beyond the bounds, the doctors just shrugged their shoulders, not understanding what was happening to their son, only at the age of 3 the boy was finally given the correct diagnosis, in the studio of marina and artyom shiyanov with their son artyom. artyom, marina, artyom, hello, hello marina, did you name your son after your husband? yes, dad himself wanted it. so that his name would be the same. artyom artyomovich, how old are you? i am 17 years old. are you the only child in the family? eh, no, i’m not the only child, there are four of us, older brother vladimir, older sister ekaterina, then me, artyom and the fourth, younger brother alexander. i am very lucky; we have a very friendly and loving family. tell me, are you already used to people around you paying increased attention to you? it used to be.

i was offended by all sorts of things, jokes were made, unpleasant ones, but now i have matured, i realized that there is no point in being offended by this, and it happens that you are asked some unpleasant questions, well, unpleasant questions, i tried to either somehow avoid them , or answered as is. artyom, eldest, very often, when a special child is born into a family, families, unfortunately, are falling apart, you didn’t have... the thought of breaking up with marina, no, it didn’t even occur to me, when i brought him from the ore mine, they said, yes, that he was unusual, that there might be something, well, arms, legs there is, he moves, well, what’s unusual about him, they’re small, they’re all bald, they’re all without teeth, well , masyanka was a little unusual there, his skin was a bit dry, artyom, three of your other children don’t have any health problems, with the eldest, well there

he was healthy, there was just a birth injury, i don’t know, probably more likely due to the fault of the obstetrician, a dislocation shoulder was, well, nothing, the guy grew up, normal, everything, already 23 years old, married, second child, katya, there were no problems with katya, well, with artyosha, everything is clear to us, with the youngest there was generally walking and doing throughout the entire pregnancy ultrasound, daughter, they already named nastya, bought dresses, started to take her to give birth, your son is calling, i say , how come, marina, when you were artyom, you completed all the examinations on time, the child was developing according to all norms, all the ultrasounds were done, everyone doctors, everything is great, everything was fine, labor started on time, no, i’m in labor 41 weeks began, they induced labor for me, that is, he was born dry, dry - this is it - he was all red, red, and there were scales on the body, and the skin was peeling.

that is, just like that, it flew off, that’s it, they still have dry hands, very dry hands, here they are, he has no glands in his body, is completely absent, and what did the doctors tell you about the baby’s condition, they told me: you have given birth to an unusual child, we want to offer you to keep the child, these children do not live up to 3 years old, she left with with tears this way and that, so i say, if they convince you? leave, i say, you will stay there with him. alexander, how would you behave if you were artyom? in practice, it happens that parents are offered to keep the child, as a result, after a while , the agreeing parents take him, and the child is almost full-fledged, of course, honor and praise, anastasia, can you imagine what a shock it is for a mother with many children when she is offered this maternity hospital with

leaving the baby immediately after birth, i just can’t imagine what marina went through at that moment, because now we see a completely healthy person, yes, that is, their son is, in principle , no different from many, if from the outside you look at how many tests they have gone through, i can’t even imagine, because now they are sitting quite calm, but how many sleepless nights, how many tears were shed by this woman, these men , they are big, well done, they have hearts of gold, artyom, they told you in advance that there might be problems with the baby, yes, the doctors said that it ’s possible, he won’t even be able to walk, he won’t be able to sit, massages for him did everything there, and when we we came to the pediatrician for an appointment, after that, well, once a month we went there, sat him down, she was surprised, he was sitting, i took him by the hands, put him on his feet, he stood, he stood, that is, you fought for your son, of course, and were ready for all difficulties, absolutely, then why do you

want help for your son now? for him, i think the most important thing is his teeth, he only has four teeth, wait, why don’t his teeth just grow? they don’t grow, he has four grown, the first and the last... he didn’t even have them fall out and he doesn’t even have the rudiments of teeth yes yes to us there is no serious problem that he will grow something, even so, yes, we are still eating everything in a blender , marina’s mashed porridge, when the baby was born , he was examined, and after the ore house, we were taken to pathology by pathologists who examined us and raised the question of ectoderal dysplasia, this is the absence of hair, there is hair, but it’s like fluff, white, like fluff, like a dandelion, no eyebrows, well, no hair, his skin is dry, no, yes, i found out on the internet, i looked, i looked for women who had children like that,

i called up, we corresponded, they told me we advised you to take a test, well, for genetics, genetic, we came to moscow here with it, took it and it was confirmed with us, this is when you were diagnosed, when was it already, how many years, three years, what difficulties did you encounter already at home, at he started to have a fever, that is, i touch him, he’s cold, but i, as a mother, feel sorry for him, i wrap him up, give him blankets, diapers, but it turns out that this couldn’t be done, but i don’t know, we’re calling an ambulance, they take us away, treat us, you have an infection, they give you antibiotics, 10 days let's lie down, go home, i wrap him up again at home, well, like we wrap up a little child, we dress him, he has a fever again, i don’t know what to do, the medicines don’t help, but the temperature is high, it was always under 40, under 40 and

even fever-reducing medications didn’t help, no, no, no, you know, it was scary, i’ll tell you, my hands were shaking, but i understood that i was a mother, i had to help him with this, well, at least one of the doctors did he tell you at first? the local pediatrician advised us to use the grandfather’s method to cool a rag, wet a towel, and just wipe cool like i don’t know how like a device heated up cooling with moisture igor explain to us why this happens the temperature is a child only in conditions of elevated ambient temperature due to the fact that the development of the embryonic layer and derivatives, one of which is the sweat gland, is disrupted due to the lack of sweat glands because of the heat exchange process, children simply overheat in these conditions, for this reason, and about a third of children die in early childhood. can this be somehow controlled as an adult? yes,

of course, in this case, you need to try to stay in air-conditioned rooms during the hot season, also at high ambient temperatures, you need to wrap yourself in damp towels, as in childhood, what is ectodermal dysplasia, what kind of disease is it, what is it characterized by a disease in which the development of one of the germ layers is disrupted - this is the ectoderm, therefore the development of those structures that develop from this leaf is disrupted, that is, it first of all, the skin, hair, nails, teeth, and sweat glands, and intellectual abilities are affected by the disease, in some cases... yes, but in some cases, children can have absolutely the same intellectual abilities as their peers. why does this disease appear, what is the cause? this is a genetic disease, and there are three different ways it can develop. first, when the disease is associated with the presence of mutations in

the x-chromosome gene, in this case the disease is gender-linked, usually boys are affected, here the girls are sick, either in a mild form, or are simply carriers. the second option is an autosomal recessive type of inheritance. in this case, for a child to develop symptoms of a severe form of this disease, it is necessary that both parents are sick, have the corresponding genes, mutations in these genes. and the third option, here is a particularly dominant type of inheritance, in which case, in order for a child to have severe symptoms, it is enough that at least one parent has a mutation in this gene. marina, i don't think you had this? no, no one had it. and did your relatives have any skin diseases? yes, my dad, my great-grandfather, my grandfather had skin diseases, they had eczema. veronica, why did artyom only grow four teeth? well, the most common

clinical picture of this particular disease is that only four fangs grow, or some groups of teeth are missing. unfortunately, this has not yet been studied, because it is a genetic... disease; in medicine, unfortunately, genetics is not so well developed to explain all the processes and study, that is, these genetic diseases will also be studied , well, i would also like to add that the mucous membrane of the oral cavity, respiratory tract also suffers, so artyom may have dry mouth, and i think marina will confirm that in childhood he suffered from colds quite often , because the mucous membrane also does not produce mucus and does not expel it, does not protect against the introduction of viruses, so such children often get sick and quite seriously is also accompanied by a high temperature, and accordingly, when we have a fever, we begin to sweat, the temperature drops , thereby the body cools itself, and here the same story as with the temperature

outside, with the temperature due to viruses , because of the interferons that the body secretes, our high temperature is difficult to break down, why, again, before the age of 3, children often die, just like artyom was diagnosed only after 3 years, and the parents are trying to help the child, then he has a fever, is shaking, we wrap him up faster, god forbid more rubbing some alcohol and thereby we raise the temperature even more, and at a temperature of 40 and above, we no longer kill viruses, but the body begins to kill itself, and because of this, children do not live up to 3 years of age because that their disease has not been diagnosed, but here in this situation it is necessary, on the contrary , to cool the children when their temperature rises. olga, can’t genetic diseases be determined by ultrasound? by ultrasound we see... only visual changes or those that can be measured, here is the length of the bones, yes,

the thickness of some structures, shape, and as i understand it, in this case artyom is doing well , that is, he is proportionally developed, and even looking at the structure of the teeth, here we are on an ultrasound, at a certain time we cannot see them, then there are teeth that are formed much later and well, they develop, so when we do an ultrasound, the picture seems to be no different from the norm, but the fact that the child was not born for a long time is... a sign of some problems or an accident? no, this may be due to the weight of the child, yes, to the state of birth ways, that is, with a normal physiological pregnancy, not associated with this particular disease. artyom, marina, weren’t you afraid to become parents for the fourth time, knowing that the youngest child could be born with a genetic disease, but since the third already has such a problem? no, we weren’t afraid, and let’s just say that we won’t have another child like him, because we have an old pediatrician who says that such a child

is born one in a thousand, it’s not the parents ’ fault, she says, well, this happens, i would artyom corrected, one out of five or even ten thousand, daria, and if you were marina , you would decide to have a fourth pregnancy, if i were given such a chance, i would definitely decide, and first of all, i want to express my great admiration to my parents, you well done for deciding... to fight, really, well done, and i would like to give a compliment to artyom jr. , sincere, very nice to listen to a young man, not every guy today, so nice to listen to, polite, modest, nice, so well done, roman, what impression does it make on you? artyom, if you met him on the street, you would understand that he has some kind of genetic disease, well, i wouldn’t understand, but it seems to me that the main problem for him is probably his relationship with... because it’s as if the environment is different, both at school and all around in general, and children in principle are very

cruel, so finding contact with them, connecting with them is always very difficult, and artyom, i think he has come a long way in this regard. marina, how did your older children accept artyom? well, the eldest son received it well, and our daughter is little at first, that is, they let him go on the street. she will take him for a walk, then she will bring him, mom, they ask me why he is like this, and why other children have teeth, but he doesn’t, and i feel ashamed, she sometimes says, artyom’s older sister admitted that for a long time she was ashamed of her special brother, studio ekaterina shiyayanova, hello, hello, ekaterina. how old were you when you got your little brother? when he was born, i was 5 years old, i really wanted

to become an older sister, and i looked, well i have an older brother, and i also wanted to be an older sister for my younger ones, then tell me about your first meeting with your younger brother, i could even say i was scared, i thought it was an alien, he had a small body, a big head, long legs , that is... i immediately started asking my parents questions, why was that and i was even afraid that his illness would be passed on to me, even so? yes, were you afraid that the problem might spread to you? yes, i was a child. i thought that i would go bald, my teeth would fall out and something this, but over time , you probably began to get used to your brother’s appearance, yes, i began to get used to it, i absolutely stopped being shy about him, and you were asked to fulfill the duties of an older sister, play with your brother, walk with him?

yes, of course, i honestly admit, i didn’t like it, absolutely no way, why, well, that is, he ran after me, to play, with me, well, but i had no time for him, i, oh, leave me alone, i’ll go i’m busy with my own affairs, he’ll go, go, well, play, i, oh, but it happened that you gave your parents an ultimatum, yes, either i or brother, yes, when i was little, he and i constantly fought, called each other names , and i told my mother that if he lived with us, i would leave the house, and i really packed my things, left, sat in the room for 2 hours entrance and came back, but how did they tease my brother? i said that my brother is an alien. artyom, when you were a child , weren’t you offended that your sister called you that? at first, when i was still little, it somehow offended me, but now, at my age, it even seems funny. in fact, i expected to see artyom in such a sacrificial position,

that he would be so pathetic, complain about life, i see such a confident kid, such self-sufficient parents, and i think that it was more difficult for the children in the beginning, because jealousy arose, i know perfectly well how parents feel when a special child, a feeling of guilt is probably developing, i don’t know about dad, but mom definitely , it seems to her that maybe she is to blame for something, unconsciously, genetically by birth, that’s why she devoted a lot of time to the child, that ’s why she wants to surround care, and the little ones kids, they don’t yet understand that the ball just needs to be fed, and not only because it’s sick, but because it’s just small, and little children, like, who are 5, there, 7, 8 years old, it seems to them, that their mother loves less, and there is a struggle for love, and the jealousy of the children, it was more painful for them, because it seemed to them that this was a lack of mother’s love, they fought for mother’s attention, in fact, now i understand that katya

she is well aware that her mother spent more time not because she didn’t love her. or less loved, but because more attention was needed for him to survive. of course, my parents always tried to protect him, to mentor me that i am an older sister, in any case i should respect and accept him for who he is. ekaterina, did the parents really treat artyom more attentively than the other children? well, of course, more carefully, somewhere more attention, they paid more attention to him, that is, at that time... i didn’t really get a lot of attention, i understand, my mother had to look after him, his skin is very problematic this made her very, well, it was like i was little, i saw that it was not easy for her either, but she tried to give everyone attention, of course, but more to him, they were jealous of my mother for my brother, in childhood, of course, i was jealous, very directly, why in

the first in the class, artyom’s parents transferred artyom to home schooling, now young people, they are somehow... angrier or something, the worst thoughts i have in my life are losing one of my children, one of my relatives almost does not communicate with the guy because of fear get infected, who will pay for my health, we will continue through a few minutes, redmond multiclean cordless vacuum cleaners, an excellent

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you are a good leader, but you have no political insight, reckless from monday at 22:15 on ntv, beyond, this is beyond, doctors did not believe that her son would live to be 3 years old due to a rare genetic disease and suggested leaving him in maternity hospital - says forty-two-year-old marina shiyanova from... my son has dermal dysplasia, that is, he was born dry, with scales, i inspired him, probably from childhood, that artyom you, although special, but you normal, full-fledged, he says, but i’m no different, well, just think, there are no teeth and hair, and so, i’ll be an actor, but my sister didn’t immediately accept my brother’s unusual appearance, i was somehow ashamed of his friends to show, to say somehow, it’s just

some kind of stigma to immediately hang on me. then what if she has such a brother, why? i’ve already started asking why my girlfriends there have ordinary full-fledged brothers and sisters, but mine, well, it’s not clear at all, an alien. angelina, how to behave correctly as parents in a family where there are several children, one child is special, well, firstly, here it is very necessary, well, periodically, as a tradition, to do some kind of joint trips, and some identical gifts, that is, you need to compare the children, that i love everyone equally, after 3 years, it is undesirable to pay so much attention to the child, do everything because of him, cultivate independence in him, and accordingly, take turns finding time for each child and sit somewhere with each one in an embrace, play his favorite game, listen to the child , that is

what happened at school, at least 15-20 minutes of just him, then 20 minutes of just another child, then just another, when she devoted almost equal time to each, they calm down, marina, and when artyom was little, everything is yours attention was really focused only on him , you were worried about him, afraid, well, yes, i was very worried about him, i ’m worried now, honestly, well, children, i have four of them, i didn’t deprive anyone, mom... never, well, at that time, of course, i was a girl, i have three brothers and that’s all for me i still didn’t have enough of this warmth, probably directly, because now with age i understand that my mother gave me even more than i needed, but still there is jealousy towards my brother, it’s like a kind of resentment even, that there was more attention to him, marina, and what were your most terrible thoughts, what were you afraid of most, the most terrible thoughts?

what i have in my life is losing one of my children, i’m not afraid of anything else in life, i was worried about artyom and am worried and will worry all my life for them, also for my daughter son and for my second son, children for me are the most important thing in life, marina, i want to tell you that you are a very good mother, you raised wonderful children. marina, did your son go to a regular school? yes, on september 1, when i turned 7, we went to school, well, on september 2 the teacher

told us, marin, well... well, artyom feels bad, it’s hot in the class, he feels bad, he lies down on his desk, artyom, you remember that , it was like that, really , it was hot, i used to unbutton my t-shirt, pump out onto the portal, teachers used to disbelieve me, and how did you study, artyom, the first time naturally it was difficult, then i explained to my parents, told these situations, i was transferred to home schooling, did you want to go to school like other children, after? seventh grade, when i had already started communicating with my peers, there was something that i wanted to go to, we already went to some lessons, that is, i asked the teachers for him to communicate more with children, of course, he needed socialization in a team , but of course, artyom, the other children didn’t offend your son, now the youth are kind of angry, or something, well, they tried to offend him, and you what they wanted to sort out, i didn’t deal with

the children. with the parents, i came and said, if your children are offended, i say, you will be responsible for this, i say, for your children, for anyone, and artyom, that outwardly he is so different from his peers, well, of course, well, the kids are walking around, here’s the second, third grade with hair, and he’s fluffy, scales on his head, arttyom, how old are you here, i’m 7 years old here, first grade, anastasia, you must agree, he’s very cute, cute, well, he’s there somewhere. in the face, of course, it's the other way around even attracts, this is probably what attracts an adult, yes, there is some kind of zest in a person, he is not like others , some kind of unusualness, but an intellectually developed child, but you can certainly understand children, because they are all at the same time, he is everything he also shunned communication with others and this affected his distance from them. when he grew up, he stopped paying attention to his external data, but began to communicate with people, with children, in the end they accepted him, well, that is, he just when he accepted it,

they accepted it, it’s absolutely gorgeous here, it’s just incredible, how old are you? 12 years old, right? alexander, what do you say, super, artyom, but just an amazing boy. amazing, you know that in my family there was a similar situation, i had a special brother too , he is unfortunately gone now, and katenka, i understand you very much, i also offended him madly, i was ashamed to appear somewhere with him, yes, as the years pass, of course, your consciousness changes completely, now he is no longer there, but i am still tormented by my conscience, what happened to your brother, he fell into a well, he was 2 years, but remained alive, that is, he fell on the lid, something happened, he had some kind of malfunction , he spoke poorly, although he moved, worked, understood everything, but his speech was

so vague, i don’t understand, we - of course they understood what he was talking about, he communicated, those around him at the beginning did not understand , of course, katenka, i understand you perfectly well, it’s a novel, and you teased the boy, you have such a classmate in no, no, i never teased very, quite photogenic appearance, unusual, i have a lot friends who in the acting field play there in films, in all sorts of advertisements, musicals, here is an unusual appearance, in fact there are a lot of people who are looking for it, so i think that in theory it was absolutely calm to try out for something like that it would be, well, you can give your photo to a casting agency in films in general easily, easily, in glossy magazines there are already models with a similar diagnosis and they are successful. are acting and are very popular models, so think about it, by the way, have you ever thought about such a future? i thought, well, that means this, distribute your photos to film agencies, i’ll go, let it be, i think it’s time for you to think about it, but let’s still return to the pressing question,

tell me, how did you learn to cope with overheating of your body, if in the summer, well, when you go outside, i make sure to take a cloth and a bottle of cold water with me, so that it becomes bad, i watered it with a cloth and wiped it off, that is, you always monitor the weather, always at all times, when the weather is cloudy or in the evening , then i go out for a walk, and when the sun is shining, i’m the best at home, i have a special dispenser, i splash some water as well, well, for the most part i cool off with water, ekaterina, and when you became teenagers, tell me honestly, you continued to be shy about your brother, maybe you tried not to show it to my friends, girlfriends, yes, i was hiding my brother , it was uncomfortable, probably inconvenient, well, for example, i was walking there with my friends, meeting my mother with him, i immediately felt such awkwardness, and now you continue to hide,

no, now absolutely not, all my friends know him, everyone communicates with him very well, and it has never happened that they even asked something, what are you doing there, maybe? there could be some kind of outcast, he says: no, i have always been a person, company, soul company, that is, now you and your brother are on the same wavelength, yes, we always go for walks, we go on vacation, we are on the same wavelength, here is yours second cousin does not hide that she is afraid of getting infected from her brother and cannot do anything about her fear, in the studio tatyana boyko, tatyana, have you really been living for 17 years in fear? of course, i am concerned about my health, i think that this will be passed on to me, and then who will pay for my health, and 17 years ago you were happy that you had a second cousin?

we waited with katya, we wanted to babysit this boy, we were glad that he would be born, we played like mothers and daughters and thought that we would do the same, but in the end another boy was born, not the one we were waiting for, but when... for the first time, what feelings did you experience? i got scared and started asking my mother a lot of questions, saying why he so ugly, he has an incomprehensible head shape, bulging eyes, it turns out he has no hair, i had such a long braid as a child, and i was afraid that if i started communicating with him, i wouldn’t have this braid, as a child artyom himself tried to make friends with you, well, i tried, but he was very incomprehensible , his speech was poor, and how would we...’ i tried, well, to beware of him, to communicate with him at arm’s length, well, at first catherine was also afraid and shy of her brother, and now they are best friends, but it hasn’t worked out for you yet, not yet, but sometimes we see each other once

at 2 years old, that’s all, that is, you are still afraid of getting infected, well, of course , first of all, we have the same blood, it turns out that i can pass this on to my children in the future, i have to take care of my future, especially scientists.. the disease has not yet been proven, what it is, how it is treated, yes, especially if it were proven, we would not have these diseases, igor, but you can be a carrier of this disease, and not even know about it, out of conquest ? knee yes, of course, this option is possible if the option is autosomal recessive inheritance of the gene, that is, the disease occurs only in children in such a case when both parents are carriers of this gene, and then not 100% if they are carriers , that is, in some children the genetic material that was related to you, it has already been transferred and distributed between you, that is, the only way you can be safe is to take a dna test and check. whether or not you have any changes specifically in the genotype, that is, at

the level of information transfer between the dna of your parents, that is, therefore you can safely go up to artyom, hug him, take his hand and support your brother in every possible way. olga, is it really possible to somehow protect future parents? tatyana said that she is worried that her children may have the same problems, every couple who is planning a pregnancy, right? a consultation with a geneticist is not indicated, yes, in this case, if the family is common and there are such diseases, but you can approach tatyana and your future husband together, ask such a question ; the geneticist can tell them specifically, what plans there might be for their family along their line. artyom, junior, please tell us how you live now, what you want to become, i’m still studying, i’m planning to become either a model. or a good programmer. what course are you on? i'm in my second

year, do you like studying? yes, i like it, i have a lot of friends there, a lot of people help me, i help a lot of people, on weekends i come home with friends and hang out. do your homework come easy to you? you have to sit and think, but they do. and what in everyday life for you, artyom, may be the most difficult, or maybe it's unpleasant? it’s difficult when, let’s say. in the summer you want to help your parents in the garden somewhere in the yard and you realize that you can’t, well, it’s hot, because how do peers react to artyom’s unusual appearance, he’s 17, he looks older than my dad, we don’t have such specialists who could if you would like to help us, watch right after the advertisement. brest-litovsk. we pass on cheese

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even suggested that she abandon her son in the maternity hospital . the doctors warned us right away, they said, your child will not have sweat and glands, they are not in the body. there are no teeth and never will be, they won’t be at all and there is no hair, dry skin, he says, there is no way to cure it, absolutely no way at all, now artyom is studying at novokuznetsk college to become a programmer and lives in a dormitory, on weekends he comes home to his parents in the city of prokopyevsk, his mother has already prepared borscht for her son, since the guy can only eat chopped food, the soup needs to be put through a blender. artyom loves soup with us, we take this soup, pour it into a blender , turn it on, it turns out to be a figurative puree, that’s it, we pour it here for him, beat it, that’s it, artyom eats with us, adds mayonnaise, artyom, go eat, every hour artyom

be sure to measure body temperature, due to disruption of the sweat glands, it rises with air temperature. if the indicator is higher than normal, immediate action must be taken. 36.9, which means his temperature is already starting to rise, the room is very hot, which means we open the balcony, ventilate, turn on the air conditioner so that the air conditioner humidifies the air in the room, well , if of course it rises, we will wipe it, we will cool it, we will put down a wet towel on the body. artyom portable air conditioners and humidifiers are located throughout the apartment. when it's really hot, he has a personal air conditioner, which is pressed. here, here it is, pressed, a certain temperature is set, that’s it, at the moment our temperature is 24°

, artyom’s dry skin needs to be smeared with moisturizing creams twice a day, his mother helps with this at home, his skin is dry, if you don’t smear it, it will crack, rub everywhere, everywhere like this. here on the head, because the skin on the head is very, very dry, once they smeared everything, rubbed it, and his skin feels good, despite the difficulties, artyom is a cheerful, charming guy who considers his characteristics an advantage, not disadvantage, some people ask if i use a wig, no, i don’t use one, because i’m quite happy with my appearance, i have beautiful locks.

if i didn’t know that peculiarity of yours, which maybe even gives you charm , i wouldn’t say that you are somehow unusual, i see what kind of attitude you have towards the world, i see what kind of attitude you have towards people, towards yourself and - to what you are doing, it’s very cool, it’s very cool, it’s, it’s surprising, you’re huge... well done and i think that you will succeed in your profession, by your nature you strive for everything yourself and will definitely achieve it, thank you, artyom, and i’m looking at your right hand, you have a tattoo there, but a small one, a fish, three fishes, a small one, three fishes got it done in secret parents, well, mom didn’t know, i talked to dad, he’s okay, i mean, dad... allowed me to get a tattoo in secret from mom, he himself has a tattoo on his forearm. it’s not that i allowed it, i’m saying, you’re already an adult, i

can’t forbid you, but what does that mean? no designations, i just wanted to see how my skin would react to this. marina, how did you react to this, i was scared because his skin was dry, i thought , this is a tattoo, it might crack, then i smeared it all day long, sat there so as not to crack anything further, yes , it could be dangerous with such a diagnosis, igor, are tattoos banned? well, not to say that they are prohibited, but you need to treat them with caution, yes, if this area is very badly damaged, infectious complications may arise, so it is advisable and this area after a tattoo is especially good to treat and take care of hygiene. artyom, do you have many friends? i have a lot of friends, in prokopyevsk, where i live, there is enough people to talk to, meet, take a walk with, i have acquaintances in college and i have one good friend,

his name is egor, he came to us today, to support you, in the studio egor kozin, hello egor, tell us how you met artyom? it was in the first year, we were sitting in the common room. well, somehow we started a dialogue, over time the communication grew like this say, our speed, well, now we communicate quite closely, you are studying in the same year , i am studying in the fourth, he is studying in the second, we have a common specialty, information system programming, maybe you have some common interests, we talk very often about cars, this is the most favorite topic, and i... recently bought a car and we drove around, looked at some options, looked for minuses, pluses,

analyzed, that is, a friend helped you with the choice, yes, and besides this, how do you and artyom spend time, we can play computer games, go to a movie somewhere, and when we first met you, artyom really surprised you? well, yes, there was a surprise, because at 17 he looks older than me... dad, well, outwardly, i didn’t know this man, it’s just fine, and you asked why artyom looks like that, you asked superficially, didn’t go deeper into this topic, because anyway it could somehow offend him, and what about the other students, egor, how do they feel about artyom? ok, that's enough, well, some people will be surprised, perhaps, when they see it for the first time once, after the start of communication, they begin to have good contact with him, due to his unusual appearance. no one is bullying your friend, well, there are all sorts of people who don’t have enough attention, they can do something, but

over time i understand that it’s... low, if artyom gets the teeth he dreams of, communicate something it will probably be easier for him, yes, most likely, but do you really, artyom , lack teeth for a full life? yes, for the most part, marina, arttyom, have you somehow tried to solve this problem with your teeth? well of course, they tried, but in our region, no one takes on this, and in the kemerovo region, where we don’t have such specialists who could help us, veronica, what recommendations can you give artyom, where to start dental treatment? i would now recommend making temporary removable ones, as far as possible , then in maxillofacial surgery in the hospital to grow , let’s say, the upper jaw, because obviously the problem with removable dentures can be due to the fact that the top and bottom are disproportionately developed, that

there will be an orthognathic operation, and after the orthognathic operation, install a dental implant and make a beautiful smile so that artyom can smile as much as possible and radiate his positivity and so that as many people as possible will already pay attention to his special appearance, to his vital energy and positive. we all want artyom to feel free to speak and, of course, to smile. i invite maxillofacial surgeon artemy panomariov to the studio. hello, ottemi, you already know artyom, yes, of course, and he was at we were consulted, had a clinical examination, x-ray examination, and all this was done. do you know about artyom’s illness? of course, i have rehabilitated quite a lot of patients with ectodermal dysplasia; 30 patients have already been rehabilitated. and artyom’s situation, would you say, is very bad? no, artyom’s

situation is not very advanced, at the moment all this is feasible, we will try to help them within the framework of our institute. how will this happen, tell me? this is not one visit to the doctor, this is quite a large, extensive rehabilitation aimed at complete rehabilitation of the dental system. first of all, we need to create conditions for installing dental implants. accordingly, these are bone operations aimed at increasing volume. upper lower jaw. the operation takes 9 hours in the operating room under anesthesia; accordingly , the bones are taken from the donor area and moved to those areas where we will have to place them in the area beyond the installed dental implants. and from what zone are donor bones taken? well we have two objectively important areas are either the iliac crest, that is, the pelvic bone, or

the parietal region, which is the head. and how many. do you need time for rehabilitation after such an operation? after approximately 7 days , we discharge these patients from the hospital. and after this operation is performed, when will it be possible to start implanting your own teeth? approximately six months after the first surgery. the healing time for bone tissue is approximately 4.5 to 6 months. what is the stage of implantation? in two stages. the first stage is just he is admitted and we are hospitalized. it, we perform an oblique plastic surgery, then in these conditions that we have created , we install dental implants, the dental implants are installed, they also take about 4.5-6 months, and then the second stage of dental implantation, installation to form disnet, and so on accordingly, any additional corrective manipulations, if required, we will implement all this within the quota, that is , for artyom all this will be free, of course,

the ministry of health will help us with this, is artyom ready go through a long journey of transformation for the smile of your dreams? i want to shake hands, this is beyond the bounds, we’ll be back very soon, we take on any search when there is little data, and when the circumstances are mysterious and when there are more questions than answers. in such stories, the surest way to... oksana came to find out the secret of her birth , she found an adoption certificate, i said, dad, tell me something, they told me to pick you up, i went 8:9 pm and i you took it, it all looks like you were kidnapped, and also an incredible story, i

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the actor ivan krosko lost so much weight, they say, if you feel worse, call an ambulance, did the illusionist sergei safronov defeat cancer, get a transplant, i'm taking care of myself, why is leru curly? colleagues in show business are afraid, yes, i ’m also worried, what is this, measly, a cold dish, we need to think through everything, you won’t believe it, tomorrow at 17:45 on ntv. it's beyond, it's beyond. 17-year-old artyom shiyanov from the city of prokopyevskaya, kemerovo region, suffers from a rare genetic disease. the guy’s hair does not grow and his sweat glands do not work, which is why his temperature often rises and his skin dries out. and also from artyom with only four teeth, he dreams of a beautiful smile.

this is purely for myself, to make it pleasant for myself, i love myself anyway, but this is even more, but this will make my life a lot easier , i think it will fulfill artyom’s dream, agreed maxillofacial surgeon artemmy panomariov, for now that’s all this is feasible, we will try to help him within the framework of our institute, maxim, when applying for a quota, you will provide your assistance, of course, i can take care of this issue, i can go to your city, help draw up all the documents, submit them and to achieve this quota already, thank you, i generally want to say to artyom, you’re doing great, it’s great that now there are still a lot of organizations, thank god, such and charitable foundations that tell, and they help parents so that they were not afraid, and if you need any help, you can... uh

, contact our organization, we will help you in any way we can, i see that you are, in principle, ready to act and maybe there is something else that interests you it will be, we were happy to help you, thank you, arttem, but you understand that the process with teeth will be very long and painful, you are prepared for the fact that it will not all be right away, far from immediately, of course , that is, you will steadily go through all stages of treatment, you have gone through so much and will go through so much more, i wish you not to lose strength of spirit and always believe in the best in the most successful outcome, but while you are undergoing treatment , please be sure not to give up your studies, this goes without saying, but if you still want to become a model, then we will organize a portfolio for you. i am

naturally very happy that i such an opportunity will arise, that they will help me, and i want to shake everyone’s hands, say, thank you very much, thank you very much for your help , that you are helping us, thank you very much, just, thank you very much, immediately after the shooting artyom shiyanov went to the photo studio to create his own model portfolio. professional photographer elyara meshcheryakova explains to the guy what the pictures should be like. the photographs are diverse, 20 of them are enough, you don’t need a lot on the portfolio, these are model snaps, as well as photographs.