downloads he has to come back from super. to do that. and there are huge courses put into active exercises are you talking about that d w dot com slash dot actually and i'm on facebook in the uk still. german for free let me tell you. hello and welcome to in good shape it's summer time in berlin but today's show is not about ice cream it's about cancer but don't be afraid. the life will. be in good shape meats and so lot in fahrenheit learmonth and so i

was just 30 but he's already been fighting cancer for 16 years. this is dr put the sherry to university hospital in berlin. i'm oppressed hold mr duncan patients managed to interpret such a terrible diagnosis by counsel into their lives and to leave a quite normal life. when you are young they are a lot of things in your agenda your for your 1st job and your very 1st own apartment but when you're diagnosed with cancer everything's on hold your whole life needs to be reorganized. fast that's. the worst part for me was not knowing if. that if i was going to get as old as i'd thought i would. and we all the concern was how long will it all take . when our. be able to lead

a normal life again and put it behind me when will i be able to forget it and like . that my thoughts come. over a 1000000 young adults develop cancer every year at 15 it's 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. when to pay cast confident i thought if i'm unlucky i'll never be healthy again i'm deaf i'm unlucky all dying before i get my college degree before i can become a teacher before i can have a family and i didn't want that so i said to myself i have to do everything possible to make sure that doesn't happen that's the. catarina had been looking forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. that's fine found it was an incredibly dramatic experience for me

being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. deana listener knows the problems that young cancer patients face the oncologist at berlin's sharia to hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks. we have to keep explaining to them that they need to follow the treatment schedule which has to be very strict so it's something that presents a big challenge for the medical team as well. that.

you know also suffers from a matter of balik disorder which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. when they could but i think it gives me so much. on the one hand thanks to be exchanged with other patients. that's what i thought and also just because we have a lot of fun together we don't feel that cancer dominates our lives. and if we can get together and laugh about it. can. catarina chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced many of us but me of us of the sisters. in my case the men who pulls resulted in a complete loss of libido. has a very negative effect on your sexuality there is just so many side effects that

can mess it up look at this i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and that just doesn't work nothing works and. caterina would like to have children but the treatment can damage the ovaries she's had her eggs frozen to use later in spite of the uncertainty she hasn't lost her love of life the tumors gone she's going to teach and she's making plans even though she knows the cancer could come back for me i feel that i've become much stronger in many ways. i somehow feel my grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel moment you're stronger and i know that there are more important things in life than all the little things that used to get me upset it's a good thing and didn't get so much

a part of kind of an instant after like that. i'm going to i'm at the bridge hi thanks for meeting me today. you're a cancer patient actually so you developed cancer when you were 14 years old and dr now you are 13 and you still have liver cancer so how do you feel today if you were a really great actually so i'm not like. thinking about macho every day it's world . commanding every minute or demanding every minute every 2nd of my day i'm aware of a lot of the disease and i'm coping with it it's not like it's. it's controlling my life it's not controlling your life i mean it's more than half of your life it should be at 60 years you are a cancer patient so hall how was it for the 1st time the doctors were telling her the diagnosis. actually it was because between the i can also see the.

suspicion for the 1st the 1st signs that i have the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery of the surgeon come in come can continue and said it went well we got everything out so and then it was like all right that that states that we have to know what to talk about again and like after 234 days they came to me came to me again and they said we have fallen. in lymph nodes can't . cells this is devastating i mean this is disappointing that you think you were cured and then they told you that the disease is still going and then this wasn't the only time you were realized that this disease was ongoing that it was part of all the years that yes saw on flight in total.

666 times. $6.00 to $6.00 times including the original one and. yeah it was like. there was the easier ones that got me got that got to take and i got taken all the many massage really took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. before the surgery and he said. we try our best and we if we don't think it out of here you know if we close you up and so you're in this well the 2 times i was really. not scared in the can in the catholic or away it was me it was more way off. feeling lost and the like. yeah i saw and now it's the 1st time i receiving. druck therapy with mats and not

getting cut open. much as a surgical feather sleeve yeah. and it's it's the it's a good good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis with this disease and you still living your life i mean you're doing punk rock you're kind of a buddhist yeah so how does that help me or you know. i am more like like the. whole mentality so like being self dependent. and. freedom loving and. it's all can be transferred into coping with the disease you know like being being self dependent so i don't give in like i'm blind from everything i question things i

want to know what's happening i want that the doctor. is like working with me and not working on me. and freedom loving me not really free when i'm dad i can feel your spirit and it's very light thing for me to hear this but. i'm a father myself good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you are a buddhist even if you do punk rock him how did your parents react to the diagnosis my parents were. i had this rule nobody cries if i'm not crying so when my parents were bad in the hospital it was really it was more a more positive than life negative i feel like life in the new jack this was an almost more life a life demanding like he wants our life and our normal patterns are as close as it

is get as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldn't imagine for in the fakes your coping with his disease so this is the reason why subconsciously i invented or i put off this rule let's continue this talking just a moment because you have to get therapy we're not in a park here i was sitting at the study team bilin going to get you know therapy so what is immunotherapy with. a vaccine that helps fight cancer. teaches your immune cells to recognize chuma is more effectively and to attack them. very your immune system could kill most kinds of cancer but often it can't keep up. either

the cancer is faster than the immune system or it can defend itself against it. into being in scientists attesting the effectiveness of the vaccine therapy in fighting recurrent leukemia. the frustrating ones from the we believe the therapeutic vaccine could have a long lasting effect on the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or you and his bits of them straight. cancerous tumors form from the body's own tissue cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the cumin without help. the proteins on the surface of chuma cells are altered and these are the target of the cancer fighting leukemia vaccine.

every vaccine is tailored to each individual patient because every tumor is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is searches themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue in that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells that battle the vaccine and the cancer cells. each dot represents a cell because that's the control group. and this is the vaccine response you see

up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research phase but another cancer immunotherapy is already in news. special molecules all checkpoints on the surface of immune cells prevent them from attacking the body's own tissue. cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors removes the breaks the immune cells and then the able to fight humans. but the unleashed immune system doesn't just attack the cancer cells it also attacks healthy tissue that can lead to side effects like

joint problems and eczema. but it makes it possible to fight to moves that were previously considered untreatable. in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. union immunotherapy could be used to treat a wide range of team and in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of cancer treatment. hi this is where you do the infusion therapies so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's cause novel approach we have known for several years now that the patient immune the same usually detect its own cancer or its immune system has

a control level. the control level. is kind of a break for the attack of the immune system so in this case it has immune reaction but the controllers control that this infusion takes off the control for a period of time. so we kind of lose in the break but then his only move to texas on cancer. and your student of biotechnology so does it help in understanding the therapy and does it help you get. yes it helps me to understand therapy but not like in a way that tells you to cope with it it's more like. in the way that i can i'm feeling like i'm more than a scientist and involved in the whole treatment of the whole disease cancer and just the patient just being a patient so and when i'm here and i'm talking to

a woman after the therapy or before it's kind of nice to just to talk about my own desire a disease. yes a patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call them if there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash like little red dots or some territory just like. here where a chinese port is a couple of those especially well i'm a belly. they just look. like a summit of limitation that it's not really. it's manageable. yeah there are some other. side effects that are more. severe but

now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect was our trip and we're fact control of the immune system so the control that immune system has in its health so we do loose and display immune systems can overreact and that's where the very severe and or called itis was having diarrhea and that that's when he called and 3 months we couldn't continue treatment until we had solved this problem he had to adapt his diet and after about 3 months he felt well and continued fortunately doing the time the triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from this therapy can you really heal the cancer we know from other forms of cancer which we use this treatment that patients are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as a model of these patients thus far the cancer is not to be curt we can find some

evidence that he is in good shape just finished his studies so yes good quality of life and cancer is controlled it's controlled so it's more like a chronic disease then i think if back to that so we would say that we defeated the cancer since we find some evidence we're always afraid that the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know how to hold long to continue the therapy could be for say 30 years we don't know yet we know from other patients that you can't stop for a while like another disease so we know that also was and so we had the wake of what 3 months and it did not affect the results the positive results but for the long term we don't know yet whether there are other therapies and colleges looking into. as. i was pretty skeptical about the whole thing i

wasn't convinced they could help i just thought i had nothing to lose. yanis y. to has breast cancer she's an outpatient at the am teaching hospital in essen in the integrative medicine unit here she receives mainstream care in combination with complementary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit finn's always opens it and great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think that your path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain we can be deployed during a course of chemotherapy. this could diminish today and more and more studies show that acupuncture really helps with

a range of side effects such as pain in the hands and feet nausea russians hits of this has been thoroughly researched and we see it in our everyday clinical work which is insufficient. chemotherapy has caused her liver values to soar and has to be suspended until they come down dr ferber prescribes an abdominal compress as as was mentioned we don't have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the valleys back down to normal so we can resume the therapy it can also turn off. after 5 weeks the values have improved it's possible but not certain that it would have taken longer without the compress youngest daughter is worried that her tumor has grown during the break in treatment she's about to have an ultrasound. you know

i mean it's when i'm very nervous it's. all or nothing now has the chemotherapy worked or not you sequin included 2 more looses the surgical clips where the tumor was you remember that looks black now there is no tumor to be seen around the clip as it's gone and can't be seen for years you know most of these are normal healthy structures with new connective tissue growing so this is awful it's clear the tumor is gone what's in there to accomplish this comedy and you know mike you know this month or so this is. true he could not racially in the tears of joy are important to him oh my gosh these results are fantastic. in clinical terms we have complete remission it's not means there's no tumor we can't hope for anything better. you have to be really strong i think i have been. there were bad days but i feel like i

got through them. before the ultrasound quite a fear that you might have grown in fact the chemo had evidently already obliterated it. the complementary therapies didn't target the cancer itself but were used to help her deal with side effects and support the therapeutic process. i must say i just met today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the some patients usually just fly for independent. partners or soaps good studies or good jobs the quality of the family and so in this phase of independence if they get dependent on medicine or people like me so it's very difficult for them to integrate the disease into a normal life especially with chronic diseases but i'm also very fascinated by these patients because also very mature more mature than their peers so what makes

it so special to treat young cancer patients well there are several aspects one of them also have an amount of multitude of information's available to just use to look into the internet what's available so we talk a lot of quantity of information that doesn't always mean quality so you would have to talk in depth and explain what you are doing well and says quite confident quite witty he says that a doctor has to earn the trust of the patient is he right it's a little perky but it's honest and honest with the basis of a working patient doctor relationship since it's almost i can handle it thanks so much for this very interesting talk and i have so many more. but now it's you all to send me your questions by e-mail. on an upcoming show we'll be talking about. it's consumed all over the world mainly in the form of wine and beer shakes does it have on the body sending your questions to in good shape

but detail blue dot com just right alcohol in the subject line we're looking forward to hearing from you. so right now after therapy how do you fear. later today or gets tired i will be tired the whole week and it's like. cats ok if somebody gets a diagnosis of cancer what's your advice for this patient yeah so i would say i. try to depend on the family so what i say i want or saying before. the beginning of the disease and so then you can. be supported by your family and the latest data shows all when you get like. another disease. thank you so much for sharing your story with us and we'll see each other again next week and let's all

try to stay in good shape and we'll have some yes ok let's go. the but. the bigger.

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