hello it's monday, i'm victoria derbyshire. here are the headlines. the uk's top scientific and medical advisers will issue a stark message this morning on the state of the coronavirus pandemic, warning the uk stands at a "critical point". what at a "critical point". do you think the government should what do you think the government should do as a result of the rise in cases. let me know this morning. on twitter, it's @vicderbyshire or you can email victoria@bbc.co.uk. in madrid, more than 800,000 residents have been ordered to stay at home to combat a sharp rise in infections and deaths there. a leak of confidential documents involving $2 trillion of transactions reveal how the husband of one of the conservative party's biggest donors was secretly funded by a russian oligarch with close ties to president putin. labour will set out its three step plan for britain's economy at the party's virtual conference,

saying a future labour government would createjobs, retrain workers and rebuild business. the government agrees new emergency deals with train companies to continue to cover any losses on the railways, caused by low passenger numbers. the satirical drama succession — created by the british writerjesse armstrong — was among the big winners at tv‘s emmy awards in los angeles. the uk's most senior scientific and medical advisers are to issue a stark warning about the upsurge in cases of covid—19. in a live televised briefing in the next two hours, they're expected to lay the ground for further possible restrictions.

professor chris whitty, england's chief medical officer, will warn the uk is at a "critical point" in the coronavirus pandemic and "heading in the wrong direction". he, alongside the chief scientific adviser, sir patrick vallance, will draw on data from countries such as france and spain, which are experiencing a second surge, to underline how that could be replicated in the uk. the latest government figures show the average number of new cases per day in the last week was 3,679. the daily hospital numbers have also risen — 233 people were admitted on september 18th. this figure doesn t include scotland. 0ur political correspondent ian watson has this. could i ask professor whitty and sir patrick vallance... chris whitty and sir patrick vallance were the mainstays of the downing street press conferences when the virus was at its peak, so you can assume that their briefing this morning on the latest data won't convey good news. professor whitty‘s likely to say that the uk is going in the wrong

direction and that a very challenging winter lies ahead. the two men spent much of yesterday afternoon behind downing street's black door poring over the data with the health secretary, the chancellor and the prime minister himself. what's been concerning some of those inside number ten are predictions that there could be a significant rise in deaths from covid by the end of next month unless further action is taken. ministers agree there should not be a full national lockdown, but there are tensions around the cabinet table over precisely which more limited measures to take. and not very far from downing street, people say they are simply looking for clarity. i think something has to be done because you do hear a lot of people actually disobeying the rules and it's affecting everyone, and a wake—up call is good. if there is a measure that can be taken to stop people doing silly things and they need to be at home, be smart and protecting people, then so be it. you could say, "look, the rule of six is about as simple

as you can get," but there's so many anomalies you can understand why people don't quite know what's going on. and then fining somebody £1000 when there could be a very legitimate reason why they didn't understand — all that's going to do is alienate people and the only way this is ever going to work is if you get the public on your side. keeping people onside could be a challenge for the government because it does seem likely some restrictions in areas of local lockdowns, particularly in the leisure industry, could be extended temporarily across england, but the government's options have not yet become firm decisions. iain watson, bbc news. let's talk to our political correspondentjessica parker. let's talk to our political correspondent jessica parker. it's just the scientific experts today, are they paving the way for boris johnson to announce further restrictions tomorrow?” johnson to announce further restrictions tomorrow? i think they are certainly paving the way for borisjohnson to come forward very soon and we know that because grant shapps, transport secretary, was

asked this morning about where is the prime minister. it's unusual and unprecedented for the scientific adviser and the chief medical 0fficer adviser and the chief medical officer to come out on their own. partly what this is about is that ministers have been assuring stark warnings over recent days urging people to follow the rules and saying if things deteriorate there could be further restrictions and further restrictions nationwide across england, but this is a chance for ministers to say, if you don't wa nt to for ministers to say, if you don't want to listen to us, listen to the scientists, the graphs and data we are seeing. it's something reiterated by the transport secretary this morning. we haven't yet seen mortalities and deaths following but we do know that is what has happened in countries like france and in particular spain where they thought initially this was only rising within young people, those 17 to 24—year—olds, but they have seen it come through to the rest of the population and they have seen deaths start to rise. we want to do everything possible to prevent that

from happening. so this is a tipping point, a very important moment, and that's why the chief medical officer chris whitty and sir patrick valla nce chris whitty and sir patrick vallance will be out there today explaining the science. i have heard their briefing and it is very stark. that sat ii their briefing and it is very stark. that sat 11 o'clock. and from the labour party's that sat 11 o'clock. and from the labour pa rty‘s point that sat 11 o'clock. and from the labour party's point of view, their virtual annual conference is ongoing and the shadow chancellor anneliese dodds is speaking. anneliese dodds has been talking this morning and one thing labour has been pressing in terms of the coronavirus pandemic is they want to see what they call more targeted support, some kind of extension of the furlough scheme, which the government is adamant needs to be started to be wound down. labour say certain sectors need that extra support because they can't fully reopen. we are also likely over the course of this virtual labour conference to hear these sort of attack lines in terms of what the government has been doing with regards to testing. we

have talked about it a lot in the last week, huge frustration among people, there was a surge in demand that the government admitted they hadn't quite expected for tests. we saw queueing outside some test centres with lots of evidence of people saying they couldn't get the test they were trying to book and anneliese dodds, the shadow chancellor, saying that needs to be a priority. we are absolutely at a critical point and we are very concerned that we have seen problems building up with testing in particular over the summer and we we re really particular over the summer and we were really pushing government to get a were really pushing government to geta grip were really pushing government to get a grip on those issues. it seems like we still have problems with the testing regime now and we are at this concerning position where it looks like infections are rising so we need above all government to get a grip on the testing system, make sure it is working and do all we can to prevent the need for additional localised restrictions because of course they do have a very significant cost. ongoing pressure

on the government over this testing issue. in terms of what we may hear this week from boris johnson issue. in terms of what we may hear this week from borisjohnson over the kind of restrictions that may be introduced, i think ministers are still weighing up the options to stop the latest mood music we are getting is the leisure sector could be one of the sectors that sees further curbs. chancellor rishi sunak is particularly keen to prevent the hospitality sector from being put under further strain after a very difficult few months after they had to shut during lockdown. what the government is adamant it must protect and stop from closing is adamant it must protect and stop from closing its schools. the government came under severe government came under severe criticism over the summer not least of all because of the exams saga. they want to make sure above everything else that children can keep going to school. thank you very much a stop lizzie has sent a tweet saying, i hope against hope that borisjohnson will not close schools. the kids' mental health needs preserving. you can watch

professor chris whitty and sir patrick vallance live here on bbc two and bbc news at 11 o'clock this morning. the health secretary matt hancock has said the government is prepared to do whatever it takes to combat covid—i9. but what could the new restrictions look like? let's talk now to dr linda bauld, who's a professor of public health from the university of edinburgh, and drjason oke, a senior statistician at the centre for evidence—based medicine at the university of oxford. starting with the number of cases, where are we with the ons? as they said in the previous report, things are moving in the wrong direction. that's reflected in the case numbers we see on the government website and also with the office for national statistics infections rate, which is the one we should trust, that doesn't depend on the amount of testing we are doing. for a long time, that survey from the ons

seemed like a flat line but the last one released has seen it go up. those cases are growing exponentially and that means a co nsta nt exponentially and that means a constant doubling rate. if it is five in one week, tender and extend 20 after that. what is the current doubling rate? we have to be careful by saying it is doubling. it's very difficult to determine or discern. we have certainly been increasing and at the moment it looks like cases are doubling somewhere between every seve n cases are doubling somewhere between every seven and eight days. there is the temptation to extrapolate that further. we have seen in spain for insta nce further. we have seen in spain for instance that they had a surge but in the last couple of weeks it looks to have slowed down. so i don't think we should extrapolate the doubling too far into the future. but is it growing exponentially?m has started to look like it is growing exponentially but i don't think we are seeing anything like we

did in march and april. i think things are moving at at least half the pace they were in march and april, and that makes a massive difference. so it is more comparable to where we were in mid—february, but we know a lot more about the illness now. hospitalisations and deaths are obviously not comparable to mid february? definitely not. probably in terms of cases we are something like the beginning of march. hospitalisations and deaths do come later so we will have to see what happens but things are different now and we know how to treat this better. we already have social distancing protocols in place. this doesn't seem to have the same impact as it did before. and i wa nt to same impact as it did before. and i want to ask you about registered deaths from the flu and pneumonia because two of your colleagues wrote yesterday that there are many more registered deaths from flu and pneumonia than comfort mac at the

moment yet the public is only given a daily diet of covid. where are you on that? i didn't involve myself in the writing on that piece but i am sure they are correct. it's not easy to determine who is dying from other illnesses like influenza. but it's probably right people are dying because the numbers of covid deaths are quite low right now. we think that will change in the next few weeks as covid overtakes influenza but i think we need to watch that carefully. and are you worried by the rise in cases? yes. one of the things we try to do in public health is take preventative action. we are never very popular for that but we can see the trajectory very clearly. the ons infection survey is the thing we rely on most and we can also see what is happening in

neighbouring countries. i think what's really significant today at 11 o'clock, hearing from these two very eminent colleagues, to explain what is happening first, before any new measures are introduced, i think it underlines that the government is trying to take this seriously and also trying to focus on, let's be frank, better communication if changes are coming down the track. do you think some of the messaging has been confused from politicians? i don't think they have listened to the guidance from their own behavioural scientists. there is a behavioural scientists. there is a behavioural science group linked to sage. the daily briefings have stopped in england. they occasionally come on and the announcements are poor. they have retained them in scotland and the trust in decision is much higher up here so i am pleased the scientists will be explaining because we need

to trust the actions being taken. people are not stupid and they need to understand why changes are happening. do expect further restrictions announced by the prime minister tomorrow? yes, that is my personal view. we are already seeing millions of people across the uk facing restrictions they weren't a view weeks ago. i expect there to be less household mixing, particularly indoors. they might try to resist hospitality restrictions. and also travel restrictions. there are some parts of the uk, like the north of scotland, where case numbers are low and we want to protect those communities. on july 14 the academy of medical scientist wrote a rough report that included the one, july and august must be a period of intense preparation for our reasonable worst case scenario for health in the winter including a resurgence of covid—19, which might be greater than that seen in the

spring. in your opinion has the government used july and august well to prepare for winter? not uniformly across the uk, no. we did suppress the virus to low levels across the summer the virus to low levels across the summerand that the virus to low levels across the summer and that was great, but everybody across the country has heard the news on the testing regime for stop testing is not a silver bullet, it is a support pillar, and contact tracing is variable across the uk so we should have been in a better place with those two things. in the second thing i should say, blaming the public for what has happened in my view is completely misguided. we need to support people, and the communities hardest hit are the most disadvantaged parts of the country and we can't forget that. and what do you think should happen next, jason? i think more restrictions are inevitable. you would like to think lockdown would bea would like to think lockdown would be a last resort and certainly a national lockdown is absolutely a last resort and we should try to find other ways to deal with this

and keep the economy open. i think things like test and trace, put more energy into that and get it working and avoid lockdowns which are... or thank you to both of you. the headlines on bbc news. the uk's top scientific and medical advisers will issue a stark message this morning on the state of the coronavirus pandemic, warning the uk stands at a "critical point". a leak of confidential documents involving $2 trillion of transactions reveal how the husband of one of the conservative party's biggest donors, was secretly funded by a russian oligarch, with close ties to president putin. labour will set out its three step plan for britain's economy — at the party's virtual conference — saying a future labour government would createjobs, retrain workers and rebuild business.

a leak of confidential documents involving $2 trillion of transactions has revealed how the husband of one of the conservative party's biggest donors was secretly funded by a russian oligarch with close ties to president putin. the revelation comes from thousands of leaked "suspicious activity reports", which were sent by banks around the world to the us treasury. andy verity reports. in this unprecedented leak, thousands of reports of suspicious activity filed by banks to alert us authorities were leaked to buzzfeed news and passed to the international consortium of investigativejournalists and bbc panorama. they reveal some of the international banking system's most closely guarded secrets. in one example, a payment of $8 million flagged as suspicious was sent to a russian businessman and former minister living in britain, vladimir chernukhin, in 2016. it initially came from this man, suleiman kerimov, a billionaire ally of president putin.

in 2018 he was sanctioned by the us who were targeting those they said played a key role in advancing russia's malign activities. mr chernukhin's wife, lubov chernukhin, has become famous for donating large sums to the conservative party in exchange for tennis matches with david cameron and boris johnson. and paying £135,000 for a night out with theresa may. in total, she's donated £1.7 million. most of it since her husband received the $8 million from kerimov. the chernukhins, pleasant people that they may be, are not fit and proper people to make donations to a british political party and it looks and feels and is really troubling, if you see that people are paying money into the conservative party coffers and getting this level of access and therefore presumably influence as a result. the conservative party said british russians have a democratic right to donate

to a political party. the chernukhins‘ lawyers say mrs chernukhin never received money deriving from mr kerimov and mr kerimov says he's had no dealings with mrs chernukhin but neither disputed the $8 million payment to her husband. andy verity, bbc news. and panorama is on tonight on bbc one at 7pm. the government has ended the rail franchise system, after agreeing new emergency funding deals with train companies. taxpayers will continue to cover any losses on the railways for another 18 months, during which time ministers will overhaul the way trains are run. our transport correspondent — tom burridge — has been to waterloo station in london and explains what this change means. welcome to the country's busiest train station before the pandemic, but that relatively quiet scene at the height of rush hour is why these new emergency deals between the train companies

and the government are needed. the government has agreed to continue to cover the losses on the railways for another 18 months. a significant period of time. since march the government says there has been a shortfall on the railways because of the lower passenger numbers of around £3.5 billion. one industry source told me the figure is much higher than that, or significantly higher than that, but that bill, the huge bill is picked up by us, the taxpayers. during that 18 month period the government wants to carry out broader reforms on the railways. the f word, franchising, is out. the government is looking at bringing in concessions. those are new contracts. they are already running on the london overground here in the capital. under a franchise, a train company could win big or lose big passenger could win big or lose if passenger numbers went up or down. in a concession any profit or loss

is picked up by the government body backing the railway. remember, you might not, that debate before the pandemic about whether our railways should be nationalised or not. well, this morning we are moving towards a model which is more similar to a nationalised model, but of course, the pandemic hangs over everything. it greatly affects the passenger numbers on the network, and therefore, the losses and the huge financial bill for the government. the transport secretary, grant shapps, believes the changes will be welcomed by most passengers. people obviously were not using the trains as much as they were, particularly at the height of the coronavirus, it was down to single—digit percentages of passengers on the railway. that has recovered somewhat. it's about 46%, i think the figures i saw last week. what i put in place today are emergency recovery measures for the railways. they can run up to 18 months,

but actually they are the first stage of a long, much—needed reform to our railways anyway where we are ending the old franchising system and putting these service contracts in place instead, which should mean a better service for passengers and a more reliable service for passengers as well and better coordination between everyone. more than £200 million worth of furlough payments have been returned to the government by companies which have decided they don't need the money. around 80,000 firms — including the retail giant ikea and the housebuilders taylor wimpey and redrow — have re—paid the cash they were given to help cover workers' salaries. the hmrc welcomed the windfall, which is a fraction of the 35 billion paid out so far. a partial lockdown has come into force in the spanish capital, madrid. the restrictions — which will last two weeks — affect 850,000 people mainly in the south. residents are banned from leaving their district other than for essential travel. ahead of the lockdown, people took to the streets to protest against the new measures.

in the united states, joe biden has said it would be an abuse of power if republican senators confirmed any us supreme court nominee put forward by donald trump before november s election. mr trump is rushing to fill the vacancy left by the death of ruth bader ginsburg. paul hawkins report. ruth bader ginsburg's now vacant seat on america's most powerful court. how it's filled is now a huge election issue. president trump says he'll name his nominee this week, with the republican—controlled senate then voting on it, but with 43 days to go until the election, some think that would be unfair, especially if america decides it's time for a new president and, possibly, a democrat—controlled senate. look, i'm not being naive, i'm not speaking to president trump, who'll do whatever he wants. i'm speaking to those republicans out there, senate republicans, who know deep down what is right

for the country and consistent with the constituition — as i stand here in the constitution center — not just what's best for their party. delaying the president's pick would need four republican senators to vote against their own party. two have said they will, potentially there are more. i think that senator mitt romney is definitely going to be closely watched because he is one of president trump's fiercest critics among senate republicans. he was the only senate republican to vote for one of the articles of impeachment. corey gardner is also facing one of the toughest re—election campaigns in colorado, and he is yet to say either way. unlike the president, joe biden says he won't announce his choice for the supreme court, but we do know, because he said it before, that his pick will be an african—american woman, and that makes the short list extremely short, because almost all supreme courtjudges since 1975 have come from the federal appeals courts and, right now, they don't have a single female african—americanjudge

there who is younger than 68, and age matters because supreme courtjudges serve for life. so the favourite is leondra kruger, a judge on california's supreme court. 44 years old, she clerked for former supreme courtjudge john paul stevens, and served as acting principal deputy solicitor—general during the obama administration. another potential pick is 49—year—old district court judge ketanji brown jackson. she clerked for current supreme courtjudge stephen breyer and has seven yea rs experience on the federal bench. either would be historic because 114judges have served on america's top court since 1789 — none of them has been an african—american woman. but that's ifjoe biden wins the election. the us supreme court gets the final say on america's biggest issues. what's not clear is whether the american people should get the final say on who sits on it

in this upcoming election. paul hawkins, bbc news. a woman has been arrested in the united states, on suspicion of sending a letter containing the poison ricin to president trump. she was detained in buffalo, and unconfirmed reports say she's a canadian citizen. the letter was intercepted at a sorting office last week, before it could reach the wite house. there are calls for more targetted care for asian and black families living with dementia. one of those areas of interest is music therapy which has been shown to ease symptoms of the condition. and to mark world alzheimer s day — the bbc s created a catalogue of world music to help people from all cultures living with the condition. bbc asian network's shabnam mahmood has more. do you like music? music. i realised she was feeling quite low and not really responding. she was almost shutting down, like she didn't want to remain on this earth. i thought, let's play some music for her. and i immediately saw the difference. listening to an old bollywood song

brings back happy memories for sajitha choudhury who was diagnosed with dementia four years ago. the majority of the services we get, it is more generic, isn't it? so it is like a one size fits all. any other music she would probably enjoy but not as much. dementia charities in the uk recognise the need for a more tailored support for people from ethnic minority backgrounds and theirfamilies. many of whom are still battling with the stigma around the condition. there is no word for dementia in any of the main south asian languages. using music, it might not help somebody get well. but it takes that individual back to something that they've enjoyed. before the pandemic, this group in leeds met weekly for their music class. now they are relying on zoom for a singalong. joining them today's

music artist naughty boy, whose mum also has dementia. thank you, mummy. there were a few ladies in the zoom call that reminded me of mum. whenever mum hears a song or sings it's like a firework. she sings. i can't help mum physically but spiritually i can help her every day because i love music. i make music. he is now supporting the launch of a project by the bbc called world service music memories. it's a collection of songs from around the world to help everyone living with dementia. it showcases how important culture is. i'm proud to say i'm british. but at the same time i have to respect where my parents came from. for abida, having a personalised playlist of her mum's favourite songs, is vital to her dementia care. even though mum was in the uk in the ‘60s, so whatever the music was in the ‘60s isn't that strongly linked to her as

her bengali or indian music is, you know, because that's what she grew up with. that's what she identifies with. the music represents happy times. nice? good morning. big weather changes this week and probably wardrobe changes for many of you as well. some mist and fog this morning. it has now started to diminish across england and wales. more clout to the north—west of the country, west of scotla nd north—west of the country, west of scotland and northern ireland and that will thicken to british outbreaks of rain across the hebrides, the north of mainland scotla nd hebrides, the north of mainland scotland and shetland. away from that, it is mostly dry. a bit more cloud this afternoon, the isle of man, parts of west cumbria, west lancashire and west wales, but for much of england and wales, blue skies overhead with highs of 24 or

25 in the south—east. another day that feels like some of that stop the top this evening and overnight, most of us are fine, mist and fog returning to the southern half of england and wales with rain becoming heavier and more persistent across western scotland and northern ireland. as the rain shift south and east through tuesday and wednesday, big temperature drops on the way. hello, this is bbc news, i'm victoria derbyshire. the headlines this monday morning.

the uk's top scientific and medical advisers will issue a stark message this morning on the state of the coronavirus pandemic, warning the uk stands at a "critical point". thousands of people in madrid have been told to stay at home. a leak of confidential documents involving $2 trillion of transactions reveal how the husband of one of the conservative party's biggest donors, was secretly funded by a russian oligarch, with close ties to president putin. labour will set out its three step plan for britain's economy — at the party's virtual conference — saying a future labour government would createjobs, retrain workers and rebuild business. the government agrees new emergency deals with train companies — to continue to cover any losses on the railways, caused by low passenger numbers. satirical drama succession — created by the british writer jesse armstrong — was among the big winners at tv‘s emmy awards in los angeles.

universities are welcoming students onto campus this morning for the first time since lockdown. forjodie and forjosh and nathan, today is independence day. the first day of a new life in leeds. i've been counting down for it for six months ever since counting down for it for six months ever since exams were counting down for it for six months ever since exams were cancelled so i can't wait to get started now. i've been waiting years for this! you wa nt to been waiting years for this! you want to get rid of him! that's it. we will miss him, i think. really excited. how many people will you be living with? i will live with three others. the problem is, they are your bubble now, what if you don't get on with them? i have a group chat with them already, i'm already

chatting with them and it will be 0k. chatting with them and it will be ok. they are eternally optimistic, aren't they? there are nearly 40,000 students moving in to leeds this week, a city which hasjust recorded its best ever increase in covid infections. for families like these, there are more than the usual worries as they prepare to wave their kids off. yeah, there's a little bit of concern but they seem to have a lot of things in place around here which are safety oriented. you're reassured by that? yeah, i think it's pretty reassuring, yeah. could do with having a bit more teaching time but i don't know whether that's going to happen. it's a bit annoying because it's harder to meet people if you're trying to meet people in a course, you can't go to lectures and sit next to new people. sebastian's mum says she's packed all the essentials. hand gel, lots of masks everywhere we go, as you can tell, he's not wearing a mask. laughs. so much of what happens now will depend on students following all the rules and regulations. mohammed tells me the council is working with bars and pubs to make sure they police their venues.

people have been given information and if somebody isn't obviously doing their bit, isn't playing their part, then we could actually take further action which could actually lead to closure of the premises. the worry isn'tjust about what happens in bars and pubs but in homes and halls. aston tells me most students are complying. yes, obviously been impacted by the new rule with six people, so you can't really plan to do big things, you have to keep it quite low—key. more than 19,000 fines have been issued for non—covid compliance so far. david says bars like his won't be the problem. i'd like to think everybody will be really on it. normally at this time of year, you would get house parties on in every house on every street within probably a mile radius of us. any so far? there's certainly been a few. getting infection rates back down requires everyone to act. matt hancock yesterday warned, follow the covid rules

or they will get tougher. spinal muscular atrophy is a disease that affects up to 1,300 people in the uk. more than a year ago, a drug called spinraza was given approval. however, it's estimated that a third of people living with the condition won t get it— a third of people living they were eligible. 19—year—old jake ogborne from bristol has been campaigning for access to the drug. sma is short for spinal muscular atrophy, and it's basically a disease where, over time, my muscles get weaker and weaker and weaker, so i won't be able to continue doing what i was once able to do. the decline over the years, it was quite slow to start. but it was as he grew up, there was then things that he wasn't able to do, you know, he evenjust stopped running but he was still

able to kick a ball. football has always been his life. because the disease has taken its toll on him over the last two and a half years we don't know then how quickly, or how it's going to continue at all, we really don't know. the biggest barrier to me at the moment is the nhs stopping me from getting drug that i need to, spinraza. from getting drug that i need, spinraza. first finding out about it, i think i was 16. ijust remember it being, like, wow, there is a drug in my lifetime which can help me, which can actually help me. i was so positive then about it. it was made last year, nhs said spinraza for all, everyone with sma, no matter what type, no matter what condition, you can have spinraza because we feel like it would help and we have done sufficient research. oh, my god, it was amazing. it was just unbelievable. we were alljust hugging each otherand crying, "0h, my god, this is the best, this is the best." we had a spinraza party for him, so we had friends and family and everyone helped us try and raise money even for him. we had a big party.

all cloud nine, it felt like, yes, our hard work has paid off, and then a couple of weeks laterjust... they took it away from him. just like that. theyjust said no, you haven't walked in the last 12 months so you can't have it. when spinraza was first out and first approved i would have fit into that guideline. so when they started making the discussion in the uk about, are we going to give this out? who is going to have this drug? i would have been in that guideline if they had just quickly got to this decision then. and i would have probably still been walking if i'd got it then. i mean, we were absolutely devastated. and this is where our fight kicked in. it is immensely cruel for an 18—year—old to be faced with a decision like that. it wasn't really, as i can see it, a clinical decision anyway. in fact, it almost seems to be saying, well, now you are in a wheelchair your quality of life is not worth saving. i entirely accept that nice has a role in deciding whether public

money should be spent. but the fact is, in this case, they've excluded some people for, it seems, no good reason. they need to be challenged on why do they think that it's not worth spending money on jake when it is worth spending money on others. it's just the main thing that gets at me the most is as i've seen my friends grow and become more independent and turn into adults pretty much, i've become less independent and less like an adult. i have needed more help with things. i haven't been able to go out as much. as a mother to see the decline in your own child is horrendous. the last two and a half years since he's come off his feet has hit him so badly and so quickly. he needs it, yeah, he's running of time. it's just... it's heavy and it kind of like destroys me. because i see my friends going out

and i want to do those... i want to do those things, i want to live like they do. but i've just been given this life so i've got to try and do my best with what i've got and that's all i can do really. setting, isn't it? —— upsetting. we can speak now to dr gennadiy ilyashenko and his daughter sophia who is living with sma type 1 and currently receives spinraza. and dawn wilbur who has sma type 3. she has been unable to access nusinersen and has been an ardent campaigner for access. how are you, sophia? i'm ok. thank you for talking to us. can i ask your dad, what do you think about this criteria that says you have to have walked in the last 12 months to qualify for this drug?|j have walked in the last 12 months to qualify for this drug? i don't think there is any specific evidence that shows it can differentiate between

the type of people who were ambulant and who lost ambulation and that the drug is or is not effective. sol find it personally a bit arbitrary. very often when we talk about these diseases and investment into the drugs, we are talking about the drug's cost, rather than investment into people and making their life better. after all, people are our best investment. so fear, can i ask you how this drug has helped you?m helps me good. helps you good? what can you do now? i can do more things than i used to. like what? like, in my wheelchair i couldn't put myself out of the door, i can get my little

wheels off but i can't get my big wheels, it is a bit hard to get the big wheels off. so you can walk around the house much better now, can't you? yeah, and also ride the kitchen door mat easier. i'm going to bring in dawn, if i may. how are you? tell us to bring in dawn, if i may. how are you ? tell us about to bring in dawn, if i may. how are you? tell us about your quality—of—life at the moment as someone quality—of—life at the moment as someone who is not eligible for this drug? and the mother of a teenager andl drug? and the mother of a teenager and i was diagnosed in 1966 with type three. after having a full working career... i now have very limited physical independence. i am unable to perform the simplest of tasks. for example, putting my make—up on, styling my hair, or brushing my teeth. so this drug would make an enormous difference in my life. what do you think of the

criteria that you have to have walked in the last 12 months to be eligible? i really cannot understand it because it has been proven across the world that it does improve muscle function. it even halts the progression of the disability. do you think cost could be one of the reasons why? yes, quite possibly. but i believe that better access to life—saving drugs may be cost—effective with a quality—of—life balance, ie, health and social care costs, hospitalisation, advanced medical equipment and services such as equipment and services such as equipment for a wheelchair and accessible vehicle, machines and

other numerous medical interventions. this is what nice say, the national institute for health and care excellence. they say that impression was given initially that impression was given initially that access to this drug was without restriction. we apologise at the time for giving families this impression. there will still be people with sma who will not be able to access treatment but we are not closing the door to these people. the new evidence review will begin in autumn 2020 and the understanding is that the access agreement, ie the criteria, will change if necessary. does that make you hopeful, dawn? criteria, will change if necessary. does that make you hopeful, dawn7m doesin does that make you hopeful, dawn7m does in one way, but then again, things move so slowly with nice and nhs decisions that i am fearful because every day changes all of our lives. we digress and also during these strange covid times with the

virus mutating i am really, really anxious for all people with sma that if we don't get treatment, any of the life changing treatments, that we are prone to chest infections, respiratory functions will digress. so who knows what the future holds? dr gennadiy ilyashenko, let me come back to you. i have a letter from jake's dad. jake was in the film that we saw, and it has been written to the labour mp kerry mccarthy from the manufacturers of spinraza and they say in this letter, england is they say in this letter, england is the only country that we are aware of that is using the ability to walk unaided as a deciding factor. i haven't been able to double check and triple check that, but if england was the only country in the

world that was using this criteria, what would you think of that? again, we are talking about helping people with sma. it's notjust the we are talking about helping people with sma. it's not just the ability to walk, it is the ability to eat, it is the ability to breathe, it is the ability to brush your teeth, to wipe your bum, all of these things, and people continue to lose it. ability to walk, i made my peace that sophia might never be able to walk at all, it doesn't make her less of a human, it doesn't make her less of a human, it doesn't make her less in need of the treatment. so using that kind of ambulation, non—ambulation as the criteria is a bit out of order, personally. we need to look at the bigger picture and the bigger picture is these people need the treatment. there is a treatment which is effective. you can talk about the data, the

clinical trials but for rare diseases, to run a clinical trial is exceptionally complicated. the numbers are very small. because sma has such a massive variety of people with it, so different abilities, different starting points, different ending points, it is very difficult to get something statistically similar. so it ends up being a bit arbitrary, i would say. similar. so it ends up being a bit arbitrary, iwould say. ok, thank you, all of you. thank you for talking to us. i appreciate it. thank you. and we will see what the review brings. these are the headlines at just review brings. these are the headlines atjust gone 9:45am. there will be a message this morning on the stage of the pandemic by the cmo and cso. a leak of confidential documents involving $2 trillion of transactions revealed how the husband of one of the conservative

pa rty‘s husband of one of the conservative party's biggest donors was secretly funded by russian oligarch with close ties to president putin. labour will set out its 3—step plan for britain's economy at the party's virtual conference saying a future labour government would create jobs, retrain workers and rebuild business. around one in every 20 children in england is currently out of school because of covid. that's according to new research by the children's commissioner for england, anne longfield. she's warning that all the hard work of re—opening schools in september will "slip away" unless teachers are given priority for testing. government is right to reopen schools, but actually the schools need to have the back—up they need to be able to test, get those tests in place, and those tests need to be local and they need to be quick. two things that aren't available at the moment. so when government is looking at its priorities, children, schools and teachers need to be high

on that list to enable them to happen because children need to be in school and parents need to get to work. failure's not an option. we can now speak to siobhan collingwood, headteacher at morecambe bay primary school. hello to you. what is the situation in your own school? you have 300 pupils, how many off at the moment? we have eight children of today with covid, we have 20 children off in total throughout the school but there is a turning point in time over the last week with eight or ten children who are at home waiting for the results of their covid tests. how many tests were you given for your school? we were given ten but initially when we were told about that we were not told they would be access to any others, so we understood they were on ration and we are keeping those, as far as possible, for staff, because we also have at the moment three members of staff who are at home with members

of theirfamily staff who are at home with members of their family who they are awaiting results for. my big concern is we have worked so hard and it is lovely to have our children back. i'm really enjoying having them back with us and they need to be back with us and they need to be back with us. and as far as i can see, my biggest concern and worry around about barriers to staying open is going to be, can we stuff it? can we maintain staffing levels as they are? it is interesting that you have ten tests, which as you rightly say you are keeping for staff, with a school of 300. i've spoken to secondary schools with 1500 pupils and hundreds and hundreds of members of staff and they have also been given ten tests. it is tough, isn't it? we have this briefing at 11am from the chief medical officer and chief scientific adviser today, and i wonder what you expect from them in relation to schools. what we are

hoping to hear is that several things. first of how important it is for us to stay open. it is vital. i look at our children and i'm desperate to stay open for them. we have worked terribly hard, so an acknowledgement of how hard it has been to get open in a covid secure manner and to been to get open in a covid secure mannerand to maintain been to get open in a covid secure manner and to maintain staying open, therefore acknowledging that keeping open for these children who need some stability and need to be in school for as long as possible, that thatis school for as long as possible, that that is a top priority, and therefore, keeping them in school and keeping things running and making sure that they get test results quickly and urgently, and that staff also get those test results, that that has to be a top priority if we are true to that commitment that staying open and our children's education is a top priority. then actions have to match that rhetoric. so teachers should be

regarded as key workers, you are saying, it sounds like when it comes to testing. are you also saying pupils as well? what i'm saying is we need to get rapid results. at the moment the way it stands now is there isn't a local testing centre for us within our town and city. a lot of the families that i work with haven't got access to cars or transport and they are being told, one of my parents last weekend was told to drive to scotland, which was a distance of over 100 miles with two poorly children in the car. and when she got there it was shut so she did a journey of over 200 miles and then came back still with no results as to what the children had got. my staff are taking probably an hour's worth of phone calls each day with frantic parents asking where they can get the results and where they can get the results and where they can get tests. thank you very much for talking to us. thank you,

siobhan collingwood, head teacher of morecambe bay and smack primary. prince charles has warned that the climate crisis will dwarf the impact of coronavirus. in a recorded message released to mark the start of climate week the prince of wales said the pandemic gave a window of opportunity to reset the economy for a more sustainable future. billions of people around the world are waiting and longing for concerted action to right the balance of this planet that we have so rationally disrupted. millions of young employees of disrupted. millions of young em ployees of cou ntless disrupted. millions of young employees of countless companies and corporations are desperate for action, not more words. as we have been hearing the government is thought to be considering a uk wide cu rfew, thought to be considering a uk wide curfew, or even a temporary shutdown of hospitality businesses. so how is the curfew which is operating in some parts of the country working? here is what happened in newcastle city centre at closing time on saturday night. it has been very, very quiet, not like the usual saturday. you have the one crowding the whole of the city here. it is

just a case of seeing the city very different to how it normally is. it just feels a bit strange on a saturday night, yeah. we have been through recessions, we have been through recessions, we have been through lots of different sort of stages will stop in 22 years we have seen stages will stop in 22 years we have seen it all. so really now we are just basically playing it by ear, rolling with the punches, but we are not majorly worried. it is different compared to usual but definitely it has been a good atmosphere and everyone is sticking to the rules, it has been decent, good night. everybody has been applying to it, they have all been doing what they should do, and you've got to give the local businesses in business, haven't you ? the local businesses in business, haven't you? it is like, got anxiety was, can we go somewhere, haven't you? it is like, got anxiety was, can we go somewhere, can we not? have we got a mask? but it has been really good, relaxing, but i'm quite thankful because you won't get the hangover after 10pm. so that's the hangover after 10pm. so that's the only benefit really! don't forget injust the only benefit really! don't forget in just over an hour you will hear from chief medical officerfor england you will hear from chief medical officer for england professor chris whitty and chief scientific adviser

sir patrick vallance in their live briefing which will tell us that we are ata briefing which will tell us that we are at a tipping point in the uk when it comes to the gradual rise in coronavirus infections. the satirical drama succession — which was created by the british writerjesse armstrong — was among the big winners at the emmy‘s overnight. the hbo saga, about a media mogul and his family, won best drama and best actor forjeremy strong. all the winners had to give their speeches via zoom because the ceremony was held behind closed doors. our los angeles correspondent david willis has more. this was the first major hollywood awards show off the covid era and one of the oddest ever. hello and welcome to the pand—emmys. there was no red carpet, no star—studded audience. the host, jimmy kimmel, broadcasting from an empty theatre. just like prom night. the show dependent on more than 100 different wi—fi feeds from the living rooms, bedrooms or back gardens of the nominees. hello, everybody, congratulations! having hijacked the proceedings, the coronavirus was also the butt of many of the jokes.

sanitised for your protection! jennifer aniston helping to sanitise the winners' envelope before setting fire to the germs. some of the winning nominees... as if the whole thing wasn't surreal enough, the trophies were presented by people in hazmat suits designed to look like tuxedos. that, the first emmy of the night for the canadian sitcom schitt‘s creek, which swept the board in the comedy awards. fittingly perhaps, following a summer of protest over racial injustice, this was the most diverse group of nominees ever, according to the emmy producers. regina king, watchmen. and the hbo series watchmen, a timely take on racism and police violence in america, walked off with four awards. succession. the hbo drama succession won three emmys, prompting what might be the first un—thank yous from its british creator. un—thank you to the virus for keeping us all apart this year. un—thank you to president

trump for his crummy and uncoordinated response. un—thank you to boris johnson and his government for doing the same in my country. the medium these awards honour has rarely been more relevant given the isolation caused by the coronavirus. the emmys mark the start of the hollywood awards season, one that promises to be the most unconventional ever. david willis, bbc news, los angeles. coming up to 9:56am. now it's time for a look at the weather with matt taylor. after a lovely weekend across many parts of the country the summer conditions continue for most into this week but it is a big week of weather change, wardrobe change and season change, as summer becomes autumn. we start the week with temperatures as high as 20 degrees in the north—east of scotland, 26 in the south—east of england but we switch from southerly winds to northerly winds from mid week onwards. the blue colours showing the colder air pushed down from the

north, by which stage by the end of the week 9—14 c will be the height, much colder than we should be at this stage in the year. they are the sort of temperatures we started this morning with, mist and fog clearing by the afternoon, blue skies for many across england, wales and eastern scotland, a bit more cloud across and western areas, certainly for northern ireland, western scotland, thick cloud for the hebrides, patchy rain here, and a freshening breeze, 12—14 is the high. 20 in aberdeenshire and the moray firth, 24, 25 in the south—east of england. a fine end to the day for the vast majority. tonight many will stay dry, mist and fog developing through parts of england and wales, more cloud to the north and west stopping temperatures dropping too much. the rain across northern scotland becomes heavier and more persistent. coolest tomorrow morning across eastern areas where we start with the best of the morning sunshine. a bit more cloud around tomorrow, most will start the day dry, mist and fog across england and wales clearly, the clown breaking up, longer sunny spells into the afternoon but across

scotland, the far west of england and wales, one or two isolated showers and more persistent rain with wind touching 40 mph in western scotla nd with wind touching 40 mph in western scotland and relating to the west of northern ireland. with sunshine and lighter winds further we used it could be even warmer than today, 25 or 26 celsius possible in the eastern parts of england. but then the changes start. tuesday night, rain spreading across scotland, northern ireland, north and west of england and wales in the big temperature differences on wednesday morning, temperatures low enough for a touch of frost potentially across parts of scotland and northern ireland. still that lingering summer warmth towards the south—east corner but there will be swept away by the weather fronts going through wednesday bringing outbreaks of rain across england and wales. turning drive for a time and then another set of weather fronts push in, with strengthening winds and outbreaks of rain. the big story from some of the forecasts from the four nations, drop in temperature, aberdeen, 19-10 , drop in temperature, aberdeen, 19—10 , luton drop in temperature, aberdeen, 19-10 , luton 23-12. drop in temperature, aberdeen, 19—10 , luton 23—12. bye for now.

hello, this is bbc news with the latest headlines for viewers in the uk and around the world. the uk's top medical and scientific advisers will issue a stark warning on the pandemic in uk warning that the uk stands on a critical point. in madrid, more than 800,000 residents have been ordered to stay at home to combat a large rise in infection rates there. a leak of confidential documents reveal how the husband of a conservative mp was secretly funded by russian oligarch with close ties to president putin. one of britain's opposition parties will set out a for the uk economy at the labour party virtual