tv Doc Film Deutsche Welle September 30, 2019 9:30am-10:00am CEST
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my choice is this card because given the way i told transcripts to troops. when it was my gosh mom much and i would. get up. finally leo has a new kidney. thanks to an organ donor he can live a normal life. the 1st it's a gift it's mine now i have to look after it properly. the way it's also over for maggie thanks to a donor she now has
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a new long. as fuck you not a single day goes by when i don't think of the dyna i feel like this soulless part of me is in the fucking moment by me at least. an organ transplant gave leo and maggie a 2nd chance at life we accompanied them for 4 years. to spring 2014 to 24 year old lay on hot dog looks like he's in perfect health but appearances can be deceiving. his kidneys have stopped working and that means his body isn't being detoxified he studies medicine in hamburg and is spending a year in paris he doesn't want to see illness to dominate his life.
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in the office and i did i'm vain enough to not want people to notice i'm sick and sometimes i'm my own worst enemy sometimes i get so exhausted i just can't keep going on about us blasting gun wasn't going to us work. for the last 8 years little has needed regular dialysis he's waiting for a new kidney until he gets one his quality of life is severely restricted. as a medical student he knows how long the wait for a transplant can be. in germany the number of people willing to donate their organs is in decline. i'm just like it wasn't supposed to take that long i was 16 when it all started i was told an organ would definitely be found by the time i left school but that came and went then i was told it would happen before my 1st medical school exam i'm still waiting. 3
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times a week he undergoes a 4 hour session to clean his blood it involves an overnight stay in the hospital. more. serious you know. it's a drag not to sleep at home in my own bed my own space and i'm attached to a machine that's pretty loud. but my life depends on that machine. and. the session lasts until 5 o'clock in the morning then later goes home and sleeps it off. 54 year old method hilton was fed is also waiting for an organ transplant. meggie as her friend's color has a genetic disorder that led to abnormal blood vessel formation in her lungs and caused life threatening damage.
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i live my life changed dramatically 4 years ago. i used to be a very active person i voted motorbike i was full of energy. and then i went into hospital and they said i had to give up work. i had to retire your dunking swage it is got worse from year to year. the former office clerk rarely gets to leave the house these days she has difficulty breathing and need supplemental oxygen her mother held of all spent says she's very brave. courage cheers us all out of that she's stronger than the rest of us and that helps us cope. it's here. to maggie and her
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partner close becca it feels like all they're doing is waiting for a donor. you have the government we have no quality of life was. going to we can't just go out for a pitts or to the pub for a beer or take a car trip and. we can't do anything so. we're stuck here and you were here 1st. maggie just wants to be able to enjoy life again. i'm from high school and the 1st i was constantly waiting for the phone to ring but i'm going to the high was scared of the surgery because i know it's no picnic but now i know that is what i need i want to see my son get married i want to be a grandma my dream is to ride my motorbike along lego much or to coach my men's dance troop my men are by look like. they're all just waiting for me to be well again of work. today maggie has to go to the hospital for
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a long function test every 2 weeks her father drives her to the routine check up. 00. for 6 minutes maggie has to walk as far as she can. if. she can't manage more than 4 metres it's obvious she's in desperate need of a new long obvious not swipe. at this right i don't think i can last like this for another 2 or 3 years so it's really shit given how much worse i've gotten just one yeah. i think don't think i'll need a new long in a couple of years for it's work. in the. back to paris. she. was even though. there was
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a girlfriend is visiting from hamburg he and danielle i met at the university she's also studying medicine there. his illness is a challenge. so it puts a heavy strain on the relationship. of his with and he whispers that you mustn't be selfish but it's hard when i 1st came to paris to see him i'd never been here before so of course the 1st thing i wanted to do was explore so i'd been looking forward to it in the city of love and he had the afternoon off but he'd been working in the hospital in the morning and when he came home he needed a nap and then it was 6 in the evening and time for his dialysis 6 well i. just needed to do that. but there's a glimmer of hope on the horizon the clinic has called to tell a while about a potential donor but it doesn't work out the donor organ goes to another recipient
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. wouldn't you keep telling yourself and don't know will be found it'll definitely happen and then when it doesn't it's a setback sometimes it's hard to stay positive and when the. summer 2014 5 a suitable donor has died maggie is finally getting a new long the transplant is a complicated procedure the takes over 6 hours. maggie is recovering well the risk now is that her immune system rejects the new organ. and revisit the greater comfort. to recall she and klaus are optimistic. thank you ocean the moment i came out of the blue we got a call in the morning from the doctors saying they had a donor. and if we came in straight away and she had surgery in the evening we were
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all on the edge of our seats but it went well for the over your birth we're just so happy because we just want to start living our lives again. autumn 2017 leo has a new kidney. because it was proving so hard to find a match his father donated a kidney. there was now 27 and enjoying life to the fullest. even daniella have taken a year off to travel. at the moment they're exploring the u.s. in a camper and. my life was always good it's just that i was very sick i didn't even realize how sick i was until i had a comparison then i realized what it's like when you can actually do everything you want to do like going to victor's does my homecoming was when i was very. before
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the transplant foreign travel was out of the question. sightseeing in san francisco a wander around chinatown in the past even short trips within europe were difficult . isn't well up a long time if we wanted to go on holiday in italy we had to plan every last detail i had have you had to make dialysis appointments everywhere and get in touch with doctors and send over reports it was always a massive undertaking. but i was all over. the difficulties of the last few years are long forgotten. if you can get. past the french if they are still attends regular checkups and also takes medicine but he's adjusted easily to his. you found freedom. i don't feel this is
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a normal life you forget that waiting for an organ donor is an exceptional situation once you have a new organ things can go back to normal but it's not like a huge explosion for some and for other. life has also gone back to normal the transplant was 3 years ago maggie is now 57. at one point her body began to reject the new law. but her doctors managed to get the problem under control with medication. when you really believe it will be all right then it will be when if i was determined to live dying just wasn't an option but the thought of my family having to grieve for me was terrible not the thought of dying.
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her parents say their faith in god helps them. i pray for mesh told every night and giving thanks for her health we mustn't ever take it for granted so is this. i guess. in. these days maggie lives with her parents she and klaus split up she says their relationship had been failing for a long time. but it was only after the transplant when she regained her health that she found the strength to ended and they. helped me. realize that it's not unusual for couples to split up after going through this experience. that was the best solution. when you know no one pod like to find a new partner but it's not easy. so i'm far. i
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like someone who shares my interests. as money should definitely have a motorbike. and he should like dancing to. coping with serious illness waiting for an organ transplant and daniela have been through a lot together. they're well aware of the toll such an experience can take on a relationship. if your life permanently hangs in the balance and that can start to become the bedrock of the relationship for stand of the so i went that's no longer any shadows your whole life i can imagine that you might realize. that was a very dependent relationship. and that's no longer what i want opinion with you
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most. performers ok. what. ever it is you have to cover. but when lael was sick daniela consider donating one of her own kidneys. this is 70 percent of us weekly was a viable option. but the couple had too many reservations. the 1st time that i think that if you had donated your kidney i might not of felt ok about it. nice cup it's good. it's good to have just to feel that. this is good i would have wondered if you felt this and you had to stay with me because this before that's been it was i'm missing my list yeah as i didn't like you anymore. there were no serious sign thanks for the skin of
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a diminished minister that means i'm the no no but you might not have wanted to stay with me but i would have felt you owed me about my device this was. the so that it was such a gift in that you were no longer free to make your own decisions. now that's true but i think i would have felt obliged to stay together because i want the good the relationship might be at the time you might feel differently when you get your life back and say sorry we no longer want the same things the way we used to see this to me from the one. who doesn't modify the. donation from a living person wasn't an option and make you scarce. winter 2018 making you started coaching her men's dance troupe again she's on her way to
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a performance. yes to my when i 1st went back i had to cry. it was so wonderful to be back. should the truth is that. the tension is mounting the group is on stage it's megastar next. i'm nervous. but it'll be alright if my. eyes do the lung transplant was worse than tad more painful. than her carnival performances over thinking is happy it's a times like these she's reminded she's only alive because someone else died. i think about that person i wonder if it was a man or
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a woman. i owed to my happiness. i'll never forget that. leo is visiting his father they haven't seen each other for 6 months. alexander is glad to see a son travelling and living his life. he rarely talks about the fact that 3 years ago he donated a kidney to leo. he has lost most of any for me it was just what i had to do to deal easier by the way i had to take you to dialysis it's very tight the time i come. home that's for the idea that it's a gift where you're already half mean for me i guess you can see it as a gift because most. think you've. got me but.
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it is a gift that's how a lot of people see it it's a nice description. but i see it in fairly flecked matic yes the images of the home it's not like i feel i have something all wrapped up with a bow inside me it's just part of me. that helps me get my head around it and hopefulness and this me off that he gets is almost going to went well you were the right age it's now you have to do what you have to do. you said it. was. not often a barrier. and when you lose a father alexander can still live a long and healthy life with one kidney because after his son had waited 9 years in vain for a new organ they decided alexander would be a living donor the thing was. i mean that's more. given than it would have been great if it could have worked out another way but it is what it is and he was
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starting to get worse and at some point you just need to decide. it was a pretty straightforward decision to ensure the time a come. yes you see so it's hard. for me. it's very frustrating for me to see that there's a steady decline in organ donors in germany and that the situation isn't improving at all and there's an immediate correlation between the number of people willing to donate an organ and the suffering of people who need one. doesn't know her organ donor. but she wanted to express her gratitude and wrote a letter to the family of the deceased for the german organ transplant foundation to pass on. to the family of my organ donor it's very hard to lose a loved one i'm but the person you lost gave me the best if you can give someone a smile. when i close my eyes and think of them i sometimes feel that they're with
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me does the i'm going home. why i must have been a very special person i am eternally grateful best wishes the recipient. brings tears to my eyes. i sent it to the foundation but if you days later i was informed that the family wasn't ready for such a letter. and if he hadn't did i'd like to see one day but the foundation should keep it for now that's something that's what they told me but now the letter can no longer be passed on and. data protection laws have been tightened spring 2018 maggie and her father are tinkering with her motorbike strangely enough she often feels especially close to her daughter when she's on the road. comfort's why my wife's i've been in very dicey situations one side rounded a corner and
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a cock came straight at me father for all of my downside i didn't bat an eyelid i just drove on and shook my head in disbelief at the terrible driver when. i knew someone was looking out for me there passed off of. ventura do you think it's ok that i ride a motorbike i enjoy it or stop but with my new lungs do you think i shouldn't or god. if you enjoy it and you're careful then i think it's ok. just as you ride a motorbike yourself i got my love of it from the us and out. we both like to tinker a bit when it's a hobby we share. some
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of this for. leo and daniela are also busy pursuing their hobbies rock climbing on the west coast of america. the couple want to enjoy life to the fullest it's their way of celebrating the life saving kidney transplant believing that we always want rock climbing we can't start worrying now you can just avoid all risk and live in suspended animation and to us that would mean we have no quality of life. they are always eager to make up for lost time but he doesn't have anything to prove to himself. as you might in fact i'm not competitive i don't go around comparing myself to people i'm great health i'm feeling bad about it i don't feel sick i do not go climbing with the thought at
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the back of my head that i'm sick and need to compare myself to others who are healthy. i like to see what normal people are capable of and see if i can do it 2. or 3 times too big. to come by my family get togethers with the latest addition to the family baby luisa maggie has become a grandma a dream has come true. but the bad news is that she had a fall and broke her arm. it's a nuisance i'd love to be riding my motorcycle but i can't just choose the women's side. everyone's out on the roads and i can't join them but still could be worse i might not be here at all. i just have to deal with that. was my.
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medication weakens her immune system so her broken arm wasn't operated on that means the healing process is slower. but maggie is as upbeat as ever. they know her time is precious transplanted lungs last an average of 8 years making is now 60 and has had hers for 4 years. it's by no means certain that she could survive another lung transplant. they're flat and i've resolved to live for a long time and i will watch for that i'm not worried. i met someone with a lung transplant in the rehabilitation clinic who's been living with one for 26 years so that's completely exceptional but it does happen i'm determined to grow
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old. that. if this is written if they are always well aware that is transplanted kidney won't last forever he doesn't think too far ahead for 9 years his life was touch and go he's learnt to be a realistic. fisherman . michelle i phone also i'm famous for it and i take things one step at a time and i set myself modest goals that are easy to achieve. so. so i'm tired so you have to manage the toxics set yourself your mother's ever stand out of the i'm disturbed no that's a strategy that works for me and i might. be
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for you don't feel to me that every match oh yeah i made a name i hate crazy. folks wanna noria flora and new day celebrate then you say. they think that rock n roll receiving is a. big rock is not that. they look tough but on a real. puff line is heavy metal clean. the city on g.w. . i was fishing when i arrived here i slept with 6
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people in a room. it was hard i was fair. i even got white hairs that. language hit me a lot this gets me and they tell us maybe to entrap this and say you want to know their story in the mud spur fighting and reliable information for migrants. the world unto itself. with its own gravitational pull john. the finest musical compositions. with some mysteries to reveal. don't believe that she was into them don't tell me that that she never wrote.
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