abuse such a painful cramps, and yet no one took her seriously, not her doctors of the people around her. she doesn't want others to have to go through what she did. or if she is a 20 is only for them, bearable pain. my period only ways meant painting less minutes. kevin, the accusation of a hysterical woman patronize in infuriating naturally comes of course it's unacceptable that up to a few years ago, most people didn't even know what engine, how to use a medium sized box that's fighting for recognition and the life that's about more than chronic pain, the for 20 years, priscilla f e to could not figure out what was wrong, why she was in such pain even though people around her couldn't tell. somehow she kept functioning as a nurse as a pot and a mother. and as

a friend who enjoyed going out for the longest time, she thought it was her story aspect of the stomach pain. she to talk to stress or concern go home. i come to now. and so when you grow up as a woman, it's normal to have period from like from the height. is it like you come to some of these? and since most, don't as a man, does it take to him to have a lot of empathy for that? because they just say you're a woman, that's just the way it is. the way it's always be the exam on exam. when i started getting to the bottom of my pain, i asked the people around me and realized it walter normal to have such terrible pain during my period. it looks like himself. it's cuz you can most others. yeah. i started asking question himself because i'm learning more about what i could do to make my day today more bearable. well, i mean, your hair moves your kitchen, you up. so she 6, she learned that the pain she had into your for years had an entire the different

cools than she thought it was. and during me, 3 years has a chronic inflammatory disease, cheap and guessing through it with pain colors. okay, cuz i thought it was good. she had some damage caused the time, went on, i kept taking strong painkillers at one point that simply wasn't enough anymore. and now the talk being diagnosed with endometriosis, i am slowly understanding why i feel so bad and i'm learning how to deal with symptoms of the via period pain is one telltale symptom is the systemic disease. others include heavy period leading, polluting, constipation, and other got problems as well as for tennessee issues the, it's estimates at that 10 percent of women in europe are living with a disease on average, it takes about 7 years to be correctly diagnosed the

disease. yeah. coolness grew up in the city of smoothing and mixing both fall upon them. now the student has home visiting her parents at 14 to the z. i began to suspect that something wasn't right. besides the severe pain that was dizziness and fainting, a shot of some kind of the house. the news of startling selection is not much shirts. in the 1st time i went to the hospital for severe abdominal pain. i was 14, but even though they found this i, what's your typical for? and demetrius is, no, doctor even mentions the word to me, little um, suggested i should have it checked out. instead, the dr. performing the ultrasound is the one who discovered the system just blurted out, well i guess having kids will be difficult of you. i mean, who says that to a 14 year old kid on gynecologist, i went to afterwards and kept telling me for 3 years that it was normal for me to be in such pain as i just met some how like she was saying to quit and making

a big deal out of it. that is me. so i'm on time at one point it got so that it was during my finals and school and of course i was under a lot of pressure. i had to start taking opiates because i was unable to sleep otherwise under. then that was when i went back to the gynecologist and said, i'm not leaving until i have the answers one and i'm for the diagnosis came just as the 1st cubic 19, not downs went into effect just before high school finals. the fact that was german does not, and that was matt was born here and i think and there i had kind of you right, that was biology matter. proof of that for me, i still remember that math test was the worst experience i had such bad stomach pains. i kind of stumbled through it, but i was only able to take the test because i had taken really strong pain medication. and i had such a hard time concentrating just confidence you she tried reducing her medication,

worried about the risk of a dixon, but there are days when she can't even ride her bike to the z as pain can come at any time. nope, just during her period as when you said in my case it really depends on my stress levels. if i'm stressed or when i'm not getting enough sleep, then i'm pretty much always in pain. come. it's just one of those things you can generalize and say everyone has the same experience. that's why. and demetrius is called the chameleon of gynecology. it's so difficult to diagnose conte everyone experiences it differently. to learn more about how people within demetrius is confined relief sooner. she went to a specialized clinic in costa park because i was asking myself, how could it possibly be that i had to go from one doctor to the next for 3 or 4 years without ever being diagnosed correctly or even feeling like i was being taken

seriously. and then i realized that many others had gone through similar things. so i'm curious to know what you think, what do we need from them? what have you observed voice the season by me to get off the since he goes as a generally on the site and demetrius, he says a disease that is highly variable in the way it presents. because of this variable, we have to take out the time of authority. examine all patients really get behind what's causing that complaints and what might be effected heartily. want this readings in best cont, event of a talking zion. a trained i might recognize this during an ultrasound when someone has end dmitri uses. so similar to the lining of the uterus can stop growing outside of the uterus on the ovaries, intestines, or other organs in the pelvic regions. this is all sensitive to hormones and can cause information and considerable pain at the end of her consultation, which is easy. i present her initiative and the end and the silence. we're working

on providing information as well as we can consider and we're not experts, but we would like to offer some basic fact certain she's doses and endo silence to change the politics around the disease. the initiative launched a petition which reached its target in just a few weeks cooling of home, germany's government to take more action to address. and demetrius has escaped kind i'd seen before. we started our campaign. there was not a single state parliament and all of germany that had dealt with the topic of endometriosis. if you consider the fact that enemy trios, this affects about the same amount of people as say, type 2 diabetes. and then it just mind blowing to think that it hasn't even been brought up in politics yet, and a pretty to step for a different approach. in phones in 2022 remodeling and mccall launched a national strategy to comb bass and demetrius center. so i thought that was so powerful, i'm seeing him give a speech on instagram, where he says in demetrius,

this is a societal problem and we're going to tackle it. and i thought to myself, how amazing would that be? if someone like chancellor phillips, we sat down in front of a camera and said, look at this disease that mostly affects women time that it's a societal problems is problems. specifically to the usually as initiative is quoting for more research investment, it's still unclear what causes the disease plan. let me tell little has been researched in the field of and demetrius since because of the directly, there's always been less money available for gynecology. so it's understandable that we'd need to invest more money here than you would in other topics that have seen intentional research for years. and in 2023, a small success. the buddhist type decided to invest 5000000 years each year and to end demetrius his research. today to the z, as meeting flipped aconia, a member of her state parliament. i'd like to see you and sharon how are you? glad this worked out. i'm good. thanks. you're welcome, sure. access to end demetrius has treatment is particularly poor and the state

certified treatment centers are few. and there are hardly any sensors with sufficient expertise staff, one guest of aside from that. i also think it would be very, very important to introduce the topic, to the public, to educate and sensitize administrators to the issue. so if someone requests recognition for disability, for example, that's not turned down immediately, because officials are sensitized. so the ways that limits people in their daily lives when you know that harrison in the convention of mash that's put together a document summarizing the key points, both in terms of the care situation. now as well as what a plan of action might look like. looks like that we've made. thank you very much. haven't realized that was such disparity in our society. this under such was so far behind the germany's government and federal agencies have yet to recognize underneath, for uses as

a chronic disease from such a full run in europe. my calls administration has testified 6 times the amount that germany has for and dmitri, or says research. the strategy also range to make it possible to receive a false diagnosis anywhere in the country. and it wants to provide more education, including in schools, posted a m b that have to spend a long time searching before she found a place that could finally help her. a gynecological practice specialize. didn't. dmitri uses your muscular electrical stimulation to reduced information. and how often in a c t 9 difficulty bound, this treatment is meant to improve circulation, virginia beach, is it a set that made you this will help supply more nutrients to the surrounding tissue to some 50. they do have to present a nurse. this is a difference in her everyday life. right. she says you sure this summer i even

took my son climbing should've cuz i couldn't have done that. otherwise, i would have felt too much pain in my neck since my thought is that there i was timing around with my son. it was incredible and he was so happy. wow ma'am, you can do that for you and fix it. there are no limits anymore to close in my head and not to my body because it's fun because of christopher to 1st. i feel like i can do anything for you know, we'll keep improving. it'll get better and better. you can finally get your body back from one appointment to the next. you'll be able to do more and more. and one day your body will realize i can do this after all. or the person that is tackling one symptom at the time. the next step is to adjust to dias

. many people within demetrius is struggle with indigestion, diarrhea, i'm closing known as and or benny the motor decision making. i'm trying to reach more foods that went straight in my digestive system. so the things that are on t anytime a change on children and 12, that's not too easy for someone with a sweet tooth like me to go to the in see see the hardest for me to avoid all pastries and alcohol. i just love and the priorities of the people. so if i want to continue and i still sometimes eat fried food. i know it's not good for my body,

but i just can't help eating a few frying and they all pretty. uh, just so just because of, oh, i know i'll get a bit of a stomachache afterwards on these documents about what stopped me from living. my nicety once i to just so you know, i'm in the research as always to be easy as next semester has begun. she studies,

german and french to the 1st half of her classes are included now in paris. and yeah, i'm fine. and right in my 2nd lecture, i got such a bad stomach pains and part because the room was so stuffy and that just wasn't helping. so i just walked out of the lecture because i knew that was it for me for the day. and i knew the only thing i could do for myself was to go home, live down, take it pain killers, and wait to feel better. the suspects of it to easy over law is on the help of others to take notes for her, look, compulsory attendance is a problem for her. if she misses more than 3 classes, she fails the course most on zach and although i have to be very careful about how i use my energy look, will i use it to force myself to go to class and hear a lecture or will i use my energy to wash my clothes or, and make something to eat. my for me. and dmitri uses is always present in her day to day with a, the fund,

and then the i have friends and acquaintances. this disease progresses so far that some of their organs were effected. for example, they fuse them and if you reach that point, you're no longer able to work me out. i'd see except the difficulties and stuff for by this coverage been. so i kind of definitely scared of that because i'm such an active person that this year thought of not being able to volunteer as much as i currently do. is the village eating? i don't know how i could even be myself that way, you know. so it's an con priscilla has an appointment with her go and ecologist to discuss some operation to remove some and demetrius justice. she used to be afraid of these appointments, but here she finally feels safe. the long wait for a diagnosis. as a structural problem study shows that most medical health professionals take women,

especially black women, that's seriously when they say they're in pain. the only one i spoke with a colleague about your physical therapy. so have you been making the progress you've been hosting for you by one? yes, i'm still doing my exercising. that's just like working quite well. i thought of jesus, i didn't take any medication anymore. other than so contraception. ok, thank you. okay. and then all that's left is homeland therapy. that's on the phone right now. i'm totally raging the pill quite well. i don't know if not somehow linked to the fact that i'm not taking any pain can this anymore and have less than that the weight. i'm not supposing anymore. i don't know if that's related a nickel

and she falls to sense. i don't think so. that's more because the body needs time to adjust the whole mind treatment. she said, so if you're responding, well, i wouldn't change thing was that the question is more of what we do if this doesn't look okay if everything is working, that's great. well, spouse, an operation today we'd say no, they come. so that's not the final loan. so, you know, my goal is to avoid meeting surgery in the future. when i call, abdominal surgery becomes necessary when the disease begins to damage the organs. almost as secret wants have also when do for a point by mouth. laparoscopic surgery is the 2nd or 3rd choice of treating in demetrius is in certain cases, and it is inevitable because organs have been affected by the progressing in demetrius eventually, which is especially the case for the year and the retract initially. then there's no other choice. unsaturated becomes

a necessary treatment to prevent last time it should have been told that i'm not the one who determines the severity of the disease. all fixed. that becomes evident from my patients daily life. suddenly, totally normal lives, even though ultra sound or a model i scanned the show, they have a severe case of end demetrios is extend on the, on the patients with just a few lesions. nobody can face considerable limitations, you know, be able to leave the house for 3 days a month, for example. then of the disease of severe he's the one who hold on. well, let's say that he tell you the link between endometriosis and infertility is especially painful. many or diagnosed when they are trying to conceive the

a to z z. i was hoping to network and phones. she's heading to an off to work event organized by endo, from an organization that promotes awareness of the disease. much like to the easiest initiative. you probably so i'm pretty sure today i'm going to tell you a bit about, and dmitri, is this, you might already know a thing or to do this. paperless way through is that maybe you'll learn something new. we'll learn from each other. imagine because as you can imagine, everyone here has been diagnosed with and demetrius. this is katie on that, is there anyone here who has known for less than a year? what? okay, okay, so the diagnosis is still fresh in clinic for periods. and menstrual pain was always bad. if i go to school to frontier,

then i kept dealing with doctors who said this wasn't my field box. and so they sent me to a specialist who said they couldn't help me and sent me to a general practitioner. i felt like a pink campbell good talking to others helps me feel like i'm not to know. that's not what sort of tv is he has already planning her next steps. you'll see that present minutes and there's still a possibility of taking this to the european parliament with the european citizens initiative for 3 years in with the present this journey to better managing a chronic disease known fluids. routine massages don't need it for like a cleansing like a room. daisy with myself. my name's of the

you know the measurements on because i feel so relaxed and peaceful. when i come in i feel like i'm myself. i'm good for more than i'm not just my disease, but not just the pain in my psychotic native or in my abdomen. teach me more than okay. i really am me. everything begins. yeah. there is the

christina i'm to the is the i learned about each other. while this film was being made, priscilla proposed, they mentioned her favorite cafe, the that i loved this cafe. you know, it was it to. this was the 1st cafe i visited when i came to parents to study, to see the immersive and send me it was the 1st cafe i visited, often moving to parents about the the

breakfast before. uh so what's up there now is the time to take a step back. i've realized that in the past 20 years, which was very chaotic. i lost a lot of time. i see cool. that time. i thought it was all in my hand. customer phonetic village. and now it's important to me that people affected them. no. as long as you don't. yes, it is painful. you. yes, you do have stomach pains, you know, you can't really even get out of bed. and the only thing you can do is bring your kids to school use. and that feels like the end of the well to be friday. but you all know. so now it is possible to meet a normal life within demetrius. as you know, i big there is, this is douglas of when my greatest wish is that i might find a better way to deal with my disease. because right now i think i'm kind of sticking a band aid over anything that starts bleeding booth fluids of but i haven't really found a long term strategy for managing this on this information for further research. i

think i'm getting better. um, does this have please help this not to this emphasis on a societal level. i hope that this stops being a taboo topic. my name is step school, start teaching children about endometriosis that it's taught him lecture halls, but it's debated and talk shows on it in talk show stuff of this place. and that jeremy's bonus tag finally passes the decision on the matter and it's right inside them to go from them to anyone who is affected. and anyone who has just recently been diagnosed and did things to give out pump. and there are plenty of solutions. and we believe you of the,

the, the learning curve of the digital age by hand writing is crucial for childhood development. and how is being used in classrooms. the blended futility with technology. a mix of old in you can be used to overcome examine diety turning knowledge into confidence. tomorrow today on dw the

about why does this? because now i'm leaving the new host. join us for an exciting exploration. and everything in between. this is a video and audio production 5 d, w. i hope the video will tune in on the long voyage through the ocean and the back way with account for a long time. they had to be humans on the journey. but now the premises have become very protect of the whales,

the ocean on the to choose and send in a mood g to someone. you only need thumbs. but writing with a pen or pencil involves the entire hand. it's a veritable anatomical wonder made up of 27 different bones, a perfect multi functional tool with close ties to the brain. writing things out by hand, improve recall, how come that topic and much more this week on dw science program tomorrow today. welcome to the show, the.