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tv   Nightline  ABC  July 18, 2017 12:37am-1:07am PDT

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this is "nightline". >> tonight the fight for baby charlie, born with an almost always fatal genetic condition. his parents seeking treatment, british courts ruling he it would be cruel to keep him alive. >> if he's still fighting we're still fighting. and the president and the pope taking sides, with an american family young son who received the same experimental treatment, could it save charlie's life. former one direction harry styles making his acting debut new world what two epic dun ker. >> i think it's important to challenge yourself and do new things. >> and christopher nolan says this is no stud casting.
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what you will see in this movie that's never been done before. also tonight a first look at the last jedi, behind the scenes in the newest chapter of the "star wars" saga and emotional footage of the late terry fisher. but first the night line five.
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good evening and we begin here tonight with a wrenching fight over an 11-month old baby boy, a fight that's brought in everyone from the president to the pope. charlie guard is critically ill and doctors in england say there's nothing to be done but his parents say they're blocked from trying a experimental treatment from an american doctor. here's lindsey janice. >> reporter: 2016, best day of our lives. day charlie was born. >> it's been a battle for connie and chris. >> we're going to fight for him. >> a battle not just against the disease rav aging their son's body but against their own government. >> we can't even take our own
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son home to die. >> this is their 11 month old son who doctors say he cannot see, hear, move or cry born with a rare, genetic disease that left himself earseverely brain damaged. his parents live in the uk and want him to under go experimental treatment in the u.s. but courts say his condition is too grave and it would be cruel to keep him alive. >> we feel it should be up to the parents to decide to give him a chance at night. >> it ignited a fierce debate over hospital's right to treat its patient as it sees fit and parents right to decide for their child. >> it's unimaginable position for anyone to be in. >> the pope extending support. and president trump tweeting if we could help little charlie
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guard we'd be delight led to do so. >> we're there 24 hours a day, if we were suffering in pain we couldn't sit. >> in the uk it is not uncommon for courts to side with hospitals over parents. >> the doctors argument is this child is suffering. i haven't seen any evidence the child is suffering. >> now a sign of hope for the family. >> we're quitele happy with the outcome today. >> the british court giving new support it for the experimental treatment could in fact help their son. this u.s. doctor said there could be 10% chance his muscle strength could improve. today the doctor arriving by charlie's side to assess if anything can be done. >> we can see a variety of symptoms. patients develop muscle weakness, nervous damage,
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seizures. >> doctor is a specialist in this disease. >> the earlier you show the symptoms the more severe the outcome for the patient. >> dr. has tried this before. five years ago with a family here in baltimore. their son, art jr. was 14 months old when they noticed something was wrong. >> i had a strong intuition that something was wrong. i was right. >> at his worst point, how bad was it? >> he was lying in a hospital bed and most he could do sometimes is move his head a little bit to many say no. couldn't even shed steetears. >> he had multiple practice yours in legs and arms and couldn't cry. >> their son diagnosed with a similar syndrome and like charlie doctors told his parents there was little chance for survival. >> you were told there was no home and no cure. >> right that it was terminal
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and average age for these children was three years old. >> he was basically dieing on us. >> but what his parents call a miracle appeared in the form of a pioneering experimental treatment and art would be the first child in the u.s. to get the treatment. they administered first trial at johns hopkins hospital. >> we were very lucky to his geneticist who were like there's hope for this, let's go ahead and try. i will never in my life forget how special that woman is. >> little art went from being on the brink of death to gaining some motor functions back. >> the ipad i would have to grab his hand and arm and push the buttons and you can see, he's in an odd position, he didn't have the tray, he knows the code and
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enters it and off he goes to youtube. >> and he can say ipad. >> he says mommy, daddy. he's a determined little boy. >> a movie on his ipad calling out to his parents. the small joys of childhood they never thought art jr. could have. even with all of his progress art and olga are quick to know the treatment are not a cure. >> he has six alarms and whenever we hear one of the alarms we both jump up. there you go. >> i wonder if he kicked it off. >> in the middle of our interview a feeding break that accompanies three to four treatments he gets every day. >> unfortunately right now there are no therapies that we know of that can could stop a progression of mitochondria disease and doctors say he will
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not get better and that this treatment will make him suffer more. >> i say to them to educ say toy themselves. see how these treatments will create the enzymes that little charlie needs so he could get stronger like my son. >> this family says they'd rather have art jr. like he is never not at all. >> when baby charlie's doctor say this treatment would only cause him more suffering, you laugh. you don't believe that that's the case. >> of course not. i mean, it hasn't caused our son suffering. >> they say charlie deserves the same chance their son was able to get. >> it's difficult sometimes to put yourself in that place. if your own child, there was one little hope, wouldn't you do anything, anything to say that baby? >> i'm confident that charlie
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may get a chance now. >> but the attention tonight is on charlie's brain condition, can the treatment help to reverse the disease or is there already too much damage. their assessment is expected to be completed by thursday. >> he's got nothing to lose. we know we've done, even if it doesn't work, which i think it will, we know we've done everything that we can for him. >> tonight as baby charlie is kept alive by a ventilator his fate rests in the hands of a british judge. >> how do you deal with this deadline hanging over you? >> what other option do we charlie's our son and we love him and we'll fight to the bitter end for him. >> from "nightline" in baltimore. next we shift gears and sit with with terry styles making his acting debut in a world war ii epic alongside people who
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now to the epic world war ii movie from a critically acclaimed director and featuring acting hest weights like mark rylance so how did harry styw dw score a role. >> 400,000 briti british, rounded by the nazi war
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machine, desperate to make the journey home. >> everyone on the beach went through something incredibly dramatic. the enemy is closing in on all sides, they are faced with choice to surrender or a nileation and doesn't end either of those, making it greatest story of all time. >> it lacks the big typical war picture it does have writer, director christopher nolan and his ability to craft unforgettable images. >> so you have thousands of men standing out in this eight foot wide concourse, this sort of bridge to nowhere, the paradox to that the dive bothers with nowhere to go would have to stand and take it. >> there are three interweaving story lines, a cast with oscar winner mark rylance and as a pilot, tom hardy who played bane
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for nolan in "the dark knight ris rises" last of his batman trilogy films. "dunkirk" also has a fresh faced lead 20-year-old. >> we didn't know how many scripts going in or characters there were. i think you only go and do something like that when you have complete faith in the film. >> you're looking for somebody with that unique kind of charisma that movie stars have, which is they can draw the audience into their dilemma with their eyes and expression. >> he's alongside another performer who has always done well on the beach. yes it's harry styles from the bega group one direction. >> looking for a quick way out. >> taking on his first acting role. >> g g g
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>> pretty good for your first time out? >> i'm happy. yeah. i feel incredibly willulucky to been part of this. i think it's important to challenge yourself and do new things. >> no-nonsense nolan is not one for stunt casting and brought to give audiences a touch of harry in the night. >> what i'm seeing in harry's eyes is the truthfulness of the situation. harry completely earned his seat at the table and i'm very, very excited for people to see what he's done now. >> i considered it very much a privilege to get to work with someone like chris. doesn't pumpel a sense of need to over think it. he instills you with confidence by not giving that many notes. >> i think his performance is truthful and subtle. highest compliment you can pay
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an actor sk. >> just 16 when -- >> -- i work in a bakery. >> a tie breaker on x-factor would repeal and replace harry's baking career which brought about one direction's birth in july 2010. what followed was, with well, from story of my life, to best song every. ♪ best song ever ♪ >> songs aimed at the pop audience bringing worldwide success before 2016 hiatus. ♪ stop your crying ♪ baby it's a sign of the times ♪ ♪ >> went on to have a solo record rich in old school emotion with its first single "sign of the times ". >> how do you feel about going before the world in your first film. >> i think any time you put yourself out it there and doing something new there's a degree
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of vulnerability. you have to do that, if you didn't i think life would be pretty boring. >> but his characters are among those on the doomed beach, come dearing a water logged boat in a frantic stint. >> after two weeks in a very small boat sweating, being with each other you definitely have a feeling you are all working towards one thing, which is being finished so you could get out of the thing. >> didn't you think i could be in a rom conif i wanted. >> people kept saying that to me on set. they're like you should have done a ron con. >> never said it to me. >> compelling in the i.t. ooers him. white head keeps the audience more on edge. >> i wanted them to see faces on the screen they have never seen before. they don't know who will live who will die. they don't know.
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>> whitehead seems in the sudden transformation of his day to day lifestyle. >> people keep saying you won't be able to walk the street. >> i keep hearing that but i keep walking the streets and nothing's happening. i'm actually a bit disappointed. no i don't. >> do you have advise what will become when the film comes out? >> run. >> no i think -- finn's a great guy. i don't think he will have any problems. it's just fun. >> meanwhile, nolan's urge to break new ground visually, seen in the air, dog fights in vintage aircraft captured in flight by imax cameras. >> there's a lot of planning and preparation to get the camera right where the pilot would be. right over his shoulder. a romanian plane with two
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cockpits with the camera on the wing with the real pilot behind and the actor in front. >> so you are telling tom hardy this. >> exactly. >> i'm going to put you up in a romanian plane. >> you get shots that have never been done before. and really as a film maker you are trying to give the audience an experience they never had before. >> all of nolan's craft seeking to ensure that blood endures as the drama shot where the real events happen. it's 77 years later not lost on the actors. >> you could feel the history under your feet. there was a feeling. an erieness to the place that i think everyone was very aware of where we were. >> for "nightline" i'm chris conley in los angeles. >> thanks to chris conley and "dunkirk" hits theaters this friday. coming up here on "nightline" new behind the scenes video from the next installment of "star
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wars" our reporter tries to get the stars of the movie to reveal some secrets. >> announcer: abc news "nightline" brought to you by -- ♪ more kinds of crab than ever, new dishes, and all your favorites. only while crabfest lasts. red lobster. now this is seafood. when you're close to the people you love, does psoriasis ever get in the way of a touching moment? if you have moderate to severe psoriasis, you can embrace the chance of completely clear skin with taltz. taltz is proven to give you a chance at completely clear skin. with taltz, up to 90% of patients had a significant improvement of their psoriasis plaques.
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and finally here tonight, "star wars" fans are geeking out about newly released behind the scenes footage but check out what happened when abc's matt gutman tried to pry spoilers out of the cast from the upcoming movie. >> the force was strong this weekend. >> it's about family. >> fans getting an emotional look at the late great itery fishier's final moments in film at the expo where 7,000 "star wars" die hards gathered for behind the scenes peak at the last jedi. >> so many of the details of the highly anticipated film have been shrouded in secretcy and
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even the cast have been left on the dark side when it comes to the details. >> it's going to unfold for even me. >> you don't even know. >> i sometimes ask him. >> but i don't know. >> patience you must have, fans. last jedi expected to hit theaters september 15th. los angeles. >> thanks for watching abc news tonight and as always we're online and on fac [ indistinct chatter ] [ intense music playing ] it's here, but it's going by fast. the opportunity of the year is back: the mercedes-benz summer event. get to your dealer today for incredible once-a-season offers, and start firing up those grilles. lease the e300 for $569 a month at your local mercedes-benz dealer.
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