suppose the sufferers have brittle bones and are at risk of multiple fractures but they are mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton move all. even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something you always have brother can

hit her it with willing around well well here we have a person that we can already sent to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just know of how you

doing. with the patients he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today the name is to fix the deformities with flexible titanium pins to remedy that if a mason and restore the limbs to a normal links regions. ok i hold you seven what i want to be girl.

didn't think i was an outsider in which the elder twin brother is a totally healthy get. my younger brother is ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which he could use i made some progress after being taught to walk by one time the wheelchair turned over due to a mishap as a result of both my thighs fractured at the same time i would be there that morning when the doctor arrived he said just don't touch him don't touch him could you announce how much childhood came to an abrupt end we missed it. the will of god is

omnipotent. which i found my soul mate. the woman who shares my interests and principles. god willing we will go through life together richard. if we have to enjoy our trials and tribulations well but also be. given to. us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with the disorder we knew . them but unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. geneticist who is in charge of our sin he said to me you had been warned about everything it was your decision to either give

birth or to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging her shoulders that is how teenagers behave in similar situations. which is our second child but it is ok we had been under a great deal of pressure not to have a second child to especially considering that my wife. would be running the risk of dying during childbirth. argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to pass. was the disease to me by any chance look here i am with a kitten like playing with a kitten i do. because the disease did. you didn't feel that.

you were a didn't die that you know what i did but i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those affected passing the disorder on to their children. that's. where it had french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. had been mowed down and fractures. both arms. have fractured twice. happened when they were messing around at the

time i wasn't being attentive enough i didn't stop them and they're playing around . like that when they began chasing the cat she lost her balance fell over and broke her. that incident to lay the treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. so what does it hurt do. you. i hear hear. that's where it's supposed to be it's my addition to hard yesterday to remember now ok it's best to forget about it. came with me to the lift.

and that was it then they took me away. and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at to try to be honest but it took a little while. i didn't want to feel old all the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled to the promo with or lying

flat on her belly everybody knew there had to be another fracture. oh are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you thank you for it's quite heavy yeah i have a year then my cast. i wish. as a rule i come here to meet the parents of other children suffering from auster genesis imperfecta and list. god when our daughter was born we had no idea of what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted

with the disease she was the one who came up with the idea of setting up an association of parents with such children. by the time this is in clinical psychology realized that some simple methods could make life much easier for those parents. i need to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to had their so see. it . every two months of course since the operation we're going to remove the costs today. i want that i can see only a part of this bone this is all they've removed it. all together. it was almost ten to right angle. and had to be fixed somehow you.

understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also in a comfortable but i do i mean psychologically. our bush bush bush. feel like world on more or. less a push against. her but don't overdo it although you know you would be gentle. your . kill you through with the soccer. ball can you reach out. more rice or do the same with the other hand do you need to rest against it closer toes now it's like a yoga exercise. when

the child was born i couldn't understand what was wrong with her she was like jalen her burns were soft and flexible. we didn't tamper with helen's they just fixed and each time they got thread chert she was in plaster for six weeks at a time she would simply fall down and break the. muscles don't support a spine throw. by half hour walk is not to make her spine show through the process of compression. i do exercises with her. so i think she feels more comfortable when by her side. they go what's most difficult is making her realized that she must help herself by

getting stronger through exercise but yes the bush league is. not bored with the law might be more menace to the children taint in the courtyard oh boy it's good they keep playing their arm's length when i can't take part in simpler games because there aren't enough girls around she does need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration for her. there at the hello world. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to.

our. grades haven't seen each other for a long time you miss him english very much. choose your language. make over the influential feel some of the. treatments but the consensus can't. change the opinions that in the great book. choose the stories that imply the life choose be access to often.

live. live. live. live. live live live. her mother.

could speak. to. her her live her mother whistlin. mother good luck good luck. mother lives. and. i. find i'm a better little. play . live.

yeah and i. can usually see either because both my parents were atheists it's a society they were among those people who built the savior of the union realty and in those days it wasn't all that easy to express your faith the care in the

twentieth century or the idea of it when i started to live on my own then i was baptized if that's what i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting i had a free will because i'm hurting his feelings would really not be a nice thing to do and most of the way i felt that i would offend him if i didn't join the orthodox church with the. whole mission if you. look at that across here and there. says see the entire family of royal mosque as was mud it in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister as. that's why this is a holy place and the more they pray for us to understand.

i don't have to waste time. spend and the wild mind children on two problematic. things own say drug phones are to have to complain and weep was a time. when the world is a tough place to live and. i'd like the children to be more self-reliant his own

being dependent on other people. to. get. the comfort from the thing is that because see life as something beyond your reach or something you can't cope with but the but if you're a human being in the proper sense of the word almost anything is within your powers but i can scarcely i may have become somewhat brave it was chose to rely on god's will again me here i had a dream that i wanted to visit some petersburg below the players the public by nurtured it for twenty five years i yearned to go that would give those and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. but gives you the courage to face unknown challenges.

mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. i don't know what just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and. i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. you get a yeah i'm going to be an artist the worst thing is because drawing that's what i

like most of all. the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room she chimes in when the boys or girls are discussing something she has friends and the surge and fifth forms as well as her own. i discovered she copes pretty well without me sometimes she asks me to stir pick up books because she finds a discount doesn't deserve to go so i fear for his safety because she might fall from the chair she leans over obscure if i knew that somebody was taking good care of her school i'd get a job that's my dream. has

turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but to lead a normal life all the same but here they can do. what they like it's very important for parents to know how they'd children feel they should allow them to move as much

as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a new group ours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kid a serious beat. that was all it's so beautiful. thanks you're welcome. when the kids and i first met i had planted to talk about always glad to read on that there was somebody else like me. explain on line games. if i find a new game he placed with me was on the proceeds of. the going to sends me messages as soon as i am on the internet. love the show doing things with children

in wheelchairs i would love to means more people so that i could visit them for birthdays and other parties. of that easy this gave birth to twins this kid would come from the kitchen carrying the baby brought to life just she would use it to feed them with my own. that it would be for the good of joy as any three years old and already she was trying to help me. yeah i knew. known as. el al i wish you happiness and health care yes i hope you'll be cause i'm

sick and well behaved. and i love you i love you. thank you. but then my husband says one way of god and the other children will take care of her no doubt about. the love it's a great to have such a family it is such a blessing. some kids don't move much but there's no stopping her she once it's been five minutes. and so far we're doing this concerns both the state of our health and this day developed. i think we can convention eight ourselves and told her that she can have

a good life. and she knows that does a good deal of interesting useful and into taining things in this world she was never faced a situation when she was never. and i know that they're going to go very far in life that i did what any parent has to be proud of such a child of course i just wish that there were no tears and there was no pay.

here the reindeer isn't everything for the herders. and when it suffers people do their best to help. but the distances are. and the roads are tough and unpredictable. will the roman need be and try.

to use a secret laboratory to mccurdy was able to build a new its most sophisticated robots which will unfortunately doesn't give a darn about anything tim's mission to teach music creation and why it should care about humans and work this is why you should care only on the dot com.