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tv   [untitled]    August 11, 2024 11:30pm-12:01am EEST

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on your program, look, i want to talk to you today about your war experience. we understand that from february 24, 2022, although the war has been going on for more than 10 years in our country, it was this date that changed the lives of many ukrainians, and today i want to hear your experience, because it is very important, because it was the same during the war continue the people. children, and especially children in a hurry, who do not ask anyone and are also born, and they need even more such, let's say, specific medical care, so i want for you to share your experience today, tell all this to our viewers, and let's start with this very date, what did you do on this day, where was your family and how did this date change your life, for me february 24...
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yes itself, as for all ukrainians, it was enough of a shocking change, we in our family did not prepare for it, of course, there were many conversations about it, there was a lot of context, such a vast amount of information, but at the same time, the suitcases were not packed, because they did not believe in that it can happen in the center of the city, in the center of the country, and in any case , crisis decisions had to be made that day, and for the whole team to ensure safety first, so that everyone... to a safer place, for each family, it was the right decision for someone, and not so much for someone, and they ended up in more noisy areas near kyiv, but in any case , it took a certain amount of time, a few days, a few weeks, for everyone to feel more stable, they were very worried about our colleagues in mariupol, when the green window did not light up for a very long time time until mid-march, they were very worried about ours colleagues in dnipro, those who had not been in touch for a long time, tried to... find them a plan b, where
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they could feel safer, protect themselves and their children. actually, for the first time or for the first time, they were engaged in this chaotic process of moving people, and at the same time they tried to rake out what was like a lick, as they say, private, all the messages that poured in were of a completely different nature, from somewhere there was a lack of drugs, somewhere there was a lack of some kind of vaccine, somewhere it was necessary to help with logistics, i.e. requests. were of absolutely different caliber and from this on the one hand united us more, we tried to do it around the clock, on the other hand, it was very discouraging, because when you run in different directions at the same time, it also does not help you to orient yourself, but i think that this is what most people did at that moment in order to to help as many people as possible, but it's good that this period then passed into more organized processes and where we can be more efficient,
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organize our work more systematically, i know that my next question will be the same for you, because you don't really like pro this is to say, because you love your country very much and you understand how much you are needed here, but nevertheless, your help to your country has not decreased, but only increased, and this is a new experience that you have received, because you are now living with your daughter abroad, and there are a lot of women like you... social activists who were quite active in our country, when they found themselves abroad, they suffer incredibly and talk about the fact that they do not have the opportunity to fully realize themselves, as do you have this, what do you feel, and tell about your experience? it's really a difficult topic for me, because i always felt and still feel very connected to my native country, but i'm very grateful for the times that taught us to work where... the price, almost the whole team, she changed
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her place of residence, but this it does not prevent us to have a call every week, every day to work with colleagues, wherever they are, so the processes remain as active when necessary, i go home and try to do it as often as possible, and my, let's say, additional strength and advantages from my stay abroad, i build in such a way that i just learned the language, for example, at a level so that i could understand the local population, build social contacts and... which helps to send aid, that is, this year a charity fund was opened, which we are engaged in, in order to send humanitarian aid to refugee aid centers, we have several partners in ukraine, accordingly, i believe that this is such an additional aid mechanism where we can be useful, where we can be helpful, and this is the building of international partnerships, attracting donors, it's advocacy so that there are no questions, and you still have a war going on, when i hear these questions, that we
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still need to say a lot, so that other political processes in the arena do not interrupt the voice of ukrainians, and for us this is an important topic of advocacy, that our children, our doctors, hospitals continue... to do under sirens, under terrible challenges and at the risk of life every day, and it is important to me that this voice sounds truthfully, in the highest possible quality in the european arena, i try to do it as i i can do it by attracting partnership and help, and this help to us will also be needed for reconstruction when the war is over, we will need this help for a long time, so i think it is mine, you can say, maybe it was not always my choice to live where i am, but i am trying to change it... let's say, to transform it into a positive channel and use it in this way, well, if we are talking specifically about aid and difficulties, if they need to explain to europeans that the war is still going on in our country, this aid, it has somehow possibly
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decreased, it is necessary tell them more it is necessary to do it more loudly and more often compared to when at the beginning it was in 2022. which has changed a lot, and it has changed as expected, in principle dramatically, it has changed somewhere around this first emotional period, when everyone helped, on all questions practically there was no control or there was no such, let's say , such strong verifications, then the process of strong aid was selectively chosen, where it goes, it was already monitored so that it was systematic, that it was transparent, i believe that in principle this and it is very right that she has... but on the other hand, i would like more support for important issues, especially on the topic of newborn children, because some processes are still not closed, it seems to me that now every life of a newborn child is extremely important, i'm not saying it wasn't important before, but now, considering that the birth rate
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has fallen by more than 30%, that there are many very negative consequences for the health of the newborn children of every family, i think it needs more publicity and support when i go on international forms and i see that there is a block about the war, and there are no recent statistics or there is no impact of the war on the health of newborn children in the perspective of someone there, if we are talking about the future, about the cut, then i would like it to be there, and we understood what generation we will get in 5, 10, 20 years, it is important to think about it today. sasha, well, you are talking about the fact that the birth rate actually fell by 30%, and if we talk about children born prematurely... due to the fact that there is a war in our country, have there been an increase in such families in which children in a hurry, can you still say that compared to 2015-16 , everything is the same as it was? it is difficult for me to rely on some statistics, because they must be official, so that i do not name any incorrect data,
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i know from various sources that the statistics do increase premature births, but somehow the ministry of health does not name specific figures, so it is difficult for me ... to rely on the conversations that i know from the medical category, well, let's say, when i talk to doctors, that i hear that the condition of the beneficiaries has worsened a lot, they are not on time get examined, sometimes they are in very bad conditions, it is not always logistically possible to simply get to the hospitals, because, for example, the roads are broken, or it was some kind of, for example , an occupied territory and a pregnant woman cannot receive this help in time, the child is untimely receives screenings, for example, during or during pregnancy or already... after the baby is born, respectively, any of this delay is precisely from our category, with our nosology, it is very important, and it will then affect on the quality of life as a whole, so also the psychological state of the pregnant woman, we should not forget about that either, well, the psychological state of the pregnant woman, i would say that even childbirth, when there was no war and premature, it is very
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stressful, just recalling my experience, or my colleagues who found themselves in various stories, where the children also received some difficulties after the apologies, but now during ... from a full-scale invasion, where there are also sirens and, for example, there is no partner nearby, if the partner had to go, the husband should go to fight and cannot be in partner labor, or not god forbid, there are unfortunately such situations when the news comes, and this woman is pregnant, and unfortunately, the information comes that there is no longer a partner near her, these cases are extremely difficult to conduct such a benefit, and there are many such cases, that is, requests for psychological support and for financial, for example, help, then... because this, let's say, has a strong effect on stress, we have had an extremely large number of these requests. is there any possible psychological help in your organization for women who live in ukraine, it is possible in the de-occupied territories, it is possible
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somewhere in the frontline areas, who call and want advice, to be told what to do, where to go, and what the actual words are... because it is probably very important and very difficult now in such conditions, i would say that we are very the international community helped a lot, because here i would divide our women who left for... did not give birth prematurely abroad, because this is such an additional emotional layer of problems, because in addition to the fact that a woman gives birth abroad without support, without understanding the language very often, without understanding system, where to turn, what to do with such a newborn baby in any country in the world, for example, there or in switzerland, whether it is poland or whether it will be spain, very often they turned to us from other countries in order to get information about their native language, and that is why we are very grateful to our internationals. which acted as partners in this in order to promptly transmit this information or
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distribute booklets, as well as this informational and psychological assistance worked in ukraine and works in the same way, the only thing is that it is often there are no calls, but these are still messengers, which are more convenient, also because of the fact that, firstly, it is not always possible for such mothers to speak by voice during the day, they are quite busy in hospitals with various procedures, and this is a traumatic experience when mothers find it difficult to speak their minds. emotions, because they are usually in a state of stress and at the stage when they need to talk about their, specifically this situation, that she just gave birth to a child prematurely, then there is such a trauma of guilt that she did not deliver the child, as they say, that the child has difficulties, and our psychologist works with this feeling of guilt, yuliya oleksandriv manages the psychological service, we have our partner organizations that work with us, and when we do not cope, we send to a more professional... help and when we need help with crisis communications, we also know where to turn, so i am very grateful
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to colleagues and partners who this pool will provide consultations with, and i will not name all of them now so as not to forget anyone, but in fact this pool of partners helps us cope with difficult situations when they occur, therefore, for us, informational psychological help is the basis of the basics, because this is the layer where most problems can be solved at this level. sasha, well... actually speaking about the impact of the war on families with prematurely born children, you and i have already talked before the broadcast and you told me such stories, what these families faced, what are the main problems, and we are talking now not only about medicine, because these families there, mother and child return home, and they also have certain problems there, they you have to solve them somehow during the war, can you tell me about it? and what do you advise in such a situation? in fact, we can advise
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you to be proactive, learn about your rights, and that is why this year is very important for us, we are releasing a lot of information products, because very often parents simply do not know about their rights, for example, we recently conducted a survey whether parents know about guaranteed non-guaranteed services in the health care system, and we were a little shocked that 80% of parents do not know about their rights, that is, they noted, for example, from mark the categories from one to five, to what extent you have information about services guaranteed by the state, then 80% marked one, that is, they do not know, or, for example, only 10% knew what to do in the event that rights are violated, that in such case must be done, and when we say, this is our project called guaranteed with our partners, patients of ukraine, and when we talk about what is important to do in this or that situation, it is important for us that parents still know and where to turn ... were proactive, had this clear position that this it depends on me how i will continue
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to develop mine, for example, there is a medical history, where do i get this service, who can i turn to, don't be afraid to ask, that's why it's important, look, this topic, it's actually very important, and that's why you can to say exactly what rights you are talking about, so that women and men, families, in general, who will hear us now, they can understand what rights they really have, what you are talking about, when we conduct trainings, we even start with such question: do you know what this is? nsu and we very often have such answers that we do not know what is nszu? and since 2016 , medical reform has been ongoing in ukraine. and there are 44 packages of medical guarantees, these are packages, one might say, classified according to various diseases, according to various problems, now i am not talking only about prematurely born children, or only about pregnant women, or about the topic of rehabilitation of children, these are generally all problems, this and and strokes, which also affect many families in ukraine, and cancer, and even now. added four packages about, for example, artificial insemination, about, for example, or re
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organ transplantation, that is, it is any disease that can fall into any of these packages, and these packages must at least be understood, whether there is a disease or a problem that concerns one or another patient, whether it is included in the list of those packages , before you run to a private clinic and decide for yourself that you need to solve this issue quickly, understand your rights, and we teach this at trainings, we conduct it. consultations, we explain in detail how to do this, if the service was to be provided by a state body, a state clinic, for example, there or i do not know, women's consultation or. birth center, and it was provided for a fee, how to compensate for these costs, and there are also such cases, that is, this is our standard practice, how we advise, help, because we manage to convey the main idea now, if the families know that the services are covered, that the pregnant can count on the fact that it is guaranteed by the state, it is from tests, management of a complicated pregnancy, it is both
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childbirth, and management of the child after discharge, then there is no such stress and level of worries that for all this you need to pay from your own pocket, imagine a situation where the family had to leave the de-occupied territory, has to rent housing, for example, the husband went to the front and there is no stable income, the mother has a prematurely born child with a million questions, because this is normal situation, there are many questions, and that is why we guarantee guaranteed services, we tell you, so that at least there is this support, to reduce the worries and stress for this family, and therefore it seems to us that precisely the information front of our work... of our organization is now important and we his we try to keep, it is also work with peer groups, when families who have already gone through a difficult stage of coming out can share their experience of coming out with other families who are going through this experience now, for example, we had a survey, we are 90 families asked about those
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cases when families had to carry a baby, that is, hold a baby weighing less than 2.5 kg. skin to skin on the chest, without separating mothers or fathers, if the mother could not cuddle with the child for physiological reasons, to what extent this process took place in in different regions of ukraine during the full-scale invasion, more than 90 families shared with us their stories, some of them very touching, about these first bondings that happened for each family, how touching, important, and for some painful stories where they did not have the opportunity to touch the child, where... they did not tell about this method, how important and useful it is, especially now during the absence of stable electricity, so for us such information products, projects and the opportunity to unite families, to make groups equal, they are now tools for us that, in our opinion, can fulfill, well, our dream that children are born healthier, give them the best start
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in life, and if already returning again to the families in which they were born. .. dear child, that in this package from the national health service there is something for them that they should know about this free on a free basis, and when they were discharged, i understand that when they are in the hospital, it is one thing, but when the mother is already returned home, she has to, again just like us they said, one on one with the child, what should she know about? well, as i already said, there are 44 packages, in several of these packages, which concern precisely our... families, they concern, for example, pregnancy management, it is the birth itself, it is also a caesarean section or a natural birth, it is at the stage even the birth of a child in a transfer center or in a maternity hospital, for example, we even have banks of breast milk, and even lactation consultation, they also go there, this is actually all psychological support within the hospital, they also go there
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are included, now, in fact, families are not obliged to buy medicines according to the lists, since there were several of them. years ago literally because it was such a widespread practice, now most questions, most questions, not all questions, of course, if it is an improved ward there, or some special services, of course, the family pays for it independently, but all basic questions, they should be covered by medical insurance packages, and in such a case, for example, when the family is discharged and rehabilitation centers or catamnistic offices work, it is for that we ensure before, one might say, a review of the child's condition already after. for discharge at the stage of three, six, 12 months and watched how it develops, that is , the child comes to the center, it is examined, whether there are any deviations from development, if specialized help of a narrow specialist is needed, then everything is received by electronic code, that is, for , to receive these services for free, it is important to receive this code, and then there is a referral, for example, a pediatrician, or
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if it is, for example, from a perinatal center, accordingly, such a service should be provided free of charge, it is important for us that parents... know this and, accordingly, the family can rely on it and receive such financial stability, such a guarantee for themselves, which would also give them a sense of peace in these troubled times, well, guarantees are guarantees, but we understand that, again, in the de-occupied territories, in the front-line territories, women also continue to give birth, and very often it happens that there is no infrastructure there, because hospitals, medical centers. they were destroyed by the russians, bombed as in these situations, do such women come somewhere in safer regions, or do they refuse, and what happens there? in fact, it is really a problem that you cannot equate the centers in kyiv, in lviv, or you can say in big cities, to small destroyed
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areas, where the infrastructure is damaged, or mothers do not have the opportunity to get even to this institution, yesterday we talked, for example, with doctors from kherson, who , for example, had to freeze part of their institution, but at the same time medical assistance continues to be provided, but of course that emotional state and infrastructure and maybe... such a hospital cannot be equated with others, so it seems to me that there should be more help in such institutions, in such locations from government structures, in order to give them more support and somewhere, maybe of some kind administrative help with documents, in particular logistics with medical drugs where possible, i know there are mobile teams for pregnant women and help with mobile teams to get there, i am not sure if this is covered in all regions, i would like it to be in all regions. but in fact, according to our information, we see that these are often the areas where mothers do not receive full medical care, that is, we still want
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these issues to be a priority, so that there is more support for these mothers, for these families, while that the feeling that these families have to dig out, well, you can say, solve these issues on their own, where the financial burden falls on them, because they have to rent housing and find services for themselves. in places and do not have anyone they know in these places places, these are families who turn to us, for example, from the de-occupied territories, they move and have to organize everything on their own, i have a feeling that it is extremely difficult for these families, and therefore i would like to have more assistance programs for families who had to move with young children, so what are the basic resources that families with a newborn, prematurely born child, such as these, need. resources, for example, when we talk about hospitals, does our medicine cope with all this, because we are with you too before the broadcast, they talked about the fact that there is an air raid alarm, there is no light, and doctors do not
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leave such children, these children remain in intensive care, and there is no way to transfer them, for example, to a shelter, i would say that now it is extremely important to support the medical front , primarily from the implementation of the reform, i also hear a lot of questions so that... the form also covers the basic needs of the doctor, so that there is still a decent payment, so that the packages are balanced so that the doctor's conditions are decent, let's say, we in this partnership we are very much waiting for the rights of the patient to be realized and fully covered, as well as the rights of the doctor, our organization does what it can in terms of burnout prevention trainings, this is usually a block of our trainings on the rights of the patient, because we understand where there is no burnout doctor. we will be provided with the best medical services, so we understand that it should be balanced 50 by 50 in order to provide the highest quality services, and therefore
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we will only in such conditions, where the dignity of both parties will be respected, there will be a dialogue on at the same level, will be provided comfortably, there will be this trust, there will be this dialogue, the best services will be provided, so returning to the question, it is important for us that the review. forms and its implementation took into account two sides, there were no distortions in which direction, and that the funding was completely for such babies of basic services, from pregnancy management to supporting the child at the weaning stage, as well as after providing catamnastic observation, rehabilitation, early intervention, until the child stands on his feet and is socialized, actually this is a long process, accordingly the packages that exist, they help to rely on this, they should have a legal basis on our..., all protocols should be written under this, and then we will be able to know that this system works, this is a big process, it's a long process, but i'm inspired by our
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medical teams who, despite everything, are holding on, working, incredibly fulfilling the mission, despite all the challenges that are around, that is, we believe in it, we work together, we try to do what from it depends on us, but you talk about this long process, and that we used to talk with you, and you are telling. when doctors came to us from abroad, they were simply shocked at how professionally our doctors could work during the war, and how much our assistance to ukrainian medicine went up? in fact, i won't go far, i was just this morning and yesterday i was at a pediatric congress, the largest pediatric platform in which people stand on the sides, they are a lot of students. a lot of talk about building our future, a medical community that will work for the future of this country, and that it is very inspiring that the people who are here, they care
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about every child, about every... good community, it generally has a holy mission to ensure that the future of ukraine is as healthy as possible, and that these ukrainians are free and healthy, yes, that is, there were still two sides, and it is very inspiring, in fact, sasha, i know that you actually know a lot of stories that happened during the war. can you briefly tell the success story of one of the families of prematurely born children? we are stuffed with many stories that yulia tells us oleksandrova, we are led by the parents' chat, and very often there are such stories that inspire us, because, for example, the pregnancy said that there is no chance, this pregnancy, well, it is definitely necessary to abort, but for example, the mother says, i believe in this child, i believe in this pregnancy, yulia accompanies her, for example, and then we celebrate with this family for a year, then we celebrate with this family when the child left,
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in fact, such stories when... er, they say some guidelines for a certain child, for example, this child will never walk, this one will never will hear, or this child has no chance, there is always an element of faith, love and a lot of work behind it, in our community we see many such stories that inspire and actually help us to get up sometimes, even when there is no strength to believe that if this child left when they told her that she would never walk, so there is definitely a chance for such stories, well, believe me, you can simply collect a whole album of them, there are many of them, and i can still dream of publishing such a book someday, because it is very inspiring, in fact every one of these stories. sasha, and about your personal experience, which one did you get during the war, which one would you never want to get? it's a difficult question, eh, i would never want to say goodbye to my relatives, not knowing if i will see them again, oh, i was asked, i did not
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expect. question, because we never know when we will say hello to people again, because we said goodbye to them, and it was difficult to see people at the border, when mothers said goodbye to their husbands and did not know if they would be seen again, and in fact all goodbyes or all congratulations, they have become more valuable, we do not know what will happen tomorrow, we live each day his experience, as if it has become extremely more valuable to us. and we don't know what tomorrow will bring, that's why we appreciate each day more, i would like to never say goodbye without knowing if it will be tomorrow, i thank you for this openness, thank you for your strength, thank you very much for your support , because i really couldn't do anything myself without support, so i am very grateful to my team and my team, thank you, thank you to the partners who make it possible to make these movements based on the support of relatives and dear people with whom we share the same values. oleksandr balyasna
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today we visited... and it was a war experience, there are discounts until independence day on imodium, 20% in pharmacies plantain, bam and oskad. fm, galicia. listen to yours. vasyl zima's big broadcast. my name is vasyl zema, this is a big ether on the spresso tv channel. two hours of airtime. two hours of your
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time. i will have colleagues there. to talk about the most important thing for two hours to learn about the war, about the military, front, component, serhiy zgurets, and what the world lives by. yuriy fizar is already with me, and it's time to talk about what's outside took place outside the borders of ukraine. yury, good evening, two hours to keep up with economic news. time to talk about money during the war oleksandr morchuvka with me, and sports news. i invite yevhen pastukhov to the conversation. two hours in the company of favorite presenters. cultural news. our art watcher is ready to tell, good evening. hosts, what? on the weather for this weekend, as well as distinguished guests of the studio, mustafa dzhemiliv, leader of the crimean tatar people, in touch with us, mr. mustafa, greetings, good day, events of the day in two hours, big broadcast vasyl winter, a project for smart and caring people, in the evening with espresso. what is...

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