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tv   In Good Shape  Deutsche Welle  August 4, 2019 7:30am-8:01am CEST

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problems are almost the same 14 social inequality a lack of the freedom of the press and corruption we can afford to stay silent when it comes to the fans of the human seem right to fold who have decided to put their trust in us. my name is johnny carson and i work at. it. hello and welcome to in good shape it's summer time in berlin but today's show is not about ice cream it's about cancer but don't be afraid cancer isn't
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always deadly the life will. be in good shape meats and so love and hot mirman answers just 30 but he's already been fighting cancer for 16 years. this is dr put the sherry to university hospital in berlin. i'm oppressed hold mr duncan patience managed to integrate such a terrible diagnosis like into their lives and to leave a quite normal life. when you're young there are a lot of things in your agenda your 1st love your 1st job and your very 1st own apartment but when you're diagnosed with cancer everything's on hold your whole life needs to be reorganized. finished that's. the worst part for me was not knowing if. this cancer. if i was going to get
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as old as i thought i would. and we as a concern was then some how long will it take the lying about us council on one body when our life be able to lead a normal life again and put it behind me when will i be able to forget it and right at my desk up. over a 1000000 young adults develop cancer every year every next 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. and purest confident i thought if i'm unlucky i'll never be healthy again i'm deaf i'm unlucky all dying before i get my college degree before i can become a teacher before i can have a family and i didn't want that so i said to myself i have to do everything possible to make sure that doesn't happen that's the. catch i mean there had been
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looking forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. and found it was an incredibly dramatic experience for me being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. deana listener knows the problems that young cancer patients face the oncologist at berlin's sharia to a hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. missing belonging to we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks . we have to keep explaining to them that they need to follow the treatment
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schedule which has to be very strict and it's something that presents a big challenge for the medical team as well. that. you know also suffers from a matter of ball it disorder which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. and the virus and they could but i think it gives me so much. on the one hand thanks to the exchange with other patients. that's what i've had and also just because we have a lot of fun together we don't feel that cancer dominates our lives. but if we can get together and laugh about it. can. cut your finger chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced men across but me of us with
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a sister. in my case the man who pulls resulted in a complete loss of libido. but i just think it has a very negative effect on your sexuality there is just so many side effects that can mess it up look at this i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and not just doesn't work nothing works for meat cutter you know would like to have children but the treatment can damage the ovaries she's had her eggs frozen 2 years later in spite of the uncertainty she hasn't lost her love of life the tumor is gone she's going to teach and she's making plans even though she knows the cancer could come back if mecca for me said i feel that i've become much stronger in many ways i somehow feel my grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel more mature
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stronger and i know that there are more important things in life than all the little things that used to get me upset and didn't get so much a credit card when i was on talk of the top i'm going to meet the burden charity hi thanks for meeting me today and you're a cancer patient actually so you developed cancer when you were 14 years old and dried now you're 30 and you still have liver cancer so how do you feel today they were all really great actually you saw a lot like. thinking about the watch every day of salt. kamandi every minute every minute every 2nd of where day i'm aware of a lot of the disease. i'm coping with it's a lot like it's. it's a controlling my life it's not controlling your life i mean it's more than half of your life actually at 16 years who are
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a cancer patient so ho ho was it for the 1st time the doctors were telling you the diagnosis. actually it was because between the diagnosis or the. suspicion for the 1st the 1st signs that i have the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery of the surgeon come come can come to me and said it went well we got everything out so and then it was like that that states that we have to know what to talk about again and like 234 days they came to me came to me again and they said we have found. in the lymph nodes cancer cells this is devastating i mean this is disappointing to get the truth you were cured and then they told you that the disease is still ongoing and then and this was not
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the only time you realized that this disease was ongoing that it was part of all the years that yes i saw. like in total. 666 times. $6.00 to $6.00 times including the original one and. yeah it was like. there was the easier ones that got me got that got to take i got taking all that with me massage really took like 2 hours and was done and then there was there was a one there was like 2 surgeries where the surgeon came to me. before the surgery. we try our best and we don't think it ever when you know it we close you up and so in this well the 2 times i was really. not scared in the can in the classical a way it's most me i was more way off. feeling lost and more like.
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yeah so all and now. the 1st time i receiving. drug therapy with mats and not getting cut open. the surgical therapy. and it's it's the it's a good it is good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis of this disease and you still living your life i mean you're doing punk rock you're kind of a buddhist yeah so how does it help you. you know. i'm more like like. the whole mentality of punk walk so like beings have to plan and. freedom loving and. it's all can be transferred into the coping with the disease you know like being being self
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dependent so i don't give in like i'm blind for everything i question things i want to know what's happening i want there to be a doctor is. is like working with me and not working on me and. freedom loving i'm not really free when i'm dead i can feel your spirit and it's very light and for me to hear this but. i'm a father myself good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you are a buddhist even if you do punk rock and how did your parents react to the day that my parents were. i've this rule nobody cries if i'm not crying so when my parents who are bad in the hospital it was really it was more
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a more positive than life negative you know like life in the villages. this was almost more life a life demanding like who wants our life and our normal patterns are as closely as it as good as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldn't imagine for in the fix your coping with his disease so this is the reason why subconsciously i invented or i put off this rule let's continue this talking just a moment because you have to get therapy we're not in a park here i was sitting at the shelly t. and lynn going to get you know therapy so what is immunotherapy. vaccine that helps fight cancer. teaches your immune cells to recognize tumors more effectively and to attack them.
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very your immune system could kill most kinds of cancer but often it can't keep up . either the cancer is faster than the immune system or it can defend itself against. into being in scientists attesting the effectiveness of the vaccine therapy in fighting we're currently kenya. from springs from. we believe the therapeutic vaccine could have a long lasting effect on the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or you and his wits and. cancerous tumors form from the body's own tissue their cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the cima without help. the proteins on the surface of human cells are altered
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and these are the target of the cancer fighting leukemia vaccine. every vaccine is tailored to each individual patient because every tumor is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is searches themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue and that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells
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that battle the vaccine and the cancer cells. each dog represents a cell because that's the control group. and this is the vaccine response you see up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research phase but another cancer immune therapy is already in use. special molecules or check points on the surface of immune cells prevent them from attacking the body's own tissue cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors remove the breaks the immune cells are then able to fight humans but the unleashed immune system doesn't just attack the
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cancer cells it also attacks healthy tissue that can lead to side effects like joint problems and eczema. but it makes it possible to fight to moves that were previously considered untreatable. toppy in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. urine immunotherapy could be used to treat a wide range of tumors in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of cancer treatment. so this is where you do the infusion therapies so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's quite novel
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approach we. know that the patients usually detect its own cancer or immune system has a control. the control level. is kind of a brick for the attack of the immune system so in this case it has a new direction but the controllers control that this infusion takes off the control for a period of time so we kind of loosen the brake and then it has only moved to texas on cancer. and you student of biotechnology yes so does it help in understanding the therapy and does it help you get. yes it helps me to understand therapy but not like in a way that it helps you to cope with it it's more like. in the way that i can and i'm feeling like i'm more than a scientists. involved in the whole treatment of the whole disease
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cancer and just the patient just being a patient so and when i'm here and i'm talking to a woman after the therapy or before it's kind of nice to not just to talk about my own desire disease. yes a patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call them if there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash like little red dots. that are just like. here where a tiny spot is a couple of those especially well i'm a belly. they just look. like a summit of limitation that it's not really. it's manageable. yeah
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there are some other. side effects that are more. severe but now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect was our trip and we're fact control of the immune system so the control that immune system has in its health so we do loose and display immune systems can overreact and answered a very severe ental called ictus was having diarrhea and that that's when he called and 3 months we couldn't continue treatment until we had solved this problem he had to adapt his diet and after about 3 months he felt well and continued fortunately doing the time so triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from this therapy can you really heal the cancer we know from other forms of cancer which we use this treatment that
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patients are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as a model of these patients thus far the cancer is not to be curt we can find some evidence that he is in good shape just finished his studies so yes good quality of life and cancer is controlled it's controlled so it's more like a chronic disease and i think if it's exactly that so we would say that we defeated the cancer since we find some evidence we're always afraid that the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know whole whole long to continue the therapy could be for say 30 years we don't know yet we know from other patients that you can't stop for a while like another disease so we know that also was and so we had the wake of what 3 months and it did not affect the results the positive result but for the
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long term we don't know it well but there are other therapies and colleges looking into. as a wish i was pretty skeptical about the whole thing i wasn't convinced they could help it i just thought i had nothing to lose. yanis y. to has breast cancer she's an outpatient at the k. m. teaching hospital in essen in the integrative medicine unit here she receives mainstream care in combination with complementary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit. finn's always open sets a great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think that your path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain we
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can be deployed during a course of chemotherapy. this could diminish today and more and more studies show that acupuncture really helps with a range of side effects such as pain in the hands and feet nausea flushes hits of this has been thoroughly researched and we see it in our everyday clinical work which is insufficient. chemotherapy has caused her liver values to soar and has to be suspended until they come down doctor prescribes an abdominal compress as he has his mention of off and if we don't have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy time it can also turn off. after 5 weeks the values have improved
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it's possible but not certain that it would have taken longer without the compress younus why it is worried that her tumor has grown during the break in treatment she's about to have an ultrasound. and i'm very nervous it's all or nothing now has the chemotherapy worked or not as you see one day included reduces the surgical clips where the chuma was you remember that looks black now there is no tumor to be seen around the clip before it's gone and can't be seen using now most of these are normal healthy structures with new connected. tissue growing yeah. this is awful it's clear the tumor is gone what's. going this coming do you know mike you know this month or so this is. true for israel tears of joy are important to him oh my gosh these results are fantastic. in clinical terms we have complete remission means there's no tumor we can hope for anything better. you
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have to be really strong i think i have been. off they were bad days but i feel like i got through them. before the ultrasound younus quite a fear the tumor might have grown in fact the chemo had evidently already obliterated it. the complementary therapies didn't target the cancer itself but were used to help her deal with side effects and support the therapeutic process. i must say i just met and saw it today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the some patients usually just for independent at this age build partnerships get the studies they're good jobs the quality of the family and so in this phase of independency they get dependent on medicine on people like me so it's very difficult for them to integrate the business into
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a normal life especially with chronic diseases but i'm also very fascinated by these patients because also very mature more mature than their peers so what makes it so special to treat young cancer patients world are several aspects one of them also is certain now have an amount of multitude of information available to just use to look into the internet what's available so we talk a lot and have a quantity of information that doesn't always mean quality so you will have to talk in-depth and explain what you are doing well and says quite confidently quite witty he says that a doctor has to earn the trust of the patient is he right it's a little perky but it's honest and honest this is the basis of our working patient doctor relationship since it's almost i can handle it thanks so much for this very interesting talk and i have so many more questions to ask but now it's your turn send me your questions by e-mail. coming sure we'll be talking
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about alcohol it's consumed all over the world mainly in the form of wine and beer what effect does it have on the body sending your questions to in good shape but d.-w. dot com just right alcohol in the subject line we're looking forward to hearing for . so right now after therapy how do you feel. later today i will gets tired i will be tired a whole week and it's like this. but. if somebody gets the diagnosis of cancer what's your advice for these patients yes i would say i. try to depend on the families so what i say was all saying before. the beginning of the disease it's a venue can. be supported by your family and the latest date shows all when you get
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like. another disease diagnosis of course so thank you so much for sharing your story with us and we'll see each other again next week and let's all try to stay in good shape and we'll have some yes ok that's got to.
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because. on a delicate mission in the holy land. wolfgang schmitz. he's the provost of the highest representative of germany's protestant church in jerusalem. what can you achieve in a region torn by conflict now does he cope with the pressures of his job.
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provost in jerusalem. coming up on t.w. . the finest early local tourist guide for germany's booming capital i love berlin. discover the multicultural metropolis a good hour euro max series. of 215 a shift 50 stories and 50 very personal tips from berlin's very best features. a look now at the moment in 30 minutes on d w. closely. listen carefully
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to. the soon. to be a good. discovery . the same. subscribe to. documentary on you tube. take a personal leave us. with a little wonderful people and stories that make the game so special. for all true fans. because more than football online. i think in everything challenging 1st under a muslim. so much different culture between here and there challenge in court if
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the player. from islamists i think it was worth it for me to come to germany. got my license to work as a swimming instructor up to shannara 2 children nothing to us was one of the toughest. what's your story take part sheriff on info my greenstock miss. police in el paso texas say they have arrested a suspect after a shooting that left at least 20 people dead and dozens injured at a shopping complex. it happened at the c.l.o. vista mall on the east side of the city. police then conducted a search of the area and say there is.

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