tv BBC News BBC News July 4, 2017 7:45pm-8:01pm BST
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he, his mother and sister escaped from the third floor. in the aftermath of the fire at the prime minister promised that every affected family would be offered a good quality temporary home within three weeks. sajad's family is one of more than 100 households waiting to be rehoused. he says they will stay in the hotel until permanent accommodation is offered. why would you not accept temporary accommodation? it is difficult to accept temporary accommodation, knowing that you are already in one, temporary accommodation. people do not want to be moved around so many times. how many people are still living in this block? in this particular area, he is there, they are there, she is there... those living in neighbouring blocks,
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some of which are still without hot water and gas, have also been offered temporary accommodation. this councillor has chosen to remain in her home. they have tried to offer me a accommodation but it is difficult with children. i have got to look out for them before anything else. she says many people don't feel the accommodation being put forward is suitable for their needs. i have spoken to people who have said they have been offered stuff which is completely out of the borough, orjust looking at the tower, and who wants that? it is unspeakable what people have been through. to be shifted around and fobbed off is not acceptable. so for many they wait for a home or go beyond tomorrow's deadline. almost three weeks on — and there's still concern that some of the money raised
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through donations isn't getting through to those who need it most. with me is gerald oppenheim from the london emergency trust — one of the charities overseeing distribution of some of the money. and this is quite a lot of money. the public have been extraordinarily generous whether through the red cross, or contributing to the evening standard and their dispossessed fund or the kensington and chelsea foundation, the sums are building up. it is extraordinary generosity. how difficult is it getting that money to the people who need it? the london emergencies trust has a particular role which is to work with the next of kin were people have died or are missing presumed dead. as well as those who we re presumed dead. as well as those who were injured and taken to hospital, evenif were injured and taken to hospital, even if just were injured and taken to hospital, even ifjust for a few hours. so we have a particular remit there to work with people who perhaps are the most damaged amongst many people who have had a lot of suffering in the past few weeks. are you confident
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that you're getting to them, the fa ns that you're getting to them, the fans that they need? it has slow so far but is building up. why is that? people need to understand what you're therefore, there has been quite a bit of confusion on the ground about who is doing what. we've been working hard with other charities make sure the funds that we are all responsible for, whether helping individuals or some of the gra nt—making trusts helping helping individuals or some of the grant—making trusts helping other charities and community groups in the area, that we have our lines sorted out so people know how to apply. we have our information out now through the red cross humanitarian team on the ground. through the police family liaison officers, we are working or about to work with the number of other community—based organisations to make sure the information is out there. but people have help filling ina very there. but people have help filling in a very short form which really gives us the basic information about who people are, whether used to live
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in grenfell tower, where they are now and their bank account details, most importantly. and as we get those back just most importantly. and as we get those backjust as we are doing, the people who are caught up at westminster, london bridge and finsbury park, where they are also active with the red cross. and we will get the money to them as quickly as we can. and what is the money for —— what is the money for? it is purely and simply a charitable gift, we have no view about how they choose to use it. next of kin, £20,000, someone injured, taken to hospital and has been there for over a week, and there are a number in that category, £10,000 and if you we re that category, £10,000 and if you were taken to hospital for at least six hours but for less than a week, £3500. that is just the first allocation. depending how much money we actually end up with there will be more later on in a few weeks' time. obviously you're well of the anger there has been amongst many in
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the community at the lack of organisation, the problems in getting people rehoused, getting them temporary accommodation and so on. are you now confident that three weeks on, the people who were working on the ground, your organisation and others, are now working in a way that is genuinely beginning to dispel some of that distrust that people had and is now actually helping people? distrust that people had and is now actually helping people ?|j distrust that people had and is now actually helping people? i very much hope so, i know best what we're doing, i can't comment much on what others are up to. but it is coming together. we really understand how angry and worried people are on the ground. everyone wants to help, it is just getting that organised. it has taken longer than i think anyone would like. but i think it is coming together now without being complacent about it. good to hear, thank you very much. most cancer patients could be offered genetic tests within five years to help create more effective, personalised treatments.
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that's the ambition outlined by england's chief medical officer. in her annual report professor dame sally davies says there needs to be a national network of genome testing. here's our medical correspondent fergus walsh on how genetic testing could bring about a step—change in medicine— his report contains some flashing images. hello, mate. could i have two cappuccinos, please? cancer runs in toby knight's family. both his parents died from it and he was diagnosed with colon cancer four years ago. now, he's one of 31,000 patients who have had their entire genome mapped by the nhs. i'm very excited about it. for me, hopefully, if my cancer decides to come back, it will benefit me. more importantly, it will benefit a lot of other people, forfuture generations, for better treatments, for quicker treatments, better diagnoses. dame sally davies says genome testing is still a cottage industry. she wants dna analysis to be the norm for cancer patients within five years.
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patients will benefit if we can offer them the scan of their genome that'll make a difference to their treatment. that's clearly all people with rare diseases, of whom there are 3 million or more in this country. it's most patients with cancers, and quite a lot of infections. 0ur genome contains the instructions for how our bodies work. errors in the dna code can trigger disease. six out of ten cancer patients who have genome analysis can benefit from targeted treatment — drugs which attack dna faults in their tumours. this can spare them the more toxic side effects of chemotherapy. it costs £680 to scan a genome, and that price is falling every few months. in some cases, it's now cheaper than existing tests, like invasive biopsies. but what about data confidentiality?
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the nhs believes it can protect genomic information, but some are concerned about the safeguards. if you're going to take a lot of sensitive information from people, then you need to make sure that every use of it is consensual, that people have choices and can make choices, that it is handled safely, that you've got security, rules that are applied around who can access it. for new treatments and even cures. concerns over sharing data will need to be resolved if patients are to get the full benefits of the genome revolution. fergus walsh, bbc news. with me is sara bainbridge from the charity cancer research uk. good to see you. i remember one the
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whole idea of mapping genetic material, the gene, was finally done a few years ago and the idea was that once this was done you would be able to potentially foresee any problems down the track. it does seem strange that we are only now getting this call that actually it isa getting this call that actually it is a good way of dealing with cancer patients. it seems a bit of a no—brainer. i think the report actually is timely and very useful in highlighting just how far we've come with some of the discoveries we re come with some of the discoveries were made. so we understand more about genetics than ever before and this is a good chance for the government and nhs to get to grips with all the discoveries that cancer research uk and otherfunders have made. in the area of genetics, cancer and rare diseases. and of course the key is tailoring, personalising the treatment a particular person with a particular cancer will need to deal with their condition and this is the kind of
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technology that can facilitate that. yes and some people are already benefiting from this so we know that backin benefiting from this so we know that back in 2014 there were over 30,000 of these kinds of genetic tests done for people with different cancers. and that led to some of those people changing their treatment path, it became more personalised and it could mean that they avoided one medicine versus another or it could mean their treatment had fewer side effects for them. of course cost is a big issue and prodded the reason i suspect that the chief medical officer has come up with this now is she can see those costs finally beginning to come down to the point where they can be, this treatment can readily be given to people. we know there are questions, there are pressures on the nhs but this definitely is the direction of travel for cancer both with people who may have an inherited risk to make squealing better but also people who need treatment and we would like to see the nhs and
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government take action on these recommendations so we can adopt this innovation and make sure it is widely used and accessible for all people affected by cancer across the uk. you need to hold them to the fire on this. we are very aware of the importance of genetic testing and how much further we need to go to make sure everyone benefits. but the report is a good step forward. and how quickly do you think it will just be part of the routine treatment for people who have cancer? it depends on the different cancer? it depends on the different cancer types that people have, for some people with say lung, bowel or some people with say lung, bowel or some kinds of skin and breast cancer, they already now have some test. for other cancer types we need to perhaps do more research or understand exactly what the test star that will lead to different types of treatment. so it is the case of making sure clinicians are aware of this and the public is also talking about it so if they are
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seeing the doctor and unsure about it they can ask if anything is available. thank you. emergency workers in austria spent today removing seven thousand chickens from a busy motorway. the incident occurred on the a1 autobahn near linz, when the lorry transporting the birds lost its load. the motorway towards the capital, vienna, was closed during the busy morning rush hour, and long traffic jams developed in the other direction as drivers slowed down to take a look. time for a look at the weather now with nick miller. many of us seeing a fine evening but after a wet day in northern ireland the rain is gradually using this evening and overnight but will continue for parts of southern scotla nd continue for parts of southern scotland and northern england. some
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hill fog around as well. clearer skies in the north of scotland and quite chilly by the end of the night. further south it is quite a warm night to come with the card and clear spells, perhaps isolated shower around. one of two showers in the north of england, north midlands tomorrow. and parts of south—east scotla nd tomorrow. and parts of south—east scotland even into the afternoon. elsewhere some sunshine coming through but quite a range of temperatures. just 15 in newcastle but close to 30 degrees in parts of southern england. those contracts continue during the week, but more of us will be warmer on thursday but we could have some thunderstorms. this is bbc news, the headlines at eight:
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china and russia have called for a freeze on north korea's weapons programme following claims it has successfully tested a long—range ballistic missile. the mayor of london says thejudge leading the grenfell tower fire inquiry, sir martin moore—bick, needs to win the confidence of local residents. the mp for the area said he should stand down because of past decisions. the family of the youngest victim of the manchester arena bombing, saffie roussos, has paid tribute to her today, on what would have been her 9th birthday. we've lost everything, so life will never be the same. talks have broken down to restore the power—sharing executive in northern ireland. sinn fein have blamed theresa may's political arrangement with the dup for the failure of talks aimed at restoring power sharing
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