tv Nicky Campbell BBC News June 8, 2023 9:00am-11:00am BST
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cancer — what's the delay? senior doctors are warning that the nhs is struggling to provide safe and effective care to cancer patients. chronic staff shortages in all four nations are causing delays to vital tests and treatments, and hal of all cancer units are reporting frequent delays for both radiotherapy and chemotherapy. treatment is meant to begin within two months of a referralfrom your gp — there's variations in different parts of the country, but nowhere is meeting their target. we've got an ageing population, and more options of treatment available, plus a shortfall of cancer doctors which the royal college of radiologists describes as a "perfect storm". the government says cancer waiting lists are a priority. in england, the department of health is drawing up a workfoce strategy intended to help the system cope. this morning, i want to hear your experiences. if you've received treatment,
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if you're waiting for treatment, how long did it take to get diagnosed? would a faster diagnosis have improved your prognosis? if you work in cancer care, what are the frustrations? chronic staff shortages and all four nations. the situation in england, scotland, northern ireland, you should see a specialist after two weeks and if it is diagnosed within two months. this morning, i want to hear your experiences. if you've received treatment, if you're waiting for treatment, how long did it take to get diagnosed? would a faster diagnosis have improved your prognosis? if you work in cancer care, what are the frustrations? 08085 909693 is the phone number. get in touch. this is what we are doing. and we are also celebrating national carers week. i cannot wait for that. he was the news. thank you. —— here is the news. the royal college of radiologists
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has warned the nhs is struggling to provide safe and effective care for all cancer patients — as they're waiting too long for vital tests and treatments — because of a lack of staff. ministers from all four—nations insist cancer services are receiving investment. president zelensky says he's shocked by the lack of international aid for ukraine — after the breaching of a dam in the south of the country. the red cross has raised concerns that land—mines have been dislodged the green party plus my only mp caroline lucas has announced she is standing down at the next general election —— green party's only mp. she said she has been prevented on focusing what she described as nature and climate emergencies. millions of people along the eastern side of north america have been advised to wear high—grade masks outdoors. wildfires in canada have led to very poor air quality from quebec to florida.
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it's a kind of double—edged story, this, isn't it? your experiences all important, well more and more of us getting cancer, ageing population, lifestyle, early detection as well. fourin lifestyle, early detection as well. four in turn cancer is preventable, smoking, overweight, but there is a real positive story here, as i was saying earlier on. medical advances, so exciting. you read about something most weeks and you think, oh, my goodness, such a positive, so exciting, it means so much to so many people and where are we going in the future with it? it gives your tingle when you read that stuff, doesn't it? new treatment, technology, tests, but do we have the staff to make those advantages count? let's talk
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to julian those advantages count? let's talk tojulian ralph, doctorfrom the royal college of what is the story here?— story here? cancer leaders and senior radiologists _ story here? cancer leaders and senior radiologists are - story here? cancer leaders and senior radiologists are very - senior radiologists are very concerned work force shortages are leading _ concerned work force shortages are leading to _ concerned work force shortages are leading to delays in patient treatment and that is obviously risking — treatment and that is obviously risking worse outcomes and expenses for the _ risking worse outcomes and expenses for the patients. how risking worse outcomes and expenses for the patients.— for the patients. how did it come to this? it for the patients. how did it come to this? it came _ for the patients. how did it come to this? it came to _ for the patients. how did it come to this? it came to it _ for the patients. how did it come to this? it came to it from _ for the patients. how did it come to this? it came to it from a _ for the patients. how did it come to this? it came to it from a long... i this? it came to it from a long... many years _ this? it came to it from a long... many years of — this? it came to it from a long... many years of underinvestment. | this? it came to it from a long... - many years of underinvestment. the royal— many years of underinvestment. the royal college does a census of membership every year and we have 100% _ membership every year and we have 100% return and every year we have been _ 100% return and every year we have been flagging that the situation is getting _ been flagging that the situation is getting worse but really we have got to this _ getting worse but really we have got to this situation where we just have to this situation where we just have to flag _ to this situation where we just have to flag up— to this situation where we just have to flag up that we are very concerned that patient care is a iteing _ concerned that patient care is a being adversely affected. there have been years _ being adversely affected. there have been years and years of underinvestment so a significant investment in workforce is needed to put the _ investment in workforce is needed to put the situation right. the government _ put the situation right. the government would - put the situation right. tie: government would say there put the situation right. ti9: government would say there has been considerable resource put into it, but population and demand, ageing
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population, all the things itemised there, they are kind of outstripping that as well? i there, they are kind of outstripping that as well?— that as well? i think you put it very well- _ that as well? i think you put it very well- i — that as well? i think you put it very well. i think _ that as well? i think you put it very well. i think the - that as well? i think you put it. very well. i think the headcount that as well? i think you put it - very well. i think the headcount has actually— very well. i think the headcount has actually risen but the whole time equivalent hasn't, and you mention the exciting new treatments, all of the exciting new treatments, all of the things— the exciting new treatments, all of the things we can do that we didn't used _ the things we can do that we didn't used to— the things we can do that we didn't used to be — the things we can do that we didn't used to be able to do, all of the treatments are now more complicated, they require _ treatments are now more complicated, they require more intervention and more _ they require more intervention and more doctors to undertake those treatments, so we really need an investment in workforce if we are to deliver— investment in workforce if we are to deliver the — investment in workforce if we are to deliver the opportunities we have in front of— deliver the opportunities we have in front of us — deliver the opportunities we have in front of us. ~ :, deliver the opportunities we have in front of us— front of us. ok. we have louise in huddersfield _ front of us. ok. we have louise in huddersfield coming _ front of us. ok. we have louise in huddersfield coming on. - front of us. ok. we have louise in huddersfield coming on. not - front of us. ok. we have louise in huddersfield coming on. not her i front of us. ok. we have louise in i huddersfield coming on. not her real name. christie in windsor, ilse and swansea, i knew you would want to talk about this. —— kirsty in windsor. good morning, everybody. a diagnostic radiographer, kirsty from windsor. what would you like to say about this? it’s windsor. what would you like to say about this? �* , :, , windsor. what would you like to say about this? �*, :, , ., about this? it's not 'ust about radiolo: about this? it's notjust about radiology shortages. - about this? it's notjust about radiology shortages. there i about this? it's notjust about | radiology shortages. there are massive national shortage of radiographers who perform other diagnostic scans and x—rays and
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mammograms. there isjust simply not the numbers out there to provide the care in the hospital is that the government are putting more pressure on the nhs with more diagnostic centres opening, trying to get two—week referrals through, and there is just simply not the staff numbers out there to cater for this influx in service. gps are now allowed to request for specialist imaging such as ct, and it is putting huge pressure on radiology services as opposed to previously going through consultants or referrals to specialty within the nhs, so a lot of patients can't get appointments to see their gps so the telephone consultation means the gp can now refer onto diagnostic services, which kind of cuts... it
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delays them having to see patients face—to—face so the pressure is put on to the diagnostic services and hospitals. on to the diagnostic services and hos - itals. : , , on to the diagnostic services and hositals. : , , ., i. on to the diagnostic services and hositals. : , , ., ., hospitals. and this is what you want to do, ou hospitals. and this is what you want to do. you want _ hospitals. and this is what you want to do, you want to _ hospitals. and this is what you want to do, you want to care, _ hospitals. and this is what you want to do, you want to care, to - hospitals. and this is what you want to do, you want to care, to help i to do, you want to care, to help people, to give people life. yeah, and there are _ people, to give people life. yeah, and there are simply _ people, to give people life. yeah, and there are simply not - people, to give people life. yeah, and there are simply not the i and there are simply not the appointment times for ct scanners and mris in the nhs, there is not enough time to facilitate the standard of care we are all committed to providing and every radiographer in the country would do their absolute best, but the culture within the nhs becomes demoralising and demotivating just because the workload puts so much pressure on staff. : , _, , ., workload puts so much pressure on staff. : , ,.,, staff. and it becomes a self fulfillin: staff. and it becomes a self fulfilling prophecy, - staff. and it becomes a self fulfilling prophecy, doesn'tl staff. and it becomes a self i fulfilling prophecy, doesn't it? if there are fewer radiologists and chemo therapists, the more the pressure, and the more the pressure
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is, people are those specialised professions will seek to leave. videography as a profession is not promoted... you know, nobody really understands what radiographer does or knows —— radiography as a profession. there are two types of radiographers that to the scans and therapeutic radiographers that provide the radiography treatments for cancer but everyone who comes into a&e is bound to see a radiographer at some point on the patientjourney, yet nobody really mentions radiographers, nobody throughout the pandemic mention radiographers and literally every covid patient will have seen a radiographer many times throughout their treatment.— radiographer many times throughout their treatment._ there l their treatment. absolutely. there is no mention. _ their treatment. absolutely. there is no mention, it _ their treatment. absolutely. there is no mention, it is _ their treatment. absolutely. there is no mention, it is all— their treatment. absolutely. there is no mention, it is all physio, i their treatment. absolutely. there is no mention, it is all physio, so l is no mention, it is all physio, so the promotion of our profession would hopefully engage more young people to consider radiography as a
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career, which then in turn would help with, you know, the demand for radiographers in the profession. it radiographers in the profession. it is great you are on here carrying the torch, it really is. laughter louise is in huddersfield, not real name. hello, louise. whatare louise is in huddersfield, not real name. hello, louise. what are you going through at the moment? weill. name. hello, louise. what are you going through at the moment? well, i was diagnosed — going through at the moment? well, i was diagnosed with _ going through at the moment? well, i was diagnosed with triple _ going through at the moment? well, i was diagnosed with triple negative i was diagnosed with triple negative breast _ was diagnosed with triple negative breast cancer— was diagnosed with triple negative breast cancer on— was diagnosed with triple negative breast cancer on the _ was diagnosed with triple negative breast cancer on the 7th _ was diagnosed with triple negative breast cancer on the 7th of- was diagnosed with triple negative breast cancer on the 7th of march. j was diagnosed with triple negative i breast cancer on the 7th of march. i started _ breast cancer on the 7th of march. i started chemo _ breast cancer on the 7th of march. i started chemo treatment _ breast cancer on the 7th of march. i started chemo treatment fairly i breast cancer on the 7th of march. i | started chemo treatment fairly soon it didn't _ started chemo treatment fairly soon it didn't feel— started chemo treatment fairly soon it didn't feel soon _ started chemo treatment fairly soon it didn't feel soon at _ started chemo treatment fairly soon it didn't feel soon at the _ started chemo treatment fairly soon it didn't feel soon at the time - it didn't feel soon at the time because _ it didn't feel soon at the time because obviously, _ it didn't feel soon at the time because obviously, you - it didn't feel soon at the timel because obviously, you know, it didn't feel soon at the time l because obviously, you know, i it didn't feel soon at the time - because obviously, you know, i had to have _ because obviously, you know, i had to have various _ because obviously, you know, i had to have various scans _ because obviously, you know, i had to have various scans and _ because obviously, you know, i had to have various scans and tests i because obviously, you know, i had to have various scans and tests on. to have various scans and tests on things— to have various scans and tests on things like — to have various scans and tests on things like that _ to have various scans and tests on things like that to _ to have various scans and tests on things like that to make _ to have various scans and tests on things like that to make sure i- things like that to make sure i would — things like that to make sure i would be _ things like that to make sure i would be getting _ things like that to make sure i would be getting the - things like that to make sure i would be getting the right i things like that to make sure i- would be getting the right treatment but then— would be getting the right treatment but then i_ would be getting the right treatment but then i started _ would be getting the right treatment but then i started my— would be getting the right treatment but then i started my chemotherapyl but then i started my chemotherapy regime _ but then i started my chemotherapy regime on _ but then i started my chemotherapy regime on the — but then i started my chemotherapy regime on the 17th _ but then i started my chemotherapy regime on the 17th of— but then i started my chemotherapy regime on the 17th of april, - but then i started my chemotherapy regime on the 17th of april, so i but then i started my chemotherapy regime on the 17th of april, so from j regime on the 17th of april, so from gp visit, _ regime on the 17th of april, so from gp visit, mid—february, _ regime on the 17th of april, so from gp visit, mid—february, to- regime on the 17th of april, so from gp visit, mid—february, to being i gp visit, mid—february, to being diagnosed — gp visit, mid—february, to being diagnosed and _ gp visit, mid—february, to being diagnosed and starting - gp visit, mid—february, to beingi diagnosed and starting treatment gp visit, mid—february, to being i diagnosed and starting treatment was incredibly— diagnosed and starting treatment was incredibly quick — diagnosed and starting treatment was incredibly quick. i'm _ diagnosed and starting treatment was incredibly quick. i'm very— diagnosed and starting treatment was incredibly quick. i'm very grateful- incredibly quick. i'm very grateful for the _ incredibly quick. i'm very grateful for the assistance _ incredibly quick. i'm very grateful for the assistance of _ incredibly quick. i'm very grateful for the assistance of my- incredibly quick. i'm very grateful for the assistance of my medicall for the assistance of my medical team _ for the assistance of my medical team and — for the assistance of my medical team and their— for the assistance of my medical team and their dedication. -
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for the assistance of my medical team and their dedication. howl for the assistance of my medical team and their dedication. how quick was it? well, — team and their dedication. how quick was it? well, i— team and their dedication. how quick was it? well, i saw— team and their dedication. how quick was it? well, i saw the _ team and their dedication. how quick was it? well, i saw the gp _ team and their dedication. how quick was it? well, i saw the gp around... | was it? well, i saw the gp around... i can't remember _ was it? well, i saw the gp around... i can't remember the _ was it? well, i saw the gp around... i can't remember the exact - was it? well, i saw the gp around... i can't remember the exact date i was it? well, i saw the gp around... i can't remember the exact date but| i can't remember the exact date but around _ ican't remember the exact date but around mid—february— i can't remember the exact date but around mid—february and _ i can't remember the exact date but around mid—february and from i i can't remember the exact date but. around mid—february and from seeing the gp_ around mid—february and from seeing the gp to _ around mid—february and from seeing the gp to diagnosis _ around mid—february and from seeing the gp to diagnosis was _ around mid—february and from seeing the gp to diagnosis was three - around mid—february and from seeing the gp to diagnosis was three weeks. | the gp to diagnosis was three weeks. that's_ the gp to diagnosis was three weeks. that's amazing, — the gp to diagnosis was three weeks. that's amazing, that's _ the gp to diagnosis was three weeks. that's amazing, that's really- the gp to diagnosis was three weeks. that's amazing, that's really good. i that's amazing, that's really good. that's amazing, that's really good. that was incredible, yeah. i had to have _ that was incredible, yeah. i had to have a _ that was incredible, yeah. i had to have a ct— that was incredible, yeah. i had to have a ct scan— that was incredible, yeah. i had to have a ct scan because _ that was incredible, yeah. i had to have a ct scan because i— that was incredible, yeah. i had to have a ct scan because i knew- that was incredible, yeah. i had to have a ct scan because i knew i. have a ct scan because i knew i needed — have a ct scan because i knew i needed to— have a ct scan because i knew i needed to start _ have a ct scan because i knew i needed to start with _ have a ct scan because i knew i needed to start with chemo i have a ct scan because i knew i. needed to start with chemo rather than surgery— needed to start with chemo rather than surgery sow _ needed to start with chemo rather than surgery so... and _ needed to start with chemo rather than surgery so... and from - needed to start with chemo rather than surgery so... and from that i than surgery so... and from that day, _ than surgery so... and from that day, so — than surgery so... and from that day, so something _ than surgery so... and from that day, so something i— than surgery so... and from that day, so something i thought i than surgery so... and from that day, so something i thought was suspicious— day, so something i thought was suspicious -- _ day, so something i thought was suspicious —— they— day, so something i thought was suspicious —— they thought - day, so something i thought was suspicious —— they thought was i suspicious —— they thought was suspicious— suspicious —— they thought was suspicious of— suspicious —— they thought was suspicious of the _ suspicious —— they thought was suspicious of the liver, - suspicious —— they thought was suspicious of the liver, had i suspicious —— they thought was suspicious of the liver, had to i suspicious —— they thought was i suspicious of the liver, had to have a liver— suspicious of the liver, had to have a liver mri. — suspicious of the liver, had to have a liver mri, unfortunately- suspicious of the liver, had to have a liver mri, unfortunately that i a liver mri, unfortunately that turned — a liver mri, unfortunately that turned out _ a liver mri, unfortunately that turned out to _ a liver mri, unfortunately that turned out to be _ a liver mri, unfortunately that turned out to be fine - a liver mri, unfortunately that turned out to be fine but - turned out to be fine but behind—the—scenes- turned out to be fine but behind—the—scenes my. turned out to be fine but i behind—the—scenes my uncle, turned out to be fine but _ behind—the—scenes my uncle, knowing the pressure _ behind—the—scenes my uncle, knowing the pressure on — behind—the—scenes my uncle, knowing the pressure on the _ behind—the—scenes my uncle, knowing the pressure on the chemotherapy- the pressure on the chemotherapy services, — the pressure on the chemotherapy services, had _ the pressure on the chemotherapy services, had booked _ the pressure on the chemotherapy services, had booked me - the pressure on the chemotherapy services, had booked me in- the pressure on the chemotherapy services, had booked me in for- services, had booked me in for chemotherapy— services, had booked me in for chemotherapy so— services, had booked me in for chemotherapy so i— services, had booked me in for chemotherapy so i didn't - services, had booked me in for chemotherapy so i didn't havel services, had booked me in for. chemotherapy so i didn't have to wait, _ chemotherapy so i didn't have to wait, which — chemotherapy so i didn't have to wait, which again, _ chemotherapy so i didn't have to wait, which again, you _ chemotherapy so i didn't have to wait, which again, you know, i chemotherapy so i didn't have toi wait, which again, you know, that was incredible, _ wait, which again, you know, that was incredible, because _ wait, which again, you know, that was incredible, because obviously wait, which again, you know, that l was incredible, because obviously if it had _ was incredible, because obviously if it had come — was incredible, because obviously if it had come back— was incredible, because obviously if it had come back and _ was incredible, because obviously if it had come back and there - was incredible, because obviously if it had come back and there were i it had come back and there were legion— it had come back and there were legion is— it had come back and there were legion is in— it had come back and there were
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legion is in the _ it had come back and there were legion is in the liver— it had come back and there were legion is in the liver or— it had come back and there were i legion is in the liver or something she would — legion is in the liver or something she would have _ legion is in the liver or something she would have had _ legion is in the liver or something she would have had to _ legion is in the liver or something she would have had to change i legion is in the liver or somethingi she would have had to change the treatment— she would have had to change the treatment and _ she would have had to change the treatment and i— she would have had to change the treatment and i would _ she would have had to change the treatment and i would have - she would have had to change the treatment and i would have had . she would have had to change the| treatment and i would have had to wait again. — treatment and i would have had to wait again. but_ treatment and i would have had to wait again, but the _ treatment and i would have had to wait again, but the fact _ treatment and i would have had to wait again, but the fact she - treatment and i would have had to wait again, but the fact she was i treatment and i would have had to| wait again, but the fact she was so proactive _ wait again, but the fact she was so proactive has— wait again, but the fact she was so proactive has meant— wait again, but the fact she was so proactive has meant i— wait again, but the fact she was so proactive has meant i was- wait again, but the fact she was so proactive has meant i was able - wait again, but the fact she was so proactive has meant i was able to| proactive has meant i was able to start_ proactive has meant i was able to start my— proactive has meant i was able to start my treatment _ proactive has meant i was able to start my treatment nice - proactive has meant i was able to start my treatment nice and - proactive has meant i was able to l start my treatment nice and quickly a sort _ start my treatment nice and quickly a sort of— start my treatment nice and quickly a sort of hopefully— start my treatment nice and quickly a sort of hopefully get _ start my treatment nice and quickly a sort of hopefully get through - start my treatment nice and quickly a sort of hopefully get through it i a sort of hopefully get through it as soon— a sort of hopefully get through it as soon as — a sort of hopefully get through it as soon as possible. _ a sort of hopefully get through it as soon as possible.— a sort of hopefully get through it as soon as possible. yeah, because that referral — as soon as possible. yeah, because that referral from _ as soon as possible. yeah, because that referral from the _ as soon as possible. yeah, because that referral from the gp _ as soon as possible. yeah, because that referral from the gp to - as soon as possible. yeah, because that referral from the gp to the - that referral from the gp to the time you actually see a specialist at the time you get treatment, it is at the time you get treatment, it is a dreadful dark time in your life, isn't it? ~ .,. ~ a dreadful dark time in your life, isn't it? ~ .. ,, ., , isn't it? mm. in fact i think it was worse than _ isn't it? mm. in fact i think it was worse than starting _ isn't it? mm. in fact i think it was worse than starting the _ isn't it? mm. in fact i think it was. worse than starting the treatment, because _ worse than starting the treatment, because now— worse than starting the treatment, because now i _ worse than starting the treatment, because now i know... _ worse than starting the treatment, because now i know... i— worse than starting the treatment, because now i know... i am - worse than starting the treatment, because now i know... i am very. worse than starting the treatment, - because now i know... i am very much a planner— because now i know... i am very much a blanrrerand — because now i know... i am very much a blanrrerand i— because now i know... i am very much a piannerand i like _ because now i know... i am very much a planner and i like to— because now i know... i am very much a planner and i like to know— because now i know... i am very much a planner and i like to know sort - because now i know... i am very much a planner and i like to know sort of- a planner and i like to know sort of point _ a planner and i like to know sort of point what's — a planner and i like to know sort of point what's going _ a planner and i like to know sort of point what's going and _ a planner and i like to know sort of point what's going and what's - point what's going and what's happening. _ point what's going and what's happening. and _ point what's going and what's happening, and i'm— point what's going and what's happening, and i'm used- point what's going and what's happening, and i'm used to l point what's going and what's - happening, and i'm used to being the one being— happening, and i'm used to being the one being in— happening, and i'm used to being the one being in control— happening, and i'm used to being the one being in control of— happening, and i'm used to being the one being in control of things. - happening, and i'm used to being the one being in control of things. so, . one being in control of things. so, actually. _ one being in control of things. so, actually, waiting _ one being in control of things. so, actually, waiting for— one being in control of things. so, actually, waiting for results - one being in control of things. so, actually, waiting for results and, i actually, waiting for results and, you know. — actually, waiting for results and, you know, knowing _ actually, waiting for results and, you know, knowing you - actually, waiting for results and, you know, knowing you are - actually, waiting for results and, . you know, knowing you are waiting for a _ you know, knowing you are waiting for a scan, — you know, knowing you are waiting for a scan, even. _ you know, knowing you are waiting fora scan, even, not— you know, knowing you are waiting for a scan, even, not even - you know, knowing you are waiting for a scan, even, not even waitingi for a scan, even, not even waiting for a scan, even, not even waiting for results. — for a scan, even, not even waiting for results, waiting _ for a scan, even, not even waiting for results, waiting to _ for a scan, even, not even waiting for results, waiting to go - for a scan, even, not even waiting for results, waiting to go and - for a scan, even, not even waiting| for results, waiting to go and have the scan, — for results, waiting to go and have the scan, all— for results, waiting to go and have the scan, all of— for results, waiting to go and have the scan, all of that _ for results, waiting to go and have the scan, all of that time, - for results, waiting to go and have the scan, all of that time, i- the scan, all of that time, i actually— the scan, all of that time, i actually found _ the scan, all of that time, i. actually found chemotherapy the scan, all of that time, i- actually found chemotherapy is not a walk in— actually found chemotherapy is not a walk in the _ actually found chemotherapy is not a walk in the park— actually found chemotherapy is not a walk in the park but _ actually found chemotherapy is not a walk in the park but actually - actually found chemotherapy is not a walk in the park but actually having i walk in the park but actually having the treatment _ walk in the park but actually having the treatment that _ walk in the park but actually having the treatment that time _ walk in the park but actually having the treatment that time has - walk in the park but actually having
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the treatment that time has been i the treatment that time has been easier— the treatment that time has been easier than — the treatment that time has been easier than waiting _ the treatment that time has been easier than waiting for— the treatment that time has been easier than waiting for everythingi easier than waiting for everything to start — easier than waiting for everything to start. ., . , ., easier than waiting for everything to start. ., . y., ., easier than waiting for everything tostart. ., . ., ., , to start. how are you now? how is it auoin ? to start. how are you now? how is it going? yeah. _ to start. how are you now? how is it going? yeah. it's — to start. how are you now? how is it going? yeah, it's going _ to start. how are you now? how is it going? yeah, it's going 0k. - to start. how are you now? how is it going? yeah, it's going ok. i- to start. how are you now? how is it going? yeah, it's going ok. i mean, | going? yeah, it's going ok. i mean, the fatigue. — going? yeah, it's going ok. i mean, the fatigue. in _ going? yeah, it's going ok. i mean, the fatigue, in the _ going? yeah, it's going ok. i mean, the fatigue, in the last _ going? yeah, it's going ok. i mean, the fatigue, in the last week- going? yeah, it's going ok. i mean, the fatigue, in the last week or - going? yeah, it's going ok. i mean, the fatigue, in the last week or so, l the fatigue, in the last week or so, you know. — the fatigue, in the last week or so, you know. and _ the fatigue, in the last week or so, you know. and i_ the fatigue, in the last week or so, you know, and i am _ the fatigue, in the last week or so, you know, and i am having - the fatigue, in the last week or so, you know, and i am having weeklyi you know, and i am having weekly treatments — you know, and i am having weekly treatments at _ you know, and i am having weekly treatments at the _ you know, and i am having weekly treatments at the moment - you know, and i am having weekly treatments at the moment which. you know, and i am having weeklyl treatments at the moment which is not something _ treatments at the moment which is not something i_ treatments at the moment which is not something i anticipated. - treatments at the moment which is not something i anticipated. i- not something i anticipated. i didn't— not something i anticipated. i didn't know— not something i anticipated. i didn't know that _ not something i anticipated. i didn't know that existed. - not something i anticipated. i didn't know that existed. in . not something i anticipated. i. didn't know that existed. in my not something i anticipated. i- didn't know that existed. in my head chemotherapy— didn't know that existed. in my head chemotherapy happened _ didn't know that existed. in my head chemotherapy happened every - didn't know that existed. in my head chemotherapy happened every threei chemotherapy happened every three weeks. _ chemotherapy happened every three weeks. and — chemotherapy happened every three weeks. and you— chemotherapy happened every three weeks, and you have _ chemotherapy happened every three weeks, and you have three - chemotherapy happened every three weeks, and you have three weeks. chemotherapy happened every three weeks, and you have three weeks to recover _ weeks, and you have three weeks to recover so— weeks, and you have three weeks to recover so i— weeks, and you have three weeks to recover so i am _ weeks, and you have three weeks to recover. so i am having _ weeks, and you have three weeks to recover. so i am having it— weeks, and you have three weeks to recover. so i am having it weekly. . recover. so i am having it weekly. but i _ recover. so i am having it weekly. but i think— recover. so i am having it weekly. but i think the _ recover. so i am having it weekly. but i think the important- recover. so i am having it weekly. but i think the important thing - recover. so i am having it weekly. but i think the important thing fori but i think the important thing for people _ but i think the important thing for people to — but i think the important thing for people to remember, _ but i think the important thing for people to remember, especially. people to remember, especially anybody— people to remember, especially anybody waiting _ people to remember, especially anybody waiting for— people to remember, especially anybody waiting for treatment, i people to remember, especially. anybody waiting for treatment, is that everybody— anybody waiting for treatment, is that everybody reacts _ anybody waiting for treatment, is that everybody reacts differentlyi that everybody reacts differently and sometimes _ that everybody reacts differently and sometimes people - that everybody reacts differently and sometimes people are - that everybody reacts differently and sometimes people are quite that everybody reacts differently- and sometimes people are quite happy to share _ and sometimes people are quite happy to share horror— and sometimes people are quite happy to share horror stories _ and sometimes people are quite happy to share horror stories with _ and sometimes people are quite happy to share horror stories with you - and sometimes people are quite happy to share horror stories with you but - to share horror stories with you but actually. _ to share horror stories with you but actually. you — to share horror stories with you but actually, you know, _ to share horror stories with you but actually, you know, you _ to share horror stories with you but actually, you know, you might - to share horror stories with you but| actually, you know, you might react very differentty _ actually, you know, you might react very differently to _ actually, you know, you might react very differently to somebody - actually, you know, you might react very differently to somebody else, i very differently to somebody else, and the _ very differently to somebody else, and the chemotherapy— very differently to somebody else, and the chemotherapy nurses - very differently to somebody else, | and the chemotherapy nurses have been _ and the chemotherapy nurses have been very— and the chemotherapy nurses have been very upfront _ and the chemotherapy nurses have been very upfront in _ and the chemotherapy nurses have been very upfront in saying, - and the chemotherapy nurses have been very upfront in saying, you i been very upfront in saying, you know. _ been very upfront in saying, you know. you — been very upfront in saying, you know. you can't _ been very upfront in saying, you know, you can't predict - been very upfront in saying, you know, you can't predict who- been very upfront in saying, you know, you can't predict who will| know, you can't predict who will tolerate — know, you can't predict who will tolerate treatment _ know, you can't predict who will tolerate treatment well - know, you can't predict who will tolerate treatment well and - know, you can't predict who will| tolerate treatment well and who isn't. _ tolerate treatment well and who isn't. so — tolerate treatment well and who isn't. so it— tolerate treatment well and who isn't. so it is— tolerate treatment well and who isn't, so it is very— tolerate treatment well and who isn't, so it is very much - tolerate treatment well and who isn't, so it is very much an- isn't, so it is very much an individual— isn't, so it is very much an individual thing, _ isn't, so it is very much an individual thing, and - isn't, so it is very much an individual thing, and the l isn't, so it is very much an- individual thing, and the treatment now is— individual thing, and the treatment now is so— individual thing, and the treatment now is so much— individual thing, and the treatment now is so much more _ individual thing, and the treatment now is so much more refined - individual thing, and the treatment
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now is so much more refined thani individual thing, and the treatmentl now is so much more refined than it was even _ now is so much more refined than it was even 5-10 — now is so much more refined than it was even 5—10 years _ now is so much more refined than it was even 5—10 years ago, _ now is so much more refined than it was even 5—10 years ago, i - now is so much more refined than it was even 5—10 years ago, i think. i now is so much more refined than it| was even 5—10 years ago, i think. 50 was even 5-10 years ago, i think. so ou was even 5—10 years ago, i think. you get a sense of how stretched things are... in terms of x—rays? know, with chemo, in terms of side effects. _ know, with chemo, in terms of side effects. i_ know, with chemo, in terms of side effects. i am — know, with chemo, in terms of side effects, i am not— know, with chemo, in terms of side effects, i am not particularly- effects, i am not particularly knowledgeable _ effects, i am not particularly knowledgeable about - effects, i am not particularly knowledgeable about it - effects, i am not particularly knowledgeable about it but. effects, i am not particularly knowledgeable about it but i effects, i am not particularly- knowledgeable about it but i think things— knowledgeable about it but i think things are — knowledgeable about it but i think things are much _ knowledgeable about it but i think things are much more _ knowledgeable about it but i think things are much more refined - knowledgeable about it but i think things are much more refined now than they— things are much more refined now than they were _ things are much more refined now than they were several _ things are much more refined now than they were several years - things are much more refined now than they were several years ago. things are much more refined nowi than they were several years ago in terms _ than they were several years ago in terms of— than they were several years ago in terms of how— than they were several years ago in terms of how they _ than they were several years ago in terms of how they can _ than they were several years ago in terms of how they can tweak- terms of how they can tweak treatments _ terms of how they can tweak treatments to _ terms of how they can tweak treatments to sick— terms of how they can tweak treatments to sick people i terms of how they can tweaki treatments to sick people and terms of how they can tweak- treatments to sick people and the treatment— treatments to sick people and the treatment i— treatments to sick people and the treatment i am _ treatments to sick people and the treatment i am getting _ treatments to sick people and the treatment i am getting is - treatments to sick people and the treatment i am getting is this- treatments to sick people and the i treatment i am getting is this book to me _ treatment i am getting is this book to me and — treatment i am getting is this book to me and so — treatment i am getting is this book to me and so on. _ treatment i am getting is this book to me and so on, but _ treatment i am getting is this book to me and so on, but you - treatment i am getting is this book to me and so on, but you said - treatment i am getting is this booki to me and so on, but you said about the service — to me and so on, but you said about the service being _ to me and so on, but you said about the service being stretched - to me and so on, but you said about the service being stretched —— - to me and so on, but you said about the service being stretched —— is- the service being stretched —— is suited _ the service being stretched —— is suited to — the service being stretched —— is suited to me _ the service being stretched —— is suited to me i— the service being stretched —— is suited to me. ithink— the service being stretched —— is suited to me. i think in- the service being stretched —— is suited to me. i think in the - suited to me. i think in the neighbouring _ suited to me. i think in the neighbouring trust, - suited to me. i think in the neighbouring trust, i- suited to me. i think in the neighbouring trust, i want| suited to me. i think in the l neighbouring trust, i want to suited to me. i think in the - neighbouring trust, i want to say authority. — neighbouring trust, i want to say authority. but— neighbouring trust, i want to say authority, but whatever, - neighbouring trust, i want to say authority, but whatever, you - neighbouring trust, i want to say i authority, but whatever, you know, bil authority, but whatever, you know, big hospitat— authority, but whatever, you know, big hospital trust _ authority, but whatever, you know, big hospital trust down _ authority, but whatever, you know, big hospital trust down the - authority, but whatever, you know, big hospital trust down the road, i big hospital trust down the road, they are. — big hospital trust down the road, theyare. and _ big hospital trust down the road, theyare. and my— big hospital trust down the road, they are, and my friends' - they are, and my friends' experience. _ they are, and my friends' experience, for— they are, and my friends' experience, for them - they are, and my friends' experience, for them it l they are, and my friends' . experience, for them it has they are, and my friends' - experience, for them it has been rather— experience, for them it has been rather different— experience, for them it has been rather different because - experience, for them it has been rather different because they- experience, for them it has been rather different because they are stretched — rather different because they are stretched i_ rather different because they are stretched. ithink— rather different because they are stretched. i think in— rather different because they are stretched. i think in terms - rather different because they are stretched. i think in terms of- stretched. i think in terms of staffing _ stretched. i think in terms of staffing and _ stretched. i think in terms of staffing and she _ stretched. i think in terms of staffing and she had - stretched. i think in terms of staffing and she had a - stretched. i think in terms of. staffing and she had a different experience _ staffing and she had a different experience in— staffing and she had a different experience in terms _ staffing and she had a different experience in terms of- staffing and she had a differentl experience in terms of efficiency and things— experience in terms of efficiency and things like _ experience in terms of efficiency and things like that. _ experience in terms of efficiency
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and things like that. so- experience in terms of efficiency and things like that. so i- experience in terms of efficiency and things like that. so i feel. experience in terms of efficiency. and things like that. so i feel that where _ and things like that. so i feel that where i_ and things like that. so i feel that where i live — and things like that. so i feel that where i live and _ and things like that. so i feel that where i live and my— and things like that. so i feel that where i live and my postcode - and things like that. so i feel that where i live and my postcode has| where i live and my postcode has benefited — where i live and my postcode has benefited me _ where i live and my postcode has benefited me in— where i live and my postcode has benefited me in terms _ where i live and my postcode has benefited me in terms of- where i live and my postcode has benefited me in terms of the - benefited me in terms of the treatment— benefited me in terms of the treatment i'm _ benefited me in terms of the treatment i'm getting, - benefited me in terms of the treatment i'm getting, which benefited me in terms of the - treatment i'm getting, which isn't fair. treatment i'm getting, which isn't fair~ i— treatment i'm getting, which isn't fair. . . treatment i'm getting, which isn't fair. , . ., treatment i'm getting, which isn't fair. , . . fair. i will put that to julian, because _ fair. i will put that to julian, because i — fair. i will put that to julian, because i am _ fair. i will put that to julian, because i am glad _ fair. i will put that to julian, because i am glad you - fair. i will put that to julian, | because i am glad you raised fair. i will put that to julian, - because i am glad you raised that. listen, all the best with everything. you're sounding great, by the way. everything. you're sounding great, by the way-— everything. you're sounding great, by the way-_ for - everything. you're sounding great, l by the way._ for someone by the way. thank you. for someone who needs — by the way. thank you. for someone who needs to — by the way. thank you. for someone who needs to be _ by the way. thank you. for someone who needs to be in _ by the way. thank you. for someone who needs to be in control, - by the way. thank you. for someone who needs to be in control, that - who needs to be in control, that kind of reminds me of someone i know! thanks very much. julian, louise raises it, that, you know, that dreadful phrase, the old cliche, postcode lottery, but it is patchy, julian elford? it cliche, postcode lottery, but it is patchy, julian elford?— patchy, julian elford? it is, and i thou~ht patchy, julian elford? it is, and i thought the _ patchy, julian elford? it is, and i thought the points _ patchy, julian elford? it is, and i thought the points raised - patchy, julian elford? it is, and i thought the points raised were l patchy, julian elford? it is, and i i thought the points raised were very valid _ thought the points raised were very valid i_ thought the points raised were very valid i am — thought the points raised were very valid. iam pleased thought the points raised were very valid. i am pleased she thought the points raised were very valid. iam pleased she had thought the points raised were very valid. i am pleased she had a good experience — valid. i am pleased she had a good experience but there is a patchy service~ — experience but there is a patchy service. overall, the numbers, we 'ust service. overall, the numbers, we iust don't— service. overall, the numbers, we just don't have enough radiologists, or radiographers, and i thought that lady or radiographers, and i thought that lady made — or radiographers, and i thought that lady made some very good points, radiographers diagnosing the cancers _ radiographers diagnosing the cancers. we just don't have enough oncologists, so we are currently at
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a 15% _ oncologists, so we are currently at a 15% shortfall of clinical oncologists nationally, and if we don't _ oncologists nationally, and if we don't do — oncologists nationally, and if we don't do anything about it it will rise to — don't do anything about it it will rise to 25% by 2027 and that is not very long — rise to 25% by 2027 and that is not very long away and we will have a one in— very long away and we will have a one in four— very long away and we will have a one in four shortfall of oncologists. it is even worse for radiologists, about a 40% shortfall if we don't — radiologists, about a 40% shortfall if we don't take action by 2027 so we are _ if we don't take action by 2027 so we are really calling on the government to invest in the workforce. they promise a workforce plan but _ workforce. they promise a workforce plan but we — workforce. they promise a workforce plan but we haven't seen it yet and we would _ plan but we haven't seen it yet and we would like to see a fully funded workforce — we would like to see a fully funded workforce plan, please. chris we would like to see a fully funded workforce plan, please.— workforce plan, please. chris in durham, workforce plan, please. chris in durham. good _ workforce plan, please. chris in durham, good morning. - workforce plan, please. chris in durham, good morning. good l workforce plan, please. chris in - durham, good morning. good morning, nic . i'm durham, good morning. good morning, nicky- i'm so — durham, good morning. good morning, nicky- i'm so sorry _ durham, good morning. good morning, nicky. i'm so sorry and _ durham, good morning. good morning, nicky. i'm so sorry and my— durham, good morning. good morning, nicky. i'm so sorry and my deepest - nicky. i'm so sorry and my deepest condolences _ nicky. i'm so sorry and my deepest condolences about _ nicky. i'm so sorry and my deepest condolences about your _ nicky. i'm so sorry and my deepest condolences about your father, - nicky. i'm so sorry and my deepest condolences about your father, i i condolences about your father, i just got a note that you lost him. yeah. his story was he was 71, just, but he _ yeah. his story was he was 71, just, but he was — yeah. his story was he was 71, just, but he was a — yeah. his story was he was 71, just, but he was a particularly _ yeah. his story was he was 71, just, but he was a particularly fit - yeah. his story was he was 71, just, but he was a particularly fit and - but he was a particularly fit and heatthy — but he was a particularly fit and heatthy 71~_ but he was a particularly fit and healthy 7i~ he _ but he was a particularly fit and healthy 71. he was _ but he was a particularly fit and healthy 71. he was a _ but he was a particularly fit and healthy 71. he was a bricklayeri but he was a particularly fit and . healthy 71. he was a bricklayer all of his— healthy 71. he was a bricklayer all of his life. — healthy 71. he was a bricklayer all of his life. he _ healthy 71. he was a bricklayer all of his life, he was _ healthy 71. he was a bricklayer all of his life, he was still laying - of his life, he was still laying bricks— of his life, he was still laying bricks and _ of his life, he was still laying bricks and building _ of his life, he was still laying bricks and building houses i of his life, he was still laying bricks and building houses in of his life, he was still laying - bricks and building houses in august of last— bricks and building houses in august of last year— bricks and building houses in august of last year will— bricks and building houses in august of last year will stop _ bricks and building houses in august of last year will stop he _ bricks and building houses in august of last year will stop he went - bricks and building houses in august of last year will stop he went into i of last year will stop he went into
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hospital. — of last year will stop he went into hospital. sorry. _ of last year will stop he went into hospital, sorry, it— of last year will stop he went into hospital, sorry, it is— of last year will stop he went into hospital, sorry, it is still- hospital, sorry, it is still difficult _ hospital, sorry, it is still difficult to _ hospital, sorry, it is still difficult to talk- hospital, sorry, it is still difficult to talk about, . hospital, sorry, it is still. difficult to talk about, but hospital, sorry, it is still- difficult to talk about, but he went into hospitat— difficult to talk about, but he went into hospital in _ difficult to talk about, but he went into hospital in september- difficult to talk about, but he went into hospital in september —— - difficult to talk about, but he went into hospital in september —— last| into hospital in september —— last year. _ into hospital in september —— last year. and — into hospital in september —— last year. and he _ into hospital in september —— last year, and he went— into hospital in september —— last year, and he went into _ into hospital in september —— last year, and he went into hospital. l into hospital in september —— last. year, and he went into hospital. we thought— year, and he went into hospital. we thought it _ year, and he went into hospital. we thought it was — year, and he went into hospital. we thought it was the _ year, and he went into hospital. we thought it was the effects _ year, and he went into hospital. we thought it was the effects of- year, and he went into hospital. we thought it was the effects of covid l thought it was the effects of covid he had _ thought it was the effects of covid he had earlier— thought it was the effects of covid he had earlier in— thought it was the effects of covid he had earlier in the _ thought it was the effects of covid he had earlier in the year, - thought it was the effects of covid he had earlier in the year, typicali he had earlier in the year, typical things. _ he had earlier in the year, typical things. you — he had earlier in the year, typical things, you know, _ he had earlier in the year, typical things, you know, bit— he had earlier in the year, typical things, you know, bit of- he had earlier in the year, typical things, you know, bit of a - he had earlier in the year, typical things, you know, bit of a chest i things, you know, bit of a chest infection. — things, you know, bit of a chest infection, things _ things, you know, bit of a chest infection, things not _ things, you know, bit of a chest infection, things not moving - infection, things not moving pa rticuta rty _ infection, things not moving particularly well— infection, things not moving particularly well in - infection, things not moving particularly well in his - infection, things not moving| particularly well in his chest. infection, things not moving - particularly well in his chest. just a different— particularly well in his chest. just a different guy. _ particularly well in his chest. just a different guy, you _ particularly well in his chest. just a different guy, you know, - particularly well in his chest. just a different guy, you know, his. a different guy, you know, his energy— a different guy, you know, his energy levels _ a different guy, you know, his energy levels had _ a different guy, you know, his energy levels had dropped, i energy levels had dropped, everything _ energy levels had dropped, everything else. _ energy levels had dropped, everything else. he - energy levels had dropped, everything else. he went . energy levels had dropped, . everything else. he went into hospitat— everything else. he went into hospital in— everything else. he went into hospital in september, i everything else. he went into hospital in september, in- everything else. he went into hospital in september, in a l everything else. he went into. hospital in september, in a local hospitat— hospital in september, in a local hospital appeal— hospital in september, in a local hospital appeal in _ hospital in september, in a local hospital appeal in durham, i hospital in september, in a local hospital appeal in durham, and. hospital in september, in a local. hospital appeal in durham, and the first thing _ hospital appeal in durham, and the first thing i— hospital appeal in durham, and the first thing i will— hospital appeal in durham, and the first thing i will point _ hospital appeal in durham, and the first thing i will point out, - hospital appeal in durham, and the first thing i will point out, every- first thing i will point out, every single _ first thing i will point out, every single human _ first thing i will point out, every single human being _ first thing i will point out, every single human being we - first thing i will point out, every- single human being we encountered on the journey— single human being we encountered on the journey we — single human being we encountered on the journey we had _ single human being we encountered on the journey we had with _ single human being we encountered on the journey we had with the _ single human being we encountered on the journey we had with the nhs i single human being we encountered on the journey we had with the nhs was . the journey we had with the nhs was justm _ the journey we had with the nhs was justm i_ the journey we had with the nhs was justm i mean. — the journey we had with the nhs was justm i mean. it— the journey we had with the nhs was justm i mean. it is— the journey we had with the nhs was just... i mean, it is the— the journey we had with the nhs was just... i mean, it is the age - the journey we had with the nhs was just... i mean, it is the age old i just... i mean, it is the age old cliche. — just... i mean, it is the age old cliche. but— just... i mean, it is the age old cliche, but they _ just... i mean, it is the age old cliche, but they were _ just... i mean, it is the age old cliche, but they were heroic, i just... i mean, it is the age old i cliche, but they were heroic, they were _ cliche, but they were heroic, they were spectacular, _ cliche, but they were heroic, they were spectacular, they— cliche, but they were heroic, they were spectacular, they were i cliche, but they were heroic, they were spectacular, they were just. were spectacular, they were just fabulous. — were spectacular, they were just fabulous. to— were spectacular, they were just fabulous. to a _ were spectacular, they were just fabulous, to a person. _ were spectacular, they were just fabulous, to a person. but- were spectacular, they were just fabulous, to a person. but he i were spectacular, they were just fabulous, to a person. but he in| were spectacular, they were just i fabulous, to a person. but he in in september— fabulous, to a person. but he in in septemberand _ fabulous, to a person. but he in in septemberand it— fabulous, to a person. but he in in september and it was _ fabulous, to a person. but he in in september and it was a _ fabulous, to a person. but he in in september and it was a typical i fabulous, to a person. but he in in. september and it was a typical thing of, september and it was a typical thing of. 0k. _ september and it was a typical thing of. 0k. he's— september and it was a typical thing of, ok, he's unwell, _ september and it was a typical thing of, ok, he's unwell, we— september and it was a typical thing of, ok, he's unwell, we have - september and it was a typical thing of, ok, he's unwell, we have a i of, ok, he's unwell, we have a suspicion — of, ok, he's unwell, we have a suspicion something _ of, ok, he's unwell, we have a suspicion something is - of, ok, he's unwell, we have a suspicion something is going . of, ok, he's unwell, we have al suspicion something is going on of, ok, he's unwell, we have a i suspicion something is going on with his lungs. _ suspicion something is going on with his lungs. we — suspicion something is going on with his lungs, we will— suspicion something is going on with his lungs, we will to _ suspicion something is going on with his lungs, we will to get _ suspicion something is going on with his lungs, we will to get his- his lungs, we will to get his oxygen. _ his lungs, we will to get his oxygen. his _ his lungs, we will to get his oxygen, his saturation i his lungs, we will to get his. oxygen, his saturation levels his lungs, we will to get his- oxygen, his saturation levels back up, oxygen, his saturation levels back up. and _ oxygen, his saturation levels back up. and we — oxygen, his saturation levels back up. and we will— oxygen, his saturation levels back up, and we will get _ oxygen, his saturation levels back up, and we will get his— oxygen, his saturation levels back up, and we will get his scan- oxygen, his saturation levels back up, and we will get his scan donei up, and we will get his scan done and find —
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up, and we will get his scan done and find out _ up, and we will get his scan done and find out what _ up, and we will get his scan done and find out what is _ up, and we will get his scan done and find out what is going - up, and we will get his scan done and find out what is going on, i up, and we will get his scan done and find out what is going on, we will make — and find out what is going on, we will make a — and find out what is going on, we will make a plan. _ and find out what is going on, we will make a plan. dad _ and find out what is going on, we will make a plan. dad was - and find out what is going on, we will make a plan. dad was in i will make a plan. dad was in hospitat— will make a plan. dad was in hospital for— will make a plan. dad was in hospital for five _ will make a plan. dad was in hospital for five days, - will make a plan. dad was in hospital for five days, and i will make a plan. dad was inl hospital for five days, and we couldn't — hospital for five days, and we couldn't get _ hospital for five days, and we couldn't get a _ hospital for five days, and we couldn't get a ct— hospital for five days, and we couldn't get a ct scan - hospital for five days, and we | couldn't get a ct scan because hospital for five days, and we i couldn't get a ct scan because it was blocked. _ couldn't get a ct scan because it was blocked, things— couldn't get a ct scan because it was blocked, things were - couldn't get a ct scan because it i was blocked, things were incredibly stretched. — was blocked, things were incredibly stretched. they— was blocked, things were incredibly stretched, theyjust_ was blocked, things were incredibly stretched, theyjust couldn't - was blocked, things were incredibly stretched, theyjust couldn't get i was blocked, things were incredibly stretched, theyjust couldn't get a i stretched, theyjust couldn't get a scan _ stretched, they 'ust couldn't get a scan. . . , scan. yeah, tell me a little bit about that. — scan. yeah, tell me a little bit about that, chris. _ scan. yeah, tell me a little bit about that, chris. you - scan. yeah, tell me a little bit| about that, chris. you couldn't scan. yeah, tell me a little bit i about that, chris. you couldn't get about that, chris. you couldn't get a ct scan. you've touched on it. i just want to explore a little bit more, what did they say to you, why not? what was that like for you? they couldn't get him an appointment. _ they couldn't get him an appointment. they- they couldn't get him an i appointment. they couldn't physicallym _ appointment. they couldn't physically... at _ appointment. they couldn't physically... at one - appointment. they couldn't physically... at one point. appointment. they couldn't physically... at one point itj appointment. they couldn't - physically... at one point it was they— physically... at one point it was they couldn't _ physically... at one point it was they couldn't get _ physically... at one point it was they couldn't get people - physically... at one point it was they couldn't get people to - physically... at one point it was they couldn't get people to getl physically... at one point it was - they couldn't get people to get him in a chair— they couldn't get people to get him in a chairand — they couldn't get people to get him in a chair and wheel— they couldn't get people to get him in a chair and wheel him _ they couldn't get people to get him in a chair and wheel him down - they couldn't get people to get him in a chair and wheel him down the i in a chair and wheel him down the corridor_ in a chair and wheel him down the corridor to— in a chair and wheel him down the corridor to get _ in a chair and wheel him down the corridor to get the _ in a chair and wheel him down the corridor to get the scan _ in a chair and wheel him down the corridor to get the scan done. - in a chair and wheel him down the corridor to get the scan done. at i corridor to get the scan done. at other— corridor to get the scan done. at other times _ corridor to get the scan done. at other times they— corridor to get the scan done. at other times they said _ corridor to get the scan done. at other times they said the - corridor to get the scan done. at. other times they said the radiology department— other times they said the radiology department was_ other times they said the radiology department wasjust _ other times they said the radiology department was just too _ other times they said the radiology department was just too busy, - other times they said the radiology| department was just too busy, they couldrr't_ department was just too busy, they couldn't get — department was just too busy, they couldn't get him _ department was just too busy, they couldn't get him a _ department was just too busy, they couldn't get him a slot. _ couldn't get him a slot. unbelievably— couldn't get him a slot. i unbelievably frustrating. couldn't get him a slot. - unbelievably frustrating. without diverting — unbelievably frustrating. without diverting too _ unbelievably frustrating. without diverting too far, _
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unbelievably frustrating. without diverting too far, a _ unbelievably frustrating. without diverting too far, a difficult - unbelievably frustrating. without diverting too far, a difficult one l diverting too far, a difficult one for me. — diverting too far, a difficult one for me. we _ diverting too far, a difficult one for me. we as _ diverting too far, a difficult one for me, we as a _ diverting too far, a difficult one for me, we as a family- diverting too far, a difficult one for me, we as a family have - diverting too far, a difficult one - for me, we as a family have private heatth— for me, we as a family have private health care — for me, we as a family have private health care and _ for me, we as a family have private health care and i _ for me, we as a family have private health care and i was _ for me, we as a family have private health care and i was always - for me, we as a family have private . health care and i was always tempted by the _ health care and i was always tempted by the fact, _ health care and i was always tempted by the fact, we — health care and i was always tempted by the fact, we will— health care and i was always tempted by the fact, we will get _ health care and i was always tempted by the fact, we will get him _ health care and i was always tempted by the fact, we will get him down- health care and i was always tempted by the fact, we will get him down to i by the fact, we will get him down to the nearest — by the fact, we will get him down to the nearest private _ by the fact, we will get him down to the nearest private hospital- by the fact, we will get him down to the nearest private hospital and - by the fact, we will get him down to the nearest private hospital and wel the nearest private hospital and we will the nearest private hospital and we wittiust_ the nearest private hospital and we wittiust pay— the nearest private hospital and we wittiust bay and _ the nearest private hospital and we willjust pay and get _ the nearest private hospital and we willjust pay and get him _ the nearest private hospital and we willjust pay and get him a - the nearest private hospital and we willjust pay and get him a ct- the nearest private hospital and we willjust pay and get him a ct scanl willjust pay and get him a ct scan done, _ willjust pay and get him a ct scan done, but — willjust pay and get him a ct scan done, but we _ willjust pay and get him a ct scan done, but we spoke _ willjust pay and get him a ct scan done, but we spoke to _ willjust pay and get him a ct scan done, but we spoke to people, . done, but we spoke to people, friends, — done, but we spoke to people, friends, who— done, but we spoke to people, friends, who were _ done, but we spoke to people, friends, who were consultantsl done, but we spoke to people, . friends, who were consultants and sort of _ friends, who were consultants and sort of work — friends, who were consultants and sort of work in _ friends, who were consultants and sort of work in medicine _ friends, who were consultants and sort of work in medicine and - friends, who were consultants and sort of work in medicine and what| sort of work in medicine and what have _ sort of work in medicine and what have you — sort of work in medicine and what have you and _ sort of work in medicine and what have you and they— sort of work in medicine and what have you and they said, _ sort of work in medicine and what have you and they said, look, - sort of work in medicine and what i have you and they said, look, you're in the _ have you and they said, look, you're in the service, — have you and they said, look, you're in the service, you're _ have you and they said, look, you're in the service, you're in _ have you and they said, look, you're in the service, you're in the - have you and they said, look, you're in the service, you're in the nhs, i in the service, you're in the nhs, 'ust in the service, you're in the nhs, just let _ in the service, you're in the nhs, just let it— in the service, you're in the nhs, just let it progress, _ in the service, you're in the nhs, just let it progress, let _ in the service, you're in the nhs, just let it progress, let it- in the service, you're in the nhs, just let it progress, let it do- in the service, you're in the nhs, just let it progress, let it do whatj just let it progress, let it do what it needs — just let it progress, let it do what it needs to— just let it progress, let it do what it needs to do _ just let it progress, let it do what it needs to do. the _ just let it progress, let it do what it needs to do. the age—old - just let it progress, let it do whatl it needs to do. the age—old issue, if he _ it needs to do. the age—old issue, if he goes — it needs to do. the age—old issue, if he goes to— it needs to do. the age—old issue, if he goes to another— it needs to do. the age—old issue, if he goes to another hospital - it needs to do. the age—old issue, if he goes to another hospital and | if he goes to another hospital and -ets if he goes to another hospital and gets a _ if he goes to another hospital and gets a scan, — if he goes to another hospital and gets a scan, you _ if he goes to another hospital and gets a scan, you then— if he goes to another hospital and gets a scan, you then have - if he goes to another hospital and gets a scan, you then have to- if he goes to another hospital and gets a scan, you then have to get| if he goes to another hospital and i gets a scan, you then have to get it back across — gets a scan, you then have to get it back across to — gets a scan, you then have to get it back across to sort _ gets a scan, you then have to get it back across to sort of— gets a scan, you then have to get it back across to sort of university- back across to sort of university hospital — back across to sort of university hospital north— back across to sort of university hospital north durham - back across to sort of university hospital north durham and - back across to sort of university- hospital north durham and eventually -et it hospital north durham and eventually get it to _ hospital north durham and eventually get it to where — hospital north durham and eventually get it to where it — hospital north durham and eventually get it to where it is _ hospital north durham and eventually get it to where it is going _ hospital north durham and eventually get it to where it is going to— hospital north durham and eventually get it to where it is going to go, - get it to where it is going to go, so it— get it to where it is going to go, so it is— get it to where it is going to go, so it is frustrating, _ get it to where it is going to go, so it is frustrating, nicky. - get it to where it is going to go, so it is frustrating, nicky. it- get it to where it is going to go, so it is frustrating, nicky. it is. so it is frustrating, nicky. it is heartbreaking _ so it is frustrating, nicky. it is heartbreaking because - so it is frustrating, nicky. it is heartbreaking because you . so it is frustrating, nicky. it is| heartbreaking because you are looking — heartbreaking because you are looking at _ heartbreaking because you are looking at this _ heartbreaking because you are looking at this person, - heartbreaking because you are looking at this person, you - heartbreaking because you are looking at this person, you are heartbreaking because you are i looking at this person, you are by hook— looking at this person, you are by hook or— looking at this person, you are by hook or by— looking at this person, you are by hook or by crook _ looking at this person, you are by hook or by crook finding - looking at this person, you are by hook or by crook finding out - looking at this person, you are by. hook or by crook finding out because again— hook or by crook finding out because again staff— hook or by crook finding out because again staff are — hook or by crook finding out because again staff are so _ hook or by crook finding out because again staff are so stretched, - hook or by crook finding out because again staff are so stretched, they. again staff are so stretched, they have _ again staff are so stretched, they have a _ again staff are so stretched, they have a suspicion _ again staff are so stretched, they have a suspicion of— again staff are so stretched, they have a suspicion of something i again staff are so stretched, they. have a suspicion of something going on with— have a suspicion of something going on with his — have a suspicion of something going on with his lungs, _ have a suspicion of something going on with his lungs, and _ have a suspicion of something going on with his lungs, and a _ have a suspicion of something going on with his lungs, and a really- on with his lungs, and a really logical— on with his lungs, and a really logical kihd _ on with his lungs, and a really logical kind of _ on with his lungs, and a really logical kind of step _ on with his lungs, and a really logical kind of step with - on with his lungs, and a really. logical kind of step with anybody, on with his lungs, and a really- logical kind of step with anybody, i think. _ logical kind of step with anybody, i think, particularly— logical kind of step with anybody, i think, particularly when _ logical kind of step with anybody, i think, particularly when it - logical kind of step with anybody, i think, particularly when it is - think, particularly when it is somebody— think, particularly when it is somebody you _ think, particularly when it is somebody you love, - think, particularly when it is somebody you love, you - think, particularly when it is somebody you love, you try| think, particularly when it is - somebody you love, you try and dial down _ somebody you love, you try and dial down the _ somebody you love, you try and dial down the desperation _ somebody you love, you try and dial down the desperation and _ somebody you love, you try and dial down the desperation and just - somebody you love, you try and diall down the desperation and just think, right, _ down the desperation and just think, right, get— down the desperation and just think, right, get the— down the desperation and just think, right, get the scan _ down the desperation and just think, right, get the scan done, _ down the desperation and just think, right, get the scan done, whatever. right, get the scan done, whatever we do. _ right, get the scan done, whatever we do. get — right, get the scan done, whatever we do. get the _ right, get the scan done, whatever we do, get the scan _ right, get the scan done, whatever we do, get the scan done, - right, get the scan done, whatever we do, get the scan done, but - right, get the scan done, whatever|
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we do, get the scan done, but they didn't, _ we do, get the scan done, but they didn't, they— we do, get the scan done, but they didn't, they got _ we do, get the scan done, but they didn't, they got his _ we do, get the scan done, but they didn't, they got his 02 _ we do, get the scan done, but they didn't, they got his 02 levels - we do, get the scan done, but they didn't, they got his 02 levels backl didn't, they got his 02 levels back to where — didn't, they got his 02 levels back to where they _ didn't, they got his 02 levels back to where they needed _ didn't, they got his 02 levels back to where they needed to - didn't, they got his 02 levels back to where they needed to be, - didn't, they got his 02 levels back to where they needed to be, the i to where they needed to be, the saturation— to where they needed to be, the saturation levels, _ to where they needed to be, the saturation levels, sorry, - to where they needed to be, the saturation levels, sorry, they. saturation levels, sorry, they discharged _ saturation levels, sorry, they discharged him _ saturation levels, sorry, they discharged him from - saturation levels, sorry, theyl discharged him from hospital. saturation levels, sorry, they- discharged him from hospital. then it was~~~ _ discharged him from hospital. then it was~~~ it's— discharged him from hospital. then it was~~~ it'siust_ discharged him from hospital. then it was... it's just a _ discharged him from hospital. then it was... it's just a standard - it was... it's just a standard system, _ it was... it's just a standard system, will— it was... it's just a standard system, will send _ it was... it's just a standard system, will send you - it was... it's just a standard system, will send you a - it was... it's just a standard i system, will send you a letter, you'tt — system, will send you a letter, you'll have _ system, will send you a letter, you'll have an _ system, will send you a letter, you'll have an appointment - system, will send you a letter, you'll have an appointment for| system, will send you a letter, i you'll have an appointment for a system, will send you a letter, - you'll have an appointment for a ct scan: _ you'll have an appointment for a ct scan, it'll— you'll have an appointment for a ct scan, it'll be — you'll have an appointment for a ct scan, it'll be about _ you'll have an appointment for a ct scan, it'll be about two _ you'll have an appointment for a ct scan, it'll be about two weeks, - you'll have an appointment for a ct scan, it'll be about two weeks, you j scan, it'll be about two weeks, you know, _ scan, it'll be about two weeks, you know. we'll— scan, it'll be about two weeks, you know. we'll get _ scan, it'll be about two weeks, you know, we'll get you _ scan, it'll be about two weeks, you know, we'll get you back _ scan, it'll be about two weeks, you know, we'll get you back in - scan, it'll be about two weeks, you know, we'll get you back in and - scan, it'll be about two weeks, you | know, we'll get you back in and see what _ know, we'll get you back in and see what your— know, we'll get you back in and see what your scah _ know, we'll get you back in and see what your scan tells _ know, we'll get you back in and see what your scan tells us. _ know, we'll get you back in and see what your scan tells us. so - know, we'll get you back in and see what your scan tells us. so that - what your scan tells us. so that happened — what your scan tells us. so that happened two _ what your scan tells us. so that happened two weeks _ what your scan tells us. so that happened two weeks later - what your scan tells us. so that happened two weeks later and i what your scan tells us. so that - happened two weeks later and then they get— happened two weeks later and then they get the — happened two weeks later and then they get the results _ happened two weeks later and then they get the results but _ happened two weeks later and then they get the results but of- happened two weeks later and then they get the results but of course . they get the results but of course they get the results but of course they can't — they get the results but of course they can't discuss _ they get the results but of course they can't discuss it _ they get the results but of course they can't discuss it on _ they get the results but of course they can't discuss it on the - they can't discuss it on the radiology— they can't discuss it on the radiology department. - they can't discuss it on the radiology department. it . they can't discuss it on the l radiology department. it has they can't discuss it on the - radiology department. it has to go to the _ radiology department. it has to go to the consultant _ radiology department. it has to go to the consultant that's _ radiology department. it has to go to the consultant that's on - radiology department. it has to go to the consultant that's on dad - radiology department. it has to go to the consultant that's on dad inl to the consultant that's on dad in hospital— to the consultant that's on dad in hospital and _ to the consultant that's on dad in hospital and you _ to the consultant that's on dad in hospital and you are _ to the consultant that's on dad in hospital and you are waiting - to the consultant that's on dad in hospital and you are waiting on . hospital and you are waiting on another— hospital and you are waiting on another letter, _ hospital and you are waiting on another letter, another - hospital and you are waiting on - another letter, another appointment, so four— another letter, another appointment, so four weeks — another letter, another appointment, so four weeks progressed _ another letter, another appointment, so four weeks progressed after- another letter, another appointment, so four weeks progressed after he - so four weeks progressed after he had been — so four weeks progressed after he had been discharged _ so four weeks progressed after he had been discharged from - so four weeks progressed after he| had been discharged from hospital without— had been discharged from hospital without him — had been discharged from hospital without him having _ had been discharged from hospital without him having had _ had been discharged from hospital without him having had that- had been discharged from hospital without him having had that scan i had been discharged from hospital. without him having had that scan and actually _ without him having had that scan and actually finding — without him having had that scan and actually finding out _ without him having had that scan and actually finding out what _ without him having had that scan and actually finding out what this - actually finding out what this suspicion _ actually finding out what this suspicion around _ actually finding out what this suspicion around his - actually finding out what this suspicion around his lungs i actually finding out what this i suspicion around his lungs was. actually finding out what this - suspicion around his lungs was. then he had _ suspicion around his lungs was. then he had gone — suspicion around his lungs was. then he had gone home, _ suspicion around his lungs was. then he had gone home, made _ suspicion around his lungs was. then he had gone home, made his - suspicion around his lungs was. then he had gone home, made his way. suspicion around his lungs was. then he had gone home, made his way to| he had gone home, made his way to the appointments _ he had gone home, made his way to the appointments with _ he had gone home, made his way to the appointments with our— he had gone home, made his way to the appointments with our help, - he had gone home, made his way to the appointments with our help, we | the appointments with our help, we could _ the appointments with our help, we could see _ the appointments with our help, we could see him — the appointments with our help, we could see him getting _ the appointments with our help, we could see him getting worse, - the appointments with our help, we | could see him getting worse, nicky, and that's— could see him getting worse, nicky, and that's iust — could see him getting worse, nicky, and that'sjust awful— could see him getting worse, nicky, and that's just awful to _ could see him getting worse, nicky, and that's just awful to see - and that's just awful to see because, _ and that's just awful to see because, again, _ and that's just awful to see because, again, as- and that's just awful to see because, again, as i- and that's just awful to see because, again, as i said . and that's just awful to see - because, again, as i said before that, _ because, again, as i said before that, this — because, again, as i said before that, this guy— because, again, as i said before that, this guy was _ because, again, as i said before that, this guy was laying - because, again, as i said before that, this guy was laying bricksl because, again, as i said before. that, this guy was laying bricks in the north—east _ that, this guy was laying bricks in the north—east of _ that, this guy was laying bricks in the north—east of england, - that, this guy was laying bricks in the north—east of england, fit- that, this guy was laying bricks in| the north—east of england, fit and healthy— the north—east of england, fit and healthy chap~ _ the north—east of england, fit and
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healthy chap. we _ the north—east of england, fit and healthy chap. we got _ the north—east of england, fit and healthy chap. we got him - the north—east of england, fit and healthy chap. we got him back. the north—east of england, fit and healthy chap. we got him back in| healthy chap. we got him back in front— healthy chap. we got him back in front of— healthy chap. we got him back in front of the — healthy chap. we got him back in front of the consultant _ healthy chap. we got him back in front of the consultant and - healthy chap. we got him back in front of the consultant and the i front of the consultant and the consultant _ front of the consultant and the consultant said, _ front of the consultant and the consultant said, look, - front of the consultant and the consultant said, look, you - front of the consultant and the . consultant said, look, you know, stage _ consultant said, look, you know, stage four— consultant said, look, you know, stage four cancer. _ consultant said, look, you know, stage four cancer. primarily, - consultant said, look, you know, stage four cancer. primarily, it. consultant said, look, you know, . stage four cancer. primarily, it was in his— stage four cancer. primarily, it was in his kidney. — stage four cancer. primarily, it was in his kidney. but _ stage four cancer. primarily, it was in his kidney, but it— stage four cancer. primarily, it was in his kidney, but it has— in his kidney, but it has metastasised _ in his kidney, but it has metastasised to - in his kidney, but it has metastasised to your. in his kidney, but it has. metastasised to your lungs in his kidney, but it has- metastasised to your lungs and in his kidney, but it has— metastasised to your lungs and in your hip _ metastasised to your lungs and in your hip as— metastasised to your lungs and in your hip as well, _ metastasised to your lungs and in your hip as well, but _ metastasised to your lungs and in your hip as well, but don't - metastasised to your lungs and in your hip as well, but don't worry, | your hip as well, but don't worry, immunotherapy. _ your hip as well, but don't worry, immunotherapy, targeted - your hip as well, but don't worry, i immunotherapy, targeted therapy, there _ immunotherapy, targeted therapy, there are _ immunotherapy, targeted therapy, there are incredible _ immunotherapy, targeted therapy, there are incredible things - immunotherapy, targeted therapy, there are incredible things we - immunotherapy, targeted therapy, there are incredible things we can. there are incredible things we can do now _ there are incredible things we can do now the — there are incredible things we can do now. the macmillan— there are incredible things we can do now. the macmillan nurses . there are incredible things we can- do now. the macmillan nurses dropped in and _ do now. the macmillan nurses dropped in and they— do now. the macmillan nurses dropped in and they were — do now. the macmillan nurses dropped in and they were incredible _ do now. the macmillan nurses dropped in and they were incredible as - do now. the macmillan nurses dropped in and they were incredible as well - in and they were incredible as well and they— in and they were incredible as well and they gave _ in and they were incredible as well and they gave us _ in and they were incredible as well and they gave us hope. _ in and they were incredible as well and they gave us hope. 0k, - in and they were incredible as well and they gave us hope. 0k, we . in and they were incredible as well . and they gave us hope. 0k, we were looking _ and they gave us hope. 0k, we were looking at— and they gave us hope. 0k, we were looking at a — and they gave us hope. 0k, we were looking at a cancer— and they gave us hope. 0k, we were looking at a cancerjourney_ and they gave us hope. 0k, we were looking at a cancerjourney with - and they gave us hope. 0k, we were looking at a cancerjourney with dad i looking at a cancerjourney with dad and thinking, — looking at a cancerjourney with dad and thinking, we _ looking at a cancerjourney with dad and thinking, we will— looking at a cancerjourney with dad and thinking, we will give _ looking at a cancerjourney with dad and thinking, we will give it- looking at a cancerjourney with dad and thinking, we will give it our- and thinking, we will give it our best— and thinking, we will give it our best shot. _ and thinking, we will give it our best shot, and _ and thinking, we will give it our best shot, and he _ and thinking, we will give it our best shot, and he was - and thinking, we will give it our best shot, and he was up - and thinking, we will give it our best shot, and he was up for. and thinking, we will give it our best shot, and he was up for it| and thinking, we will give it our. best shot, and he was up for it as wett~ _ best shot, and he was up for it as wett~ then — best shot, and he was up for it as well. then because _ best shot, and he was up for it as well. then because of— best shot, and he was up for it as well. then because of the - best shot, and he was up for it as well. then because of the four. best shot, and he was up for it as . well. then because of the four week delay— well. then because of the four week detay he _ well. then because of the four week detay he was— well. then because of the four week detay he was iust _ well. then because of the four week delay he was just increasingly - well. then because of the four week delay he was just increasingly more | delay he was just increasingly more and more _ delay he was just increasingly more and more frail— delay he was just increasingly more and more frail and _ delay he was just increasingly more and more frailand i— delay he was just increasingly more and more frail and i think— delay he was just increasingly more and more frail and i think within - and more frail and i think within three _ and more frail and i think within three days — and more frail and i think within three days of— and more frail and i think within three days of his _ and more frail and i think within three days of his diagnosis... i and more frail and i think within i three days of his diagnosis... had his birthday— three days of his diagnosis... had his birthday at _ three days of his diagnosis... had his birthday at home _ three days of his diagnosis... had his birthday at home and - three days of his diagnosis... had his birthday at home and then - three days of his diagnosis... had his birthday at home and then he| his birthday at home and then he took— his birthday at home and then he took iti— his birthday at home and then he took iii again _ his birthday at home and then he took ill again and _ his birthday at home and then he took ill again and went _ his birthday at home and then he took ill again and went back - his birthday at home and then he took ill again and went back intol took ill again and went back into hospitat~ — took ill again and went back into hospitat~ and _ took ill again and went back into hospital. and ultimately... - took ill again and went back into hospital. and ultimately... in. hospital. and ultimately... in december, _ hospital. and ultimately... in december, left— hospital. and ultimately... in december, left to _ hospital. and ultimately... in december, left to come - hospital. and ultimately... ini december, left to come home hospital. and ultimately... in- december, left to come home and die. he was— december, left to come home and die. he was never— december, left to come home and die. he was never well— december, left to come home and die. he was never well enough— december, left to come home and die. he was never well enough for- he was never well enough for treatment _ he was never well enough for treatment. it _ he was never well enough for treatment. it was _ he was never well enough for
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treatment. it was an - he was never well enough for. treatment. it was an aggressive cancer. _ treatment. it was an aggressive cancer. he — treatment. it was an aggressive cancer. he was _ treatment. it was an aggressive cancer. he was never— treatment. it was an aggressive cancer. he was never well- treatment. it was an aggressive . cancer. he was never well enough treatment. it was an aggressive - cancer. he was never well enough to -et cancer. he was never well enough to get that— cancer. he was never well enough to get that treatment _ cancer. he was never well enough to get that treatment and _ cancer. he was never well enough to get that treatment and that - cancer. he was never well enough to get that treatment and that is - cancer. he was never well enough to get that treatment and that is a - get that treatment and that is a real source _ get that treatment and that is a real source of— get that treatment and that is a real source of frustration - get that treatment and that is a l real source of frustration because we would — real source of frustration because we would have _ real source of frustration because we would have liked _ real source of frustration because we would have liked to _ real source of frustration because we would have liked to have - real source of frustration because we would have liked to have hadl real source of frustration becausel we would have liked to have had a chance _ we would have liked to have had a chance and — we would have liked to have had a chance and we _ we would have liked to have had a chance and we didn't _ we would have liked to have had a chance and we didn't get - we would have liked to have had a chance and we didn't get the - we would have liked to have had a i chance and we didn't get the chance and i_ chance and we didn't get the chance and i think. — chance and we didn't get the chance and i think. you _ chance and we didn't get the chance and i think, you know, _ chance and we didn't get the chance and i think, you know, i— chance and we didn't get the chance and i think, you know, i mentionedl and i think, you know, i mentioned to the _ and i think, you know, i mentioned to the editor— and i think, you know, i mentioned to the editor before _ and i think, you know, i mentioned to the editor before i— and i think, you know, i mentioned to the editor before i came - and i think, you know, i mentioned to the editor before i came on, - and i think, you know, i mentioned to the editor before i came on, i. to the editor before i came on, i have _ to the editor before i came on, i have no— to the editor before i came on, i have no criticism _ to the editor before i came on, i have no criticism of— to the editor before i came on, i have no criticism of the - to the editor before i came on, i have no criticism of the nhs, i to the editor before i came on, i. have no criticism of the nhs, they are spectacular, _ have no criticism of the nhs, they are spectacular, despite _ have no criticism of the nhs, they are spectacular, despite this, - have no criticism of the nhs, they are spectacular, despite this, the| are spectacular, despite this, the oncologist— are spectacular, despite this, the oncologist at _ are spectacular, despite this, the oncologist at the _ are spectacular, despite this, the oncologist at the end, _ are spectacular, despite this, the oncologist at the end, who - are spectacular, despite this, the oncologist at the end, who is - are spectacular, despite this, the oncologist at the end, who is to i oncologist at the end, who is to look— oncologist at the end, who is to look at — oncologist at the end, who is to look at with— oncologist at the end, who is to look at with absolute _ oncologist at the end, who is to look at with absolute reverence | look at with absolute reverence because — look at with absolute reverence because his _ look at with absolute reverence because his bed _ look at with absolute reverence because his bed manner, - look at with absolute reverence because his bed manner, his. look at with absolute reverence - because his bed manner, his nature, wasjust— because his bed manner, his nature, wasjust phenomenal, _ because his bed manner, his nature, wasjust phenomenal, and _ because his bed manner, his nature, wasjust phenomenal, and he - because his bed manner, his nature, wasjust phenomenal, and he had i because his bed manner, his nature, wasjust phenomenal, and he had a. wasjust phenomenal, and he had a chat with _ wasjust phenomenal, and he had a chat with dad — wasjust phenomenal, and he had a chat with dad and _ wasjust phenomenal, and he had a chat with dad and said, _ wasjust phenomenal, and he had a chat with dad and said, look, - wasjust phenomenal, and he had a chat with dad and said, look, it's i chat with dad and said, look, it's too late, — chat with dad and said, look, it's too late. you're _ chat with dad and said, look, it's too late, you're too _ chat with dad and said, look, it's too late, you're too ill— chat with dad and said, look, it's too late, you're too ill and - chat with dad and said, look, it's too late, you're too ill and we i too late, you're too ill and we can't — too late, you're too ill and we can't give _ too late, you're too ill and we can't give you _ too late, you're too ill and we can't give you any— too late, you're too ill and we can't give you any treatment, j too late, you're too ill and we - can't give you any treatment, and i'm can't give you any treatment, and l'm really— can't give you any treatment, and i'm really sorry _ can't give you any treatment, and i'm really sorry about _ can't give you any treatment, and i'm really sorry about that. - can't give you any treatment, and i'm really sorry about that. you i i'm really sorry about that. you shouldn't — i'm really sorry about that. you shouldn't have _ i'm really sorry about that. you shouldn't have happened. - i'm really sorry about that. you shouldn't have happened. we i shouldn't have happened. we shouldn't— shouldn't have happened. we shouldn't have _ shouldn't have happened. we shouldn't have had _ shouldn't have happened. we shouldn't have had that- shouldn't have happened. we shouldn't have had that week| shouldn't have happened. we . shouldn't have had that week in hospital— shouldn't have had that week in hospital where _ shouldn't have had that week in hospital where you _ shouldn't have had that week in hospital where you didn't - shouldn't have had that week in hospital where you didn't get i shouldn't have had that week in| hospital where you didn't get the scan: _ hospital where you didn't get the scan. and — hospital where you didn't get the scan, and then— hospital where you didn't get the scan, and then the _ hospital where you didn't get the scan, and then the four- hospital where you didn't get the scan, and then the four weeks, i hospital where you didn't get the. scan, and then the four weeks, by that 5— scan, and then the four weeks, by that 5 weeks— scan, and then the four weeks, by that .5 weeks had _ scan, and then the four weeks, by that .5 weeks had elapsed, - scan, and then the four weeks, by that .5 weeks had elapsed, and i scan, and then the four weeks, by. that .5 weeks had elapsed, and you were _ that .5 weeks had elapsed, and you were never— that .5 weeks had elapsed, and you were never well— that .5 weeks had elapsed, and you were never well enough— that .5 weeks had elapsed, and you were never well enough on- that .5 weeks had elapsed, and you were never well enough on the - that .5 weeks had elapsed, and you| were never well enough on the scale were never well enough on the scale we would _ were never well enough on the scale we would sort — were never well enough on the scale we would sort of _ were never well enough on the scale we would sort of assess _ were never well enough on the scale we would sort of assess you - were never well enough on the scale we would sort of assess you want. were never well enough on the scale we would sort of assess you want to| we would sort of assess you want to begin— we would sort of assess you want to begin this _ we would sort of assess you want to begin this immunotherapy - we would sort of assess you want to begin this immunotherapy and - begin this immunotherapy and targeted — begin this immunotherapy and targeted treatment, _ begin this immunotherapy and targeted treatment, so - begin this immunotherapy and targeted treatment, so he - begin this immunotherapy and - targeted treatment, so he actually apologised — targeted treatment, so he actually apologised before _ targeted treatment, so he actually apologised before dad _ targeted treatment, so he actually apologised before dad died, - targeted treatment, so he actually apologised before dad died, and l targeted treatment, so he actually apologised before dad died, and ii apologised before dad died, and i guess— apologised before dad died, and i guess that's — apologised before dad died, and i guess that's the _ apologised before dad died, and i guess that's the story, _ apologised before dad died, and i guess that's the story, there - apologised before dad died, and i guess that's the story, there is i
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apologised before dad died, and i| guess that's the story, there is no resentment. — guess that's the story, there is no resentment, there _ guess that's the story, there is no resentment, there is— guess that's the story, there is no resentment, there is no— guess that's the story, there is no resentment, there is no anger- guess that's the story, there is no resentment, there is no anger on| guess that's the story, there is no i resentment, there is no anger on our part _ resentment, there is no anger on our part we _ resentment, there is no anger on our part we are — resentment, there is no anger on our part we are huge _ resentment, there is no anger on our part. we are huge fans... _ resentment, there is no anger on our part. we are huge fans... a - part. we are huge fans... a ridiculous— part. we are huge fans... a ridiculous thing _ part. we are huge fans... a ridiculous thing to - part. we are huge fans... a ridiculous thing to say, - part. we are huge fans... a ridiculous thing to say, but| ridiculous thing to say, but everybody _ ridiculous thing to say, but everybody is _ ridiculous thing to say, but everybody is a _ ridiculous thing to say, but everybody is a fan - ridiculous thing to say, but everybody is a fan of - ridiculous thing to say, but everybody is a fan of the l ridiculous thing to say, but - everybody is a fan of the nhs, but he was _ everybody is a fan of the nhs, but he wasjust— everybody is a fan of the nhs, but he wasjust really— everybody is a fan of the nhs, but he was just really unlucky- everybody is a fan of the nhs, but he was just really unlucky and - everybody is a fan of the nhs, but he was just really unlucky and it. everybody is a fan of the nhs, but he wasjust really unlucky and it isj he wasjust really unlucky and it is wonderful— he wasjust really unlucky and it is wonderful to — he wasjust really unlucky and it is wonderful to hear, _ he wasjust really unlucky and it is wonderful to hear, just _ he wasjust really unlucky and it is wonderful to hear, just to - he wasjust really unlucky and it is wonderful to hear, just to book. he was just really unlucky and it is. wonderful to hear, just to book end the story. _ wonderful to hear, just to book end the story. i— wonderful to hear, just to book end the story, i know— wonderful to hear, just to book end the story, i know i _ wonderful to hear, just to book end the story, i know i am _ wonderful to hear, just to book end the story, i know i am taking - wonderful to hear, just to book end the story, i know i am taking up. wonderful to hear, just to book end the story, i know i am taking up a l the story, i know i am taking up a lot of— the story, i know i am taking up a lot of time. — the story, i know i am taking up a lot of time, but _ the story, i know i am taking up a lot of time, but i— the story, i know i am taking up a lot of time, but i had _ the story, i know i am taking up a lot of time, but i had a _ the story, i know i am taking up a lot of time, but i had a chest - lot of time, but i had a chest infection— lot of time, but i had a chest infection about _ lot of time, but i had a chest infection about a _ lot of time, but i had a chest infection about a month - lot of time, but i had a chest infection about a month agoi lot of time, but i had a chest. infection about a month ago and lot of time, but i had a chest - infection about a month ago and it had sat— infection about a month ago and it had sat there _ infection about a month ago and it had sat there for _ infection about a month ago and it had sat there for a _ infection about a month ago and it had sat there for a while, - infection about a month ago and it had sat there for a while, and - infection about a month ago and it had sat there for a while, and it. had sat there for a while, and it hadn't — had sat there for a while, and it hadn't moved _ had sat there for a while, and it hadn't moved to _ had sat there for a while, and it hadn't moved to my— had sat there for a while, and it hadn't moved to my gp- had sat there for a while, and it hadn't moved to my gp said, i hadn't moved to my gp said, right, to the _ hadn't moved to my gp said, right, to the hospital. _ hadn't moved to my gp said, right, to the hospital, we _ hadn't moved to my gp said, right, to the hospital, we will— hadn't moved to my gp said, right, to the hospital, we will get - hadn't moved to my gp said, right, to the hospital, we will get you - hadn't moved to my gp said, right, to the hospital, we will get you a l to the hospital, we will get you a scan _ to the hospital, we will get you a scan on — to the hospital, we will get you a scan on your— to the hospital, we will get you a scan on your chest, _ to the hospital, we will get you a scan on your chest, i _ to the hospital, we will get you a scan on your chest, ithink- to the hospital, we will get you a scan on your chest, i think it - to the hospital, we will get you a scan on your chest, i think it was an x-ray. — scan on your chest, i think it was an x-ray. we _ scan on your chest, i think it was an x-ray. we will— scan on your chest, i think it was an x—ray, we will get _ scan on your chest, i think it was an x—ray, we will get a _ scan on your chest, i think it was an x—ray, we will get a look- scan on your chest, i think it was an x—ray, we will get a look andl an x—ray, we will get a look and make _ an x—ray, we will get a look and make sure _ an x—ray, we will get a look and make sure there _ an x—ray, we will get a look and make sure there is— an x—ray, we will get a look and make sure there is nothing - an x—ray, we will get a look and l make sure there is nothing there. you have — make sure there is nothing there. you have a — make sure there is nothing there. you have a family _ make sure there is nothing there. you have a family history- make sure there is nothing there. you have a family history now. i make sure there is nothing there. | you have a family history now. he said. _ you have a family history now. he said. "don't— you have a family history now. he said, "don't worry, _ you have a family history now. he said, "don't worry, you _ you have a family history now. he said, "don't worry, you won't - you have a family history now. he | said, "don't worry, you won't need to wait— said, "don't worry, you won't need to wait for— said, "don't worry, you won't need to wait for an — said, "don't worry, you won't need to wait for an appointment" - said, "don't worry, you won't need to wait for an appointment", - said, "don't worry, you won't need to wait for an appointment", and l to wait for an appointment", and this was— to wait for an appointment", and this was at— to wait for an appointment", and this was at the _ to wait for an appointment", and this was at the same _ to wait for an appointment", and this was at the same hospital - to wait for an appointment", and i this was at the same hospital where dad couldn't— this was at the same hospital where dad couldn't get— this was at the same hospital where dad couldn't get his _ this was at the same hospital where dad couldn't get his scan, _ this was at the same hospital where dad couldn't get his scan, and - this was at the same hospital where dad couldn't get his scan, and i- dad couldn't get his scan, and i guess— dad couldn't get his scan, and i guess this _ dad couldn't get his scan, and i guess this is _ dad couldn't get his scan, and i guess this is progress - dad couldn't get his scan, and i guess this is progress and - dad couldn't get his scan, and i- guess this is progress and something i guess this is progress and something i should _ guess this is progress and something ishouid be _ guess this is progress and something i should be thankful— guess this is progress and something i should be thankful for— guess this is progress and something i should be thankful for everybody. i should be thankful for everybody else who's — i should be thankful for everybody else who's going _ i should be thankful for everybody else who's going to _ i should be thankful for everybody else who's going to hit _ i should be thankful for everybody else who's going to hit the - i should be thankful for everybody else who's going to hit the nhs i i should be thankful for everybody. else who's going to hit the nhs and will require — else who's going to hit the nhs and will require treatment, _ else who's going to hit the nhs and will require treatment, they- else who's going to hit the nhs and will require treatment, they said, . will require treatment, they said, "just _ will require treatment, they said, "just go. — will require treatment, they said, "just go. we've _ will require treatment, they said, "just go, we've now— will require treatment, they said, "just go, we've now got - will require treatment, they said, "just go, we've now got a - will require treatment, they said, "just go, we've now got a clinic. "just go, we've now got a clinic that_ "just go, we've now got a clinic that runs — "just go, we've now got a clinic that runs monday— "just go, we've now got a clinic that runs monday to _ "just go, we've now got a clinic that runs monday to friday- "just go, we've now got a clinici that runs monday to friday 9—5, "just go, we've now got a clinic- that runs monday to friday 9—5, just turn up _ that runs monday to friday 9—5, just turn up and — that runs monday to friday 9—5, just turn up and you _ that runs monday to friday 9—5, just turn up and you will— that runs monday to friday 9—5, just turn up and you will get _ that runs monday to friday 9—5, just turn up and you will get seen- that runs monday to friday 9—5, just turn up and you will get seen there i turn up and you will get seen there and then" — turn up and you will get seen there and then", — turn up and you will get seen there and then", and— turn up and you will get seen there and then", and i— turn up and you will get seen there and then", and i kind _ turn up and you will get seen there and then", and i kind of— turn up and you will get seen there and then", and i kind of came - turn up and you will get seen there and then", and i kind of came out. turn up and you will get seen there i and then", and i kind of came out of the gp_
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and then", and i kind of came out of the gp practice _ and then", and i kind of came out of the gp practice and _ and then", and i kind of came out of the gp practice and thought, - and then", and i kind of came out of the gp practice and thought, isn't. the gp practice and thought, isn't that ironic? — the gp practice and thought, isn't that ironic? had _ the gp practice and thought, isn't that ironic? had that— the gp practice and thought, isn't that ironic? had that service - the gp practice and thought, isn't that ironic? had that service have been _ that ironic? had that service have been there — that ironic? had that service have been there september— that ironic? had that service have been there september of- that ironic? had that service have been there september of last - that ironic? had that service have i been there september of last year, dad would — been there september of last year, dad would have _ been there september of last year, dad would have got _ been there september of last year, dad would have got to _ been there september of last year, dad would have got to it _ been there september of last year, dad would have got to it and - been there september of last year, dad would have got to it and he - dad would have got to it and he would _ dad would have got to it and he would have _ dad would have got to it and he would have been— dad would have got to it and he would have been here, - dad would have got to it and he would have been here, but - dad would have got to it and he| would have been here, but there dad would have got to it and he - would have been here, but there we are. would have been here, but there we are thats— would have been here, but there we are that's the — would have been here, but there we are. that's the story. _ would have been here, but there we are. that's the story.— are. that's the story. don't worry about taking _ are. that's the story. don't worry about taking on _ are. that's the story. don't worry about taking up time _ are. that's the story. don't worry about taking up time because - are. that's the story. don't worry | about taking up time because this are. that's the story. don't worry i about taking up time because this is so important. what was the like for him? it so important. what was the like for him? . . so important. what was the like for him? ., , ., , ., , so important. what was the like for him? ., , , him? it was... he was really stoic. m dad him? it was... he was really stoic. my dad was _ him? it was... he was really stoic. my dad was a _ him? it was... he was really stoic. my dad was a guy. _ him? it was. .. he was really stoic. my dad was a guy, if— him? it was... he was really stoic. my dad was a guy, if you _ him? it was... he was really stoic. my dad was a guy, if you have - him? it was... he was really stoic. | my dad was a guy, if you have ever seen _ my dad was a guy, if you have ever seen the _ my dad was a guy, if you have ever seen the film — my dad was a guy, if you have ever seen the film billy— my dad was a guy, if you have ever seen the film billy elliot, _ my dad was a guy, if you have ever seen the film billy elliot, he - my dad was a guy, if you have ever seen the film billy elliot, he was i my dad was a guy, if you have ever seen the film billy elliot, he was a | seen the film billy elliot, he was a colliery— seen the film billy elliot, he was a colliery guy — seen the film billy elliot, he was a colliery guy he _ seen the film billy elliot, he was a colliery guy he was _ seen the film billy elliot, he was a colliery guy he was just _ seen the film billy elliot, he was a j colliery guy he was just incredible. he took— colliery guy he was just incredible. he took it — colliery guy he was just incredible. he took it all — colliery guy he was just incredible. he took it all in _ colliery guy he was just incredible. he took it all in his— colliery guy he was just incredible. he took it all in his stride. - colliery guy he was just incredible. he took it all in his stride. took. he took it all in his stride. took it all— he took it all in his stride. took it all in— he took it all in his stride. took it all in his _ he took it all in his stride. took it all in his stride, _ he took it all in his stride. took it all in his stride, he _ he took it all in his stride. took it all in his stride, he never- it all in his stride, he never complained, _ it all in his stride, he never complained, never- it all in his stride, he never complained, never griped,| it all in his stride, he never- complained, never griped, never pointed — complained, never griped, never pointed anything _ complained, never griped, never pointed anything at _ complained, never griped, never pointed anything at anybody - complained, never griped, never pointed anything at anybody or. pointed anything at anybody or anything — pointed anything at anybody or anything about _ pointed anything at anybody or anything about the _ pointed anything at anybody or anything about the nhs, - pointed anything at anybody or anything about the nhs, he i pointed anything at anybody or. anything about the nhs, he just pointed anything at anybody or- anything about the nhs, he just took it in his _ anything about the nhs, he just took it in his stride — anything about the nhs, he just took it in his stride and _ anything about the nhs, he just took it in his stride and even _ anything about the nhs, he just took it in his stride and even at _ anything about the nhs, he just took it in his stride and even at the - it in his stride and even at the very— it in his stride and even at the very end. _ it in his stride and even at the very end. you— it in his stride and even at the very end, you know, - it in his stride and even at the very end, you know, with- it in his stride and even at the very end, you know, with the| very end, you know, with the oncologist. _ very end, you know, with the oncologist, he _ very end, you know, with the oncologist, he thanked - very end, you know, with the oncologist, he thanked him, i very end, you know, with the . oncologist, he thanked him, you know _ oncologist, he thanked him, you know no — oncologist, he thanked him, you know no anger, _ oncologist, he thanked him, you know. no anger, no— oncologist, he thanked him, you know. no anger, no real- oncologist, he thanked him, you - know. no anger, no real frustration. i'm know. no anger, no real frustration. in not— know. no anger, no real frustration. in not sure — know. no anger, no real frustration. in not sure i— know. no anger, no real frustration. i'm not sure i would _ know. no anger, no real frustration. i'm not sure i would have _ know. no anger, no real frustration. i'm not sure i would have been- know. no anger, no real frustration. i'm not sure i would have been the i i'm not sure i would have been the same: _ i'm not sure i would have been the sanre. i'll— i'm not sure i would have been the sanre. i'll be—
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i'm not sure i would have been the same, i'll be honest, _ i'm not sure i would have been the same, i'll be honest, but- i'm not sure i would have been the same, i'll be honest, but maybe i i'm not sure i would have been the. same, i'll be honest, but maybe i'm not as— same, i'll be honest, but maybe i'm not as good — same, i'll be honest, but maybe i'm not as good a — same, i'll be honest, but maybe i'm not as good a person _ same, i'll be honest, but maybe i'm not as good a person as _ same, i'll be honest, but maybe i'm not as good a person as he - same, i'll be honest, but maybe i'm not as good a person as he was. - same, i'll be honest, but maybe i'm not as good a person as he was. i i not as good a person as he was. i think— not as good a person as he was. i think i_ not as good a person as he was. i think i probably— not as good a person as he was. i think i probably would _ not as good a person as he was. i think i probably would have - not as good a person as he was. i think i probably would have felt . not as good a person as he was. i i think i probably would have felt let down _ think i probably would have felt let down and — think i probably would have felt let down and frustrated, _ think i probably would have felt let down and frustrated, and - think i probably would have felt let down and frustrated, and a - think i probably would have felt let down and frustrated, and a lot - down and frustrated, and a lot younger~ — down and frustrated, and a lot younger~ my— down and frustrated, and a lot younger~ my dad _ down and frustrated, and a lot younger. my dad was - down and frustrated, and a lot younger. my dad was 71, - down and frustrated, and a lot younger. my dad was 71, he i down and frustrated, and a lot i younger. my dad was 71, he was stoic, _ younger. my dad was 71, he was stoic, he — younger. my dad was 71, he was stoic, he was— younger. my dad was 71, he was stoic, he was just _ younger. my dad was 71, he was stoic, he was just accepting - younger. my dad was 71, he was stoic, he wasjust accepting of. younger. my dad was 71, he wasl stoic, he wasjust accepting of it. he is— stoic, he wasjust accepting of it. he is a _ stoic, he wasjust accepting of it. he is a big — stoic, he wasjust accepting of it. he is a big mess, _ stoic, he wasjust accepting of it. he is a big mess, a— stoic, he wasjust accepting of it. he is a big mess, a real- stoic, he wasjust accepting of it. he is a big mess, a real mess. i stoic, he wasjust accepting of it. i he is a big mess, a real mess. he sounds he is a big mess, a real mess. sounds like a great man. thank he is a big mess, a real mess.- sounds like a great man. thank you sounds like a great man. thank you so much, chris. —— he is a big miss, a real miss. do you want to come on, jullien? a real miss. do you want to come on, jullien? ., , ., , , ., . jullien? that story is tragic, it really is. _ jullien? that story is tragic, it really is, and _ jullien? that story is tragic, it really is, and my— jullien? that story is tragic, it really is, and my heart- jullien? that story is tragic, it really is, and my heart goes l jullien? that story is tragic, it l really is, and my heart goes out jullien? that story is tragic, it - really is, and my heart goes out to chris— really is, and my heart goes out to chris and _ really is, and my heart goes out to chris and his — really is, and my heart goes out to chris and his family. that is what we are _ chris and his family. that is what we are talking about at the sharp end _ we are talking about at the sharp end i_ we are talking about at the sharp end i give — we are talking about at the sharp end. i give you the figures and we can talk— end. i give you the figures and we can talk about that in abstract terms — can talk about that in abstract terms but that gives you the sharp end of— terms but that gives you the sharp end of what patients, their relatives and the doctor is trying to treat — relatives and the doctor is trying to treat them are dealing with. it really. _ to treat them are dealing with. it really, really is a situation that we don't — really, really is a situation that we don't want to be in, we really need _ we don't want to be in, we really need investment in the workforce, we really— need investment in the workforce, we really want _ need investment in the workforce, we really want to help people. i think that is—
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really want to help people. i think that is unfortunately encapsulating the problem in one tragic case. that's— the problem in one tragic case. that's what gets me up in the morning, coming in and hearing people talking about this at the sharp income as we say. taste people talking about this at the sharp income as we say. we want to cive the sharp income as we say. we want to give the treatment. _ sharp income as we say. we want to give the treatment. ailsa, _ sharp income as we say. we want to give the treatment. ailsa, are - sharp income as we say. we want to give the treatment. ailsa, are you? | give the treatment. ailsa, are you? i am 0k, give the treatment. ailsa, are you? lam 0k. thank— give the treatment. ailsa, are you? i am 0k, thank you. _ give the treatment. ailsa, are you? i am 0k, thank you. not _ give the treatment. ailsa, are you? i am 0k, thank you. not too - give the treatment. ailsa, are you? i am 0k, thank you. not too bad. l i am 0k, thank you. not too bad. what— i am 0k, thank you. not too bad. what about— i am 0k, thank you. not too bad. what about everything _ i am 0k, thank you. not too bad. what about everything you - i am 0k, thank you. not too bad. what about everything you have i i am 0k, thank you. not too bad. - what about everything you have been going through and your experiences? sadly, yeah, severe delays for me. i found _ sadly, yeah, severe delays for me. i found a _ sadly, yeah, severe delays for me. i found a lump— sadly, yeah, severe delays for me. i found a lump one _ sadly, yeah, severe delays for me. i found a lump one sunday— sadly, yeah, severe delays for me. i found a lump one sunday evening i sadly, yeah, severe delays for me. i found a lump one sunday evening inj found a lump one sunday evening in novenrber— found a lump one sunday evening in november 2021, _ found a lump one sunday evening in november 2021, went _ found a lump one sunday evening in november 2021, went to _ found a lump one sunday evening in november 2021, went to a - found a lump one sunday evening in november 2021, went to a doctor i found a lump one sunday evening in| november 2021, went to a doctor the next day. _ november 2021, went to a doctor the next day. they— november 2021, went to a doctor the next day, they were _ november 2021, went to a doctor the next day, they were wonderful, i november 2021, went to a doctor the next day, they were wonderful, did . november 2021, went to a doctor the next day, they were wonderful, did a | next day, they were wonderful, did a breast— next day, they were wonderful, did a breast examination, _ next day, they were wonderful, did a breast examination, sent _ next day, they were wonderful, did a breast examination, sent me - next day, they were wonderful, did a breast examination, sent me for- next day, they were wonderful, did a breast examination, sent me for a i breast examination, sent me for a scan _ breast examination, sent me for a scan has _ breast examination, sent me for a scan has not — breast examination, sent me for a scan has not had _ breast examination, sent me for a scan has not had covid _ breast examination, sent me for a scan has not had covid at - breast examination, sent me for a scan has not had covid at the i breast examination, sent me for aj scan has not had covid at the time so when _ scan has not had covid at the time so when i — scan has not had covid at the time so when i went— scan has not had covid at the time so when i went for— scan has not had covid at the time so when i went for the _ scan has not had covid at the time so when i went for the first - scan has not had covid at the time so when i went for the first scan . so when i went for the first scan with— so when i went for the first scan with radiology. _ so when i went for the first scan with radiology, they— so when i went for the first scan with radiology, they said, - so when i went for the first scan with radiology, they said, we i so when i went for the first scani with radiology, they said, we are not too _ with radiology, they said, we are not too concerned _ with radiology, they said, we are not too concerned about - with radiology, they said, we are not too concerned about it, i with radiology, they said, we are not too concerned about it, lotsi with radiology, they said, we are. not too concerned about it, lots of people _ not too concerned about it, lots of people have — not too concerned about it, lots of people have had _ not too concerned about it, lots of people have had these _ not too concerned about it, lots of people have had these lumps, i not too concerned about it, lots of people have had these lumps, sol not too concerned about it, lots of . people have had these lumps, so we will see _ people have had these lumps, so we will see you — people have had these lumps, so we will see you in — people have had these lumps, so we will see you in for— _ people have had these lumps, so we will see you in for— six _ people have had these lumps, so we will see you in for— six weeks, - people have had these lumps, so we will see you in for— six weeks, if- will see you in for— six weeks, if it goes— will see you in for— six weeks, if it goes let — will see you in for— six weeks, if it goes let us _ will see you in for— six weeks, if it goes let us know. _ will see you in for— six weeks, if it goes let us know. obviously l it goes let us know. obviously christmas _ it goes let us know. obviously christmas came, _ it goes let us know. obviously christmas came, my - it goes let us know. obviously christmas came, my aunt i it goes let us know. obviously i christmas came, my aunt passed it goes let us know. obviously - christmas came, my aunt passed away suddenly. _ christmas came, my aunt passed away suddenly, lots— christmas came, my aunt passed away suddenly, lots of— christmas came, my aunt passed away suddenly, lots of things _ christmas came, my aunt passed away suddenly, lots of things in _ christmas came, my aunt passed away suddenly, lots of things in my- christmas came, my aunt passed away suddenly, lots of things in my mind, . suddenly, lots of things in my mind, -ot suddenly, lots of things in my mind, got to— suddenly, lots of things in my mind, got to the _ suddenly, lots of things in my mind, got to the middle _ suddenly, lots of things in my mind, got to the middle of— suddenly, lots of things in my mind, got to the middle ofjanuary - suddenly, lots of things in my mind, got to the middle ofjanuary and i i
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got to the middle ofjanuary and i thought. — got to the middle ofjanuary and i thought. oh— got to the middle ofjanuary and i thought. oh i_ got to the middle ofjanuary and i thought, oh i haven't _ got to the middle ofjanuary and i thought, oh i haven't a _ got to the middle ofjanuary and i thought, oh i haven't a letter, i got to the middle ofjanuary and i thought, oh i haven't a letter, so| got to the middle ofjanuary and i i thought, oh i haven't a letter, so i phoned _ thought, oh i haven't a letter, so i phoned and — thought, oh i haven't a letter, so i phoned and they— thought, oh i haven't a letter, so i phoned and they said, _ thought, oh i haven't a letter, so i phoned and they said, the - thought, oh i haven't a letter, so i phoned and they said, the next i phoned and they said, the next available — phoned and they said, the next available appointment- phoned and they said, the next available appointment is- phoned and they said, the next i available appointment is february the 2nd. — available appointment is february the 2nd. so — available appointment is february the 2nd. so i _ available appointment is february the 2nd, so i went, _ available appointment is february the 2nd, so i went, on— available appointment is february the 2nd, so i went, on my- available appointment is february the 2nd, so i went, on my own, . the 2nd, so i went, on my own, thinking — the 2nd, so i went, on my own, thinking i— the 2nd, so i went, on my own, thinking i would _ the 2nd, so i went, on my own, thinking i would go _ the 2nd, so i went, on my own, thinking i would go for- the 2nd, so i went, on my own, thinking i would go for anotheri the 2nd, so i went, on my own, i thinking i would go for another scan and it— thinking i would go for another scan and it was— thinking i would go for another scan and it was the — thinking i would go for another scan and it was the same _ thinking i would go for another scan and it was the same radiographer. thinking i would go for another scan i and it was the same radiographer and he said. _ and it was the same radiographer and he said. actually— and it was the same radiographer and he said, actually i'm _ and it was the same radiographer and he said, actually i'm not _ and it was the same radiographer and he said, actually i'm not too - and it was the same radiographer and he said, actually i'm not too happy. he said, actually i'm not too happy about— he said, actually i'm not too happy about this — he said, actually i'm not too happy about this and _ he said, actually i'm not too happy about this and i _ he said, actually i'm not too happy about this and i will _ he said, actually i'm not too happy about this and i will have - he said, actually i'm not too happy about this and i will have to - he said, actually i'm not too happy about this and i will have to do i he said, actually i'm not too happy about this and i will have to do a l about this and i will have to do a biopsy— about this and i will have to do a biopsy on — about this and i will have to do a biopsy on your— about this and i will have to do a biopsy on your now, _ about this and i will have to do a biopsy on your now, which - about this and i will have to do a biopsy on your now, which was l about this and i will have to do a biopsy on your now, which was a about this and i will have to do a i biopsy on your now, which was a bit traumatic _ biopsy on your now, which was a bit traumatic had _ biopsy on your now, which was a bit traumatic. had that _ biopsy on your now, which was a bit traumatic. had that and _ biopsy on your now, which was a bit traumatic. had that and literally i traumatic. had that and literally don't _ traumatic. had that and literally don't like — traumatic. had that and literally don't like that _ traumatic. had that and literally don't like that was _ traumatic. had that and literally don't like that was the - traumatic. had that and literally i don't like that was the wednesday. on don't like that was the wednesday. 0n the _ don't like that was the wednesday. 0n the monday, _ don't like that was the wednesday. on the monday, my _ don't like that was the wednesday. on the monday, my doctor- don't like that was the wednesday. on the monday, my doctor phoned| don't like that was the wednesday. i on the monday, my doctor phoned me and told _ on the monday, my doctor phoned me and told me. _ on the monday, my doctor phoned me and told me. it's — on the monday, my doctor phoned me and told me, it's really— on the monday, my doctor phoned me and told me, it's really bad, _ on the monday, my doctor phoned me and told me, it's really bad, it- on the monday, my doctor phoned me and told me, it's really bad, it has- and told me, it's really bad, it has spread _ and told me, it's really bad, it has spread i— and told me, it's really bad, it has spread isaid, _ and told me, it's really bad, it has spread. i said, what _ and told me, it's really bad, it has spread. i said, what do _ and told me, it's really bad, it has spread. i said, what do you - and told me, it's really bad, it has| spread. i said, what do you mean? it's spread. i said, what do you mean? it's cancer~ — spread. i said, what do you mean? it's cancer~ so— spread. i said, what do you mean? it's cancer. so she _ spread. i said, what do you mean? it's cancer. so she told _ spread. i said, what do you mean? it's cancer. so she told me - spread. i said, what do you mean? it's cancer. so she told me on- spread. i said, what do you mean? it's cancer. so she told me on the| it's cancer. so she told me on the phone _ it's cancer. so she told me on the phone which— it's cancer. so she told me on the phone which as _ it's cancer. so she told me on the phone which as you _ it's cancer. so she told me on the phone which as you can _ it's cancer. so she told me on the phone which as you can imagine l it's cancer. so she told me on the i phone which as you can imagine was the most _ phone which as you can imagine was the most horrific— phone which as you can imagine was the most horrific news _ phone which as you can imagine was the most horrific news to _ phone which as you can imagine was the most horrific news to hear, i phone which as you can imagine was the most horrific news to hear, shei the most horrific news to hear, she said i_ the most horrific news to hear, she said i will— the most horrific news to hear, she said i will put— the most horrific news to hear, she said i will put you _ the most horrific news to hear, she said i will put you through - the most horrific news to hear, she said i will put you through to - the most horrific news to hear, she said i will put you through to the i said i will put you through to the breast— said i will put you through to the breast clinic, _ said i will put you through to the breast clinic, if _ said i will put you through to the breast clinic, if you _ said i will put you through to the breast clinic, if you don't - said i will put you through to the breast clinic, if you don't hear. breast clinic, if you don't hear within— breast clinic, if you don't hear within two— breast clinic, if you don't hear within two weeks _ breast clinic, if you don't hear within two weeks get - breast clinic, if you don't hear within two weeks get back i breast clinic, if you don't hear within two weeks get back to| breast clinic, if you don't hear- within two weeks get back to me. 0bviously— within two weeks get back to me. 0bviously i — within two weeks get back to me. 0bviously i was _ within two weeks get back to me. obviously i was in _ within two weeks get back to me. obviously i was in a _ within two weeks get back to me. obviously i was in a right- within two weeks get back to me. obviously i was in a right state, l within two weeks get back to me. i obviously i was in a right state, my kids were _ obviously i was in a right state, my kids were stressing _ obviously i was in a right state, my kids were stressing so _ obviously i was in a right state, my kids were stressing so i— obviously i was in a right state, my kids were stressing so i went - kids were stressing so i went private — kids were stressing so i went private that _ kids were stressing so i went private that week _ kids were stressing so i went private that week to - kids were stressing so i went private that week to have i kids were stressing so i went private that week to have a l private that week to have a mammogram _ private that week to have a mammogram because i private that week to have a mammogram because the| private that week to have a i mammogram because the way private that week to have a - mammogram because the way she private that week to have a _ mammogram because the way she told me i mammogram because the way she told me i thought _ mammogram because the way she told me i thought i — mammogram because the way she told me i thought i was _ mammogram because the way she told me i thought i was riddled _ mammogram because the way she told me i thought i was riddled with - me i thought i was riddled with cancer— me i thought i was riddled with cancer and _ me i thought i was riddled with cancer and i_ me i thought i was riddled with cancerand i had _ me i thought i was riddled with cancer and i had literally- me i thought i was riddled with cancer and i had literally hours| me i thought i was riddled with . cancer and i had literally hours to live _ cancer and i had literally hours to live that — cancer and i had literally hours to live. that came _ cancer and i had literally hours to live. that came back— cancer and i had literally hours to live. that came back and - cancer and i had literally hours to live. that came back and they i cancer and i had literally hours to| live. that came back and they got cancer and i had literally hours to i live. that came back and they got me back in— live. that came back and they got me back in to _ live. that came back and they got me back in to the — live. that came back and they got me back in to the hospital— live. that came back and they got me back in to the hospital quite - back in to the hospital quite quickly— back in to the hospital quite quickly and. _ back in to the hospital quite quickly and, as _ back in to the hospital quite quickly and, as that - back in to the hospital quite i quickly and, as that gentleman back in to the hospital quite - quickly and, as that gentleman just said, _ quickly and, as that gentleman just said. i_ quickly and, as that gentleman just said. i have — quickly and, as that gentleman just said, i have nothing _ quickly and, as that gentleman just said, i have nothing but _ quickly and, as that gentleman just said, i have nothing but praise i quickly and, as that gentleman just said, i have nothing but praise for. said, i have nothing but praise for every— said, i have nothing but praise for every staff— said, i have nothing but praise for every staff member— said, i have nothing but praise for every staff member i _ said, i have nothing but praise for every staff member i have - said, i have nothing but praise for every staff member i have seen. i said, i have nothing but praise for- every staff member i have seen. they have been— every staff member i have seen. they have been absolute _ every staff member i have seen. they have been absolute wonderful. - every staff member i have seen. they have been absolute wonderful. i i every staff member i have seen. they have been absolute wonderful. i had i have been absolute wonderful. i had lots of— have been absolute wonderful. i had lots of scans —
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have been absolute wonderful. i had lots of scans and _ have been absolute wonderful. i had lots of scans and biopsies, _ have been absolute wonderful. i had lots of scans and biopsies, and i have been absolute wonderful. i had lots of scans and biopsies, and was. lots of scans and biopsies, and was set to— lots of scans and biopsies, and was set to have — lots of scans and biopsies, and was set to have a — lots of scans and biopsies, and was set to have a mastectomy - lots of scans and biopsies, and was set to have a mastectomy on - lots of scans and biopsies, and was| set to have a mastectomy on march 30, but _ set to have a mastectomy on march 30, but one — set to have a mastectomy on march 30, but one of— set to have a mastectomy on march 30, but one of my— set to have a mastectomy on march 30, but one of my mri _ set to have a mastectomy on march 30, but one of my mri scans- set to have a mastectomy on march. 30, but one of my mri scans showed that something — 30, but one of my mri scans showed that something in _ 30, but one of my mri scans showed that something in my— 30, but one of my mri scans showed that something in my lymph - 30, but one of my mri scans showed that something in my lymph nodes. 30, but one of my mri scans showed l that something in my lymph nodes and my neck, _ that something in my lymph nodes and my neck, so— that something in my lymph nodes and my neck. so they — that something in my lymph nodes and my neck, so they cancelled _ that something in my lymph nodes and my neck, so they cancelled that - that something in my lymph nodes and my neck, so they cancelled that and i my neck, so they cancelled that and said i_ my neck, so they cancelled that and said i had _ my neck, so they cancelled that and said i had to — my neck, so they cancelled that and said i had to have _ my neck, so they cancelled that and said i had to have a _ my neck, so they cancelled that and said i had to have a biopsy- my neck, so they cancelled that and said i had to have a biopsy on- my neck, so they cancelled that and said i had to have a biopsy on the i said i had to have a biopsy on the 1st said i had to have a biopsy on the ist of— said i had to have a biopsy on the 1st of april. — said i had to have a biopsy on the 1st of april, and _ said i had to have a biopsy on the 1st of april, and it _ said i had to have a biopsy on the 1st of april, and it had _ said i had to have a biopsy on the 1st of april, and it had gone i said i had to have a biopsy on the 1st of april, and it had gone to. said i had to have a biopsy on the| 1st of april, and it had gone to my ist of april, and it had gone to my lymph— 1st of april, and it had gone to my lymph nodes _ 1st of april, and it had gone to my lymph nodes in _ ist of april, and it had gone to my lymph nodes in my— 1st of april, and it had gone to my lymph nodes in my neck. - 1st of april, and it had gone to my lymph nodes in my neck. so i 1st of april, and it had gone to my lymph nodes in my neck. so theyi 1st of april, and it had gone to my- lymph nodes in my neck. so they were like, lymph nodes in my neck. so they were like. right, _ lymph nodes in my neck. so they were like. right, you — lymph nodes in my neck. so they were like, right, you will— lymph nodes in my neck. so they were like, right, you will have _ lymph nodes in my neck. so they were like, right, you will have to _ lymph nodes in my neck. so they were like, right, you will have to have - like, right, you will have to have chemotherapy, _ like, right, you will have to have chemotherapy, so _ like, right, you will have to have chemotherapy, so me _ like, right, you will have to have chemotherapy, so me now- like, right, you will have to have i chemotherapy, so me now thinking that would — chemotherapy, so me now thinking that would be — chemotherapy, so me now thinking that would be the _ chemotherapy, so me now thinking that would be the next _ chemotherapy, so me now thinking that would be the next day- chemotherapy, so me now thinking that would be the next day or i chemotherapy, so me now thinking that would be the next day or two, | that would be the next day or two, week. _ that would be the next day or two, week, at— that would be the next day or two, week, at least, _ that would be the next day or two, week, at least, but— that would be the next day or two, week, at least, but i— that would be the next day or two, week, at least, but i didn't - that would be the next day or two, week, at least, but i didn't start. week, at least, but i didn't start chemotherapy— week, at least, but i didn't start chemotherapy until— week, at least, but i didn't start chemotherapy untiljune - week, at least, but i didn't start chemotherapy untiljune the i week, at least, but i didn't start�* chemotherapy untiljune the 28, week, at least, but i didn't start. chemotherapy untiljune the 28, so week, at least, but i didn't start- chemotherapy untiljune the 28, so i had that_ chemotherapy untiljune the 28, so i had that lump — chemotherapy untiljune the 28, so i had that lump from _ chemotherapy untiljune the 28, so i had that lump from november- chemotherapy untiljune the 28, so i had that lump from november untill had that lump from november until june before — had that lump from november until june before any— had that lump from november until june before any treatment - had that lump from november until june before any treatment started, | june before any treatment started, so you _ june before any treatment started, so you can — june before any treatment started, so you can imagine, _ june before any treatment started, so you can imagine, i— june before any treatment started, so you can imagine, i am _ june before any treatment started, so you can imagine, i am a - june before any treatment started, so you can imagine, i am a really. so you can imagine, i am a really strong _ so you can imagine, i am a really strong persorr _ so you can imagine, i am a really strong person my— so you can imagine, i am a really strong person. my mental- so you can imagine, i am a really strong person. my mental healthi so you can imagine, i am a really- strong person. my mental health was 'ust, strong person. my mental health was just. wettm — strong person. my mental health was just. well...— strong person. my mental health was just, well. . ._ panic - just, well... panic attacks. panic attacks. just, well... panic attacks. panic attacks how _ just, well... panic attacks. panic attacks. how old _ just, well... panic attacks. panic attacks. how old are _ just, well... panic attacks. panic attacks. how old are the - just, well... panic attacks. panic attacks. how old are the kids? l just, well... panic attacks. panic. attacks. how old are the kids? i'm sorry to interrupt, but how old are the kids? �* . , ., ., the kids? i'm lucky they are grown u -. the kids? i'm lucky they are grown u. m the kids? i'm lucky they are grown un- my son — the kids? i'm lucky they are grown un- my son is _ the kids? i'm lucky they are grown un- my son is 28 — the kids? i'm lucky they are grown up. my son is 28 and _ the kids? i'm lucky they are grown up. my son is 28 and my _ the kids? i'm lucky they are grown up. my son is 28 and my daughter| the kids? i'm lucky they are grown i up. my son is 28 and my daughter is 25. up. my son is 28 and my daughter is 25 but _ up. my son is 28 and my daughter is 25 but it— up. my son is 28 and my daughter is 25 but it is— up. my son is 28 and my daughter is 25. but it is still— up. my son is 28 and my daughter is 25. but it is still horrific _ up. my son is 28 and my daughter is 25. but it is still horrific for- 25. but it is still horrific for them, _ 25. but it is still horrific for them, seeing _ 25. but it is still horrific for them, seeing their- 25. but it is still horrific for them, seeing their mum . 25. but it is still horrific for- them, seeing their mum going 25. but it is still horrific for— them, seeing their mum going through something _ them, seeing their mum going through something like — them, seeing their mum going through something like this, _ them, seeing their mum going through something like this, you _ them, seeing their mum going through something like this, you know. - them, seeing their mum going through something like this, you know. there l something like this, you know. there were detays— something like this, you know. there were delays then. _ something like this, you know. there were delays then. the _ something like this, you know. there were delays then. the chemotherapy| were delays then. the chemotherapy was hard _ were delays then. the chemotherapy was hard five —
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were delays then. the chemotherapy was hard. five months _ were delays then. the chemotherapy was hard. five months of— were delays then. the chemotherapy was hard. five months of that- were delays then. the chemotherapy was hard. five months of that and i was hard. five months of that and was hard. five months of that and was supposed _ was hard. five months of that and was supposed to _ was hard. five months of that and was supposed to have _ was hard. five months of that and was supposed to have the - was hard. five months of that and - was supposed to have the mastectomy six weeks _ was supposed to have the mastectomy six weeks after — was supposed to have the mastectomy six weeks after that, _ was supposed to have the mastectomy six weeks after that, delayed - was supposed to have the mastectomy six weeks after that, delayed a - six weeks after that, delayed a little _ six weeks after that, delayed a little bit. — six weeks after that, delayed a little bit, then— six weeks after that, delayed a little bit, then i— six weeks after that, delayed a little bit, then i was— six weeks after that, delayed a little bit, then i was supposedi six weeks after that, delayed a i little bit, then i was supposed to have _ little bit, then i was supposed to have the — little bit, then i was supposed to have the radiotherapy _ little bit, then i was supposed to have the radiotherapy six - little bit, then i was supposed to have the radiotherapy six weeks| have the radiotherapy six weeks after— have the radiotherapy six weeks after the — have the radiotherapy six weeks after the mastectomy, - have the radiotherapy six weeks after the mastectomy, that- have the radiotherapy six weeks after the mastectomy, that was| after the mastectomy, that was detayed — after the mastectomy, that was detayed again _ after the mastectomy, that was delayed again. like _ after the mastectomy, that was delayed again. like that - after the mastectomy, that was delayed again. like that lady. after the mastectomy, that was i delayed again. like that lady said, when _ delayed again. like that lady said, when you — delayed again. like that lady said, when you go— delayed again. like that lady said, when you go to _ delayed again. like that lady said, when you go to treatment - delayed again. like that lady said, when you go to treatment you - delayed again. like that lady said, i when you go to treatment you feel, 0k, when you go to treatment you feel, ok. this _ when you go to treatment you feel, ok. this is — when you go to treatment you feel, ok, this is horrific, _ when you go to treatment you feel, ok, this is horrific, i've _ when you go to treatment you feel, ok, this is horrific, i've got - ok, this is horrific, i've got cancer, _ ok, this is horrific, i've got cancer, but _ ok, this is horrific, i've got cancer, but i'm _ ok, this is horrific, i've got cancer, but i'm doing - ok, this is horrific, i've got - cancer, but i'm doing something, you're _ cancer, but i'm doing something, you're fighting _ cancer, but i'm doing something, you're fighting. when— cancer, but i'm doing something, you're fighting. when are - cancer, but i'm doing something, you're fighting. when are those l you're fighting. when are those detays — you're fighting. when are those detays it— you're fighting. when are those detays it is— you're fighting. when are those delays it is absolutely— you're fighting. when are those delays it is absolutely horrific . you're fighting. when are those i delays it is absolutely horrific for your ntentat— delays it is absolutely horrific for your mental health _ delays it is absolutely horrific for your mental health because - delays it is absolutely horrific for your mental health because you i your mental health because you literally— your mental health because you literally are _ your mental health because you literally are on _ your mental health because you literally are on pins _ your mental health because you literally are on pins going, - your mental health because you i literally are on pins going, what's happening? — literally are on pins going, what's happening? is— literally are on pins going, what's happening? is the _ literally are on pins going, what's happening? is the cancer- literally are on pins going, what's. happening? is the cancer growing? what's _ happening? is the cancer growing? what's happening? _ happening? is the cancer growing? what's happening? you _ happening? is the cancer growing? what's happening? you don't - happening? is the cancer growing? | what's happening? you don't know. any tittte _ what's happening? you don't know. any little thing _ what's happening? you don't know. any little thing in _ what's happening? you don't know. any little thing in your _ what's happening? you don't know. any little thing in your body, - what's happening? you don't know. any little thing in your body, "has . any little thing in your body, "has that cancer— any little thing in your body, "has that cancer spread? _ any little thing in your body, "has that cancer spread? " _ any little thing in your body, "has that cancer spread? " i— any little thing in your body, "has that cancer spread? " i literally. that cancer spread? " i literally went— that cancer spread? " i literally went to — that cancer spread? " i literally went to places— that cancer spread? " i literally went to places i— that cancer spread? " i literally went to places i never- that cancer spread? " i literally went to places i never thought| that cancer spread? " i literally| went to places i never thought i could _ went to places i never thought i could go— went to places i never thought i could go and _ went to places i never thought i could go and i_ went to places i never thought i could go and i am _ went to places i never thought i could go and i am a _ went to places i never thought i could go and i am a really- went to places i never thought ll could go and i am a really strong person~ — could go and i am a really strong person i— could go and i am a really strong person. i never— could go and i am a really strong person. i never suffered - could go and i am a really strong person. i never suffered any- person. i never suffered any depression. _ person. i never suffered any depression, anxiety. - person. i never suffered any depression, anxiety. now. person. i never suffered any depression, anxiety. now i. person. i never suffered any. depression, anxiety. now i do because — depression, anxiety. now i do because literally— depression, anxiety. now i do because literally i've - depression, anxiety. now i do because literally i've been- depression, anxiety. now i do because literally i've been put depression, anxiety. now i do. because literally i've been put in this position _ because literally i've been put in this position and _ because literally i've been put in this position and it _ because literally i've been put in this position and it does- because literally i've been put in this position and it does alter. because literally i've been put in. this position and it does alter your setup _ this position and it does alter your setup because _ this position and it does alter your setup because little _ this position and it does alter your setup because little things - this position and it does alter your setup because little things now. this position and it does alter your| setup because little things now set me up— setup because little things now set me up and — setup because little things now set me up and it — setup because little things now set me up and it is— setup because little things now set me up and it is scary, _ setup because little things now set me up and it is scary, i— setup because little things now set me up and it is scary, i cancer- me up and it is scary, i cancer diagnosis _ me up and it is scary, i cancer diagnosis is _ me up and it is scary, i cancer diagnosis is horrific— me up and it is scary, i cancer diagnosis is horrific on - me up and it is scary, i cancer diagnosis is horrific on its- me up and it is scary, i canceri diagnosis is horrific on its own me up and it is scary, i cancer- diagnosis is horrific on its own but to have _ diagnosis is horrific on its own but to have those _ diagnosis is horrific on its own but to have those delays _ diagnosis is horrific on its own but to have those delays put - diagnosis is horrific on its own but to have those delays put on - diagnosis is horrific on its own but to have those delays put on top i diagnosis is horrific on its own buti to have those delays put on top of
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it isi'ust _ to have those delays put on top of it isi'ust not~~~ _ to have those delays put on top of it isjust not... it's— to have those delays put on top of it isjust not... it's not— to have those delays put on top of it isjust not... it's not fair. - to have those delays put on top of it isjust not... it's not fair. but i it isjust not... it's not fair. but the _ it isjust not... it's not fair. but the staff, — it isjust not... it's not fair. but the staff, i_ it isjust not... it's not fair. but the staff, i only— it isjust not... it's not fair. but the staff, i only have _ it isjust not... it's not fair. but the staff, i only have praise. i it isjust not... it's not fair. but. the staff, i only have praise. they were _ the staff, i only have praise. they were wonderful. _ the staff, i only have praise. they were wonderful. there's - the staff, i only have praise. they were wonderful. there's just - the staff, i only have praise. they were wonderful. there'sjust not. were wonderful. there'sjust not enough — were wonderful. there'sjust not enough of— were wonderful. there'sjust not enough of them. _ were wonderful. there'sjust not enough of them. they _ were wonderful. there'sjust not enough of them. they are - were wonderful. there'sjust not| enough of them. they are saying were wonderful. there'sjust not. enough of them. they are saying to me, enough of them. they are saying to me. thank— enough of them. they are saying to me. thank you _ enough of them. they are saying to me, thank you for— enough of them. they are saying to me, thank you for speaking - enough of them. they are saying to me, thank you for speaking out - enough of them. they are saying to . me, thank you for speaking out about it, me, thank you for speaking out about it. because _ me, thank you for speaking out about it. because we — me, thank you for speaking out about it, because we are _ me, thank you for speaking out about it, because we are here _ me, thank you for speaking out about it, because we are here and - me, thank you for speaking out about it, because we are here and they- me, thank you for speaking out about it, because we are here and they can| it, because we are here and they can only do— it, because we are here and they can only do so— it, because we are here and they can only do so nruch _ it, because we are here and they can only do so much. they— it, because we are here and they can only do so much. they can't - it, because we are here and they can only do so much. they can't cut - only do so much. they can't cut themselves— only do so much. they can't cut themselves in— only do so much. they can't cut themselves in five _ only do so much. they can't cut themselves in five to _ only do so much. they can't cut themselves in five to see - only do so much. they can't cut themselves in five to see so - only do so much. they can't cut. themselves in five to see so many people. _ themselves in five to see so many people. and — themselves in five to see so many people. and they— themselves in five to see so many people, and they are _ themselves in five to see so many people, and they are wonderful. l themselves in five to see so many people, and they are wonderful. i| people, and they are wonderful. i can't _ people, and they are wonderful. i can't speak— people, and they are wonderful. i can't speak highty _ people, and they are wonderful. i can't speak highly enough - people, and they are wonderful. i can't speak highly enough of - people, and they are wonderful. i. can't speak highly enough of them. you said _ can't speak highly enough of them. you said that — can't speak highly enough of them. you said that all _ can't speak highly enough of them. you said that all so _ can't speak highly enough of them. you said that all so beautifully. - you said that all so beautifully. and you are talking about those panic attacks and the way you spoke about that, that dark tunnel of anxiety. all you want is a little bit of light, little bit of knowledge, actually, so you actually know, you know, what's going on. ailsa, thank you so much. i will just come to a couple of text. i have been living with stage four cancer and appointments can stretch to seven or eight weeks. 50
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stressful. not enough staff, sadly. so many others have to advocate for ourselves. i trust my medical team but the nhs situation is desperate. that is joe but the nhs situation is desperate. that isjoe in liverpool. good morning, i lost my mum a few weeks ago to cancer. i am so sorry. during covid lockdown she developed a cough and it didn't go away until by the time to get an appointment and tests carried out. it was terminal cancer. i feel angry and cheated, carried out. it was terminal cancer. ifeel angry and cheated, ifeel she should be there. ailsa, are you still there?— should be there. ailsa, are you still there?- it _ should be there. ailsa, are you still there?- it is _ should be there. ailsa, are you still there? yes. it is remiss of me not to ask — still there? yes. it is remiss of me not to ask how— still there? yes. it is remiss of me not to ask how you _ still there? yes. it is remiss of me not to ask how you are _ still there? is; it is remiss of me not to ask how you are now, i still there? 19:3 it is remiss of me not to ask how you are now, i am still there? 193 it is remiss of me not to ask how you are now, i am so sorry. it not to ask how you are now, i am so sor . . not to ask how you are now, i am so sor . , :, . sorry. it is fine. touch wood, i literally came _ sorry. it is fine. touch wood, i literally came off _ sorry. it is fine. touch wood, i literally came off radiotherapy i sorry. it is fine. touch wood, i i literally came off radiotherapy in february and thought that would be it and be on hormone replacement tablets. i am on a new drug that has
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just come out of trial for people like myself. it is for two years. not horrific side effects to start with, looks like it is calming down. i am very pleased to try these new drugs and do different things. touch wood, all 0k at the moment. thank ou ve wood, all 0k at the moment. thank you very much- _ wood, all 0k at the moment. thank you very much. hugely _ wood, all 0k at the moment. thank you very much. hugely appreciated. one more text, i can only talk about my experience, i went to my doctor in august with a breast lump and had a breast clinic appointment two weeks related. stage one breast cancer, surgery to remove the lump. it felt like i got surgery very quickly, radiotherapy and chemotherapy and all done now, from emma. brilliant use. extraordinary calls so far. thank you for those.
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the theme this morning, cancer treatment, what is the delay? get in touch. this is the news. senior doctors say the nhs is struggling to provide safe and effective care for cancer patients — due to staff shortages. the warning comes from the royal college of radiologists — which says half of all cancer units across the uk are already reporting delays for treatment. ministers in all four nations of the uk say investment is being made. the governor of kherson in southern ukraine says about 230 square miles of the region is underwater — after a dam was breached by an explosion on tuesday. a major relief operation is under
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way — footage online shows people stranded on rooftops being brought bottled water by drones. the former green party leader, caroline lucas, is to stand down as an mp at the next election. she's represented brighton pavilion since 2010. she says the pressures of being the party's only mp has left her unable to focus on tackling climate change. millions of people in north america have been advised to wear masks outdoors due to poor to air quality — sparked by wildfires in canada. the hazy conditions are expected to reach as far south as florida by the end of the week. those for the news headlines, now with the sport. sir trevor brooking says west ham couldn't have asked for any more from declan rice if he chooses to leave this summer. rice became just the third hammers captain to lift a major trophy when they claimed europa conefernce league last night. he says "wait and see" about his future. meanwhile there's an open top bus parade in east london tonight
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to celebrate west ham's first trophy since 1980. leo messi says if it was down to money, he'd have chosen saudi arabia over major league soccer in the united states. the seven—time ballon d'or winner is heading to inter miami, the club co—owned by david beckham. the top seeds are still on course to meet in the french open final. women's semi—finals' day sees second seed aryna sabalenka face karolina muchova before beatriz haddad maia take on world number one iga swiatek. you can hear both matches on the bbc sport website and app from 2pm. and on sports extra from 1015 the second day of the world test championship final between australia and india is coming up. the aussies in a companding position, resuming on 327—3.
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that is totally about your lives this morning. from 10:00, we're ging to be discusing carers, the nation's unpaid heroes. the nation's unpaid heroesaccording to the latest census, there are around six million people currently providing care for someone who is elderly, seriously ill or disabled. carers uk estimates that they save the government, and us. 996 9% of people in the uk are providing
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unpaid care. 59% of unpaid carers are women, according to the 2021 census. women are more likely to become carers and provide more hours of unpaid care than men. more women than men provide high intensity care at the age of when they should be in work. one in seven carersjuggling caring and paid work. big issues to get into with the care of�*s allowance. to celebrate national carers week we want to show that we care. we want to pay tribute to those who do and we want to hear your stories about your life. you can start sending messages on that. put your name and where you are from. it is 9.36.
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going to go tojulie in lan peter. hello, julie. going to go to julie in lan peter. hello. julie-— ijust want i just want to cut a straight one to the medical director of the royal couege the medical director of the royal college of radiologists. has there been a dame debra james affect, that amazing woman, in people getting diagnosed earlier? yes. amazing woman, in people getting diagnosed earlier?— amazing woman, in people getting diagnosed earlier? yes, we certainly saw a rise in — diagnosed earlier? yes, we certainly saw a rise in referrals _ diagnosed earlier? yes, we certainly saw a rise in referrals after - diagnosed earlier? yes, we certainly saw a rise in referrals after that. - saw a rise in referrals after that. she was— saw a rise in referrals after that. she was highlighting the issue we have been saying for some time, if you have _ have been saying for some time, if you have symptoms, please come forward. _ you have symptoms, please come forward, don't be embarrassed. some of the _ forward, don't be embarrassed. some of the issues —
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forward, don't be embarrassed. some of the issues she was talking about, blood _ of the issues she was talking about, blood in _ of the issues she was talking about, blood in your to, can be embarrassing, but please come forward — embarrassing, but please come forward. we want people to come forward. — forward. we want people to come forward, we really do. some of the stories— forward, we really do. some of the stories you — forward, we really do. some of the stories you have been listening to today. _ stories you have been listening to today, they are tragic. as we said earlier. _ today, they are tragic. as we said earlier. this — today, they are tragic. as we said earlier, this is the sharp end of what _ earlier, this is the sharp end of what is — earlier, this is the sharp end of what is happening at this as a result— what is happening at this as a result of— what is happening at this as a result of the workforce shortages and nty— result of the workforce shortages and my heart goes out to patients. we are _ and my heart goes out to patients. we are desperately trying to treat people _ we are desperately trying to treat people as quickly as we can. what i want to address _ people as quickly as we can. what i want to address with _ people as quickly as we can. what i want to address with you _ people as quickly as we can. what i want to address with you if - people as quickly as we can. what i want to address with you if i - people as quickly as we can. what i want to address with you if i get . want to address with you if i get the opportunity, there are so many exciting medical advances that we read about all the time. i am in awe when i see those stories, we are really getting somewhere with this. that is part of it, it is matching the resources, matching the staffing to those incredible possibilities which are changing and saving so many lies. i will go tojulie first.
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keep that thought. julie, what is your story?— keep that thought. julie, what is your story? keep that thought. julie, what is our sto ? :, ,, :, your story? thank you for letting me come on and — your story? thank you for letting me come on and tell— your story? thank you for letting me come on and tell my _ your story? thank you for letting me come on and tell my story. - your story? thank you for letting me come on and tell my story. i - your story? thank you for letting me come on and tell my story. i had - your story? thank you for letting me come on and tell my story. i had no | come on and tell my story. i had no symptoms. i am sll, i come on and tell my story. i had no symptoms. lam sll, i had come on and tell my story. i had no symptoms. i am sll, i had a come on and tell my story. i had no symptoms. lam sll, i had a routine screening two years ago. i was called up for another one last september. absolutely no symptoms, no lumps, nothing. i went along, i am self—employed, i had the time and i could go. i went to the mobile unit we have here, so many appointments are missed because people don't go. either they are afraid or they don't get time off work. there is no legislation that says you are entitled to any time off work, and paid time off work. if you are like me and had no symptoms, maybe you wouldn't go. thankfully i did, i had a call up a letter to go to swansea. didn't say anything in
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the letter, apart from you just need to come back. that was a little bit of a worrying time. i thought, i cannot feel anything. it is like a one—stop service, you go through the door, they don't know anything, but you have another mammogram, i had an ultrasound and then a biopsy because there was a four centimetre invasive tumour in my breast, my left breast, which i didn't know about. even at that stage they couldn't tell me if it was cancerous. that was on november the 1st and i had to wait until november the 18th for the results. i had 18 days of thinking, what is going on. i am a positive person, i run my own hr business. i had to keep working, i am self—employed. had to keep working, i am self-employed.— had to keep working, i am self-emlo ed. . , :, :, , self-employed. that is horrendous, but for a lot — self-employed. that is horrendous, but for a lot of _ self-employed. that is horrendous, but for a lot of people _ self-employed. that is horrendous, but for a lot of people it _ self-employed. that is horrendous, but for a lot of people it is - self-employed. that is horrendous, but for a lot of people it is quite - but for a lot of people it is quite a bit longer than that. that but for a lot of people it is quite a bit longer than that.— a bit longer than that. that was 'ust a bit longer than that. that was just waiting _ a bit longer than that. that was just waiting to _ a bit longer than that. that was just waiting to be _ a bit longer than that. that was just waiting to be told - a bit longer than that. that was just waiting to be told it was i just waiting to be told it was
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cancer. and that appointment then it was ok. the gentleman earlier, we have private health care and we thought, should we go private, to be seen quicker but also to free up the space? no, you are in the system and your treatment will start with and 62 days. your treatment will start with and 62 da s. ~ ., :, your treatment will start with and 62da s. ~ ., :, , ., ., 62 days. what do they mean, you are in the system- _ 62 days. what do they mean, you are in the system. the _ 62 days. what do they mean, you are in the system. the number— 62 days. what do they mean, you are in the system. the number of- 62 days. what do they mean, you are in the system. the number of people | in the system. the number of people who maybe, because of the problems that covid laid on the nhs have got private health care, it is quite interesting. anyway, what did they mean, no, you are in the system? you are in the system, _ mean, no, you are in the system? gm. are in the system, you are already on the list, if you like. so in wales, i don't know about the rest of the uk, but there are targets and timescales on your treatment will start in 62 days. if i was to go private i would possibly have to have mammograms done again and wait for the test to get over to the
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private sector. that could have been a time delay, that is how riva sold it. going down the nhs route would be quicker. we put our trust in it and thought fine, looking that you would have treatment before christmas. i have got two daughters, four granddaughters, so i spoke to them both and explain to them, i will be fine. i am in the system and i will get treatment. we brought christmas forward, but my operation and treatment started in february the 8th. and i and still working through all of this. trying to be positive. then i had a lot of appointments, ct scan, i live in rural wales. appointments, ct scan, i live in ruralwales. my appointments, ct scan, i live in rural wales. my choice, appointments, ct scan, i live in ruralwales. my choice, it appointments, ct scan, i live in rural wales. my choice, it is such a beautiful place, but it does take a long time to get to these hospitals, so it is a good 1.5 hours. no
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thought to your working life, i get a phone call on monday and sake come on wednesday. i was trying to run a business, i need to keep my business going. it is frustrating. but the people i come up against, the nhs staff were tremendous, very supportive. every appointment they tried to give me a doctor's paper. who am i going to give that to, i am self—employed, i have to keep working. i had a lumpectomy, a breast reduction and uplift as well. i have had radiotherapy, that was quite gruelling. i have had radiotherapy, that was quite gruelling-— i have had radiotherapy, that was quite gruelling. what was that like, radiotherapy? _ quite gruelling. what was that like, radiotherapy? again, _ quite gruelling. what was that like, radiotherapy? again, frustrating. . radiotherapy? again, frustrating. the other caller _ radiotherapy? again, frustrating. the other caller who _ radiotherapy? again, frustrating. the other caller who said - radiotherapy? again, frustrating. the other caller who said about l the other caller who said about being in control, from the minute you are told you have cancer, you have no control over your life, your
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life is taken up by waiting for a phone call or waiting for a letter. i was told you have an appointment on monday at three o'clock. i knew it would be five consecutive days, used to be 15, but now it is five. they couldn't tell me what time i appointment would be for the rest of the week, which, as you can imagine, i'm trying to plan my life, run a business. i had to go on the monday and then i was given a schedule of when to go. they were very good, and i had to say, can i change some of these times it is not practical for me to travel in rush hour. one of them is at three o'clock on a friday, and i would have got home about six o'clock because of the rush hour. the treatment is bizarre, you don't feel like you are having anything, you arejust you don't feel like you are having anything, you are just lying there. but afterwards, quite a lot soreness and the tiredness that comes after
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it. it is notjust the treatment, it is the whole process of driving down, having to go to appointments and you are mentally consumed by having cancer. it is and you are mentally consumed by having cancer-— having cancer. it is tiring. yeah, eah. having cancer. it is tiring. yeah, yeah- and _ having cancer. it is tiring. yeah, yeah- and going _ having cancer. it is tiring. yeah, yeah. and going through - having cancer. it is tiring. yeah, yeah. and going through that i having cancer. it is tiring. yeah, l yeah. and going through that and still trying to be bright and breezy with your clients, it is incredible juggling. with your clients, it is incredible juggling his with your clients, it is incredible 'unilin, 'y: , with your clients, it is incredible 'unilin, ~y: , ., with your clients, it is incredible “unlint. �* , ., , juggling. my clients have been fantastic. i— juggling. my clients have been fantastic. i have _ juggling. my clients have been fantastic. i have always - juggling. my clients have been fantastic. i have always had i juggling. my clients have been i fantastic. i have always had open relationships, i have 30 clients throughout the uk with employment law and i have always banged the drum for making a difference. i started a pledge two weeks ago, getting employers to commit to get paid time off for people to go for breast screening and talk about cancer and use the likes of mcmillan, maggie support centre, use these great resources that we have two come in and give free advice and
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support. already within two weeks i have over 30 businesses throughout the uk signed up to this pledge. they will have a nice and shiny certificate. nothing to do with my business, i am certificate. nothing to do with my business, lam not certificate. nothing to do with my business, i am not taking on any more clients, it is just my personal journey has to make a difference to others. i hope it will. that journey has to make a difference to others. i hope it will.— others. i hope it will. that is incredible. _ others. i hope it will. that is incredible. given _ others. i hope it will. that is incredible. given what i others. i hope it will. that is incredible. given what you i others. i hope it will. that is i incredible. given what you have others. i hope it will. that is - incredible. given what you have been through as well. cheersjulie, all good now, feeling good? still through as well. cheers julie, all good now, feeling good? still tired, but ou good now, feeling good? still tired, but you just — good now, feeling good? still tired, but you just get _ good now, feeling good? still tired, but you just get on _ good now, feeling good? still tired, but you just get on with _ good now, feeling good? still tired, but you just get on with it, - good now, feeling good? still tired, but you just get on with it, haven't i but you just get on with it, haven't you? my cancer was found and has been treated, so i am one of the lucky ones. been treated, so i am one of the lucky ones— been treated, so i am one of the luc ones. :, ,, . .,~ lucky ones. thank you so much, take care. i lucky ones. thank you so much, take care- i will — lucky ones. thank you so much, take care- i will give _ lucky ones. thank you so much, take care. i will give you _ lucky ones. thank you so much, take care. i will give you a _ lucky ones. thank you so much, take care. i will give you a welsh - care. i will give you a welsh government spokesperson statement, we are investing heavily in cancer services to train additional staff, build new facilities to increase early detection to make sure people receive the right treatment as quickly as possible. let's go with
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rob in nottingham and nikki in formby coming up. good morning to both of you. formby coming up. good morning to both of yon-— formby coming up. good morning to both of you.- cancer, - formby coming up. good morning to both of you.- cancer, the i both of you. hello. cancer, the dela , both of you. hello. cancer, the delay. what — both of you. hello. cancer, the delay. what do _ both of you. hello. cancer, the delay, what do you _ both of you. hello. cancer, the delay, what do you think? - both of you. hello. cancer, the delay, what do you think? i - both of you. hello. cancer, the delay, what do you think? i am brinuain delay, what do you think? i am bringing up _ delay, what do you think? i am bringing up basically _ delay, what do you think? i—n bringing up basically because delay, what do you think? i—n bringing up basically because my friend has gone in for treatment this morning for prostrate cancer. he has been waiting... he has been on the list for over a year. earlier this year he was diagnosed with this cancer and his appointment for treatment has been put back and put back. he is worried as time has gone on, obviously and has paid for it himself, gone private. the annoying thing is, the same surgeon that is performing this private operation would have been doing it on the nhs.
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how much is it? it is would have been doing it on the nhs. how much is it?— how much is it? it is 17,000, plus medication- _ how much is it? it is 17,000, plus medication. he _ how much is it? it is 17,000, plus medication. he has _ how much is it? it is 17,000, plus medication. he has got _ how much is it? it is 17,000, plus medication. he has got to - how much is it? it is 17,000, plus medication. he has got to pay - how much is it? it is 17,000, plus medication. he has got to pay for| medication. he has got to pay for that separately as well. as i say, the same surgeon that is doing this operation privately is doing it in nhs time, as far as i know. the? operation privately is doing it in nhs time, as far as i know. they get contracts, don't _ nhs time, as far as i know. they get contracts, don't they. _ nhs time, as far as i know. they get contracts, don't they. they - nhs time, as far as i know. they get contracts, don't they. they have - contracts, don't they. they have contracts, don't they. they have contract for so many days work and then they have three days. you might do it yourself, i might do it myself. do it yourself, i might do it m self. . , do it yourself, i might do it m self. ., , , ., , myself. do a better private. it is fortunate my — myself. do a better private. it is fortunate my friend _ myself. do a better private. it is fortunate my friend can - myself. do a better private. it is fortunate my friend can afford . myself. do a better private. it is. fortunate my friend can afford to. it is ironic that the same surgeon is doing it, that's all. i it is ironic that the same surgeon is doing it, that's all.— is doing it, that's all. i get that completely. — is doing it, that's all. i get that completely, frustrating. - is doing it, that's all. i get that completely, frustrating. i - is doing it, that's all. i get that completely, frustrating. i had. is doing it, that's all. i get that| completely, frustrating. i had a friend years ago needed treatment and he said, how long will it be?
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possibly three orfour and he said, how long will it be? possibly three or four months. then he said what if i went private and the doctor said, next week. that is the doctor said, next week. that is the way it is. 17,000, that is a hit. plus medication on top of that? it certainly is. hit. plus medication on top of that? it certainly is-_ hit. plus medication on top of that? it certainly ia— it certainly is. rob, thank you. i want to throw _ it certainly is. rob, thank you. i want to throw that _ it certainly is. rob, thank you. i want to throw that to _ it certainly is. rob, thank you. i want to throw that to julian. - it certainly is. rob, thank you. i want to throw that to julian. it | it certainly is. rob, thank you. i | want to throw that to julian. it is want to throw that to julian. it is interesting, more and more people seem to be taking out insurance or just paying for it at the moment, because of some of the frustrations and the brick walls they are coming up and the brick walls they are coming up against in certain circumstances? nicky, that shouldn't be necessary, it is the _ nicky, that shouldn't be necessary, it is the whole point of what we are trying _ it is the whole point of what we are trying to _ it is the whole point of what we are trying to say. if there was a sufficient _ trying to say. if there was a sufficient workforce, we should be doing _ sufficient workforce, we should be doing it _ sufficient workforce, we should be doing it in — sufficient workforce, we should be doing it in the nhs. you sufficient workforce, we should be doing it in the nhs.— doing it in the nhs. you are not blamin: doing it in the nhs. you are not blaming people _ doing it in the nhs. you are not blaming people for— doing it in the nhs. you are not blaming people for doing - doing it in the nhs. you are not blaming people for doing it - doing it in the nhs. you are not - blaming people for doing it though? of course i am not blaming anybody. of course i am not blaming anybody. aren't _
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of course i am not blaming anybody. aren't people wonderful, they are so sloical, _ aren't people wonderful, they are so stoical, they are so kind about the staff who — stoical, they are so kind about the staff who are desperately trying to look after them. it is the not knowing _ look after them. it is the not knowing that is the difficult thing, it is the _ knowing that is the difficult thing, it is the waiting, people are anxious, _ it is the waiting, people are anxious, they don't know what is going _ anxious, they don't know what is going to — anxious, they don't know what is going to happen. this is the end result_ going to happen. this is the end result of— going to happen. this is the end result of many, many years of underinvestment in the workforce. we are calling _ underinvestment in the workforce. we are calling for the government to publish _ are calling for the government to publish the workforce plan and make it fully _ publish the workforce plan and make it fully funded and we want to provide — it fully funded and we want to provide the services patients deserve _ provide the services patients deserve. 35s provide the services patients deserve. �* , ,, provide the services patients deserve. �* ,, ., deserve. a spokesperson said we are fully focused — deserve. a spokesperson said we are fully focused on _ deserve. a spokesperson said we are fully focused on improving _ deserve. a spokesperson said we are fully focused on improving cancer - fully focused on improving cancer outcomes and as of january 2023 the number of nhs cancer doctors have increased by more than half. these include an increase of over 3000 of whom 63% of consultants who are working with teams who provide care to cut nhs waiting list. one of the government's top five priorities. we want to build on this progress and will publish a workforce plan to ensure we have the right numbers of
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staff with the right skills to deliver high quality services fit for the future.— deliver high quality services fit - for the future._ hello. for the future. hello, nikki. hello. tell us about _ for the future. hello, nikki. hello. tell us about the _ for the future. hello, nikki. hello. tell us about the waiting? - for the future. hello, nikki. hello. tell us about the waiting? i - for the future. hello, nikki. hello. tell us about the waiting? i didn't| tell us about the waiting? i didn't necessarily _ tell us about the waiting? i didn't necessarily blame _ tell us about the waiting? i didn't necessarily blame my _ tell us about the waiting? i didn't necessarily blame my rating - tell us about the waiting? i didn't necessarily blame my rating on i tell us about the waiting? i didn't i necessarily blame my rating on staff shortages. it could be, it could be. but i think i have just been unfortunate as well. i went to the doctor with stomach pains and i thought, i had a bit of back pain but nothing like, just like everybody has back pain. i had breast cancer in 2017 and went through the treatment for that. and we didn'tjoin the dots, the gp didn'tjoin the dots, i didn'tjoin the dots. i got referred to a gastroenterologist and in the end there was nothing wrong with my stomach at all, and all my organs
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were ok, thank god. but it was her that said but... she did a scan on my chest and my pelvis and then abdomen. she said unfortunately, it looks like you have got cancer in your bones. but she said i am not an expert. that was the end of march, she told me that on the last day of march. then we had easter and i got referred on to the hospital, who were wonderful. but i got referred on to them and so i then had to wait for an mri to confirm what they suspected. and then you have the holidays, the may bank holidays as well. i don't know whether the doctor strikes affected it, i would like to think not. but then of
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course, i had these little lesions on my skin, just about five of them that looked very innocuous. i had gone to my gp three or four times with them and they said they were nothing. you know, ifeel awful saying that, because they have been really good to me, my gp but perhaps we should have joined the dots again because i had to have... they said we cannot give you a treatment plan until you have had a biopsy of these lesions. i still haven't had the results of those. they said they would be two, three weeks. it is going to be slightly over that. from the end of march from when i got the bad news, but unofficially because it was a gastro person. then it will be, you know, mid to latejune when
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i start treatment. haifa be, you know, mid to late june when i start treatment._ i start treatment. how is your mental health? _ i start treatment. how is your mental health? it _ i start treatment. how is your mental health? it is _ i start treatment. how is your mental health? it is a - i start treatment. how is your mental health? it is a long i i start treatment. how is your i mental health? it is a long time. i start treatment. how is your - mental health? it is a long time. i am not bad, i have had a few meltdowns, but i am not bad at living in the moment.— meltdowns, but i am not bad at living in the moment. what were the meltdowns like, _ living in the moment. what were the meltdowns like, what _ living in the moment. what were the meltdowns like, what is _ living in the moment. what were the meltdowns like, what is that - living in the moment. what were the meltdowns like, what is that like, i meltdowns like, what is that like, what happens? i tn;r meltdowns like, what is that like, what happens?— meltdowns like, what is that like, what hauens? , ., ., what happens? i try to do something nice every day- _ what happens? i try to do something nice every day- l _ what happens? i try to do something nice every day. i still _ what happens? i try to do something nice every day. i still take _ what happens? i try to do something nice every day. i still take the - what happens? i try to do something nice every day. i still take the dog i nice every day. i still take the dog for a walk, i can still run up the stairs. i have only had, because i know it is in my spine and my ribs, i have had a few episodes of appalling pain, but most of the time it is an niggle. but every time i feel a new niggle in a new area, i think, oh dear. how far is it going without being checked? i have every confidence in my team, but what i
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did was contact them this week and i said, hopefully i will get my treatment plan next wednesday, please don't tell me next wednesday that it's going to be another fortnight before i start, because from the end of march that is just... such a long time. you have waited long _ just... such a long time. you have waited long enough? _ just... such a long time. you have waited long enough? the - just... such a long time. you have waited long enough? the gold - waited long enough? the gold standard, waited long enough? the gold standard. i — waited long enough? the gold standard, i am _ waited long enough? the gold standard, i am on _ waited long enough? the gold standard, i am on the - waited long enough? the gold standard, i am on the bronze, j waited long enough? the gold - standard, i am on the bronze, aren't i? i have tried, today i am going to a hyperbaric oxygen chamber. i have booked a weekend away with my husband for a spa. i did have a blood transfusion because i was anaemic. i am trying different things, i have got the cannabis oil on the go. which i don't know if it is helping or not, but it is certainly not doing me any harm. i have got my supplements lined up in
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front of me. but, you know, it is very draining, mentally. sometimes you think, how am i going to last? you have got so much to do. you know, i haven't really, until the headlines this morning, i haven't really thought about is the delay due to the staff shortages or have i just been unfortunate because there has been two bank holidays, an easter holiday, a few strikes, you know? have ijust hit the wrong time and the delay with the lesion diagnosis and that kind of thing. but, yeah, it is scary thing. well, eah. but, yeah, it is scary thing. well, yeah- you — but, yeah, it is scary thing. well, yeah. you think, _ but, yeah, it is scary thing. well, yeah. you think, this _ but, yeah, it is scary thing. well, yeah. you think, this is _ but, yeah, it is scary thing. well, yeah. you think, this is me, - but, yeah, it is scary thing. well, yeah. you think, this is me, you | yeah. you think, this is me, you know. yeah. you think, this is me, you know- when _ yeah. you think, this is me, you know. when they _ yeah. you think, this is me, you
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know. when they were - yeah. you think, this is me, you know. when they were saying i yeah. you think, this is me, you i know. when they were saying they yeah. you think, this is me, you - know. when they were saying they had these medical team meetings with the experts and the doctors discuss what the plan forward will be and i said, i don't go to that, do i? and one of the doctor said, no, you don't go to that. and i said, maybe i will, maybe i will turn up and say, look, you are talking about me here. but they do treat you very well and you feel it is personal and geared to you, but it is just the length of time that it has taken and ijust hope that when i go next week and they say you can start on monday are you can start on friday, not in three weeks' time. i think i will just reap. three weeks' time. i think i will just reap-_ three weeks' time. i think i will 'ust rea-. . , , ., just reap. please text us, we read all the text- _ just reap. please text us, we read all the text. i — just reap. please text us, we read all the text. i will. _ just reap. please text us, we read all the text. i will. listening - just reap. please text us, we read all the text. i will. listening to i all the text. i will. listening to the people _ all the text. i will. listening to the people who _ all the text. i will. listening to the people who said _ all the text. i will. listening to the people who said they - all the text. i will. listening to the people who said they were j all the text. i will. listening to - the people who said they were going privately and stuff like that, in
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some ways a kind of makes you feel that there is no finer treatment than the nhs. itjust doesn't exist. it proves it when you have a consultant who is taking on private work, it is the same consultant you see in the hospital. it proved to you that you have got the best people anyway. as long as you can get them. people anyway. as long as you can aet them. �* .., . people anyway. as long as you can aetthem. �* . , people anyway. as long as you can aetthem. �* , , ., people anyway. as long as you can aetthem. �* , ,~ .. ., get them. because they are able to command, get them. because they are able to command. and _ get them. because they are able to command, and good _ get them. because they are able to command, and good luck _ get them. because they are able to command, and good luck to - get them. because they are able to command, and good luck to them, | get them. because they are able to - command, and good luck to them, they can command big money in the private sector because they are the best. yes, absolutely. oh, anyway. i will let you know. yes, absolutely. oh, anyway. iwill let you know— yes, absolutely. 0h, anyway. iwill let you know. please do and all the best. let you know. please do and all the best- good — let you know. please do and all the best. good luck. _ let you know. please do and all the best. good luck. thank _ let you know. please do and all the best. good luck. thank you, - let you know. please do and all the best. good luck. thank you, thank| best. good luck. thank you, thank ou so best. good luck. thank you, thank you so much _ best. good luck. thank you, thank you so much and _ best. good luck. thank you, thank you so much and good _ best. good luck. thank you, thank you so much and good luck - best. good luck. thank you, thank you so much and good luck to - you so much and good luck to everybody else. i have not seen any
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pioneering stuff like the last lady, maybe i should.— pioneering stuff like the last lady, maybe i should. julian, let's end on a positive. — maybe i should. julian, let's end on a positive. 40 _ maybe i should. julian, let's end on a positive, 40 seconds, _ maybe i should. julian, let's end on a positive, 40 seconds, i— maybe i should. julian, let's end on a positive, 40 seconds, iwill- maybe i should. julian, let's end on a positive, 40 seconds, i will have. a positive, 40 seconds, i will have to interrupt you, exciting new developments, we are entering a new era, julian? yes developments, we are entering a new era, julian? . developments, we are entering a new era, julian? , ., developments, we are entering a new era. julian?— era, julian? yes we are, some very excitin: era, julian? yes we are, some very exciting things. _ era, julian? yes we are, some very exciting things, not _ era, julian? yes we are, some very exciting things, not on _ era, julian? yes we are, some very exciting things, not on the - era, julian? yes we are, some veryj exciting things, not on the horizon, but the near horizon. this new invasive radiological equipment coming in. interventional procedures come in, radiotherapy, and enhanced radiotherapy procedures and oncology. very exciting new treatments, some immunotherapy treatments, some immunothera py treatments, some immunotherapy treatments we hope will transform certain sorts of cancer. there is a chink of light that we really need the workforce to be able to deliver these things. that is what we are calling on the government to deliver the workforce plan that is fully funded to do the things these poor patients are waiting for and that they deserve. patients are waiting for and that they deserve-— patients are waiting for and that the deserve. . ~ , ., , . they deserve. thank you very much, ou did they deserve. thank you very much, you did that — they deserve. thank you very much, you did that brilliantly. _ they deserve. thank you very much, you did that brilliantly. it _ they deserve. thank you very much, you did that brilliantly. it was - they deserve. thank you very much, you did that brilliantly. it was on - you did that brilliantly. it was on the nose, 40 seconds. cancer
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specialist and thank you. this was a commitment i made only a few weeks ago, somebody mentioned it was coming up, national carers week, and it is so important. it could be you. probably is. being recognised for their incredible work you do for your loved one, and also the amount of money you save the economy. you probably feel that you are underappreciated, not recognised. believe you me, you are appreciated, you are recognised. around 9% of people in this country are providing unpaid care, true vips, ifor important, irreplaceable, incredible. let's hearfrom you important, irreplaceable, incredible. let's hear from you this morning. if you are a carer, i would
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love you to get in touch, tell me what motivates you, tell me about the challenges, the difficulties, the challenges, the difficulties, the struggles, the joys as well. what do you find rewarding? what keeps you going? why do you do it? 08085 909693. i think it will be busy, so get your text in, and we are talking about heroes. we are talking about unpaid carers. here is the news from bethan holmes. thanks, nicky. the national clinical director for cancer at nhs england has admitted that the health service is struggling to do everything it needs to do for people diagnosed with cancer. professor peterjohnson says there are staff shortages —
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but most treatment is being delivered in a timely way. he's responding to the royal college of radiologists which says the nhs is struggling to provide safe and effective care for cancer patients across the uk. the french prime minister is travelling to the scene of a stabbing attack in southern france. children are among several people who have been attacked. the suspect has been arrested. president zelensky has been visisting an area of the southern kherson region, which has been flooded following the destruction of a dam on tuesday. dislodged landmines following the flooding has sparked major concerns. and the green party's only mp — caroline lucas — has announced she's standing down at the next general election. she's represented brighton pavilion since 2010. but she says her parliamentary work has prevented herfrom focusing on nature and climate emergencies.
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national carers week, and we are going to celebrate the carers. this involves a quick copy and paste here... carer�* allowance, carers can get up to 76.75 a week, about 300 quid a month or thereabouts. many people are saying you have to go through hoops and also does that not sure they are undervalued? we will discuss all that and we will discuss the emotional toll as well as the financial impact as well, i maybe you arejuggling work financial impact as well, i maybe you are juggling work as well. an astonishing amount of people are caring and working at the same time. what toll does not take on you physically? what toll does it take mentally as well? —— does that take on you. here is a start. unpaid carers, just england and wales,
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contribute 162 billion per year to the economy, equivalent to a second nhs. the money they save, the things they do, the help they provide. emily kenway is the author of who cares? the hidden crisis of caregivers and how we solve it. she cared for her mother. emily, good morning. it's a pleasure. laura bennett had a policy at carers uk, and tegan in newport, hello. is that right? and tegan in newport, hello. is that ritht? ., , ., and tegan in newport, hello. is that ritht? . . . it's and tegan in newport, hello. is that right?— it's a - right? yeah, it is tegan. it's a rare occasion _ right? yeah, it is tegan. it's a rare occasion where _ right? yeah, it is tegan. it's a rare occasion where i - right? yeah, it is tegan. it's a rare occasion where i have - right? yeah, it is tegan. it's aj rare occasion where i have got right? yeah, it is tegan. it's a i rare occasion where i have got it right. 19. tell your story.- rare occasion where i have got it right. 19. tell your story. when i was a baby _ right. 19. tell your story. when i was a baby i _ right. 19. tell your story. when i was a baby i went _ right. 19. tell your story. when i was a baby i went to _ right. 19. tell your story. when i was a baby i went to live - right. 19. tell your story. when i was a baby i went to live with i right. 19. tell your story. when i | was a baby i went to live with my grandparents and my dad, his mum and dad but unfortunately my dad had passed away when i was five so my grandparents took on the role of me and my brother and they had their
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own children at home as well and two of them were severely disabled. what that means is as we have grown up it is just becoming increasingly harder to live with the cost of living crisis, bills incredibly high... when you have 7—8 mouths to feed in one house, that can be really hard. the problem as well, my grandfather over the years also developed disabilities so my grandmother is a full—time carer now for three disabled adults and then the rest of us live in the house and she actually only gets about £70 a week to live on. she doesn't get any payment for us any more because we are adults and the problem i have is because i run my own business, i have a shop in the port, i want to contribute more but there is not a
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lot more i can do. i do help care for the adults as well. i will get prescriptions and for my nan, i will take the adults out and things like that, but it is like basic clothing items, she can't even afford to buy them for herself, and it is not even a case of, send them... we love our family members so much and we know what they are comfortable with and they wouldn't want respite, as much as it helps loads of families across the uk, that isjust as it helps loads of families across the uk, that is just not feasible for our family. the uk, that is just not feasible for ourfamily. without the uk, that is just not feasible for our family. without want that. but imagine being a carer but on call 24/7, so she hasn't got... no disrespect but she can'tjust go into work, care for those adults, come home and have her life. her life is constantly being a carer and we have to be on the ball to help in situations because those family
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members to end up in hospital, they can get severely ill and that is the hardest part about living in a house like that as well tell hardest part about living in a house like that as wel— like that as well tell us about your nan. she sounds _ like that as well tell us about your nan. she sounds remarkable. - like that as well tell us about your nan. she sounds remarkable. she like that as well tell us about your. nan. she sounds remarkable. she is absolutely credible. _ nan. she sounds remarkable. she is absolutely credible. growing - nan. she sounds remarkable. she is absolutely credible. growing up, - nan. she sounds remarkable. ’iie: 3 absolutely credible. growing up, she let me call her mum, so we grew such a special bond. she is always the first to help somebody, and she can't even afford to buy herself new underwear. she will walk around the house with holes in her socks, and you try to buy them for her if you have a spare bit of money, but it is not about that to her. she doesn't want her children to look after her. she has always taken on that role of being that type of person. it is like the littlest things, not little to other people but for her she is the last person to eat in the house. she will let her food go cold to
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make sure everybody else is sorted and ready. it'sjust a shame because she is seen as invisible to the government. people who take on that role, theyjust get tired with the same brush, oh, they choose to do that, they choose to care, but that is something she didn't choose in life to do that. as much as she tries not to let it be seen as a burden, it really does affect her. and i don't know how one person can do everything that she does and that she has done, especially with me and my brother for the past 18 years of our life, it's absolutely incredible and ijust wish people like her and all the other carer limit across the uk that are ok that work so hard to get the recognition more support. what a start. tegan, thank you very much indeed. tina in manchester, good morning.
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much indeed. tina in manchester, good morning-— much indeed. tina in manchester, | good morning._ over much indeed. tina in manchester, - good morning._ over to good morning. good morning. over to ou. i 'ust good morning. good morning. over to you- liust want _ good morning. good morning. over to you- liust want to _ good morning. good morning. over to you. i just want to listen _ good morning. good morning. over to you. ijust want to listen -- _ good morning. good morning. over to you. ijust want to listen -- other- you. ijust want to listen —— other carers across the uk. i you. ijust want to listen -- other carers across the uk.— you. ijust want to listen -- other carers across the uk. i am a carer for my daughter _ carers across the uk. i am a carer for my daughter who _ carers across the uk. i am a carer for my daughter who is _ carers across the uk. i am a carer for my daughter who is now - carers across the uk. i am a carer for my daughter who is now 28 i carers across the uk. i am a carer. for my daughter who is now 28 and from _ for my daughter who is now 28 and from the _ for my daughter who is now 28 and from the day— for my daughter who is now 28 and from the day she _ for my daughter who is now 28 and from the day she was _ for my daughter who is now 28 and from the day she was born - for my daughter who is now 28 and from the day she was born i - for my daughter who is now 28 and from the day she was born i have l from the day she was born i have cared _ from the day she was born i have cared for— from the day she was born i have cared for her~ _ from the day she was born i have cared for her. she _ from the day she was born i have cared for her. she had _ from the day she was born i have cared for her. she had lots - from the day she was born i have cared for her. she had lots of- cared for her. she had lots of medical— cared for her. she had lots of medical problems, _ cared for her. she had lots ofl medical problems, epilepsy... cared for her. she had lots of- medical problems, epilepsy... at the minute _ medical problems, epilepsy... at the minute we _ medical problems, epilepsy... at the minute we iust — medical problems, epilepsy... at the minute we just sat _ medical problems, epilepsy... at the minute we just sat in _ medical problems, epilepsy... at the minute we just sat in the _ medical problems, epilepsy... at the minute we just sat in the hospital, i minute we just sat in the hospital, here all— minute we just sat in the hospital, here all day— minute we just sat in the hospital, here all day for— minute we just sat in the hospital, here all day for some _ minute we just sat in the hospital, here all day for some testing. - minute we just sat in the hospital, here all day for some testing. she| here all day for some testing. she has lots _ here all day for some testing. she has lots of— here all day for some testing. she has lots of different _ here all day for some testing. she has lots of different things. - here all day for some testing. she has lots of different things. she i here all day for some testing. she has lots of different things. she is fed by— has lots of different things. she is fed by a _ has lots of different things. she is fed bya tube. _ has lots of different things. she is fed by a tube, she _ has lots of different things. she is fed by a tube, she is— has lots of different things. she is fed by a tube, she is hoisted, - has lots of different things. she is fed by a tube, she is hoisted, so. has lots of different things. she is i fed by a tube, she is hoisted, so we 'ust fed by a tube, she is hoisted, so we iust takem — fed by a tube, she is hoisted, so we iust takem well, _ fed by a tube, she is hoisted, so we just take... well, not— fed by a tube, she is hoisted, so we just take... well, not every- fed by a tube, she is hoisted, so we just take... well, not every day- just take... well, not every day as it comes, — just take... well, not every day as it comes, but _ just take... well, not every day as it comes, but every _ just take... well, not every day as it comes, but every hour- just take... well, not every day as it comes, but every hour as - just take... well, not every day as it comes, but every hour as it- it comes, but every hour as it comes, — it comes, but every hour as it comes, and _ it comes, but every hour as it comes, and we _ it comes, but every hour as it comes, and we just _ it comes, but every hour as it comes, and we just get - it comes, but every hour as it comes, and we just get up i it comes, but every hour as it. comes, and we just get up and it comes, but every hour as it- comes, and we just get up and get on with it _ comes, and we just get up and get on with it because — comes, and we just get up and get on with it because that _ comes, and we just get up and get on with it because that is _ comes, and we just get up and get on with it because that is what _ comes, and we just get up and get on with it because that is what we - comes, and we just get up and get on with it because that is what we have l with it because that is what we have done, _ with it because that is what we have done, but _ with it because that is what we have done, but obviously _ with it because that is what we have done, but obviously there _ with it because that is what we have done, but obviously there are - with it because that is what we havel done, but obviously there are people out there _ done, but obviously there are people out there who — done, but obviously there are people out there who don't _ done, but obviously there are people out there who don't have _ done, but obviously there are people out there who don't have the - done, but obviously there are people out there who don't have the carers i out there who don't have the carers to do— out there who don't have the carers to do that _ out there who don't have the carers to do that for — out there who don't have the carers to do that for them _ out there who don't have the carers to do that for them and _ out there who don't have the carers to do that for them and basically i to do that for them and basically it hasiust_ to do that for them and basically it hasiust been— to do that for them and basically it hasjust been our— to do that for them and basically it hasjust been our life _ to do that for them and basically it hasjust been our life and - to do that for them and basically it hasjust been our life and that- to do that for them and basically it hasjust been our life and that is. hasjust been our life and that is what _ hasjust been our life and that is what we — hasjust been our life and that is what we have _ hasjust been our life and that is what we have known _ hasjust been our life and that is
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what we have known just - hasjust been our life and that is what we have known just from l hasjust been our life and that is- what we have knownjust from rachel being _ what we have knownjust from rachel being born _ what we have knownjust from rachel being born ll— what we have knownjust from rachel being born it is— what we have known 'ust from rachel bein: born. , , .,, ,, what we have known 'ust from rachel bein: born. , , ~ being born. it is people like you who deserve — being born. it is people like you who deserve our— being born. it is people like you who deserve our praise - being born. it is people like you who deserve our praise and - being born. it is people like you - who deserve our praise and gratitude because, you know, you are saving this country all in all billions of pounds. i read out the stat earlier on. what is your life like? mr; on. what is your life like? my life... on. what is your life like? my life- -- to _ on. what is your life like? my life... to be— on. what is your life like? my life... to be fair, _ on. what is your life like? my life... to be fair, itjust revolves around — life... to be fair, itjust revolves around rachel, _ life... to be fair, itjust revolves around rachel, more _ life... to be fair, itjust revolves around rachel, more than- life... to be fair, itjust revolves- around rachel, more than anything, and what _ around rachel, more than anything, and what she — around rachel, more than anything, and what she needs. _ around rachel, more than anything, and what she needs. we _ around rachel, more than anything, and what she needs. we have - around rachel, more than anything, and what she needs. we have lots l around rachel, more than anything, | and what she needs. we have lots of hospital— and what she needs. we have lots of hospital appointments. _ and what she needs. we have lots of hospital appointments. today- and what she needs. we have lots of hospital appointments. today we - and what she needs. we have lots ofj hospital appointments. today we are here from _ hospital appointments. today we are here from eight— hospital appointments. today we are here from eight till— hospital appointments. today we are here from eight till eight _ hospital appointments. today we are here from eight till eight for - here from eight till eight for tests. — here from eight till eight for tests, nothing _ here from eight till eight for tests, nothing new- here from eight till eight for tests, nothing new at - here from eight till eight for tests, nothing new at the i here from eight till eight for - tests, nothing new at the minute. that is— tests, nothing new at the minute. that isiust — tests, nothing new at the minute. that is just life, _ tests, nothing new at the minute. that isjust life, weeks— tests, nothing new at the minute. that isjust life, weeks on- tests, nothing new at the minute. that isjust life, weeks on end - tests, nothing new at the minute. that isjust life, weeks on end in. that isjust life, weeks on end in hospitals — that isjust life, weeks on end in hospitals where _ that isjust life, weeks on end in hospitals where i— that isjust life, weeks on end in hospitals where i have _ that isjust life, weeks on end in hospitals where i have not- that isjust life, weeks on end in hospitals where i have not left i that isjust life, weeks on end in i hospitals where i have not left her at all. _ hospitals where i have not left her at all. sat— hospitals where i have not left her at all. sat in— hospitals where i have not left her at all. sat in a— hospitals where i have not left her at all, sat in a chair, _ hospitals where i have not left her at all, sat in a chair, slept - hospitals where i have not left her at all, sat in a chair, slept in - hospitals where i have not left her at all, sat in a chair, slept in a - at all, sat in a chair, slept in a chain — at all, sat in a chair, slept in a chain then— at all, sat in a chair, slept in a chair. then again, _ at all, sat in a chair, slept in a chair. then again, that's - at all, sat in a chair, slept in a chair. then again, that's life. i at all, sat in a chair, slept in a i chair. then again, that's life. you see, this chair. then again, that's life. you see. this is _ chair. then again, that's life. you see, this is the _ chair. then again, that's life. you see, this is the thing. _ chair. then again, that's life. see, this is the thing. is it, you just have to get on with it and that's life. people who are doing extraordinary things like you, what
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makes you also so amazing as you are not whinging about it, you're not complaining but you think, oh, there is always someone else worse off, but you are incredible. and obviously you love your daughter and we would all do anything for our kids, but your dedication and your self—sacrifice, that's what we're talking about this morning, tina, and everybody should be saying thank you to people like you.— you to people like you. yeah. like i sa , i you to people like you. yeah. like i say. i always _ you to people like you. yeah. like i say. i always say. _ you to people like you. yeah. like i say, i always say, children - you to people like you. yeah. like i say, i always say, children don't i say, i always say, children don't ask to _ say, i always say, children don't ask to be — say, i always say, children don't ask to be born _ say, i always say, children don't ask to be born and _ say, i always say, children don't ask to be born and she - say, i always say, children don't ask to be born and she is - say, i always say, children don't ask to be born and she is my. ask to be born and she is my daughter— ask to be born and she is my daughter and _ ask to be born and she is my daughter and this _ ask to be born and she is my daughter and this is - ask to be born and she is my daughter and this is where ii ask to be born and she is my. daughter and this is where i am ask to be born and she is my- daughter and this is where i am in life and. _ daughter and this is where i am in life and. you — daughter and this is where i am in life and, you know, _ daughter and this is where i am in life and, you know, you _ daughter and this is where i am in life and, you know, you just- daughter and this is where i am in life and, you know, you just havel daughter and this is where i am in i life and, you know, you just have to keep— life and, you know, you just have to keep going — life and, you know, you just have to keep going yeah _ life and, you know, you just have to keep going. yeah. just— life and, you know, you 'ust have to keep going. yeah.— life and, you know, you 'ust have to keep going. veep.— keep going. yeah. just got to keep anoin. keep going. yeah. just got to keep going- tegan _ keep going. yeah. just got to keep going- tegan and _ keep going. yeah. just got to keep going. tegan and tina... _ keep going. yeah. just got to keep going. tegan and tina... that's - going. tegan and tina... that's life, as you said. two brilliant examples, emma, author of the crisis
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in care, caregiving and how we solve it, we couldn't have a stronger and more illustrative start, could we? absolutely. these are stories that are unfortunately all too common, people _ are unfortunately all too common, people having lives completely engulfed by caring, financial situation is being taken over, as we heard _ situation is being taken over, as we heard from — situation is being taken over, as we heard from tegan, kind of becoming an accessory to someone else, really. — an accessory to someone else, really. and _ an accessory to someone else, really, and not getting the opportunity to have your own kind of identity _ opportunity to have your own kind of identity and career and so on. i do want _ identity and career and so on. i do want to— identity and career and so on. i do want to say— identity and career and so on. i do want to say that i think obviously the people we heard from, and i was carer— the people we heard from, and i was carer for— the people we heard from, and i was carer for my— the people we heard from, and i was carerfor my mum as the people we heard from, and i was carer for my mum as well, yes, of course, _ carer for my mum as well, yes, of course, we — carer for my mum as well, yes, of course, we should champion this, and what we _ course, we should champion this, and what we have — course, we should champion this, and what we have done and what people are doing. _ what we have done and what people are doing, it is remarkable, and i can't— are doing, it is remarkable, and i can't express to you how hard the experience — can't express to you how hard the experience of being a carer is, and there _ experience of being a carer is, and there is— experience of being a carer is, and there is no— experience of being a carer is, and there is no way of exaggerating that and what _ there is no way of exaggerating that and what you go through. equally, when _ and what you go through. equally, when we _ and what you go through. equally, when we talk about carers as heroes and remarkable, it can make us sound like a— and remarkable, it can make us sound like a different breed in some way
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and actually we are just people who had something happen. we are exactly the same _ had something happen. we are exactly the same as— had something happen. we are exactly the same as you. something happened in our— the same as you. something happened in our lives _ the same as you. something happened in our lives and then we had to become — in our lives and then we had to become a _ in our lives and then we had to become a carer, right? like my and any others — become a carer, right? like my and any others could, you're absolutely right _ any others could, you're absolutely right but _ any others could, you're absolutely right but it— any others could, you're absolutely right. but it is so good to be able to talk— right. but it is so good to be able to talk about it right. but it is so good to be able to talk about i— to talk about it and 'ust remind --eole to talk about it and 'ust remind people -- t to talk about it and 'ust remind people -- yes. _ to talk about it and 'ust remind people -- yes. enoh to talk about it and just remind people -- yes, and any - to talk about it and just remind people -- yes, and any of - to talk about it and just remind people -- yes, and any of us i to talk about it and just remind - people -- yes, and any of us could people —— yes, and any of us could become one. those others, as you rightly say, it could be them as well. ., ., . rightly say, it could be them as well. ., ., , well. yeah, and will be. if we look at the trends _ well. yeah, and will be. if we look at the trends on _ well. yeah, and will be. if we look at the trends on longevity, - well. yeah, and will be. if we look at the trends on longevity, we - well. yeah, and will be. if we lookj at the trends on longevity, we live longer— at the trends on longevity, we live longer now— at the trends on longevity, we live longer now but we also live sicker, and people — longer now but we also live sicker, and people are living with dementia for up _ and people are living with dementia for up to— and people are living with dementia for up to 20 years and there is someone _ for up to 20 years and there is someone there, a family member there. _ someone there, a family member there, providing care at least some of the _ there, providing care at least some of the time — there, providing care at least some of the time in those scenarios. when we look— of the time in those scenarios. when we look at _ of the time in those scenarios. when we look at the increases in dementia and parkinson's and so on, we should all really— and parkinson's and so on, we should all really be _ and parkinson's and so on, we should all really be expecting to become carers _ all really be expecting to become carers like tegan and tina and myself— carers like tegan and tina and myself in _ carers like tegan and tina and myself in the future, so the question— myself in the future, so the question then becomes, what do we do? if_ question then becomes, what do we do? if we _ question then becomes, what do we do? if we are all going to be in that— do? if we are all going to be in that situation and it is that hard how do— that situation and it is that hard how do we _ that situation and it is that hard how do we arrange things better?
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yeah, _ how do we arrange things better? yeah, an— how do we arrange things better? yeah, an government clinic have kind of dodged it, kicked it into the long grass, government of dodged it, kicked it into the long 91’355, government after long grass, government after government, the main station after mr shin —— and governments have kind of dodged it. are you still there, tina? i of dodged it. are you still there, tina? ., i of dodged it. are you still there, tina?- l have _ of dodged it. are you still there, tina?- i have a _ of dodged it. are you still there, tina?- i have a text - of dodged it. are you still there, tina?- i have a text which l tina? i am. i have a text which occasioned _ tina? i am. i have a text which occasioned as _ tina? i am. i have a text which occasioned as asking _ tina? i am. i have a text which occasioned as asking you - tina? i am. i have a text which occasioned as asking you to i tina? i am. i have a text which i occasioned as asking you to come tina? i am. i have a text which occasioned as asking you to come on because it was from your daughter, rachel, i think? ? because it was from your daughter, rachel, i think?? it is, yes. because it was from your daughter, rachel, ithink?? it is, yes. "my mum is an amazing unpaid carer who has looked after me day in, day out for the last 27 years of my life. mum never takes time to herself and doesn't think twice about sleeping in a chairwhile doesn't think twice about sleeping in a chair while i'm in hospital. she is always at my bedside to lead with the care role. she has too much other children and three grandchildren and she has missed out on a lot of special occasions with them due to caring for me. mum goes nights without sleeping and as i can haveissues nights without sleeping and as i can have issues with my airway that means i need someone to be awake at all times. " that is from your
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daughter. all times. " that is from your daughter-— all times. " that is from your dauahter. ., . ~ daughter. yeah, it is. like i say, i have always _ daughter. yeah, it is. like i say, i have always said _ daughter. yeah, it is. like i say, i have always said people - daughter. yeah, it is. like i say, i have always said people think- daughter. yeah, it is. like i say, i| have always said people think they io have always said people think they go out _ have always said people think they go out to— have always said people think they go out to work _ have always said people think they go out to work. no _ have always said people think they go out to work. no disrespect - have always said people think they go out to work. no disrespect to i go out to work. no disrespect to anybody — go out to work. no disrespect to anybody. 9-5 _ go out to work. no disrespect to anybody. 9-5. but— go out to work. no disrespect to anybody. 9—5. but it— go out to work. no disrespect to anybody. 9—5. but it carers- go out to work. no disrespect to anybody. 9—5. but it carersjob i go out to work. no disrespect to| anybody. 9—5. but it carersjob is 24/7. _ anybody. 9—5. but it carersjob is 24/7, it _ anybody. 9—5. but it carersjob is 24/7, it does _ anybody. 9—5. but it carersjob is 24/7, it does not _ anybody. 9—5. but it carersjob is 24/7, it does not end. _ anybody. 9—5. but it carersjob is 24/7, it does not end. one- anybody. 9-5. but it carers 'ob is 24”, it does not endfi anybody. 9-5. but it carers 'ob is 24”, it does not end. one from west london, 24”, it does not end. one from west london. good — 24”, it does not end. one from west london, good morning, _ 24”, it does not end. one from west london, good morning, obe. - 24”, it does not end. one from west london, good morning, obe. we - 24”, it does not end. one from west london, good morning, obe. we will| london, good morning, obe. we will be coming to peter in liverpool very soon as well. good morning. how are you? soon as well. good morning. how are ou? ~ ., ~ soon as well. good morning. how are ou? ~ ., ,, soon as well. good morning. how are ou? ., i, soon as well. good morning. how are ou? ., . , ., you? well, thank you. just rocking a little baby on _ you? well, thank you. just rocking a little baby on my — you? well, thank you. just rocking a little baby on my shoulders. - you? well, thank you. just rocking a little baby on my shoulders. arms . little baby on my shoulders. arms full. how old? _ little baby on my shoulders. arms full. how old? she _ little baby on my shoulders. arms full. how old? she is _ little baby on my shoulders. arms full. how old? she is five - little baby on my shoulders. armsj full. how old? she is five months. incredible little _ full. how old? she is five months. incredible little things. _ full. how old? she is five months. incredible little things. i'm - full. how old? she is five months. incredible little things. i'm just i incredible little things. i'm just thinking that. every time i see one of them ijust thinking that. every time i see one of them i just think, thinking that. every time i see one of them ijust think, my thinking that. every time i see one of them i just think, my goodness me, that was an incredible thing to go through. tell us about your caring. i go through. tell us about your carina. . .., go through. tell us about your carina. , ., go through. tell us about your carint. , ., caring. i became a carer quite overnight. — caring. i became a carer quite overnight, really, _ caring. i became a carer quite overnight, really, hadn't- caring. i became a carer quite overnight, really, hadn't even realised— overnight, really, hadn't even realised i_ overnight, really, hadn't even realised i was a carer until somebody told me.-
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somebody told me. that's interesting. _ somebody told me. that'sj interesting. parkinson's. .. somebody told me. that's - interesting. parkinson's. .. and somebody told me. that's - interesting. parkinson's... and my mother was simultaneously ill and i was getting on with my everyday life, ., ~ .. was getting on with my everyday life, ., ~ .,, ., was getting on with my everyday life, ., ~ ., , ., ,, ., ., was getting on with my everyday life, ., ~ , ., ., life, working as a professional as a teacher then _ life, working as a professional as a teacher then it _ life, working as a professional as a teacher then it was _ life, working as a professional as a teacher then it was little _ life, working as a professional as a teacher then it was little things, i teacher then it was little things, going _ teacher then it was little things, going to — teacher then it was little things, going to the gp surgery in behalf of dad, dropping something round, then fast forward two years later and i had to _ fast forward two years later and i had to move in. i was married, had my own _ had to move in. i was married, had my own child _ had to move in. i was married, had my own child. because the dependency was needed _ my own child. because the dependency was needed on me to do everything. it was _ was needed on me to do everything. it was little — was needed on me to do everything. it was little things, that's howl describe — it was little things, that's howl describe it to people. it was literally— describe it to people. it was literally one dayjust dropping for a prescription because that wasn't well, _ a prescription because that wasn't well, basically fast forward, you now need — well, basically fast forward, you now need to move in. nobody told me this but— now need to move in. nobody told me this but my— now need to move in. nobody told me this but my father then passed away and i had _ this but my father then passed away and i had my motherto this but my father then passed away and i had my mother to care for because — and i had my mother to care for because she became very disabled, completely bedbound. it is sort of like what — completely bedbound. it is sort of like what all of the other callers have _ like what all of the other callers have been saying, you know, i'm invisible — have been saying, you know, i'm invisible. i've been visible in this whole _ invisible. i've been visible in this whole journey. invisible. i've been visible in this wholejourney. i invisible. i've been visible in this whole journey. i had really good experiences from sort of the charity
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sector— experiences from sort of the charity sector that — experiences from sort of the charity sector that have had to step in when the government are not able to do this, _ the government are not able to do this, have — the government are not able to do this, havejust the government are not able to do this, have just ignored carers, but my life _ this, have just ignored carers, but my life is — this, have just ignored carers, but my life is 24 — this, have just ignored carers, but my life is 24 hours a day and i work as a school— my life is 24 hours a day and i work as a school educator, i'm a teacher, you know. _ as a school educator, i'm a teacher, you know. so — as a school educator, i'm a teacher, you know. so i — as a school educator, i'm a teacher, you know, so i work in an industry where _ you know, so i work in an industry where i_ you know, so i work in an industry where i look— you know, so i work in an industry where i look out for young people, teaching. — where i look out for young people, teaching, you know, for the future, but it— teaching, you know, for the future, but it is— teaching, you know, for the future, but it is really impossible don't like it— but it is really impossible don't like it is— but it is really impossible don't like it is a _ but it is really impossible don't like it is a job that is impossible to do. _ like it is a job that is impossible to do. and — like it is a job that is impossible to do, and like i said i didn't realise — to do, and like i said i didn't realise i_ to do, and like i said i didn't realise i was a carer until somebody said this _ realise i was a carer until somebody said this to— realise i was a carer until somebody said this to me, then i realised, well, _ said this to me, then i realised, well, you — said this to me, then i realised, well, you know you are a sandwich caregiver— well, you know you are a sandwich caregiver because you are looking after _ caregiver because you are looking after that — caregiver because you are looking after that generation and your young family _ after that generation and your young family i_ after that generation and your young family. i think i am quite young in that from — family. i think i am quite young in that from the research i have seen a lot of— that from the research i have seen a lot of sandwich carers tend to be a bit older. — lot of sandwich carers tend to be a bit older, i've got very young children _ bit older, i've got very young children. my parents don't like my mother— children. my parents don't like my mother is— children. my parents don't like my mother is dependent on me. it is 'ust mother is dependent on me. it is just a _ mother is dependent on me. it is just a hugely demanding role where i am invisible. that's all i can say. thats— am invisible. that's all i can say. that's what— am invisible. that's all i can say. that's what it is like for so many unpaid _ that's what it is like for so many unpaid carers, we are just invisible to society — unpaid carers, we are just invisible to society. they don't realise what
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we are _ to society. they don't realise what we are doing and one example ijust want to— we are doing and one example ijust want to give, when i was told i was a carer, _ want to give, when i was told i was a carer, i_ want to give, when i was told i was a carer, i mean, i'm unpaid, and they— a carer, i mean, i'm unpaid, and they said— a carer, i mean, i'm unpaid, and they said one— a carer, i mean, i'm unpaid, and they said one thing you could get support— they said one thing you could get support is— they said one thing you could get support is then the gp would give you an _ support is then the gp would give you an extended appointment, just to id you an extended appointment, just to go through— you an extended appointment, just to go through your health check, and when _ go through your health check, and when i _ go through your health check, and when i went, i had that appointment, i when i went, i had that appointment, l was _ when i went, i had that appointment, lwasiust_ when i went, i had that appointment, i wasjust told, when i went, i had that appointment, i was just told, you're when i went, i had that appointment, i wasjust told, you're not eligible because _ i wasjust told, you're not eligible because you worked all the time, so i was _ because you worked all the time, so i was completely marginalised from even that — i was completely marginalised from even that. because i work and i am a carer— even that. because i work and i am a carer and _ even that. because i work and i am a carer and i_ even that. because i work and i am a carerand i am— even that. because i work and i am a carer and i am doing that throughout the night, _ carer and i am doing that throughout the night, even when i am not at home _ the night, even when i am not at home i'm— the night, even when i am not at home i'm having to monitor my mum through— home i'm having to monitor my mum through cameras i have installed, i am project — through cameras i have installed, i am project leading everything for her, am project leading everything for her. all— am project leading everything for her, all the services, am project leading everything for her, allthe services, nhs, pharmacy, discharge, social services, _ pharmacy, discharge, social services, you name it. yet i am isolated — services, you name it. yet i am isolated and _ services, you name it. yet i am isolated and ijust want to really -ive isolated and ijust want to really give a _ isolated and ijust want to really give a shout out to the carers' charity— give a shout out to the carers' charity at _ give a shout out to the carers' charity at once with that have been a lifeline _ charity at once with that have been a lifeline to — charity at once with that have been a lifeline to me and to all the carers — a lifeline to me and to all the carers because they are just not recognised for the work they do and it has— recognised for the work they do and it has really— recognised for the work they do and it has really opened my eyes to what a carer— it has really opened my eyes to what a carer is— it has really opened my eyes to what a carer is because honestly i didn't
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even _ a carer is because honestly i didn't even know— a carer is because honestly i didn't even know before what it meant to be a carer~ _ even know before what it meant to be a carer~ |_ even know before what it meant to be a carer. . ~' even know before what it meant to be a carer. , ~ ., , a carer. i just think that is so interesting. _ a carer. i just think that is so interesting. let _ a carer. i just think that is so interesting. let me - a carer. i just think that is so interesting. let me throw. a carer. i just think that is so l interesting. let me throw that a carer. i just think that is so - interesting. let me throw that to laura bennett, head of policy at carers uk. obie didn't know she was a carer until somebody pointed it out. you do what you do for the person you love, don't you? exactly, and i think— person you love, don't you? exactly, and i think we _ person you love, don't you? exactly, and i think we are _ person you love, don't you? exactly, and i think we are all _ person you love, don't you? exactly, and i think we are all more _ person you love, don't you? exactly, and i think we are all more likely - and i think we are all more likely to talk about ourselves in terms of the relationship with a person, to say i am someone's daughter, someone's father, for example, and it is why a termite unpaid carer can be really useful. without have to use it as a label for ourselves, we can still talk about ourselves in terms of that relationship, reported that about why a term like unpaid carer. that is what this week is all about, to really help to open up to those vital local services obie has talked about, potentially some benefits, although there are not enough of those, and things like supporter breaks as well. carers at week charity conducted some research this week and without an incredibly
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high proportion, 73% of people who answered our survey didn't or hadn't identified themselves as a carer, so it is something... we are thinking about ourselves in terms of relationships, and we should do that because that is who we are, but there are also places we can get support as well. there are also places we can get support as well-— there are also places we can get support as well. unpaid caring, is that art support as well. unpaid caring, is that part of _ support as well. unpaid caring, is that part of the _ support as well. unpaid caring, is that part of the conversation - support as well. unpaid caring, is| that part of the conversation when we talk about funding and financing of social care into the future? is that enough part of the conversation, part of the equation? carers uk doesn't think it is so we think social care is massively underfunded and that is something... social care is a bit of help you get that isn't from the doctor or hospital, things are getting up and dressed, getting able to get up and about in your community, that is what social care is at that has been underfunded for years.— what social care is at that has been underfunded for years. correct me if i am wrong —
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underfunded for years. correct me if i am wrong but _ underfunded for years. correct me if i am wrong but that _ underfunded for years. correct me if i am wrong but that is _ underfunded for years. correct me if i am wrong but that is bringing - underfunded for years. correct me if i am wrong but that is bringing a - i am wrong but that is bringing a professional carer into the home? but i might also bringing funding for unpaid carers as well. yes, you're right, it is about having funding so we can pay those brilliant paid care workers enough so they don't get —— because they don't get paid enough so they can do a qualityjob to stop if you are an unpaid carer, perhaps, like obie, relying on those people, you can be confident someone is giving a good service whilst you are away. so there service whilst you are away. ’sr there are service whilst you are away. sr there are multiple issues around for unpaid carers with social care are not being funded enough, and the other thing carers are not getting from social care is enough time for them to take a break as well because thatis them to take a break as well because that is something that is really important to carers, not everyone, obviously. people like tegan are happy and we just like more financial support, happy and we just like more financialsupport, but happy and we just like more financial support, but lots of carers tell carers uk that what they urgently need is a break. get carers tell carers uk that what they urgently need is a break.— carers tell carers uk that what they urgently need is a break. get by the seaside and — urgently need is a break. get by the seaside and sit _ urgently need is a break. get by the seaside and sit on _ urgently need is a break. get by the seaside and sit on the _ urgently need is a break. get by the seaside and sit on the beach, - urgently need is a break. get by the seaside and sit on the beach, just, l seaside and sit on the beach, just, you know, for a couple of hours. what about yourself, obie? getting away from it? to
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what about yourself, obie? getting away from it?— what about yourself, obie? getting awa from it? ., , ., away from it? to even plan something like atoin away from it? to even plan something like going away. _ away from it? to even plan something like going away. i— away from it? to even plan something like going away, i think _ away from it? to even plan something like going away, i think even - away from it? to even plan something like going away, i think even one - like going away, i think even one night _ like going away, i think even one night away, half an hour away from my home, — night away, half an hour away from my home, but it didn't even seem worth— my home, but it didn't even seem worth it _ my home, but it didn't even seem worth it at — my home, but it didn't even seem worth it at the end because i had to book— worth it at the end because i had to book in— worth it at the end because i had to book in an — worth it at the end because i had to book in an overnight carer, £160 for the night _ book in an overnight carer, £160 for the night and obviously that is a large _ the night and obviously that is a large sum — the night and obviously that is a large sum of money, a bit like the child _ large sum of money, a bit like the child care — large sum of money, a bit like the child care crisis in the uk. and obviously— child care crisis in the uk. and obviously i _ child care crisis in the uk. and obviously i need high quality care for my— obviously i need high quality care for my mother so obviously i would never— for my mother so obviously i would never leave — for my mother so obviously i would never leave her and my substitute, replacement, needs to be a professional, and that is also the amount— professional, and that is also the amount they need to be paid. i understand why it cost that much but it is not _ understand why it cost that much but it is not sustainable for everyday people — it is not sustainable for everyday people. and that'sjust it is not sustainable for everyday people. and that's just looking for one night— people. and that's just looking for one night away that i would be paying — one night away that i would be paying that sum of money, that doesn't — paying that sum of money, that doesn't even include the going away, 'ust doesn't even include the going away, just the _ doesn't even include the going away, just the person who will be replacing me when i'm not physically in the _ replacing me when i'm not physically in the house, and that isjust for ten hours. — in the house, and that isjust for ten hours, so ijust feel the government are accountable and they really _ government are accountable and they really do _ government are accountable and they really do need to reform this
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because _ really do need to reform this because it isjust affecting so many people. _ because it isjust affecting so many people, and like i was saying we are invisible _ people, and like i was saying we are invisible and it is affecting so many— invisible and it is affecting so many aspects of our lives. it is not 'ust many aspects of our lives. it is not just me. _ many aspects of our lives. it is not just me. my— many aspects of our lives. it is not just me, my physical need to have my mental— just me, my physical need to have my mental health, but even my children. i have _ mental health, but even my children. i have a _ mental health, but even my children. i have a five—year—old in the house and he _ i have a five—year—old in the house and he lust— i have a five—year—old in the house and he just said the other day, catlike — and he just said the other day, catlike mummy, i'm a mini carer, you know. _ catlike mummy, i'm a mini carer, you know. because — catlike mummy, i'm a mini carer, you know, because he goes to see nani have a _ know, because he goes to see nani have a drink— know, because he goes to see nani have a drink of water, to help keep hydrated _ have a drink of water, to help keep hydrated -- — have a drink of water, to help keep hydrated —— he said the other day, "mummy. — hydrated —— he said the other day, "mummy, i'm a mini carer. " it is amazing— "mummy, i'm a mini carer. " it is amazing because it raises the profile — amazing because it raises the profile and awareness, having a carers _ profile and awareness, having a carers week. summary told me the other— carers week. summary told me the other day— carers week. summary told me the other day and i hadn't even realised _ other day and i hadn't even realised. and ijust thought, yeah, then they— realised. and ijust thought, yeah, then they try to ask you some questions _ then they try to ask you some questions about it at obviously we are having — questions about it at obviously we are having the dialogue but it is time _ are having the dialogue but it is time for— are having the dialogue but it is time for major change. this isjust a starting — time for major change. this isjust a starting point. i wonder what it will be _ a starting point. i wonder what it will be like — a starting point. i wonder what it will be like for future generations. i think. _ will be like for future generations. i think. for— will be like for future generations. i think, for my role, i am
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relatively— i think, for my role, i am relatively young, and my parents had illnesses _ relatively young, and my parents had illnesses quite young, quite life changing — illnesses quite young, quite life changing illnesses, but i wonder what _ changing illnesses, but i wonder what it— changing illnesses, but i wonder what it will be like for future generations, especially... i what it will be like for future generations, especially... lam in my generations, especially... iam in my early— generations, especially... lam in my early 40s and i still have the physical— my early 40s and i still have the physical energy to do this, and my children's— physical energy to do this, and my children's needs only a quite simple. _ children's needs only a quite simple, they need me to be there. i wouldn't _ simple, they need me to be there. i wouldn't be — simple, they need me to be there. i wouldn't be able to do this in 15 years — wouldn't be able to do this in 15 years. white mark ask peter about this _ years. white mark ask peter about this~ peter— years. white mark ask peter about this. peter in years. white mark ask peter about this- peter in— this. peter in liverpool, hello? -- well, this. peter in liverpool, hello? -- well. let's— this. peter in liverpool, hello? -- well, let's ask _ this. peter in liverpool, hello? -- well, let's ask peter _ this. peter in liverpool, hello? -- well, let's ask peter about - this. peter in liverpool, hello? -- well, let's ask peter about this. i well, let's ask peter about this. good to have you on.— well, let's ask peter about this. good to have you on. listening to everybody's _ good to have you on. listening to everybody's involvement - good to have you on. listening to everybody's involvement today, l good to have you on. listening to everybody's involvement today, i | everybody's involvement today, i feel that — everybody's involvement today, i feel that i'm _ everybody's involvement today, i feel that i'm well— everybody's involvement today, i feel that i'm well cared _ everybody's involvement today, i feel that i'm well cared for. - everybody's involvement today, i feel that i'm well cared for. i'm l feel that i'm well cared for. i'm 77. feel that i'm well cared for. i'm 77~ i_ feel that i'm well cared for. i'm 77~ iwas— feel that i'm well cared for. i'm 77. i was diagnosed _ feel that i'm well cared for. i'm 77. i was diagnosed with - feel that i'm well cared for. i'm 77. i was diagnosed with ms i feel that i'm well cared for. i'm 77. i was diagnosed with ms in| feel that i'm well cared for. i'm - 77. i was diagnosed with ms in 2004, and it— 77. i was diagnosed with ms in 2004, and it is— 77. i was diagnosed with ms in 2004, and it is progressive _ 77. i was diagnosed with ms in 2004, and it is progressive ms, _ 77. i was diagnosed with ms in 2004, and it is progressive ms, so - 77. i was diagnosed with ms in 2004, and it is progressive ms, so it- 77. i was diagnosed with ms in 2004, and it is progressive ms, so it is- and it is progressive ms, so it is getting — and it is progressive ms, so it is getting worse _ and it is progressive ms, so it is getting worse. clearly, - and it is progressive ms, so it is getting worse. clearly, the - getting worse. clearly, the condition— getting worse. clearly, the condition isn't— getting worse. clearly, the condition isn't going - getting worse. clearly, the condition isn't going to- getting worse. clearly, the condition isn't going to getj getting worse. clearly, the - condition isn't going to get better and my—
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condition isn't going to get better and my wife — condition isn't going to get better and my wife is— condition isn't going to get better and my wife is my— condition isn't going to get better and my wife is my carer. - condition isn't going to get better and my wife is my carer. totally. and my wife is my carer. totally unpaid — and my wife is my carer. totally un aid. a, and my wife is my carer. totally unpaid, ., and my wife is my carer. totally un-aid. ., ., unpaid. may i ask how old your wife is, peter? unpaid. may i ask how old your wife is. peter? she _ unpaid. may i ask how old your wife is, peter? she is— unpaid. may i ask how old your wife is, peter? she is 72 _ unpaid. may i ask how old your wife is, peter? she is 72 now. _ unpaid. may i ask how old your wife is, peter? she is 72 now. as - unpaid. may i ask how old your wife is, peter? she is 72 now. as i - unpaid. may i ask how old your wife is, peter? she is 72 now. as i say, l is, peter? she is 72 now. as i say, she looks — is, peter? she is 72 now. as i say, she looks off _ is, peter? she is 72 now. as i say, she looks off all _ is, peter? she is 72 now. as i say, she looks off all my _ is, peter? she is 72 now. as i say, she looks off all my other - is, peter? she is 72 now. as i say, she looks off all my other needs. i j she looks off all my other needs. i -et she looks off all my other needs. i get in _ she looks off all my other needs. i get in and — she looks off all my other needs. i get in and out— she looks off all my other needs. i get in and out of— she looks off all my other needs. i get in and out of bed, _ she looks off all my other needs. i get in and out of bed, basically- she looks off all my other needs. i get in and out of bed, basically all| get in and out of bed, basically all my personal— get in and out of bed, basically all my personal care. _ get in and out of bed, basically all my personal care. i— get in and out of bed, basically all my personal care. i can— get in and out of bed, basically all my personal care. i can still- get in and out of bed, basically all my personal care. i can still get. my personal care. i can still get dressed — my personal care. i can still get dressed myself. _ my personal care. i can still get dressed myself. but— my personal care. i can still get dressed myself. but food, - my personal care. i can still get- dressed myself. but food, everything else, dressed myself. but food, everything else. is— dressed myself. but food, everything else. is cared — dressed myself. but food, everything else, is cared for— dressed myself. but food, everything else, is cared for by— dressed myself. but food, everything else, is cared for by herself. - dressed myself. but food, everything else, is cared for by herself. but - dressed myself. but food, everything else, is cared for by herself. but i- else, is cared for by herself. but i think— else, is cared for by herself. but i think back— else, is cared for by herself. but i think back to. _ else, is cared for by herself. but i think back to, if— else, is cared for by herself. but i think back to, if you _ else, is cared for by herself. but i think back to, if you like, - else, is cared for by herself. but i think back to, if you like, when i else, is cared for by herself. but ll think back to, if you like, when my mother. _ think back to, if you like, when my mother. who — think back to, if you like, when my mother, who was _ think back to, if you like, when my mother, who was 90 _ think back to, if you like, when my mother, who was 90 when - think back to, if you like, when my mother, who was 90 when she - think back to, if you like, when my- mother, who was 90 when she passed away. _ mother, who was 90 when she passed away. and _ mother, who was 90 when she passed away. and she — mother, who was 90 when she passed away. and she had _ mother, who was 90 when she passed away, and she had vascular— mother, who was 90 when she passed away, and she had vascular dementia. j away, and she had vascular dementia. i looked _ away, and she had vascular dementia. i looked after — away, and she had vascular dementia. i looked after her, _ away, and she had vascular dementia. i looked after her, and _ away, and she had vascular dementia. i looked after her, and this— away, and she had vascular dementia. i looked after her, and this is- i looked after her, and this is surprising _ i looked after her, and this is surprising how— i looked after her, and this is surprising how life _ i looked after her, and this is surprising how life catches. i looked after her, and this is| surprising how life catches up i looked after her, and this is. surprising how life catches up on you. _ surprising how life catches up on you. i_ surprising how life catches up on you. i looked _ surprising how life catches up on you. i looked after— surprising how life catches up on you. i looked after her— surprising how life catches up on you. i looked after her while - surprising how life catches up on you. i looked after her while shej you. i looked after her while she was living — you. i looked after her while she was living at _ you. i looked after her while she was living at home, _ you. i looked after her while she was living at home, from - you. i looked after her while shej was living at home, from around
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about— was living at home, from around about 1990 — was living at home, from around about 1990 until— was living at home, from around about 1990 until 2013 _ was living at home, from around about 1990 until 2013 when - was living at home, from around about 1990 until 2013 when shel about 1990 until 2013 when she passed — about 1990 until 2013 when she passed away— about 1990 until 2013 when she passed away in _ about 1990 until 2013 when she passed away in a _ about 1990 until 2013 when she passed away in a nursing - about 1990 until 2013 when she| passed away in a nursing home, about 1990 until 2013 when she - passed away in a nursing home, and then i_ passed away in a nursing home, and then i think— passed away in a nursing home, and then i think about _ passed away in a nursing home, and then i think about her— passed away in a nursing home, and then i think about her life. _ passed away in a nursing home, and then i think about her life. she - passed away in a nursing home, and then i think about her life. she was| then i think about her life. she was a daughter— then i think about her life. she was a daughter of— then i think about her life. she was a daughter ofa— then i think about her life. she was a daughter of a family _ then i think about her life. she was a daughter of a family of _ then i think about her life. she was a daughter of a family of eight - a daughter of a family of eight children. — a daughter of a family of eight children. unfortunately, - a daughter of a family of eight children. unfortunately, threej a daughter of a family of eight i children. unfortunately, three of them _ children. unfortunately, three of them suffered _ children. unfortunately, three of them suffered from _ children. unfortunately, three of them suffered from tb _ children. unfortunately, three of them suffered from tb at - children. unfortunately, three of them suffered from tb at the - children. unfortunately, three of. them suffered from tb at the time, all requiring — them suffered from tb at the time, all requiring preventive _ them suffered from tb at the time, all requiring preventive sort- them suffered from tb at the time, all requiring preventive sort of- all requiring preventive sort of medication _ all requiring preventive sort of medication and _ all requiring preventive sort of medication and literally- all requiring preventive sort of medication and literally the i all requiring preventive sort of. medication and literally the whole of her— medication and literally the whole of her life — medication and literally the whole of her life was _ medication and literally the whole of her life was visiting _ medication and literally the whole of her life was visiting hospitals, i of her life was visiting hospitals, caring _ of her life was visiting hospitals, caring for— of her life was visiting hospitals, caring forthem. _ of her life was visiting hospitals, caring for them. in— of her life was visiting hospitals, caring for them. in later- of her life was visiting hospitals, caring for them. in later life - of her life was visiting hospitals, caring for them. in later life herl caring for them. in later life her mother— caring for them. in later life her mother then _ caring for them. in later life her mother then had _ caring for them. in later life her mother then had a _ caring for them. in later life her mother then had a number- caring for them. in later life her mother then had a number of. caring for them. in later life her- mother then had a number of strokes and basically— mother then had a number of strokes and basically was _ mother then had a number of strokes and basically was permanently - mother then had a number of strokes and basically was permanently in - and basically was permanently in care _ and basically was permanently in care she — and basically was permanently in care she spent— and basically was permanently in care. she spent her— and basically was permanently in care. she spent her whole - and basically was permanently in care. she spent her whole life i care. she spent her whole life looking — care. she spent her whole life looking after— care. she spent her whole life looking after members - care. she spent her whole life looking after members of- care. she spent her whole life looking after members of the| care. she spent her whole life - looking after members of the family and, looking after members of the family and. you _ looking after members of the family and. you know. _ looking after members of the family and, you know, the _ looking after members of the family and, you know, the sad _ looking after members of the family and, you know, the sad part- looking after members of the family and, you know, the sad part is- looking after members of the family and, you know, the sad part is she i and, you know, the sad part is she ended _ and, you know, the sad part is she ended up— and, you know, the sad part is she ended up having _ and, you know, the sad part is she ended up having to— and, you know, the sad part is she ended up having to be _ and, you know, the sad part is she ended up having to be cared - and, you know, the sad part is she ended up having to be cared for. ended up having to be cared for herself— ended up having to be cared for herself again. _ ended up having to be cared for herself again, you _ ended up having to be cared for herself again, you know. - ended up having to be cared for herself again, you know. it's. ended up having to be cared for herself again, you know. it's a. herself again, you know. it's a cruel— herself again, you know. it's a cruel world. _ herself again, you know. it's a cruel world, in— herself again, you know. it's a cruel world, in many, - herself again, you know. it's a cruelworld, in many, many. herself again, you know. it's a - cruel world, in many, many ways. you know. _ cruel world, in many, many ways. you know. this _ cruel world, in many, many ways. you know. this sort — cruel world, in many, many ways. you know, this sort of _
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cruel world, in many, many ways. you know, this sort of element _ cruel world, in many, many ways. you know, this sort of element of, - cruel world, in many, many ways. you know, this sort of element of, if - know, this sort of element of, if you like. — know, this sort of element of, if you like, society— know, this sort of element of, if you like, society appears - know, this sort of element of, if you like, society appears to - know, this sort of element of, if you like, society appears to be i know, this sort of element of, if - you like, society appears to be more undervalued... — you like, society appears to be more undervalued... it's— you like, society appears to be more undervalued... it's not— you like, society appears to be more undervalued... it's not valued - undervalued... it's not valued at all, undervalued... it's not valued at all. let's— undervalued... it's not valued at all. let's be _ undervalued... it's not valued at all, let's be honest. _ undervalued... it's not valued at all, let's be honest. and - undervalued... it's not valued at all, let's be honest. and whilst i undervalued... it's not valued at. all, let's be honest. and whilst we allow— all, let's be honest. and whilst we allow it— all, let's be honest. and whilst we allow it to — all, let's be honest. and whilst we allow it to continue _ all, let's be honest. and whilst we allow it to continue in _ all, let's be honest. and whilst we allow it to continue in this - all, let's be honest. and whilst we allow it to continue in this way- all, let's be honest. and whilst we allow it to continue in this way it i allow it to continue in this way it will continue _ allow it to continue in this way it will continue to— allow it to continue in this way it will continue to be _ allow it to continue in this way it will continue to be so. _ allow it to continue in this way it will continue to be so. that's- allow it to continue in this way itj will continue to be so. that's my firm _ will continue to be so. that's my firm belief. _ will continue to be so. that's my firm belief. as _ will continue to be so. that's my firm belief. as i _ will continue to be so. that's my firm belief. as i say, _ will continue to be so. that's my firm belief. as i say, listening i will continue to be so. that's my firm belief. as i say, listening to other— firm belief. as i say, listening to other contributors... _ firm belief. as i say, listening to other contributors... albeit, - firm belief. as i say, listening to other contributors... albeit, as ij other contributors... albeit, as i say. _ other contributors... albeit, as i say. my— other contributors... albeit, as i say. my wife. _ other contributors... albeit, as i say. my wife... as— other contributors... albeit, as i say, my wife... as i _ other contributors... albeit, as i say, my wife... as i say, - other contributors... albeit, as i. say, my wife... as i say, listening to other— say, my wife... as i say, listening to other contributors... _ say, my wife... as i say, listening to other contributors. . ._ to other contributors... what is life like for _ to other contributors. .. what is life like for her— to other contributors... what is life like for her on _ to other contributors... what is life like for her on a _ to other contributors... what is life like for her on a daily - to other contributors... what is | life like for her on a daily basis? well, she is obviously very restricted _ well, she is obviously very restricted in— well, she is obviously very restricted in what - well, she is obviously very restricted in what she - well, she is obviously very restricted in what she cani well, she is obviously very i restricted in what she can do. well, she is obviously very - restricted in what she can do. she has to— restricted in what she can do. she has to think— restricted in what she can do. she has to think about _ restricted in what she can do. she has to think about where - restricted in what she can do. she has to think about where she - restricted in what she can do. she has to think about where she cani restricted in what she can do. she i has to think about where she can go. fortunately. — has to think about where she can go. fortunately. we _ has to think about where she can go. fortunately, we have _ has to think about where she can go. fortunately, we have family- has to think about where she can go. fortunately, we have family local- has to think about where she can go. fortunately, we have family local asl fortunately, we have family local as well. _ fortunately, we have family local as well. my— fortunately, we have family local as well. my son — fortunately, we have family local as well. my son and _ fortunately, we have family local as well. my son and daughter- fortunately, we have family local as well. my son and daughter live - well. my son and daughter live within— well. my son and daughter live within a — well. my son and daughter live within a mile _ well. my son and daughter live within a mile of— well. my son and daughter live
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within a mile of us _ well. my son and daughter live within a mile of us so - well. my son and daughter live within a mile of us so in- well. my son and daughter live within a mile of us so in the i well. my son and daughter live i within a mile of us so in the event of anything — within a mile of us so in the event of anything happening _ within a mile of us so in the event of anything happening they- within a mile of us so in the event of anything happening they can i within a mile of us so in the eventl of anything happening they can get round _ of anything happening they can get round to— of anything happening they can get round to me — of anything happening they can get round to me fairly— of anything happening they can get round to me fairly quickly. - of anything happening they can get round to me fairly quickly. those i round to me fairly quickly. those are situations. _ round to me fairly quickly. those are situations. fell— round to me fairly quickly. those are situations. fell the _ round to me fairly quickly. those are situations. fell the other- round to me fairly quickly. those i are situations. fell the other week and basically— are situations. fell the other week and basically sat _ are situations. fell the other week and basically sat on _ are situations. fell the other week and basically sat on the _ are situations. fell the other week and basically sat on the floor, - and basically sat on the floor, couldn't— and basically sat on the floor, couldn't move. _ and basically sat on the floor, couldn't move. was— and basically sat on the floor, couldn't move. was able - and basically sat on the floor, couldn't move. was able to i and basically sat on the floor, i couldn't move. was able to get and basically sat on the floor, - couldn't move. was able to get to a phone _ couldn't move. was able to get to a phone and — couldn't move. was able to get to a phone and get— couldn't move. was able to get to a phone and get someone _ couldn't move. was able to get to a phone and get someone round - couldn't move. was able to get to a| phone and get someone round fairly quickly— phone and get someone round fairly quickly -- _ phone and get someone round fairly quickly -- i— phone and get someone round fairly quickly -- ifell— phone and get someone round fairly quickly —— i fell over— phone and get someone round fairly quickly —— i fell over the _ phone and get someone round fairly quickly —— i fell over the other- quickly —— i fell over the other week. — quickly —— i fell over the other week. on _ quickly —— i fell over the other week. on a _ quickly —— i fell over the other week. on a separate - quickly —— i fell over the other week. on a separate sort - quickly —— i fell over the other week. on a separate sort of. quickly —— i fell over the other- week. on a separate sort of matter, on carers. _ week. on a separate sort of matter, on carers, though, _ week. on a separate sort of matter, on carers, though, again _ week. on a separate sort of matter, on carers, though, again i _ week. on a separate sort of matter, on carers, though, again i was - week. on a separate sort of matter, on carers, though, again i was in . on carers, though, again i was in hospital— on carers, though, again i was in hospital in— on carers, though, again i was in hospital in 2018, _ on carers, though, again i was in hospital in 2018, and _ on carers, though, again i was in hospital in 2018, and i— on carers, though, again i was in hospital in 2018, and i was - on carers, though, again i was in hospital in 2018, and i was in - on carers, though, again i was in| hospital in 2018, and i was in with a liver— hospital in 2018, and i was in with a liver abscess. _ hospital in 2018, and i was in with a liver abscess. i— hospital in 2018, and i was in with a liver abscess. i was— hospital in 2018, and i was in with a liver abscess. i was in— hospital in 2018, and i was in with a liver abscess. i was in their- hospital in 2018, and i was in with a liver abscess. i was in their for. a liver abscess. i was in their for six weeks. — a liver abscess. i was in their for six weeks, eight _ a liver abscess. i was in their for six weeks, eight weeks - a liver abscess. i was in their for six weeks, eight weeks in - a liver abscess. i was in their for six weeks, eight weeks in total. | a liver abscess. i was in their for. six weeks, eight weeks in total. but i spent _ six weeks, eight weeks in total. but i spent nearly— six weeks, eight weeks in total. but i spent nearly three _ six weeks, eight weeks in total. but i spent nearly three weeks - six weeks, eight weeks in total. but i spent nearly three weeks in - six weeks, eight weeks in total. but i spent nearly three weeks in therel i spent nearly three weeks in there waiting _ i spent nearly three weeks in there waiting for— i spent nearly three weeks in there waiting for a — i spent nearly three weeks in there waiting for a care _ i spent nearly three weeks in there waiting for a care package - i spent nearly three weeks in there waiting for a care package to - i spent nearly three weeks in there waiting for a care package to be i waiting for a care package to be sorted — waiting for a care package to be sorted out. _ waiting for a care package to be sorted out, and _ waiting for a care package to be sorted out, and literally- waiting for a care package to be sorted out, and literally two- waiting for a care package to be i sorted out, and literally two young ladies _ sorted out, and literally two young ladies basically— sorted out, and literally two young ladies basically to _ sorted out, and literally two young ladies basically to had _ sorted out, and literally two young ladies basically to had get- sorted out, and literally two young ladies basically to had get me - sorted out, and literally two young ladies basically to had get me in l ladies basically to had get me in and out — ladies basically to had get me in and out of— ladies basically to had get me in and out of bed _ ladies basically to had get me in and out of bed once _ ladies basically to had get me in and out of bed once i— ladies basically to had get me in and out of bed once i had - ladies basically to had get me in and out of bed once i had been. and out of bed once i had been dischargeti _ and out of bed once i had been discharged. but _ and out of bed once i had been discharged. but i _ and out of bed once i had been discharged. but i sat— and out of bed once i had been discharged. but i sat in- and out of bed once i had been discharged. but i sat in a -
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and out of bed once i had been . discharged. but i sat in a hospital bed for— discharged. but i sat in a hospital bed for three _ discharged. but i sat in a hospital bed for three weeks, _ discharged. but i sat in a hospital bed for three weeks, and, - discharged. but i sat in a hospital bed for three weeks, and, you . discharged. but i sat in a hospital- bed for three weeks, and, you know, bed for three weeks, and, you know, bed blocking. — bed for three weeks, and, you know, bed blocking. it— bed for three weeks, and, you know, bed blocking, it is— bed for three weeks, and, you know, bed blocking, it is if— bed for three weeks, and, you know, bed blocking, it is if you _ bed for three weeks, and, you know, bed blocking, it is if you like, - bed blocking, it is if you like, part — bed blocking, it is if you like, part of— bed blocking, it is if you like, part of the _ bed blocking, it is if you like, part of the total _ bed blocking, it is if you like, part of the total care - bed blocking, it is if you like, i part of the total care situation. i don't _ part of the total care situation. i don't think— part of the total care situation. i don't think it's _ part of the total care situation. i don't think it's funded. - part of the total care situation. i don't think it's funded. clearly, i don't think it's funded. clearly, these _ don't think it's funded. clearly, these young _ don't think it's funded. clearly, these young ladies... - don't think it's funded. clearly, these young ladies... the - don't think it's funded. clearly, . these young ladies... the amazing things. _ these young ladies... the amazing things. they— these young ladies... the amazing things, they were _ these young ladies... the amazing things, they were walking - these young ladies... the amazing things, they were walking from - these young ladies... the amazing i things, they were walking from each patient _ things, they were walking from each patient to— things, they were walking from each patient to another— things, they were walking from each patient to another because - things, they were walking from each patient to another because they- patient to another because they didnt— patient to another because they didn't have _ patient to another because they didn't have a _ patient to another because they didn't have a car. _ patient to another because they didn't have a car. basically, - patient to another because theyi didn't have a car. basically, they would _ didn't have a car. basically, they would look— didn't have a car. basically, they would look after— didn't have a car. basically, they would look after me, _ didn't have a car. basically, they would look after me, and - didn't have a car. basically, they would look after me, and 10—15. would look after me, and 10—15 minutes, — would look after me, and 10—15 minutes, then— would look after me, and 10—15 minutes, then go _ would look after me, and 10—15 minutes, then go onto- would look after me, and 10—15 minutes, then go onto the - would look after me, and 10—15| minutes, then go onto the next patient, — minutes, then go onto the next patient, and _ minutes, then go onto the next patient, and i— minutes, then go onto the next patient, and i found _ minutes, then go onto the next patient, and i found that - minutes, then go onto the next- patient, and i found that absolutely amazing _ patient, and i found that absolutely amazing but, _ patient, and i found that absolutely amazing but, as_ patient, and i found that absolutely amazing. but, as i— patient, and i found that absolutely amazing. but, as i say, _ patient, and i found that absolutely amazing. but, as i say, the - patient, and i found that absolutely amazing. but, as i say, the whole l amazing. but, as i say, the whole thing _ amazing. but, as i say, the whole thing about— amazing. but, as i say, the whole thing about caring, _ amazing. but, as i say, the whole thing about caring, my— amazing. but, as i say, the whole thing about caring, my wife, - thing about caring, my wife, my mother, — thing about caring, my wife, my mother, myself, _ thing about caring, my wife, my mother, myself, we've - thing about caring, my wife, my mother, myself, we've all- thing about caring, my wife, my mother, myself, we've all been| mother, myself, we've all been carers _ mother, myself, we've all been carers in — mother, myself, we've all been carers in our— mother, myself, we've all been carers in our own... _ mother, myself, we've all been carers in our own... [it's - mother, myself, we've all been carers in our own. . ._ mother, myself, we've all been carers in our own... it's funny what ou carers in our own... it's funny what you said. — carers in our own... it's funny what you said. it's _ carers in our own... it's funny what you said, it's funny _ carers in our own... it's funny what you said, it's funny how— carers in our own... it's funny what you said, it's funny how life - carers in our own... it's funny what you said, it's funny how life worksl you said, it's funny how life works out, having cared for your mother as
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well. what is your wife called, peter? �* well. what is your wife called, peter?- well, _ well. what is your wife called, peter?- well, she - well. what is your wife called, | peter?- well, she sounds well. what is your wife called, - peter?- well, she sounds like a peter? anne. well, she sounds like a wonderfulwoman. _ peter? anne. well, she sounds like a wonderfulwoman. 0h, _ peter? anne. well, she sounds like a wonderfulwoman. 0h, she's - peter? anne. well, she sounds like a wonderful woman. 0h, she's a - peter? anne. well, she sounds like a wonderfulwoman. 0h, she's a rock. l wonderfulwoman. 0h, she's a rock. but, ou wonderfulwoman. 0h, she's a rock. but. you know. _ wonderfulwoman. 0h, she's a rock. but, you know, fortunately - wonderfulwoman. 0h, she's a rock. but, you know, fortunately we - wonderfulwoman. 0h, she's a rock. but, you know, fortunately we do i but, you know, fortunately we do have _ but, you know, fortunately we do have an _ but, you know, fortunately we do have an outlet. _ but, you know, fortunately we do have an outlet. she _ but, you know, fortunately we do have an outlet. she is _ but, you know, fortunately we do have an outlet. she is now - but, you know, fortunately we do have an outlet. she is now an - have an outlet. she is now an excellent _ have an outlet. she is now an excellent bowler. _ have an outlet. she is now an excellent bowler. we - have an outlet. she is now an excellent bowler. we both i have an outlet. she is now an - excellent bowler. we both played bowls _ excellent bowler. we both played bowls in — excellent bowler. we both played bowls in our— excellent bowler. we both played bowls in our lives. _ excellent bowler. we both played bowls in our lives. she _ excellent bowler. we both played bowls in our lives. she gets- excellent bowler. we both played bowls in our lives. she gets out. excellent bowler. we both played . bowls in our lives. she gets out and is able _ bowls in our lives. she gets out and is able to— bowls in our lives. she gets out and is able to participate _ bowls in our lives. she gets out and is able to participate in _ bowls in our lives. she gets out and is able to participate in a _ bowls in our lives. she gets out and is able to participate in a pastime . is able to participate in a pastime that i_ is able to participate in a pastime that i spent— is able to participate in a pastime that i spent more _ is able to participate in a pastime that i spent more of— is able to participate in a pastime that i spent more of my- is able to participate in a pastime that i spent more of my life - that i spent more of my life involved _ that i spent more of my life involved in— that i spent more of my life involved in than _ that i spent more of my life involved in than perhaps i l that i spent more of my life - involved in than perhaps i should have _ involved in than perhaps i should have donem _ have done... laughter. laughter but now she is, as i say, an excellent _ but now she is, as i say, an excellent player— but now she is, as i say, an excellent player in - but now she is, as i say, an excellent player in her- but now she is, as i say, an excellent player in her own| but now she is, as i say, an - excellent player in her own right. i excellent player in her own right. i think excellent player in her own right. think it is a wonderful game, if i may say so. it is so tactical. emily kenway, do you want to come in? thank you. it has been so moving to hear the stories, and they are
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stories everywhere, every neighbourhood, every community. i really want to highlight... i really want to highlight... i cared for my mum and experienced all of the challenges that go with caring, and tojust highlight for people who might be listening and haven't been carers, some of the things that are commonplace, so obviously people lose huge amounts of money because they can't work, or they need to reduce their hours and so on, but we also experience a loss of our social life, so this isolation, you know, most of the carers i interviewed for the book, and myself as well, we'd say it is a kind of loneliness you just haven't experienced until you have been there. physically, carers are likely to have heart disease and diabetes and higher mortality rates. higher rates of depression and anxiety. we can see why, when we hear these stories, they are doing is a credit by doing this important task. but under the
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current circumstances it is too hard and we desperately need change. loving some warm and doing what is right by that love does not create devastation in your life, which it is currently. devastation in your life, which it is currently-— is currently. this is about loving some warm. — is currently. this is about loving some warm, absolutely. - is currently. this is about loving some warm, absolutely. peter,| is currently. this is about loving - some warm, absolutely. peter, thank you very much indeed by the way, for your amazing contribution and past —— past my best wishes on to anne. here is a text, i am self—employed and we have been caring for my mum. it is a nightmare. i miss right that, cannot get carers alliance, cannot get respite unless i pay for it, and i'm expected to be available for nursing and gp appointments. my
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houseis for nursing and gp appointments. my house is no longer a home. i was a carerfor both parents house is no longer a home. i was a carer for both parents over a long period of time and i was told not to put carer on my cv because she would not get work. we become invisible and broken. more to come, we want to hearfrom you if and broken. more to come, we want to hear from you if you are an and broken. more to come, we want to hearfrom you if you are an unpaid carer. tell us about your life and what you do. and what you need as well. more to come between now and ii well. more to come between now and 11 o'clock. the national clinical director for cancer at nhs england says most cancer treatment is being delivered in a timely way — but there are staff shortages. professor peterjohnson has been
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responding to the royal college of radiologists which says the nhs is struggling to provide safe and effective care for cancer patients across the uk. several children have been stabbed in an attack in a park near lake annecy in southern france. the french prime minister is heading to the scene — as french television is reporting that children around three years old were among those hurt. the suspect has been arrested. president zelensky has been visiting the southern kherson region which has been hit by floods after tuesdays breach of a dam. the red cross is rasing concerns of dislodged landmines following the flooding. police chiefs say they are now meeting a pledge to send officers to every home burglary in england and wales. the national police chiefs' council says they wanted to end the "postcode lottery" on policing.
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those were the news headlines — with the sport — here's mike former west ham goalkeeper rob green says declan rice will be getting the perfect send—off if he leaves this summer. rice is just the third hammers captain to lift a major trophy after their victory in the europa conference league final. he's got two years left on his contract. meanwhile west ham have condemned "a small number of fans" after fiorentina's cristiano biraghi was hit by an object thrown from the stands during the first half of the match. the club say anyone identified will have their details passed to the police and will be given an indefinite ban from the london stadium. andy murray says it'll only be a matter of time before tennis tournaments are played in saudi arabia, but he wouldn't play there. his comments follow the shock merger between saudi arabia's public investment fun and the pga and dp world tours this week. and right now on five sports extra the second day of the world test championship final is under way at the oval. australia taking on india, and the aussies have moved on to 336—3.
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need to know what they are doing and that is why nation carer�*s week is so important. laura bennett, there is a question that has been coming in persistently since we started this conversation. laura, a lot of people saying that carer�*s allowance stops at 67, retirement age. why is that? it stops at 67, retirement age. why is that? , ., stops at 67, retirement age. why is that? _, , stops at 67, retirement age. why is that? , , ., that? it is a complicated question. but that is correct, _ that? it is a complicated question. but that is correct, after _ that? it is a complicated question. but that is correct, after certain i but that is correct, after certain age you cannot receive carer�*s allowance. some of it is sort of included in some old age benefits, but that feels unfair to unpaid carers because it is the only benefit that has a carer's name on it. it does feel unfair that it stops. one of the things that carers uk is calling for is the reform of carer�*s allowance. we think it is too low and we think not enough
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carers can get it. but it is correct, it does stop when you get to that age. pa. correct, it does stop when you get to that age-— to that age. a matter of great frustration _ to that age. a matter of great frustration and _ to that age. a matter of great frustration and consternation | to that age. a matter of great i frustration and consternation to many people texting this morning. good morning lavinia. nicola, likewise, great you are there. tell us more. i likewise, great you are there. tell us more. . , ., , . us more. i have been a carer since around the — us more. i have been a carer since around the age — us more. i have been a carer since around the age of _ us more. i have been a carer since around the age of eight _ us more. i have been a carer since around the age of eight but - us more. i have been a carer since around the age of eight but i - us more. i have been a carer since. around the age of eight but i wasn't identified _ around the age of eight but i wasn't identified as a carer until i was ten _ identified as a carer until i was ten that — identified as a carer until i was ten. that wasn't until a local service. _ ten. that wasn't until a local service, which has unfortunately now closed _ service, which has unfortunately now closed down. i have been caring for my mum _ closed down. i have been caring for my mum since then.— closed down. i have been caring for my mum since then. since you were ten? yes- — my mum since then. since you were ten? yes. since _ my mum since then. since you were ten? yes. since you _ my mum since then. since you were ten? yes. since you ate, _ my mum since then. since you were ten? yes. since you ate, but- my mum since then. since you were ten? yes. since you ate, but you . ten? yes. since you ate, but you only acknowledged and told you where carer ten years old? mr;
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only acknowledged and told you where carer ten years old?— only acknowledged and told you where carer ten years old? my mum, someone came to visit — carer ten years old? my mum, someone came to visit and _ carer ten years old? my mum, someone came to visit and it _ carer ten years old? my mum, someone came to visit and it was _ carer ten years old? my mum, someone came to visit and it was a _ carer ten years old? my mum, someone came to visit and it was a worker - came to visit and it was a worker from _ came to visit and it was a worker from the — came to visit and it was a worker from the young carer's service. what did they say? — from the young carer's service. what did they say? they — from the young carer's service. what did they say? they spoke _ from the young carer's service. what did they say? they spoke to - from the young carer's service. what did they say? they spoke to us - from the young carer's service. what | did they say? they spoke to us about what a young — did they say? they spoke to us about what a young carer _ did they say? they spoke to us about what a young carer is _ did they say? they spoke to us about what a young carer is on _ did they say? they spoke to us about what a young carer is on the - did they say? they spoke to us about what a young carer is on the support| what a young carer is on the support they can _ what a young carer is on the support they can give. then there was an after—school club which gave us a few hours — after—school club which gave us a few hours respite, once or twice a week _ few hours respite, once or twice a week they— few hours respite, once or twice a week. they would take us on trips, sometimes — week. they would take us on trips, sometimes residential trips and give us support— sometimes residential trips and give us support with homework and supporting the family. how us support with homework and supporting the family. how old are ou now? supporting the family. how old are you now? 31- _ supporting the family. how old are you now? 31. what _ supporting the family. how old are you now? 31. what were _ supporting the family. how old are you now? 31. what were your - supporting the family. how old are i you now? 31. what were your teenage years like? chaotic. _ you now? 31. what were your teenage years like? chaotic. even _ you now? 31. what were your teenage years like? chaotic. even though i i years like? chaotic. even though i ma not years like? chaotic. even though i may rrot have. _ years like? chaotic. even though i may rrot have. i — years like? chaotic. even though i may not have, i am _ years like? chaotic. even though i may not have, i am in _ years like? chaotic. even though i may not have, i am in school i years like? chaotic. even though i| may not have, i am in school most years like? chaotic. even though i i may not have, i am in school most of the time. _
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may not have, i am in school most of the time, well, i was at home at the time caring. — the time, well, i was at home at the time caring, the times i was in school. — time caring, the times i was in school. i— time caring, the times i was in school, i don't switch off. i might not be _ school, i don't switch off. i might not be physically caring but i am emotionally and mentally caring. i call my— emotionally and mentally caring. i call my mum during break and she doesn't _ call my mum during break and she doesn't answer, alarm bells ringing and i_ doesn't answer, alarm bells ringing and i think— doesn't answer, alarm bells ringing and i think something bad has happened. even when the school knew, there was— happened. even when the school knew, there was no— happened. even when the school knew, there was no support. i was reprimanded because i didn't come into school — reprimanded because i didn't come into school. even during gcses, my mum _ into school. even during gcses, my mum was— into school. even during gcses, my mum was really sick. i had to go into study. — mum was really sick. i had to go into study, even though in between your exams, i said i would rather study— your exams, i said i would rather study at — your exams, i said i would rather study at home. they said, you can fail. study at home. they said, you can fail i_ study at home. they said, you can fail i said. — study at home. they said, you can fail isaid. i— study at home. they said, you can fail. i said, i can take my gcses, but if— fail. i said, i can take my gcses, but if something happens to my mum that is— but if something happens to my mum that is fatal, i am not going to get that is fatal, i am not going to get that back — that is fatal, i am not going to get that back. so pop—macro it is a lack
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of understanding in school, mainly. how many — of understanding in school, mainly. how many people were in the house? it was myself, my younger sister and my mum _ it was myself, my younger sister and my mum~ 30— it was myself, my younger sister and m mum, ,., it was myself, my younger sister and m mum. ,~. ., it was myself, my younger sister and m mum. ., ., ., my mum. so you are looking out for our my mum. so you are looking out for your younger— my mum. so you are looking out for your younger sister _ my mum. so you are looking out for your younger sister as _ my mum. so you are looking out for your younger sister as well? - my mum. so you are looking out for your younger sister as well? yes, i my mum. so you are looking out for your younger sister as well? yes, in j your younger sister as well? yes, in some aspects- _ your younger sister as well? yes, in some aspects- lt — your younger sister as well? yes, in some aspects. it is _ your younger sister as well? yes, in some aspects. it is weird, _ your younger sister as well? yes, in some aspects. it is weird, because. some aspects. it is weird, because most _ some aspects. it is weird, because most of— some aspects. it is weird, because most of the — some aspects. it is weird, because most of the physical labour stuff i took it— most of the physical labour stuff i took it on — most of the physical labour stuff i took it on. if there was something wrong _ took it on. if there was something wrong with— took it on. if there was something wrong with the plumbing, i would get under— wrong with the plumbing, i would get under the _ wrong with the plumbing, i would get under the sink wrong with the plumbing, i would get underthe sink and wrong with the plumbing, i would get under the sink and do it. if something heavy needed lifting, i would _ something heavy needed lifting, i would do — something heavy needed lifting, i would do it. i became my dad's role as well— would do it. i became my dad's role as well as _ would do it. i became my dad's role as well as a — would do it. i became my dad's role as well as a carer and such. what about her— as well as a carer and such. what about her personal _ as well as a carer and such. what about her personal care? - as well as a carer and such. what about her personal care? what i as well as a carer and such. what| about her personal care? what do as well as a carer and such. what i about her personal care? what do you mean? looking _ about her personal care? what do you mean? looking after _ about her personal care? what do you mean? looking after her _ about her personal care? what do you mean? looking after her with - about her personal care? what do you mean? looking after her with her- mean? looking after her with her bath and so _ mean? looking after her with her bath and so forth? _ mean? looking after her with her bath and so forth? she _ mean? looking after her with her bath and so forth? she can i mean? looking after her with her bath and so forth? she can get i mean? looking after her with her bath and so forth? she can get inj bath and so forth? she can get in there and do _ bath and so forth? she can get in there and do it _ bath and so forth? she can get in there and do it herself, _ bath and so forth? she can get in there and do it herself, it - bath and so forth? she can get in there and do it herself, it is i there and do it herself, it is lifting — there and do it herself, it is lifting her out to come out, because
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she has— lifting her out to come out, because she has fibromyalgia and arthritis, so it affects yourjoints. i have to make _ so it affects yourjoints. i have to make sure — so it affects yourjoints. i have to make sure she doesn't slip. but there _ make sure she doesn't slip. but there are — make sure she doesn't slip. but there are some things she was able to do— there are some things she was able to do for— there are some things she was able to do for herself. but still other stuff _ to do for herself. but still other stuff we — to do for herself. but still other stuff we had to do, especially regarding hospital appointments and gp appointments where fever basically, young carers with a modern — basically, young carers with a modern victorian children, seen but never— modern victorian children, seen but never spoken to. we don't talk, unless— never spoken to. we don't talk, unless we — never spoken to. we don't talk, unless we are spoken to, but nobody wants _ unless we are spoken to, but nobody wants to _ unless we are spoken to, but nobody wants to hear it. when you go to the doctor— wants to hear it. when you go to the doctor and _ wants to hear it. when you go to the doctor and you say, i am fine. we want _ doctor and you say, i am fine. we want to— doctor and you say, i am fine. we want to say— doctor and you say, i am fine. we want to say no, there is x, y, and z going— want to say no, there is x, y, and z going on. _ want to say no, there is x, y, and z going on. but— want to say no, there is x, y, and z going on, but they ignore us because we are _ going on, but they ignore us because we are children. did going on, but they ignore us because we are children.— we are children. did you find that a lot? yes. even _ we are children. did you find that a
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lot? yes. even now, _ we are children. did you find that a lot? yes. even now, personal- we are children. did you find that a | lot? yes. even now, personal care, if there are — lot? yes. even now, personal care, if there are carers _ lot? yes. even now, personal care, if there are carers or— lot? yes. even now, personal care, if there are carers or close - lot? yes. even now, personal care, if there are carers or close family . if there are carers or close family members — if there are carers or close family members involved classed as carers, they should — members involved classed as carers, they should be involved because they see things _ they should be involved because they see things that the person who is ill may— see things that the person who is ill may not — see things that the person who is ill may not see. it see things that the person who is ill may not see.— ill may not see. it sounds so difficult. _ ill may not see. it sounds so difficult, what _ ill may not see. it sounds so difficult, what you _ ill may not see. it sounds so difficult, what you have i ill may not see. it sounds so | difficult, what you have done ill may not see. it sounds so i difficult, what you have done for love, what your childhood and teenage years, your life is like through your 205 as well, how has it affected you as a person? my through your 20s as well, how has it affected you as a person?— affected you as a person? my caring role has never _ affected you as a person? my caring role has never switched _ affected you as a person? my caring role has never switched off, - affected you as a person? my caring role has never switched off, that i affected you as a person? my caring role has never switched off, that is| role has never switched off, that is who i_ role has never switched off, that is who i am — role has never switched off, that is who i am so — role has never switched off, that is who i am. so i will be on holiday, automatically i am caring for someone _ automatically i am caring for someone on holiday. i have my own children— someone on holiday. i have my own children as — someone on holiday. i have my own children as well and it is more acceptable to be caring for your children. — acceptable to be caring for your children, but not for a family
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member _ children, but not for a family member. it is when you are older and yourfamily— member. it is when you are older and yourfamily member is member. it is when you are older and your family member is elderly, but in your— your family member is elderly, but in your 20s — your family member is elderly, but in your20s and your family member is elderly, but in your 20s and 30s, you need to be more _ in your 20s and 30s, you need to be more focused on your children than everybody— more focused on your children than everybody else. i can care about everyone — everybody else. i can care about everyone else, but i am the last one to be _ everyone else, but i am the last one to be cared — everyone else, but i am the last one to be cared for. everyone else, but i am the last one to be cared for-— to be cared for. yes, that is it. what about — to be cared for. yes, that is it. what about your _ to be cared for. yes, that is it. what about your own - to be cared for. yes, that is it. i what about your own relationships? thankfully, i have a strong friendship group and because we are all carers _ friendship group and because we are all carers. we don't see ourselves as friends. — all carers. we don't see ourselves as friends, we are family. we turn to each— as friends, we are family. we turn to each other for advice or emotionally to let it out. because we all— emotionally to let it out. because we all know and understand and there is nojudgment. even when we all know and understand and there is no judgment. even when you we all know and understand and there is nojudgment. even when you have negative _ is nojudgment. even when you have negative feelings towards caring, because — negative feelings towards caring, because when you have been caring, i didn't— because when you have been caring, i didn't have _ because when you have been caring, i didn't have a — because when you have been caring, i didn't have a childhood, technically. there will be
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things that i don't like, but there is no _ things that i don't like, but there is nojudgment. it is understandable to have _ is nojudgment. it is understandable to have those emotions. and they are here for— to have those emotions. and they are here for you — to have those emotions. and they are here for you. that is a strong friendship— here for you. that is a strong friendship group. when you try to explain _ friendship group. when you try to explain to— friendship group. when you try to explain to the people who are paid carers. _ explain to the people who are paid carers, they say they understand how i carers, they say they understand how ifelt~ _ carers, they say they understand how ifelt~ i_ carers, they say they understand how ifelt~ i said. — carers, they say they understand how ifelt. i said, no carers, they say they understand how i felt. i said, no you don't. you -et i felt. i said, no you don't. you get to— i felt. i said, no you don't. you get to go— i felt. i said, no you don't. you get to go home at the end of your shift. _ get to go home at the end of your shift. my— get to go home at the end of your shift, my role never switches off. it is shift, my role never switches off. it is the _ shift, my role never switches off. it is the lack of understanding with caring _ it is the lack of understanding with caring and — it is the lack of understanding with caring and with nation carer's week, for everyone — caring and with nation carer's week, for everyone else it is nation carer's— for everyone else it is nation carer's week, but for me it isjust another— carer's week, but for me it isjust another week. and carer's week, but for me it is 'ust another week.i carer's week, but for me it is 'ust another week. and if you were in a room with — another week. and if you were in a room with people _ another week. and if you were in a room with people in _ another week. and if you were in a room with people in charge - another week. and if you were in a room with people in charge of-
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another week. and if you were in a room with people in charge of the| room with people in charge of the country and they said, lavinia, what needs to happen? what would you tell them? . . needs to happen? what would you tell them? , ., ., ,., ., “ needs to happen? what would you tell them? , ., ., ., them? there is a whole book, worth over 20 years _ them? there is a whole book, worth over 20 years that _ them? there is a whole book, worth over 20 years that needs _ them? there is a whole book, worth over 20 years that needs to - them? there is a whole book, worth over 20 years that needs to be i over 20 years that needs to be involved — over 20 years that needs to be involved. you can'tjust change one thing _ involved. you can'tjust change one thing regarding caring, because it is a ripple — thing regarding caring, because it is a ripple effect. yes, we have the carer's— is a ripple effect. yes, we have the carer's act. — is a ripple effect. yes, we have the carer's act, but how many places are implementing it. and the hospitals who tried _ implementing it. and the hospitals who tried to discharge my mum without— who tried to discharge my mum without a — who tried to discharge my mum without a care plan. and i said, no, she needs — without a care plan. and i said, no, she needs a — without a care plan. and i said, no, she needs a care plan before she is discharged — she needs a care plan before she is discharged. it is a ripple effect. if discharged. it is a ripple effect. if you _ discharged. it is a ripple effect. if you are — discharged. it is a ripple effect. if you are a _ discharged. it is a ripple effect. if you are a young carer or a carer with— if you are a young carer or a carer with young — if you are a young carer or a carer with young children, then lists social— with young children, then lists social services need to be involved. you might— social services need to be involved. you might be working full—time or not working at all, young adult carers — not working at all, young adult carers are _ not working at all, young adult carers are the highest groups of not
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in employment or education. there are children — in employment or education. there are children who are doing the same hours _ are children who are doing the same hours of— are children who are doing the same hours of work of caring that adults do a week— hours of work of caring that adults do a week in paid employment. there are so— do a week in paid employment. there are so many— do a week in paid employment. there are so many things that need to be changed. _ are so many things that need to be changed. it — are so many things that need to be changed, it is notjust one thing. it changed, it is notjust one thing. it has _ changed, it is notjust one thing. it has been — changed, it is notjust one thing. it has been amazing talking to you lavinia, thank you. thank you for calling. lavinia, thank you. thank you for callinu. . ~ lavinia, thank you. thank you for callinu. ., ~' ,, lavinia, thank you. thank you for calling-_ so _ lavinia, thank you. thank you for calling._ so much i lavinia, thank you. thank you for i calling._ so much there, calling. thank you. so much there, so much. what _ calling. thank you. so much there, so much. what an _ calling. thank you. so much there, so much. what an amazing - calling. thank you. so much there, so much. what an amazing young i so much. what an amazing young woman. janelle in central london, hello. ., ., ., hello. hello, nicky. can you hear me? yes. _ hello. hello, nicky. can you hear me? yes. it— hello. hello, nicky. can you hear me? yes. it is— hello. hello, nicky. can you hear me? yes, it is all— hello. hello, nicky. can you hear me? yes, it is all good. - hello. hello, nicky. can you hear me? yes, it is all good. can i hello. hello, nicky. can you hear me? yes, it is all good. can you| me? yes, it is all good. can you hear me? _ me? yes, it is all good. can you hear me? thank— me? yes, it is all good. can you hear me? thank you _ me? yes, it is all good. can you hear me? thank you for - me? yes, it is all good. can you hear me? thank you for taking i me? yes, it is all good. can you i hear me? thank you for taking my call. i hear me? thank you for taking my call- i just — hear me? thank you for taking my call. i just want _ hear me? thank you for taking my call. i just want to _ hear me? thank you for taking my call. i just want to endorse - call. i just want to endorse everything your last caller said. absolutely, my heart reaches out to her. i was calling today because i
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just want to give a big shout out to my son. he is sitting right next to me, he doesn't know i was making this call. i was born in 1962, my mum, unfortunately, iwas this call. i was born in 1962, my mum, unfortunately, i was given thalidomide to take and i was born with multiple disabilities as a result of that drug. my parents, they have slid cared for me during my childhood. i was fortunate enough in my late 305 to become pregnant and have my son. and because of circumstances i had to raise him as a single parent with the fantastic help of my parents. when my son was 11 my father passed away from leukaemia. when he was 12, my mum was diagnosed with chronic myeloid
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leukaemia. my son come at the age of 12, had to take over a lot of the caring activities that my parents used to do. what i have always found difficult is getting other people to understand. i mean other people by medical, legal, you know, not friends. obviously friends really understand. but when you don't have two hands and you are a woman, to try and explain you have to get your 23—year—old son to help you do up your bra every day, or help you zipped up address or help you get all the pots and pans out of the cupboards to do cooking, or help with the house—cleaning. do all the sort of, anything that is heavy around the house. what i have found,
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it is always a constant battle. there are roles that in my case, it is not the role my son does, it is not something you can just get a carer in to do unless it is going to be a living carer. there have been times i have had operations on my shoulders and the little years i have of that arm has become, you know, i have not been able to use it at all. in those cases i may be calling upon my son to help me with bathing and toileting. it is not activities you schedule in full and external carer. i do think that my son is probably like a lot of other young family members, or older family members, these people are doing things that are, i guess,
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doing things that are, i guess, doing things that are, i guess, doing things as if the person was a baby. i want to give a big shout out, especially to my son because during this time, i willjust say this, the caller before saying at risk health—wise carers are. when my son was 19 he suffered a stroke and went permanently blind in one eye. it is like the carer at looking after the carer in a way, because he is limited with what he can do because of his eyesight. he doesn't receive any benefits. i struggle all the time to get the recognition for him that i think he deserves and a lot of these other young people deserve. ijust want lot of these other young people deserve. i just want to publicly come out and make that big shout out, nicky. because, he has gone a bit red, he is sat alongside me and
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he had no ideal bit red, he is sat alongside me and he had no idea i was going to do this and i want to tell him i love him so much. my life isjust so indebted to him. i him so much. my life is 'ust so indebted to himi him so much. my life is 'ust so indebted to him. i am sorry, i was so taken by _ indebted to him. i am sorry, i was so taken by what _ indebted to him. i am sorry, i was so taken by what you _ indebted to him. i am sorry, i was so taken by what you said, - indebted to him. i am sorry, i was so taken by what you said, did i indebted to him. i am sorry, i was| so taken by what you said, did you say his name? i so taken by what you said, did you say his name?— so taken by what you said, did you say his name? i don't mind, do you mind if i say his name? i don't mind, do you mind if i say _ say his name? i don't mind, do you mind if i say your _ say his name? i don't mind, do you mind if i say your name? _ say his name? i don't mind, do you mind if i say your name? it - say his name? i don't mind, do you mind if i say your name? it is i say his name? i don't mind, do you| mind if i say your name? it is aaron robins. he cannot hear because i have earbuds on. i wanted to make sure you could hear the call properly. i sure you could hear the call properly-— sure you could hear the call --roerl. , , ,., ., properly. i completely understand, a lot of people — properly. i completely understand, a lot of people don't _ properly. i completely understand, a lot of people don't like _ properly. i completely understand, a lot of people don't like the _ properly. i completely understand, a lot of people don't like the sort i properly. i completely understand, a lot of people don't like the sort of i lot of people don't like the sort of thing with microphones and stuff, and it no big deal, i would like to just come if he is up for it, just to say hello. i just come if he is up for it, 'ust to say midi just come if he is up for it, 'ust to sa hello. ., ., , i. to say hello. i will have to put you on speakerphone. _ to say hello. i will have to put you on speakerphone. hang _ to say hello. i will have to put you
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on speakerphone. hang on - to say hello. i will have to put you on speakerphone. hang on a i to say hello. i will have to put you on speakerphone. hang on a sec, | on speakerphone. hang on a sec, sorry, nicky. iili on speakerphone. hang on a sec, sorry. nicky-— sorry, nicky. if he is ok with it? yes, he sorry, nicky. if he is ok with it? yes. he is- _ sorry, nicky. if he is ok with it? yes, he is. hello. _ sorry, nicky. if he is ok with it? yes, he is. hello. aaron, i sorry, nicky. if he is ok with it? yes, he is. hello. aaron, howi sorry, nicky. if he is ok with it? | yes, he is. hello. aaron, how are ou yes, he is. hello. aaron, how are you doing? _ yes, he is. hello. aaron, how are you doing? very— yes, he is. hello. aaron, how are you doing? very good, _ yes, he is. hello. aaron, how are you doing? very good, thank- yes, he is. hello. aaron, how are| you doing? very good, thank you. tell us about _ you doing? very good, thank you. tell us about your _ you doing? very good, thank you. tell us about your amazing - you doing? very good, thank you. tell us about your amazing mum? honestly, all of the hardship she has gone — honestly, all of the hardship she has gone through in her life, what she is— has gone through in her life, what she is able — has gone through in her life, what she is able to provide me with growing — she is able to provide me with growing up, it is legendary and not overstating it too much. there has been _ overstating it too much. there has been ups— overstating it too much. there has been ups and downs, as that is an everybody's — been ups and downs, as that is an everybody's life. but what she has been _ everybody's life. but what she has been able — everybody's life. but what she has been able to accomplish, with the help i_ been able to accomplish, with the help i have been able to give as well. _ help i have been able to give as well. but — help i have been able to give as well, but especially on her own, nothing — well, but especially on her own, nothing short of a miracle. to put it simply — nothing short of a miracle. to put it siml . ~ . nothing short of a miracle. to put it siml .~ . .,, nothing short of a miracle. to put itsiml .~ . , nothing short of a miracle. to put itsiml.~ . . ~
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nothing short of a miracle. to put itsiml .~ ., , ~' ., it simply. what has it been like for ou? you it simply. what has it been like for you? you were _ it simply. what has it been like for you? you were really _ it simply. what has it been like for you? you were really young i it simply. what has it been like for you? you were really young when | it simply. what has it been like for. you? you were really young when you started caring, how old were you? yes, i was around 12 years old. it was a _ yes, i was around 12 years old. it was a massive shock. having obviously— was a massive shock. having obviously grown up and seeing my grandparents and the care they were providing. _ grandparents and the care they were providing, even at that young age, it wasn't— providing, even at that young age, it wasn't something i was... i was able _ it wasn't something i was... i was able to— it wasn't something i was... i was able to slip — it wasn't something i was... i was able to slip into that role, i understood what the expectations were _ understood what the expectations were you — understood what the expectations were. you just have to get on with it, were. you just have to get on with it. do— were. you just have to get on with it. do what— were. you just have to get on with it, do what you can do. it has been a constant — it, do what you can do. it has been a constant learning experience over the last _ a constant learning experience over the last 11_ a constant learning experience over the last 11 years, doing everything that the last" years, doing everything that i_ the last 11 years, doing everything that i need to do. there has been challenges, i havejust that i need to do. there has been challenges, i have just completed my masters _ challenges, i have just completed my masters degree, i want a graduate degree _ masters degree, i want a graduate degree it — masters degree, i want a graduate degree. it was difficult. it has been — degree. it was difficult. it has
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been very— degree. it was difficult. it has been very difficult but you were able to — been very difficult but you were able to adapt to these situations and you — able to adapt to these situations and you work out ways to get around things— and you work out ways to get around things and _ and you work out ways to get around things and ways to make life easier. and sort— things and ways to make life easier. and sort of— things and ways to make life easier. and sort of survive. it has been really _ and sort of survive. it has been really difficult. i am still grateful, as they say, for everything else.- grateful, as they say, for everything else. aaron, what a rivileue everything else. aaron, what a privilege it _ everything else. aaron, what a privilege it has _ everything else. aaron, what a privilege it has been _ everything else. aaron, what a privilege it has been talking i everything else. aaron, what a privilege it has been talking to | privilege it has been talking to yourself and also to janelle. thank yourself and also to janelle. thank you both so much.— yourself and also to janelle. thank you both so much. sorry, we lost you there, you both so much. sorry, we lost you there. nicky- — you both so much. sorry, we lost you there. nicky- l— you both so much. sorry, we lost you there, nicky. iwas— you both so much. sorry, we lost you there, nicky. iwasjust— you both so much. sorry, we lost you there, nicky. i wasjust saying - there, nicky. iwas 'ust saying toodb e there, nicky. iwas 'ust saying goodbye and h there, nicky. iwas 'ust saying goodbye and thank- there, nicky. iwasjust saying goodbye and thank you i there, nicky. iwasjust saying goodbye and thank you for i there, nicky. i wasjust saying i goodbye and thank you for getting in touch. tbs. goodbye and thank you for getting in touch. �* . goodbye and thank you for getting in touch. . , , ., ., ., ., ., touch. a big shout out also for all the other thalidomide _ touch. a big shout out also for all the other thalidomide people. i i touch. a big shout out also for all i the other thalidomide people. i was the other thalidomide people. i was the lead plaintiff for that court action to at least try and get some recognition in australia. a big shout out to all the big thalidomide family that we have in the uk, they
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are great people and all their carers. because that is a huge challenge. thank you. thank you for letting us speak this morning. i am letting us speak this morning. i am thankin: letting us speak this morning. i am thanking you. _ letting us speak this morning. i am thanking you, don't _ letting us speak this morning. i am thanking you, don't thank me. aaron and yourself, amazing. have a good day. cheers. wow! i mean, emily, incredible calls.— incredible calls. incredible calls. we should _ incredible calls. incredible calls. we should also _ incredible calls. incredible calls. we should also be _ incredible calls. incredible calls. we should also be thanking i incredible calls. incredible calls. we should also be thanking you| we should also be thanking you nicky, and your team. because as we have heard from everyone today, carers are basically invisible in our society. carers are basically invisible in oursociety. people carers are basically invisible in our society. people didn't even know what i meant when i said i was a carerfor my mum. we noticed what i meant when i said i was a carer for my mum. we noticed that when we go for gp appointments, employers, wherever we go, people don't understand what it means what we are doing and the impact it is having. sojust this we are doing and the impact it is having. so just this week, nation carer's week and being able to talk about it is so helpful. as lavinier
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said, you absolutely needs to be in parliament, it isjust said, you absolutely needs to be in parliament, it is just another week for the carers. the question is, how do we get this conversation into daily life? how do we not lose sight of carers after the week ends. i hope we can do that.— of carers after the week ends. i hope we can do that. lavinier, you are ritht, hope we can do that. lavinier, you are right. she _ hope we can do that. lavinier, you are right, she should _ hope we can do that. lavinier, you are right, she should be _ hope we can do that. lavinier, you are right, she should be in - are right, she should be in parliament. we do a panel of mps every wednesday and i will ask her if she wants to, she might still be listening? do you want to come back and speak to the mp5? she made those point so articulated in making them and so powerfully. i think a lot of people would be taken aback. it is one of those things, we know there are kids in that situation and many others think about it in the abstract, it is when you actually hear the current phase, the lived experience that you think, oh, my goodness me. i am so lucky. laura,
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just before the end, and education for so many people this morning, i am sure? . . for so many people this morning, i am sure? , ., , ., ., am sure? yes, that is one of the thins, am sure? yes, that is one of the things. we _ am sure? yes, that is one of the things. we hope _ am sure? yes, that is one of the things, we hope people - am sure? yes, that is one of the things, we hope people can i am sure? yes, that is one of the| things, we hope people can come together— things, we hope people can come together and think about what sources— together and think about what sources of help and support. it is important — sources of help and support. it is important to remember this week isn'tlust— important to remember this week isn'tjust about important to remember this week isn't just about wellness, it is about— isn't just about wellness, it is about action as well. one of the things— about action as well. one of the things that care's uk want the government to commit to is a carer's strategy— government to commit to is a carer's strategy so _ government to commit to is a carer's strategy so it — government to commit to is a carer's strategy so it brings all bits of life together the carers and you get better— life together the carers and you get better support for them. we have never— better support for them. we have never suggest that parents have it easy. _ never suggest that parents have it easy. but — never suggest that parents have it easy, but there is so much more of a cohesive _ easy, but there is so much more of a cohesive offer of support to parents that doesn't exist for carers across health— that doesn't exist for carers across health and — that doesn't exist for carers across health and care, education and benefits — health and care, education and benefits. it is so important more action— benefits. it is so important more action is— benefits. it is so important more action is taken for carers this week and beyond — action is taken for carers this week and beyond. we action is taken for carers this week and beyond-— action is taken for carers this week and be ond. ~ _, ., ., ., and beyond. we could have gone on and beyond. we could have gone on and spoken — and beyond. we could have gone on and spoken about _ and beyond. we could have gone on and spoken about this _ and beyond. we could have gone on and spoken about this for _ and beyond. we could have gone on and spoken about this for a - and beyond. we could have gone on and spoken about this for a long i and spoken about this for a long time. i am so sorry, many people got in touch with powerful planes and
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incredible personal experiences. didn't have a chance to get to everybody. but they could have been 1000 people talking to us this morning, a massive response, so thank you very much indeed. one text, i care for my husband had a massive stroke in 2020. it is down to me. the caring. i had to retire early to take care of him and i am not of the age where i don't get my attention for another three years. we save the government millions and get very little in return. you have to fight hard to get every single thing. there are so many benefits no one tells you about. carers are forgotten by the government. thank you, again for both hours this morning. it is you that makes it. we will be back tomorrow at the save time —— for the same time. live from london. this is bbc news.
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