social media has played a positive or negative role in helping people navigate this and,

and figuring out what it is that they may have. because, i mean, there are some disabilities that are even becoming trendy in a way. so i wanted you to, to give us your thoughts on that. yes, thank you for that question. i think social media has certainly played, i'd say, overall a positive role. and i, i say that understanding that there are also some dangers, the social media um, especially the spread of misinformation when it comes to various diagnoses. um, but overall i think especially since you know, most of the side, i mean one of the most important things about the social model is that values the knowledge of the disabled person versus the medical model, which prioritizes medical model, over at the disabled person team. and i think that's very, very important about social media is it's created all these kinds of communities where disabled people, for whatever reason,

who would never interact with one another, can now share their experiences. and this was very important. and in the early days of the quote with 19 pandemic in particular, when you have many disabled people who had experience being immunocompromised, wearing masks having to shelter and they could share that knowledge with other people. and so in that way, i think it's been quite important. and it also allows for these kinds of identities where people who grew up, never thinking of themselves as having a narrative versions or any kind of mentioned difference or any kind of difficult difference can now perhaps see their experience reflected another person. and of course, this comes with the teachers. what do you usually advocate for? or when it comes to diagnosis is having kind of multiple points of affirmation. i'm not limiting yourself to just thinking, oh, my experience aligns with my social media fee which is very algorithmically generated and not to be immediately trusted as a valid source of knowing you. um,

but that so thinking about your medical experiences, your personal experience, talking to people who really know you very well. so you're not just relying only on your own knowledge that having trusted sources of information. and i find can be really helpful to have a more holistic picture for you are it's an important journey, isn't it? in terms of also empowering someone to identify if they want to, as, as someone who is disabled and then trying to go and seek potentially for the help and, and the kind of support that they might need. sophia, this journey however, can be made incredibly difficult. and i'm talking about i'm, i'm focusing now on the journey in terms of like seeking help and support. so that journey can be incredibly difficult. and also because of insurance companies. and what have you learned, either from your experience or, or from the experience of others in terms of, of just how dismissive,

sometimes these organizations institutions can be yeah, it's a really good question. i would say one of the key things is that when we look at and for example died the diagnostic pathways and as, as maybe so mentioned, they often follow the medical model. they don't look at kind of society barriers. they don't look at kind of how we can, how an organization or group can kind of improve a disabled person's experience. it's about what can, you know, a treatment and options, and often there aren't any. so on diagnosed with 5 or my alger and it took me now i'm used to be diagnosed, diagnosed, diagnosed with an demetrius this, which took me 9 years to be diagnosed. now if we're looking at any of the structures in place, we also have to look at gender, the price to all of these things. because for women on people who have a way, oh i'll, i'll see, mail and presenting. and though it could be freedom for the

a lot of people all have these gender experiences and experience i, the able is in or sexism when it comes to these things. so i was 18 when i suddenly started getting in much, most of a payment. i had full and it was considered, it's just a period, it's nothing. and so you get dismissed and dismissed and dismissed only until you find the right health professional that you suddenly that conversation start to happen and you suddenly get that dialogue. well, the reason social media has been an important part of this is that people have seen the genies about the people realize that they're not alone and these experiences, but also really been able to achieve into, okay, the actually could be what i'm looking at. so one of my experiences was a tv show called crazy ex girlfriend. i knew that she's diagnosed with borderline personality disorder. and this was something had never been mentioned to me before . and when she list sort of the, my stuff up my tv, and i always thought that all my slow listing, all of the things that i was like, i have online and suddenly things clicked. but it wasn't the thing that made me go

. i definitely have to, so i have to go for a price this i think that's really important. i'm so the way that the insurance company is kind of to come into play here and not to live in the case. we don't have as much respect as we have and the national health service in the u. k, which is free until point of service, although not disabled, people are paying out of pocket to get extra support and service which often happens, which is called the invisible cost of disability. and i'm for the insurance company . so, you know, worked around this is the more conditions you have, the higher premiums will be an item. what can american system so i can't say like, you know, an exact way of, of working. but my friends have been and he live in america. i've said it is just that it's just battery after battery after battery. yeah. mm hm. so i think what we really need to do to have these conversations to make sure that people are getting the right care and support is to understand the accessibility and support and treatment isn't necessarily just the medical full treatment. what you said is very

important because obviously determines in so many other aspects of your life in terms of getting a job, your integration staff is and, and so one um beyond these challenges, there's also the stigma and perhaps the most dangerous one is the one that's been internalized. take a look at this. honestly, anyone who lives within invisible illness or disability. we've developed an able list mindset. we live in a very able societies. so it's easy to pick up the ablest mindsets, the other people have feet personally, when i 1st started getting sick, i definitely have the mindset of like, i'm not sick enough. i'm not disabled enough. there is no such thing. you're either disabled or not, you're either you either have an invisible, missouri or you don't, it's a spectrum. there's no such thing as not being sick enough, not being disabled or not for so that's very much like unable his mindset of you have to be sick to a certain point or you have to be disabled to a certain point. and that's why we are kind of, we have an internal able,

as of that, we have to kind of unpack and see from a different perspective and, and break out of that mindset because internalized abel is a, is a very real thing. if it can, you talk to us about able isn't the concept for those we're not familiar, but also just how much it can hurt a 100 percent. i mean, i think particularly what's been pointed in my, my journey is because i've go from someone to us to be able to having a disability, which i think sometimes we forget that can happen to us who and as we age on the ability changes our mental a busy with the changes, so the way of that is, yeah, i'd say that in the becoming disabled because of your experiences involved you, you do feel a lot shame because you realize that, particularly in my case, the bill environment doesn't accommodate your needs. i've spent is in and out of

wheelchair and put down the ink cartridge, but also like to the i i used cartridge, but sometimes i can work with um with braces that allow me to work. and some people might not be aware. so i have a disability, but the, the main um, the main issue i face is, is pain because of the top of injury, pad the pain as well as debilitating. mm hm. um, as we've been talking about how is the size it can be obviously extremely harsh towards people, but there's also um the case of some suggesting that the system is there to be taken advantage off. take a look at this. i just saw a video of some in phones are saying that a travel hack was to get one of those lanyard. so let's say you have an invisible disability so that you can skip all the lines at the airport. do we really have to explain why that's wrong?

like i feel like they should be self explanatory. accommodations are put in place for only people that need them. they're not life hacks, they're not extra perks disable people get, for example, i am autistic and i also travel a lot. and there's a good amount of resources and accommodations that i can get at in airport with my autism diagnosis. but i've never used to them because the way that my autism presents, i am totally capable of getting through an airport in less i am completely over stimulated or i'm having a meltdown. and thankfully, that's never happened when i've traveled. and so i've been able to go through lines just like everybody else. i haven't used those accommodations because i would be abusing the very little amount of resources that there are for disabled people. and there are people that need it. amy, i'm going to put this question to you because during our chat, before the show you said something along the lines of how important it is not to

focus on the minority who actually try and cheat the system in a way or another. because that is really a tiny minority, the vast majority of people actually just trying to actually get their conditions recognize i wanted to talk to you about that, but also looking ahead, how can we do better? what should we be focusing on now as a society in terms of nope, helping but align ourselves with people who are identified as disabled. yes, thank you for that. there is true that the, the midst of the saving staker is, is very old, and it's very long. and it is often weaponized to justify the cutting back of resources or custody. justifying increased surveillance or procedure of who can actually apply for these resources who actually get them. and that's just put more and more onus on the disabled person who's already overburdened with administrative

tasks just to justify their existence and their needs. so i think we need to be very wary about those, the stories of people taking advantage of accommodations or access resources at sophia, we're almost out of time. and i really want to actually give me a little bit of your hopes and dreams for the future in terms of again, what we can do to do better as society. you old mentioned the fact that it's not one condition is not one experience and it's a multitude of symptoms depending on the day. but obviously the governments and companies need to kind of have sort a certain hard lines, right? in terms of defining things as in order to speed up the process and, and function. how can we reconcile the to what can you do to protect people and to help people and to make them part of society? yeah, i think that can be a danger sometimes. when was sort of looking at how do we define disability?

it's one of those things where for example, and one of the ways that we talk about disability in general is that if you want to have like policies or pieces of what really fully are accessible and have disabled people in mind, it's really important to make sure that you have a co production model, which is essentially why disable people all parts of the bid did the whole project, the beginning, the, and the structural aspects, the implementation. we actually want to know the truth, thousands, right? nothing about this without does exactly said to you and unconventional, the rights of disabled people and some states this and it's really fundamental because any piece of policy, we can clearly see a piece of policy that has been done without disabled people or mind. oh, it is without disable people's organizations being involved. absolutely, and i, i want to bring it in for one final word. what will you be focusing on in terms of crafting this new reality for everyone to feel like they are a part of society?

what exactly is as amy and so you said that typically the architects can no, no what directly we just decided that people when they're designing spaces and again architects typically with 52 things like the regulations which steps out accessing the. ready the requirement, so in, in our wild, someone in a wheel change is what you used to design. but because it's done with someone who was not there so much last and sometimes it's, it can be really performance in the way. if you design a space because based on, based on the the route for instance. mm hm. that this one much less than that. so i recently attended a tool from just voice from the disciplinary architecture products and they reduced the publication about expos, exactly that different abilities to disabilities and how architects and then run

a who's involved in that environment could be a bit more sensitive to design in a way that actually works when it's not just a textbook exercise, which i think is, is definitely a stuck in the right direction. and well, we definitely watching your work as well. and following all of you in the next few years to see if we can improve the world together. effie, amy, i'm sophia, thank you so so much for your time. thank you for being part of the stream today. and thank you all for watching. stay in touch with us online, you can use the hash tag or the handle aging stream to connect with the with 80 percent of its population involved in agriculture became the fast. i still struggling to feed its people, but it's only without them to, to renew the student. despite the tearing decades of political timeline and

multiple kids, the nation has really to find long lasting solutions for feed stupidity. so that, that a lot of time your time, i'll just say right, explores how struggling countries assisting in this effort to feed its people, africa's new directions, offensive accurate call on out to 0. outside the bookshop established by his family more than a century ago. are the ones that are re, reflects on the moment has changed. it's come to syria. since the toppling of a shot and selling drugs was products of a threat, then selling books, books from people to grow and think about their circumstances. savvy of the mind recounts the difficulties he also used to face. we provided books that to advance or political in nature shows me how the cover of a book on the band list was replaced with a cover of one that had been approved. for the streets of this neighborhood used to be lined with many more books, doors for the economic pool of the war, combined with sections to force many to close their doors from the impact of the

us selections, the escalating conflict in the middle east. and the urgency of climate action upfront sets the stage for serious debate on out jersey, or we're facing a future that we don't understand. we can't predict fully. everyone has this, nobody knows what would happen the i need to stay, but i really need to do more with my life. i was like, you know what? i don't like myself. i want to change. why am i want to be trustworthy? i want to be responsible, but keep getting inspired to the story is on one of those bring in the communities to comcast. me. i agreed to put the fast behind. i move forward because on what we need is being able to move forward. and that isn't just a matter of science,

that's a matter of what do you think about your fellow human beings because it is a matter of democracy. the, [000:00:00;00] the hello, i'm how much in june. this is the news, our live from bill coming up in the next 60 minutes. come out says it's investigating whether a body returned to israel, which it says, isn't that of a captive was mixed up with other human remains found in rubble after and is really their strength. the group is also named 6 living is really captives to be released