they draw inspiration from their native places. well, chicks are quiet. no, the bustle of such a life story is simple and at the

same time fascinating. i didn’t eat fish, until i got married, even when i was married for 18 years, i didn’t eat fish, but i cooked everything and cooked everything . i was looking for a plot for two years in such a picturesque place on the river bank. here is my russian bath. i love the bath. well, for the guests for the guests, too, a bath. and this generous earth attracts everyone. we now have many young people, many children. and summer in general all the grandchildren gather here, come to the village, sing with children's hair about how modern politicians live. watch in the project of the same name on belarus 24 tv channel. everything changes very quickly time goes by imperceptibly minutes days of the year we never have enough

time to stop and think about those who are waiting for us at this very moment it is worth remembering those without whom we will be so lonely on this earth, it's time to say, you know, mom, i miss or listen dads, right now, without putting it off for later, you need to say, i'm here, i'm nearby. appreciate the time spent with your loved ones. hello , my name is grechkova. anna i am the director of a public charity organization of belarusian children's hospices. we will talk about the work of our organization and its philosophy today

tomorrow. hello , on the air, the program, say, do not be silent in the studio, victoria popova and tatyana shcherbina and at a party. today we have anna gorchakova good afternoon. good afternoon anna georgievna public organization. belarusian, children's hospice was founded in the ninety-fourth year. you came up with the idea of ​​creating it. well actually yes, my idea was. well, i contributed a lot, yes, that is, in principle, i came to oncology in the nursery before that. well , moreover, from the academy of sciences, uh, and from the area where, in principle, no one got sick, no one suffered. eh, and everything was good and material, because i worked well in the hospice experimental enterprise of the academy of sciences, made serums there, and tested it, but the apostle,

he was lacking in character, and i understood. what's a little more. i don’t need anything here, something like that somewhere to realize everything in one day. they called me and said. may be an educator, and an educator, that is, i will learn an employee of the academy of sciences yes from a salary of 225 rubles. this is not a weak salary in 1989, in general, the level was then an excellent level. yes, but you don’t want 80 rubles. in an educator. well , teacher. this is generally the lowest such link in this, yes, and i went for a full day, right? yes, i just turned the page one day. and how it happened, the way i had a laboratory assistant. well, we worked as is. e teach the employee there which rabbits are immunized and so on. here and she says, listen, i'm sitting, thinking, i'm completely changing my life. yes, it's my mom on the cards what melts she says, let's tell you fortune. well, i went not a map, they laid it out. in general, this and that, and that, i say, and where is my transition at all, you don’t have any transition to another job, i was so hurt. i

don't like it when i'm somehow like no. i went and on this day, listen, well, you’re guessing out of spite. yes, yes, i see, i can say. in life and say that there is nothing, i went. you don't take the word no. yes it stimulates me. e to development. i came and here i realized that this is a completely different world. well, it's not just that i don't. ah, that is, as she told me, there is a fortune-teller, even you will pass in your life will not change, nothing like that, my life returned 180 °, that is, when i saw the other side of life in general, and now i understand how very many people who live in their lives do not understand what hospice is, what sick children are? no one they are bad or some other they just live their lives but you would be the educator on baby jose no, he didn’t have a hospice in the nursery as a hemo-atlantic center, and from there i was sent to america for an internship. our ninety- fourth year is years. that's why you know, everyone says how bad the restructuring was. i had one courage perestroika. it was great for me to perestroika, because in the ninety-fourth year i came to america for 3.5 months. yes, you can imagine

that zana completely collapsed and i was sent to america in the composition without any composition olga vita ugu forgot to tell the truth in quality, who and when i arrived in america with like ilovich, an ore-eater with three hello my name is anna am from beaters, i learned this, of course. and when i realized that in america, in general, no one speaks russian. you know the country. yes, it was a discovery for me, that is, it was like that, and i say, about whom , after all? here and here i found out they assigned me, get to know, the doctor came to do a host without belarus, what will i do? that's how i found out about it in america i think okay, i'll keep quiet. well, during this time i learned what a hostess is, uh, clearly i learned and i was generally very lucky in this regard, you know, i studied here in this years not from subsequent students. i learned teachers from those people who stood at the origins of the

organization, fucking active help in the world, that is, they gave me not just a set of knowledge, they gave me philosophy, here, but philosophy is your motto. hospice, if a child cannot be cured, this does not mean that he cannot be helped. she stole the mind from muscovites one of my acquaintances once asked a question. well, we know that, uh, let's say a person is terminally ill, and he will die in another week. all of a sudden he gets sick. uh, there's pneumonia, they put him on a ventilator and he wonders. why waste resources if he's going to die anyway? you see, the question wrong is not a question, not a question of resources to me is different. and why at all why? here is the word why do i always tell my students to doctors, that is, before what you want to do, ask, and why, that is, no one dies from cancer from cancer, an organ dies from the field due to insufficiency

, some organ flies, but suppose it flew light from the fact that you put a man pulled it out of the house, put it on the pipe. and he will die for you. on the pipe. you will invest in me it does not care about the other question. and how does a person feel, how will he leave this life on a pipe? it's not comfortable in intensive care. and the last thing he 'll see in this life. this is the white ceiling of the intensive care unit. this is what the doctor should be thinking about. here is the question. why, when we are talking about a palliative, and jose is the question for what? and if this is the last chance and the doctor made such a decision question next and you are the lord god, if a person was transferred to a plethora and the doctor is not sure the doctor takes on the function of god if he thinks about it, will he be able to practice i want to say one thing, not all doctors can work in the palliative palliative. this is hmm hilav. eh, it's the ability to understand one

thing. i, like a doctor, did everything possible for a patient to cure, but i'm not the lord god, i can't cure him not because i'm a bad doctor, but because i can't, well, no, people are dying to show this so you 're kind of agitating to stick together. not, absolutely. i'm generally very human. well, i'm afraid to the end. you just understand what's going on. this is when we just start to flutter subconsciously. you know? well, what, what is it all to no avail in order to tick off yourself, like, i'm a good doctor. i'm just to the end it's just to what end? you see, there is a very important thing. this is called the ethics of gantology. if you have transferred, if a council of doctors has transferred a patient from curative, where it can be cured to palitiv, then what is the goal not for the patient to die. and that the patient lived with this disease lived well chronically ill lies, indeed, as long as possible not, preferably as best as possible. here the question of quality is longer on paratives, and quality, and

quality i think you are talking about a paradox, yes, the higher the level of medicine, the more fucking help should be. maybe, like, explain it, when i came to the classical oncogene center, in fact, it was the tail of 10% of children, 10 were cured, we forgot about it. we forgot about it. well, in general, the life span of a child with small leukemia up to a year was exactly a month, that is, the child lived for a month and in in fact, the death rate was five children a day. it was 89. we forgot this and thank god, because that's when we grumble, shout about what is bad. this was forgotten, and at that moment it was ridiculous to think about hospice. the question was what to think about in order to treat and heal children. and when you exhaled, ha, i remember this moment, when somewhere, probably, 80-93 or ninety-five already, when german belarusian schemes appeared, when 67% of the extraction appeared, when children appeared who were cured by doctors, like them squared their shoulders as they watched it quite

different things. and that's when you look and then the question is good. why did you treat this one, this one is not there. and what to do with this, where he should be here next to those children who are being cured. or where is he at home and who will provide? so, when, when i arrived after this internship, olga vitalievna asked me olga vitalievna oleinikova is the person who well, who made the children's curative, we began to treat, by the way, she was not at all palliative. she was one of those doctors who treats, which she asked me like that, and what can we do with our knowledge that you received, but i did it well, in the ninety-fifth year i returned, what could be done in belarus when there was nothing, only a domestic tail help on home, but she said, so do it. well, well, i did it. once i heard a phrase that in life there are, uh, only two reasons for tears, when a mother dies and when a child gets sick, uh, mothers of those children who turn to you. uh, they're probably

sharing some of their feelings. experiences with your thoughts, how to live on, when you find out that your child is terminally ill, he is about to die. if we are talking about good palliatives, then such mothers come to us extremely rarely. to be honest, to be honest, there is. eh, already now in our country. well, still a palliative. we started before everyone before the russians. we were the first in belarus to start. let's brag a little. yes, and then this one, when we see that the child cannot be cured. yes, that is, palliative services are connected to a new issue. do you think mom will believe in this is, well, suppose that's the majority of our patients. it's not oncology. these are children with congenital malformations with neurological diseases. and what mom can believe, when she gave birth, well, for 9 months she went pregnant in her, a new life was ripe, no one said anything. and suddenly a child is born, she is told, unfortunately, your child will never walk, sit , move, talk, he will be like this.

uh, no mom can believe it. well it's just unreal so they say no it's not true and the first thing we hear we'll fight to the end say moms and we should just be there for them. we are just next to them. and, in principle, honestly, i personally talk about this, that i fully hope for a miracle, so i generally think that children are very plastic. yes, and in my life i have rarely had such cases when we transfer a child on an ell apparatus, and on an oxygen apparatus, and the child then walked and said that well, let's go home there will be the last month of life there, and he went to school. he did not recover, he remained disabled, but kim is a disabled person who can take care of herself. well, the leg pulls but the handle. the same one. yes, it’s a little bit different for everyone, but he doesn’t just live, they live badly. and moreover , this boy, about which he spoke. it was a very long time ago. e, i can very much say that he graduated from the university, and he does a lot of things in this life with his pen and leg, and everything is a little bit for us. how is it arranged for you from

the very beginning. we were purely home hospices, that is, we went out, we had doctors. uh, we have nurses, social workers, psychologists, the base served my office in positive center. it was still on the basis of the first clinical hospital, but it was called a and we left. eh, for the kids. basically. during the visits, i worked in oncology and everyone thought that we continued oncology for them there were no problems. that is, we proposals had a very good relationship with the doctors. this connection is very important and therefore everything was fine with children who were not ecological. the first child we took cerebral palsy, you know, when we first asked, yes, and i still remember to ride him on a trolleybus for a child was 12 years old. he never rode a trolleybus, his neighbors did not know that he lived in this apartment, that he was disabled and his tasks. here it was just to take the child out into the street. he never for 12 years. no, i rode a trolleybus and these children needed inclusion, very strong. i understand. at first you

came to the house, and then you decided that you understand, but gradually. yes, at first, little by little. we developed, and we realized that if there is very little oncology, in principle, it is, of course, very significant, it is visible, but in basically it is 10% of all our patients. the rest of all these neurological diseases are genetic, they are slow and there are a lot of other programs. hmm, other programs to make the quality of life in a child one of them is a social respite, there was a daytime help center for a psychologist, there, and so on and so forth. we lacked the flesh of the area we got at first completely childish. and there we had a room. yes, i can say, honestly, they forgot about this social respite. none of the parents wanted to use it. they sobbed they believed that no one could care. this is what they thought they understood as the first. yes, first. well, they also thought that, like, we don’t take good care of the child, and suddenly they take it away, then they will give him yes, and i remember that you know, i will never

forget, when we first started this program, we still had the project is also enis ss and we had to do it. i couldn't. well, we have money, we need to master it, and our parents just had to twist our hands, either you, we’re filming all sorts of hobbies, or you give your child to social respite. so it was and mom called every 5 minutes, like he was still alive, yes, and when she came in a week, and the child did not want to leave. today they pumped out how much and what areas there are two ways to build this is the construction of communism in a single country. i'm against it. yes, i am a systematic person and therefore i have always worked very closely with the world, and therefore in the sixteenth year we built a new center. and so, when we built the center, we transferred the function of the hospital to the state that we built, we equipped this function gave away the state. now they are engaged in social respite and inpatient care.

and right now, we are continuing to leave. we have inpatient care, but more for young adults. now we're kind of focused. we continue to leave for nu, that is, they leave. uh, nurse psychologists, who are basically a nurse leaving and we have a new program is habitation. not rehabilitation, but habitations, well, we can't restore a child. yes, that is, completely, and we will adapt it so that it does not fit sat, but we put him, e, he couldn’t stand, but we put him, but this is habitation, but if it’s a very difficult case this position in bed, how to lay it right? that is, it is very necessary. and when well the kids are leaving, you see, we can't say die. yes, you work with parents, and they do n’t cut your ears to the word they leave, like my dad left . i have a question. and where did he go, when he returns , you know, when she was dying, my mother said a lot, she was leaving, and that's exactly the word that cut me. hearing. i would like to

call a spade a spade absolutely in solidarity, you understand, for me the word die is a point, well, in a sentence in this life of a child. no, this does not mean that i have it in my soul. i haven't forgotten him. it's not that he won't be here. no, yes, therefore, but we are afraid of this word. true, he says, the mane program. we have, uh, a heavy program, but we have so many, probably, it's been going on for, well, 25 years - this program is going on, some people make comments to me. why are you talking so cheerfully about death. and i don’t talk cheerfully about death, but i’m generally such a person enough emotional, but hmm i won't cry and sob. here, on camera, to speak here, and here poor children are dying and so on. here it is not. hmm, no one cares. and believe me. we all talk about dying in a hospice. in principle, we deeply experience every death. well, every death will be a tragedy, well, not every one, well, the one that we are present, which we were, we always experience very deeply. and this does not prevent us, eh, from

entering the head with ashes and speaking in such a voice, probably many parents. well, not just parents. uh, basically people when here they face such situations, they say, and for what 100%. why is this for my child? what to answer, and i'm answering now so there are questions. which is better not put well we always represent hmm god well we make him human and then we give him human questions. for what justice i absolutely believe in god well, i probably, i may be, now my priests will be shocked. i have a slightly different idea of ​​god. god is not a person. he has a different justice and asking for what it is to spend time should be right reorient how i can live with this, how can i live with this now, i don’t have a son, let’s say, how can i live with this , i don’t have a daughter, how can i survive with this. well

, what should i live for? here we focus on the correct formulation of the question, because the question is for what this is the first question. well, i asked myself this question, we will not answer it, he has never been very many cancer patients. you have experienced this, for sure. well, as if this question is asked very often, these are people who did not smoke and led a normal way. life, that is, well really find you don’t know the objective reasons, so you reminded me, i had a patient she was 31 years old. uh, she had, uh, ewing's sarcoma, uh, i won't forget her natasha, because i do a lot. i generally study at the pfc. yes, and she came very easily. we have treatment. uh, that's after chemo. immediately, a beautiful girl from the provinces went to work, made an excellent career in minsk, built an apartment herself, and well done, such work, careers, oncology careers went to work, and six months later she was 39. and here she said , that time i asked a question. why did you

answer for what? because in my life. well, i set my goals wrong. now, if i am cured now, i do, firstly, i am not doing the work that i do not like. i made money. i say how you were, i'll go to a psychologist. that is, you still answer the question of what is for what is not? yes , why why did i reorient it? that is, i always believe that a person must fight when small children, they do not fight, they know about death. they see when i work and we work with teenagers with adults. you see, we have much more to hold on to on this earth than children. children? this is mom, this is dad. it's very short. and we have we have children, we have in our debts. we have something that we have not completed, and we categorically do not want to. how would we do to stay here and here, then it is very important to give a goal and natasha and i fought to the end. and this saved her, that is, from depression, and in principle, number

two, happy in the arms of a loved one of another man, she threw one found another who had been waiting for her for 8 years. she realized that here he is, in principle, he answered all the questions in this life. your energy is very nice. how are you smiling? speak about such things that we, well, in general, with tears, but we are used to talking, we cannot speak. maybe let's get back to this conversation. after uh, some time. now let's take a short break. we remind you we have a telegram channel. say, do not be silent, where you can ask your questions, as well as offer us guests we are in touch. on the air say it again, don't be silent. and today we have visiting director of the belarusian children's hospice. anna gorchakova anna gergievna and who uh are the employees of your e hospice, do they have any special training or any doctors? the sisters can do it for me good questions, the

word any does not fit. uh, the preparation list can say get used to the hospice. i am addictive staff. this is the year. here a person comes and then only a year later either he stays or he leaves, that is, for 2 months, as usual, he does not work. well, uh, doctors are nurses, but it's special people because the hospice is a little bit of philosophy, it's a little bit of other. that is here. you don't have to be teresa's mom, and here are the poor kids. oh, let's help it doesn't work, and also you can't be cold aloof. that's when the type i'm a pro is all sorts of mouths i work. i'll take pain relief there. well, here i must always be in the middle of the glasses, and the most important thing here is necessary. there, well, love your job and respect. sometimes the child looks very unusual, sometimes the mother of this child. uh, well, you can understand her, she behaves inappropriately. here you need to be able to calmly worry about it all. that's not to slide down neither on pity nor on accusation for some kind of there mom is bad or there is a

pity about the poor child, that's it and understand that this is your place, how it works. naturally. we do courses there and teach them. well, some pass after kursk, says the opinion is not mine. i had a doctor's excitement. i will go to the polyclinic to treat ordinary children and it is very important for someone to cure them. here, to treat and involve, and i personally understand such doctors. thank god that they exist. so we were not cured, and some understand their role. eh, well, that's all. well, i believe that the employees of the policy - this is what, more precisely, the product of the problem of burnout. it is and will be, especially in an organization like hospice , there are certain norms that nurses work in hospice, uh, five years maximum. then they have to change, or as in the west, they even leave one hospice for another hospice, that is, some kind of change gives them the prevention of burnout syndrome, no matter how our psychologists work. there is a burnout of too much suffering, too much grief, too many deaths. that's why our nurses are not very, but young. and where is

the youth that goes? yes? that is, she needs some kind of generational change, while it is difficult with the change, so we invite you to our hospice. uh, i understand that for maybe the youth is not very interesting at first glance. although this is a very interesting and creative direction. and the second is, of course, doctors. well, this is generally, i believe that here i am always deeply convinced that the doctor is a pellative care. this is the highest level, which is both a neurologist and pediatricians a little and a therapist and, uh, an ancologist. that is, this is it really very like that. but it would be nice if we could find such a doctor, we have such a desire, and now we have e, just such a situation happened that in a mammal our doctor, a long-time, let's say, person who supported us for many years, died. he died, he was a doctor and his wife is his widow. or rather, she will send us the money that they have such a tradition for the funeral, but it will be for the

doctor's salary. only this, as in the memory of my husband, so we are looking for a doctor. for more than 20 years you have been watching what 27 to 27 years old transformation in society worries me. has our attitude towards this problem changed or not? or are we at the same point where you start er, the mentality changes 2% in 100 years, they started your answer no. no, it has changed a little. yes, uh, well, not in the way i would like, here, i would like the word pity to be changed to the word empathy. i never forget how the girl ate in the wheelchair, paralyzed. she said the worst thing in life, when pitying grandmothers, she has a hand. that's how it's done, yes, and steal the money tube in the pen salt, yes, but she couldn’t give it to them, because his hands didn’t work for her, and grandmother, that is, pity, pity the poor girl. it's very humiliating, empathy as well. i see that the person is bad. i can help or not, if i can't.

here are these aside. find someone who can ask this question. i will repeat it. here is this relationship. what, but why? yes, why deal with them there, if it's all the same. and explain, here's my logic? yes, if we allowed something the child lives, that is, so that he does not live, let's not save his nature, let them die, but our medicine is now so high that we save resuscitation save children and give them to their parents. but forgive me if we gave the society to our parents. here is such a child, we are obliged to create a system that will allow mom. well, at least you don't go crazy living with such a child, you know, this is our duty. volunteers with cats and dogs are somehow more willing to work than with people. and how to explain this? elementary because animals are always grateful to people. er, well, that's my theory. maybe this not mine, but still they say a repetition of the old. the most terrible feeling is a feeling of gratitude, because you understand how i

should thank my mother that my mother gave birth to me, she fed me, she gave me an education, and i don’t have a relationship with my mother and so i often come across as a psychologist, but i owe her be in love. this is my duty, because i should be grateful and in the end, as a result, it often comes. opposite, on the contrary, the sense of duty is very pressing, because here we are, we helped the family and what we expect from the family. oh thank you very much, no always not always help from the heart. absolutely correct absolutely correct, as someone. why did you tick the box ? no, just look, well , always from the heart, before helping. you have to understand if you need it or not. this is what volunteering means. i know so many families who live only on help they absolutely do not need to remember absolutely do not need help. i will never forget, this is a real case when i received a letter from my dad on the internet, please help me no more strength to pay the child has a relapse, and the child already 5 years of mission, but during this time dad stopped working. bought a car. we don't have a

law. that is, i, as a public organization, receive money and must report. we have a law and we have some certain ones. uh, you're developing a very strong dependency, absolutely dependency. you see, that's why you have to be here. i help must be wisely, well, it must be wisely, but without emotions. let's talk. let's talk about how you tried to lobby him. no, i'm not, because well, again , we we plowed we organizations that provide services. and we don’t even have the word logging in the charter. yes, that is, we were engaged in lobbying. only the first goal of our organization. this is the creation of a system of palliative care for children of political assistance. and here we were engaged in lobbying. we worked closely with the ministry of health. in the end, we did it. now our task is to maintain this system. well, because it already exists, and the second is to try to make a bridge between pediatrics in childhood and adults. yes, this is a very difficult task.

it’s bad for us, it turns out that your organization never received state funding, not only to donate. yes, how are things going with this now, the situation with donations for 4 months is minus, we are going quietly minus minus what is the reason for the sanctions? naturally, with the situation uh, with the fact that we have uh . oh well, they didn’t calmly tear off 50 rubles there. and now they, well, they have other tasks to survive and they do not have the opportunity. eh, and the second. we don't do aggressive charity work. we don't run, our volunteers don't run. why are you giving it up? here, from the action of some high-profile events, we do not refuse grotto events. i refuse specifically from aggression. volunteers rush with a box and demand that you give money. yes, i am very e responsible for the donation. understand, means, it from it what? well, these are the first ones we have. we don't have any cash right now, we don't have much

cash, and that's it. well, well, you're not working, but the second person. eh, should. here is my deep conviction. let's get money on hospice. he must understand that this is his conscious act. it's not that i was forced to, so they pressed me against the wall. yes, it’s called so- called to just fuck off. here, i'm against it. i believe in this material one. here. i don’t like to be aggressive, and plus there is still a certain distrust in society, so to speak, i feel it from and again, the charitable foundations themselves are different , including philanthropists, let’s remember, for example, chulpan khamatova uh-huh , a person was engaged in a noble cause first special military operation, she just fled to latvia and left everything. and you can remember dr. lisa who helped the children. uh, for her, each life was important, she went to the donbass to help them, she went to any point. i mean, here, uh,

here. there is a hole between these, i know absolutely clearly, we are engaged in a patio. that is, i am not involved in politics, and i think that i can say in our organization. there's an unspoken rule that if you want to get involved in politics, goodbye. all well, not because it's bad or good that we have goal. we have the independent go hostilities do not go. we have patients who will help them. and this is very important it does n't matter who i help ukrainians belarusians russians have no nationality in the palliative. in general, i am categorically against this allocation of nationality, if necessary. right now, the family is from ukraine, yes, that is, we help them help, do not advertise your activities, how will you find it? no, we're advertising. we have a department, a department that develops promotions. yes, that is, we have a c subscription, of course, e. well, here i am for the first time i hear that you have a subscription, our organization works exclusively for the money of belarusian sponsors. for 20 years already. well, we work only and we are the only such organization. all

organizations. they had some western money , or they ran out of money and they ran out. we only have the truth, there is now a european union project. i am surprised that he gives us money, but only organizations help you. or it may not be. with us, i can say that this project was the only one in the cis that happened and the uniqueness of this project was in one thing, that we did not have general sponsors, but in moscow there was a general sponsor. there was a general executive there in kazakhstan. that's plus the belt. this is a plus. we built it like a church, that is, we got a project. we have a project, we buy bricks for 10 dollars, one brick costs. i will never forget my grandmother from vitebsk who was 85 years old, who is 5 years old to 90 30 rubles. with a pension. we were sent to construction. and he sent us money from prison to a man from prison. here it is, it seems to me that you know every child who needs help in the country, every person there who is ready to help no, but i don’t

know, of course, but i would very much like the help not to be here, not to put some kind of sin here. yes, i think it is very important, but from the heart. and for this, uh, we have a lot of such closed promotional events, where we personally get acquainted with sponsors, many sponsors personally know us, they trust us. i think it's all about manual control. yes, you said it right. it everything is in manual control, what you are doing can be called charity no, in no case was creativity. it 's uh, i help cats and dogs. here is my charity. i give money. i am a philanthropist. i'm here in general for the word professionalism. i'm generally a fan of the word professionalism. well, i generally think that professionals should work. it was an interesting moment when we were on a break. you told things like the children who taught you, but somehow tell me maybe a little that's about it in your experience that you understood from after communication. let's take off such a lot you know, i generally think that all my teachers. well, here are the main ones. no, i studied a lot, but the main teachers are children. and who are

we, what are we, we can teach a dying child or a seriously ill time, what can we only say to him? well, explain to me, i personally don't know. we can only hear and listen and listen to them. and the child sometimes says, here, i will never forget this, and when i realized that the brainchild than we are, well , the child dies. yes, someone has me. yes we are we say what we say, mother, how i will explain how i will live without you. yes, we don't talk. and how you are suffering now, we are talking about how i will live without you. i won't live without you. it's such an egocentric approach and you can never talk about it girl. her name was lena when you were still many years ago, when there were all these all sorts of folk ways. we will never forget this shevchenko. this is the floor. cups of half a glass of hot sunflower oil and half a glass of vodka, but this is shevchenko's method. here you are killing and healthy. blimey! well, funny, but people believed in it yes. and so the mother forced this girl to drink. and she had metastases in her stomach, she was ill. yes, and

she asked the nurse to talk to her mother. i can't. i'm already feeling sick here. can you imagine there is there? mom says that you drink this yourself. try drinking hot sunflower oil. here are the points you take a sip, mom said, and you can guarantee me that my daughter lena is cured. i say "no. but this man, it seems, he cured, i will give as long as i can, we said this to lena and you know, what the girl said. if it's easier for mom, i 'll drink, said the dying girl, that is, the children. they, they were purer than we are with our lives, perhaps we have some more fear. we are adults, you have more fears, and we have a lot of fear. one more thing. uh, i want to discuss this is the public opinion. yes, that is, parents do not only suffer that the child. to the pain , she needs constant help, more, as they say. how to think, how do you know. that's it . that's why this sentence was told by gabor that it was there until the end. i won't name names. i had a

patient not so long ago who decided. well, when the doctors said that's it, she decided that's it, she didn't decide not to collect money abroad, not to try anything. so she said how much there is only a child. uh, gotta live at home. we were with her until the very end. but how much she heard reproaches from the parent network. you're a bad mother, you must go the other way to the end. for some reason you don't collect money for some reason you don't do it. and it was very painful and it was very much more. and how are you speak, take courage there somehow with dignity, too, you understand, you know these are all words. to be honest. yes, i can say that people don’t think, how kind of such a gorchakova you are so cheerful, i am absolutely sad. i'm just. hmm. i'm realistic. well, you see, if it's raining here, i can take an umbrella. i can say a thousand times that i don’t even want this . i don’t see him, but i’ll take my umbrella and go pillow. i think i do. what can i do, i will do. and i don't believe in miracles.

unfortunately, i have never seen him. it's a miracle worked for 30 years. wherein. you say that children see something. and this is not. a miracle is something that we do not believe in. we believe, it's just that you generally believe that there is a right life, and so, and someone does not. the owner does not believe. here it is not, you understand, but i believe, but you do not. this is normal, each person is different, that is, we and we are different, and in palliation it is very important that the word you want is very important, it seems to me that it is perceived as a sentence. no. you see, baby adult, lord different things. adult hospice. made for the dying from the start, but they originally there were odessa hostesses. uh, for a social respite, by the way, originally they were so that the child could stop here helen house suppose the child came from the county to great he monsters in london and he has nowhere to live. excuse me, we have children in the hospital for 7 months, and in the west no one lies for 7 months. they did this chemo and went home. and where to

go home and for this they built this tail. well, he was already dying, when they built it and it was empty, this building stood and then it began. respite first promotion and function there european modern children's hospice, social overexposure was initially built in a different way, such a moment is still interesting, but mostly mothers and children are treated or fathers are also involved, and you know different things with us and dad, it happens that in general, in principle, in a family, if a child is born with a certain disease, an incurable father can leave the family altogether. maybe, well, before it was almost 100%, now you've changed a little. uh, in favor, dad, i can say a lot of dads who are very well behaved and even in our case eat when after the birth of a child. uh, mom made a condition, either we hand over the child, or i 'm leaving. he said leave, she left the child was 3 months old. she left, got married and lives, and the child, and the father is raising the child. i

have friends who have been around for many years. e, fights with oncology, and he writes about it to her and in general, well, how difficult is this story, right? would, well, the most important thing he says is that it's very difficult to understand at some point what doctors are doing. that is, there is somehow no unity here, not in views, nor in techniques, or in the clinic. that's how a person comes to terms with this, it seems to him that they are putting him over. well, in general, experiments, if so let's start with what experience means. uh-huh, let's put it clearly, oncology is an experience, a question that, like, they should be very clearly dissuaded, and i shout it at all sorts of all conferences, all this is the ethics of dentistry, that is, it cannot be that one doctor says one thing, and then the same parents like to go to a different doctor and yes, and he starts a different doctor. the doctor says another thing is this lack of ethics. as so maybe? in any way this disgrace completely agree? i constantly need to educate. here we are, here we have nailed

such a course of polyactive medicine to mop. we have a whole block of ethics of medical ethics there. well , in general, this is needed. law. here we return. why do you need a law that if an example came to the mother of a palliative, that is, a chronically ill child, to the doctor. first question. who is watching you never ask this question. they start giving directions right away. but it has to be um. the algorithm has been developed. yes, and at the level of the law how much so. and so this is all talk, of course, but we will continue our conversation after a short pause, for a while. let's break, subscribe to our telegram channel. say don't be silent. leave your comments. suggest the guests you would like to see in our studio, and watch all our releases on the youtube channel, belarus 1. belarusian culture, which has been created

for centuries. i know that this legal mill is a monument of industrial heritage. early xx century. she is still on the move. the mill has served the people for many years. launched in 1996 non-standard heroes and locations. who's wandering around here? who is this walking around my house, who is it that came to me? oh, so the guests came to me, how many visitors, does the ethnographic complex generally receive and what is the demographics of the greater number of visitors - these are children and topics that will never lose their relevance. and why is the children's museum of forest mythology relevant and fashionable? time, because there is no such thing anywhere else, watch the culture mod project on our tv channel. holiday season

open. so, it's time to fill the garden with plants, we master all the tricks of gardening science. the more funds. it is widely believed that the more we leaf children achieve huge yields. is it difficult to grow sweet corn? it should be cool, white , pretty and already, when we wrap up the root system at the end of the cube. this is already 100% she is ready to think that it will not work out if you choose the right strong seedlings, but the main secrets. we share with you just take a bribe and go to the garden turned inwards and should not be intense emerald. i'm already looking forward to a big harvest of tomatoes. but my plans also include at least a kilogram of berries from each strawberry bush, and the most beautiful and tasty dacha in the program for belarus is 24

, say, don't be silent, and the director of the belarusian children's hospice is visiting us. anna gorchakova , we would like to discuss the program with you. we are here. and tell us what makes it such a very difficult program, and you know , it is very difficult to answer. that is, we here created a program in our minds when we realized that childhood is ending. yes, a completely different life begins, and in terms of, among other things, its legislative, it is different, that is, and this is very sharp. it 's very painful. today, uh, the parents of the family receive this kind of help. tomorrow is completely different. that is, a children's clinic and an adult clinic are different. i think you will agree with me. and this is the bridge we wanted to throw over the task. ours was, that is, to make the service study what is

needed in this case, yes, that is. uh, that's when we work, and for 2 years we have this program and we came first. if we are talking about children who have been disabled since childhood, yes, then the first thing these young adults need is this hangout. oddly enough, we are talking about the age of 19 and so eighteen to 39 to 39. yes, they really need parties. they want to be like everyone else, that is. they want to go to the camps to drink. why not? and sex excuse me, here we are, of course, this topic is closed. well, actually, they want all the sex, and they talk about it, they want to be the topic, not just talk, they want to have sex. what do you think about the idea of ​​clusters? so that somehow they had districts? where how? well in sweden i know. yes, there are such sweden there, what do you think or not you need to do it. well , you know, we have a cluster of social development. yes, that is, we have them, well, conditionally, but there mostly, uh, and there they are

very good for a certain group of patients. it ’s not bad for those who have mental disabilities, it’s cool there. here's the problem with someone who has a physical hmm pathology and a normal good working brain. they also want to work i can say some yes, but they don't know how to work. this time. and secondly, they want to be included in society. well, they want to be special. here we did an experiment. we took a child with a disability. we have a camp, yes, such a one and it means there, in the usual shift of children. e two disabled children and the problem was not with healthy people, but with the sick. i will not pick up my sock, because this is what you have to pick up mom, mom, why does he have to clean the bed, so i tell her that i am full. she don't no i can say, and now we've moved on, so we have such an organization. we're this one, which is a party. yes, we transferred it to another organization. we have it bound by goodness. we had a social worker. he

went there. and here he is hanging out with them. yes , this is inclusion. and we stayed in what plan we have the first and one-time help, that is, suppose a person is ill, he is 37 years old. here we have such a woman. yes, and she has children, and we will organize for her, and she was paralyzed. that is, we organize here is help at home. so we organized, in principle, took a step aside, because you know that there are still adults. well, you see , i'm on my own today, tomorrow i became paralyzed. yes, i still have the feeling that i myself, i generally want myself. and you have to be more careful, like with such a problem, but let's voice it, but, let's say we have state support, it turns out to be disabled, but all of me with disabled children under 18 years old, good support will not be good. let's go after eighteen. well, here it is. let's, let's listen to what one of your wards said, as for, you know, 17. here with mom. uh, very often the state traveled to

the sanatorium. free of charge, of course, after 18 this is, firstly, i’m alone, i can’t travel alone, because i need help with everything from hygiene to banal dressing, they don’t say. i’ll help open the doors or something else in the kitchen for food, and even more so, one mother had to. if you manage to buy a ticket yourself completely at your own expense. well, not every family can afford it? yes, so we are in this case, uh, we are looking for a volunteer we are now looking for a very bad volunteer. well, very bad with volunteers. yes, but we used to look for adventurers and volunteers went, uh, and said money and went with this kid. here they helped now, it is very problematic and the money is problematic and volunteers. why are hoses okay, shanks are volunteers. and what are you talking about is a separate topic of conversation

for volunteers, especially men. let's start with the fact that a lot of it people left, maybe these are those, so to speak, from that krug with whom you were familiar, maybe those who responded, now we need to look for another circle. well, that is, now it turns out to be broken, the old one is being formed, but it will not be formed quickly. and if you turn to the same belarusian republican youth union, for example, and we applied. by the way, we are fine with the belarusian republican youth union. they provide one-time assistance, you know, and here systemic help is needed, that is, we owe it to the patient. that's why we now understand, it turns out. we have now moved away from the general. let's go private. that is, there is roma, yes, that is, roma needs help. we we will organize assistance for him specifically. if it is necessary, yes, but we will arrive here, these roma , in principle, to be honest. he has adapted well to this society already. well, he won’t go, he alone went to a sanatorium every year. i went to a sanatorium in my life. well, then, yes , and i have another person who needs help with the stander there in the lift. yes, that is, we began to switch to individual, that is,

when a person is really. and the second thing is that now we are the regions, of course, minsk is still packed, and in the regions it is much worse. this is where we are taking root, that volunteers should be provided for people. well , because it's kind of like that, at least they should be able to afford to take on their own and not go to work. hmm they can do it everyone agree. now we are not having the easiest time, but, in principle, when it was easy, and now we really need volunteers. i mean, of course, we have nurses. there are doctors , there are social workers, but without volunteers. it is very difficult for us now for volunteers, especially men, by the way, uh, we have them heavy. eh, the number has gone down. we are in dire need of volunteers for the organization. and the second. well, or even the first one, i don’t even know how to say it in what order, this is a donation. that is, a donation is natural, since we are a public charitable organization and live only on a donation, and nurses need to pay salaries. uh, well, a social worker psychologist too, that is, uh, they are the

professionals they should be getting. and we do not receive money from the state and would very much like people not to forget us, but even not only us but those children of young adults who need professional help every day, the topic is complex, but let's try to discuss the ninety-eighth year. a tragedy occurred in your family, the death of the eldest daughter. let's remember what you said then about this body. and here you see the body of your daughter, washed so clean. and by the way, she did not cause anything. yes, i didn’t imagine the place, it became good. never her clothes, that here i felt bad, that is, the sweater has the feeling that they shot at point-blank range the machine is very queued. that is, she had such a hole, here they are with a knife and like this in a circle. that is, like a bullet? that's how it was, here i became scared, and so lies a pure white beautiful alien alien to alien alien my faith is dead, this is some kind of body no emotions. but the clothes called, yes.

today, everything has already changed, they managed to work out this injury. you know, i want to say one thing that i understand, she will be with me for the rest of my life. yeah, and i can say, she will be worse. why am i getting old what connection is she very big and with me in my old age will not be my daughter vera was such an interesting girl. well, she probably needed another mother, she was a very spiritual girl. she kept telling me otherwise for 9 years. she painted a picture from the creation of the world. she was very creative and followed my grandmother's line. here she is. this picture still hangs on me. it 's like a clean hand holding the world, and she told me such a thing. mom, why don't people see that in the two next to us it was said for 10 years, and then you were already at 11 years old. she painted hospice picture. sometimes she said, i understand that god hmm, now he sees that the children are dying. but i understand that, but why do they suffer so much? and why does he see and do nothing. or maybe there is no god, but maybe there is also a coup. it happened and the antichrist is sitting there, and the

antichrist rules us, he said, we are an 11 year old girl. so i could not her, that is, i am and with this i will live all my life. and like all parents, i mean, i can tell you the reason why she left. yes, she is a fascist, by the way, so for me this situation with with all sorts of fascist groups in ukraine, i went into internal migration. there is such a thing as internal migration. yes, that is, when i turned it off and left all social networks, it hurts you, it really hurts, because uh, you see, when i was in court, the murderer said that here was his book, my love, this is a niche. here he is. well, that is, it was perestroika when, uh, if you remember the solntsev group from russia, but the fascist ones came from russia to us in belarus and made an organization on the basis. naturally, whom children who were fond of a satanist, well, teenagers are fond of it, especially they play. i don't play. so, by

the way, i can say that my eldest daughter, she was in the same group, came. she told me, my mother is so funny, she says, these are some kind of bad children, - she says - it’s some kind of blood that drips on us, she laughed at us for a very long time, but she thought that nothing would happen to him. on this day, many things become clear. why are you sure that children see at the age of 11, she has already seen something like that, yes, an approximation. in general, well , i believe a little, that is, i rarely dream, but when they found it, that is, three weeks, we didn’t find the worst thing, it was they couldn’t find the body, yes, that is, i understand from parents at this moment when they are told that your child will not recover, well, from the moment when they said two time passes the moment of death and to live without hope is unrealistic. that is, it is generally unrealistic. that is, i personally believed that we stole from the child that he was somewhere. so i lived with it. my husband immediately understood, yes, that is, the mouse logic is different. i'm like this and the second, that is, hmm, i had a dream. ah, when 40 days is already 40 days too

passed, because we had 3 weeks and until we found the body, while an examination was created there, that is, they were buried. we're away from her in 40 days, and i keep dreaming, i see the basement of an unfinished building. eh, and i'm going to bed. ambulance driver and stack. here i give him headphones. in vain why in a towel and suddenly, that there is a bell upstairs, and this is unfinished, these boards, filled with perches, are unfinished. yes, i even remember this is all external. here i am running, i don’t run, i understand i grab. i put these headphones on my ears and hear a voice. she was 15 when she died, and i hear a voice from a twelve-year-old child, when he was a child, well, calls after 15 are already in such a voice of twelve-year-old vera she says, mother god is a prepositional name all the point then the voice of fifteen-year-old vera and already so deaf. she says, mom, you won’t humiliate me and pi-peak. all i wake up at 12:15 minutes i still remember

this time, so i can say when we bought the building in borovlyany it was this building, when i would have reached this building. i would yes it was yes that's why you believe in parallel worlds by tatiana not yet, but we'll hope something wonderful happens to her too. we are very grateful to you for this open conversation, unfortunately, the air time has come to an end. but we look forward to another meeting. if you come, as you can see, in the first approximation, there are a lot of problems, there are a lot of problems in this. we tatyana shcherbina victoria popova compare today we say goodbye. goodbye. goodbye. and now anna gorchakova is speaking. i hope that you will pay attention to the fact that there is such an organization that helps, and to all of you i wish the most important thing in this health and life of your family and friends all the best.

last year, our team at 17 youth became the third in the world cup, the potential of the guys is very long, for example, this is 200 km on a bicycle, super-sportsmen can cover such a distance in nine hours. those who are not in a hurry can travel such a distance in about a day. this is the whole atmosphere people. we want to hold this event in the regions of our country, including including grodno, vitebsk, orsha, mogilev, ran a review of the main sports news. see in the program arena for belarus 24.

belarus shmatem prostrate can be otshukat on the braslav bus here is a ball in the lake for a non-random. name god's wok, in spite of the lake tore it off with its ripples and kena predicts the wolf in maya lake the shape of the correct ones and the circle does not change for a long time otzhasu is far away, that the wok sews people from heaven behind the right and shmat them such crown chandeliers in belarus

live top news at noon you pavel lazoveko. hello and check out this issue. general approaches to import substitution and industrial cooperation for further integration of economies of talks at the palace of independence with the governor of the kursk region, who suffered from the values ​​​​of free europe and russophobic sentiments, polish activist marchen, nikolayk, asks for political asylum in belarus, and against whom is he right?