everything in between this is a video and audio production, 5 d, w. i hope that you will tune in the full years, priscilla abuse, suffolk, painful crimes. and yet no one took her seriously. not her doctors of the people around her. she doesn't want others to have to go through what she did or if she visited 20, yes i sent for them. bearable pain. my period only. what is meant pain. okay, let's move to tell them the accusation of a hysterical woman patronize in infuriating naturally comes of course it's unacceptable that up to a few years ago, most people didn't even know what engine heater use it in the slicing for recognition and a life that's about more than chronic pain,

the trying to yes. not figure out what was wrong, why she was in such pain, even the people around her couldn't tell. somehow she kept functioning as a nurse as a pop. now, a mother and as a friend who enjoyed going out for the longest time, she thought it was his only aspect of the stomach pain she to top to stress concern go home to come to now. and so when you grow up as a woman, it's normal to have periods cramped aside from the height is i can come to some of these. and since most don't as a man goes to take to him to have a lot of empathy for that. because they just say you're a woman, that's just the way it is. the way it's always be. think them on exam uh when i started getting to the bottom of my pain to my off. so people around me and

realized it was like normal to have such terrible pain during my period. it looks like himself. it's because you called me on saturday. uh, i started asking questions off speakers and learning more about what i could do to make my day today more bearable for. i mean, you all have moved you christian you up. so she's sick. she learned that the pain she had endured for years had an entirely different cause than she thought it was. and during me, 3 years has a chronic inflammatory disease. she'd been guessing through it with pain colors. okay. cuz it was for me, i've been, she had some damage. as time went on, i kept taking strong painkillers at one point, but simply wasn't enough anymore. no problem. and now the talk being diagnosed with and demetrius this, i am slowly understanding why i feel so bad. and i'm learning how to deal with symptoms of the via period pain is one tell tale symptom of the systemic disease. others include heavy period leading, polluting,

constipation, and other got to problems, as well as vitality issues. the it's estimates at that 10 percent of women in your own living with a disease on average. it takes about 7 years to be correctly diagnosed the z z a corner grew up in the city of smoothing and mixing both fobs home on. now the student has home visiting her parents at 14 to the csi. i began to suspect that something wasn't right. besides the severe pain there was dizziness and fainting. the smallest s, i'm kind of the house, things will start at one direction. as the shots in the 1st time i went to the hospital for severe abdominal pain, i was 14. but even though they found this, i know what your typical for. and demetrius is. no doctor even mentioned the word

to me, little and suggested i should have it checked out. instead, the doctor performing the ultrasound is the one who discovered the system just blurted out, well, i guess having kids will be difficult of you. i mean, who says that to a 14 year old kid on a guy and ecologist, i went to afterwards kept telling me for 3 years that it was normal for me to be in such pains as wish mats and how like she was saying to quit and making a big deal out of it, that is me so on, on kind of one point it got so that it was during my finals in school and of course i was under a lot of pressure. i had to start taking opiates because i was unable to sleep otherwise under. then that was when i went back to the gynecologist and said, i'm not leaving until i have the answers one and i'm for the diagnosis came just as the 1st cubic 19 drop downs went into effect just before highschool finals, the 5 that was german desk that was mad to

phone here and i think and there i had kind of you right, that was biology matter. proof of that for me. i still remember that math test was the worst experience i had such bad stomach pains. i kind of stumbled through it, but i was only able to take the test because i had taken really strong pain medication. and i had such a hard time concentrating just confidence here. she tried reducing her medication, worried about the risk of a dixon. but there are days when she can't even ride her bike to the easiest pain can come at any time. not just during her period. as i'm used to say in my case, it really depends on my stress levels. if i'm stressed or when i'm not getting enough sleep, then i'm pretty much always in pain. come, it's just one of those things. you can't generalize and say everyone has the same experience. that's why. and demetrius is called the chameleon of gynecology. it's so difficult to diagnose, con, everyone experiences it different leads to

learn more about how people within demetrius is confined released sooner. she went to a specialized clinic in costa hard because i knew i was asking myself, how could it possibly be that i had to go from one doctor to the next for 3 or 4 years without ever being diagnosed correctly. or even feeling like i was being taken seriously. and then i realized that many others had gone through similar things. so i'm curious to know what you think, what do we need, and then what have you observed voice the season by me? i get all this, he goes as a general, the on site and demetrius, he says, a disease that is highly variable in the way it presents. and because of this variable, you have to take all the time of authority. examine all patients really get behind what's causing the complaints and that and what might be effected. heartened for this reasons, in best cont, event of

a talking design. a trained i might recognize this during an ultrasound when someone has under meter uses. so similar to the lining of the uterus can start growing outside of the uterus on the ovaries, intestines, or other organs in the pelvic regions. this is all sensitive to hormones and can cause information and considerable pain at the end of her consultation, which is easy. i present her initiative and it's, and in the silence, we're working on providing information as well as we can consider. and we're not experts and people, but we would like to offer some basic facts. and she still says and, and those items to change the politics around the disease. the initiative launched a petition which reached its target in just a few weeks, cooling, a palm, germany's government, to take more action to address and demetrius kind and single for we started our campaign, there was not a single state parliament and all of germany that had dealt with the topic of endometriosis, if you consider the fact that enemy trios,

as effects about the same amount of people as say, type 2 diabetes. and then it's just mind blowing to think that it hasn't even been brought up in politics yet. and they're pretty touched up for a different approach in from in 2022, a mentally mccall launched a national strategy to comb bass and demetrius center. so i thought that was so powerful, i'm seeing him give a speech on instagram, where he says and demetrius, this is the societal problem and we're going to tackle it. and i thought to myself, how amazing would that be? if someone like chancellor shots, we sat down in front of a camera and said, look at this disease that mostly affects women on the it's a societal problems as problems specifically so easily as initiative is quoting for more research investment, it's still unclear what causes the disease plan let me tell little has been researched in the field of endometriosis because historically there's always been less money available for gynecology. so it's understandable is that we need to invest more money here. then we wouldn't other topics that have seen intentional

research for years. in 2023, a small success. the one does talk, decided to invest $5000000.00 bureaus each year into end dmitri, or says research today to the z as meeting philip decoding. yeah, a member of her state parliament. i'd like to see you and sure and how you can collect this worked out. i'm good. thanks. you're welcome. sure. access to end demetrius has treatment is particularly poor and the state certified treatment centers. the few. and there are hardly any senses with sufficient expertise, staff, one best of, aside from that, i also think it would be very, very important to introduce the topic, to the public, to educate and sensitize administrators to the issue. so if someone requests recognition for disability, for example, that's not turned down immediately, because officials are sensitized. so the ways that limits people in their daily lives when you know that harrison at the convention of mash, this put together a document summarizing the key points both in terms of the care situation. now as

well as what a plan of action might look like. and i'll take that with me. thank you very much. i haven't realized that was such disparity in our society. and the research was so far behind the germany's government and federal agencies have yet to recognize underneath rios, as, as a chronic disease from says, a full run, the in your, my calls administration has testified 6 times, the amount that germany has for. and dmitri, as this research, the strategy also range to make it possible to receive a false diagnosis anywhere in the country. and it wants to provide more education, including in schools, posted a m, b. they have to spend a long time searching before she found a place that could finally help her. a gynecological practice specialized. and dmitri uses your muscular electrical stimulation to reduced

information. and how often in a c t. 9 difficulty bound, this treatment is meant to improve circulation, virginia beach, is it a sub damage? this will help supply more nutrients to the surrounding tissue. so 50, they do have to present a nurse. this is a difference in everyday life. she says you sure this is summer i even took my son climbing should've cuz i couldn't have done that. otherwise i would have felt too much pain in my neck since i'm like that there's but there i was driving around with my son. it was incredible. and he was so happy while mom you can do that, pray and fix it. there are no limits anymore to go through my head and not to my body spells because of christopher to 1st. i feel like i can do anything. obviously, you know, we'll keep improving, it'll get better and better. you can finally get your body back from one

appointment to the next. you'll be able to do more and more and one day your body will realize i can do this. after all, the priscilla is tackling one symptom at the time. the next step is to adjust to dias. many people within demetrius has struggled with indigestion, diarrhea, i'm closing known as and or benny the motor decision making even. i'm trying to reach them all foods the twins strain, my digestive system is just the things that are empty and trying to train on children and 12. that's not too easy for someone with a suite to like me to go to the

cincy. and if you did, you see the hardest for me to avoid all pastries and alcohol. i just love and the priorities of what his zip code. so if i want to continue the end, i still sometimes eat fried food. i know it's not good to my body, but i just can't help eating a few frying and they all pretty uh, just it just because of, oh i know i'll get a bit of a stomachache afterwards on ease of coupons that that won't stop me from living my not being offered to decision on the

research as always to easy as next semester has begun. she studies german and french. sure. the 1st half of her classes were including now in paris. and yeah, i'm fine. and right in my 2nd lecture, i got such bad stomach pains, in part because the room was so stuffy and that just wasn't helping. so i just walked out of the lecture because i knew that was it for me for the day. and i knew the only thing i could do for myself was to go home, live down, take it pain killers, and wait to feel better. the suspects of it, to easy over law is on the help of others to take notes for her. look, compulsory attendance is a problem for her. if she misses more than 3 classes,

she fails the course of some vague. and although i have to be very careful about how i use my energy look, will i use it to force myself to go to class and hear a lecture? or will i use my energy to wash my clothes and make something to eat my for me? and dmitri uses is always present in her day to day with a to find and then, but i have friends and acquaintances. this disease progresses so far that some of their organs were effected. for example, they fused them. and if you reach that point, you're no longer able to work me out. i'd see except the difficulties asked for by this coverage been. so i know i knew definitely scared of that because i'm such an active person that this year thought of not being able to volunteer as much as i currently do is debilitating. yeah, i don't know how i could even be myself that way. you know. so if and con priscilla has an appointment with her, go an ecologist to discuss some operation to remove some and demetrius justice. she

used to be afraid of these appointments, but here she finally feels safe. the long wait for a diagnosis is a structural problem. study shows that most medical health professionals take women, especially black women, that's seriously when they say they're in pain. the most part with a colleague about your physical therapy. so have you been making the progress you've been hosting for you by one? yes, i'm still doing my exercising. that's just like working quite well. i thought of jesus, i didn't take any medication anymore. other than so contraception. ok,

thank you. okay. and then all that's left is home in therapy. that's all right now, i'm totally writing the pill quite wow. i don't know if not somehow linked to the fact that i'm not taking any pain can this anymore and have lost end of the wait. i'm not supposing anymore. i don't know if that's related. a nickel and she falls to sense? i don't think so. that's more because the body needs time to adjust to whole mind treatment. she said, so if you're responding, well, i wouldn't change thing was that the question is more of what we do if this doesn't work. okay. if everything is working, that's great. well, specimen operation. today, we'd say no, they come. so that's not the find alonza. and you know, my goal is to avoid meeting surgery in the future. like when i was one last year, when i call of domino surgery becomes necessary when the disease begins to damage

the organs almost as secret wants had most when before play by mouth. no laparoscopic surgery is the 2nd or 3rd choice of treating in demetrius is in certain cases and it is inevitable because organs have been affected by the progressing. and demetrius is eventually, which is especially the case for the urinary tract financially. then there's no other choice. unsaturated becomes a necessary treatment to prevent was damage between them. i'm not the one who determines the severity of the disease, all fixed. that becomes evident from my patients daily life. suddenly totally normal lives. even though alter sound or immoral has gotten sure they have a severe case of and demetrios is extend on the, on the patients with just a few lesions. can phase considerable limitations and they'll be able to leave the house for 3 days a month, for example. then the disease of savannah is a on a bunch of old on, well, let's say that you tell you the

link between endometriosis and infertility is especially painful many or diagnosed when they are trying to conceive the a to z z. i was hoping to network in phones. she's heading to an off to work event organized by endo, from an organization that promotes awareness of the disease. much like to the easy as initiative steve, he's talking to you, so i'm pretty sure today i'm going to tell you a bit about and dimitry is this. you might already know

a thing or to do this. paperless way for you is that maybe you'll learn something new. we'll learn from each other. imagine because as you can imagine, everyone here has been diagnosed with and demetrius. this is not, is there anyone here who has known for less than a year? what? okay. okay, so the diagnosis is still fresh ink when they told me, oh no female and not to me know, we call a 10. demetrius is because we're fine membrane. the lines, the uterus is called the end dmitri, him along patio is that these new terrain like sales are responsible for the disease or since the melody it back to me on the evenings like these model, your code t also explains the different theories about how and dmitri uses develops the still so much, i'm noted, because you told me, dispatch, keep your chin up. there's a note that can help. you just have to get started to formally own meditation helps. it's good. well, i hope you now have

a better understanding of what's happening in your body's car equally as important as how talks of the chances to share stories of this i told my doctors that i was in pain and that i didn't feel well, i mean, but they just said that was normal, women just got their periods, and menstrual pain was always bad. it takes us to go to school to frontier. then i kept dealing with doctors who said this wasn't my field box. and so they sent me to a specialist who said they couldn't help me and sent me to a general practitioner. i felt like a pain, humble, good, talking to others helps me feel like i'm enough to know the photo. what sort of tv z as already planning her next steps, you'll see that present minutes. and there's still a possibility of taking this to the european parliament with the european citizens initiative for 3 in bandwidth. okay, what is the

percentage johnny 2 bedroom managing a chronic disease known fluids routine massages down to needed for like a cleansing like a room. daisy with myself, the verdict. my main you know the measurements. i'm excited feel

so relaxed and peaceful. when i come in, i feel like i'm myself, i'm good for more than i'm not just my disease, but not just the pain in my psychotic. now i have or in my abdomen, c h, the words narrow him, me. everything begins. yeah. there is. there is the christina, i'm to the is the i learned about each other. while this film was being made, present, propose they meet and have favorite cafe. the loved this cafe. you know, it was it. this was the 1st cafe i visited when i came to parents to study,

to see who they belong to me as an immersive. and to me it was the 1st cafe i visited, often moving to parents about the practice, the phone. and so what's up there now the time to take a step back? i've realized that in the past 20 years, which was very chaotic. i lost a lot of time. i think all that time. i thought it was all in my hand. customer phonetic, filtered. now it's important to me that people affected them. no. as long as you don't, yes, it is painful. you. yes, you do have stomach pains. there's pros, they don't, you can't really even get out of bed. and the only thing you can do is bring your kids to school use and that feels like the end of the well to be fun. but you all

know. so now it is possible to lead a normal life with and demetrius as you know, i big there is, this is douglas of when my greatest wish is that i might find a better way to deal with my disease and roast over time. because right now i think i'm kind of sticking a band aid over anything that starts bleeding goes through this, but i haven't really found a long term strategy for managing this on this information for further research. i think i'm getting better because i just have list hovers, not through this emphasis on a societal level. i hope that this stops being a taboo topic. but in this step school start teaching children about endometriosis, but it's taught him lecture halls, but it's debated and talk shows on it in talk show stuff of this place. and that jeremy's bonus tag finally passes the decision on the matter and it's right inside on the call from them to anyone who is affected. and anyone who has just recently been diagnosed and did things to give out pump. and there are plenty of solutions.

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