tv In Good Shape Deutsche Welle August 4, 2019 11:30am-12:01pm CEST
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expected. what's coming as a surprise. in 60 minutes on w. . first each school in the jungle. or 1st clean lesson and then the chorus grand moment arrives join the arena tango on her journey to freedom in our interest to join him in treme dorai an orangutan returns home. to me. hello and welcome to in good shape it's summer time in berlin but today's show is not about ice cream it's about cancer but don't be afraid.
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life will. be in good shape meats and so low and down heartburn one answer is just 30 but he's already been fighting cancer for 16 years. says dr put the sherry to university hospital in burlington. i'm oppressed hold no saddam patience managed to interpret such a terrible diagnosis i counsel it into their lives and to leave a quite normal life. when you're young there are a lot of things in your agenda your 1st love your 1st job and your very 1st own apartment but when you're diagnosed with cancer everything's on hold your whole life needs to be reorganized. finished fast that's. that's the worst part for me was not knowing if. that was a big. if i was going to get as old as i thought i would. and we as
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a concern was then some how long will it take the lying about us council on bond that when i lightly able to lead a normal life again and put it behind me when will i be able to forget it and write that my desk up. over a 1000000 young adults develop cancer every year at every next 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. when to pay cast confident i thought if i'm unlucky i'll never be healthy again i'm deaf i'm unlucky all dying before i get my college degree before i can become a teacher before i can have a family i didn't want so i said to myself i have to do everything possible to make sure that doesn't happen that's the thing. that's happening there had been looking
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forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. found finished it was an incredibly dramatic experience for me being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. no knows the problems that young cancer patients face the oncologist at berlin's sharia to a hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. missing belonging to we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks . we have to keep explaining to them that they need to follow the treatment
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schedule which has to be very strict. something that presents a big challenge for the medical team as well. that. you know also suffers from a metabolic disorder which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. and they could but i think it gives me so much on the one hand thanks to the exchange with other patients. that's not about that's right and also just because we have a lot of fun together we don't feel that cancer dominates our lives. and if we can get together and laugh about it. in a chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced many of us but me of us with
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a sister. in my case the man who pulls resulted in a complete loss of libido. it has a very negative effect on your sexuality there is just so many scientific that can mess it up. i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and that just doesn't work nothing works for me katarina would like to have children but the treatment can damage the ovaries she's had her eggs frozen to use later in spite of the uncertainty she hasn't lost her love of life the tumor is gone she's going to teach and she's making plans even though she knows the cancer could come back for me i feel that i've become much stronger in many ways. i somehow feel my grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel moment you're
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stronger and i know that there are more important things in life than over little things that used to get me upset at thing and even get someone to kind of kind of understand after they cut. i'm going to meet the burden should be t. hi thanks for meeting me today and you're a cancer patient actually so you develop cancer when you have 14 years old and dr no you are 13 and you still have liver cancer so how do you feel today they were really great actually so i'm not like. thinking about too much every day it's want. commanding every minute or demanding every minute every 2nd of my day i mean aware of a lot of all of the disease and i'm coping with it it's not like it's. it's controlling my life it's not controlling your life i mean it's more than half of your life it's really it's 60 years your cancer patient so hall how was it for the
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1st time the doctors were telling you the diagnosis. actually it was because between the diagnosis on the. suspicion for the 1st the 1st signs that half the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery of the surgeon come come can come to me and said it went well we got everything out so and then it was like all right that that states that we have to know what to talk about again and like. 234 days they came to me came to me again and they said we have found. in the lymph nodes can't. cells this is devastating i mean this is disappointing that you think you were cured and then they told you that the disease is still going and then this wasn't the only time you were realized that this
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disease was ongoing that it was part of all the years that yes yes so i feel like in total. 666 times. $6.00 to $6.00 times including the original one and. yeah it was like. there was the easier ones that got me got that got to take and i got taken all the medieval soldiery took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. before the surgery and he said. we try our best and we don't think it of him you know if we close you up and so in this well the 2 times i was really. not scared in the can in the classical a way it was me i was more way off. getting lost and the like.
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yeah so and now it's the 1st time i receiving. the out drug therapy with mats and not getting cut open. the surgical therapy. and it's it's the think it's a good it's good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis of this disease and you still living your life i mean you're doing punk rock you're kind of a buddhist yeah so how does that help or you know. i am more like light the. whole mentality of punk walk so like being self dependent. freedom loving and. it's all can be transferred
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into the coping with the disease you know like being being self dependent so i don't give in like i'm blind here everything i question things i want to know what's happening i want that the doctor is. is like working with me and not working on me. and. freedom loving me not really free when i'm dad i can feel your spirit and it's very likely for me to hear this but. i'm a father myself good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you are a buddhist even if you do. and how did your parents react to the diagnosis my parents were. this rule nobody crisis if i'm not crying so when my parents were bad and the hospital and it was really it was more
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a more positive than life negative i feel like life and inject is what i'm almost more life and life demanding like he wants our life and our normal patterns are as close as it is get as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you can imagine for in the fix you're coping with this disease so this is the reason why subconsciously i invented or i put out this rule let's continue this talking just a moment because you have to get therapy we're not in a park here we sitting at the shelly t. in berlin and he's going to get you know therapy so what does immunotherapy. vaccine that helps fight cancer. teaches your immune cells to recognize tumors more effectively and to attack them. just mooches
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syrians leery your immune system could kill most kinds of cancer but often it can't keep up. either the cancer is faster than the immune system or it can defend itself against the old into being in scientists the testing the effectiveness of the vaccine therapy in fighting we're currently kenya for springs from. we believe the therapeutic vaccine could have a long lasting effect in the body for instance extended immunity against any residual income yourselves we hope this protection could prevent a recurrence of the disease for you and his wits and move them straight. cancerous tumors form from the body's own tissue cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the cumin without help. the proteins on the surface of cheema
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cells are altered and these are the target of the cancer fighting leukemia vaccine . every vaccine is tailored to each individual patient because every chuma is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is such as themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue and that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells
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that battle the vaccine and the cancer cells. each dot represents the cells because that's the control group that's used and this is the vaccine response you see up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research phase but another cancer immune therapy is already in use. special molecules or check points on the surface of immune cells prevent them from attacking the body's own tissue cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors removes the breaks the immune cells and then the able to fight humans. but the unleashed immune system doesn't just attack
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the cancer cells it also attacks healthy tissue that can lead to side effects like joint problems and eczema. but it makes it possible to fight tumors that were previously considered untreatable. toppy in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. human immunotherapy could be used to treat a wide range of tumors in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of cancer treatment. hi this is where you do the infusion therapies so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's quite novel
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approach we have known for several years now that the patients in the sim usually detect its own cancer or its immune system has a control level. the control level. is kind of a break for the attack of the immune system so in this case he has his immune reaction but the controllers control that this infusion takes off the control for a period of time. so we kind of lose in the break and then his only move to texas on cancer. and you student of biotechnology yes so does it help in understanding the therapy and does it help you getting the therapy yes it helps me to understand therapy but not like in a way that it helps you to cope with it it's more like. in the way that i can i'm feeling like i'm more than a scientist and involved in the whole treatment of the whole disease
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cancer and just the patient just being a patient so and when i'm here and i'm talking to a woman after the therapy or before it's kind of nice to just to talk about my own desire disease. yes a patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call them if there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash like little red dots or some territory just like. you are trying to support is a couple of those especially well i'm a bally. they just look. like a summit of limitation that it's not really nice it's manageable. yeah
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there are some other. side effects that are more. severe but now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect was our trip and we're fact control of the immune system so the control that immune system has in its health so we do loose and display immune systems can overreact and answered a very severe and or cold i was having diarrhea and that that's when he called and for what 3 months we couldn't continue treatment until we had solved this problem he had to adapt his diet and after what a month see felt well and continued fortunately doing the time it's a triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from the said if you can you really heal the cancer we know from other forms of cancer which we use this treatment that patients
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are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as a model of these patients thus far the cancer is not to be curt we can find some evidence that he is in good shape just finished his studies so he has good quality of life and cancer is controlled it's controlled so it's more like a chronic disease. i think if back to that so we can say that we defeated the cancer since we find some evidence we're always afraid that the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know how to hold long to continue the therapy could be for say very years. we don't know we know for other patients. you can't stop for while. another disease so we know there also was a. wake of what we months and the thought effect the results the positive results
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but for the long term we don't know it well but there are other therapies and colleges looking into. as. i was pretty skeptical about the whole thing i wasn't convinced they could help i just thought i had nothing to lose. its. young is white or has breast cancer she's an outpatient at the teaching hospital in essen in the integrative medicine unit here she receives mainstream care in combination with complementary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit. finn's always open sets to find a great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think natural path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain we
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can be deployed during a course of chemotherapy. could diminish. more and more studies show that acupuncture really helps with a range of side effects such as pain in the hands and feet nausea russians hits of this has been thoroughly researched and we see it in our everyday clinical work which is into question kinch not. just chemotherapy has caused her liver values to soar and has to be suspended until they come down doctor prescribes an abdominal compress as he has this mention of aa and if we don't have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy it can also turn off. after 5 weeks the values have improved it's possible but not certain that it would
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have taken longer without the compress younus water is worried that her tumor has grown during the break in treatment she's about to have an ultrasound. you know it's been a severe and i'm very nervous it's all or nothing now has the chemotherapy worked or not use it one day included looses the surgical clips where the cima was your member that looks black now there is no tumor to be seen around the clip before it's gone and can't be seen using now most of these are normal healthy structures with new connector. tissue growing. this is awful it's clear the tumor is gone what steamer to accomplish this coming do you know mike you understand us this is. true for a stream of tears of joy are important to. my research these results are fantastic . in clinical terms we have complete remission which i stop means there's no tomorrow we can hope for anything better. you have to be really strong i
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think i have been. there were bad days but i feel like i got through them. before the ultrasound younus quite a feared the tumour might have grown in fact the chemo had evidently already obliterated it. the complimentary therapies didn't target the cancer itself but were used to help her deal with side effects and support the therapeutic process. i must say i just met today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the some patients usually just fly for independent at this age old partner says hopes to get the study it's a good job so the quality of the family. in this phase of independence if they get dependent on medicine on people like me so it's very difficult for them to
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integrate the business into a normal life especially with chronic diseases but i'm also very fascinated by these patients because also very mature more mature than their peers so that's what makes it so special to treat young cancer patients well there are several aspects one of them also have a multitude of information is available just use to look into the internet what's available so we talk a lot of quantity of information that doesn't always mean quality so you will have to talk in-depth and explain what you are doing well and says quite confident quite witty he says that a doctor has to earn the trust of the patient is he right it's a little perky but it's honest and honesty is the basis of a working patient doctor relationship since it's almost i can handle it. thanks so much for this very interesting talk and i have so many more questions to ask but now it's your turn to send me your questions by e-mail. on an
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upcoming show we'll be talking about alcohol it's consumed all over the world mainly in the form of wine and beer what effect does it have on the body send in your questions to in good shape but d.-w. dot com just right alcohol in the subject line we're looking forward to hearing from you. so right now after therapy how do you fear. later today or gets tired. it's like. ok if somebody gets a diagnosis of cancer what's your advice for this patient yeah so i would say. try to depend on the families so what i say was all saying before supportive family in the beginning of the disease it's a venue can be supported by your family and the latest date shows all when you get
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a surprise. 30 minutes spawn d.w. . the women's world cup. america blows cup and the africa cup of nations was asleep i picks. as you claim the next exciting event is right around the corner the german bundesliga is heating up and as always we're there to keep you up to date with the latest. gloom conversely the sun shining over 60. look closely. listen carefully. don't look to suit your needs to be a good. place
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this is g.w. news live from berlin the united states reels from 2 mass shootings just hours apart at least 9 people are reported dead in dayton ohio after a man opened fire in a bar some 16 others are injured suspected gunman has been killed. and on the same day 20 people were killed and dozens wounded in another mass shooting in el
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