as the main protein in connective tissue college in is the basis of the human skeleton to move all. these to even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the i hear that you hit something and you always have brother you can hear her mate with fooling around well well here we have a person that we can already send to the anesthesiologist.

now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just know of how you doing. with the patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities

with flexible titanium pins to remedy that if i'm a sion and restore the limbs to a normal links regions. ok and how old are you seven why would a big girl. didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election my father

suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which he could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time i would be there that morning when the doctor arrived he said just don't touch him don't touch him could you not how much childhood came to an abrupt end with. the will of god is omnipotent. the initial thoughts i found my soul mates i mentioned a woman who'd shares my interests and principles it was legally god willing we will

go through life together and it he stands with the thought if we have to enjoy our trials and tribulations well but also be. but then you give. us our first child was born on the first to february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with the distilled down we knew. that the fortunately there was no internet at the time so i was not aware of how serious the condition actually is. geneticist who was in the challenge of our sin he said to me you had been warned about everything it was a decision to i think give or to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging her shoulders that's how

teenagers behave in similar situations. is our second child but yes. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease postpone to me by any chance to carry on with a care for me like playing with a kitten i didn't pick up the disease did i. didn't. know you were a didn't either but i did i pass it on to maria and i said that's how it is.

in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those affected passing the disorder on to their children. had french as when she was still in the womb the first months was the most difficult period for me she spent it all in intensive care. had been mowed down and fractures. both arms. have fractured twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them and they're playing around . was that when they began chasing the cat she lost her balance fell over and broke . that incident delayed treatment they even said that further treatment might be

pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. and. this is what is a very painful. so what does it hurt to bring to my knees the pain. i hear here. that's where it's supposed. to heard yesterday to remember. it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything.

but i said lance i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at a child after being interest but it's a little. i didn't want to feel out all the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be an end not the fracture. oh are you. ok here i've got a present for you it's

a russian doll this time too but it is of a different kind it's made of crystal. you think you want to describe it it's quite heavy yeah i have a year then my cast. i wish. as a rule i come here to meet the parents of other children suffering from auster genesis imperfecta first and last. when our daughter was born we had no idea of what would become of her doctors predicted a very poor outlook or they said the child was unlikely to be able to walk and faced a very bleak future. dr natale below has spent years treating children afflicted with the disease like she was the one who came up with the idea of sitting up in this o.c.a. ssion of parents with such children are not going as by the time this is in

clinical psychology realized that some simple methods could make life much easier for those parents. to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to had their so see. two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is odd they've removed it. all together. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are

unlikely to be teased if they sense that the parents are also in a comfortable but i didn't i mean psychologically. our bush bush bush. world more or. less a push against. her but don't overdo it although you know you would be gentle. yeah . kill you through with the sock. can you reach out. for the right to do the same with the other hand do you need to rest against it closer toes now it's like a yoga exercise. when the child was born i couldn't understand it was wrong with her she was like jalen her bones were soft and flexible. we didn't tamper with her

limbs they just fixed and each time they got fractured she was in plaster for six weeks at a time she was simply fall down and break the. muscles don't support her spine. by half hour walk is not to make a spine show through the process of compression. but i do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise but if. you grace. the board with the michael moore most of the children tain in the courtyard bowl it's good they keep playing their arm's length when i can't take part in simpler

games because there aren't enough goals around which does need contact with other people i see that she wants to to communicate. the world that's going to work. she has she has admirers and that's a source of inspiration for her. there at the polo world. listen i want to invite you to attend the events you have been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to. grab a man seen each other for a long time you miss him. very much.

good lover tour tim curry was able to build the most sophisticated robot which on fortunately doesn't give a darn about anything tim's mission to teach creation why it should care about humans in the world this is why you should care only dot com.

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you know. why they see me because both my parents were atheists it's the same they were among those people who built the soviet union realty and in those days it wasn't all that easy to express your faith here in the twentieth century where the idea of it when i started to live on my own then i was baptized that's what i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting my. own hurting his feelings would really not be a nice thing to do and most of it was i felt that i would offend him if i didn't join the orthodox church of the. mission if the happiest i. look at that across here in this holy place is that the what the law says you the

entire family of royal must as was murdered in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister as. that's why this is a holy place any more they pray for us to understand. i

don't have the worst husband and the wild mind children on two problematic either. things on said dreadfuls that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. to set the from stone the thing is that we can't see life as something beyond your rachael something you can't cope with but that would if you're a human being in the proper sense of the word like human almost anything is within your powers but i just feel i may have become somewhat braver but i chose to rely on god's will again i had. dream that i wanted to visit st petersburg a lot of the players the public by nurtured it for twenty five years i yearn to go

that would give those and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going to go to school the clegg all children. and then i was staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and. i am not particularly fond of reading mathematics is

more interesting for you we do exercises and draw our patterns in our matheson's you. you get a yeah i am going to be an artist the worst thing is because drawing that's what i like most of all. the children understand that d.s. is not like that they know they better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in by sometimes she even chases other children as she drives her wheelchair around the room she chimes in when the boys or girls are discussing something she has friends and the surge in fifth forms as well as her own. i discovered she copes pretty well without me sometimes she asks me to stir pick up books because she finds it

difficult and doesn't deserve to go through my fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job that's mine dream. only has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception just as i sensed that their problems provided me with a host of opportunities for reassessing my values was now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is not what they need to know

that other children have been diagnosed with the same disease but the elite and normal life all the same. but here they can do. what they like it's very important for parents to know how they'd children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a new group ours they are friendly to one another more than that girls know communicate with boys for example i know that when one has a bit of a crush on the keep a searing heat. wallow it's so beautiful. thanks you're welcome.

when the kids and i first met i had planted to talk about always glad to read on that there was somebody else like me. explain on line games. if i find a new game he placed with me was on the proceed to the. local guy sends me messages as soon as i'm on the internet. love you shouldn't since with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby bottle like just she would use it to feed them with my own. but

a good bit of the good which was any three years old and already she was trying to help me. yeah i knew. known as. el al i wish you happiness and health yes i hope you'll be condoms and well behaved. and i love you i love you. thank you thank you. my husband says when where the other children will take care of her no doubt about. the love it's a great to have such a family it is such a blessing. some

kids don't move much but there's no stopping her she once it's been five minutes. and says all we're doing this concerns both the state of health and this day develop. i think we can convention eight house house and told her that she can have a good life. and she knows that does a good deal of interesting useful and entertaining things in this world is just she would never face a situation where nobody needs her. honestly if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with that i be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

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. morning news today violence is once again flared up the film these are the images the world has been seeing from the streets of canada. giant corporations are old today. here the reindeer is everything for the herders. and when it suffers. people do their best to help. but the distances are. and the roads are tough and unpredictable.