demanding to know it go all the way until 7:00 or 8:00 that night and usually if i entertain a foreign dignitary, we cut it off and i would be home by 9:30 and read until 11:00. at 11:30 for the first 10 minutes i would watch jay leno. i couldn't go to bed until i watched it 10. i had to have some relief. i would be a would be safe from midnight until 4:30. periodically you get those calls you don't want to gag and you have a secure phone and when you hear the secure phone go off come you know it's not good news. it's always bad news. you learn to live with that. the job is so demanding. it's so exhilarating, so rewarding big you are on a high of the time. even the bad days you can't wait to get there. so you are fueled by this adrenaline. i feel the same way now. it different in that the states are the same.

i'm not sending you to go to war, putting you in danger. but it covers possibilities to all of our clients and they have money invested in real job so there are consequences. about was how does drive that comes from my job, my mother renders them there. i don't sleep very much. automatic [inaudible] [applause] [inaudible conversations]

>> and now i want to introduce you to an author named stephanie shipping. what are you writing about? >> i read a nonfiction narrative about my oldest daughter who was recently diagnosed with type one diabetes eight years ago. we recently were welcomed into her life to detect changes in her blood sugar. when she's either low or high, which is dangerous, he can detect bad using a sense of smell in the alerts are that something is wrong and she needs to do something about it. it's an incredible journey. the first pediatric patient. she's been an incredible advocate for diabetes research and totally transformed her life. >> what is type one diabetes? >> type one diabetes is not with indices get her body does not produce an lan on her island so she has to take it to survive.

she takes eight to 10 shots a day, her finger to test her blood sugar. she just turned 16 and she's about to celebrate the diagnosis day, which is later this month. this'll be the first time she's basically live longer with diabetes than without it. she was diagnosed at the same age as just as são tomé or who have type one. >> is type one inherited? >> type one is an odd to immune disease node in a genetic marker. they don't know what triggers the onset, but there is some genetic component. over the course of time you lose your ability to produce any insulin whatsoever. the challenge is when you are at a venue of gym class one day, high and low blood sugars are really dangerous. low blood sugar is low cost seizure and high can cause damage to your organs over a long period of time. i'll been her catch the highs

and lows before she feels the symptoms is helping keep her healthy. >> have you seen her in action? is incredible. just the other day i was in the shower and allie was cleaning her bedroom in the door was closed and should the vacuum on and she couldn't get in so he stuck his nose against the showers to alert me something was wrong. he alerted her in the middle of the night multiple times and she spoke not been treated herself. he has really changed her life. >> alley is the first and oldest granddaughter -- grandchild. we know she's very proud and although she has done. she cochairs the caucus in the senate and so they together have found the front lines of trying to advocate for medical research and better treatment appeared >> what is the goal?

>> diabetes is very personal for me as you've heard because of my granddaughter. but it's also a huge pile is the issue because diabetes is eric's consent. it is a chronic illness and something that earlier to catch it the more support we provide for people with education and treatment, the better we can minimize the impact and also we want to put money into research so we can find a cure. that is the goal. that is what the diabetes caucus is all about, advocating for treatment, for research so they can really change. >> given your description, type one is not preventable at this point? >> it is not. at this point we don't know what triggers the onset. we no type-2 diabetes is preventable. while they are really focused on

is advancing the treatment. right now it's difficult to maintain healthy blood sugars and high blood sugars cause the same complication. things like the bionic pancreas come at things like encapsulation with the best and brightest scientists in the country find this to regenerate themselves and encapsulate them to hopefully eradicate the disease. we need to continue the research. she's been part of four clinical trials to meet more people willing to put themselves out there in time not to these clinical trials. she's getting ready to enroll in another one. ultimately we hope this will transform the course of the disease. >> senator shaheen, i saw you shaking your head yes. the! what we really want is to make people aware of the disease. we want to make people aware that there is research on going, that we can improve the lives of people with diabetes, type one and type two and that is the

goal as well. one of the great things about having stephanie and elle advocating is people can identify that. they understand when they hear these stories what a difference it can make to be out there advocating. >> one thing i want to share, kos was trained by a correctional facility in kansas. they dedicated almost a year of his life in the facility to train and coach. elle got to meet michael and this is the first time he thought he could do something. one of the benefits of sharing the story, we need more correctional facilities because it savings him as incredible amount of money. because he does the training, it gets passed on saddam more affordable. we need more correctional facilities willing to let inmates do the training. juniors have signed on and we are hoping to do more of that.

the barrier for more dogs and more families as trainers. we had to get training programs up and running. stephany shaheen, does it help to have an advocate who happens to be a u.s. senator as well? >> mom gives us so much inspiration. she is taught us what it means to be advocates. right after elle was diagnosed in at the opportunity to learn about research trials, she said i may have. that is a testament to what she has seen from her grandmother who then taught me how to advocate and navigate the system relative to get into research, figuring out how to get the health care she needs. it is complicated. it shouldn't be this hard for people. she is setting the bar and showing people you can advocate and things can get better. >> absolutely. it shouldn't be this hard. we need to provide more support for families. it doesn't make sense with god to help care system to pay for

somebody that has a diabetes episode to go into a hot little. so we've got to make this the changes in the way that improve people's lives. >> is apparent, how did your life changed? >> my world turned upside down. i didn't know any name than what i heard. my brother-in-law diagnosed as an adult. the oldest of four children. an 8-year-old, 6-year-old, 4-year-old and a 2-year-old at the time. instantly my life became about doing everything i could to keep her alive. one miscalculation of insulin could send her into a seizure. this is the kind of thing you never get a break from. there is no reprieve. funny what it takes to keep her healthy and alive as my primary focus and responsibility and something i carry every day. i am traveling with the book and every night i worry.

as coach had enough sleep so he can do his job. if she were in her monitor, is my husband's alarm set to make sure she's tended to. it never goes away. she is 16, getting ready to learn how to drive and go to college, said the idea of more independent than the life she needs to live as a healthy adult is terrifying for me. knowing that we have coach and advancements of the technology that can improve her life and knowing that we have advocates like mom fighting for better care makes me feel hope old. >> here is the book. elle and coach: diabetes to fight for my daughter's life and the dog who changed everything. stephanie shaheen is the author. >> here's a look at the events will be covering this week aired on monday,