every journey begins with the 1st step and every language but the 1st word published in the cook. is in germany to learn german why not with him simple online on your mobile and free shop d w z e learning course nico speak german made easy. hello and welcome to in good shape it's summertime in berlin but today's show is not about ice cream it's about cancer but don't be afraid ken says and always deadly belief. in good shape meats and so love and down hearted little man

answers just 30 but he's already been fighting cancer for 16 years. says dr put the sherry to university hospital in berlin. i'm oppressed holderness and done patients managed to interpret such a terrible diagnosis i counsel it into their lives and to leave a quite normal life. when you're young they are a lot of things in your agenda your for your 1st job and your very 1st own apartments but when you're diagnosed with cancer everything's on hold your whole life needs to be organized. that's. the worst part for me was not knowing if on survivor. if i was going to get as old as i thought i would. and we as a concerned was then some how long will it take the lying about us cancer on sunday

when our life be able to lead a normal life again and put it behind me when will i be able to forget it and write that my desk up. over a 1000000 young adults develop cancer every year to the next 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. when to pay cast compliment. if i'm unlucky i'll never be healthy again f. i'm unlucky all dying before i get my college degree before i can become a teacher before i can have a family i didn't want so i said to myself i have to do everything possible to make sure that doesn't happen that's just. the talking there had been looking forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. functioning it was an incredibly dramatic experience for me

being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. the listener knows the problems that young cancer patients face the oncologist at berlin's sharia to hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. missing belong to we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks. we have to keep explaining to them that they need to follow the treatment schedule which has to be very strict. it's something that presents a big challenge for the medical team as well. that.

you know also suffers from a metropolitan sorter which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. and they could but i think it gives me so much. on the one hand thanks to the exchange with other patients. that's what i've had and also just because we have a lot of fun together we don't feel that cancer dominates our lives. and if we can get together and laugh about it. katerina chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced men across but give us all this is kind of in my case the men who pulls resulted in a complete loss of libido. but i just think it has a very negative effect on your sexuality there are just so many signs of facts that

can mess it up look at this i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and not just doesn't work nothing works for meat cutter you know would like to have children but the treatment can damage the ovaries she's had her eggs frozen 2 years later in spite of the uncertainty she hasn't lost her love of life the tumor is gone she's going to teach and she's making plans even though she knows the cancer could come back if mecca for me said i feel that i've become much stronger in many ways i somehow feel more grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel more mature stronger and i know that there are more important things in life than all the little things that used to get me upset and then get someone to kind of kind of an

instant after they cut i'm going with i met the burden charity hi thanks for meeting me today. you're a cancer patient actually so you developed cancer when you were 14 years old and tried now you're 30 and you still have liver cancer so how do you feel today they were all really great actually a lot like. thinking about the watch every day it's what. kamandi every minute every minute every 2nd of where they are aware of a lot of a lot of the disease. i'm coping with it's a lot like it's. it's culturally my life it's not controlling your life i mean it's more than half of your life actually it's 16 years who are a cancer patient so ho ho was it for the 1st time the doctors were telling you the diagnosis. actually it was because between the diagnosis or the.

suspicion for the 1st the 1st signs that i have the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery and the surgeon come in come. in said it went well we got everything out so and then it was like all right that that states that we have to know what to talk about again and like. 234 days they came to me came to me again and they said we have found. in lymph nodes cancer cells it's very devastating i mean this is disappointing that you think you were cured and then they told you that the disease is still going and then this was not the only time you realized that this disease was ongoing that it was part of all the years that yes. like in total.

666 times. $6.00 to $6.00 times including the original one and. yeah it was like. there was the easier ones that got. got to take i got taken all the massage really took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. before the surgery . we try our best and we don't think it of him you know if we close you up and so in this well the 2 times i was really. not scared in the can in the classical a way it's. it was more way off. putting last summer like. yeah so all and now. the 1st time i receiving.

drug therapy with mats and not getting cut open. a surgical therapy even. and it's it's the it's a good it's good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis of this disease and you're still living your life i mean you're doing punk rock you're kind of a buddhist so how does it help you. you know. i am more like like. the whole mentality of punk walk so like being self dependents and. freedom loving and. it's all can be transferred into the coping with the disease you know like being being self dependent so i don't give in like i'm blind in everything question of things i want

to know what's happening i want that the doctor is. is like working with me and not working on me and. freedom loving me not really free when i'm dead i can feel your spirit and it's very late thing for me to hear this but. i'm a father myself good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you are a buddhist even if you do punk rock and how did your parents react to the diagnosis because my parents were. i this rule nobody cries if i'm not crying so when my parents who are bad in the hospital it was really it was more more positive than life negative you know like life in the villages. this was almost more life a life demanding like who wants our life and our normal parents are as close as it

is get as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldn't imagine for in the fix you're coping with this disease so this is the reason why subconsciously i invented or i put off this rule let's continue this talking just a moment because you have to get therapy we're not in a park here we sitting at the study t.m. bilin going to get immunity therapy so what is immunotherapy. vaccine that helps fight cancer. teaches your immune cells to recognise tumors more effectively and to attack them. very your immune system could kill most kinds of cancer but often it can't keep up

. either the cancer is faster than the immune system or it can defend itself against. into being in scientists the testing the effectiveness of the vaccine therapy in fighting we're currently kenya. if springs from the top or we believe the therapeutic vaccine could have a long lasting effect on the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or you in his words of the french. cancerous tumors form from the body's own tissue cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the cima without help. the proteins on the surface of human cells are altered and these are the target of the cancer fighting leukemia vaccine.

every vaccine is tailored to each individual patient because every chuma is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is searches themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue and that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells that battle the vaccine and the cancer cells. each dot represents of cells because that's the control group. and this is the vaccine

response you see up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research feigns but another cancer immune therapy is already in use. special molecules or check points on the surface of immune cells prevent them from attacking the body's own tissue. cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors removes the breaks the immune cells abene able to fight cimon. but the unleashed immune system doesn't just attack the cancer cells it also attacks healthy tissue that can lead to side effects like

joint problems and eczema. but it makes it possible to fight tumors that were previously considered untreatable. in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. human immunotherapy could be used to treat a wide range of tumors in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of cancer treatment. so this is where you do the infusion ferret pieces so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's quite novel approach we have mold for several years now that the patients in the same usually detect its own cancer or immune system has

a control level the control level. is kind of a break for the attack of the immune system so in this case it has immune reaction but the controllers control that this infusion takes off the control for a period of time. so we kind of lose in the break but then has only moved to texas on cancer. and your student of biotechnology yes so does it help in understanding the therapy and does it help you in getting therapy yes it helps me to understand therapy but not like in a way that it helps you to cope with it it's more like. in the way that i can i'm feeling like i'm a more than a scientist and involved in the whole treatment of the whole disease cancer and just the patient just being a patient so and when i'm here and i'm talking to

a woman after the therapy or before it's kind of nice to just talk about my own desire disease and yes patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call it there would be the serious side effects are there any side effects there are side effects at the moment i only have like a little rash like a little red dots or some territory just like this. here where a chinese port is a couple of those especially well i'm a belly. they just look. like a summit of limitation that's not really nice but it's manageable. yeah there are some other. side effects that are more. severe but

now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect was our trip and we're fact control of the immune system so the control that immune system has in itself so we do loose and display immune systems can overreact and answered a very severe ental called itis was having diarrhea and that that's when he called and 3 months we couldn't continue treatment until we had solved this problem he had to adapt his diet and after about 3 months he felt well and the record continued fortunately doing the time it's a triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from this therapy can you really heal the cancer we know from other forms of cancer which we use this treatment that patients are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as more of these patients thus far the

cancer is not to be curt we can find some evidence that he is in good shape just finished his studies so yes good quality of life and cancer is controlled it's controlled so it's more like a chronic disease that i think is if back to that so we would say that we defeated the cancer since we find some evidence we're always afraid that the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know whole whole long to continue the therapy could be for say 30 years we don't know yet we know from other patients that you can't stop for a while like it's another disease so we know that also was and so we had the wake of what 3 months and to not affect the results the positive results but for the long term we don't know yet whether there are other therapies and college he's looking into. as. i was pretty skeptical about the whole thing i

wasn't convinced they could help i just thought i had nothing to lose. him. yanis y. to has breast cancer she's an out patient advocate teaching hospital in essen in the integrative medicine unit where she receives mainstream care in combination with complimentary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit. finn's always open sets we find a great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think natural path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain we can be deployed during a course of chemotherapy. this could diminish today and more and more studies show that acupuncture really helps with

a range of side effects such as pain in the hands and feet nausea fashions hits of this has been thoroughly researched and we see it and not every day clinical work which is institution clinician not. chemotherapy has caused her liver values to soar and has to be suspended until they come down dr prescribes an abdominal compress as it's that's when we don't have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy it can also turn off. after 5 weeks the values have improved it's possible but not certain that it would have taken longer without the compress younus white is worried that her tumor has

grown during the break in treatment she's about to have an ultrasound. and i'm very nervous it's all or nothing now has the chemotherapy worked or not using one included reduces the surgical clips where the cima was you remember that looks black now there is no tumor to be seen around the clip before it's gone and can't be seen using now most of these are normal healthy structures with new connector. growing up this is awful it's clear the tumor is gone what's dinner to a complete take again this comedy and you know mike you know this man does such as . truly difficult for a screen the tears of joy are important to him oh my gosh these results were fantastic. in clinical terms we have complete remission means there's no chuma we can't hope for anything better. you have to be really strong i think i have been. there were bad days but i feel like i got through them. before the ultrasound

younus quite a feared the tumour might have grown in fact the chemo had evidently already obliterated it. the complementary therapies didn't target the cancer itself but we used to help her deal with side effects and support the therapeutic process. i must say i just met and saw it today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the same patients usually just fly for independent it's a. popular series hopes to get this study with a good job so with the family. in this phase of independence if they get dependent on medicine or people like me so it's very difficult for them to integrate the business into a normal life especially with chronic diseases but i'm also very fascinated by these patients because they're also very mature more mature than their peers so

what makes it so special to treat young cancer patients well there are several aspects one of them also have an amount of multitude of information's available they're just used to look into the internet what's available so we talk a lot of quantity of information that doesn't always mean quality so you will have to talk in-depth and explain what you are doing well and says quite confident quite witty he says that a doctor has to earn the trust of the patient is he right what's a little perky but it's honest and honest this is the basis of a working patient doctor relationship since it's honest i can handle it thanks so much for this very interesting talk and i have so many more question. but now it's you all to send me your questions by e-mail. on an upcoming show we'll be talking about. it's consumed all over the world. and

what effect does it have on the body sending your questions to be in good shape but detail blue dot com just right alcohol in the subject line with looking forward to hearing from you. so right now after therapy how do you fear. later today or gets tired of. a whole weekend it's like. cats ok if somebody gets a diagnosis of cancer what's your advice for this patient yes i would say i. try to depend on the family so what i say i was all saying before. the beginning of the disease and then you can be supported by your family and the latest data shows all when you get like a new disease and also so far so good thank you so much for sharing your story with us and we'll see each other again next week and let's all try to stay in good shape

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as soon as he comes home he'd start beating me even when i was pregnant thief threw me onto the bed and he beat me as hard as he could violence against women because men think it's their right to be a minimum is a violation of human rights. for all the world to see in 75 minutes on d. w. . o. quiet melody. resounds by the light of the. silvery. risen with a new song. the mind and the music.

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. this is d w news live from berlin and night falls in hong kong an anti-government protest again turned chaotic thousands have taken to the streets for a 9th straight weekend one police station was surrounded in a fire lit and it's entrance the fire was put out by clashes continue across the city center. also coming up right chad sudan is celebrating another major step toward democracy the ruling military reaches a firm deal with civilians that has split the country.