yes i probably fell from the chair and i was from the sofa and that didn't hurt at all but then i fell off the arm chair and i broke my leg. i cried for a while. and then echo's sleep. but why why why why did it have to be. for them. to cheat. the system for factor is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth to believe i suppose the sufferers

have brittle bones and are at risk of multiple fractures but there mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton more. to portman wiley's even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest more skewed to build traction as make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new is hamper out there you

can hear her mate with fooling around well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just tell you

doing. but still be patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy the angle that if i'm a sion and restore the limbs to a normal links in the conditions. ok and how old are you seven seven wow what a big goal. i

didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election as my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that morning when the doctor arrived he said just don't touch him don't touch him and that's how my childhood came to an abrupt end with. the will of god is omnipotent.

in the initial thoughts i found my soul mates. the woman who chose my interests and principles it was legally god willing we will go through life together and it should he stands with the thought if we have to enjoy our trials and tribulations well so be at ease but then you don't need that given. us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a do. you. know that but unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was

still a decision to i think give or to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging her shoulders that is how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a kid like playing with

a kid and i didn't pick up the disease. you didn't. know you were a didn't know it but i did and i pass it on to maria and i say that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. in the red french as when she was still in the womb the first months was the most difficult period she spent it all in an intensive care. and fractures. both arms. have fractured twice. oh happened when they were messing around the time i wasn't being

attentive enough i didn't stop them and they're playing around. like that when they began chasing the cat she lost her balance fell over and broke. the incident to lay the treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. here. that's where it's supposed it's my does it hard yesterday to remember. it's best to forget about it. came with me to the lift.

and that was it then they took me away. and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you think would have happened so the operation was successful but of course it's hard to look at to try to be honest but it took a little while. though i didn't want to feel mode on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with all of the

lines flat on her belly everybody knew there had to be another fracture. oh are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you for your description it's quite heavy yeah i have a year then my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta and list. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future with dr natale below has spent years treating children afflicted

with the disease and that she was the one who came up with the idea of sitting up in this o.c.a. sion of parents with such children are not going as by the time i treat this is in clinical psychology realized that some simple methods could make life much easier for those parents. i need to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me by the bush this wasn't so i volunteered to have their so see. it. fall since the operation we're going to remove the costs today. i want it i can see only part of this bone this is odd they've removed it. all together. it was almost time to right angle group and it had to be fixed somehow you.

understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also uncomfortable with that idea i mean psychologically a. scam. our bush bush bush. feel like world on more or. less a push against. her but don't overdo it go you know you would be gentle. can you prove the salk. can you reach out. more rice or do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when

the child was born i couldn't understand what was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with her limbs they just fixed and each time they got fractured she was in plaster for six weeks at a time she was simply fall down and break its. muscles don't support a spine throw. half hour walk is not to make a spine show through the process of compression. i do exercises with her. and i think she feels more comfortable when i am by her side. what's most difficult is making her realize that she must help

herself by getting stronger through exercise yes bush league race. the board was the warmest of the children taint in the courtyard bowl it's a good they keep it to arms length then i can't take part in simpler games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work. she has she has admirers and that's a source of inspiration for her. there are so. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to.

grey it's balancing each other for a long time you miss him. very much. science technology innovation all the developments around russia we've got the

future harvard. choose your language. of choice make it with no influential person to say sell some of the. treatments that use the consensus get to. choose the opinions that invigorating to. choose the stories that impact your life choose b. access to your office. download the official application to yourself choose your language stream quality and enjoy your favorites. if you're away from your television or it just doesn't matter now with your mobile device you can watch on t.v. anytime anywhere.

hold it. hold it you know. i live i. could speak. to you. wish. me good. luck. and i'm. gonna make that a little. boy

who may soon be the coolest both my parents were atheists it's the same they were among those people who are still to save us the union to live and in most days it wasn't all that easy to express your faith the adult here in the twentieth century what. they had when i started to live on my own then when i was baptized that's when i was twenty six years old. it was a. abundantly clear to me that if i had a guardian angel who was looking over me and protecting i. am hurting his feelings would really not be a nice thing to do and most of that of late i felt that i would offend him if i didn't join the also doc's church with them being. his nation. look at that across here in this holy place of the what the law says see the entire

family of royal must as was murdered in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister as. that's why this is a holy place any more they pray for us to understand. i

don't have the worst husband and the wild mind children on two problematic either. things on say drug phones that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. to set the from stone the thing is the. because see life as something beyond your reach or something you can't cope with the worst but if you're a human being in the proper sense of the word almost anything is within your powers but. i may have become somewhat brave it but chose to rely on god's will me here i had a dream that i wanted to visit some petersburg blow the corners the public by nurtured it for twenty five years i yearned to go that would give those and finally my dream

came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going to go to school play all children. and then i was staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will be i don't like reading or writing writing takes too much time and since i am not particularly fond of reading mathematics is

more interesting for you we do exercises and drug patterns in our math classes you all if. you get a yeah i'm going to be an artist over the years because drawing that's what i like most of all. this. the children understand that these is not like them they know they'd better not pass to her and leave her alone to avoid unnecessary problems. more long but she does try to join in by sometimes she even chases other children as she drives her wheelchair around the room. chimes then when the boys or girls are discussing something with the girl she has friends and the surge and fifth forms as well as her own also i discovered she copes pretty well without me sometimes she asks me to stack pick up

books because she finds it difficult and doesn't deserve to go so i fear for his safety because she might fall from the chair she leans over. if i knew that somebody was taking good care of her school i'd get a job dad's mind dream. only has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they

weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite and normal life all the same but here they can do what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run a risk by doing so but it's a risk worth taking because you know why you are taking it for. newsgroup hours they are friendly to one another more than that girls know communicate with voice for example i know that has a bit of a crush on nikita siri meet. woll it's so beautiful. thanks you're welcome.

when the kids and i first met had planted to talk about always glad to read on that there was somebody else like me who the delight explained on line games. if i find a new game he placed with me was on the proceeds to. circle the sends me messages as soon as i am on the internet. love to show doing things with children in wheelchairs i would love to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby brought to my defense she would use it to feed them with my own. but

a good bit of the good will she was only three years old and already she was trying to help me. yeah i knew that. known as the. hill i wish you happiness and health. i hope you'll be caught and well behaved. i love you i love you. let's go out. thank you. but then my husband where god the other children will take care of her no doubt about. the love it's a prey to have such a large family it is such a blessing in syria. some

kids don't move much but there's no stopping her she once it's been five minutes. and so far we're doing this concerns both the state of our health and this day develop family i think we can convention a house house and wish told her that she can have a good life. and she knows that does a good deal of interesting useful and entertaining things in this world is just she would never face a situation where nobody needs her. honestly if i had a child diagnosed with all stewed genesis perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

you know sometimes you see a story and it seems so. you think you understand it and then you glimpse something else and you hear or see some other part of it and realize everything you thought you don't know i'm tom harpur welcome to the big picture. wealthy british style.

markets why not. find out what's really happening to the global economy with mike's conjure for a no holds barred look at the global financial headlines in two cars a report.