disneyaulani.com or call your travel agent noche, scomplets mente exhausta, you go home at night, physically, emotionally, you hit that point. 3 f2 un enemigo en el interior. that threatens the lives of all five of their children. >> it's possible. each one may need a new heart just to survive. >> oh my god, you get that feeling like it's never going to end. >> it's pretty hard.

>> tonight the latest in their battle. the break through, setbacks. >> i have to tell myself, it's safe. >> all fueled by faith, love, humor, and amazing graze. >> we never felt, "why us?" >> what will it take to save life. you won't believe their story. you won't forget tear courageful join them, where the heart is. welcome to "dateline," everyone, i'm lester holt. imagine five children in the same family, all with signs of a deadly heart disease. we have been following this sfoer story for years now. as you watch, put yourself in their parents' shoes. would you be as brave as they are.

here's keith morrison. ♪ >> when jason bingham thinks of home, this is what he sees in his mind's eye. this as much a part of him as breathing. as his own heart. >> it's god's country here. we just love it. you can't see neighbors for as far as you can see. it's just a beautiful place. >> a good horse, a faithful dog and a sturdy truck is about all he need out here. until he met her. and what happened when he met stacy, love, but for them, way out here in god's country, it truly was. a grand sweeping landscape, a town of 400 or so. here, jason bingham worked at his father's accounting

business. stacy was a nurse at a nearby hospital. this is a home the bingham's loved, where they imagined they'd raise their kids and live for the rest of their lives. >> hi, we're late forturech. sierra is compassionate and loving. megan, confident and athletic and lindsey is our hockey mom, she makes sure everyone stays in line. hunter is a happy go lucky five-year-old. full of energy and life. then gabe, who is kind of the family clown. >> i love him. >>. >> but parties, of course, don't last forever, because the bingham family was about to become a certified medical mystery. one of the strangest off the

charts unlikely stories we've ever heard of. it began here in may, 2006, when sierra, the ellest, threw up for self days. her parents took her to the doctors. >> the doctor comes in and says, we have one of three things here, it could be pneumonia a, a farm of cancer or something echo my cardia. >> it was dilated cardio mi mimiopathy. >> first are you in a misty fog. kind of like your world came frush crushing in around you. then just trying to put your mind around it, grasp it, there's fear. >> the doctors put sierra on heavy medication and sent her home. >> i remember asking her to help plant some flowers that would be coming back every years ago so

if something did happen, i'd have some kind of memory of her. she was too tiertd or too weak to do it. >> sierra was failing fast. nothing the hospitals near home could do. so she was flown to a children's hospital nlt in the heart of the silicon valley, a world away from oregon's eastern prairie. even here, there were no easy answers. and the considers gave jason and stacy the news, would you tell an almost immediate heart transplant, their dauger would die. >> it was horrible. when we came into the nightmare, it was the worst bar none three weeks of my night. >> the wait for a donor heart for a child could be months. it was time sierra didn't have. >> to say there is a time when you've said every prayer you can be shed, to come home at night completeliest haufted,

physically, emotionally, i mean you hit that point. >> we asked people, please, pray for our child's life. at 1:30 in the morning, i got a phone call. i thought, that's it. >> we thought that was for the worst. the doctors called. they said, we have a heart for sierra. i was like, are you serious? >> the bingham's prayers were answered. a nice afternoon, sierra received her new heart. it had longed to a 4 kweerld boy. in the world of heart transplant size matters more than age. sierra's new heart would grow as she did. >> when it came, we knew everything was going to be fine. there was never any doubt. >> but the bingham's wondered why. why did sierra's own heart fail? did they node to worry about their other kids in the doctors assured them the likelihood was extremely remote.

but just to be sure, they tested them both and the echo cardio grams detected no hint of the zeechltz there was no heart disease on either stacy or jason's family. >> we thought, good, rule that out. that's not an issue then. >> and then came lindsey's tummy ache. it was 2012, six years after sierra's transplant, lindsey the third eldest vomited at school. >> we thought, well, it could not be the same. i think both of us were probably if denial. >> they took her to the e.r. in nearby baker city, where the doctor examined her. then asked jason and stacy about sierra. >> he said she's got the same thing. >> an ej enlarged heart in. >> i lost it. i couldn't keep my composure.

and i started sobbing. >> lindsey grew sick so quickly. the very next day she was flown to hewlett packard children's hospital the same place they brought sierra for her heart transplant six years earlier. now it was impossible to not think there was a genetic link. so jason brought the rest of the children here, too. to test. >> it was a friday, r d-day i think. we were sat down and told all of our five children all of them had cardio mymyopathy or flaggers. >> their doctors were as o'stonnished as they were. even though the electrocardiograms looked earlier, now every single one would be confronted with one day requiring a heart transplant, just to stay alive.

that's when we first met them and a decent heart to make people aware of the desperate need, they agreed to trust us. they allowed our cameras to follow them, through moments of despair and courage and bottomless love. >> okay. i will be right here. >> a journey unlike anything you've ever seen before. >> coming up, danger strikes the very youngest. three-year-old gabe. >> they said he's in complete heart block. we need to admit him. >> and little lindsey. >> it goes up here. they both connect to my heart. >> is there hope and a heart for her? >> someone out there has a child that will save her life.

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>> when trouble came to visit the bingham family in oregon, it came if bulk, family size, all children had cardiomyopathy, it was in their dna. at southwest, sierra was living with a transplampbted heart half her life. now lindsey's heart was failing. on june 20th, 20 twifl, she was put on the transplant list. to lighten her mood, jason promised to let his beard grow until she got a new heart. she was near death. her only option, immediate surgery to implant a high-tech pump until a heart became available. >> it's just like a heart transplant, only i won't be getting a heart.

>> the surgery was successful. buying lindsey critical time. however, when she was recovering in icu. her parents experienced another setback. it was gabe this time. they took him to the emergency room. >> they said, he's in complete heart block. we need to admit him. >> we had doctors checking him more than they were checking lindsey that night. >> how did you feel? >> unbelievable. >> now gabe, the years old, was rushed into surgery to have a pace maker implanted. by the end of that awful day the bingham's had two children in post-operative icu. children, within two weeks, gabe with his new pace maker was up and about and lindsey who had been near death was proudly showing off her mechanical heart.

>> it goes up into here. it all connects to my heart and this pump is to there. this helps me so what are you going to do now? >> have a heart transplant, right? >> naturally, understandably one who is still quite afraid. >> a nancy little heart there. what is that like to wear? >> when i stand up, you can kind of feel it pumpling. >> yeah. >> you feel your heart beat, it's beating on the outside of your body? >> this allowed her to fool healthy enough like regular little girls, to skip, jump, play, all sense of security, because we forget she is still on a heart device that is keeping her heart pumping.

>> the rest of the family moved into ronald mcdonald house, across from the hospital. two bedrooms for all of them and lindsey enrolled the children in city schools, worlds away from anything they had ever known before. >> my class and grade, my 8th grade is 200 kids. >> but sierra is where lindsey was now. they offered a nice about the endless needles and biopsys and the daily troors of her new life. >> i asked sierra what it was really like to have a heart. >> what did she tell you? >> she told me, it was kind of scary at first but then -- >> her siblings worked to build her up.

>> and as jason and stacy waited, a remarkable lightness carried them to their long draining days, their sleepless nights. they did not complain. they remained upbeat for the kids and.them the meaning of gratitude for what they have been given. did they understand where the hearts came from? >> yes, they do. >> donor information is kept strictly confidential. but messages between the families can be exchanged anonymously through the donor, so shortly after sierra's transplant, they santa donor letter. they received it back from the grandmother whose heart now beats if sierra's chest. >> truly grateful. to the mother and the grandmother that wrote the letter the sacrifices she made. >> you will be eternally grateful to some mother and a

family. >> i prayed for that family out there. someone out there this western united states has a child that will save her life. >> there was, of course, no way to know if, or when, there will be a heart more lindsey. jason and stacy were routinely aware some 50 children die each 84 waiting for a heart. and here, as they waited, two months passed. then three. the seasons changed. jason feared for longer. people understood all this costs more than, lots of money. binghams had insurance, but it doesn't cover the expensive multiple medications the kids will need every day for the rest of their lives. tens of thousands a year. and so the people of hanes put on an auction. they raised nearly $75,000. occasionally, jason went home to

lend a hand on the family cattle drive or pick up clothes for the kids who were now outgrowing them. >> it's a lonely place. i don't know how we're going to continue to live here remember we want to live here so bad. >> but of course they couldn't go home. >> labor day, we thought we'd give lindsey a chance to labor. >> they celebrated halloween in the hospital, followed by thanksgiving, then christmas. jason and stacy brought an artificial tree into lindsey's room. she put on the finishing touch. her beads of courage. each body representing a needle poke or a day in the hospital or procedure she's endured. the string wrapped around the tree three times. christmas came and went and valentine's day approached. they had been waiting nearly eight months. >> what do you want forward?

>> to get a few heart. >> and then? >> and then go home. >> at 6:00 p.m. the doctor pulled stacy out of lindsey's room, she refused to tell the kids what she was told. >> she doesn't know anything. >> then stacy called jason an waited for him to arrive. he passed the nurse's station. >> guess what? >> i knew it! >> guess what! >> we got a guest. >> what? who is it? >> you have a --

>> aahhh! >> it's going to happen. you waited. >> so she did. so what was coming next, who could predict? >> oh, we did it! >> coming up, pump up the volume, lindsey takes sendoff to surgery. >> this is where i get the biggest hug in the world. >> but wait, sierra -- the medical roller coaster takes another dip. when "dateline" continues. sweeper and dusters. er this is nice and easy boys. it really sticks to it. it fits in all the tight spaces. this is really great. does that look familiar to you?

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. >> this has to be a dream. i'm like wake up, lindsey, wake up. but it's not. >> 8-year-old lindsey bingham has been waiting for a heart for 239 days.

now, finally, they have found a match. the doctors scheduled surgery the next afternoon. >> i'm just scared a little. i'm scared. we're going to be coming up and then putting our hearts and another one in. >> the swirls can put the emotions even more so for lindsey's parents. they see she's been dreading to share it with jisen. it's about their eldest daughter, sierra, who had a routine check-up earlier in the day. >> sierra is downstairs. she's actually, she's actually going to be admitted to the cdicu. >> cdicu stands for cardio vascular intensive care dwruvenlt sudden change in jason's demoneyor shows you how grave is the news. >> i don't know what to do. what's going on? >> they just said that her pressure is really high.

and so they wanted to admit her. >> we have a daughter going in for a transplant in a few hours. >> i can't till how much. >> stacy and jason tried to put a positive spin on it when they told sierra. >> so when they get back here, then the side of the rejection or something else. >> lindsay is in intensive care. >> they caught it? >> but the binghams know exactly how serious she is. if treatment doesn't work, it could mean sierra will go back

on the transplant list. >> just because you get a transplant doesn't mean it's over. >> so mind in turmoil, heart goes in two directions on this one climactic day. her nurses had to keep her upbeat before surgery. lindsey learns shell get her new heart in the first hour. and finally, 30 hours after they learned about the donor heart, it's tim to go. >> take it all the way up. you earned this one. >> lindsey chooses her own sound track. somebody to love. >> it seems through everything, put this around you like you mean it. >> with her baby blafrg et transformed into a super hero cape, she is ready to face the

serious event of her lung life, jason works. >> it's like the biggest hug in the world, okay? i'll see you in just a few minutes. all right? >> all right. >> and then what happens in a few minutes? all right. >> all right. >> wake up. >> you go to sleep. you wake right up. >> and then i get better in. >> yeah. >> love you lindsey. >> lindsey, sound like the next child in mind. stacy and jason pack everything up until they wait for the children's heart to arrive. >> they will be here in 15 minutes. >> hi. >> you have the heart? >> she's ready to go jason and stacy aren't prepared for the emotion. >> the reality of it, when we

saw that, it's a human heart. to see that, it's opened up and ready and waiting for us. >> it's been strange emotion, life captured in this small container, passed from one child to another even as a third heart struggles just down the hall. coming up, precision inside the operating room and emotions outside put two daughter's line, could they be on the line in. >> you want it so bad.

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>> i'll see you in just a few minutes. all right? >> all right. >> lindsey heads to the operating room in the children's hospital in palo alto. where surgeons are replacing her failing heart. her parents receive updates into the nit and into the morning. >> the doctor, after reporting about lindsey, switches the conversation to sierra. >> i'd like to meet with you to come up with more effective long-term project. >> i like to hear you say the options. >> this conversation mind you is taking place while lindsey is still in surgery. while doctors stitch together five separate connections. they begin with the new heart

outside lindsey's body and finish up once it's put inside t. heart has not beaten since it was taken from the donor nearly four hours earlier. the next step is crucial t. team uses a defib little rater to spark her new heart back to life. immediately it begins to pump and soon finds its rite him. >> it took a couple hours longer than i expected. everything went very, very smoothly. >> all right the binghams now have two daughters. sierra's boups show anti-bodies are attacking her body and have caused damage. they call it hyperparesis. they attempt to mof the terrible anti-bodies, sometimes it works. sometimes it doesn't. there is a chance to swievgs sierra will node heart transplant.

>> the reality of it is never going to be the thing. there has always been something. now that always something will be times two. you know. you felt like your emotions were on a roller coaster. you want to be happy for the one. you are trying so bad. you want to cry so bad with the other one. >> hill gain has the same heart disease, already a pace maker at age four. jason and stacy do their own form of triage, focusing on the sickest child. for now, that's lindsey. >> days after the heart transplant are, of course, critical and lindsey's first few brings complications. but soon she's up, walking, without an artificial heart pump for the first time in eight months and jason keeps a promise.

by letting lindsey cut off the straggling border when she was placed on the translant list. >> one at a time. good! whoa! two weeks after getting her new heart, lindsey is ready to leave the hospital. >> are you ready to go? >> she's out of here. >> she isn't going far, behind, running down the straight with the ronald mcdonald house, both lindsey and sierra are cleared for the trims they so desperately wanted. but first, another biopsy. to see if sierra's treatment stops or at least flows to rejection. cardiologist daniel bernstein will make the call. >> i think right now, things are going well. can you go home and let's see how things go the next couple years. if things quiet down, no

problem, then you are fine where are you. >> word the binghams wondered if they would ever hear again. if spite of all they have been through, they are greatful. >> we walked away twice now with two children still alive and that's more than some parents can say in half a week here. we can go home with five children. >> it was an all out surreal celebration. >> that day in 2013, as if their troubles had been forced to retreat outside their own little bubble of happiness. it was a long drive home to oregon, but a big surprise to just about the whole town. >> how are you? good to see. >> you sierra, overjoyed to see her old friend and lindsey the trampoline, just a regular kid again. so are you letting yourself feel like this is home? can you quit go there?

>> we got a new norm now. to think it's over, no, it's just the beginning. >> the family, though, was finally back on the ranch and the binghams settled gracefully that near new normal. coming up, a setback for sierra. >> it's time to start taking her for a transplant. >> you get that feeling like it's never going to end. >> she meets her second family. her heart donor family. >> tell us about this one.

>> when "dateline" continues. >> the binghams have settled into their new normal t. chaos of raising five children, two of whom have transplanted hearts a. third with a pace maker. two years have gone by, years during which they've managed to stay here in oregon, far from the hospital in the home they love so much. lindsey is now off the anti-rejection steroid and has a fresh set of braces on her tithe. sierra is in high school, learning to drive. they make the trek to palo alto every few months to check on a

biopsy, which lindsey actually looked forward to. stacy is the girl's most loyal cheerleader, but on this trip to the hospital, january 2015, it became uneasy. >> i have a lot of anxiety over this one. is it going to be something simple or worry not prepared for? >> sierra has had some swelling. a cough that won't go away. >> one after the other. girls go in for their biopsy. the procedure that once frightened lindsey has become old hat. ? i'm fine. lindsey's transplanted heart is working beautifully. no sign of rejection, but what about sierra's? >> after this, no pushing. >> she has been fighting rejection for several years now. >> the real question, to be

perfectly honest, is whether or not i have to start taking o. >> sierra's condition has worsened. the doctor explains, they've run out of options to fight the anti-bodies that are attacking her heart. >> your pressure is up again, did they tell new. >> yes. >> how many times? you get that feeling of impending doom, like it's never going to en. it's on repeat. >> it doesn't last forever. so if you are an older transplant, you may be able to live out the natural duration of your life. we didn't transplant sierra at the age of 7 years old to get her to 10th grade. we want to give sierra a nice, long, normal life. >> so sierra was back on the transplant waiting list. but the doctors warn the wait

could be much longer, two years, because of her condition, an artificial heart pump is not an option. as difficult as the news is to hear. in typical bingham form, stacy find a bright side. >> we are grateful for all the breaks we get. i guess it's go home and get that breath of fresh air before the next thing hits. >> a month later the binghams are back at the hospital to learn more about what's next for sierra. they bring gain along for a pace maker adjustment. >> are you ready for mr. turtle? >> at the age of 6, he's had a pace maker for three years now. sierra was gauge's age when she had her first heart transplant. now she's 15, she can say no if she decides she doesn't want a second transplanted. she has asked her parents not to keep any secrets about what's ahead, no matter how scary and scary it certainly is. >> you go in the middle of the

night to check if she has a pulse, i get scared to death that she won't be there in the morning. >> in fact, sierra's condition deteriorates quickly, soon she and stacy are back in palo alto to wait close to the hospital to wait for a donor heart. trying to keep life as normal as povenl sierra attends prom at the hospital with another patient. then out of the blue, the binghams receive an e-mail from the grandmatter of sierra's first donor, a woman that saw the first report back in 2013 and had a feeling it was her grandson's heart that saved sierra. when she looked up the bingham's blog, she knew she was right. his they'll was nicholas. now she has learned that nicholas' heart, beat income sierra's chest is failing. and she and her family, including nicholas' brother and

sister want to meet sierra. they meet in a park, not far from the hospital. >> this is sierra. >> hi, sierra. >> how are you? >> sierra brings a stethoscope so they can listen to nicholas' heart one last time. stacy tells the family that sierra's first reaction when she learned she'd need a new heart was guilt that she couldn't keep nicholas' heart alive longer. >> it's just something that happenss. we don't know why. but i do want you to know that i did value that heart and the nine years she's had it. >> so tell us about nicholas. >> well -- >>. >> the binghams assumed nicholas died in an accident. now they learned the horrifying

truth, nicholas was murdered by his drug addicted stepfather. his organs went to sierra and two other children. >> it's been easier on us knowing that he was able to help three other, three people, not just sierra, so that's helped us a lot. >> they take pictures together. this unlikely blended family. and then just three weeks later, just like that, the wait is over. the donor heart is available, much sooner than anyone expected. before she goes in for her second transplant, a reminder that in spite of her medical condition, sierra is a regular teenager, a surprise visit from an admirer. >> boys, we haven't seen this hall before, have we? >> minute later, more good byes outside the o.r. doors they have been to before and will be again. >> we will miss you, gain. >> for jason an stacy, another

long night of waiting and worrying. >> coming up, the operating door revolves again, sierra out of surgery and what's this? little gain heading in? >>. >> to think he walked in here a happy little kid is pretty hard.

>>. >> she is 15-years-old, sierra bingham is about to undergo her second heart transplanted. the heart that kept her alive for almost nine years is failing more rapidly than anyone anticipated. the considers are running out of options. >> i was really getting nervous. it's heart wrenching to see your kid plummet.

like how close to deaths door are we going to be knocking before something becomes available? >> now the surgeons removed that failing heart. soon the donor arrived. doctors enspec the donor heart to make sure there are no surprises. it looks perfect. imt implantation begins. >> hi. >> it's the middle of the night. jason and stacy have been waiting for news. >> it's a long night. >> yeah. >> good. >> yes, have a seat. so everything went well very smoothly. >> a healthy heart is beating in sierra's chest. she's been given a fresh start for the second time in her young life. her recovery goes unbelievably smoothly. >> she's leaving, but we're out of here. we're heading home, baby. >> sierra is released from the hospital in record time after just eight days.

she's already thinking about what she'll do with this next chapter. >> doing the simple things in life. like going to the beach. hanging out with friends, going to church and stuff. >> she and stacy plan to spend a near stint the ronald mcdonald house and surprise the family by returning a week earlier than expected. another shoe was about to drop. a doctor has asked to speak as to jason and stacy? your heart just sifrgs a little bit like, why? why not it's not to invite to us a bar-b-que. >> in checking gauge's pace maker. doctors discovered he had two episodes in the night wheres his heart flutters, rather than beats. either one could have been fatal. his heart is worsening. in addition to the pace maker he already has, he needs to have a di fibrillator this to shock his heart into rhythm if it stops again. jason is worried, gain is headed

to the transplant list. >> we'll see what happens. we don't know too much. i'm not -- i'm ready to go home a little bit and not take it further for a year or two. it's good if he's doing, i have to prepare myself that things could change. so. >> jason an stacy have had no time to recover from sierra's transplant. no time to recharge before this next crisis. they are emotionally exhausted. >> give him a good last kiss. >> be brave. >> surgeonings have warned jason and stacy that there is a chance gauge could come out of surgery on an artificial heart pump similar to the one lindsey was on. it would mean he could not leave the hospital until a donor heart could be found. >> to think he walked in here a happy little kid with this little bear and to think he

might come out or we could get the call any second now that they had to put him on a heart device, it's pretty hard. >> but gain's surgery goes well. no artificial heart pump necessary. finally, they get to go home. the hardware inside gauge's tiny chest regulates the boat of his heart. but he can't stop the pro greg which is happening must faster than anyone anticipated. he had always shaken his head, no, when his parents told him he needed a transplant. one night, tired and having thrown up, gain few it was time. >> he goes, you're right, mom, i'm like i'm right what about? he says, i do need a heart. it's time. i think in his way, he was accepting the reality of it.

it was heart wrenching. >> just three months after his last surgery gauge is back at the hospital to have a tiny heart implanted in his chest. >> can i have your autograph? >> it's okay for a doctor to remove a small piece of his heart so they can study what is causing his and his sibling's heart disease. then yet another good-bye outside the o.r.a. place the binghams know all too well. >> you be brave, okay? you are a brave boy. >> gauge's teddy bear woody goes in with him. surgery goes smoothly and soon gauge is back on his feet. the equipment that's keeping him alive is far more portable than lindsey's was. he can caret on his back. and once again, all the binghams are back in palo alto, where they'll wait together for gain to get his new heart.

in the meantime, he has a lot of questions. >> what did you do it feel to have a new heart in. >> you will feel so much better. seeing how sierra and lindsey are? how they are right now? that's how you will feel. >> gauge's will be the fourth transplant for this young family. their eighth open hart surgery. we have wondered, so many times, in the years we followed them, how do they keep going? >> you have a heart! >> yay! >> aren't they resentful? don't they feel sorry for themselves? many would ask, "why us?" but the binghams, not for a moment. >> i never felt, "why us?" i feel like we have been prif leenld to have five amazing kids. and if we've succeeded that they are healthy and live a long life and have a very good childhood,

i'd say we were successful at being parents. >> an inspirational family, each and every one of them. thanks for watching. . my heart stopped three times. >> he told me that i was terminal and that i was going to die. >> each story is worse than the next one. >> he had an impressive resume. an impeccable reputation. >> people said he's the best cancer doctor out there. >> i really felt he was doing god's work. >> but behind the closed doors of these cancer clinics, a secret as deadly as the disease itself. >> my husband. he has absolutely nothing wrong with him. >> healthy patients, treated