well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. but good morning i just know of how you doing. but since the patients he elizabeth elisa oestrogen this is simple fact she

wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pens to remedy the angle that if i'm asian and restore the limbs to a normal links in the conditions. ok just. say wow what a big goal. i

didn't think i was an outsider when you reach the elder twin brother totally healthy and asking. my younger brothers ok to. election is my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. which i

found my soul mate. the woman who shares my interests and principles. god willing we will go through life together and if it. if we have to enjoy our trials and tribulations well so be at ease but then you don't import that given. us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a do. you know that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to his in charge of our sin he said to me you had been warned about everything it was your decision to i think you ought to terminate the. and so. my second

pregnancy was out of the blue none of us could figure out when it could have happened. we went through just staring at each other and shrugging her shoulders that's how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife and son would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a kitten like playing with a kitten i didn't pick up the disease did i. didn't.

know you were a didn't either but i did and i pass it on to maria and i say that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. had french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and french. arms. have fractured twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them and they're playing around. when i began

tracing the cat she lost her balance fell over and broke her. that incident to lay the treatment. they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. you. here. that's why it's. hard yesterday to remember. it's best to forget about it. came with me to the lift. and that was it then they took me away.

and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at to try to be honest but i think it's a little. i didn't want a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid. but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture.

oh are you. ok here i've got a present for you it's a russian doll this time too but it is over a different kind it's made of crystal. thank you thank you lord it's quite heavy yeah i have your than my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta and list. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook or they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of setting up

in this o.c.a. sion of parents with such children are not going as either time i treat this is on clinical psychology realise that some simple methods could make life much easier for those parents. to me to feel my knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to had their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all together. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need

support and encouragement. because i noticed children are unlikely to be so if they sense that the parents are also on a comfortable but i do i mean psychologically. our bush bush bush. world war more or less a push against. her but don't overdo it go it would be gentle. you . kill you through with the salk. can you reach out to. more of our right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when

the child was born i couldn't understand it was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with her limbs they just fixed and each time they got thread chert she was in plaster for six weeks at a time she would simply fall down and break its. muscles don't support her spine throw. by half hour walk is not to make her spine shot through the process of compression. i do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise yes wish you guys. the borders now might be

more menace to the children taint in the courtyard oh boy it's good they keep playing their arm's length then i can't take part in simpler games because there aren't enough girls around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration. for. the rest of though. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all of us will be there in saturday. by the way coming to.

grades haven't seen each other for a long time you miss him or such very much. wealthy british style decide it's time to. market why not. come to. find out what's really happening to the global economy with max cons or for a no holds barred look at the global financial headlines tune into kaiser report on our. we speak your language of the law and out of the. news

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download the official. bridge stream quality and enjoy your favorites. if you're away from your. device so you can watch on t.v. anytime anywhere. my parents were atheists. were among those people who built the savior of the union realty and in those days it wasn't all that easy to express your faith here in the twentieth century. but when i started to live on my own then i was baptized and that's when i was twenty six years old. it was abundantly clear to me that

if i had a guardian angel who was looking over me and protecting my. hurting his feelings would really not be a nice thing to do and most of it would leave i felt that i would offend him if i didn't join the orthodox church with them. look at the cross here in this holy place the. family. as was murdered in nineteen eighteen is there and their holy remains were. those of alexy the heir apparent and his sister as. that's why this is a holy place anymore as they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic either . things on said dreadfuls i had to have to complain and weep was a time. i want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. to set the from stone the thing is that we can't see life as something beyond your

rachel is something you can't cope with but if you're a human being in the proper sense of the word like human almost anything is within your powers but i just feel i may have become somewhat braver but i chose to rely on god's will again again i had a dream that i wanted to visit st petersburg a lot of the kind of stuff like by nurtured it for twenty five years i yearned to go let it get there else and finally my dream came true. if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. but gives you the courage to face unknown challenges. murmur mama told me you either were going to go to school or study at home i said

i'm going to go to school ok like all children. i don't know what to staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and it could take i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. we get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. this beautiful buffoon the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes

she even chases other children as she drives her wheelchair around the room or else she chimes in when the boys or girls are discussing something and the chairs friends and the certain fifth forms as well as her room. to speak to cope space he will without me sometimes she asks me to sterkel pick up books because she finds a disco tutors and those are two goals here. safety because she might fall from the chair she leans over. and if i knew that somebody was taking good care of her school i'd get a job bad mine dream. only has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception that i sensed that

their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder where they need to know that other children have been diagnosed with the same disease but the elite in normal life all the same but here they can do what they like it's very important for parents to know how they cheered her and feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for.

a number of hours they are friendly to one another more than that girls know communicate with boys for example i know that lana has a bit of a crush on nikita siri. that was all it's so beautiful. thanks you're welcome. when the kids and i first met you had planted to talk about. always glad to roan that there was somebody else like me to lie explained on line games. if i find a new game he placed with me was on the proceeds. of the sends me messages as soon as i am on the internet. for sure doing things with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties.

i'll tell you gave birth to twins this would come from the kitchen carrying the baby bottle and i just she would use it to feed them with my own. good bit of good but she was only three years old and already she was trying to help me. i knew that. known as. a little i wish you happiness and health. i hope you'll be condoms and well behaved. i love you i love you.

oh. my husband says that when we were god the other children would take care of her no doubt about. the love it's great to have such a family it is such a blessing in syria. some kids don't move much. but there is no stopping her she won six zero three and five minutes. in the book but also says all we're doing really this concerns both the state of our health and the state of our family i think we can convention eight house houses which told her that she can have a good life. and she knows that does a good deal of interesting news for than into taining things and this wote chill has never faced a situation when nobody needs her. honestly

if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay. here the reindeer is interesting for the herders. and when it suffers

people do their best to help. but the distances are. and the roads are tough and unpredictable. will the romany d.h.i. . hold it. hold it. on. good speed i am. her.

and i. wish i. could bomb it good. luck. just see the mountain and. come out fine i'm a little. timid speak old language. programs and documentaries in arabic in school here on the t.v. reporting from the world's hot spots fifty ip interviews. intriguing story for you here. in trying. to find out more visit or a big t.v. dog called. eleven mission free

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