breaking the 5 kilometer road world record after he crossed the hof why point of the rise in 15 minutes i tane both times op ed being official ratification. next is d w s reporter a look at some of the challenges faced by a family caring for their child with special needs there's more on our website w dot com and you can follow us on twitter or you news have a good. meter just shows a number of shows. certain ways to get. global

auto mobility show every week w. . what secrets lie behind. discover new adventures in 360 degree. and explore fascinating world heritage sites. world heritage 360 get the maps now. what is joy was extremely challenging as the doctors had predicted that he wouldn't survive the next 48 hours. when he was 5 i had a bicycle accident he survived but had broken his neck today 13 years later caring for yasha is still an all consuming task for his parents.

sunday breakfast at the baron's family's home in castle germany it's a given that joshua sits at the table to he's almost completely paralyzed and needs artificial respiration but he's still aware of everything happening around him. do you feel like having a bread roll. ok in that case i'll put one aside for you before they're all gone. when you blinked his eyes it means yes raced eyebrows mean no. that's how you joins our conversations you like to participate and so we all communicate with you while doing things we always need to ask you things like now yes you're doing

a great job you give very exact answers as to what you like and what you don't like that would of course sometimes i can get it wrong and you think oh no i really don't want this at all but then you're always very clear and moving your face or narrowing your eyes. as like that. and those are the nuances that we as a family are familiar with. and that signify something's not right and we need to ask you again. he can be off but do we usually get it right when we ask you something or. he said yes that was the ashes opinion on this. yes has cognitive skills have not been impacted but he can't breathe all swallow on his own and can only see well a close if. the tasks concerning yes just care are divided

amongst the family members his father marcos is responsible for us as food for instance today yes or what like right bread and cold cuts. they hash i just i just got your sheets pretty much the same food that we all eat so long there is bread in the morning with cold cuts or cheese. and for lunch eats what we eat but prepared in a blender. and except for you it used to puree proved. using a tube the blended food lends directly and yes a stomach yes a scare is a full time job for the family taking about 40 to 50 hours a week sometimes it's even more when the care person who is usually with yasha around the clock can't come in. yes i was a regular healthy boy until the age of 5. that's when he had

a horrible bicycle accident he didn't see of beriah and broke his neck. it changed the family's life from one moment to the next. since i mean this is one of the last photos where our world was still intact highlife the hospital gumbel's again while dealing with this was more than extreme as the doctors had predicted that he wouldn't survive the next 48 hours as those calls and so we had to deal with the concept of probably having to say goodbye to enter the world with a thank you the 1st week we actually spent planning his funeral with him and him. on the spot so i've often come to know on 2 weeks later we were told that we should start with early rehab training wise because it was apparent that he was not doing what the doctors actually expected he didn't die with every leaving it became clear that he wanted to live on wanted to take this on the going to when we faced the

same question a challenge can we take this on this type of life and it was hard because we had no idea what was coming nor what we were meant to do with how of being with us and what for me function the worst thing for me was to not hear his voice anymore it was almost unbearable to imagine i would never be able to hear him speak again and i was scared that i might forget the sound of his voice back then there weren't many possibilities to fill my mobile phones and such and then do you remember we found an old film camera and when we played it we heard his voice and he said a load that in my inside yet exactly when we have found a moment in time and we were so happy i was a friend of ours had filmed yasha at an exhibition the week before the accident and of all where to feel i can still recall yes his voice to this day he's an excel file on.

to snow. going to feel really helpful even today to see it and to know that he's a patient modest person and a really lovable little rascal on. the inside of what's to be at and is here at the accident site sloping bicycle lane back then there were still several of these guard railings here i'm over here there was a guard railing here and then another one over there they were staggered to prevent cars from passing through it. all to be to come yes i hadn't seen the god railings and knocked his head against them they've been removed. kynge danny i don't like coming here it really looks so harmless and yet it's the

place that changed as life and ours to as a family. back home again christina notices that there's a leak in the oxygen storage tank an empty tank would be life threatening to yasha . yes the displays already had read so even though it's sunday today we won't manage until tomorrow we urgently need new oxygen or be fondling my fellow. christina is responsible for all organizational matters it's quite a lot. and i often notice that others next to me are already quite anxious and upset and i just don't have the time or strength for that i just realize that i need to keep calm and keep on functioning even if it's sunday and i just like to sit down and read something and relax for a moment instead i'm busy organizing it all for this year luckily the new oxygen tank is delivered 2 hours late.

the next morning karen lee and yes father prepare him for school it can take up to an hour for example a brace that stabilizes yasha spotting needs to be fastened. from the floor. using a special machine yasha is then transferred from the bed to his wheelchair such equipment is expensive the cost is covered by health insurance.

at 18 yes he is now in his last year of school and school 2 he's always accompanied by a care person one of the most important tasks is regular saliva suction and always making sure that yahshua is ok in order for him to participate in class just like the other kids. in the 1st class is math teacher to almost try is teaching the students fraction of arithmetic due to yes this impaired vision he needs to see the math problems up close. look we've got 11 for here. and we had 4 in total for. you i got a lot of ideas for you to all of us a learns just like the other students do the opposite of the big of what we were

simply certain things to consider to be had the lessons a little bit differently about some of these are power example with this blackboard which is used to depict everything very clearly and vividly with less roper's i'm told this printouts of. why isn't school his mother christina works in her own organization called interns if they haven't found it by marcus and herself she advises other parents with children in need of intensive care despite caring for her own child nonstop working was important to kristina who's trained and. but she's been criticized for this. stuff and you definitely don't but i think that some people don't understand my motivation why i'm active in this field which is also a part of my life but it was precisely that when i was merely an affected mom i often feel powerless helpless especially when things weren't going well and now working in this field to be able to look for solutions that really appeals to me not who's them and. why their mom is at work says this class and feed our busy in the kitchen

10 year old class i can cook some dishes on her own. as. well the kids i know they don't actually cook themselves the parents always do but i also cook sometimes when i'm back from school and make other mashed potatoes or noodles with tomato sauce and then i go upstairs and tell mom and the others that the food is ready. for the sisters it's normal to help out they don't feel disadvantaged through yasha. to shift of thought both. of course there are times when we can't do everything we want maybe we can't go out with friends because yeah she's just coming back from school or something like that . and i think that's not different from other families with parents who aren't around all the time rich friends one for 3 of it and hardened my physio diven or

and our parents always make sure that we're treated equally of the ilo every problem is a dress code and you to. think you can call that being disadvantaged all of this government from. coming up the pressure. yes our returns from school plaid our shows her brother what she did in school today. to look at says butterfly workshop here. and we also had to write some stuff. off. the surface and in between we had to read some stories. in the evening the 3 siblings one to watch a sears together the family is currently thinking about whether yasha could move into an inclusive flat share after all he's of age now but everyone is still happy to have him around no matter the hardships.

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