until there was that one of their ability to get them i had serious problems on a personal level and i was unable to live there with my eyes and going to. want to know their story for my greatest refined and reliable information for my grants. hello and welcome to in good shape it's summertime in berlin but today's show is not about ice cream it's about cancer but don't be afraid cancer isn't always deadly the life will. be in good shape meats and so low unfair and hard to learn on answers just 30 but he's already been fighting cancer for 16 years. is his

doctor put the sherry to university hospital in berlin. i'm a quest hold my son patients manage to interpret such a terrible diagnosis like cancer into their lives and to leave a quite normal life. when you're young there are a lot of things in your agenda your 1st love your 1st job and your very 1st own apartment but when you're diagnosed with cancer everything's on hold your whole life needs to be reorganized. finished that's. the worst part for me was not knowing if. the 1st office comes about him that if i was going to get as old as i'd thought i would. and we also concern was how long will it all take. that he. and be able to lead

a normal life again and put it behind me when will i be able to forget it and write i guess and current that must come. over a 1000000 young adults develop cancer every year at every news 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. then to pay cast company i thought if i'm unlucky i'll never be healthy again i'm deaf i'm unlucky i'll die before i get my college degree before i can become a teacher before i can have a family and i didn't want that so i said to myself i have to do everything possible to make sure that doesn't happen that's the. qatar thing that had been looking forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. found it was an incredibly dramatic experience for me

i'd been so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. deana listener knows the problems that young cancer patients face the oncologist at berlin's sharia to a hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. missing belonging to we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks . we have to keep explaining to them that they need to follow the treatment schedule which has to be very strict. something that presents a big challenge for the medical team as well.

you know also suffers from a metabolic disorder which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. but i think it gives me so much on the one hand thanks to be exchange with other patients. that's what i've had and also just because we have a lot of fun together we don't feel that cancer dominates our lives. and if we can get together and laugh about it. catarina chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced many of us but me of us with a sister. in my case the men who pulls resulted in a complete loss of libido. but i guess it has a very negative effect on your sexuality there is just so many side effects that

can mess it up look at this i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and not just doesn't work nothing works and. caterina would like to have children but the treatment can damage the ovaries she's had her eggs frozen to use later in spite of the uncertainty she hasn't lost her love of life the tumor is gone she's going to teach and she's making plans even though she knows the cancer could come back for me i feel that i've become much stronger in many ways. i somehow feel my grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel moment you're stronger and i know that there are more important things in life than all the little things that used to get me upset me thinking and didn't get so much

a kind of kind of an instant after like that i'm going to i met the burden should be t. hi thanks for meeting me today and you're a cancer patient actually so you develop cancer when you have 14 years olds and dr no you're 30 and you still have liver cancer so how do you feel today if you were a really great actually so i'm not like. thinking about too much every day it's want. kamandi every minute or demanding every minute every 2nd of with day i mean aware of a lot of the disease and i'm coping with it it's not like it's. it's controlling my life it's not controlling your life i mean it's more than half of your life it should be at 60 years who are a cancer patient so hall how was it for the 1st time the doctors were telling her the diagnosis. actually it was because between the diagnosis or the.

suspicion for the 1st the 1st signs that i have the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery of the surgeon come come can come to me and said it went well we got everything out so and then it was like all right that that states that we have to know what to talk about again and like after 234 days they came to me came to me again and they said we have fallen. in. lymph nodes can't. cells this is devastating i mean this is disappointing to get the truth you were cured and then they told you that the disease is still going and then this wasn't the only time you were realized that this disease was ongoing that it was part of all the years that yes yes so. like a total. of 666 times. $6.00 to

$6.00 times including the original one and. yeah it was like. there was the easier ones that got me got that got to take and i got taken all the massage really took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. before the surgery . we try our best and we if we don't get out of here you know if we close you up and so in this well the 2 times i was really. not scared in the can in the casting call away it was me it was more way off. feeling lost and more like. yeah so now it's the 1st time i receiving. druck therapy with mats and not

getting cut open. to surgical. and it's it's the think it's a good good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis with this disease and you're still living your life i mean you're doing punk rock you're kind of a buddhist yeah so how does it help you. you know. i'm more like light. the whole mentality of punk walk so like being self dependent and. freedom loving and. it's all can be transferred into the coping with the disease you know like being being self dependent so i don't give in like i'm blind for everything i question things i want

to know what's happening i want that the doctor is. is like working with me and not working on me and. freedom loving i'm not really free when i'm dad i can feel your spirit and it's very light thing for me to hear this but. i'm a father myself of good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you are a buddhist even if you do punk rock him how did your parents react to the diagnosis my parents where. i this rule nobody cries if i'm not crying so when my parents who are bad in the hospital at. really it was more a more positive than life negative if you like life in a jack this one almost more life a life demanding like who wants our life and our normal patterns are as close as it

is get as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldn't imagine for in the fights you're coping with this disease so this is the reason why subconsciously i invented or i put out this rule let's continue this talking just a moment because you have to get therapy we're not in a park here we're sitting at the study t.m. bilin going to get immunotherapy so what do you immunotherapy. a vaccine that helps fight cancer. it teaches your immune cells to recognise tumors more effectively and to attack them. very your immune system could kill most kinds of cancer but often it can't keep up

. either the cancer is faster than the immune system or it can defend itself against. into being in scientists the testing the effectiveness of the vaccine therapy in fighting we're currently kenya. if for instance from the we believe the therapeutic vaccine could have a long lasting effect on the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or unit is with them stated. cancerous tumors form from the body's own tissue their cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the chuma without help. the proteins on the surface of human cells are altered and these are the target of the cancer fighting leukemia vaccine.

every vaccine is tailored to each individual patient because every chuma is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is searches themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue in that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells that battle the vaccine and the cancer cells. each dog represents a cell because that's the control group us and this is the vaccine response you see

up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research phase but another cancer immune therapy is already in news. special molecules or checkpoints on the surface of immune cells prevent them from attacking the body's own tissue. cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors removes the breaks the immune cells abandon able to fight humans. but the unleashed immune system doesn't just attack the cancer cells it also attacks healthy tissue that can lead to side effects like

joint problems and eczema. but it makes it possible to fight humans that were previously considered untreatable because you want a happy in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. human immunotherapy could be used to treat a wide range of tumors in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the fulfilling of cancer treatment. so this is where you do the infusion ferret pieces so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's quite novel approach we have mold for several years now that the patient in the same usually detects its own cancer or if immune system has

a control level. the control level. is kind of a break for the attack of the immune system so in this case it has a new direction but the controllers control that this infusion takes off the control for a period of time. so we kind of lose in the break and then his only move to texas on cancer. and you student of biotechnology so does it help in understanding the therapy and does it help you getting. yes it helps me to understand therapy but not like in a way that it helps you to cope with it it's more like. in the way that i can i'm feeling like i'm more than a scientists. involved in the whole treatment of the whole disease cancer and just the patient just being a patient so and when i'm here and i'm talking to

a woman after the therapy or before it's kind of nice to just to talk about my own design disease. patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call it that there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash like a little red dots there or something that authorities like. you are trying to support is a couple of those especially well i'm a bally. they just look. like a summit of limitation that it's not really. it's manageable. yeah there are some other. side effects that are more. severe but

now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect without tripping we have fact control of the immune system so all the control the new system has in it so we do loosen the system can overreact and. and i have a dial here and that's that's when he called and 3 months we couldn't continue treatment until we had solved the problem he had to adapt his diet and after what he wants he felt well and continued fortunately doing the time so triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from this therapy can you really heal the cancer we know from other forms of cancer which we use the treatment that patients are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as

a model of these patients thus far the cancer is not because we can find some evidence that he is in good shape you just finished his studies so yes good quality of life and cancer is controlled it's controlled so it's more like a chronic disease. i think if it's exactly that so we would say that we defeated the cancer since we find some evidence we're always afraid the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know how to hold long to continue the therapy could be for say very years we don't know we know from other patients that you can't stop for a while. another disease so we know there also was and so we had to wake of what 3 months and to not affect the results the positive result but for the long term we don't know it well but there are other therapies and colleges looking into. as. i was pretty skeptical about the whole thing i wasn't convinced they could help i

just thought i had nothing to live for. young is going to has breast cancer she's an outpatient at the teaching hospital in essen in the integrative medicine unit here she receives mainstream care in combination with complementary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit. it is always open to find a great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think natural path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain because be deployed during a course of chemotherapy. this could diminish today and more and more studies show that acupuncture really helps with

a range of side effects such as pain in the hands and feet nausea flushes hits of this has been thoroughly researched and we see it in our everyday clinical work which is into question clinicians. janish what is q my fair a p has caused her liver values to soar and has to be suspended until they come down doctor prescribes an abdominal compress as he has that's when we don't have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy it can also turn off. after 5 weeks the values have improved it's possible that not certain that it would have taken longer without the compress younus quite is worried that her tumor has grown during the break in treatment she's about to have an ultrasound. you know

it's been this way and i'm very nervous it's all or nothing now has the chemotherapy worked or not use it one day included looses the surgical clips where the cima was you remember that looks black now there is no tumor to be seen around the clip before it's gone it can't be seen using now most of these are normal healthy structures with new connector. growing so this is awful it's clear the tumor is gone but still there to accomplish. comedy and you know mike you know this man this is. so difficult for a stream of tears of joy are important to him oh my gosh these results are fantastic. in clinical terms we have completely stopped means there's no chuma we can hope for anything better. and you have to be really strong i think i have been . there were bad days but i feel like i got through them. before the

ultrasound younus quite a fear the tumor might have grown in fact the chemo had evidently already obliterated it. the complimentary therapies didn't target the cancer itself but were used to help deal with side effects and support the therapeutic process. i must say i just met today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the same patients usually just 5 for independent at this age their partners are soaps a good study with a good job so with a family and so in this phase of independency they get dependent on medicine on people like me so it's very difficult for them to integrate the business into a normal life especially with chronic diseases but i'm also very fascinated by these patients because they're also very mature more mature than their peers so

it's what makes it so special to treat young cancer patients while there are several aspects one of them also asserts and now have an amount of multitude of information available to just use to look into the internet what's available so we talk a lot of quantity of information that doesn't always mean quality so you will have to talk in-depth and explain what you are doing well and says quite confident quite witty he says that a doctor has to earn the trust of the patient is he right it's a little perky but it's honest and honest is the basis of a working patient doctor relationship since it's almost i can handle it. thanks so much for this very interesting talk and i have so many more questions to ask but now with the author sent me your questions by e-mail. on an upcoming show we'll be talking about alcohol it's consumed all over the world maybe in the form of wine and beer what effect does it have on the body sending your

questions to in good shape but d.-w. dot com just right alcohol in the subject line with looking forward to hearing from you. so right now after therapy how do you fear. later today or get tired. it's like. ok if somebody gets the diagnosis of cancer what's your advice for this patient yeah so i would say. try to depend on your families so what i say was all saying before supportive family in the beginning of the disease it's a venue can. be supported by your family and the latest they chose all when you get like any other disease not a diagnosis of just so thank you so much for sharing your story with us and we'll see each other again next week and until then let's all try to stay in good shape

and we'll have some astronaut is going to come it's got to.

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a chance to cut. even the case will see. results only training 6 months is many courses suitable. under chancellor young people in remote interest. to make a few meetings come true. evil 3030 minutes john dean. for. the world is getting worse and. more catastrophes among the problems. the global 3000 talks would seem british researchers who take a more optimistic view. the world is not always a good point but it's much much better than it was how. is the world really getting

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this award that the international community has to invest more on the education which can prevent young people to enter into that trap and of the forces. to separate mass shootings in the us have left at least 29 people dead the latest took place in dayton in the state of ohio on early sunday morning local time police say 9 people were killed when a gunman opened fire in a bar in the city center more than a dozen were injured a police patrol was nearby and fatally shot the suspected shooter. the 0.