hello, it's friday, it's 10 o'clock, i'm joanna gosling. new plans to change food labelling laws are being considered by the government after the death of 15 year old natasha ednan—laperousewho had an allergic reaction to a pret a manger baguette on a plane. natasha's parents are here to talk about the pressure they've put on the government to take action after their daughter's death. experts predict the number of people from ethnic minority and south asian communities affected by dementia will rise seven fold in the next 20 years. i got off the bus and instead of crossing the road to go to the post office, i started walking back and walked about ten minutes. i didn't know where i was. relatives of patients have told this programme there's a lack of care services with the right resources and understanding to deal with the community's specific cultural needs. and fewer young women are going for their cervical screening tests, because of embarrassment and concerns about it hurting, and figures suggest that screening rates among all ages are at their lowest for two decades,

chloe delevingne — sister of the model cara delevingne — has volunteered to have a smear test live in the studio, because she wants to encourage women to go for their test, after having a cancer scare herself. hello, welcome to the programme. we're live until 11 this morning. today, we're talking about new plans to change food labelling after the death of 15—year—old natasha ednan—laperouse, who had an allergic reaction to the sesame seeds in a pret a manger sandwich. do you have a serious allergy or do you have a child with one? if so, do you find it hard to know whether what you're buying to eat is safe? do get in touch on all the stories we're talking about — use the hashtag victorialive. if you're emailing and are happy for us to contact you and maybe

want to take part in the programme, please include your phone number in your message. if you text, you'll be charged at the standard network rate. here's annita mcveigh with a summary of the days news. good morning, joanna. thank you. good morning, joanna. thank you. good morning, joanna. thank you. good morning, everyone. the man who killed a woman in a speedboat crash on the river thames in 2015, and then fled the country, has appeared in court in the former soviet republic of georgia, for an extradition hearing. jack shepherd from essex was convicted injuly of the manslaughter of charlotte brown. he was sentenced to six years injail in his absence by a jury at the old bailey. the chancellor has warned a no—deal brexit would cause "significa nt short—term disru ption" and in the long—term would reduce the size of the economy, saying "that's not what people voted for". speaking to the bbc in davos, philip hammond said he did not believe that making a choice to leave the eu without a deal would be a responsible thing to do, and called for compromise. no deal remains a possible outcome.

we have legislated to leave on the 29th of march. the default, the automatic default is we were to leave with no deal. that's a very bad outcome for britain and a clear majority of my colleagues across party in parliament are determined to avoid that outcome. but it can't be ruled out. the queen has spoken of the need to come together to seek out the common ground, in comments that are being seen as a veiled reference to the brexit debate. speaking to the sandringham branch of the women's institute, she said that while each generation looked for new answers, she preferred "tried and tested recipes", like "respecting different points of view" and "never losing sight of the bigger picture". tougher food labelling laws have been proposed by the government in an effort to prevent further deaths of people with allergies. a series of options are being considered, including a requirement for a full list of ingredients to be printed on all packaged food such as sandwiches and salads.

ministers decided to act after the death of 15—year—old natasha ednan laperouse, who suffered an allergic reaction to a pret a manger baguette. and we'll bejoined by natasha's parents nadim and tanya shortly, as well as another mother whose daughter has a serious peanut allergy. england's higher education regulator is warning that it could fine or de—register universities if they put pressure on students to accept unconditional offers. the office for students says the indiscriminate use of such offers could be in breach of consumer law. there's been a sharp increase in unconditional offers with a third scientists from the university of cambridge compared dna samples from thinpeoplef. - ,, ., ,,-.,.-, and those of normal weight. that is a summary of the news for

the moment. back to you, joanna. thank you very much. coming up at 10:30, we'll be carrying out a smear test live in the studio. chloe delevingne, sister of the model cara delevingne, has volunteered to be the patient, because she wants to encourage women to go for their test, after having a cancer scare herself. women aged 25—49 are supposed to go for a test every three years and women aged 50—61; are invited every five years. but screening rates among all ages are at their lowest for two decades. do you go for your appointment regularly? and if not, why? let us know your experiences and feelings on this. all the usual ways to get in touch. do get in touch with us throughout the morning — use the hashtag victorialive. if you're emailing and are happy for us to contact you, and maybe want to take part in the programme, please include your phone number in your message. if you text, you'll be charged at the standard network rate. natasha ednan—laperouse was 15 when she died in 2016

after having an allergic reaction to a sandwich from pret a manger. natasha had a severe nut allergy and although the baguette she bought contained sesame seeds, this wasn't on the packaging. herfather nadim blamed natasha's death on "inadequate food labelling laws". after meeting with natasha's family, the evironment secretary michael gove said he wanted to change the rules to protect allergy sufferers. he's announcing new proposals today that could see food outlets have to list all their ingredients on labels. at the moment, food that's prepared on site does not have to display allergen information on the packaging. well, the consultation is deliberately open, because you want to hear from people on what is a critically important subject. how can we ensure that no one has to go through what natasha's parents went through, and see their own child suffer in that way? my own view is that the maximum possible information should be shared with consumers. notjust allergens but ingredients, because the more that people know, the better their choices. well, we can talk now with nadim and tanya, natasha's parents.

also here is penny hosie. penny's12—year—old daughter has a serious peanut allergy. and andrew 0pie is the british retail consortium's director of food and sustainability. welcome to all of you. how much does that mean to you, to hear michael gove talking about natasha's law. you are here before talking about how important it was to you that her death wasn't in vain. it feels really real now, like we are really getting somewhere. we had a meeting yesterday afternoon with michael gove. we weren't really sure what would be the outcome of that. we know the consultation is going ahead 110w. know the consultation is going ahead now. but it was really reassuring to hear he is on the same page as us and he is looking forfull hear he is on the same page as us and he is looking for full labelling of ingredients, including allergens. so that is something we are really hoping will come through. how hoping will comethrougtk has hoping will comethroogtk has it been for you both important has it been for you both to forward

important has it been for you both to - forward at what can be change, constructive change, rather than look; constructive change, rather than look, back and think, what if? it look back and think, what if? it must be so frustrating to do that. yes, i think that moments of what if? they have always been there. what words can you say as a parent? but trying to pull something meaningful and constructive the society and the public as a whole around allergies out of the tragedy is vital for us, actually. it makes sense. it begins to help, i suppose, oui’ sense. it begins to help, i suppose, our healing process, i think. sense. it begins to help, i suppose, our healing process, ithink. it sense. it begins to help, i suppose, our healing process, i think. it is the right thing to be doing. if we are not campaigning, someone must be doing it, we should be doing it. there are four options that have been identified as this consultation process goes forward. the options include a full ingredients list being provided, that is the top level of change. allergen only labelling, ask the staff labels and

promoting best practice around allergen information. i assume you wa nt allergen information. i assume you want the top one on the list, is that right? very much so. yes, as, michael gove and the food standards agency and ten by mike want that. that's what we are gunning for, that is what michael gove has said publicly that it makes a lot of sense. it is nothing harsh, in reality, because it is very logical. it isa reality, because it is very logical. it is a logical result of the terrible thing that has happened. people want to know what is in their food more and more, so tell them. people want to know what is in their food more and more, so tellthem. if you don't know as a food producer what you are selling, i should think thatis what you are selling, i should think that is horrific. in the main, i would say the vast majority of food operators know exactly what is in their food, because they are told themselves from the sub supplies they buy it from, under law. it's a

question if food retailers want to pass that information onto the public, ultimately, and then the operational way it is done. that is all we are talking about here. penny, your 12—year—old daughter has a peanut allergy. how much does the ofan of an allergic ofan allergic weigh you her? you - her? yes, my daughter is on you and her? yes, my daughter is anaphylactic to peanut. i applaud natasha's parents are having the strength to follow through this campaign. i would say that as a pa re nt campaign. i would say that as a parent of a child with a food allergy, you run through a risk assessment on a daily basis. you are always checking labels and you have to place some trust in them. i know that natasha's parents are natasha herself were very careful that checking labels. vary. and what happened was a failure of labelling, really. my heart goes out to them. there is so much onus on the person with the allergy and the people

around them to always be across everything, to be checking. do you end up avoiding places, just to stay safe ? end up avoiding places, just to stay safe? as a family, we don't eat out that often, because it is really difficult. but at the same time, you always have to balance it. you want your child to live an active life. so you do have to be careful. you perhaps don't eat out as much as the average family would come just because you can't, you don't have faith in it being safe. andrew, it seems we are in a position where it is unsustainable for them not to be changed. but many will ask the question, why has it taken so long and why did it take a case like natasha's at this family have been through for there to be this momentum for change? yes, partly thatis momentum for change? yes, partly that is due to the european regulations which over arch our laws

in this country faster but we are fully behind the proposal today. there was nothing to stop this happening in this country previously? that was what i was going to say, many major retailers, if you look at their bakery departments and jellies, which would be prepacked, have prepacked food, which would be covered by this legislation, are doing that. the thrust we want and we have had discussions with the secretary of state and officials, is to make this consistent across the board. so if you are an allergen sufferer or your children are, you feel confident when you go into any food outlet. that could be the smallest bakery or delicatessen, right up to a supermarket, and that could be the ready meal, which is already covered by the packaging regulations at the moment, right through to things like sandwiches, which are made in the morning and put out the sale at lunchtime. has the food industry just not taken this issue seriously enough? no, and i would say the tragedy we have seen here has

highlighted, and i have seen a lot of progress over the last 18 months. i think there has been some great leadership shown by some of the major retailers. but i think that this legislation to really work, we need to really get into every food outlet. that, as i said, is the smallest bakery to the biggest supermarket. that is what legislation can do, because it puts a level playing field, consistent position for labelling and enforcement of that labelling, as well. you are actively involved in talking to michael gove and this process. how long do you think it will take? do you know when the changes might come in? the law should come in summer recess, which we believe it'sjuly time. that is when the law will be in effect. there may be some time given for businesses, obviously, to get their labelling systems and procedures in place. but really, it is going to happen this year. michael -- michael

gove said it will be called natasha's law, how does it make you feel? delighted. it is something we feel? delighted. it is something we feel that natasha would be so proud of. having lived with allergies and often feeling she was very much alone with her allergies. many of her friends didn't really understand, and it is not their fault, but the conversation isn't happening as it is now. for this to be in her name is incredible. nadim? follow those of us with faith, natasha is in heaven and looking down and saying, yes, mummy and daddy, do it, go for it! we feel that and we must do it and we are doing it. we are proud to be doing it in her name, really, in honour of our child who is no longer with us, yes. how much of a difference will it make to your family if this does come in or when this comes in? well, i think it will make a huge

difference, because greater clarity is needed. for too long, the food industry have hidden behind not being clear and transparent. i am not sure if it will change, as a family, as eating out more, necessarily. but it will give an added confidence. as natasha's parents said, you are always... you are always fearful and always looking at labels, still. of course. lots of people have been getting in touch who are in the same boat, in terms of dealing with allergies. 0ne says, tougher food labelling terms of dealing with allergies. 0ne says, tougherfood labelling will only work if food producers ensure allergens cannot find their way into packaging that should not contain them. food hygiene should be a major consideration. another, i'm allergic to butter, not cheese, milk and margarine but butter hits me like a case of food poisoning four days. most damages don't save it as butter or margarine and i have to ask, and they don't always know. and another,

food packaging needs to have all the ingredients listed was that my daughter has a condition which means she's allergic to a lot of raw fruit and vegetables but she is ok with allergens. anyone can be allergic to anything. thank you all very much indeed for coming in. congratulations on having made so much progress. thank you for affording us the time and voice, as well. thank you. we of course invited pret a manger to join our discussion today. they said they couldn't provide a spokesperson but sent us this statement. "we agree that more needs to be done to help inform and protect people with allergies, and we have made a clear commitment to develop full ingredient labels for all our freshly made products. "the trial of these new labels is progressing well, and we will be rolling out the new labels nationwide later this year." "we met with the secretary of state to discuss the policy changes needed to help customers, and we are supportive of the government's efforts to address this public health issue. " the man convicted of the manslaughter of 24—year—old charlotte brown, who died in a speedboat accident on the thames while on a date, has appeared in court this morning

in the georgian capital of tbilisi. jack shepherd handed himself into a police station there on wednesday, after being on the run for months. charlotte's father, graham brown, had that day made a powerful direct appeal to him — on this programme — calling on him to give himself up. it's not yet clear whetherjack shepherd will fight any attempts to extradite him to the uk. we can speak now to our correspondent rayhan demytrie, who is outside the court in tbilisi. what is the latest from there? joanna, jack shepherd is making his fax“? e25 eeeeeeq ”if £55351 f; e j‘eee‘e jeee eeeeeee 'e qeeee e; e jeeeee jeee eeeeeee 'e e‘eeee ee ! in the court jeeeee jeee eeeeeee 'e eeeeee ee ! in the court as we speak. jeeeee jeee eeeeeee 'e eeeeee ee ! i read court as we speak. jeeeee jeee eeeeeee 'e eeeeee ee ! i read you 't as we speak. jeeeee jeee eeeeeee 'e eeeeee ee ! i read you some e speak. jeeeee jeee eeeeeee 'e eeeeee ee ! i read you some of;peak. jeeeee jeee eeeeeee 'e eeeeee ee ! i read you some of the k. i would just read you some of the lines from what he has said. he said that not a single day passed when he hasn't been thinking about the passing of charlotte's life and the effect it had on herfamily. he said that some time after the accident he

felt suicidally depressed at what happened and that is why he was unable to speak about that. he also said he could t—z ' he cooperating with the court. so, he is making this statement now as is making this statement—now as wej speak. earlier, iwas in is making this statement—now as wej speak. earlier, i was in the is making this statement—now as wej speak. earlier, would n the is making this statement—now as wej speak. earlier, would n tr to describe, it is quite a small court room, full ljournalists, face”. is taco”? is sitting a and is ‘ who is court - who is | to the remand thi in remand f: ' ' thi in custody emand f: ' ' thi in custody em three 25; ' ' his acts of 33 his acts of his she his acts of his she his acts thiss she his 33‘s has 5

she have - right his . 5— protest his extradition if they can prove that is protest his extradition if they can prove that- is any danger to prove that there is any danger to his life once - sent back to the prove that there is any danger to his thank e - sent back to the prove that there is any danger to his thank you i sent back to the prove that there is any danger to his thank you very ant back to the prove that there is any danger to his thank you very much ck to the prove that there is any danger to his thank you very much foro the prove that there is any danger to his thank you very much for updating and youtube blogger lucy edwards share their experiences, and offer some top tips one in 1a people in the uk over 65 are diagnosed with dementia. and experts predict the number of people affected by the condition

from the uk's ethnic minority and south asian communities will rise seven fold in the next 20 years. this programme has been told that many people from those communities are suffering alone, because there's a reluctance from many south asians to report it to their gp and a lack of care services with the right resources or the understanding to deal with the community's specific cultural needs. 0ur reporter, rajan datar, has been looking into the condition's social stigma, which is affecting him very close to home. sudhakar has lived in the same town in south—west london suburbia for 50 years, and always uses the same post office. i normally go by bus, because it's nearby. and i got off the bus, and instead of crossing the road to go to the post office,

i started walking back and walked about ten minutes. and i didn't know where i was. i don't know why i did it. maybe it's one of those things. has it ever happened before? no, this was the first time. and it was literally you just didn't know where you were? no. this is my college in punjab when i was there in ‘50—54. sudhakar is nearly 85 and moved from india to the uk in 1955. he says he's had a fulfilled life, working as a computer engineer until he retired. he also happens to be my dad and in november of last year, he was diagnosed as being in the early stages of mixed dementia. so, you remember all these things really well? oh, yeah. you can remember like it was yesterday? yeah. wow. dad saw his symptoms as no more than a natural part of the ageing process and refused to accept that

dementia may be the cause. he's always been a little bit absent—minded, but mum persuaded him to go for tests. he did the memory test. i think he scored sort of halfway. they asked me to name ten animals, and i could only name five animals. not even five, you could only remember two. i got stuck, i couldn't remember anything. i love my garden. and also fixing things at home. dad's been diagnosed with mixed dementia and it's at this point that i realise that with his cooperation, we could make a film to explore the taboos and stigma in the asian community around this topic. like a lot of elderly asian people in the uk, my dad comes from a smallish community, where frankly, people didn't live long enough to develop dementia and they certainly didn't call it that then. but the fact is, they reckon

in the next 20 or 30 years, the number of people from ethnic minorities in this country with this illness is going to explode... ..by seven times. not only are these first—generation immigrants now hitting their 70s and 80s, but they are also believed to be at a higher risk of getting dementia. south asian population, because there is potentially an increase in the numbers of people with conditions like diabetes, high blood pressure, strokes, this is linked with an increased risk of vascular types of dementia. so, how do i feel about the situation? well, when i first found out about my dad and dementia, panic set in and then i started worrying about my mum, who'd become the main carer. and then, in a sense, two more selfish feelings came to me as well. one was guilt, because i felt worried i wouldn't be around enough for them.

and secondly, is it going to happen to me? and the other side, observe your tummy muscles working here... my dad's condition has spurred me on to find out more about this problem, so i've come to this community drop—in centre in west london, which twice a week encourages elderly ethnic minority people, mostly south asian in this area, to come, socialise and use the facilities. because this is all about prevention. many of these people are living on their own now. their families have flown. in my experience, i've found that loneliness is one of the main causes for people getting depressed, people getting ill. once you have people coming in, full of tears, really miserable. and within weeks, you see them transformed. and the people here certainly confirm that. what have we come here for? all these people, they are sitting, what are they going to do? something to do with health.

yes. exercise, isn't it? exercise. it's yoga, i think you're going to do yoga. yoga. do you like yoga? i love it. dementia is one of the key public health issues of the 21st century, and yet, in this country, there is still alarmingly little research on the impact it has on minority communities, who aren'tjust more likely to get it, but also are less likely to report it. and why didn't you want to go to the doctors? you said your wife had to persuade you. because i didn't think, i didn't want to waste their time because they have an important job. josie from the alzheimer's society acts as the bridge between state services and families and carers, and she's worried she's not reaching enough elderly asians with dementia. a really shocking statistic is that in richmond, my service is only reaching 15% of people with dementia, and the key is, we need to find out why.

i notice that there is a lot more asian people living in the borough than the proportion of people i see would suggest. it's true asians have been less likely to look for outside help, but, as i've been discovering, that's also often down to a cultural chasm. manjit is a police constable based in ealing and has bitter experience of this. eight years ago, her father died with dementia in hospital. she wasn't happy with the way he was treated and says the nightmare has now transferred to her mother, who also has it. she does get very depressed, you know? she has said to me that she is just waiting to be taken. she starts to go down that road. she gets into that mindset sometimes and i have to drag her back out again. you have a purpose, there are still people that rely on you. ryan has moved into his grandmother's house and is now the principal carer.

as her condition progresses, it is sometimes like looking after a child. it is like looking after a child. you have to make sure she is fed or dressed or gets up, and obviously i try to allow her to feel that she's retaining as much of her independence as possible. manjit's mother's nervousness around strangers was exacerbated after being mugged twice, and she also has vivid memories of 20 years ago when a burglar with a knife confronted her in her own home. she will not accept a stranger coming into the house, especially a male, and especially non—asian because they don't have the understanding of the culture. which rules out male carers for her. what's more, because ryan doesn't speak punjabi, they have to go via an aunt on the phone to translate to her what any visitor from the care services are saying.

it needs to go a lot further. having literature, not just the odd leaflet, that's in punjabi or whatever language it is, but actually having full leaflets, full booklets, full assessments, in the language, and maybe having a helpline that they can call. like ryan, i didn't speak any indian languages either but there's one thing i've recently discovered that's shocking. can i ask you, is there a word in punjabi for dementia? she's saying the word translates into madwoman. and also its the same for any other mental illness. there's something wrong with your head. there is no specific word for dementia. it's a few weeks after we first filmed with dad and he'd obviously got some energy back. something previously unthinkable happened. he even agreed to

come to the centre. good on you, dad. what i'm realising, and it's disturbing, is that out there, there are thousands of elderly people who are not getting this kind of interaction, who are not even seeing people for days or weeks, and that isolation is almost propelling them faster towards dementia. any stigma around the topic of dementia has largely gone for dadm and underneath it all there is his and my mother's enduring stoicism. you have to put up with it. do you ever feel sad about it or worry about it? once you accept it you can deal with it. 0h, dad says sit down yoga is not really his thing but he's going to try tai chi instead. we will be talking more about that a

little later, if you have any experience of dementia. do get in touch all the usual ways of getting in touch. if you're a woman aged between 25 and a9, you're supposed to go for a cervical screening test every three years. if you're between 50 and 64, it's every five years. but screening rates are at their lowest levels for two decades and as low as only half of women under 50, in some areas of the uk. research by the charity, jo's cervical cancer trust, suggests that many younger women are putting off going for their test because of embarrassment or being afraid of it hurting. even though cervical screening helps pick up abnormal cells that could eventually lead to cancer. a potentially life—saving test. we're joined now by chloe delevingne - sister of the model, cara delevingne, who has been trying to raise awareness about the importance of cervical screening after abnormal cells

were detected during her smear test, and dr philippa kaye - a gp who will be performing a smear test for chloe live on our programme. chloe, especially thank you to you, you're being incredibly brave, agreeing to do this. how are you feeling? a little bit nervous. i have you said you will do this? many yea rs have you said you will do this? many years ago i had abnormal cells found during a test. i had abnormal symptoms and the gp asked me to have a smear test. i was scared, i did not know what was going to happen, i need to show people want to show people it's nothing you should be scared about and put people at ease. people might feel a bit squeamish, thinking about what they are going to see. we will reassure them we will not show any genitals and chloe's modesty will be preserved underneath the blanket but were not trying to shock anyone. we know the research shows that women who delay

calling for a smear test, two thirds of them feel honourable and out of control. information is power, if we show the procedure and chloe's reaction,, hopefully that will give them some of that power back. reaction,, hopefully that will give them some of that power backm will be like we are in the doctors surgery. we will walk through the smear test. a lot of people as you say, the lover, have fears around the pain of that, and from my own experience it seems like they have changed quite a lot over the years. absolutely, we use plastic speculum is like these, we don't use metal ones. the cold metal speculums seem to have gone, this is the average size use, medium, gets inserted and opens slightly to hold the regina will waltz. if you have a skin condition or you are post menopausal or do ourdry, condition or you are post menopausal or do our dry, this is your test, stop me, ask questions. i have a small speculum, we can try different

things. that's interesting, to note you can get involved if you are feeling uncomfortable. generally we tend to lie back and think, i have got to put up with this. absolutely. the research shows of the women who are worried about going, they are also worried about telling us that they are worried and so they won't tell the health care professional in case they are judged or made to feel little or that their fears are inconsequential and they are not. this is your test, we want you to habit and we appreciate it can be difficult for someone so please ask us difficult for someone so please ask us for help stop chloe, or you ready? i will ask you to bring your knees up. and make your feet into a diamond. just like that. i will put my little part of there. and my brush. even this moment, chloe, you are lying there and having to do that, if you have never done it

before, you are young, embarrassed, how those it bill? it is a bit nerve—racking but you have to talk to the doctor. i am feeling a bit nervous, which i am. someone tweeted to say she watches the news on her app. what i tell people is pretty hands by your side and keep your bottom down and breathe. if you tense up against the speculum, that is when it hurts, bottom down on the bed, i will put that in now, if that is ok. bottom down on the bed and breathe. this is the point, some women feel is stretching type pain. it's not painful but it's weird, an odd feeling. these are the pressures and we use that to swipe some cells from the cervix and at this point some women will feel a period type pain. slightly, but it's doable. and it's over. amazing. the speculum

comes out, really quickly. it's the waiting for something to happen and it did not. my last smear reminded me of vaccinations and giving blood, i always have such fear stop and that's worse than the process. and then afterwards you say, it's gone. the other thing we want to say is if that position is uncomfortable we do have an alternative and chloe will demonstrate you roll onto your side and put your knees up into your chest and we do this smear exactly the same way using the same speculum and some women find it more comfortable. if you are uncomfortable, if you have questions, stop us and there is loads of information and support online. that was done in... 30 seconds? some women it might take longer if they are uncomfortable or we slow it down for another reason,

maybe your cervix might be a little bit round the corner, we might want you to put your hands under your bottom or give a little coffee but generally, in a minute, you are done. i believe you to get yourselves sorted but you are going tojoin me in a moment for a chat. we will continue talking about this ina we will continue talking about this in a moment, but first... but first, earlier this week in the house of commons the issue of the number of women going for smears was raised by conservative mp rachel mclean. here's what she said. ten years ago i had a cervical smear test that picked up some minor abnormalities which, if they had been left untreated, could have developed into something much more serious, but unfortunately cervical screening is at a 21—year low. and over a quarter of women don't take up this life—saving test. will the prime ministerjoin with me, we all know it is a bit uncomfortable and it can be embarrassing for some women, but will she please urge all women up and down the country to take up this life—saving test? i think her experience shows exactly why it is so important for women

to take up this test. we do need more to encourage women to undertake their cervical screening test. public health england will be launching a national campaign shortly to highlight the risks of cervical cancer and encourage women to attend their screening appointments. i willjust say this, because i know, ias a prime minister can stand here and say this, i know we don't like to go through a cervical smear test, it is not comfortable. sometimes for some it will be embarrassing. sometimes it's painful. but those few minutes can save lives, so i would encourage all women to take up their smear tests. quite a thing when the prime minister is talking about having a smear test, in the house of commons. we're going to talk now to carol taylor, a trustee ofjo's cervical cancer trust and whose sister died of cervical cancer when she was 29.

and in our birmingham studio, we have amanda blood. she delayed her smear test for two years and was eventually diagnosed with cervical cancer last year. dr phillipa kay is still here too and chloe delevigne is on her way. theyjoin me now. comeback, both of you. amanda, you delayed your smear test for two years. tell us why you did that. i think it's probably like, every woman out there. it's fear. embarrassment. you are worried that it fear. embarrassment. you are worried thatitis fear. embarrassment. you are worried that it is potentially going to hurt. and it's quite silly, really, when you look at it. you realise how simple the test itself actually is. so many women are delaying the test, so many women simply aren't attending and there is such a stigma behind the smear test itself. the name andi behind the smear test itself. the name and i think hearing it insta ntly name and i think hearing it instantly puts a lot of people of straightaway. what happened to you

in the end? if you hadn't delayed, how different might things have been? i think if i hadn't delayed the test it could have been caught earlier. maybe even at the cell level, were i just earlier. maybe even at the cell level, were ijust had abnormal cells. i put it off or about two and a half years, i knew something weren't right and i finally made the decision that i had to book a smear test and find out what was going on. and when you hear it the way it's talked about today, there is sort of, obviously, raising awareness but still so many women are not getting the test because of the issues that you have described. what would you say to someone at home who thinks, i know i should do it but ijust can't bring myself to. obviously i'm in a very similar situation to what they are. ifeel like i'm one to preach about the because i putted off for two and a half years but honestly,

it's free for us, it's something we get free of charge on the nhs from the age of 25. cervical cancer can be prevented by this test. it's so important that we do go out and have this test done. nobody deserves to experience what myself has and thousands of other women, notjust in the uk but across the world. carol, i mean, it's quite worrying, isn't it, how many people are putting off something that can be life—saving because of these issues of embarrassment and fear which are com pletely of embarrassment and fear which are completely understandable and we all experience them around this test. absolutely and i think the research that has been done really shows that the reasons people are putting off this test, as philip referred to, i think she can address with the hot cup professional, ask the questions and tell them if you are nervous. my advice as someone who's been

affected, a family member having cervical cancer, is go for the test, talk if you have concerns, there are things they can do, as we showed earlier, to make you more comfortable and reduce the fear factor that puts many women of. stephen says my mother cannot oversell how important a smear test is, she was diagnosed with cervical cancer before i was born and was treated. the test saved life and she has never forgotten it and she has a lwa ys has never forgotten it and she has always gone for a test when she can. chloe, you had children and you said you are incredibly grateful for the fa ct you are incredibly grateful for the fact this was something that was dealt with. exactly, ifi hadn't gone to see my doctor then i had symptoms then i may not have been able to have children, everything could have been different, it's really important, it could save your life, it can allow you to have children. philippa, explain the difference with different stages of that being caught. it is three treatable, isn't it, if caught early? a smear test doesn't pick up

cervical cancer, fodder picks up or abnormal cells that have the potential to become cancer and that's important, and we have a treatment for those cells. one in 20 of us will have an abnormal smear at some point in our lives, they are changing how the system of testing is done and it's already in some parts of the country, if you happen up parts of the country, if you happen up normal smear able test tube for high—risk hpv. if you have minor changes and you are not high risk hpv, you will go back to the normal screening programme and you will because back in three or five years depending on your age. if you are high risk or if the change are moderate or more severe and still precancer, you will be referred to colposcopy, we look at the cells under a microscope and those cells can be removed, generally by a procedure where the cells are just removed and that's the end. once you have a normal smear afterwards you

return back into the cervical screening programme. you done this today, you'd have the smear to raise awareness. showing an e—mail says i haven't had a smear test for nine yea rs haven't had a smear test for nine years and watching today has made me make an appointment for my next week. that's great, well done! if there's anyone else out there who is doing the same, let us know because thatis doing the same, let us know because that is absolutely why we have done it. this morning. yes, that's good, well done. jade goody was a well—known celebrity, obviously, who died of cervical cancer and when she died, carol, there was a lot of awareness and people going for smear tests. why has it backs led so much? i think there's a lot of reasons. some covered in this research around embarrassment, fear, pain, people say they are worried, they would rather not know. i think it's always better to know and as we hear, it's

not about the tech and cancer, it's about detecting problems that could become dangerous if left untreated. i think something else that's important to be aware of is symptoms, sadly not every case is detected through the smear testing programme. the symptoms, if you have bleeding after intercourse, in between your period, if you have an abnormal the journal discharge or pelvic pain, see your doctor, irrespective of how old you are, if you are under the age of 25 when the screening programme starts. if you have any symptoms do not ignore them, come and see us. what was the situation with your sister, she was 27. she was 28 when diagnosed, she had been for her smear test and no abnormalities detect it but she was experiencing symptoms of irregular bleeding, discharge and she went to her doctor because she felt something was not right and i would

absolutely encourage anyone, many of my friends have had children now, changes to your body after having children, i think it's important that if anything doesn't not feel right you go into the conversation, it's always best to get it checked out. if you are called for your smear test while pregnant can you cannot have that while pregnant, three months afterwards and then you cancer do not ignore it and forget, that a note in your diary, three months after you deliberately can have your smear test. for the smear test that you have both done today, that will be on the website, it was donein that will be on the website, it was done in 30 seconds, wasn't it, how would you describe the pain, discomfort, on a scale of one to ten. very low, if i'm honest. it was uncomfortable but it is over in a second and now i feel great, it's done, ican second and now i feel great, it's done, i can relax and hopefully the results will be ok and then wait another three years. but definitely worth doing. thank you so much and thank you amanda forjoining us as well. why do so many people

feel uncomfortable talking to disabled people? bbcjournalist ellis palmer, paralympian and disability rights activist tanni grey—thompson and youtube blogger lucy edwards have made this short film to share their experiences and offer some tips. quite a few times when i've been standing at the bus stop people have given me money, mistakenly thinking i was begging, rather than just waiting on a bus. i was eight months pregnant, i was in the street, and somebody stopped me and pointed out i was pregnant. they then said to me, how did you get pregnant? so i did end up saying i had sex with my husband, how did you think i got pregnant? there are so many times when members of the public come up to me and you look at them, don't you? i'm like, what is she doing? what is she looking at? is it something i have to be alert and aware of? i feel so bad sometimes saying please don't do that but it's really unhelpful. for many people, disability can seem to be a complex thing to talk about. perhaps they fear saying the wrong thing or seeming patronising. two thirds of us are uncomfortable when talking to disabled people, according to a survey done

by the disability charity scope. disability can be a broad range of physical conditions, chronic health problems and mental health issues. some disabilities are clearly visible while others can't be seen. no! i don't suffer from my disability. rather i live with or have cerebral palsy. saying a disabled person suffers from their disability portrays quite a negative image of a disabled person rather than saying someone who just needs adjustments or the right support to be able to thrive. there is still a huge amount of low—level discrimination that disabled people face. they think it's amazing and wonderful and aren't you incredible because you're out and about? not something that just should be an accepted part of society. and we're not all inspirationaljust because we've got out of bed in the morning. it is actually one of the most patronising things for a disabled person to experience for someone non—disabled to come and say you're so inspirational, because if you say why they often don't have an answer.

i'm a disabled person, not a person with a disability. a person with a disability is often used by non—disabled people because they think it sounds nicer but actually its society that makes my life different. it's steps, it's cobbles, it's lifts that don't work. my disability is not a separate part of me that i can choose to pick up or down. i lost my sight six years ago. one time i was approaching a kerb with olga and she was on the pavement and i wasn't. a gentleman came over and gave her a stroke. stopped her in her tracks a bit and i was still on the road. please don't distract her because she's doing a job. she's my eyes. i'm not wheelchair—bound, confined to or in a wheelchair, rather ijust use my wheelchair to get around so i'm a wheelchair user or someone using a wheelchair. the jokes about my speeding or whether i've got a licence are pretty weird when you consider

that my wheels are essentially my legs. it's not about avoiding topics or trying to say the right thing, ratherjust treating people as you yourself would wish to be treated. like many things in modern society it is about asking a person's consent and how they want things to go down. rather than just assuming. stop and think how you talk to anyone else and use that when you talk to a disabled person. just listen to what they say. what would be so great is if people came up to me and asked me if they could stroke olga. i think it's really important to have that dialogue between me and the person interacting with me, because the audible world is so important to a blind person. we don't need to be condescended to or treated differently. we need to be respected and supported. to watch that film again and others like it, visit bbc.com/ideas ijust want to bring you some breaking news now...

an independent inquiry has found that the lawn tennis association missed repeated warnings about bullying and sexually inappropriate behaviour at one of the uk's most prestigious training centres. former head coach at wrexham tennis centre, dan sanders, was jailed in 2017 after admitting eight counts of sexual activity with a 15—year—old player. our reporterjim reed has been following this. jim, tell us more about this report. report was commissioned last year by the old tennis association, dan sanders was the head coach at wrexham, responsible for looking after a large team of coaches there, convicted in 2017 of abusing one of his young players. we received this report an hour ago, 170 pages long, at first i was pretty damning, concerns raised by years before by pa rents were concerns raised by years before by parents were not addressed robbery. this is the most important line,

tennis wales and the lta are both found to have failed to properly recognise safeguarding concerns and to have acted in a goodly failing to initiate procedures against this court, pits the authorities, the lta in particular did not do enough to stop this. any reaction from pa rents ? stop this. any reaction from parents? we've spoken to parents at the centre over the last week and they talk about a culture of bullying, inappropriate behaviour which went on at the centre over a number of years. another female coach who works in the region told us coach who works in the region told us she made multiple written complaints to the lta about this could cause my behaviour including allegations he was asking other young players to send him inappropriate photos, for example or to wear skimpy outfits when training. i've also spoken to the pa rents of training. i've also spoken to the parents of another young girl who said he raised concerns about sanders 1a times including a sit down meeting with the director of the centre and t1 tim sanders was a sexual predator, in his words. at the lta said anything? they say they

are committed to having the best safeguarding procedures but in this insta nce safeguarding procedures but in this instance action taken was not enough and the chief executive says he's concerned opportunities were missed and he thinks new procedures in place now would stop this happening. we have more about this on the programme on monday morning. thank you. earlier in our programme, we brought you a film about dementia and the problems facing those with the condition in the south asian community. experts predict the number of people from ethnic minorities who are affected will rise seven fold in the next 20 years. let's talk now to sahdia parveen, whose experiences of having a grandmother with dementia and job in a care home helped influence her work as senior research fellow at the centre for applied dementia studies in bradford. mohammed akhlak rauf who set up ‘meri yaadain', a support centre for south asian families dealing with dementia, and received an mbe for his work. and david truswell, founder and executive director of the dementia alliance for culture and ethnicity, who has worked in community mental health services for the last 30 years.

welcome all of you and thank you for joining us. hammett, i mentioned centre you set up, it means my memories, tell us why you decided to do this. -- mohammed. that's quite a good film you showed but it doesn't dojustice to good film you showed but it doesn't do justice to capturing the breadth of need, awareness, research, and actually people deserve to have access to services, information and that's been our work, really, it is something i tend to refer to as the real world , something i tend to refer to as the real world, the day—to—day living families, carers, the burden they are underand families, carers, the burden they are under and obligation they feel to have to care. do they have the help and support and access you need? david, why have these needs and situation remained hidden in the south asian community?”

and situation remained hidden in the south asian community? i think people don't often appreciate what's happening andl people don't often appreciate what's happening and i think when people first, to feel that they are having memory problems or the way people act isn't the familiar way that they had been acting, as they are older people, they are just getting old, that'sjust what people, they are just getting old, that's just what happens when people get old. don't make a fuss about it. but why, living in this country, where there obviously is a lot of awareness of dementia amongst other communities, has a been an issue within the salvation community, it's not something that's been understood? —— not something that's been understood ? —— the not something that's been understood? —— the south asian community. i think people tend to believe, minority communities especially, they think dementia doesn't happen so much in our community. i think there are some issues around cultural stigma of

people, feeling that it's something you cannot talk about the community because it a bit shameful and embarrassing. i think there also an issue about people's sense of their own independence and resilience, ridiculously if people have come to the uk as migrants, particularly the first generation, they tend to be quite resilient and independent throughout their lives, dealing with everything that happened including health issues, to feel that they are suddenly vulnerable and have these feelings, is terrifying. suddenly vulnerable and have these feelings, is terrifyinglj suddenly vulnerable and have these feelings, is terrifying. ithink, mohammed, there is not a word for dementia in many languages, the closest word is mad, is that right? i think this is true across many minority communities, it would be seen as crazy, but there is another issue here about social construct, what is dementia, is that the normal ageing process, isn't the migrant community is in a different land but if you have no word for dementia how do you start a process that?”

if you have no word for dementia how do you start a process that? i know you've been researching this issue andi you've been researching this issue and i think you've literally completed your research area recently. tell us what you been looking at and what you found? i've just completed a project funded by the alzheimer society, the largest study in the country and what we found is that south asian carers we re culturally found is that south asian carers were culturally obligated to provide ca re were culturally obligated to provide care but not necessarily willing to provide claire care and completely unprepared. that addicted them being anxious and depressed 12 months later converted to fight, british carers. one viewer later converted to fight, british carers. one viewer 011 later converted to fight, british carers. one viewer on twitter says i am an indian by origin, i have lupus and an auto immune disorders along with a battery of other issues. culturally might in—laws and spouse don't want to accept and understand how difficult it is to live. another viewer says i been complaining about weird stuff happening in my life, i

was diagnosed with two different kinds of dementia, once diagnosed you are kinds of dementia, once diagnosed you a re left kinds of dementia, once diagnosed you are left to get on with it and try and make the best be seriously confusing life. mohammed, fort do you think? that is so common for many families struggling. one argument there should be more awareness but decision—makers, commissioners, planners, need to put policy into practice, it's great we have research and we need lots more but let's get that research translated into policy and get policy into practice. in terms of what is predicted to happen going forward , what is predicted to happen going forward, by gnosis in ethnic minority and south asian communities is predicted to rise sevenfold over the next 20 years. that's comparison to two fault for the fight british community. you can see how severe it is. thank you all for coming in and sharing your experiences. thank you. thanks so much for your company today, if you want to see the smear

test piece, you can see it on the website, one of you getting in touch during the programme saying she has gone for auboeck eight smear test as the result. stay in touch through all the usual methods. i will see you very soon. have a lovely weekend. hello. a much milder day—to—day than we saw yesterday. here's what's going on, an area of high pressure in the south—west, westerly winds, fairly brisk through today, dragging in milderairand a fairly brisk through today, dragging in milder air and a fair amount of cloud. some brighter spells developing apps for eastern areas. a fairamount of developing apps for eastern areas. a fair amount of cloud persisting in the west as we move through this afternoon. some outbreaks of rain

and drizzle. persistent rain for north—west scotland. temperatures in the north in double figures. highs of 12 degrees. overnight outbreaks of 12 degrees. overnight outbreaks of rain in the north, some of that falling as snow. the coolest temperatures in the north and east, temperatures in the north and east, temperatures not falling too far away from here. into saturday, in mild strata to the weekend, outbreaks of rain in the north and west, gradually ageing eastwards, showery weather following in, west, gradually ageing eastwards, showery weatherfollowing in, dryer in front of it, temperatures still in double figures. goodbye. you're watching bbc newsroom live.

it's 11 o'clock and these are the main stories this morning... jack shepherd — the british man convicted of the manslaughter of a woman in a speedboat crash has appeared in court in georgia. he's to be held in prison there for the next three months. in what's being seen as a veiled reference to the brexit debate, the queen has spoken of the need to come together to seek out common ground and not lose sight of the bigger picture. as the clock ticks down — the chancellor, philip hammond warns of "very significant" short term disruption if britain leaves the eu without a deal. the automatic default is that we would leave with no deal. that's a very bad outcome for britain and a clear majority of my colleagues across party in parliament are determined to avoid that outcome, but it cannot be ruled out.