around the globe. in frozen to elsa is on a journey of her own called by spirits to the dark sea that lies beyond her kingdom into the unknown. for travellers in search of air and dell may not find the known many tourists and start austria have already seen every corner of the tiny town on you guessed it instagram. here up to date on the w. news thanks for watching. i was issued when i arrived here i slept with 6 people in a room similar it was hard i was fair. i even got white hair.

but jim language no not this gives me a little push me to in truckloads of say you want to know their story. it's her fighting and reliable information for margaret's. stories that move people for g.w. on facebook and twitter has cut a date and in touch. the 2. what his joy was extremely challenging as the doctors had predicted that he wouldn't survive the next 48 hours. when he was 5 i had a bicycle accident and he survived but had broken his neck today 13 years later caring for yasha is still an all consuming task for his parents.

sunday breakfast at the baron's family's home in castle germany it's a given that joshua sits at the table to he's almost completely paralyzed and needs artificial respiration but he still aware of everything happening around him has to look from do you feel like having a bread roll. ok in that case i'll put one aside for you before they're all gone. when you blinked his eyes it means yes braced eyebrows mean no. that's how you joins our conversations you like to participate and so we all communicate with you while doing things we always need to ask you things like now yes you're doing a great job you give very exact answers as to what you like and what you don't like

that's what of course sometimes i can get it wrong and you think oh no i really don't want this at all but then you're always very clear and moving your face or narrowing your eyes. as like that. and those are the nuances that we as a family are familiar with. and that signify something's not right and we need to ask you again. and. he can be off but do we usually get it right when we ask you something or. he said yes that was the ashes opinion on this. yes has cognitive skills have not been impacted but he can't breathe all swallow on his own and can only see well a close if. the tasks concerning yahshua scare are divided

amongst the family members his father marcos is responsible for us as food for instance today yes what like right bread and cold cuts. i just like your shades pretty much the same food that we all waited too long there is bread in the morning with a cold cuts or cheese. for lunch eats what we eat but prepared in a blender. and except for you it used to puree proved. using a tube the blended food lends directly and yes my stomach yes a scare is a full time job for the family taking about 40 to 50 hours a week sometimes it's even more when the cap herson who's usually with yasha around the clock can't come in. yes i was a regular healthy boy until the age of 5. that's when he had

a horrible bicycle accident he didn't see a beriah and broke his neck. it changed the family's life from one moment to the next. since i'm so this is one of the last photos where our world was still intact the high life the hospital and the. dealing with this was more than extreme as the doctors had predicted that he wouldn't survive the next 48 hours as those calls and so we had to deal with the concept of probably having to say goodbye to a little look at the 1st week we actually spent planning his funeral and then eileen. want to come down on 2 weeks later we were told that we should start with early rehab training wise because it was apparent that he was not doing what the doctors actually expected he didn't die with every leaving the became clear that he wanted to live on wanted to take this on the audio

and we faced the same question a challenge can we take this on this type of life and it was hard because we had no idea what was coming or what we were meant to do with how it would be a sign. for me function the worst thing for me was to not hear his voice anymore it was almost unbearable to imagine i would never be able to hear him speak again and i was scared that i might forget the sound of his voice back then there weren't many possibilities to fill my mobile phones and such and then do you remember we found an old film camera and when we played it we heard his voice and he said a load that your minds are definitely going though exactly when we have found a moment in time and we were so happy i was a friend of ours had filmed yasha at an exhibition the week before the accident and of all we had to feel i can still recall yes his voice to this day he's an excel file on. the.

small. it's really helpful even today to see it and to know that he's a patient modest person and a really lovable little rascal because instead of what's to be it and is here at the accident site sloping bicycle lane back then there were still several of these guard railings here i'm over here there was a guard railing here and then another one over there they were staggered to prevent cars from passing through it. all to be to come yes i hadn't seen the god railings and knocked his head against them they've been removed. i don't like coming here it really looks so harmless and yet it's the place that

changed life and ours to as a family. back home again to siena notices that there's a leak in the oxygen storage tank an empty tank would be life threatening to yasha . yes the displays already at red so even though it's sunday today we won't manage until tomorrow we urgently need new oxygen or before bring my forward. to tina is responsible for all organisational matters it's quite a lot. and i often notice that others next to me are already quite anxious and upset and i just don't have the time or strength for that i just realized that i need to keep calm and keep on functioning even if it's sunday and i just like to sit down and read something and relax for a moment instead i'm busy organizing it all for the c n luckily the new oxygen tank is delivered 2 hours late.

the next morning karen lee and yes father prepare him for school it can take up to an hour for example a brace that stabilizes yasha spotting needs to be fastened. to the. front. using a special machine yasha is then transferred from the bed to his wheelchair such equipment is expensive the cost is covered by health insurance.

at 18 yes it is now in his last year of school and school 2 he's always accompanied by a care person one of the most important tasks is regular saliva suction and always making sure that yahshua is ok in order for him to participate in class just like the other kids. in the 1st class is math teacher to almost try is teaching the students fractional arithmetic due to yes this impaired vision he needs to see the math problems up close. look we've got 11 caught here. and we had 4 in total for. your island under soviet dog yes the lens just like the other students did i will disturb the bigots but they were simply certain things to

consider to be paired the lessons a little bit differently about some of these are power example but this blackboard which is used to depict everything very clearly and vividly with a less roper's i'm childish printouts of. why isn't school his mother christina works in her own organization called intends founded by marcus and herself she advises other parents with children in need of intensive care despite caring for her own child nonstop working was important to christina who's trained and political but she's been criticized for this. stuff and he definitely but i think that some people don't understand my motivation why i'm active in this field which is also a part of my life but it was precisely that when i was merely an affected mom i often feel powerless helpless especially when things weren't going well and now working in this field to be able to look for solutions that really appeals to me not to use them and. why their mom is at work says this class and feed our busy in

the kitchen 10 year old class i can cook some dishes on her own. well the kids i know they don't actually cook themselves the parents always do his but i also cook sometimes when i'm back from school and make either mashed potatoes or noodles with tomato sauce and then i go up stairs and tell mom and the others that the food is ready. to shed. for the sisters it's normal to help out they don't feel disadvantaged through yasha. to hear the thoughts of. of course there are times when we can't do everything we want maybe we can't go out with friends because yeah she's just coming back from school or something like that. i think that's not different from other families with parents who aren't around all the time friends one for 3 hadn't been hardened enough is it doesn't and

our parents always make sure that we're treated equally of those i love every problem is a dress code and you to. think you can call that being disadvantaged all of this government from. coming up with. yes our returns from school plaid our shows her brother what she did in school today. to take a look it says butterfly workshop here. and we also had to write some stuff. so i think. it's worth it and in between we had to read some stories. in the evening the 3 siblings want to watch a serious together the family is currently thinking about whether yasha could move into an inclusive flat share after all he's of age now but everyone is still happy to have him around no matter the hardships.

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