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tv   Reporter  Deutsche Welle  January 13, 2020 7:45am-8:00am CET

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sunday breakfast at the baron's family's home in castle germany it's a given that joshua sits at the table too he's almost completely paralyzed and needs artificial respiration but he's still aware of everything happening around him has to look fun do you feel like having a bread roll. ok in that case i'll put one aside for you before they're all gone you become stuck when you blinked his eyes that means yes raised eyebrows mean no. that's how you joins our conversations you like to participate and so we all communicate with you while doing things we always need to ask you things like now yes you're doing a great job you give very exact answers as to what you like and what you don't like that way but of course sometimes i can get it wrong and you think oh no i really don't want this at all but then you're always very clear and moving your face or
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narrowing your eyes. as like that. and those are the nuances that we as a family are familiar with. and that signify something's not right and we need to ask you again. before. do we usually get it right when we ask you something or. he said yes that was the ashes opinion on this. cognitive skills have not been impacted but he can't breathe all swallow on his own and can only see well a close. the tasks concerning yahshua scare are divided amongst the family members his father marcos is responsible for us as food for instance today yes what like right bread and cold cuts.
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they actually just i just like your shades pretty much the same food that we all eat. there is bread in the morning with cold cuts or cheese. and for lunch eats what we eat but prepared in a blender and it's appropriate to use your pureed food. using a tube the blended food lends directly and yes a stomach yes a scare is a full time job for the family taking about 40 to 50 i was weak sometimes it's even more when the care person who's usually with yasha around the clock can't come in. yes i was a regular healthy boy until the age of 5. that's when he had a horrible bicycle accident he didn't see of beriah and broke his neck. it changed the family's life from one moment to the next. so thanks this is
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one of the last photos where our world was still intact my life. so going well dealing with this was more than extreme as the doctors had predicted that he wouldn't survive the next 48 hours as i still was on the so we had to deal with the concept of probably having to say goodbye to him a little but that's ok the 1st week we actually spent planning his funeral and i mean. on yes that's why i've come to know 2 weeks later we were told that we should start with early rehab training wise because it was apparent that he was not doing what the doctors actually expected he didn't die. i think it became clear that he wanted to live one wanted to take this on. and we faced the same question a challenge can we take this this type of life and it was hard because we had no idea what was coming or what we were meant to do how it would be in your sign.
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for me function the worst thing for me was to not hear his voice anymore it was almost unbearable to imagine i would never be able to hear him speak again and i was scared that i might forget the sound of his voice back then there weren't many possibilities to film mobile phones and such and then do you remember we found an old film camera and when we played it we heard his voice when he said a load that your minds are there exactly when we had found a moment in time and we were so happy i was a friend of ours had filmed yasha at an exhibition the week before the accident and it will feel i can still recall yes his voice to this day he's an excel file on. it's not. going to feel it's really helpful even today to see it and to know
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that he's a patient modest person and a really lovable little rascal on. the inside of courts to see novak not be it and is here at the accident site sloping bicycle lane back then there was still several of these guard railings here i'm over here there was a guard railing here and then another one over there they were staggered to prevent cars from passing through. all 2 of the 200 come yes i hadn't seen the god railings and knocked his head against them they've been removed. kynge county here i don't like coming here it really looks so harmless and yet it's the place that changed as life and ours to as a family. back home again to
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stina notices that there's a leak in the oxygen storage tank an empty tank would be life threatening to yasha . yes the displays already had read so even though it's sunday today we won't manage until tomorrow we urgently need new oxygen on the fondling of my flower. tina is responsible for all organizational matters it's quite a lot. and i often notice that others next to me are already quite anxious and upset and i just don't have the time or strength for that i just realize that i need to keep calm and keep on functioning even if it's sunday and i just like to sit down and read something and relax for a moment instead i'm busy organizing it all for the c.m. luckily the new oxygen tank is delivered 2 hours late. the next morning karen lee and yes father prepare him for school it can take up to
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an hour for example a brace that stabilizes yasha spidy needs to be fastened. from the floor. using a special machine yasha is then transferred from the bed to his wheelchair such equipment is expensive the cost is covered by health insurance.
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at 18 yes he is now in his last year of school and school 2 he's always accompanied by a care person one of the most important tasks is regular saliva suction and always making sure that yahshua is ok in order for him to participate in class just like the other kids. the 1st class is math teacher to almost try it's teaching the students fractionate over with meticulous due to yes impaired vision he needs to see the math problems up close. look we've got one quarter here. and we had 4 in total for. you i got a lot of ideas will be about yes she learns just like the other students do not and will disturb the bigots a bit when they were simply in certain things to consider to prepare the lessons a little bit differently for sure there's a power example with this blackboard which is used to depict everything very clearly and vividly with a less robust i'm told it's been doubtful. why isn't school his mother christina
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works and her own organization called interns if they haven't found that by markus and herself she advises other parents with children in need of intensive care despite caring for her own child nonstop working was important to christina who's trained in political care but she's been criticized for this. and stopped making efforts to go but i think that some people don't understand my motivation why i'm active in this field which is also a part of my life but it was precisely that when i was merely an affected mom i often feel powerless helpless especially when things weren't going well and now working in this field to be able to look for solutions that really appeals to me not lose them and. why their mom is at work sister's claverton feet of busy in the kitchen 10 year old glad i can cook some dishes on her own.
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well the kids i know they don't actually cook themselves the parents always do his but i also cook sometimes when i'm back from school and make either mashed potatoes or noodles with tomato sauce and then i go up stairs and tell mom and the others that the food is ready to fight. for the sisters it's normal to help out they don't feel disadvantaged through yasha. to shift of thought mind of course there are times when we can't do everything we want maybe we can't go out with friends because yeah she's just coming back from school or something like that. and i think that's not different from other families with parents who aren't around all the time. on 50 of. him of his it doesn't and our parents always make sure that we're treated equally of the ilo every problem is a dress code and you to. think you can call that being disadvantaged all of this
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government from the. commune occupation. yes our returns from school class shows her brother what she did in school today. which kids look at says butterfly workshop here. and we also had to write some stuff. that's written and in between we had to read some stories. in the evening the 3 siblings want to watch a sears together the family is currently thinking about whether yasha could move into an inclusive flat share after all he's of age now but everyone is still happy to have him around no matter the hardships.
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the way it is that after all. why are some saying. how can the best harness their images. why do we find the sounds of blames someone might say the traffic analysis 1st. place thanks to. 30 minutes on w. .
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in the us of climate change. the islamists are. much instant. cod one day years today and the further future of. g.w. dot com africa megacity the making it. could turn. every 2 seconds a person is forced to flee their homes nearly 71000000 people have been forcibly displaced the consequences come into sastra some were dumped. serious displaced depicts dramatic humanitarian crises around the world you know. look at thing you
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know he said i didn't go to university to kill people. or to have my boss come to me and tell me to kill someone to get him and if i don't they'll kill me. people feel for their lives and their future so they seek refuge abroad but what will become of the person who stayed behind and simply people my husband went to peru because of the crisis that i'm going to that if he hadn't gone there we would have died of hunger the knowledge down the baptist church church to st. joe.
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this is the the abuse live from burlesque tensions mounting in iran as protests they are up for a 2nd stack over the downing of ukrainian passenger jets demonstrators accuse the regime of lying about its role also coming up. on alert in the philippines a volcano near monella appears to be on the verge of a major option is feeling gas a lot.

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