it seems that he simply takes pleasure in throwing wood on a flaring campaign fire. spinal muscular atrophy belarusians have not just heard of, but prevent the disease, the development of which can be drugs costing hundreds of thousands and even millions of dollars, many personally helped children, this is evidenced by more than a few closed fundraising accounts. now , not only personal charitable accounts operate in the country , the bsj collects money for the treatment of such patients, and recently the rpc launched a charitable account. mother and child. why is it possible to cope only by informing and why yulia alferova did not recognize the verdict . i could freely move around the pages without sad music and large shots. such motives are definitely not for sale or an outcome in the medical record from early childhood. diagnosis of spinal muscular trophy gold medalist at school successfully

completed philology from the secondary oped of the university. i found myself in tutoring and journalism turn to daria for editors to nika today he is all working on creating of the future bestseller under his own authorship , and not to mention the strength of mind, which can turn out anyone who is physically strong, just a breakdown of ian sm1. what would protsovyvaniya for rukhalnyh motoneurons. and here it is to really pass the muscles. well, there is such a delivery, just a scheme for intelligence does not correlate with a freak of muscle development. and sometimes it’s a pie jaya to take off into some kind of adventure. i wanted to change my strength more. avito good plans are far from being local to develop in the profession more than once to visit the sea on how to stand only these children's photographs remind me of the sand. the one with her mother in moscow a. this is school in the classroom with the guys. dasha studied until the second, then she remained at home teaching the disease, although not quickly, but she progressed already at 12, the girl ended up in a stroller, such a chubby plump girl,

pretty and walked like that in a wreck . well, i’m shocked that the child in the course of the mouth didn’t start the doctor’s mouth for a long time , then the diagnosis was long, yes, and the treatment was more on the intuitive nizolgin sma for children, nor spin at times for adults in the world did not exist. and if the first one introduces babies up to 2 years old and belarusians have collected more than once together for such a second time, it helps adult patients , the pine tree cannot be cured, but it is possible to fix the disease by slowing it down . after all, everything depends on how you become and he is at the moment of the novel-drug. and her story here is the patient's story with the third type of emoticons already all wheelchair aliya from daisies drug how much to walk? uh-huh her history of a patient colleague?

which fascinated themselves with faiths weak of tommens began to understand the hands of e, sleeves on the keyboard by scientists it is proved that every fortieth inhabitant of the planet, a carrier of sma, when two carriers meet, the probability of having a child with a diagnosis grows up to 25% of the lottery or the fate of the younger sister. dasha is absolutely healthy, as are two nephews, a lot or a little in belarus 96 adults and 54 children with spinal muscular atrophy are too many when the calculation concerns the cost of treatment not even within the family, but the state officially state oriented medicine is doing everything possible and the state is doing everything possible to help children in any situation. a lot of those operations that cost crazy money abroad are carried out for free on a planned basis, but unfortunately, we are not such a big country, we do not have such huge funds in order to help everyone, but with the world one by one. you understand, and someone will be helped, unfortunately, not as much as we would like a little more than 4,000. we collected for it. well, in my mind a short time and i really want to activate the work of this account and call on everyone, because once again

i repeat, it doesn’t matter. what percentage it will be , it is important that it will be your help and your contribution to the cost of one injection of zalgensma. under $2 million, annual back treatment is estimated at hundreds of thousands of dollars, and supportive care will also be needed. and now add to this math the number of those in need, which in total exceeds 150 accounts opened, not only personal ones, launched a charity for these purposes and the belarusian union, women's data was fixed in telegram channel of the society. soon similar ones will be opened and ernpc mother and child today we had three such children, which we fulfilled. teachings also on gene therapy, we have two more children, and they purchased the drug at the expense of sponsorship money. that is a big thanks to these sponsors who participated in the fundraising and the children were able to receive this therapy in neighboring countries. whether we chose the path of creating funds in

the nearest future for us or a distant one is still an open question. but this is not the disease that can wait? so where is the response? too much depends on everyone's strength julia alferova grigory khristofovich tv news agency. sport as a way of socialization of children with special needs of psychophysical development today the republican table tennis tournament was held in the league . five teams and boarding schools took part in the competition, which train according to the unique program special olympic main principle. tournament. not here, losing participants will receive rewards from the organizers. this gives an incentive for further training athletes of different age groups. competed in several divisions, each team was preparing for the tournament for several months. i came with a team, rudinsk. why is the sport poisoning for me? because i have been doing it for a long time. he is very cool this sport event. hurry olympics. in fact, they help the guys

to get involved in a socially significant phenomenon of the surrounding life, they help to demonstrate their athletic abilities. they help to make friends, they help, but just show themselves to show their sports and personal capabilities to the international football tournament. belarusian and russian teams will take part in it. that's all for me after the panorama , see the current interview, why it is beneficial in europe for the belarusian business to die, and the western policy of sanctions is banditry from the high road, and right now my colleague is joining me. christina reed. christina good evening. and what news do you have ? news from the tennis courts. madrid arina sobolenko is already in the semi-finals. the informational

picture of tuesday will be supplemented by the sports day. hello arina sobolenko. made my fans really nervous. so the second racket of the world unsuccessfully started the duel against the tennis player from egypt, the mayor sheriff. in the first set of the quarterfinals at the wt1000 tournament in madrid, the defeat was 2:6. however, after two games, the belarusian was convincing. six two six one sobolenko. i made eight double faults, with two ex the meeting lasted 2 hours. tomorrow at the tournament. at condolences will be a weekend semi-final match scheduled for thursday. i honestly don't know what happened. i just continued to fight, tried to concentrate on my game. trying to find my rhythm, the opponent showed an incredible level of tennis. i call her a specialist in

clay courts, so i am very happy about this victory, because it was not easy to achieve success, but i would like to say a lot. thanks to the audience for this atmosphere that you created, it is really very pleasant for me to perform. here recall that in 2021 sobolenko won the tournament in madrid. but last season , arina dropped out of the fight after the first round of the russian national hockey team, made up of players no older than 25 years old. in the first match of the big round, which takes place in chelyabinsk , the team of belarus defeated the team of belarus 4:0 with a double , zykov scored one goal on yelesin's account. and glotova another goal, which belonged to our striker igor martynov was canceled due to offside, the second match. between the teams will take place tomorrow the beginning of the meeting at 16:30. live broadcast on tv channel belarus 5. yegor sharangovich returned to the main cast of new jersey davis and

his devils. the guys coped with the new york rangers in the seventh match of the first round of the stanley cup , the guys in the lens of rafa reached the quarterfinals of the nhl playoffs . first already. in the first round of the playoffs, the winner of the regular season was eliminated from the fight. boston on the same day, more precisely, the night of belarusian time fans were already shocked. the current holder of the colorado evelange trophy lost seattle to the tournament's rookie. and now the rangers' turn has come, though this series with the new jerseys, if not the shirtman, started with two victories, and devastating five one in each fight, here the devils managed not only to restore balance, but also to come forward, thus being steps from victory to syria is still in the sixth match. here, hockey fortune decided to extend the holiday for the fans of that meeting. now won and the fate of the passage to the quarterfinals was decided in

the seventh match, the bookmakers in this battle gave preference to the hosts and did not fail the victory of new jersey came out convincing. in the first period, the devils were removed a lot of three two-minute penalties against one from the opponent, but the gates of both teams remained intact. the account was opened in the middle of the second 20 minutes. and new jersey abandoned playing in the minority. and after five and a half minutes, they doubled their lead. two more pucks. and the last one is already empty gate, flew in. in the third period 4:0. it's a victory, new jersey brings out the team on thursday, the belarusian forward devils. egor sharangovich spent 13 minutes and 15 seconds on the court. and he made two shots, the goal in the playoffs, belarus played two fights of one of the teams. new jersey meet with carolina, who was stronger in the islanders series and again. it will not

be so easy to assume in the semi-finals of the regular season, these teams played five matches, three victories, one of which was for the public in carolina, two, and the last ones were crushed. the first match will be held on wednesday night to thursday. belarus czech republic slovenia and bosnia and herzegovina this is exactly how the b4 quartet looks games in paris 20-24 and will determine the position of the teams at the start of qualification for euro 2025, basketball, despite politically motivated sanctions unequivocally develop in the country about it in an exclusive interview to the news agency, the head of the specialized federation ryzhikov said, firstly, this is confirmed by stubborn

struggle. in every game of the final series of our women's championship. secondly, the belarusians show themselves great in the russian championship , for example, maxim salosh won the cup as part of nizhny novgorod, and maria popova won gold with the ummc. as our championship is developing, a lot has appeared in the youth. here i am, frankly, very pleased that we are even in conditions remote policy is absolutely far-fetched political, but we have kept the championship , we have young people, good, talented. here, our masters continue to play already on the russian serious platform, the legionnaires left from there, leaving them the opportunity to prove themselves. and the russian championship is a great championship. one of the best in the world. let us remind belarus of the capital horizon, taking into account 3:0 in the confrontation, it defeated the grodno one. olim, in the men's championship is now taking place. final series minsk fights with the rune 2:03 game

will be held on may 5 in vitebsk in the second pair of basketball players, grodno 93 meet with briden. here, while the parity one one third duel between the teams will be held on the fourth day. in tashkent, the world boxing championship is not going very well for the belarusian team, so there are already three of our athletes. you were out of the fight, on the second day of the competition only dmitry deshkevich competed in the weight category up to 63.5 kg, the guy lost to the representative of turkmenistan kursad iman-kuliyev, but we note that dmitry was injured and was not in optimal form. earlier , maxim pankov and artur tuneev completed their speech at the planetary forum. let's add our boxers will perform in five weight categories. and even more sports in the night edition of the program in the studio worked christina kamysh, see you.