Skip to main content

tv   In Good Shape  Deutsche Welle  May 23, 2020 7:30pm-8:01pm CEST

7:30 pm
expedition into the world. 60 minutes d.w. . every journey begins with the 1st step and every language but the 1st word published in the book. rico is in germany to learn german and why not with him it's simple online on your mobile and free shop d w z e learning course nikos fake german made. hello and welcome to in good shape it's summer time in berlin but today's show is not about ice cream it's about cancer but don't be afraid.
7:31 pm
the life will. be in good shape meats and so lot in town hot learmonth and so i was just 30 but he's already been fighting cancer for 16 years. is this doctor put the sherry tell you no versity hospital in berlin. i'm a quest hold my son patients managed to interpret such a terrible diagnosis i counsel it into their lives and to leave a quite normal life. when you are young they are a lot of things in your agenda for your 1st job and your very 1st own apartments but when you're diagnosed with cancer everything's on hold your whole life needs to be reorganized. finished that's. the worst part for me was not knowing if. that if i was going to get. all desired
7:32 pm
thought i would. and we as a concern was some how long will it all take the lying about us council on one body when our life be able to lead a normal life again and put it behind me when will i be able to forget it. right i guess and can't let my doubts come. over a 1000000 young adults develop cancer every year catarina is 26 years old in 2018 a gene mutation caused her to develop breast cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. and purest compliment i thought if i'm unlucky i'll never be healthy again and if i'm unlucky all dying before i get my college degree before i can become a teacher before i can have a family and i didn't want that so i said to myself i have to do everything possible to make sure that doesn't happen that's just. catarina had been looking
7:33 pm
forward to qualifying as a teacher and starting work but it wasn't school that she went to every day it was the clinic. found it was an incredibly dramatic experience for me being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. deana listener knows the problems that young cancer patients face the oncologist at berlin's sharia to a hospital also works for the german foundation for young adults with cancer the organization helps those affected and is committed to helping raise public awareness. missing belonging to we have to take into account fertility issues we also have to factor in that young patients might not stick to the treatment program because they simply don't want to go to the clinic every 3 weeks . we have to keep explaining to them that they need to follow the treatment
7:34 pm
schedule which has to be very strict. something that presents a big challenge for the medical team as well. you know also suffers from a metabolic disorder which forces her to keep her arms and legs covered but she's determined not to be defeated she's also helped by her work at the foundation for young adults with cancer. and their minds and they could but i think it gives me so much. on the one hand thanks to be exchange with other patients. that's one of my best head and also just because we have a lot of fun together we don't feel that cancer dominates our lives. and if we can get together and laugh about it. can. concertina chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced many of us i mean us with the sisters. in my case the men who pulls
7:35 pm
resulted in a complete loss of libido. it has a very negative effect on your sexuality there is just so many side effects that can mess it up. i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and that just doesn't work nothing works. katarina would like to have children but the treatment can damage the ovaries she's had her eggs frozen to use later in spite of the uncertainty she hasn't lost her love of life the tumor is gone she's going to teach and she's making plans even though she knows the cancer could come back for me i feel that i've become much stronger in many ways. i somehow feel my grown up even though i've been thrown back a few steps in a way i'm a bit like a child again because i need people's help. but ultimately i feel moment you're
7:36 pm
stronger and i know that there are more important things in life than all the little things that used to get me upset me thinking and didn't get so much a credit card to understand after they cut i'm going to meet the burden should be t. hi thanks for meeting me today and you're a cancer patient actually so you develop cancer when you have 14 years old and dr no you are 13 and you still have liver cancer so how do you feel today if you were a really great actually a soul and not like. thinking about the lodge every day it's want. kamandi every minute or demanding every minute every 2nd of my day i'm aware of a lot of the disease and i'm coping with it it's not like it's. it's controlling my life it's not controlling your life i mean it's more than half of your life it's a lead 60 years you are a cancer patient so how was it for the 1st time the doctors were telling your the
7:37 pm
diagnosis. actually it was because between the diagnosis or the. suspicion for the 1st the 1st signs that have to be cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the surgery of the surgeon come come can come to me and said it went well we got everything out so and then it was like that that states that we have to know what to talk about again and like after 234 days they came to me came to me again and they said we have fallen. in. lymph nodes can't. cells it's very devastating i mean this is disappointing to get you think you were cured and then they told you that the disease is still going and then this was not the only time you were realized that this disease was ongoing that it was part of
7:38 pm
all the years that yes it has so on like in total. 666 times. $6.00 to $6.00 times including the original one and. yeah it was like. there was the easier ones that got you got that got to take i got taking all that with me massage really took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. before the surgery and he said. we try our best and we if we don't get out of here you know if we close you up and so on in this well the 2 times i was really. not scared in the kitchen in the classical a way it was me that was more way off. feeling lost and more like.
7:39 pm
yeah i saw and now it's the 1st time i receiving. the out drug therapy with mats and not getting cut open. much a surgical therapy even here. and it's it's it's like it's a good it's good thing. but it comes with its own set of problems but in all those 16 use of this diagnosis of this disease and you still living your life i mean you're doing punk rock you're kind of a buddhist yeah so how does it help you you know. i am more like light. the whole mentality of punk walk so like beings have to plan them. freedom loving and. it's all can be transferred into the coping with the disease you know like being dependent so i don't give in
7:40 pm
like i'm blind for everything i question things i want to know what's happening i want that the doctor is. is like working with me and not working on me. and freedom loving me not really free when i'm dead i can feel your spirit and it's very late thing for me to hear this but. i'm a father myself of good to girls and for me as a parent. it would be a catastrophe to learn that my child has cancer so even if you're a buddhist even if you do punk rock him how did your parents react to the diagnosis my parents were. this rule nobody cries if i'm not crying so when my parents who are bad in the hospital and it was really it was more more life positives and then life negative you know light life and inject this one
7:41 pm
almost more life a life demanding like who wants our life and our normal patterns are as closely as it is get as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldn't imagine for in the fix you're coping with this disease so this is the reason why subconsciously i invented or i put out this rule let's continue this talking just a moment because you have to get therapy we're not in a park here we sitting at the shelly t.m. glynn and he's going to get you know therapy so what this immunotherapy. a vaccine that helps fight cancer. teaches your immune cells to recognize tumors more effectively and to attack them. with
7:42 pm
mood disturbances very your immune system could kill most kinds of cancer but often it can't keep up. either the cancer is faster than the immune system or it can defend itself against the old into being in scientists are testing the effectiveness of the vaccine therapy in fighting we're currently kenya for springs from. we believe the therapeutic vaccine could have a long lasting effect in the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or you and his wits from space. cancerous tumors form from the body's own tissue their cells look almost exactly like healthy ones making it hard for the immune system to identify them that's why immune cells can't fight the cumin without help. the proteins on the surface of human cells are
7:43 pm
altered and these are the target of the cancer fighting leukemia vaccine. every vaccine is tailored to each individual patient because every chuma is different. one advantage of vaccines that target cancer cells is that they don't have serious side effects. there is such as themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue and that way they can identify the specific changes taking place in the leukemia cells. the test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells that battle the vaccine and the cancer cells. each dot
7:44 pm
represents a cell because that's the control group. and this is the vaccine response you see up here there are a lot more cells than there were before. the results so far indicate a regular vaccine response in the blood of patients we've been treating and. this therapeutic vaccine is still in the research phase but another cancer immune therapy is already in news. special molecules all checkpoints on the surface of immune cells prevent them from attacking the body's own tissue cancer cells protect themselves from the immune system by reinforcing this breaking effect. but new drugs called checkpoint inhibitors remove the breaks the immune cells abandon able to find human. but the unleashed immune system doesn't just attack
7:45 pm
the cancer cells it also attacks healthy tissue that can lead to side effects like joint problems and eczema. but it makes it possible to fight she moves that were previously considered untreatable. toppy in the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. urine immunotherapy could be used to treat a wide range of cime and in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of cancer treatment. so this is where you do the infusion therapies so what's inside this container this is the foremost. immunotherapy and what does it do in the system it's quite novel
7:46 pm
approach we have mold for several years now that the patient immune the same usually detect its own cancer or the immune system has a control level. the control level. is kind of a break for the attack of the immune system so in this case it has immune reaction but the controllers control that this infusion takes off the control for a period of time. so we kind of lose in the break and then has only moved to texas on cancer. and your student of biotechnology so does it help in understanding the therapy and does it help you get. yes it helps me to understand therapy but not like in a way that it helps you to cope with it it's more like. in the way that i can i'm feeling like i'm more than a scientist and involved in the whole treatment of the whole disease
7:47 pm
cancer and just the patient just being a patient so and when i'm here and i'm talking to a woman after the therapy or before it's kind of nice to just talk about my own desire disease. patient rather than talking about the whole spectrum of cancer treatment so what about it brings me to the side effects i mean you would call them if there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash like little red dots or something that authorities like. you are trying to support is a couple of those especially well i'm a bally. they just look. like a summit of limitation that it's not really. it's manageable. here
7:48 pm
there are some other. side effects that are more. severe but now i don't i just don't have them so what kind of side effects can you expect and what's the danger of. effect was our trip and we're fact control of the immune system so the control that immune system has in its health so we do loose and display immune systems can overreact and that's where the very severe and or called itis was having diarrhea and that that's when he called and for about 3 months we couldn't continue treatment until we had solved the problem he had to adapt his diet and after about 3 months he felt well and continued fortunately doing the time so triple was the disease was already controlled so it didn't affect the whole result and what is there to gain from this therapy can you really heal the cancer we know from other forms of cancer and which we use this treatment that patients
7:49 pm
are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as a model of these patients thus far the cancer is not to be curt we can find some evidence that he is in good shape just finished his studies so yes good quality of life and cancer is controlled it's controlled so it's more like a chronic disease. i think if back to that so we can say that we defeated the cancer since we've find some evidence we're always afraid that the cancer might we curve but so far of for the past like 12 months it's completely stable and he has no symptoms so you don't really know whole whole long to continue the therapy could be false a very years we don't know yet we know from other patients that you can't stop for a while like another disease so we know that also was and so we had the wake of what 3 months and it did not affect the results the positive result but for the
7:50 pm
long term we don't know it well but there are other therapies and colleges looking into. as. i was pretty skeptical about the whole thing i wasn't convinced they could help i just thought i had nothing to lose. yanis y. to has breast cancer she's an outpatient up the cane am teaching hospital in essen in the integrative medicine unit here she receives mainstream care in combination with complementary therapies mainly to address symptoms and side effects doctors have been a further help set up the unit. it is always open sets and great fan of integrative medicine in general i think conventional medicine has its place and is important but i also think that your path medicine has a great deal to offer and it's wonderful to be able to make that available to cancer patients as well. acupuncture is used here to help deal with pain we can be deployed during
7:51 pm
a course of chemotherapy. this could diminish wouldn't more and more studies show that acupuncture really helps with a range of side effects such as pain in the hands and feet nausea flushes hits of this has been thoroughly researched and we see it in our everyday clinical work which is insufficient. yanis avoiders chemotherapy has caused her liver values to soar and has to be suspended until they come down doctor prescribes an abdominal compress as he has that's when we don't have to just wait and see if the body deals with the problem while we pause the therapy we can actively support the process. we know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy and it can also turn off. after 5 weeks the values have improved
7:52 pm
it's possible they're not certain that it would have taken longer without the compress younus why it is worried that her tumor has grown during the break in treatment she's about to have an ultrasound. you know i mean it's when i'm very nervous it's. all or nothing now has the chemotherapy worked or not his equal and included to loose is the surgical clips where the tumor was you remember that looks black now there is no tumor to be seen around the clip as it's gone it can't be seen for years and know most of these are normal healthy structures with new connective tissue growing so this is awful it's clear the tumor is gone what's dinner to accomplish this coming didn't get no mark you know this month or so this is. true for h.d. all tears of joy are important to him oh my gosh these results are fantastic. in clinical terms we have complete remission stop means there's no tumor we can hope
7:53 pm
for anything better. and you have to be really strong i think i have been. there were bad days but i feel like i got through them. before the ultrasound younus quite a fear the tumor might have grown in fact the chemo had evidently already obliterated it. the complementary therapies didn't target the cancer itself but were used to help her deal with side effects and support the therapeutic process. i must say i just met today and i'm very fascinated how he's coping with this diagnosis cancer is the usual approach of young patients it's a very special situation for the same patients usually just for independent at this age so the partners are soaps good studies a good job so the family. in this phase of independence is a good dependent on medicine on people like me so it's very difficult for them to
7:54 pm
integrate the disease into a normal life especially with chronic diseases but i'm also very fascinated by these patients because also very mature more mature than their peers so what makes this so special to treat young cancer patients well there are several aspects one of them also is certain now have an amount of multitude of informations available just use to look into the internet what's available so we talk a lot they have a quantity of information that doesn't always mean quality so you will have to talk in-depth and explain what you are doing well and says quite confidently quite witty he says that doctor has to earn the trust of the patient is he right it's a little perky but it's honest and honest this is the basis of a working patient doctor relationship since it's honest i can handle it thanks so much for this very interesting talk and i have so many more chris. to ask but now it's your turn sent me your questions by e-mail. on an upcoming
7:55 pm
show we'll be talking about alcohol it's consumed all over the world mainly in the form of wine and beer what effect does it have on the body send in your questions to in good shape but d.-w. dot com just write out a hole in the subject line we're looking forward to hearing from you. so right now after therapy how do you fear. later today or gets tired. it's like. carrots ok if somebody gets a diagnosis of cancer what's your advice for this patient yeah so i would say. try to depend on the families so what i say was all saying before supportive family in the beginning of the disease it's a value can. be supported by your family and the latest date shows all when you get
7:56 pm
like a mother does and i'm not a god also so far so good thank you so much for sharing your story with us and we'll see each other again next week and until then let's all try to stay in good shape and we'll have some ice cream no yes because it's got a. few .
7:57 pm
weeks living be essential for the well being of their progeny. to take with other. most of them can. feel pain and another human nor animal. trees. join scientists on an exciting expedition into the world of
7:58 pm
trees. to. get through the gates on w. . it's a deadly sin. and a basic human trait. is drives us. and threatens to destroy us. agree. in part one. for humans created by nature gives me something that mark. green a fatal desire. in 75 minutes on d w. o. we know that this is a scary time for the coronavirus is changing the world changing our lives so please take care of yourself keep your distance and wash your hands if you can
7:59 pm
stay at how we're d.w.b. for here for you we are working tirelessly to keep you informed on all of our platforms we're all in this is getting on together making sure to. stay safe everybody stacey stacey newman stay safe to freeze and stay safe. like. oh. my god says i was the seed for the russian soul comes straight from the sun. but. there are so many children. absolutely. and oddly troy but all of that comes straight from the heart.
8:00 pm
of the russian internet attorney today starts june 18th on g.w. . live from berlin this is think of a lean news pleasure and protest in spying as the country begins to ease one of the world's toughest lock downs there are smiles from some tango from of us to feel the handling of the pandemic has the economy also coming up. with a difference a year of mix from bahasa one bustling $29.00 taking to ghostly streets in 2020 bangladesh is just one of many muslim countries preparing for
8:01 pm
a very unusual feat thanks to the pandemic. and i went well but.

20 Views

info Stream Only

Uploaded by TV Archive on