tv Za granyu NTV August 25, 2022 4:45pm-5:51pm MSK
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useful, and the parents are very modest. i don't think they went anywhere for help. and how will your grandson get to know this boy in general, they are classmates, your grandson ralph is studying together how he perceived this guy, but at first he was in shock, but then they became friends, what he tells us about murata. he is very kind and helpful. he is just a normal, humble kid. and you talk about it, how eh? hmm, we don’t communicate with friends, but once our children study together in the same class, we have a meeting of events. this is how we communicate what kind of murat's parents are very modest , hardworking. they work for murat. they are experiencing. they are very kind, and murat is their only child. no, marat has a sister and a brother, that is, in addition to the fact that they have
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an unusual son, this is a completely ordinary family. ah, friendly family. so let's invite your grandson's friend to us together with his parents in our studio aliya fuad and murat kashkarovich. hello, your friend's grandmother told us so many good things about you. he must be such a good friend, like you. what would you normally do with it? well , we usually ride bikes. if everyone has them, and if not, then i communicate more with people who are enlarged. ah guys, maybe sometimes they make fun of you, you know, sometimes they are like well-known children, but only if they are small, maybe six or five years old, that is, peers. everything
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is well understood. they know you and accept you as you are, yes, an ordinary school and what kind of academic performance he has. smart boy tell us what you want to be. when will you grow up? i am i want to become a psychologist. why a psychologist? because it was sulfur that interested me very much, it was he who understood people, what do they do? why do they do it? you know, usually children dream of becoming fire doctors and teachers. for example, you never wanted to be a doctor after i spent too much time at the hospital, but i don't want to anymore. that's where, by the way, how many operations have you already experienced murat 13 operations 13 years 13 operations. yes,
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it happened that the operation was twice a year. and what operations were the most difficult remember, the most difficult were, when they put eight on him as a fucking man, we will never forget it for him. this is a tube. he breathes through it. and this is a straight path easy. and the fact that it is dangerous is that the lungs immediately get infections because of this, it must be protected all the time when there are other sars. children, even though they cough or sneeze, there are already infections nearby, it is dangerous for him, but does he muzzle his nose or not? well, when they put on the fucker and said that the snot would dry up, uh, he wouldn’t smell, uh, and breathe through a tube, but other children would not know. maybe so it was, but in general he breathes and feels murata and there is still snot and breathes and is not necessary, but during the operation they said it would be necessary to continue because of this they left. that is, he breathes in this part, yes, and
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even with his nose, and what was the problem for aliya. why was it necessary? this three hundred unplanned operation started to make everything start to swell and murat began to suffocate and, uh, without my bike. uh, had to save the child and puts fuck. now he stands in the case. when from the difficulty of breathing of the bound a in particular he has it because of the anatomical structure of the trachea, he has problems with the main disease with the diameter of the trichial tubes. because of this, the edema on it is still aggravated, the disease itself is the main one, but due to the fact that it has an increased development of bone muscle mucous tissue. because of this, he just has a certain deformation of the musculoskeletal skeleton and facial. that is, here, just everything together and spent at home was also the reason. that is why, what is the name of murat's disease and his syndrome is a rather rare protea syndrome, if we say specifically about the protein syndrome, this is a very rare
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genetic disease that is associated with a mutation of eugene and ct is a gene that encodes e, a special enzyme that activates cell growth. that is, he activates this hyper here. uh, the plastic process, when does it happen? overgrowth of various tissues overgrowth of limb parts of the body and other complications that are associated with this overgrowth, it is genetic, but it is not associated with transmission from the carrier parent, for example, or it is not associated with transmission from generation to generation, that is, we say that it is innate and genetic. well, of course, as such, it is not a classic hereditary disease. i would like to reiterate the idea of the rarity of this disease, when it was first described in 1979 worldwide found by only 200
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people. yes, only that is documented, since genetic analyzes were not carried out, there were questions whether this was a true proteus syndrome, and, accordingly, there were very few of them. well, i'm glad, but this is a tracheostomy. she doesn't stop you from playing outdoor games. run, well, it just does not interfere. here is swimming. she interferes a lot. i cannot swim due to the fact that it is a direct path to the lungs and the limited must be the last water. what are you interested in? my dream to become an esportsman is to achieve success in this series. well, at least a bridge across two levels. this is exactly the maximum. you are spending a lot of time on this right now. well, i allocate a couple of hours a day, you know murat, there are professional cybersportsmen in our studio. vyacheslav slava to become a champion in your sport,
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what qualities you need to have is self-confidence, perseverance. uh, you really need to do the same thing a lot, that is, everything will turn into a routine. in a sense, this should repeat some actions in order to become better at them. well, as in ordinary sports, that is, hit the goal there or drive the puck there, so, well, i’ll note the last. it's probably an emotional controller. that is, you should not upset the image, on the contrary, motivate yourself with some of your achievements. but you murat strongly get upset. if you lose, well, not really, i have already learned to control my emotions, you never stopped me. if i'm losing, you know, something's wrong, i always try to improve, so that i can take control of the game next time. well glad. show vyacheslav your skills, well, i can show you. here is alia well, you have an
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amazing son, you feel that he is well brought up, that he is very kind, that he is smart. i would even say not by age, absolutely for my 13 years. murat is practically a psychologist and really his pain. here it is. yes. e feature. she made him just such a person who will feel the pain of other people, the quality that psychologists need. when you were told that your son would be in trouble. what predictions did the doctors give you? well, doctors first. uh, they said that it was necessary to solve problems or i made up a consultation, of course, and uh, if this is an operated one, did they say you can give birth? and if not operated, then you will have to terminate the pregnancy, as we found out, we didn’t believe right away during this period we began
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we then passed 11 times near the winter, because we did not believe. did they send one specialist, he does not see again. uh, send another one who told us that this was such a diagnosis. here, uh, they went to a consultation. there, the landmarks looked at the photo and said that everything is fine, everything will be fine, we will do the operation, everything will be fine. and this made us happy, and we decided, uh, to leave the child, maxillary facial surgeons. they said that without leaving home after the maternity hospital, all the doctors there will observe and perform the operation on you right away they showed my son after the birth, they immediately showed him, just to the militia, but they didn’t give me a hand. i had a difficult birth, i just didn’t eat for two days and
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i didn’t have the strength to get up after two days, when i came to myself i could already hear screams. uh, the kids are away from the end of the hallway and i'm holding onto the wall. this is how this one went on the sly, where one could hear it approached through the glass windows. i looked at my child. i wanted to take him in my arms, but they didn’t let me, then they thought that it hurt him to touch his cheek at all. there is no way to eat, suck breasts impossible. and the cheek was already big. yes? well, like a puffy cheek, that's just how it was. how many months are there or maybe days about 3 months under when you first saw your son to experience? well, here i came, but i showed my son, i looked, but what a uh, that
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i didn’t have all this in vain, then at least some, but my own sanction. aliya and why didn't the doctors perform the promised operation for you right away, when they saw it, they probably didn't think that there were gums that were hurt and they just took a biopsy from the scar. in a week we have released directly from the unhealed wound. we drove home on one side. i thank my doctors, because they really didn’t know anything, if you don’t know, it’s better not to touch ali and so, maybe it was necessary to send you and your child to another regional hospital or to moscow, huh? well, i think that at that time the child was too small, and they thought that the child was growing and this one was growing and did not know what to do, there are different situations and looked already, depending on the clinical manifestations, of course, decides, as far as i understand, they had a medical commission assembled from various specialists. and that's just the decision yes
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, i understand correctly, it was made that for the time being they leave it under control, because not all studies can be carried out in utero. if they thought of a simpler diagnosis, there really was little to suggest that it would be proteus syndrome, and it is indeed very rare to deliver. the diagnosis of the syndrome, proteus in utero, is almost impossible. that is, what was evaluated here within the framework of the perinatal consultation. can you help after childbirth? will the fetus be capable of life after childbirth, that is, perhaps this pathology is so life-threatening that the prognosis will be negative, it seemed like a good surgeon. they said that help could be provided, respectively, by these recommendations for the prolongation of pregnancy and the birth of a child. and then, after the birth, specialists of a wider profile are connected, or vice versa, more narrowly, depending on this particular situation. and concrete help is already being provided. never alone
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some doctor does not make a decision about the fate of the fetus. it's always an opinion. only an opinion, but also objective data, data from all the clinical recommendations of the examination results that are discussed within the framework of the consultation, that is, olga cannot be said to be a medical error. it cannot be said that it was a medical error. and more than that, big to you. thank you for being here today, because, of course, 13 years ago our opportunities were not like that, but today someone will look at our program with a similar situation and find out that we have and free diagnostics in the country in such situations. that is, all children with the syndrome, and overgrowth. they can receive free genetic diagnostics under special programs for examination and further treatment, including which can generally prevent this serious complication. and this overgrowth, what kind of operations are performed first of all, uh,
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on such children by a very small patient? proteus syndrome surgery is carried out exclusively according to indications of lifelong necessity, if growth tissue affects the functioning of internal organs for feeding on breathing, then they are forced to perform operations. the patient needs to be given some time for his tissues to form, so that it is clear the direction of their growth. what changes the protein syndrome is characterized by mosaicism, it can manifest itself in very different organs and systems, so they first determine what grows, and then they begin to think about how to correct it, how to at least set the direction of growth. i can't tell that it will work out 100%, but it makes sense to do it, because it will seriously improve the quality of life. and this should be done at a young age, or it can be done when a person has already grown up at a young age, the body continues to grow, if you set the direction of growth, then it will grow up more or less
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formed normal, if in an adult state, then rehabilitation and recovery. alexandra will be much more difficult, and such a delicate issue is the life expectancy of people with such a disease, it is less difficult to say, taking into account the fact that it is really a very rare disease, therefore, the average duration and this is always under the long-term supervision of doctors, and if this does not complicate the respiratory system, the vascular activity does not impede any other functions of the body, then in general they live full-fledged. as you can see, he is very vkontakte, he is pretty. very well preserved. tell me, what kind of predictions for the life expectancy of murat did the doctors give you, they didn’t say straight out that you won’t live, and will die soon, this has never happened. how long will you live and will you look for your loved ones reacted to murat's illness and now i remember. that's when they were discharged from the hospital. i
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brought her home and the relatives gathered. but they already knew that the child was not quite ordinary, they looked with sympathy. and were there those who still, well, he doubted reproached. there were such conversations. e were. of course they gave advice. well, uh, you think, of course they are. uh, somehow they wanted to protect us from this , they thought that you would go to the hospital every time. they probably wanted to take care of us and gave advice. well, almost persuaded. this is the sister of her husband. she didn’t take your son for us, but some kind of grandmother. of course, she was already disappointed. she constantly told her my sons, here are the children, they are so
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healthy, and you have such a different one, a child, a grandmother, this is your mother, yes, yes, she finally accepted, murata accepted, but in my soul i still feel that she didn’t accept, but still, uh, i’m her that this one lives with her son, i’m silent. she just swears, although she will speak. i am silent and that's it. i go and defeat her, tell me if you are somewhere leaving, yes, on some business. you can remain your mother-in-law no, when you lived with them for two and a half years, murat wakes up in the morning and, uh, i put it in a basin. so he wrote, and, uh, i had to keep many from time to time, but she didn’t, and it turned out that i came home, and he was in wet pants, and after that i didn’t leave. that's when you talk about your relatives. you somehow that's intelligent and streamlined culturally.
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you describe all this somehow, but for sure , uh, in your history there were people who, most likely, they pointed a finger and said that but you see, something is wrong in life, they probably did it, yes, or you are punished and did you have some kind of turning point, after which you just wanted to give up, there was, when i lay with murat for a long time. i just wanted to hug and jump from the window like this. oh my god, it was like that, i always say, it's good that i didn't do it, because murat loves to live. oh, he's so smart. it's good that i didn't fall with him. were on the face of the stage of acceptance of grief, the stage of acceptance of any situations always. uh, all these feelings come one after another, first comes anger, after which the next second stage is bargaining, when we do 11 ultrasounds, the third stage is depression, when aliya wanted to jump and the fourth stage is acceptance.
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and all the relatives went through the same stages in turn, all at different times, so they sometimes already received someone, and someone else got anger nonetheless. aliya is not only your mother-in-law, but also aunt murata still believes that 13 years ago. you had to yield otherwise in sarwar's studio from kozhina hello sarvar please go through, what exactly did you think aliya pre should have done 13 years ago, she warned you might have an abortion, because i already knew that it would be difficult for them, that it would be physical and mental with a sick child. uh, why would you torture a child, but they decided to leave the child once, as they decided their decisions. i already
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accepted this child was so strong. there are so many operations, so many adults, they can’t even stand it. i already said, he must live alexander a. tell me, is the situation to give birth or not give birth? it's like to be or not to be? how often do parents? e ask themselves this question, of course, but it depends not only on the parents. there are, firstly, certain deadlines for determining certain intrauterine pathologies; here the issue is resolved at the medical commission together with the parents to make a decision ; and if already this is a more accurate diagnosis there is no more accurate diagnosis. not only weighed, but already all together by a council to decide and the need to preserve life or not life saving. and what decision parents make more often in different ways, it happens that they clearly understand that they don’t, but in any case we give birth and how it will turn out, we will take it already at this stage. and there are some that
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are very difficult to pass. uh, stages of adoption and already at the consultations. they also decide the life and functionality of the child's body, it happens that they accept to give birth, and then refuse, in fact, i bow to children. how many moments have i seen like this? situations of serious illness, how they behave heroically with restraint and how they raised a child , the words of admiration only resonated with me. eh, the question is to give birth or not to give birth? and it seems to me that this question, in principle, determines our society, who we are today, because here i am looking at the family. i do n’t see flawed people, unfortunate people or people who tear their hair out, but i had to do as i said. and now i see a relative of happy people, and i am more than sure that there must have been some. it may be an intuition that prompted. yes, maybe this information did not appear on purpose from the doctors, how could it be, and people are reaching out for this, and they are happy, and
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there is life. have a dream. the goal is to become a cyber champion. there is a whole way of life of a separate family, which, in principle, could not have existed, if at that moment you listened to one of your relatives, you understand what it is, yes it is happiness, and it is beyond on the one hand, but on the other hand. this is just incredible happiness, about which many people dream, and in russia around the world. beznadets situation, it's really beyond, when you want to have some kind of obstacles. and in this case, i noticed that when aliya talked about how she reacted to this, when she was told something, well, about such an approximate diagnosis, she said such a phrase that we were almost persuaded. yes? uh-huh that's it, there is almost persuaded. it seems to me that if they had painted the consequences more clearly, maybe they really would. well, they did it after everything they went through with their first child. alia made up her mind
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to the second, and then the third museum. to what? i didn't believe anymore. i say i believe only my eyes and all such a future awaits murat esports. i have something to strive for. actually. i'm very surprised by the assessment of the professional immediately after the advertisement. oh yes. you don't understand like a wolf, where did you fit in today at 21:40 on ntv on september 3?
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flavor to be. maybe new york as a gift, three fragrances at once will become yours for only 999 rubles. call by phone or order on our website leomax.ru. early is beyond such as thirteen murat kashkarov from bashkiria, there are only about 200 people all over the world. here is such a rare diagnosis . proteus syndrome. the bones and muscles of the boy are growing rapidly and uncontrollably. murat's mother aliya admits when she was pregnant. doctors warned that the child would be born with a pathology, but there was no question of a rare genetic disease . this is the first formation in utero. they made a diagnosis of terotoma and gathered a council of doctors. they said that the maxillofacial decided that it was an operation and
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made a decision. uh, you can give birth to relatives, then hallelujah to her husband, fuat, koshkarov, was not supported, the man's sister sarvar from dinner tried to persuade her brother and daughter-in-law to think hard. with a sick child, but against all odds, the baby was born. now the boy's parents think with horror that they could have made the wrong decisions. after all, their first-born murat, despite his illness, grew up cheerful and very sociable and responsible. if he is told to look after the younger ones. he makes it all baby. we are the opposite, i said, i will give birth everything is fine giving birth, everything will be fine,
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when i was already planning, of course, i was afraid at first of treatment, then only others, well, pregnancy planning was also passed, of course, in-depth obstetrics. i, too, were aware and were, of course , there was fear until i saw it with my own eyes, ultrasound was useless. i didn't believe anymore. i say i believe only my eyes and that's it, and the second child, when he was born, everything was fine with him, everything was wonderful , there were no more problems. by the way, you or your daughter have a 10-year-old son, he himself has a third child, also a daughter. everything is fine. thank you. well, how are you relate to the birth of the second child of the third
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child. i'm like hmm in your family too i wish i had too go not only one, my others got along well, we communicate with their relatives. go have us peers communicate. we are adults at the table of children playing. uh, running in the yard. and you, too , will have a murata, a sanatorium, i say, they, too, should not have a soul to lie here. and this one is bright and the future they should see real mothers, beautiful just mother, which you can only dream about the life of your son. let's friends let's look at this honest house in the city of baimak , bashkiria, the kashkarov family moved 7 years ago,
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the mother of thirteen-year-old murat aliya says they built a dwelling. she and her husband do it with their own hands, there is so much space here that you can even play football inside when they were little. here, of course, there was a football field, and not riding a bike here, where is my room with my younger brother. here the boys sleep and learn their lessons, but even here the twisted spine sits for a long time at homework. murat can't spin. it also starts to hurt for a long time. here with your fingers downstairs, this place hurts, despite all the difficulties, murat is an excellent student, aliya is proud of his good studies. he has most of the ranks of the guy takes prizes. in competitions, it is with the society of the disabled that the checkers tournament takes first place.
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he took the free time of the boy boxing, he wanted to get into the section for a medical certificate, allowing him to get engaged, and he failed to go to all the doctors. he doesn't leave me in peace. mom i want mom i want, but because of the doctors, no one wants to take responsibility to take to parents and housework wildflowers and tomatoes collects chicken eggs, all children children will what to do? are there houses? who to work, of course. well done, he asks with a capital letter, even i just sit silent, to be honest, i cry a little, a great desire to live, a huge force. this is worthy of great respect. with little. i think everything will work out. murat is waiting for a great future.
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here's something that tells me. by the way, let's find out. what future awaits him in esports, murat and vyacheslav whom we will return. murat tell me what you did there with vyacheslav, but we played there, and he tested my skills, and he said, well, i have something to strive for, but besides, i have great success waiting for us slava and what can you say about murat's skills on in fact, i am very surprised, that is, the brother did not say that he takes only half a year, and he, in principle, has a very good understanding of the game. uh, it moves very well on the map. that is, he is very good at making decisions, and in difficult situations. this surprised me, and he is very good at it. is it motility? that is, he has very good aiming, namely mouse control. here, in principle, murata advised just to train more. i gave him
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my contact. and so that i would somehow supervise him, help guide him. here, in principle, i am surprised, i am surprised and pleased that i got to know that i am here today. by the way, your friends at school know that you want to become an esportsman. well, not everyone knows only those who have a circle of friends with the text. why are you hiding this hobby? for now, what else is there to brag about? it's too early to promise that your e-sports will not affect your school performance, you promise. do you remember murat what is the name of your first teacher ? today, she also came to us to support herself our guest is ramziya yeparova. hello hello what can you
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tell us about your pupil murat i have in general, well done. he can be said that he is our fighter when he first class came. he already knew how to read my shield. he says, where did i learn, he says in moscow for an operation, when i went, here i am then i learned. he is generally well done, a capable boy, in general, well done, friends. do you remember, what did you think when you first saw him and began to communicate? i tell the children in the class, guys. tomorrow a child is coming to us, a good boy, yes, well, so what happened and here i had a conversation and sent traffic. here the traffic guys need to- but he did not comply. you understand, and here's a brother to deceive, ugly, of course, but i've gone this way, and when the children saw him and said. oh, probably sick and accepted. i still have this thank you in a brew. i
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got. so i’m talking a couple of options for the rest of my life, i’m telling everyone, thanks to her for this, she found some way out. i would have laid a dream even 10 times, i would have seen, i would not have thought of it, so that the accident would have caught and this is how it turned out. thanks her. thank you so much for all the time they said. before , tell me how murat studied at school. and did he grasp everything, or did he fall behind somewhere? we had green falls, after a man, every time he went to the operation. yes, i came once, i couldn’t even walk crush. remember, i went home to pull him up a little, so that he would not fall behind the program. i love it. i'll try to suffer it for you. give it back i'll try the first classic such something to do. and i'll try. we went to a dance group with them, and that's all. these excursions are everywhere. we are ahead by the hand. uh,
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the classes are going under his yes. and now i’m saying at the pace, we have a very friendly class, i asked permission from my parents very much. is it possible to drive is it possible like this, when i received permission from them, and then they began to trust me. i am with him everywhere. no, we weren't tired. we walked under it. how did these excursions give yourself to yourself? you were tired it was hard. if it is, along the way far, then i certainly got tired. well, they found a way out. i sometimes went to help us. if it's too far hmm well, i walked ahead or walked before everyone else, so that i could reach faster and not hold up my spine. murata can't make up his mind about this. it will be necessary to change the piece of iron. having lost a lot of blood, this will be a
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my name is andrey vershinin i have been appointed head of the police department of the city of portovoy yes, but why an archivist? believe me. it is not as simple as it may seem at first glance, as soon as avdeev groped for a thread of drug trafficking, he died, the very next day it doesn’t seem to you. it's strange, systematically deal with everything that happens. stop being so bold this colonel, city small, everyone knows each other everything in plain sight. in fact, i was born here, grew up and left 20 years ago. at least for the first time, he violated the law and will answer, but he won’t, he answers nothing to anyone. following the example of your predecessor. i'll figure it out, i guarantee a clerical rat, today 19:50 on ntv
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our website leomax.ru beyond the limit thirteen-year-old murat kashkarov was born with a rare genetic disease syndrome. proteus, the right side of his face is twice as large as the left, small children even get scared and not from this, of course. everything is getting worse and children should not be offended. or, basically, murat didn’t feel bad about the boy’s parents. aliya and hua from kashkars and remember the first wake-up call was at the 24th week of pregnancy, when murat's mother first saw him in the pictures. ultrasound even then the child's cheek was a little puffy. they said they started. the fact that it is operated and, uh, they made a decision. uh, you can
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give birth then it was not clear how serious the situation was to make a diagnosis of the syndrome, proteus in utero, it was almost impossible. that is, what was evaluated here within the framework of the perinatal consultation. can you help after childbirth? will the fetus be capable of life after giving birth to its 13 years, the boy survived 13 operations? during one of them, when murat was only a year old, he was urgently installed a tracheostomy tube, through which the child breathes to this day, for the first time, we felt bad. he was generally small, they checked all the time that he was out of breath. he to say how the disease will develop. it is impossible to predict further, doctors shrug their shoulders, growing tissues can affect a variety of organs in the human body. at the moment, in addition to a tumor on his face, murat has deformed fingers on legs and strong exterminated. the spine is scoliosis
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of the fourth degree, crooked. so he leaves a little to say, and when he sits for a long time already quite a long time, as we all understand? why operations to fix your back at least somehow or did you do something? when he is with dad, when we usually come to the hospital, there is a consultation, uh, and looks after him for the time being, when he was little, but he also ran like normal, like usual, the boys ran, there was nothing terrible, but about seven or eight years, i guess. problems started with one
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leg, then they had an operation on the leg and they put it in plaster every time. upon arrival, we looked at what is more important to do the legs or the back or the face, after all, you have now visited the moscow specialists. let's see how it was the hospital walls. for 13-year-old murat kashkarov, capital clinics have long become familiar, the boy boldly donates blood for analysis, undergoes ultrasound of the abdominal cavity and soft tissues of the face. after together with mother and results of researches. he goes first to the pediatrician, and then to the orthopedist. difficulties, k unfortunately, they will haunt murat all his life, he says, the doctor will still be his age , new new surprises will appear, but those moments
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that we have today in particular. this is a severe deformity of the spine, as everything is cool here, depending on the degree. ah, worthy of corrections, then murat goes to the reception, the specialist finds out to the surgeon when the disease first manifested itself and how it developed. hmm not yet, but only if you chew and walk and your back hurts, our nerves are touched by drooling and our eyes functions can not do for yes-yes doctor declares. the main thing is to ensure the normal functioning of the musculoskeletal system. murata agrees with him and another surgeon. andrey panteleev, who has been leading the boy for 4 months already, plans to perform an operation on the child to straighten his back, but this requires a special construction, we are planning to carry out, uh, correction of a severe deformity, such as they said
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ethical stabilization of that construction, the operation, firstly, to a large extent. better quality of life. it will be easier for him to walk uh to serve himself the doctor who will carry out your son's operation is giving forecasts for you, the operation will be very difficult and there will be a lot. whose first? of course, as always, it starts with a consultation and there will be a lot of blood loss and it will be postponed, because it will be necessary to change the piece of iron. this is something they can't decide. we were supposed to have surgery in june. and now it's been postponed until october. i don't know now whether there will be an acti-ak- in october or not? you and this family have known each other for quite some time , the doctor called us and said that we have such a family, there is such a boy and it is necessary to perform an operation and the operation is carried out free of charge within the framework of the state guarantee system, but within the framework of the operation it is necessary to install a structure that will
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hold correctly. uh, fix the spine. and this design. and you need to order separately, indie- it is individual, and it does not fall under the state guarantee system, and it costs, uh, just for amurat, 200 million and that two hundred million is a huge amount that is not feasible for a family, but this operation can, qualitatively improve life. e boy. so in june we opened the collection. uh, today already more than 800 people donated money and we raised 450.000 left 750 as soon as we pay for the structure within two weeks. she will be in the hospital and we will be ready for the operation. we know that there is already a person who is ready to help murat. let's see the thirty-three-year-old elmar babaev says his mother
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taught him to help people from childhood, having matured, the man of the parental testament did not forget to become a dentist and a philanthropist. i got acquainted on the site, having learned. what help does murat kashkarov need? the man did not interfere and immediately made a contribution to a charitable foundation. we will make every effort to help this beautiful boy and on our uh social pages, i will tell about this beautiful boy, the doctor is sure thirteen-year-old murat is not childish, a courageous person and will achieve a lot in life, but my big one. unfortunately, i cannot be present in the hall today. but i want to wish you success. i am sure that you are strong and everything, and everything will work out. and we have another surprise for you. look with
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murat kashkarov the impression that the doctor was struck by the fortitude of a 13-year-old boy, a very cool strong courageous guy. others you know yourself, you are a role model during the reception, the boy's mother aliya mentioned that her son is into music and dreams of learning to play the guitar. i decided to help myself make your dream come true faster and give you a guitar, and it is already on its way to you. thank you brother. maybe you will try to do something for us now. at
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this family has a huge love this love gives the child the strength to live to survive. this is a miracle family, mom and dad who know how to love, because if they didn't know how to love, they would have terminated the pregnancy, they would not have given birth to other children. love is courage. this is life. i admire you a person starts empathy and feelings for another person, so it is very important the topic you raised regarding what, to accept the children of people who are a little different from us. yes, we are afraid of the unknown. ah, some things we don't understand please, adults explain to your children if
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they are faced with something unknown, what it is, and such children will be much more comfortable, and learn to develop with us, and love and enjoy this life. let's just do it for each other. for a muratura operation in a short time, absolutely beyond our expectations, we find out after a short advertisement refused to recognize the only son, saying that he could not have children said that i could not have children. i have it somehow. so my son was born. i then the child doubted. in addition, his ex-wife constantly cheated on him. you are lying naked, absolutely naked on the bed, and the man just left you . with his own eyes, the
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fourteen-year-old son himself began to protect his mother and demanded a genetic examination from his father. he very rarely communicates with me as a husband, but from a lover. i want to know. this is his son. she was already married to him and her stomach was sticking out in full. i didn't just say anything, then, maybe, anyone, i open the envelope. dna today 17:50 on ntv show from september 3, 20:10 on ntv pentalgin is the number one remedy for pain , spasm and inflammation with periodic female headaches and other types of pain pentalkin can do without pain sugar tube from a clean line and
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the stars converged a new season on sundays 22:20 on ntv care and love is the best amulet for you and your loved ones wearable icons medallion on a chain matrona of moscow open it and put inside a petition a secret desire or a photograph of a loved one to whom you wish good with all your heart. the holy matrona hears and helps everyone to wear the icon of the matron, moscow on the chest or in a purse in a wallet or even in a car. the blessed saint will always be near the icon. rose gold and 36 shining crystals, the icon of the matrona of moscow will be a wonderful spiritual gift for any church holiday or an important event in the life of a loved one. call and
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order the icon medallion matrona moscow two medallions will be yours for only 999 rubles. but if you call us right now, you will receive the third medallion icon as a gift. call by phone or order on our website leomax.ru. beyond this beyond the body of 13-year-old murat kashkarov from the city of baymak, republic of bashkortostan, is mutilated terrible disease syndrome. proteus in a boy disproportionately grows the face, the spine and toes are deformed. i did not hide from anyone, not from him or from the relatives of the society. i didn't hide it. let them see and know better the operation to straighten the spine to reduce the risks
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of complications from the internal organs, which are caused by the progression of the deformation with the help of a special metal structure, such a device costs 1 million 200,000 rubles. for parents. kolnik aliyah and fuat sum exorbitant so in june we opened the collection. to date, more than 800 people have donated money to her, and we have collected. 4 left 750. in the meantime, despite the back pain, murat tries not to differ in anything. from peers , he rides around the yard on a bicycle, helps his parents with the housework, participates in school activities, and spends the rest of the time at the computer. the boy dreams of becoming an esportsman. schoolchildren's skills appreciated by a professional in this matter, vyacheslavlinov. oh yeah. here, it was strong, well done and the third in a row. in fact, straight
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move well on the map. i didn't expect that. i am of such a level of play, that is, just these six months yes, these jumps murat what else do you dream of? i would like more conditions that you are interested in everything and esports and guitar, i see that you want to go somewhere to watch something new. and so that you can easily do it and train your muscles. at home, another surprise will be waiting for you, an electric bike. murat kashkarov received the promised electric bike as soon as he returned home, the schoolboy, together with his mother and father, immediately began to collect new transport, to quickly ride on it for a few minutes and murat is already rushing along the street with the breeze. of course,
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everyone in the family can take a walk. and i won’t get tired as quickly as on a regular bike. thank you very much. may everyone be well. how good are we so early. thank you very much while the boy was learning new vehicles. we contacted another businessman who wished to remain anonymous . a generous donation of 670,000 rubles was received from him to the charitable foundation in the name of murat. this amount it turned out to be enough to close the assembly, it is absolutely beyond our expectations many thanks to everyone who participated in the assembly and in the fate, and our murat today we have already transferred the money of the suppliers. this means that in 2 weeks this design will be made and sent to the
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