and she was bedridden for the first year after she had to eat and sleep on a cushion because she would cry when we touched. yet i probably fell from the chair and i was from the sofa and that didn't hurt at all but then i fell off the arm chair and i broke my leg. i cried for a while. and then at those sleep. but why why why why did it have to be. with. the sheets. to simper factor

is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth to believe are supportive of the sufferers have brittle bones and are at risk of multiple fractures but there are mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton the more. skinny of these two portman wiley's even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures to make their arms and legs shorter and in this

state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new is no brother can hit her mate with fooling around well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so to form that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start

using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. but good morning i just tell you doing. we'll soon be patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy that if i'm a sion and restore the limbs to a normal links equations. ok and how old are you seven why would a big girl. didn't

think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over due to a mishap as

a result of both my thighs fractured at the same time i would be there that morning when the doctor arrived he said just don't touch him don't touch him and what they could you know not how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. in the initial thoughts i found my soul mates. the woman who'd shares my interests and principles of the greater the god willing we will go through life together and it he stands with the thought of if we have to enjoy our trials and tribulations well but also be. but then you've been given the. most of our first child was born on the first step february two thousand and three . is when i was fifteen weeks pregnant my child was diagnosed with a just released. them but unfortunately there was no internet at the time so i was

not aware of how serious the condition actually is. geneticist who was in charge of our sin he said to me you had been warned about everything it was your decision to i think give birth or to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened we went through just staring at each other and shrugging our shoulders that's how teenagers behave in similar situations. because our second child is ok we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness

that never came to pass. was the disease to me by any chance to carry on with a cure like playing with a kitten i didn't pick up the disease did i. didn't. call you or a didn't either but i did and i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. in the red french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. had been mowed down and fractures. both arms have broke.

her fractured twice. oh that happened when they were messing around for the time i wasn't being attentive enough i didn't stop them and they're playing around . like that when they began chasing the carrot she lost her balance fell over and broke. that incident to lay the treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. this is one is a very painful. so what does it do. more is that here it is right here here.

that's where it's supposed to be it's my addition to heard yesterday to remember now ok it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything. but i slap i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you think would have happened so the operation was successful but of course it's hard to look at to try to be honest but i think it's a little. i didn't want to feel out on the forums registering her as disabled until she was

three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture. oh are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you thank you. it's quite heavy yeah heavier than my cast. i wish. as a rule i come here to meet the parents of other children suffering from auster janice is in perfect on the first and last. card when our daughter was born we had no idea what would become of her doctors predicted

a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of setting up an association of parents with such children are not going as either time this isn't clinical psychology realise that some simple methods could make life much easier for those parents. i need to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me but i just wasn't so i volunteered to have their so see. it. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all

together. it was almost ten to right angle group and it had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also in a comfortable that i didn't i mean psychologically. our bush bush bush. if you like world more or. less a push against. her but don't overdo it although you know you would be gentle. your . kill you through with the sock. can you reach out to me. now

or the right to do the same with the other hand do you need to rest against it closer toes now it's like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jolly her burns were soft and flexible. we didn't tamper with her limbs they just fixed and each time they got fractured she was in plaster for six weeks at a time she would simply fall down and break the. muscles don't support his spine throw. by half hour walk is not to make a spine show through the process of compression.

i do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise but yes the bush league is. bored with the warmest of the children tain in the courtyard oh boy it's good they keep playing their arm's length when i can't take part in simplied games because there aren't enough girls around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work. she has she has admirers and that's a source of inspiration for her. there at the. world. listen i want to invite you to attend the event you've

been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to. grab a. long time you miss him. very much .

i found. one who can usually see me because both my parents were atheists it's the same they were among those people who built a savior to union realty and in those days it wasn't all that easy to express your faith the adult here in the twentieth century what they could o.c.s. both i didn't get it when i started to live on my own then i was baptized that's

when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting i. would be done hurting his feelings would really not be a nice thing to do and most of it would leave i felt that i would offend him if i didn't join the also doc's church with if that. mission if the happiest i. look at that across here in this holy place is that the what the closets says see the entire family of royal masses was murdered in nineteen eighteen it is there and their holy remains were here. those of alexei the heir apparent and his sister's. that's why this is a holy place any more they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic either . things on said drug phones that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people.

to set the from stone the thing is that we can't see life as something beyond your rachel something you can't cope with but if you're a human being in the proper sense of the word like here on almost anything is within your powers with you but i just feel i may have become somewhat braver but i chose to rely on god's will i had. dream that i wanted to visit st petersburg a lot of the players the public by nurtured it for twenty five years i yearn to go that would give those who finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges.

mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. i don't know what to staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and. i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. you get a yeah i'm going to be an artist the worst thing is because drying that's what i like most of all. the children understand that d.s.

is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in by sometimes she even chases other children as she drives her wheelchair around the room or else she chimes in when the boys or girls are discussing something with the girl she has friends and the surge and fifth forms as well as her own also. discovered she copes pretty well without me sometimes she asks me to stir pick up blokes because she finds it difficult just deserts a girl i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job that's my injury. has turned my life around before she was born i wasn't aware of what the world is

like for disabled people it really was beyond my perception was that i sensed that their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realise they weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the lead a normal life all the same. but here they can do. what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for.

a new group hours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kids a searing heat. that while it's so beautiful. thanks here will come. when the kids and i first met i had planted to talk about always glad to read on that there was somebody else like me. explained in line games. if i find a new game he placed it with me was on the proceeds. going to the sends me messages as soon as i am on the internet. but for sure doing things with children in wheelchairs i would like to meet more people so that i could visit them for

birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby bottle legit and she would use it to feed them with my own. their good bit of ability but she was any three years old and already she was trying to help me. yeah i knew. known as. el al i wish you happiness and health. i hope you'll be kind and well behaved. and i love you i love you.

those thank you thank you. but then my husband says where god the other children will take care of her no doubt about. the love it's a pray to have such as. it is said to blessing in syria. some kids don't move much but there's no stopping her she one sits in five minutes . and says all we're doing this concerns both the state of our health them to stay divel family i think we can convention eight house house and told her that she can have a good life. and she knows that does a good deal of interesting news to her and entertaining things in this world to

chill has never faced a situation when nobody needs her. honestly if i had a child diagnosed with our students this perfect i wouldn't have a problem with. i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

you mean speak your language just go to the turks club programs and documentaries in arabic it's all here on the t.v. reporting from the world talks about the v.o.i.p. interviewers intriguing story for you to. introduce altie arabic to find out more visit our big dog teeth dog called. me pete if to feed. it to. such.

behavior thanks to my. place . blame. blame blame. oh and i play.