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tv   [untitled]    August 29, 2016 8:01pm-8:37pm EDT

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efforts to attacking the syrian democratic forces, a coalition supported by washington. coming up tomorrow, the bipartisan policy center take a look at the state of u.s.-turkey relations following the july coup attempt. we will have national security colors -- scholars starting at 10:30 eastern on c-span. itthe c-span radio app makes easy to follow the 2016 election were everywhere. it is free to download from the apple app store or google plate. get audio coverage and up-to-the-minute schedule information for c-span radio and c-span television, plus podcast times. stay up-to-date on all the election coverage. c-span's radio app means you always have c-span on the go. the wall street journal reports that the florida senate
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race is shaping up as patrick murphy versus marco rubio. latewrite that in the primary, representative patrick to easilyexpected defeat representative alex grayson to face republican marco rubio this fall. democratic leaders are concerned that a nasty primary race has left democrats week and into the tough fight against mr. rubio. who wins this he is crucial for both democrats and republicans as it could help determine which party controls the senate next year. that is from the wall street journal. you can follow the results of the primaries and arizona and florida. watch here on c-span and c-span.org for all the results. american friends of tel aviv university posted its second annual ideas los angeles conference. they focused on the future of digital technology in media, entertainment, and health.
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now a panel on the future and privacy of your health care and genetic data. have a great fireside chat about the health care sharing economy. promise, risk and reality. all you have to do is think for one minute about uber and airbnb and what we can do in the health care industry to know this will be interesting conversation. who do we have? >> representative from based health. >> lindsay from we are curious inc.. thiswill be moderated by book business strategy representative. >> how many of you have wearables on? ok. how many of you would be ok going to be seen spectrum and shifting things around? we have a great panel that will talk more about that now. thank you. >> welcome.
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thank you. >> hello, i am dave. i'm a strategy consultant and i spent many years at the intersection of technology, health and wellness working everything from wearables to on-demand nurses to community building apps. i have built businesses, and i'm always looking for more ones to add on the positive side. as you heard, if you have watched the news recently which is as easy as reading twitter or watching videos on snapchat, yet heard a lot about the sharing economy. orther you can share a car share a home or at our lives on facebook. -- our lives on facebook. if you use google, you are sharing all your information with google incorporated and their advertisers.
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as my five-year-old son who is in the audience likes to say, sharing is caring. in the health care world, to have been a lot of changes the past couple years from a technology standpoint as well as things like the affordable care act we are seeing many changes coming. those have opened up huge opportunities for what i'm calling the health care sharing economy. we can share our step count with all of our workers. we can share our medical records. can create a registry community ag.rnight with a hasht you can contribute to health research using research kids. -- kits. we were talking backstage about a company called color genomics. by members of twitter. this connection between social sharing and health care sharing is very real.
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i have to really great colleagues. before we start, some ground rules. like a data.zwords we will avoid the presidential election and absolutely no mention of the [indiscernible] i got a couple last. -- laughs. linda, you are the syria -- ceo of we are curious. we met a few years ago. great to reconnect here. tell us who you are and how you got where you are in a little bit about what is going on with curious. >> it is great to be here. always fun to come to los angeles from up north. from seeingre is how research was happening in mostly the academic world will resolve his clusters of studies
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these clusters of studies going on. thinking about the 10 years ago, you would see these little studies being funded by the nih. they were typically underpowered and we were not able to get enough people enrolled or get enough information or get grants large enough to fund. a lot of that is what has led to become founding of the personal to the base company. a whole new way of doing genetics research by doing it through crowdfunding and crowdsourcing. that was before we had things like kickstarter. it was a logical way to approach a problem that was not been solved fast enough. forward to the genetic opportunity. while i was still there, i started thinking about all the other data we have in us, on us and around us. the wearable space starting to muild their years ago -- boo
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five years ago, it is a logical that each person should be able to own their own data. we have the ability to tap into this with wearables and sensors and auditors. why don't we try -- monitors. why don't we try to build a platform to do that? that is the idea of we are curious. we believe it is your data. you own it and control it. we are helping you assemble it and makeble it here -- sense of it. and also have a social layer that helps you find other people to have conversations around the data. andee forms all the time you can start a community very quickly around a disease or question or any kind of topic. the problem is a lot of times these turn into conversations that go nowhere. they had people comparing things. they might have ideas that they want to pursue but they don't have the means to do that. what we are try to provide is a way for people to come together, should the questions and say
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let's all track our migraines and what we eat and do we start to see a pattern? that analytics comes in to look at patterns and trends. it does look like when you eat this food, this other thing happens. it is about gathering the data and making sense of it. >> you are wearing a very cool ring. >> one of the things on our website, you can see in the graphic, the word cloud that sleep is one of the biggest things that people have questions about. we found that out on her website. when people compose questions, the great majority of them are around sleep. that was a good topic for us to focus on. one of the most in port in -- imported components is how we track sleep accurately. finlandn investor in and i was lamenting some of the wearables on the market at the like, there is no
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great way to track sleep. he said, i have a company for you. he is an investor in auro. a ring based sleep tracker. it is a sleep lab on your finger of all the different technologies. it is not perfect. it is one of the better ones. rem, and when, you are awake. it will calculate based on your activity and have you slept at night what your readiness is for the following day. it takes it to the next level of what are you learning from that. we pull the data from the ring and 90 contract on top of your sleep things like caffeine or alcohol consumption. things that you think might be affecting your sleep. >> thank you. of datechief officer health. i have only known him a couple
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months. i can like i have known him forever. i'm excited to have him here. same thing. how did you get here, you have a great story from your early days? >> i feel the same way. thank you for having me here at ideas 2016. it is a great venue. drive from san diego was not too bad. age.ve in this amazing the hb four was like the computer error -- era before was like the computer era. i believe that biology is definitely the era we will be living in. beyond that, it is about health and wellness. it is all about us becoming our own ceo of our health destiny. the consumer is being empowered in different ways. enough to bete
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asked stupid to that grew up in san diego around the beach and start my career at an institute and there i was not smart enough to get into research but i was sharp enough to understand that genomics and sequencing and clinical diagnostics is going to hit every human being at some point. i have been fortunate enough to be at the ground front of nexthing various different generation sequencing tests within the market. that has changed genomics forever. i was one of the first people on the planet to have the whole genome sequenced. most people know of the next and genomics from the consumer side because of all the work that has
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been done in the marketing money spent. what people don't understand is that there is so much more information than just a genetics . i think genomics is one piece of the pie. there are lots of other metadata interest types of data that come into play like you said. sleep data, how many steps we take, all of this stuff is great. what do we do with it? , one entity i am involved with, we are into predictive analytics. as we hear more about artificial intelligence and natural language processing technology, how that is driving very different decisions from the predictive analytics side. it is interesting. healthve that definitely
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is the new wealth. we all strive to get an education and make some money and have a family and all those other good things. once you are couples that and understand -- accomplish that and understand that this is orrin. what do i really get interested in -- boring. what do i really get interested in? the key thing is to die healthy. effort into enough it. the only way to do that is for everyone to get involved. raise your hand if you have ever had a genetic test? about 10 people. raise your hand if you have ever been fully genome sequenced? i'm the only person. what that shows is i think the kool-aid. -- drink the kool-aid. we are at the instance of taking
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medicine for ever. it is not about medicine and cell. it is about disrupting health care. how you disrupt health care is , next time some as this question and everyone raises their hand. that is how we disrupt health care. >> that is great. and you only used three buzzwords. [laughter] both of you, you touched on a point, the challenge around access and accuracy. is suspect, and inconsistent and not very actionable. all it tells you is you have not done 10,000 steps or you have. not even why. still toouencing is expensive for most people to be doing readily. ehr integrations are challenging
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to say the least. how do we get past these hurdles and get the right tools and right results into people's hands? >> it is going to come from these initial insights we are going to start to have. even if the data are not accurate, we do see that people who take 10,000 steps a day, if they had not been walking at all or active at all, it is a benefit. signs seeing positive coming out of the wearables and this extra data space people are entering because maybe their employer give them a fitbit to wear. -- to i think we're going to start to see these baby steps. the wearables will get better with time. i think we will see a converging of people starting to get into the market. the market has been growing. i think it will be a matter of adding the value from the data that the quality it is now and as that improves, a lot of the
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companies in the wearable look at the consumer side and looking forward to the clinical it is a smart strategy for the company to come out and get into the computer's hands -- consumer's hands. then find applications that might have clinical relevance. we are at the start of this. because the data are not that enoughow, i think it is to see positive movement toward something more clinical. >> fitbit has done a great job. another company is exiting the consumer market but going back into the clinical market leveraging their technology. >> exactly. >> they are starting to see this shift. how do we make this access happened with the genomic side? >> it is about education. it starts with education of people actually knowing what they don't have and what they do happen side.
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we all have the blueprint of dna inside us. it is locked inside us. we have ways of extracting that easily. not just being an invasive manner but most people, better educated, -- that are educated and don't know what dna is. if you ask your next our arehbor, you ask your next -- neighbor -- door neighbor, he will not know what blood is. it is about budget -- dna is. it is about educating the consumer. a good example is cooper. -- uber. you never knew you would use something like uber. it kind of always existed. you could call someone and maybe get a ride somewhere. no one even things about taxes
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anymore. they changed the paradigm. changedt because uber the paradigm, it is because consumers changed the paradigm. uber is not advertising on tv. youhear about it because want to get something and then use it. consumers want to know what to do next. that is the key thing. with health and genomics, it is the same thing. it comes out being very scary. complianceivacy and issues. that is easy. we are doing that with our bank accounts and own finances every day. why can't we do that with our own personal health? where we actually donate, it is not even about sharing, some companies that share data and that is great. i think it is about getting
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masses of people involved and there is a way of doing that through communities of nonprofits, research institutions, academics, pharmaceutical companies looking for different clinical trials. we all come from different dissents. we come from different ethnicities and within ourselves we have various different diseases. depending on what population you were born into, you have various different genes that really affect your family. offspring, to have you'll pass that down. informations of with consumers where they can derive certain things. -- drive certain things. >> you mentioned privacy. uber is a good example. people are consumed -- concerned with uber and airbnb. whetherealth world,
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individuals or the government, there are these layers of privacy and security. when we are talking about whether it is personal health data, how do we get around that in a way that will make it come to life and add value to individuals and society without stepping on the government toes -- governments toes -- government's toes? >> it is a challenge that people will want to actually want it and no they can utilize it. if you can monetize and control your phone data, it is a powerful thing. i have a health company working on this exact same thing. thatey to it is the fact you get people that are interested in making a difference for themselves. obviously they are sick people
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-- there are sick people interested in conditions. if you are affected by breast cancer and carry a gene, or part of a community. you want to actually help. that is a small population. what about all the other people who are healthy? i'm interested in what i call the healthy genome. i think we can learn a lot about disease if we study healthy people. not just sick people. theink we all talk about sick people. that is great. we need to help the sick people. i think how you really help sick people is by concentrating on the healthy population in motivating the healthy population from a social impact and social dynamic. one quick example, instagram. so many peoplet
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share so many things on instagram and they don't think was about to. they are on the beach in a bikini or in the bathroom taking a selfie. they don't think twice about how much privacy and private day care they are shared. what if you can anonymously your or donate or monetize own health data in a way that it is protected? in gettingbe key even the government, for example, involved with that. as we can see with the nih and all the support from the joe biden and friends at the cancer moonshot. a great example of our government and other governments around the world are interested in population genetics. we have to get over the fact that, is this really private? we are sharing so many other
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things that are more private, i think. outweighnefits have to the risk of having access to this information and trusting a company that will store it for you and keep it safe for you. there have to be some reason you choose to take the risk. free ofanywhere is 100% that risk. we have gotten over the hump in the financial world and people get hacked all the time and credit card numbers get stolen all the time. people still choose to buy things online because it is so much easier and there is such a benefit to that. i think it will be the same thing with health information. we will have to trust that doing this brings us a lot of benefits. we are willing to put up with some risks and hope that the companies that are stored our data are doing the most it can to protect us and keep it private. in thell always be a rub system. i think there is a lot a benefit to having access to your information and then sharing it
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when appropriate either with your doctor or researchers. there's a lot of benefit. that is oneernie -- of the early questions. theould walk through people question. someone hacks into your account. they get access to your dna. what will they do with that? thenalk people do that and you realize, i would much rather have my genetic data had rather bank data. it is a risk that maybe someone will find out that you are at risk, but what will they do with that information? you have to take it through a logical process and endpoint. it is healthy to have those conversations. inwe are here los angeles the land of movies. whenever a good story is made, there is a billing. -- dylan -- villain.
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who stands to lose the most from these ships happening -- shifts happening? the same way you have elon musk doing his car and big oil's word. -- worried. someone who could be affected by this? >> early on, i think, the case of dcra it was companies like marriott. patents aroundng the gene and a own that. to me, it seemed ludicrous that you cannot go anywhere except there to get your aging sequence. entities like that will be disrupted. we are trying to -- they are trying to control information. the most critical industry, everyone on the stage is for prevention and people unlike drugs rather than more drugs.
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less drugs rather than more trucks. -- drugs. one of health entity is all about prevention. people -- keeping people off of drugs. a pay for. they are the pairs. -- payers. mayo clinic is similar as well. putting people on dedication is not a good -- medication is not a good outcome. anything that preserves that endgame where we are getting people healthier, we should call it about best of health rather than preventive medicine. we are moving in a direction where hopefully the pharmaceutical industry will get on board and be supportive. industry as the well. -- food industry as well. a big movement against sugar and dietary things and we have to stand up to say no more.
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ofn you do change our view food as medicine. that is an industry that will be threatened by the fact that people will be educated. >> health systems -- i agree with everything you said. health systems are a big barrier. scenario, let's say you go to the doctor for whatever reason and you have some condition. maybe some blood work. theyget all your data and get a lot of information about you. they get that information. , there's apening now company called imf that sells your data and my data. they don't know it. you are automatically connected to certain things so someone else can take a piece of your health-care data and sell it.
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themselvessystems are a problem. they don't talk to each other. if you want your data, it is not that easily accessible. there -- they are a barrier. if they let the consumers have all their data whether that is with whatever electronic form there is or if there is a platform where you can get that, i think that opens up a whole new economy for both researchers, institutions, and the consumers. i think the health systems are a barrier. >> i love the food example. there's a huge movement towards changing the food industry. was very localry and natural until about 50 years ago.
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for thousands of years, food worked the same way. then it went commercial and corporate and manufacture. resorting to a shift -- we are starting to see a shift which could tie into what we are talking here which gets to be healthy piece. how do we mother the healthy -- measure the healthy side of things? close to time. i am a big steve jobs back. he has always reference when gretzky about the idea that you want to skate where the puck is not where it -- will be, not where it is. 45 seconds each, where do you see this going and where are you skating to make this happen? >> it is all about consumers owning their own health and owning their own information.
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we get a lot of pushback from the venture side because they say that consumers are not motivated to be healthy. we challenge that and say that we have not made it easy for people to figure out how to be healthy. that is where data will come to play where people will start to figure it out and share with others. they will compare their heart of the genome and i do well on this. it may not be good for you because you are different from me. if we can start to get that information and have those people and they are able to -- able to share that with others, the network effect will happen. we need a social network for help i will rival something like this book. that will rival something like facebook. at a pointwe are where we will not have to pay for genome sequencing. i'm personally interested in having that platform where get genomeactually
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sequenced, get their health information in a central location because all the data is siloed everywhere. if we could take all the data siloed into one central repository were all the data actually talk to one another and various different researchers and clinicians can access that on a mass level, that is when you actually change disease and cure. >> perfect. thank you both. linda, you are flying back to the bay area. a key for being here. we are here for the rest of the day and we would love to continue the rest of this conversation. lots more to talk about. we will come back. thank you, guys. thank you, everyone. [applause] >> c-span's washington journal
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live every day with news and policy issues that impact you. coming up this tuesday morning, the research and policy director for the economic policy institute will join us to discuss his recent report on what he describes as one of the slowest economic recoveries in recent u.s. history. epa administrator will talk about the obama's administration plan to limit greenhouse emissions of power plants and the resident upcoming speech on climate change. watch the c-span washington journal live beginning 7:00 eastern on tuesday morning. join the discussion. >> congress remains on the recess until september 6. richardcut senator about his plan to walk across the state and meet business owners. >> i'm going to start walking.
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i will head west and i will see how far i get. is to see connecticut am a different perspective. to start walking about 20 miles into asd to try to stop many homes and businesses and places of work as i can to try to hear about what people care about on the ground floor of connecticut. people that may never have thought to e-mail me or write my office. i will be able to get a perspective walking across the state that is different than you would get any other way. know how far i will get. i've never tried this before. i hope you will follow along. east-west across the state of connecticut. >> primaries tomorrow in arizona and florida. we will have the results.
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results on c-span, c-span.org and c-span radio. >> with the house and senate returning from their summer break next week, on thursday at 8:00 p.m. eastern, we will preview for key issues facing congress this fall. federal funding to combat the zika virus. >> women in america today want to make sure they have the ability to not get pregnant. mosquitoes ravage pregnant women. >> today, they turned down the very money that they argued for last may. they decided to gamble with the lives of children like this. >> the annual defense policy and programs bill. vital of these folks -- to the future of america in a time of turmoil and a time of the greatest number of refugees since the end of world war ii. >> gun violence legislation and criminal justice report. >> every member of this body,
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republican and democrat, wants to see less than violence. >> most demand an end to senseless killing everywhere. >> and the resolution for congress to impeach irs commissioner john cosco and. coscanen. >> high crimes and misdemeanors. >> we will review the expect the previewional debate -- the expected congressional debate. thursday, and :00 p.m. eastern on c-span. 8:00 p.m. eastern on c-span. her is a meeting coming. a conference on women and blocking. --

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