tv [untitled] January 22, 2013 9:30am-10:00am EST
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oh six million people. it's about a government of intelligent people deciding to get rid of a population. they thought was a contaminant. you see adolf hitler use the term tear image in german animal people subfield. as he spoke about the sioux might interviewer through which. sold people who think conspiracy theories conspiracy to not set up a conspiracy is when one segment makes a play and against the interests of another segment and the other segment doesn't know anything about it. and when it comes to matters of mental health and therapy had guy. was. half.
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the time it's. this. is going to back you. was. the trouble. was just. haven't done it. and i think until you know even in the medical school curriculum you know. when to talk about hiv you know important it is going to go into the next generation. is not just ignorance and still associated with the disease but a lack of compassionate care. by nineteen ninety five h.i.b. infections among black americans had surpassed white america.
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blacks accounted for forty percent of all newly infected h.i.v. cases. the most startling discovery was to learn that african-american women accounted for a greater proportion of new aids cases among african-americans overall in two thousand and three. it rose to become the number one cause of death for black women ages twenty five to thirty four and persis this day. after ten years from now. my husband and three year old daughter and at the age of twenty nine discovered to have aids my third child was born very sick. we didn't know what was wrong with her no one was able to tell us what was wrong
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she was in and out of dol spittles and by the time she was about two my husband began to get sick my husband wasn't feeling well he had a cough we kept going to different doctors feel they kept misdiagnosing him first they said he had allergies they gave him allergy shots then they said he had tb they tested him he's fine it doesn't have to be after about a full year of trying to figure out what was wrong they then said ok your blood count is really no he wanted to be emergency room and they said well you probably have a bleeding ulcer so let's admit you to the hospital and let's check you for you know where that also is and we can take care of it they kept misdiagnosing him because he was a family man he was married we owned a home we had children in private school so we didn't fit that stereotype of what people with aids or h.i.v.
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look like people have histories people have done things in their lives my husband did do. but he had been clean for over ten areas so they didn't see any marks they didn't see anything that they thought was suspicious i guess that's the assumption and sold and never asked him so what happened is that people's perception of who got a scot in that way. so by the time they figured it all out he did not have a bleeding ulcer and they then said ok we need to ask you some other questions you know have you ever done drugs and those type of questions and then he said yes several years ago when i was in the service. and they tested him and he came back with full blown aids. fellow even while my husband was sick and dying and a half but all you know i made up i did like many of us you know i made up stories
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of what he had been one telling the truth. because of discrimination because of fear because of him i don't want to people to be afraid of me he die on january first new year's day course it all made sense then what was wrong with the baby and then she died. on into a half a year. i tested myself and my two other children thank god there were healthy and they did not fire us but i did when i was diagnosed i was very sick i was ab pounds i had no t. cells and i was extremely ill so i was diagnosed with aids
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diagnosis not an h.p.v. diagnosis i was given less than two years to live in the course of six brief months lost her husband of ten years first three year old baby girl and was herself diagnosed with aids. when she reached out to her family i'm blessed that i have the family that i do we don't talk about it but i've never felt like they were afraid to be around me for many of those newly infected with hiv and aids silent to acceptance by family and friends is often not enough after everything happened i went to one support group then it was all guys they were nice men. and i was the only woman problem with that was many of those guys were talking about things like how do i tell my parents or my family that i am homosexual.
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they were those were their conversations and their fears and their discussions of course when i brought up i am in panic i just lost my husband my baby i have an eight in a four year old i'm going to die so what do i do with my kids i have to stop working i'm now on disability i went from two incomes to a fixed income a disability check i'm trying to figure it all out so of course i think i'm going to die because that's what i was told and for women for mothers our our focus now becomes not even about herself. it's about our children what's going to happen to our children my children are going to be orphans i can't even stand to be in the house with them and watch them playing because i was so heartbroken that i'm going to be leaving and i couldn't identify with the guys in the group so i figure i need to talk to some women and see if my only wonder still are with this
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or or or what recognizing that her doctor was seeing other female patients you had h.i.v. . came up with an idea i asked my doctor if i could put a flyer in our home in her office. some other women so long the whole a flyer in her office i put a secret phone line in my home because lots of family and friends didn't know i was dealing with this issue and lo and behold the phone started ringing and i started we started talking to each other just on the phone none of us wanting to show our faces and as we became more comfortable i would meet them in a coffee shop we started giving each other support that way and then started to support in my home where women will come together bring their children and we will just talk ry prepared for death and all of those things that we were doing pretty much on. women's group soon revealed. concerns.
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from a support group we quickly quickly realized that services for women were non-existent if moms need to get to the doctor she was given a token to get on the bus to the doctor. she was given enough tokens to take the children to the doctor with her so basically she had no childcare she had no transportation so she couldn't go to the doctors she ended up not seeing a doctor so we became a network of women and we shared our our very limited resources we shared our trans. the case and we help each other try to doctors appointments i ended up keeping lots of children in my home. they don't get put into foster care system so i would say driving children to all different schools all over they see in maryland including in addition to mine so they don't get put into foster
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care system. that's reluctant a handful of shy women soon blossomed into a forceful group of brave souls. no longer able to accommodate the growing number of each i.v. paused of women in her home. wrote a grant got funding and started the women's collective in washington d.c. . women are caregivers we are taking care of not only our children. our parents. and now we have. our own health and. to take care of everybody. and i think we need to set up a system that is more helpful. and support women around the support system. to help them to be able to take care of themselves.
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i think education is definitely one of the more important pieces to it because people are getting wrong information and there spraying is wrong information out there we learned about the technical aspects of hygiene catch it what it is what it stands for why not like percentage is and things like that and who are mainly affected my. yeah just like general education knowing that stuff like when i took such that in school you never really learned about it ideally we just learned late about puberty and about lady oh how to put a condom on but they don't really teach you stuff like hiv prevention and who falls into that category of who has it we're minimum incense and we're going to show you her right mate having sex they don't shoot at all either you know it's very
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important to know about going to times about man and woman having sex and the risk of what happens but never a few not a few more on the levy to brar the net a little bit larger so we know you know if you need me you need to be straight you know he gave me no information center i think it's all. that parents talk more with their children about it we don't talk a lot about that with us kids even today it's still kind of hard to broach that subject with the young people but it is so important. i'm a famous letters like you do in the back you will be a true she's made it all the time to the new mom i'm a virgin turned to me you know you met doing the right you're going to get. mugged i'm pretty sure that's not cares that's how you get it she was like a lot that was a game as disease i thought they were given let's see how you get it just from doing that i do have a big white nose and i get it i find it funny how when parents
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automatically assume that your child is going to be shared i mean and they kind of force me to it that is why a lot of conversations about hiv and aids don't really it doesn't really happen in the household because you're taught. you're kind of taught by your parents to be sure and you know to talk about anything that involves your sex life because you're not street is conneally you know taboo to bring into your house it's like i'm not going to talk about you know the things that i can get you know by having sex because my mom doesn't want to hear about me having sex with another guy and for me it is not even about just have a say it's with the same sex or opposite sex it's not having sex at all so it doesn't get beyond if you don't have six magical wins or you get married type stuff just on sex and you know procreation what if i'm thinking about it you know i'm interested i don't i can't talk with my parents about that or i don't feel like i
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can talk to them about that because they already say what they expected as soon as six so i'm like ok if i do have sex what will happen occupied but what about this on my kids. i don't know what they are i'm young i don't know and we slow mo h.i.v. we don't need to get to that because it's a don't have that i think many more open dialogue about. people are still very very nervous about talking about their sexual health and their sexual behavior talking about sex it's pretty normal in my group of friends but when they come some like a child be an online education. that's not their home when this really awkward but we do talk about it it's not like it's not existing but usually when i hear other people talking about issues in life all some minus unattractive or ugly well things on their person not their sauce or. their so it's usually in a negative not inspiring or educational life but with my personal friends my close friends issues are like look we be educating people or we're just talking about
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trying to figure out what what we know what's true is mine simply just saying i'm a child be on my place and on the plane on the press all on the plane one myself and both of those are very healthy and to like. and i say i. think the work of keep in mind is that with the abundance of information now available about hiv. i don't snub their noses out the statistics they believe that with vitamins all they have to do is pop a pill if they should become hiv positive in our community like we desensitize ourselves so much from aids i mean that people as i always remember will disease if you can manage it and you've got to have the park of the manager if you don't have insurance. because i don't think the average person can pay fifteen thousand nine hundred dollars in rent and still pay two hundred dollars
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a month for medication and for those for whom money use not a concern there is a physical cost to taking drugs to fight hiv take four pills of one for a lot of people take a bactrim pill because the keep infections and stuff away and then i take. the opportunity which is helps with the pain in the morning. and so i take that as this clock in the morning i wake up thirty to take medications because. i do two hours to recover from second the medication and i go to bed i have my pill container and i'm out of water in the mornings when i wake up i just open the pill bottle take the pills drink the water may back down let the side effects go through this nazia stomach pain tiredness everything that i go through just let it all go through enough to two hours i'm good. the data is that even well treated even with the best drugs someone with
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a just going to live a shorter life than someone doesn't have aids and i have a lot of friends on these drugs at this point both in africa and here and you know if they could go back and change that and live a life free of a trivium i know for sure for certain that they would with thirteen percent of the population yet we have the highest rate of infection again it goes into not a single answer. if i look at how blood pressure what we'd be if i looked at colon cancer where would we be if i look at breast cancer where will we be if i look at. one. it is clear that the tremendous growth of hiv and aids in america's black community is driven by many factors yet no matter whom we spoke to physicians clergy political leaders and those afflicted with the virus it was clear that the real culprits behind the epidemic are ignorance miscommunication and most
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importantly a collective silence about how it is transmitted what it means to live with hiv and its phenomenal spread across black america. if we sincerely want to help the spread of this virus this is a problem that frankly is substantially preventable if there were really good public health campaigns if people really focused on this problem you certainly should be able to hold a lot less h.i.v. a lot less human suffering and you would and that would mean a lot less energy and resources both in that a societal level but also personally trying to deal with it down the why would someone thirty seconds i was in london in the mid 1980's and you couldn't turn on the television without seeing a commercial about h.i.v. a child be a child be you know can protect yourself be attested etc you know day after day after day after day after day after day after day. that's public health education
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in my view we have not hand at a level of intensity and public health education. where we still don't have a bill we are still talking about any increase in the number of cases and we need to talk more to people who other people trust in the communities like for example the hair salon the barber shop so we go there all the time we have conversations in there about everything you know so you know getting the right information into places like that places of worship getting the correct information that's a beer can can really help kind of hope this disease if they do think that you can more conversations better you don't necessarily need leadership from the church to push you really need is leadership to somebody right so well that happen to have been the case and he came to that was there were the can verify is quite right larry kramer was a real leader in this conversation and in zimbabwe and in uganda in congo there
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were singers who are leaders in this conversations and in other places or political leaders who didn't maybe could be almost anybody can write maybe somebody has to stand up and take this on it doesn't matter who it is as long as one person cares in his or her system. kelly and i think what's going to eventually happen as far as in our community is that we need to start letting young people and even young people just people in general understand the power of their voice because eventually was going to happen is that. the new media is going to be the cell phone ok because as they see things put the video you know because now cell phones you could upload photos directly to you tube all these different things is that now they have the power to tell the story. as more people living with hiv step forward to tell their stories we will no longer be able to ignore them and pretend we are safe the conversation must be taken to the schools inside the homes and
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throughout the community to eradicate the myths and fears that feed this preventable disease. today african-americans account for fifty percent of all new h i.v. infections every year unless we start talking to each other we will become dependent on drugs to live. with succeeding generations. start the conversation. on the elevated to the list you don't see. this.
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but the answer. is to see. just like there. was. a child. let's just don't seem to sense the united states station crisis fifty to seventy. patients just. where you live and me. why would she. be out if you did to just before what is the most pressing you know penis underground labs beneath the rain as would you fall from. one of the african. conflicts with my allergies but not to. the district's knowledge to do so
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with no fee so how to travel across borders. late all had a low cost water use if you didn't want. to sit there you never see no plan to can identify with the life he's business. decease those in the know begin. to kill this disease and significantly prevent from being ignorant can feel when you have a little. different but you suffer the same shit while c.t. to me is the name of the gays the most dems you.
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