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palari home and kitchen appliances at a discount. up to 70%. beyond the limits, since childhood he has had spinal muscular atrophy syndrome, but this did not stop the man from finding his love. now he wants to know if he can have children? in the studio vladislav. hello, hello, asking how old are you, i'm 33 years old, how how long have you had spinal muscular atrophy syndrome? well, in general, when i was born, there were absolutely no signs of this disease, that is, i was

like everyone else. children when i was one year old, i had a rather severe form of bronchitis, and after i recovered, my mother began to observe that there were some changes, that is , when she tried to put me on my feet, i bent my legs at the knees, she immediately panicked and began to turn to doctors, but at the beginning, doctors in clinics, they simply said that this was a consequence bronchitis, that everything would get better in time, but time somehow passed and nothing changed, and how old were you then when you were given this diagnosis? for about a year and a half, there are probably no symptoms of the disease in this photo yet, do you have any? no, this was before i got sick , that is, you developed like all children, yes, until i was diagnosed with sma, that is, nothing, that is, labor came well and birth, that is,

there were no signs for... your parents, it was a shock, how did they react? yes, of course it was for them a big shock, they immediately began to find out whether this disease could be treated, because no one had ever heard of it, did not know, and they began to apply wherever possible, and we went to the centers where they promised us that come here, we will put you in on your feet, everything will be fine, we went there for several years in a row, about 5-6 years old, but it was just... a large amount of money was spent and no one said that these diseases, well, cannot be treated in this way, that is, there was no progress , yes, olga, spinal muscular atrophy of the sma, it’s really difficult to diagnose, clinically spinal muscular atrophy can be difficult to diagnose , but the fact is that there are different forms of spinal muscular atrophy, they can be accompanied by

some striking manifestations, which makes it possible to very quickly suspect the disease and refer it to specialized specialists , be examined by geneticists and find out that this is a genetic disease, but there are forms in which the symptoms are quite mild, and it is not always possible to immediately suspect this disease, at what age does it begin? the first symptoms appear, what are they, the first signs, if this is a small child, then he cannot hold his head up, cannot crawl, begins to walk late, and the reason for spinal muscular atrophy is that the cells of the spinal cord are affected, no, the transmission of impulses from nerve cells to muscles, mainly striated muscles , muscle atrophy occurs, the muscles stop working in the lower

extremities, along the ascending path, they can... and the muscles of the arms, then the chest, respiratory muscles, and swallowing muscles , tell me what what parents should do first, if they notice these... manifestations in a child, is to contact specialized specialists, i think, from pediatricians to neurologists, first of all to geneticists. alexander, what treatment is indicated for patients with this diagnosis? in the nineties, yes, when vladislav was born, the drugs that exist today for the treatment of spinal muscular atrophy were not just on the market, they were just in development, so i’m surprised that vladislav , having the second form, has spinal muscular atrophy atrophy, but they didn’t give me a form, that is, on the card without a form it is simply indicated, well, according to the date, according to the debut, you have the second form of spinal muscular atrophy, as a rule, children with this form, well, they rarely because

the fact that there is no specific treatment at the start, they live until adolescence, even so, in this case, the form in which vladislav is, without specific treatment with drugs, yes, which must be administered in the first month, well, this is a great respect for both the parents and the organization all that, the process of caring for vladislav, which, in general, one feels here, was very large, yes. alexander, how many forms of this disease are there, and how do they differ from each other? this means, globally, there are four forms of the disease, spinal-muscular trophy, by and large, each of them differs in terms of onset and severity of progression. we can roughly divide up to six months into the first form, up to a year and a half into the second, up to 3 years into the third, and after 3 years into the fourth. well, are there already drugs to treat this disease? drugs that are administered intratically are there are lumbar punctures, they exist, they are now included in the list of free drugs in russia, there are other

drugs that are not administered as a course, but are administered once too, uh, today this disease is very well corrected if it is detected in a timely manner, but in the nineties , unfortunately, we did not have such options. they were just in development, vladislav, but did your syndrome progress quickly? i really, i remember myself, i could, uh, for example, crawl out of the crib myself, from the sofa, i could even crawl from one end crawl to another room, because firstly, my back was still more straight, that is, my spine was gradually curved, and when in childhood it was not very curved, that is, i could hold my back better, that is, without. .. additional support, over time, by the time i was a teenager, i could no longer do these actions, because the curvature of the spine was greater, and since i did not walk and my legs

were practically never in a straight position, i had a contracture appeared in the knees, elbows, these moments they seemed to become more noticeable. alexander, is it possible to somehow improve the condition of a person with such a diagnosis, a neuromuscular disease, in general, it differs from some, for example, traumatic brain injuries, etc., yes, the fact that the reflex, with traumatic brain injuries, it can somehow be revived, the motor neurons of the spinal cord, which have already died and which are responsible for muscle movement, cannot be restored, so here only prevention of further deterioration, breathing exercises, soot, a large rehabilitation complex should be carried out daily. yes. vladislav, you do all this, take care of your health, i do exercises regularly , that is, i have dumbbells, i have weights on my arms, which i attach and do exercises so that

the muscles are always in some kind of tension, and massage my wife regularly does blood circulation for me, so that it is constantly in my legs, in my arms, that is , i constantly try to do some kind of action so that the muscles do not forget that they must function. vladislav, what are you talking about? can you do it yourself? my basic capabilities, i can eat, i can brush my teeth myself, i manage my laptop myself, i work my phone, changes, probably, if we take it globally, i stopped noticing, probably at the age of 20-22 i stopped noticing the deterioration in this disease, because of my own. .. didn’t you feel deprived as a child? no, you know, probably from the very beginning, when my parents realized that they were not able to cure me, they then decided

to put all their strength into my upbringing and development as a person, they literally poured out it comes to my head that i’m the same person as everyone else, i’m not different in anything, except that , well, i’m just in a wheelchair and can’t move on my own and... and i’ve never communicated with people of absolutely any age, but certainly in as a child, you were deprived of some boyish things, well, boys play football, but you couldn’t do that? you know, even in this case, there were options, i found a place as a referee, i had cards, referee cards and a whistle, that is, my friends constantly took my classmates with them, drove them, that is, somehow i in this regard, i was lucky with the environment, i didn’t feel any disadvantage and always tried to make the most of my opportunities. did you attend vladislav school

or were you homeschooled? i was homeschooled, but i had all the same subjects that the children had at school, it’s just that every teacher came home to me for every subject, i had my own schedule for school, i got up every morning, prepared for the lesson, took homework, even unlike children at school, where, for example , they could understand that they were not there today will call. maybe he won’t be prepared, i didn’t have such a freebie to hope for, because i knew that in any case they would ask me so, i’m the only one asking, and studying was easy for you, in principle, yes, even starting from literally the sixth grade there, my parents they didn’t even check my homework, because they saw that there was no need for it, i did everything, i approached it responsibly, i already decided in childhood that i wanted to get a really, well, education, and even graduated from school with a gold medal. oh,

congratulations, you're doing great, that's great, in did you go to university? of course, immediately after the eleventh grade, i entered the university via distance learning and studied at the university for 6 years, also receiving a higher education. what was your specialty? my specialty is a software engineer, the person has not given up, the person is purposeful, he absolutely feels it. according to his competent speech, for example, and i simply admire, vladislav, were there any girls in your life? of course, like probably any person who has already reached adulthood, i wanted to have a second soul mate, and i tried meeting girls, i tried to find a girl on the internet on dating sites, and yes, girls and girlfriends came to me, but nothing serious happened until i met

my wife, yulia, on this very acquaintance, you immediately told her about your illness, i always try, firstly , to reveal myself, that is, so that there would be no surprise that i have some problems, i immediately told about my illness, but this didn’t scare her off at all; soon i offered her come visit me and get to know me in person. so we first met you after 3 weeks of communication on the internet, but what did those around you say about your romance? i came across very different unpleasant comments, in my direction, in yulia’s direction, and why do you need such a person, someone said that you have problems with your wife’s head, in the sense that they saw self-interest in her action, what if we are for devi for the apartments, how long have you and

yulia been together? yulia and i have been together for 11 years, and how many of them have we been married? 4 years why so? didn't you formalize the marriage for a long time, did you delay? only after 2 years we began to live together, we needed time to understand how much yulia could cope with me, because we understood that if we wanted to build. then all those actions that previously fell on the parents will not fall on the spouse, we wanted to live, to understand that we can cope with all the difficulties, difficulties, already when we realized that yes, indeed we are capable, then we have already decided to formalize the marriage, your wife is your main support now, absolutely, without her it’s true, i even feel uncomfortable, because she’s like an integral part of me, i already

think, with her i feel like, roughly speaking, with arms and legs, and what are you talking about with your wife now? you dream, of course, we have a dream, we want our child to be born , then this will probably be our greatest achievement, olga, this is a bold desire, vladislava, a bold desire, but i think that it is... feasible , taking into account the capabilities and achievements of modern genetics, after an appropriate examination, i think, will be taken to determine in what way it will be possible to get the baby, will this baby be healthy? that is, a whole range of preliminary examinations will allow you to make a balanced, reasonable decision. alexander, this is really possible, i think that

there will be no purely physiological problems here. sergei, but on the other hand, vladislav’s wife, in this case, will bear twice as much. worries, you’re right, indeed, there will be more worries, but if we’ve been together for so many years, then caring for one’s neighbor has probably become something familiar for vladislav’s wife, and since no separation happened, then apparently this care is within her capabilities, it is acceptable and even most likely pleasant, it is pleasant to take care of a loved one, it is pleasant to help him, this integrity, unity, it is expensive, and if you add a baby to this integrity, to this field of love, then of course you can redirect the same care to the baby, and together, vladislav can do something, something, of course, more my wife will have to do it at first, but later all this is leveled out and the joy and love that will come from both, it will nourish the baby , i want to tell vladislav that i am delighted with that

sunny bright smile that vladislav has, it’s just a delight that a person has experienced such trials that not everyone is given in life, but he survived them... with such optimism and wants, having already become a family man, he wants to become a father, this is a laudable desire, i support it, thank you very much, vladislav’s wife does not hide it, caring for her husband takes everything her strength, but she is sure that she will cope with him, with the child, our guest is yulia petrovich, hello, yulia, hello, sergey! yuri, how long have you been dreaming about children, we have been thinking about this issue for no more than six months, we have already been working in this direction, while we were just thinking about it, we haven’t made anything definite yet, i see that your family

is strong, which means with male my husband’s health is completely fine, yes, he is like all healthy people, we regularly engage in sexual intercourse, but the process, as i understand it, is controlled by you, yulia, yes, there’s no way without it, since my husband is physically limited in some ways, but in any case, from the moral side, his support is enough. who more often becomes the initiator of your intimacy? as a man, more often than not i make some signs, so to speak, trying to attract attention, yulia, can you say that you are lucky with your husband? of course, he really is the best person, he is kind, he earns more, yes, he orders some kind of food delivery, that is, the information part, which depends on the computer, is done by vlad, and i am already more physically, and gifts they give you, yes, there’s also a romantic here, the most romantic thing was, of course, since

vlad physically couldn’t do something, he asked his mother, she bought flowers, scattered a whole path like this, i grew up, by the way, he wrote poetry to me, and really big, not like four, but a huge sheet, but how do you spend time together? we have a lot of hobbies, starting with board games, yes, some visits to museums, especially when the warm season, we have an active life, enough, but without a husband, yulia, you can go for a walk, for a short time, up to an hour, and then i well, i’m afraid of him, especially leaving him alone, for example, he might bend over somehow. fall, that is, he won’t get up on his own, or the same hand will slip off the phone , he won’t be able to call me to ask for help, i ’m his arms and legs, and he’s my head and heart, everyday life, well, probably also lies with yours, yes, of course, i’m like all housewives, and what do you do for a living? i studied

video editing myself, that is, i create various logos, maybe for some stores, companies, i also have a passion for big tennis... i myself write analytical texts on tennis, i shoot videos , that is, i try to express myself as much as possible, of course, i want to please my wife more often with gifts and some kind of opportunity to go somewhere, relax, so i try my best strength, let them go to work, to earn money. vladislav, you didn’t expect that in this unusual family the husband is the breadwinner, and not... yes, this is truly an exceptional case, and the man, my mother-in-law , evokes unspeakable respect for the degree of self-realization that... he achieved for his years, that is, not every

person who does not suffer from any diseases, by the age of 33 has, in fact, a degree of knowledge, prudence, in fact, fully looks at this life, has already formed a stable happy family, the most important thing is that there is love here, and if there is love, then there is nothing terrible in this life at all, and god grant that everything works out for you, red couple, love each other, be happy, thank you, how did yulia’s family react to the fact that she connected her life with a man chained to wheelchair. her life , her youth, she is happy with him, look right after the advertisement, well, what do we have here to work with, or is everything transparent, like your tears on payday? sanya balabin is at least a balabol, and what but the best opera. department, executive in charge, won’t let you down, sure, you’ve been sleeping for a long time, my comrade, so i was sitting in ambush, but when

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premiere, november 27 on vladimir moshkov’s birthday. at 22:15 on ntv. beyond. this is beyond the bounds. due to a rare genetic disease, thirty-three-year-old vladislav petrovich from minsk has been confined to a wheelchair since childhood. but this did not stop him from graduating from school with a gold medal, getting a higher education and meeting his love. i am diagnosed with sma or vaspinal muscular atrophy. lyulya does everything. doesn’t consider the things that i say i can do on my own, that is, she dresses me, helps me, that is carries him to the toilet, to the bath, puts him in a stroller, in strollers, vladislav’s wife, thirty-year-old yulia petrovich, assures her that she is not at all embarrassed by the fact that it is not her who is carried in her arms, but her husband. recently , the couple started thinking about adding to their family.

i think that i am very lucky with my husband, he is simply an exceptional romantic, he constantly gives me... gifts, tries to surprise, takes us to other countries for events and concerts, everything we can get to in a wheelchair, we always go, we dream about children literally recently, about six months no more, we we started thinking about this topic, julia, and if you become a mother, will you have enough time to take care of your husband, your child, and yourself? we have vlad’s parents, if there is some kind of emergency ... or i need to go help, then my mother-in-law will certainly help me with this, but how did your relatives react to the fact that you married vladislav, negatively, both your mother and sister, they still don’t fully accept this relationship, and it would seem that at the beginning of the relationship they discouraged me every day, literally,

even now i’m still waiting that maybe some prince will come and take me away , your sister admitted that she was against your wedding, and now she’s afraid to even imagine that you will become parents, in the studio natalya karkashina, hello, natalya, hello, are you crazy to show yourself off to the whole country, so that they can see this relationship of yours, your life, and what’s abnormal about it, natasha, and what’s normal? young, and living with such a person, well , excuse me, i can’t understand this at all, that is, for you a person in a wheelchair is not person, but i think that vladislav , he is not worthy of yulia, she is happy, look, a happy couple, who she should have chosen, she is happy with him, it is her who will choose her life, her youth, what is she, what is the reason for the girl she likes,

he’s a nice guy, it’s nice to look at them, good energy, why is this her choice, why are you interfering, she fell in love, no, this is for her... not from life, breaking her back to live like this, she’s a woman, she owes him pull him, have to change his clothes, have to carry him, feed him, excuse me, what does he wear? will help with nothing of course, every mother, every dear sister, she wants a daughter for her sister, so that there is , well, a good, full-fledged family in every sense, but on the other hand, of course, it’s clear to me that we’ve been together for 11 years, then well, i just don’t understand, why should relatives think that she is ruining her youth, her life with you, and yes, you can send her somewhere with some money, she will go to the store. and what else is she, she sits at home, like a nanny looking after you, you think this is normal, but on the other hand, we have been together for 11 years, we have

one marriage, and you already have more than one marriage, you had a healthy relationship, but nevertheless, it means that happiness is not in this, it is better to live alone than with such a person who is disabled, natalya, how did you even know, that your sister met vladislav, she didn’t talk about it at all right away, when i found out, i was generally in shock, we were categorically shocked, my mother, when she found out, she actually said, well, i ’ll take you to the battery and not i’ll let you out at all , i found out that vlad offered her to live together, and you know what your sister and her husband want to become parents, when i found out this , it was generally nonsense for me, children can also be sick, vlad, too, excuse me, was born normal, wait, do you help this family with anything? maybe not even material help , but just to come help there, clean it up, help your sister with something, not just your advice, no,

excuse me, i’m hearing now that your position does not include bringing your sister closer to you, because that you are categorically opposed to any relationship, i am interested in the question, have you provided any assistance, did you at least try to understand, no, i didn’t provide any help, i don’t even want to provide it, i’m honestly in shock , that is, my situation has been fixed, and you’re already sitting in your own little world, you don’t need a friend, who you used to communicate with, you just sit stupidly with him, i’ll support you, i’ll support you, that sincerity is expensive, thank you for that, natalya, yes, but i’ll comment that here we see a typical example of violating boundaries in the generic system, then is when the child grows up and is over 18 years old, he has the right to build his life the way he wants, but unfortunately, mothers do not let their children go into adulthood, do not allow them to undergo separation, and sometimes older sisters, older children, also take on the role of such a mother, what does this lead to

, to the fact that, uh, the family does not allow an adult to be born, here we see that yulia , who is trying to become an adult, is trying to become an independent person who builds her life according to her own rules, her relatives do not allow her, believing that she still in their family, the main task of the parent is teach a child to live without a parent. if you don’t let the child go, then this is selfishness. alexander, if you were yulia’s parents, how would you behave? i would completely let go of this question, since she fell in love, they love each other, and this is happiness. but you would accept such a husband, i would accept, now, you have children, because, yes, yes, i have three children, three, yes, yes, and at the same time you refuse to have children for your sister, yes, why ? because they may also be disabled and you understand that she will look after the child for vlad, he won’t help her in any way. natalya, wait, do you even know how your

sister lives? of course, i know, i see, she’s filming all this for the whole world to see, well then let’s take a look at us too, in this two-room apartment in the center of minsk. year-old vladislav petrovich lived with his parents since childhood, and 8 years ago he moved in with them. julia, this is my parents’ room, often in the evenings after work we come here, watch tv together , discuss something, taking care of the husband fell on the wife’s shoulders, the woman carries him to bed in her arms, and at least four times a night he carefully turns him over in his sleep , vladislav cannot do this on his own, when this side is already lying down for him, i turn him over to the other side, these movements are already familiar to me. i do them all the time, i already know perfectly well the position of the legs and arms , how comfortable it will be for him to lie, yulia also carries her husband in her arms to the bathroom and toilet, the rest of the time vladislav moves around the apartment in

a wheelchair, which is controlled by a built-in joystick, i drive slowly, i look carefully so that it doesn’t happen on the day hurt, because, of course, it might scratch something, and as they say, i probably feel all these dimensions intuitively, so in principle i’m already used to it. so, since it’s hard for him to lift a glass, i take a regular straw for juices and this way it will be easy for him to drink, in their free time from work , the petrovich spouses shoot new videos for subscribers of their blog, we film something right at home, in the room, we installed light, then yulia takes the phone, so she installs it, yeah, now we turn on the video recording, set it so that we they definitely climbed together so that vlad would look bright in the frame, yulia chooses

multi-colored t-shirts with prints for him , vlad loves to be bright, he always wants to surprise his subscribers with a new look, they constantly notice that he is a fashionista, they always write comments, such a cool t-shirt, where did you buy it, how did you see it, tell me, you know, i have a generally ambiguous opinion on this matter, i understand natalya a little, of course, like a sister, she would probably like to see her sister next to her, yes, but what she sees now is for her it’s painful, it’s just painful to accept, and what i saw now on the screen, for example, the fact of such publicity is not entirely clear to me , i’m just, for example, afraid that excessive publicity can lead to you reacting to well, hate, but from the side of society, somewhere somewhere somehow there will be some kind of reticence that will lead, well, to something, not... regarding publicity, i

will say this, but firstly, haight, he has already shackled us so much that we don’t pay any attention to him at all, he certainly doesn’t will not negatively affect our family, but we are showing all this so that other people who have the same disease as me or a similar one, so that they are not afraid to have the opportunity to have a happy family, they too , despite their shortcomings, can be happy and complete. alexander, by the way, is yulia doing everything right in taking care of her husband? from a technical point of view, yulia manages like such a truly good nurse in the intensive care unit, that is, she does everything right, she doesn’t do it purely with her hands, she helps with her body, helps with long levers, that is , so as not to overstrain herself. julia, if you get pregnant and are in a great position, who will take care of him? will not be able to be lifted. from heaviness, how

will you then cope with these worries? i think we will always find a way out, in any case, we have a mother-in-law, who can definitely help us, the blood works from morning to evening , okay, during the day, you will do it yourself, how to pull it, now we need to hire some kind of nurse, to take the load off your back, so that later you don’t have a hernia, protrusion, or anything else , right now, if you say, vlad, he makes good money, his parents help, it’s not even a matter of opportunity, it’s just... even, yes , first of all, this is not necessary, from a moral point of view, i don’t want to live with my family of three, and a stranger still doesn’t feel it the way i do, he doesn’t understand that there needs to be turned a millimeter, or i know that there he doesn’t turn his neck in this direction, that is, it takes a long time to learn this, you need to feel it, but someone else’s man, no, please don’t show me, you had a relationship before vladislav, maybe there was some kind of negative one, yes, i had a healthy man, but he didn’t just cheat, natalia, do you think this betrayal could

have affected your sister ? i think so, yes, that’s why she thinks it’s better with a disabled person, he won’t leave, won’t change , won’t do anything bad, how does vladislav’s mother treat her daughter-in-law, did the two housewives manage to get along in the same kitchen, not quite right away agreed to this marriage, and is there spouses have a chance to become parents, a decrease in sperm counts, it is predetermined, we will find out very soon, on the air - your favorite superstar show, the topic of today's episode is a dedication to departed idols. i love baritones so much, for me it’s just like meth. not an incredibly subtle person. wings are not

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leaving, you have a clone in every city, chat, if you want to chat, call me, konstantin yushkevich, you who is this, barvaley. rosslov is finished, today at 20:00 on ntv, beyond, this is beyond, the husband of thirty-year-old yulia petrovich from minsk, thirty-year-old vladislav, has suffered from spinal muscular atrophy syndrome since childhood, he cannot walk, he can hardly turn his head. and i help vlad in all household matters. that is - i serve him food, give him a fork, a spoon, and i put him to sleep, turn him over at night, carry him to the toilet, to the bath, that is, i constantly touch his arms and legs. in all senses. recently , the couple decided that they wanted to become parents, but the woman’s sister,

forty-two-year-old natalya karkashina , is categorically against this. i say: “yul, why do you need this, you understand that you may have a sick child, and then you will have to look after vlad, the child, and it will be difficult. natalya, of course you are categorically determined to you can see this in your attitude towards your sister, but did you even attend yulia’s wedding? well, i had to, but what should i do, yes, there were, i had to, and my mother was , she was, because it’s like, well, it’s still a daughter and i feel sorry for her, that is, you persuaded your mother to come to the wedding, yes, you really persuaded her, because she didn’t want even go, julia, the wedding was a happy day of your life together, how did the wedding go, of course, it’s a happy day, and did your mother wish you happiness on your wedding day? yes, on this day, she pulled herself together, took

the icon, gave it to her, blessed our marriage, but you as a human being, yulia, you understand my mother’s feelings, some of them yes, but vlad, i think , over many years she has proven her wonderful attitude towards me, and you could clearly see all our love over all these years, and you love your mother ? yes, i love my mom, would you like it? so that you would be closer to each other, yes, mom, i love you very much, you are my only, dear and beloved, and i think that you need to try, please, accept, accept our family, yes, understand that your daughter is happy, and we want to be together please accept this, natasha , please be close to us, i

love you very much, accept our marriage, please, sergey, do you think this family can come to peace? you know, of course, the situation here is one that is completely solvable, and i will show here the double bottom, that it is the mother and the older sister who are in some way indirectly the authors of this. that they have learned their lesson, this is the lesson of accepting heterodoxy, accepting otherness, accepting the impossibility that a child will correspond to some ideal image. yulia's parents, unfortunately, they still haven’t passed it, mom and older sister still haven’t passed it, and what’s interesting is that until the parents have passed their lesson, the child. will create situations to help them

pass this lesson, that is, non-acceptance gives birth, in general , to the continuation of such a family, and acceptance can make this situation resolve. yuri, what is your relationship with vlad’s mother? in good, friendly, trusting relationships, we quickly accepted each other, this is also a dear person to me. vladislav’s mother is ready to help you raise your child, but believes that the issue of the birth of a baby should be approached very responsibly. studio natalia petrovich. hello, tell me, sergey. i understand that you are more supportive of julia’s son’s marriage than her parents? yes, i had a very positive attitude towards marriage, but i didn’t quite agree to this marriage right away. because i thought that yulia didn’t have enough strength, simply because it was hard work, and

before they decided to get married, i even talked to yulia, yulia, i agree, well, you thought about this step well, and you understand the feelings yulia's family for her, of course i understand, because every mother wants happiness for her child , but this is my son and i am on his side, do you think that your son... yuri, true love, i want to believe in it, i i really want to be a grandmother, i want to look after my grandchildren, but i’m afraid that a sick child may be born. olga, what is the probability of this couple having a healthy child? in my opinion, we immediately have several positive factors that lie on the surface. firstly, it was not diagnosed immediately after birth spinal muscular trophy, the person lived to... age and it is preserved, which means it

could be some kind of mild, so-called form of spinal muscular atrophy, which progresses more or less, not favorably, but here are certain symptoms of how vlad’s illness is progressing, they inspire us with optimism. there are genetic studies , broad, as comprehensive as possible, which will allow us to determine exactly the form of spinal muscular atrophy, what type of inheritance is taking place, in addition to the fact that geneticists can help with genetic diagnosis and prognosis for... future children, i think that specialists in reproductive medicine, in assisted reproductive technologies will get involved here, who will find out the reproductive status of the couple, their capabilities, that is, olga, you can understand before pregnancy what the chances are of giving birth to a healthy child, so how

is this possible find out, this is a panel of genes that we will study in vlad, julia, that is , this is blood from a vein, blood sampling from a vein and the corresponding full detailed genetic studies. we will define the type inheritance from vlad, we will determine whether julia is a non-carrier of this gene. after genetic testing and counseling, geneticists will give us the exact percentage probability of having a healthy child and the percentage risk of having a sick child. alexander, in order to take a genetic test, it is necessary to generally understand whether yulia and vladislav can have children at all, we do not have positive statistics that even physically healthy people are all reproductively healthy, and they do not require any kind of complex supporting the strengthening of reproductive health. and here i think that the tests are

taken from a vein for reproductive health and genetics. research, i think here that a complex of both types of research can be done in one laboratory. vladislav, yulia, today you were examined by a reproductologist for the first time, so we turned to the program beyond, for help in this matter, because of course, when we had already decided for ourselves that we wanted to become parents, we wanted to be sure that there are no negative consequences. our desire to have children will not exist. let's see how your appointment with the doctor went? vladislav and yulia petrovich go to the capital’s reproductive health clinic to find out if they can conceive a healthy baby. hello, but in order to understand your fertility potential, you need to take

several tests. vlad, you will need to take a spermogram and a blood test. gives everything necessary, his wife, yulia, goes to see an obstetrician-gynecologist, the doctor collects an anamnesis, and then sends the patient for an ultrasound of the organs small pelvis. were there any pregnancies? no, then let’s now look at the condition of the ovaries, the condition of the uterus in order to understand the potential for a future pregnancy. yulia vladislav, we are ready to hear the doctor’s verdict, we are worried, we are really waiting, excited, then i invite a doctor, a reproductive specialist, to our studio: victoria alexandrova. hello, victoria. hello. what can you say? about the state of vladislav’s men’s health? well, as for vlad’s fertility, of course there are small difficulties, because the decrease in sperm count,

it is predetermined by the disease itself. but nevertheless, you can select sperm and accordingly carry out an iv program so that... a healthy embryo, only an iv program will help here, or conception can still occur naturally, well, unfortunately, for natural conception, the sperm count is sharply reduced, and here you need to choose selectively high-quality spermatozoa; they are presented only in isolated variants. as for yulya’s health, she is fine, we checked her hormone levels, checked her... reserve, that is, the potential of the ovaries, in general, pregnancy does not threaten her, it may well occur, physiologically, but given that there is a diagnosis that you do not want to repeat in the fetus and you want to give birth to a healthy

child, for this purpose it is necessary to carry out genetic diagnosis of the embryo and, accordingly, achieve a healthy pregnancy, we, in turn, are ready to help, conduct this diagnosis, it takes about two weeks, and this will eliminate the presence of a mutation in the unborn fetus, in order to give birth to a child... without sma, it is necessary, so that yulia is not a carrier of this disease in the analysis, then the probability of having a child is as high as possible, you agree to this, of course, of course, we are really looking forward to this, we will be very grateful, natalya, you will support yulia too, no matter what happens, i am a mother , and i will support them in any case. in every possible way, i will, as soon as i can, i will help, what can make the life of vladislav and yulia easier and who is ready to help their family? i want to say a big

thank you for such an inclusion in my life. don't miss it, we'll be back soon. the man did lover proposed marriage, and then demanded a dna test. and she lies all the time, she is 7 years old. this asserts, here it represents such that the situation will happen, that this is, well, i am not the biological father, the bride herself is not sure that it is the future husband, the father of her child, because the father may also be the husband, the ex, my husband was in places of deprivation of liberty, at that moment i was having an affair, and he, in turn , declares that his wife regularly cheated on him, denis, this is not my child, will a mother with many children have to look for another groom, father? son among her many fans, she said that this was a novel , andreev’s child... she told him because she was officially married to him and had to register it as him, it seems to me that he wasn’t even lying around, there if it now turns out that this is not romin

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stop you. tankatali premium is a symbol of male success and maximum sexual energy. get tankali premium right now for free, find out how by calling: 8800 2009 456. all conversations are confidential. balabol, new season, today at 20:00 on ntv. over the edge. this is beyond the bounds, thirty-year-old yulia petrovich from minsk carries her thirty-year-old husband vladislav in her arms. the man has suffered from spinal muscular atrophy syndrome since childhood. muscle stability and the inability to walk on its own are its main indicators, which interfere with a full life. i myself, the main thing of course, i eat, i brush my teeth myself, and then

there’s something more complex, of course. i won’t be able to change my clothes, turn myself, with my hands, it all seems to be lying on the spinning top, the spouses’ difficulties do not frighten them, they recently started thinking about children, they have already been examined, the reproductive doctor said that yulia and vladislava have a chance of conceiving a baby with the help of ivf, but given the fact that there is a diagnosis that you don’t want to repeat in the fetus, and for this purpose it is necessary to carry out a genetic diagnosis of the embryo... and, accordingly, achieve a healthy pregnancy. vladislav, is there anything that could make your life easier at the moment? yes, since the stroller, in principle , replaces the legs of a healthy person for me, then when this stroller has the functionality as comfortable as possible, then of course it just dooms me to everyday life. to unfortunately, my stroller is, well, not very,

so to speak, comfortable in these ones. because driving on uneven asphalt, sometimes the tiles are broken, sometimes there’s sand, that is , it’s especially difficult on high curbs, yulia has to help put extra strain there, pull them up, and of course, i would like to have a new stroller that will i feel comfortable with the ability to move both on the street and on any surface and remove excess. load from the wife, such a stroller costs a lot of money. you know, vladislav, one person was very impressed by your story, and he couldn't stay away. watch the story. dear vlad, i would like to wish you, first of all, human happiness, good work, a strong family. and let our small contribution fulfill more of your dreams, desires, aspirations, aspirations, so that you are happy, you are a very