sunday breakfast at the baron's family's home in castle germany it's a given that joshua sits at the table or 2 he's almost completely paralyzed and needs artificial respiration but he's still aware of everything happening around him has to look from do you feel like having a bread roll. ok in that case i'll put one aside for you before they're all gone if you start when you blinked his eyes it means yes raised eyebrows mean no. that's how you joins our conversations you like to participate and so we all communicate with you while doing things we always need to ask you things like now yes you're doing a great job you give very exact answers as to what you like and what you don't like that way but of course sometimes i can get it wrong and you think oh no i really don't want this at all but then you're always very clear and moving your face or

narrow in your eyes the thought it would pass like that. and those are the nuances that we as a family are familiar with. and that signify something's not right and we need to ask you again. and. often do we usually get it right when we ask you something or. he said yes that was the ashes opinion on this. cognitive skills have not been impacted but he can't breathe all swallow on his own and can only see well a close. the tasks concerning yes this care are divided amongst the family members his father marcos is responsible for us as food for instance today yes what like right bread and cold cuts.

they shouted i just got your sheets pretty much the same food that we all eat. there is bread in the morning with cold cuts or cheese. and for lunch eats what we eat but prepared in a blender and except for you it used to pureed through. using a tube the blended food lends directly and yes a stomach yes a scare is a full time job for the family taking about 40 to 50 i was a week sometimes it's even more when the care person who's usually with us show around the clock can't come in. yes i was a regular healthy boy until the age of 5. that's when he had a horrible bicycle accident he didn't see of beriah and broke his neck. it changed the family's life from one moment to the next. since i think this is

one of the last photos where our world was still intact and highlight the horse photo and the. dealing with this was more than extreme as the doctors had predicted that he wouldn't survive the next 48 hours as those calls and so we had to deal with the concept of probably having to say goodbye to him a little but that's ok the 1st week we actually spent planning his funeral and i leaned. on to come down on 2 weeks later we were told that we should start with early rehab training wise because it was apparent that he was not doing what the doctors actually expected he didn't die. ok leaving it became clear that he wanted to live one wanted to take this on. and we faced the same question a challenge can we take this this type of life and it was hard because we had no idea what was coming or what we were meant to do how it would be.

for me the worst thing for me was to not hear his voice anymore it was almost unbearable to imagine i would never be able to hear him speak again and i was scared that i might forget the sound of his voice back then there weren't many possibilities to film mobile phones and such and then do you remember we found an old film camera and when we played it we heard his voice when he said hello there your minds are there exactly when we had found a moment in time and we were so happy i was a friend of ours had filmed yasha at an exhibition the week before the accident and i will feel i can still recall yes his voice to this day is an account. that. it's not. going to feel it's really helpful even today to see it and to know

that he's a patient modest person and a really lovable little rascal and because i didn't have the thoughts to be it and is here at the accident site sloping bicycle lane back then there were still several of these guard railings here i'm over here there was a guard railing here and then another one over there they were staggered to prevent cars from passing through it. all to a bit of fun yes i hadn't seen the guard railings and knocked his head against them they've been removed. kynge county here i don't like coming here it really looks so harmless and yet it's the place that changed life and ours to as a family. back home again to

siena notices that there's a leak in the oxygen storage tank an empty tank would be life threatening to yasha . yes the displays already have read so even though it's sunday today we won't manage until tomorrow we urgently need new oxygen or the fondling of my fellow. to tina is responsible for all organisational matters it's quite a lot. and i often notice that others next to me are already quite anxious and upset and i just don't have the time or strength for that i just realized that i need to keep calm and keep on functioning even if it's sunday and i just like to sit down and read something and relax for a moment instead i'm busy organizing it all for us here luckily the new oxygen tank is delivered 2 hours later. the next morning karen lee and yes father prepare him for school it can take up to

an hour for example a brace that stabilizes yasha spidy needs to be fastened. from the front. using a special machine yasha is then transferred from the bed to his wheelchair such equipment is expensive the cost is covered by health insurance.

at 18 yes it is now in his last year of school and school 2 he's always accompanied by a care person one of the most important tasks is regular saliva suction and always making sure that yahshua is ok in order for him to participate in class just like the other kids. the 1st class is math teacher to almost try is teaching the students fraction of a risk meting due to yes impaired vision he needs to see the math problems up close . look we've got 11 course here. and we had 4 in total as i got you i got a lot of ideas over the dog yes she learns just like the other students did i will disturb the bigots but there are simply certain things to consider to prepare the lessons a little bit differently about some of these are power example with this blackboard which is used to depict everything very clearly and vividly with a list. of why isn't school his mother christina works in her own

organization called interns the flame founded by marcus and herself she advises other parents with children in need of intensive care despite caring for her own shot non stop working was important to christina who's trained and. but she's been criticized for this. and stop making efforts to go but i think that some people don't understand my motivation why i'm active in this field which is also a part of my life but it was precisely that when i was merely an affected mom i often feel powerless helpless especially when things weren't going well and now working in this field to be able to look for solutions that really appeals to me not lose them and. why their mom is at work says this class and feed of busy in the kitchen 10 year old glad i can cook some dishes on her own.

well the kids i know they don't actually cook themselves the parents always do but i also cook sometimes when i'm back from school and make either mashed potatoes or noodles with tomato sauce and then i go up stairs and tell mom and the others that the food is ready to fight. for the sisters it's normal to help out they don't feel disadvantaged through yasha. too little for thought us. of course there are times when we can't do everything we want maybe we can't go out with friends because yeah she's just coming back from school or something like that . that's when i think that's not different from other families with parents who aren't around all the time friends one for. it and harden my physio doesn't one our parents always make sure that we're treated equally off the island every problem is a dress code and. so i don't think you can call that being disadvantaged at all of

this government from. coming up the pressure. yes our returns from school plaid our shows her brother what she did in school today. actually look what it says butterfly workshop here. and we also had to write some stuff. so i think. it's worth it and in between we had to read some stories. in the evening the 3 siblings want to watch a serious together the family is currently thinking about whether yasha could move into an inclusive flat share after all he's of age now but everyone is still happy to have him around no matter the hardships.

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is give you news live from for alleged tensions mounting in iraq this protest are up for a 2nd day now over the downing of a ukrainian passenger jet liner demonstrators accusing the regime of covering up its role also coming up. on alert in the philippines a volcano near manila appears to be on the verge of a major roxanne's fearing gas a lot right now thousands of them forced to flee more from our correspondent.