tv Victoria Derbyshire BBC News November 13, 2018 10:00am-11:01am GMT
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hello, it's tuesday, it's ten o'clock, i'm victoria derbyshire. parents of children with a rare form of autism have told this programme they are getting no support to help deal with violent outbursts from their children, who can't control their emotions. it is just manic, it isjust manic, i am doing this from a broken ipad. ijust can't do this any more. this the aftermath of one seven—year—old's meltdown. do you think you'll ever stop attacking your mum? if i get the right support i will. it's extreme violence. children's services have said numerous times that there is nothing they can do to improve or change our situation. we've been told some gps in rural areas are having to apply for extra funding to diagnose autism. why? these parents all have autistic children and are calling for more government support.
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a woman who was deceived into having a relationship with an undercover police officer is challenging the cps decision not to prosecute the man,jim boyling. she's told us exclusively that she feels violated. i thought he was somebody else, and i consented to have an intimate relationship with somebody who didn't exist. and he was like an actor. i didn't give myself to the person he actually was, so that is a violation. and how do you feel about drinking a milkshake containing 39 teaspoons of sugar? turns out you might have done without knowing it. here are some of the brands that contain the most sugar. should they be banned? let us know what you think. hello.
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welcome to the programme. we're live until 11 this morning. have you struggled to get an autism diagnosis for yourself or your child? and have you been able to access the support you need? do get in touch on all the stories we're talking about — use the hashtag #victorialive. jo says my daughter has pda, reading your article it was as if it had been written about my daughter. school placements are at breaking point, i'm glad you're talking about this and have chosen to raise awareness. another viewer says i went to all with my son and had to sort it out myself in the end. i had to go to go toa sort it out myself in the end. i had to go to go to a private specialist after he was suspended from school aged eight. he is 18, he did his
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a—levels this year. after i had to diagnose privately i was referred. clearly a big issue with some pa rents clearly a big issue with some parents watching today. if you're emailing and are happy for us to contact you — and maybe want to take part in the programme — please include your phone number in your message. if you text, you'll be charged at the standard network rate. here's annita with a summary of the day's news. thank you. another thirteen bodies have been discovered in and around the town of paradise in northern california confirming fears that the wildfire which destroyed the town was the worst in the history of the state. at least 42 people are now known to have died there and more than 220 people are missing. another two died in a fire in southern california. the wildfires in california have now been declared the worst in the state's history and president trump has declared it a major disaster which will free up extra funding to fight the fires. brexit negotiators have expressed cautious optimism after another late night of talks in brussels. the prime minister is briefing the cabinet on her brexit
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plan this morning as talks enter theirfinal phase. tomorrow is believed to be the last day for an agreement leading to a summit this month to approve the withdrawal agreement. in a speech last night, theresa may said the process was in the endgame but acknowledged that significant issues remained. the negotiations for departure on —— are now in the endgame and we are working extremely hard through the night to make progress on the remaining issues in the withdrawal agreement, which are significant. i will not compromise on what people voted for in the referendum. this will not be an agreement at any cost. if you're unsure about the various terms surrounding brexit then you can go to the bbc news website and look for the brexit jargon—buster — your guide to all the key terms. mixed news for the uk economy — the latest unemployment figures have come out and the number of people out of work rose by 21,000 betweenjuly and september to 1.38 million,
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even though, with the uk's jobless rate at 4.1%, record numbers are in work. average earnings also rose by 3% in the year to september. an author and campaigner has come forward as the woman allegedly offered a peerage by a member of the house of lords in exchange for sex. lord lester, a former liberal democrat frontbencher who's 82, denies the claims made by women's rights campaigner jasvinder sanghera. the lords' privileges and conduct committee, which investigated, is recommending to peers that he be suspended until 2022. doctors in rural areas are having to apply for extra funding in order to diagnose patients with autism, this programme has been told. the national autistic society say families with violent children are being put in danger, because they're not getting support quickly enough. we'll have a full report after this news summary. a ban on milkshakes with more than 300 calories
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is being demanded by campaign group action on sugar. following a survey of shakes in restaurants and fast food outlets they said the drinks contained "grotesque" levels of sugar. the milkshake that topped the survey contained 39 teaspoons of sugar, more than six times the daily amount recommended for seven to 10—year—olds. public health england is challenging businesses to cut sugar by 20% by 2020. that is a summary of the news today, back to you, victoria. having a child with autism can be challening; having a child with a rare form of autism — known as pathological demand avoidance — can be even more so. and parents are crying out for support. we've been told exclusively that gps in rural areas are being forced to apply for extra separate cash to diagnose autism in patients — not something they have to do for cancer, or diabetes or heart disease — so why autism?.
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meanwhile, the national autistic society say families with violent children are being put in danger, because they're not getting support quickly enough. pathological demand avoidance. some children with pda have "meltdowns", which they can't control. not all, but some. just to let you know — this film from noel phillips contains some images you may find upsetting. i get very, very mad and smash stuff. for as long as i can remember going to them i have been saying to them that i think i need more intervention than just taking my medication. a cry for help from autistic children struggling with their mental health. what do you think will happen if you do not get that help and support?
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i think i will end up getting arrested. we investigate the impact it is having on parents who tell us the authorities are failing to provide their children with proper support. children's services have said nebulous times that there is nothing they can do to improve or change our situation. —— numerous times. despite years of government promises why are services still so underfunded? this is a government that is actually ensuring that mental health is given the attention that it needs. there are times like this whenjamie is like every other child his age. but he is not a typical seven—year—old. he has a rare form of autism known as pda or pathological demand avoidance, meaning he goes to great lengths to avoid situations that cause him to be anxious. knives, anything he can get his hands on, he has come at me with,
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he has pulled curtain poles, curtains off the rails, he will come at me with those. spat at me. 0w! jamie, stop doing that to me, please. it really hurts. this home video recorded byjamie‘s mum shows what happens when anxiety can quickly turn into violence. stop. it's early in the morning and jamie doesn't want to go to school. he is anxious and is finding the situation stressful. shocking to watch, but this gives you a glimpse of why his mum is desperate for help. jamie! we need this to stop. part of me can't believe that that's my child and some ways because we have really good times and when i see that... i don't know, it's hard to explain, it's quite traumatic, really. he could drop a bit of paper on the floor and i could say, jamie, please could you pick that up and rather than picking it up, because that's a demand,
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you could have half an hour of plus meltdown because i've asked him in a direct way to pick that up. he went upstairs to the toilet and i managed to get himself out of the toilet because he locked himself in there and he's just chucked everything. it's just manic. i'm doing this from a broken ipad that he's smashed. ijust can't do this any more. jamie, who also has adhd, was just three years old when he started becoming violent. but the long wait for his diagnosis forced kate, who is now a single mum, to spend nearly £10,000 to get a private consultation. gps are usually the first point of contact when it comes to recognising autism. but there are are concerns that doctors in rural areas are having to apply for an extra money in order to refer patients for diagnosis. there are some parts of the country where gps have to apply
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for the exceptional funding to get the diagnosis or referred for a diagnosis of autism. we do not have to get exceptional funding to get the diagnosis of heart disease or cancer or diabetes or depression. why on earth should we have to get exceptional funding to get a diagnosis of autism? jamie, can you tell me, when you get very angry, what happens? i get very, very mad and smash stuff. i have a very bad meltdown. do you remember those meltdowns when you have them sometimes? how did it make you feel? bad. what worries you about having autism? because everybody that doesn't have autism doesn't behave like i do. my main concern is his risk to himself when he gets like that.
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because he really is, he's not in control whatsoever. if my son had a more outward diagnosis, so if he had severe autism or she had some of those traits of spinning in circles and rocking, ithink we would have got help, but this is quite a hidden disability. you're on your own. no one could see what was happening at home. jamie currently sees a psychiatrist but kate wants more occupational therapy to help them cope with everyday situations. the harsh reality for kate and so many other parents as they are simply not getting the help they so desperately need right now. forjamie it's clear he needs more support, but like so many other families they don't know where to turn. are you going on nights out?
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probably, with you. with me? yeah. ten—year—old kierney is autistic and has also been diagnosed with pathological demand avoidance as well as multiple anxiety disorder and depression. she often struggles to communicate and when frustrated, as she frequently is, the family home becomes a place of chaos and violence. i want it! can you give it to me?! this is what her single mother and big sister are faced with most days. i feel really bad when i heart my mum and i don't want to hurt her. and also it's just what i do.
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what i do to her that makes me feel really upset and embarrassed. i think sometimes i just think about it and just say you shouldn't do this because you don't want to and stuff like that. you think you will ever stop attacking your mum? if ijust get the right support i will, i think. black eyes, bites and scratches. just some of the injuries kierney has inflicted on her mum when reacting to the demands of everyday life. this was the note that she wrote to herself and she entitled that "to my future self." i don't want a job. i don't want a life or a soul. i just want to cry my eyes out and i want to fail. how does it feel reading that back? upsetting. this is why erica has had to give up work. her daughter's condition has been made harder,
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she says, by social services, who have struggled to provide regular respite care. stop it! east sussex county council has told us they have not been able to find a suitable carer for kierney since 2016. as there is a shortage of care workers for children with additional needs in the area. we had an incident actually on saturday that split my inner lip when i got kicked in the face. so, yeah, it's extreme violence. children's services have said no this time is that there is nothing they can do to improve or change our situation and we remain open with them so that... ..in the hope that they will find respite, but unfortunately i have to source that. —— fund respite. the local authority east sussex county council has told us it is not all was possible to find the service parents want or need but they will continue to look at options with families. if we allow this to escalate
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their is very clear evidence from the uk that over half of the children who are demonstrating challenging behaviour at nine will still be demonstrating challenging behaviour at 19 and probably at 29. 15—year—old agnes is another teenager facing a battle of her own. she also has a diagnosis of pathological demand avoidance, which can cause violent outbursts. i sort of had the knife in my hand and i was just doing that. i stuck the knife in and then i bent it and it snapped so it was sticking out the top. that one, i can't remember what that one was. it was worse. i know it was really bad when that happened. yes, i've started to repair the wall. that one was at the end of march, wasn't it? was that when you were hacking at the plaster? yeah. with scissors?
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yeah. i get quite physical with the people around me which is normally only my pa rents. i will threaten them quite a lot and i will sort of push them around or i will hit them. agnes tells me she self—harmed on numerous occasions and is not happy with how long she has to wait for appointments including psychiatric help from the nhs department responsible for children's mental health. the treatment that i have had with camhs has not been very good at all. for as long as i can remember going to them i have been saying to them that i think i need more intervention than just taking my medication. we are very clear that it seems to us that there are a lot of people whose relationship wouldn't necessarily have survived what we have to go through. no.
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because it is hard, isn't it? very hard. to know that you are doing the right thing, to feel that you're doing the right thing... and the other really difficult thing is that agnes' difficulties with her behaviourjust do not impact on me and sian, but we have two other young people in the family whose life is not great a lot of the time. this former government minister wants the nhs to do more to help families. the nhs, fundamentally, together with other public services, education, social care, are massively failing these families and in a way we are abandoning families to try to cope on their own with extraordinarily complex circumstances. these issues you raise are really serious and i will raise them in parliament with the prime minister or with the health secretary, because i think
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we need to hold the government to account on this. the government acknowledges the need to improve services, especially at a time of increasing demand for children's mental health provisions. nhs england say they are investing £7 million into crisis care for young people. for some it is support that cannot come soon enough. what do you think will happen if you do not get that help and support? i think i will end up getting arrested. which i don't want to happen. i just want to stay with my family. and be happy. what sort of help do you want? for people to understand autism. it's a service that is supposed to be providing children and young people with mental health support and... for me, and i've said this to my mum, it feels very much like, take
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this tablet and go away, we'll see you in a month. knowles phillips reporting. if you have been affected by any of the issues in that film, and would like some advice, you can visit the bbc actionline website at bbc.co.uk/actionline. you can also contact the helpline run by the national autistic society on 0808 800 111011. we'll be discussing this further in the next half hour of the programme, so stay with us. we will come back to talking about this in the next half—hour, so stay with us. let me read some messages. peter on facebook: "i worked for many years with young people with autism and severe aggression problems. the injuries we saw on almost a daily basis were horrendous. its so sad, and utterly heart breaking for parents and siblings and the young people themselves. the children ended up in our unit due to their aggression when parents became unable to cope at home." patricia on facebook: "my son has
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pda, some days are a living hell he is only six and honestly the violence is unbelievable there" is no local support at all, no help. helen on facebook: "it's great to see pda getting tv exposure. however a balanced view of the condition would be even better. its such a misunderstood wiring of the brain — the central feature isn't violence but demand avoidance. i realise i'm fortunate as a parent to have a little pdaer who's demand avoidance presents itself as withdrawal into fantasy and role play. so coverage like this perpetuates a myth around pda and can be a barrier to others getting support." i will put that to our guests in the next half—hour, helen. georgie on facebook: "my son has suspected pda but unfortunately the borough we live in doesn't diagnose. this resulted in him being isolated from his class at the age of four and being put in a room with
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threeteachers who didn't get him." 0bviously obviously a huge issue, keep your e—mails and messages coming in. details are on screen. news today that some milkshakes have masses of sugar in them. action on sugar says it's ‘grotesque‘ cos the enormous amounts are many times over the amount children are supposed to be eating each day. —— because the enormous amounts. they want milkshakes containing more than 300 calories to be banned. the worst offenders — by a long way — are the milkshakes you get in restaurants. the one with the most sugar was from the toby carvery — something called a unicorn freakshake — which isn't a takeaway drink, but it looks a bit like this. that has 39 teaspoons of sugar, and more than 1,200 calories. that is six times the amount of sugar reccomended for a child aged 7—10. toby carvery say they they take
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their nutritional responsibilities seriously and are not targeting children with their shakes. five guys came next — and their most calorific milkshake is their one with banana and chocolate. that contains 37 teaspoons of sugar. the restaurant in third place is pizza hut — their salted caramel ice cream shake has 2a teaspoons of sugar and 738 calories. when it comes to the supermarket options, frijj milkshakes have the most sugar. the choclate one has 11 teaspoons and 30a calories. the makers of frijj say they have introduced a zero added sugar range. kawther hashem is a nutritionist and works with action for sugar — they want to see see traffic light labels on all menus, and milkshakes with more than 300 calories to be banned. and christopher snowden whose recent book killjoys argues against the use of laws to restrict personal behaviour is here too. he works for a right leaning thinktank called the iea.
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wellcome, both. what is the problem? i think the problem is it is about the options you create in restau ra nts a nd the options you create in restaurants and other places, the lack of labelling, no transparency from these companies. it is an extended conversation about the allergens, we need customers to tell as ingredients, nutrition content and allergens. toby carvery says that information is available online. it is available online on a huge spreadsheet but i doubt many people would find that information. we need it to be in store, just like you price, you would see the nutrition content. what do you think would be the result if the fact that 1200 calories were in the freakshake unicorn option if it was on the menu? probably less people would choose it, probably parents would
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convince their children to not have it. as a company, they don't want to be transparent about this and parade —— information, it would motivate the company to reduce the amount of calories in these products, they can still sell them but it is about smaller portion sizes, you could have 300 calories for a drink like that, i think it's reasonable. is it? about putting the calories on the menu is reasonable, that is fine for a big the menu is reasonable, that is fine fora big chain, more the menu is reasonable, that is fine for a big chain, more difficult for small restaurants and cafes. the government cuts aid it will do that, lam in government cuts aid it will do that, i am in favour of the public adding that information otherwise think most could probably guess that has lots of calories without seeing the exact number, but action on sugar wa nt exact number, but action on sugar want to completely ban these, make ita criminal want to completely ban these, make it a criminal offence to sell a crit —— sela milkshake with more than 300 calories, it is bonkers. at the moment we have a voluntary guidelines that milk —based drinks should not exceed 300 calories, it is already in there, seeing what
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most products are sold and this is a maximum limit. you could have these guidelines by law that company should not exceeded and i think it would be a strong motivation, like the sugar levy, for the industry to reformulate. a guideline by law is a criminal offence, it should be a criminal offence, it should be a criminal offence, it should be a criminal offence was somebody to sell, possibly possess, one of these milkshakes? these freakshakes are not even milkshakes, they are deserts, that is on the desert menu. the one next to it is a milkshake. it has marshmallows and skittles, you have picked the most extreme options, they are deserts. most of the calories in normal milkshakes comes from the milk, most of the sugar does, it is dishonest to say it is teaspoons of sugar when so much of the sugar is intrinsic lactose. the unicorn freakshake, they say they are not targeting children, does it look like that to you, and with a name? it is on the
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desert menu, not the children's menu. unicorn, it is probably teenagers and young kids, they can put it on social media and take photos. it is because it looks good on instagram? probably, maybe that is what they are trying to... it is a very good marketing tactic if companies would produce such a project and get more people to share about it. —— produce such a product. people do not go to these restaurants every week, day, maybe every month. somebody might have won for their birthday, it exceeds their sugar ration for one day, so what, it is only a drink? more people are eating out more, children and adults are eating out more, they are not occasional treats like we think. how do you know? public health england has looked at levels of people eating out more often, we need to
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look at the foods sold in these outlets and look at ways to make them equally indulgent, smaller portions, less sugar and therefore not half if your entire calories per day. susan on e—mail says the milkshakes in question are for treats, the sugar levels are grotesque but i am angry at the double standards. some yoghurt is an deserts can have almost 30 grams of sugar and people have them on a daily basis, that is more worrying to me. dated on e—mail, iam more worrying to me. dated on e—mail, i am tired of the do—gooders wanting to ban everything, i am not sure you want to ban everything but he is exaggerating to prove a point. we live in a free country, stop telling us what we can and cannot have. jenny says she met primary school age children frequently given
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sweets by both teachers and staff, the head teacher giving out hot chocolate marshmallows as good behaviour awards, no wonder we have so behaviour awards, no wonder we have so many obese children. any traction from politicians, they are busy with brexit, thinking about banning milkshakes? it is about what guidelines we give to industry to reduce sugar and calories levels in these drinks. we already have a volu nta ry these drinks. we already have a voluntary guideline, it is about having a mandatory guidelines to follow. public health england will publish a whole range of guidelines in the spring, not mandatory but using a certain amount of threats and conversion to get food companies to do it. they should not do that. we should have a free market in food, people want to have these from time to time, if you are worried about getting obese, do not consume about getting obese, do not consume a freaksha ke, about getting obese, do not consume a freakshake, i agree, but there is no room for even further interference from the government. still to come... the wizard in a non—wizard in world have been at peace for over a century. he wants to see that piece destroyed. the latest harry potter spin off fantastic beasts: the crimes of grindelwald premieres
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in london this evening. we'll get a sneak preview. should this former undercover met police officer who slept with three women during his work be prosecuted for sexual offences? the crown prosecution service says no. but one of the women he had a six month relationship with says yes, and a judicial review will today begin at the high court to establish whether it was right that he wasn't prosecuted. jim boyling was working as part of the now disbanded special demonstration squad sent to infiltrate the activist group that ‘monica' — not her real name — was a member of in the late 905. when his actions became public, he was sacked but never prosecuted because what he did was part of thejob. the metropolitan police force has apologised for what happened, but ‘monica' says that's not good enough and has chosen to share her story about being one of those women. she wants to remain anonymous. in the late 90s i was involved in
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direct action to try and raise awareness about climate change. not my fellow activists was jim sutton, i liked my fellow activists was jim sutton, iliked him, my fellow activists was jim sutton, i liked him, we got on ok, he showed signs he liked me, we commenced a for about six months. i would say in that relationship we were friends before that and we maintained positive contact in the relationship ended and in 20111 positive contact in the relationship ended and in 2011 ifound out he positive contact in the relationship ended and in 2011 i found out he was notjim sutton, he was actually a metropolitan police officer called jim boylan and he had been paid to infiltrate a group and report on is really but also, i mean, the thing was he was one of the main activists of the group at the time of my relationship until he left the group
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at the beginning of 2000. so it's kind of curious that the police are infiltrating groups on that level. when you found out that wasn't who he said he was come he was working undercoverfor he said he was come he was working undercover for the metropolitan police, what was your reaction, what impact did that have on you? initially i think it was shock, and then it's like, with any exclusion, then it's like, with any exclusion, the pieces fall back, they full back quite quickly but it seems quite slowly and it changes everything and i look back on that relationship and ican i look back on that relationship and i can feel really insecure about it because i think on some level there was a part of him that was mocking me, there was a part of him that did not respect the ideologies that were motivating me and the people i was working with. actually, they called us weary working with. actually, they called us weary is in their tradecraft manual, they say, they explain to each other how it's best to infiltrate these groups because they
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think are ideals are wearisome, that's hurtful, very traumatic. you work totally and utterly deceived by him. iwas work totally and utterly deceived by him. i was violated. violated? yes, i think him. i was violated. violated? yes, ithink so, him. i was violated. violated? yes, i think so, when you are person who is motivated to create positive social change and you really believe if we work together we can improve things, iand if we work together we can improve things, i and summon who comes along and pretends to be here are, that is your core part leaving you share a common goal and it's really intrinsic in who you are intimate with. there is a meeting of minds. and the fact that he was the opposite of what he said he was, he wasn't just a opposite of what he said he was, he wasn'tjust a single agent he was employed by the state and was reporting back, it's a terrible violation, i was a young woman at the time. if you'd have known he was an undercover officer working for the met police would you happen embarked on a relationship with him?
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i would never have met him, there would never have been, it would never have happened and if i'd known his motivations for being in my life, of course i would never have wa nted life, of course i would never have wanted to be intimate with him. i don't want revenge, i want answers, truth, i want the triple at police to be accountable, i think that's what we all want. i it's great difficult for that institution to be accountable, it seems to be anyway. let me bring in lawyer harriet westra chu is representing you at thisjudicial review. westra chu is representing you at this judicial review. what are you going to argue thatjim boylan and other should be prosecuted with and why? 0k, there two potential offences, one is a sexual offence and the equivalent of rape, he deceived as to his identity and this
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was a form of misconduct in public office, a public officer who abuses his position and breaks all the rules that are given is coming you know, if it is serious enough can be found guilty of a criminal offence. he was sacked. he was, subsequently, the decision made by the cps, it's not something be directly rely on in this case but clearly it's an indicator of how serious this misconduct was taken. the cps say they considered whether there was sufficient evidence to go forward with charges of rape and indecent assault procuring a woman to have sexual intercourse by false project is, misconduct in public office and breaking the official secrets act, they said they considered the available evidence and that the end ofan available evidence and that the end of an investigation they decided there was insufficient evidence for there was insufficient evidence for the realist and leila stick conviction. we initiated a victims
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review in monica skase and the case of the previous woman and what's important to know was that this man like others was a serial offender, he had long—term, intimate sexual relationships with three different women during his five—year period that he was infiltrating these reclaim the streets group, environmental protest group. and during that time he used all the trappings that were given to him to hide his identity because he was an officer of the state. to either gratify himself or to use those trappings to gather further intelligence, we don't know the answer as to whether it was simply a gratification or an intelligence gathering process. but we do know the met has said the relationships we re the met has said the relationships were wrong and they have apologised to the woman involved and warned any future officer who had a sexual relationship with someone they were
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targeting risked prosecution. those women and their rights were violated. yes, the met police made this strong statement saying under no circumstances should these relationships occur if that's the case, why is he not guilty of misconduct in public office? 0bviously misconduct in public office? obviously we will let you know what the high court says. in a statement, the metropolitan police told this programme: the historical work, deployment and actions of officers within the now—disbanded special demonstration squad and national public order intelligence unit will be fully explored and scrutinised by the undercover policing inquiry. the metropolitan police service is providing every assistance so the inquiry can fully address the key issues it has identified, and can fulfil its terms of reference. we are completely committed to equality, professionalism, and treating everyone who comes into contact with police with dignity and respect. i want to thank you for your many messages, i want to thank you for your many m essa 9 es , pa re nts i want to thank you for your many messages, parents of children with
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autism. suzy says my son is struggling with autism and has violent out worst on a daily basis. i have come to the conclusion i am on my own after the paediatrician referred him to cams, the mental health service locally and they proceeded to say there was nothing wrong with him because he was able to hold it all in at school. i have died out for support, he smashes his room every day through anger, i can relate to jamie was back story on your programme this morning, i have cried as my son is being failed. —— camhs. we will talk to various mothers and politicians in the next 30 minutes and fathers as well who have experience of children with autism and the real difficulty they are experiencing in trying to get help and support. eddie redmayne, johnny depp and jude law are all expected to turn up tonight at the uk premiere of the latest harry potter film fantastic beasts: the crimes of grindelwald. lizo mzimba has already seen it any good? for people who are real
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fa ns any good? for people who are real fans and have explored the universe in the last 15 or so years for is a lot in there to die just that throws forward to the world of harry potter because this is set many decades before the events of the original harry potter books, we seejude law p°ppin9 harry potter books, we seejude law p°pping up harry potter books, we seejude law popping up as a young tumble door. for fans really into that there is a lot to diejust. for fans really into that there is a lot to die just. some reviewers and fa ns lot to die just. some reviewers and fans have said it's a bit slow moving and if you don't know the world inside out it feels like chess pieces we moved around for later films because this is part of the fivefold series. 0nly films because this is part of the fivefold series. only the second one in. visually it is a treat, lots of magical creatures, great cgi effects, i'm sure lots of fans will find lots to enjoy. 0thers effects, i'm sure lots of fans will find lots to enjoy. others might be baffled if they are not on top of the harry potter world. are you on top of this world? i am always on top of this world? i am always on top of this world. jk rowling has
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had to defend some of the casting. there's been the issue ofjohnny depp and the trade of his ex—wife, the still ongoing legal action not, rowling has said she understands and is concerned but they stunned the understanding of the situation they are absolutely happy to continue with him being a part, of a great family series for her on the phone studios involved. she is reiterated that they are happy with the casting choice. there's also been issues with people of cholera in the movies, there is a particular character who is associated with a character who is associated with a character in the latest —— later harry potter stories, people complaining a nation actress has been cast in that role, other people pointing out it's a diverse cast in this universe and the head at the american wizard world is a woman of colour. there's been a lot of discussion on that and then people see that though there will be lots more on both sides. and the i'm a
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celebrity celebrities have been revealed. i am not going in the jungle, a great range of people, harry redknapp, football manager. he reckons he's never watched the programme. i'm sure he must have seen a bit of it, you cannot avoid it. james from the vamps, popular with younger people. nick knowles in there, and from the itv quiz series chase, john barrowman the entertainer, i'm sure people won't notice he's there, no outrageous comments, bursting into song at any point. and a lot of interest, this is the first series that will not have and mcpartlin following his drink—driving conviction. and his treatment in those areas. holly willoughbyjoining treatment in those areas. holly willoughby joining declan donnelly 296 in willoughby joining declan donnelly 2% in the jungle, willoughby joining declan donnelly 2% in thejungle, the willoughby joining declan donnelly 2% in the jungle, the series starts on sunday evening. thank you. this morning we've brought you heartbreaking footage of a mum filming her young son with a rare form of autism as he punched and hit and spat at her.
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the condition is called pathological demand avoidance, and without the right professional help it can lead to a child having violent meltdowns — although this doesn't happen with all children with this condition. what exacerbates things for any family with a child with autism is that they are sometimes waiting up to two years to get an initial autism assessment — something which is supposed to take no more than 12 weeks. the royal college of gps has told us exclusively that in some rural areas doctors are having to apply for extra funding just in order to diagnose patients. for the families involved, this wait can be not only devestating, but dangerous. here to tell us more about what this is like is laura harwood, who's nine—year—old son has pathological demand avoidance. jason goldsmid's 13—year—old son has autism. he's installed cctv cameras at home in order to try and manage his son's behavior.
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marsha belnavis is mum to eight—year—old leon, who is autistic. and yvonne newbold works with parents that have children with special needs. lastly, the conservative mp anne—marie trevelyan has a 19—year—old son with aspergers, which is a form of autism. actually it's what motivated and murray, she tells me, to get into politics. thanks you all for coming on the programme, laura, tell us about the conditions you face. ollie is nine, diagnosed with adhd at the age of war going on five but since then a lot of other conditions have come to light and beat them trying to get him assessed for orders. at the moment we are only part way through that process and that has taken us to and a half years and are still ongoing. he has problems with
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self—esteem, anxiety, communication issues and really struggles with day—to—day life. issues and really struggles with day-to-day life. what in terms of the struggles with day—to—day life, what sort of meltdowns which is a word you use, what kind of meltdowns can that mean for 0llie? word you use, what kind of meltdowns can that mean for ollie? on occasion it's like a war song in the house, things will be thrown, holbrook cases thrown down the stairs at me, like eyes, punching, kicking, biting, just destroying everything around him. and causing a lot of damage to both myself and on occasion he will turn on himself which is heartbreaking. good support in the cotswolds? we are lucky to have a very good gp who has been fundamental in getting us referrals but everything is a long distance away, i live in the countryside and it's just such a fight all the time trying to get him on the right path. to access those services. there is a lot of triage in place, gatekeeping because the services are limited so
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heavily. jason, why did you put cctv in your house? we got accused by social services via arson making an accusation that we were being abusive to him, we were trying to restrain him from leading us and his younger sister. putting the cameras and would show your reasonable attem pts and would show your reasonable attempts at restraint? because the worst meltdown he ever had that resulted in him trying to smash the cameras resulted in him trying to smash the cameras and a big thing else and eventually being carted to hospital, effectually sectioned overnight. so we got the evidence, it that way but asa parent we got the evidence, it that way but as a parent at worst feeling in the world to cause the meltdown. what about health? it took an awfully long time, everybody here, we first tried to get diagnosed when he was 5-6, tried to get diagnosed when he was 5—6, we got a letter back from whatever part of the nhs saying we don't think there's anything in it we are not going to see you, we managed to get a referral for a
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diagnosis but he told us it's a two—year wait. eventually we have got a diagnosis of adhd and atypical autism because they cannot put pda on the they diagnose a sts will. and what is that? autistic spectrum disorder. that is the phrase. understood. but being able to show camhs the evidence, which they weren't interested in, it is considerably better, he is on medication which has changed his life. camhs is the local mental health service. your son is eight yea rs health service. your son is eight years old, health service. your son is eight yea rs old, currently health service. your son is eight years old, currently autistic, you are trying to face him into school after a year out, why has he been out of school? because everybody has failed him, he was in a special needs school, he was taken out of that school, he was removed in the sense they said he was 2— chewing so they placed him in what they call an
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are contributing went downhill. —— he was too high for shunning. at the end of the day they continued to say we could meet his needs even know i said it was the wrong place, they then admitted after social workers and everyone got involved that they weren't able to meet his needs but there was nowhere for him to go. almost a whole school year, he's been at home, we've now got a child that has been put back into a school setting and he's not coping, he is literally so anxious that you get in the cab and he will get there and he will not get out or you cannot get him to come out of the house in the mornings. it's a struggle. and he gets so anxious about it and we end up gets so anxious about it and we end up with the punching, kicking, i've had it when he's at school and he's punching, kicking, screaming biting and he ran off into a different
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direction and they had to get staff to run after him because he went into an area which is quite a deep wooded area and so this is a consta nt wooded area and so this is a constant battle i am having. what is the reaction when your child has a meltdown in public from other people, what happens? it's very judgmental, typically we are seen as bad judgmental, typically we are seen as ba d pa re nts judgmental, typically we are seen as bad parents or we have naughty children. there have been the occasion when people empathise and understand but they are few and far between, sadly. i've had people turn round and threatened to hit him because i'm not taking control of him so i've had a gentle man say i'll give him so i've had a gentle man say i'llgive him a him so i've had a gentle man say i'll give him a good hiding and he's holding his walking stick up. what about you, and murray. that was one of the things that shot the most, james is my eldest. —— that shocked me most. we worked out the various triggers but when he was small, bright lights would be hell on
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earth, these meltdowns, they were as alien to me as they were to him and everyone else, this willingness for people who knew nothing about my child to tell me how to parent and was so child to tell me how to parent and was so offensive, i'm fairly feisty by nature and it made me more feisty andl by nature and it made me more feisty and i would eventually say that you so and i would eventually say that you so much for giving me parenting advice, then you have a childlike mind feel free to come and help otherwise get out of my way, i have a two—year—old i am trying to get round a supermarket at the same time. this extraordinary willingness tojudge rather than time. this extraordinary willingness to judge rather than to think, time. this extraordinary willingness tojudge rather than to think, as you might if someone had a pushchair and were stuck at the bottom of the staircase, give them a helping hand, you don't go how stupid of you to bring a baby in a pushchair and go to the stairs. people are kind, with autistic children whose behaviour is —— atypical to the average person, because they are special children, there is a gap and compassionate behaviour. it is against, we know that but that's not good in. some
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compassion would be great start. —— it is ignorance. in government we have to grow that understanding soul across public services professionals understand what autism is and help it demonstrates and get diagnosis working properly. we will come back to that because it clearly isn't at the moment. yvonne, what will happen tojamie or the moment. yvonne, what will happen to jamie or leon or 0llie or any other number of children with autism and particularly with this rare kind of autism, pda, if they are not helped now. it's tragic, what we are looking at is a lost generation of children. seriously? yes. we have three, five, 10 euros, people think they are strapping big lads, they are little, tiny, vulnerable children and it's not naughtiness, it's because they are terrified and in that moment they are punching because they think they are fighting for their very survival and unless
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we can step in and get those children the intervention and help that they absolutely need they are already on a trajectory that the lead straight to prison. did you agree? yes, it's possible. certainly. and yet the ability to provide tools for parents and those around those children so that they can manage the environment they live in and therefore benefit from education because many of them are bright, those on the asperger‘s syndrome the spectrum are very bright children and we need those brains, they think differently and view the world differently, they are amazing and we need them as part of the workforce but they need to be allowed to live lives to help them cope with sensory overload which when you are child in particular is incredibly difficult to manage, you don't have that awareness. incredibly difficult to manage, you don't have that awarenesslj incredibly difficult to manage, you don't have that awareness. i want to put this to youth which i read out earlierfrom helen, she posted on facebook, which is growing massively. helen said it's great you are talking about pda, great to see
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it on national television however a balanced view of the condition would be better. the central feature balanced view of the condition would be better. the centralfeature isn't balanced but demand avoidance, i realise i am fortunate to have a little pda his demand avoidance presents itself as with stroll into role—play so your coverage today perpetuates a myth around pda and can bea perpetuates a myth around pda and can be a barrier to others getting support. pda is one aspect of autism that people struggle to get recognised, my son has not been diagnosed at all at the moment and he shows classic traits and the violence is one aspect that has been identified as a possible pda but he hasn't got that diagnosis. he however has extremely challenging behaviour and violence and he is the most smashing little boy and it makes no sense to me and that is why we are looking down the autism diagnosis and we don't know what aspect, we know he is— shrink because he's bright and he's clever but he is two different people. he
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smashes the room, he loses control, he doesn't know, it's notjust about pda, it's about the entire spectrum of autism. i agree, i run a facebook page of nearly two and a half thousand families who have violent children, some are pda, yes, but we have children who have a learning disability, autism, adhd and a numberof disability, autism, adhd and a number of different additional needs. different diagnoses. heather says i have 86—year—old boy who has suspected pda and autism, our county doesn't not die knows pda, what doesn't not die knows pda, what doesn't that mean, what is that even mean? coming on the show i asked the department of health for a briefing on for... so did we. thanks to the extraordinary work of cheryl back in the naughties and the autism act
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coming into place in 2009 it is now part, james was eighth in the act came in and i rememberthinking this is like a new world, it's actually going to be a thing that has to be a thing that government has to appreciate exists but is a huge amount to do next year is the tenth anniversary of the act. she's called for a new autism act. is that needed? government has committed to doing a cross departmental review of how they are now doing in terms of the autism space with their own particular services, police, prisons, have service which is great. we can tell you you're not doing very well. it's a learning curve, definitely, i doing very well. it's a learning curve, definitely, land hugely impressed by caroline, the minister for this in her portfolio, she is driving this and it will start in 2019, a mandatory training for all in public services to understand autism, being put as one of the poor
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priorities for the ten year review that's been put in place the moment. ten years on from the act coming into place it will now be... you beenin into place it will now be... you been in powerfor into place it will now be... you been in power for eight into place it will now be... you been in powerfor eight years. into place it will now be... you been in power for eight years.|j into place it will now be... you been in power for eight years. i was with these guys ten years ago and that's the challenge. when white sister—in—law was a child 40 years ago and she was clearly artistic, — shrink, it did not exist, it wasn't even thought of as a thing. so you know, the challenge of filtering it through every part of government and indeed society, more widely, the whole thing that isn't there yet, the education process but i'm excited the government will commit to driving it into public services. if anyone excited by the government doing something? it's better late than never. we are five years into it. i have a question, you are saying that people will be trained to understand, what those that mean for us, what those that mean in reality because we are crying out
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for help, we are exhausted, worn down, you have got children who are literally, my son, eight years old who should be enjoying life, sitting there and saying things like others ldid not there and saying things like others i did not exist, if i was to go away i would be better off, everyone would be better off without me, that hurts. when you say to understand, people are talking about this awareness stuff and in reality you have autism awareness but no autism understanding, no help, no on the ground, 0k, understanding, no help, no on the ground, ok, let's come in, let's do this, put this into place for you, that's not happening. that's right, that's not happening. that's right, that's the challenge that those of us that's the challenge that those of us led by cheryl want to make sure it drives right through, for me, diagnosis, i it drives right through, for me, diagnosis, lcouldn't get a diagnosis, lcouldn't get a diagnosis for my little boy. which is that diagnosis can happen as it is that diagnosis can happen as it is prescribed, should happen and we have to find a system to make sure
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we have professionals across the country who can do that so you are not still waiting, it's absolutely out of order that hasn't happened but in every aspect of life both in terms of teachers being able to support in education, health care dividers, he said that the gp doesn't have that knowledge is just... i am just doesn't have that knowledge is just... i amjust going doesn't have that knowledge is just... i am just going to read out some more comments. the department of health says we are transforming mental health services for children and young people with an additional 1.4 billion and are on track to ensure a 70,000 more children have access to specialist rental health ca re by access to specialist rental health care by 2025 and 21. families must start assessments within three months and we expect to be part of the nhs to adhere to this. a spokesperson for nhs says service is free peoples mental health has increased, 70,000 children extra have access to care, the long—term plan will have mental health front and centre including building on the
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7 million crisis care. those not mention guidelines for diagnosis. the fundamental is there, autism is not a mental health programme —— problem. we are at the end of the programme but thank you so much forgiving as such inside. we appreciate it, we will keep on this, don't you worry. thanks forjoining us. have a great day. hello, good morning. you may have been dodging showers yesterday but today a quiet picture across the uk. some showers scattered around, plenty of blue sky and sunshine, this is the scene at the moment in st helens from one of our weather watchers. sunshine this afternoon across watchers. sunshine this afternoon a cross m ost watchers. sunshine this afternoon across most parts, showers across northern parts of the uk across wales fading away, try, a bit more cloud coming into northern ireland
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this afternoon, maximum temperatures getting up to 11—14d, pretty mild for this time of year. the cloud will thicken up, some rain spreading through wales, northern england, scotla nd through wales, northern england, scotland and northern ireland, pure spells in the south—east, temperatures holding up between 6-10d. temperatures holding up between 6—10d. during wednesday the rain across northern and western areas will ease away particularly across england and wales, sunshine developing in the south—east, still quite damp at times across scotland and northern ireland. goodbye. you're watching bbc newsroom live, it's 11 o'clock and these
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are the main stories this morning. the prime minister briefs her cabinet on the latest developments in the brexit talks, ministers say a deal is within touching distance after late—night talks. we're getting very close to it, i would say that the mood is cautious optimism, we're down now to some of the really difficult issues. premier foods, which owns bisto and mr kipling, says it will stockpile raw materials in the run—up to brexit as fears grow over gridlock at uk ports. 13 more bodies are recovered in california, bringing the death toll in the state's deadliest wildfire to 42. a woman who says she was promised a peerage in return for sleeping with a member of the house of lords urges other victims of harassment to speak out. lord lester denies the claims.
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