now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. but good morning i just tell you doing. with the patients he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities

with flexible titanium pens to remedy the angle that if i'm a sion and restore the limbs to a normal links in equations. ok just hold you say wow what a big girl. think i was an outsider in which the elder twin. brother is totally healthy in asking. my

younger brother is ok to. election as my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house too. i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. which i found my soul mate. the woman who chose my interests and principles it was legally

god willing we will go through life together and if it. if we have to enjoy our trials and tribulations well so be at ease but then you don't import that given. us our first child was born on the first step february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a do. you know that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. internet desist who is in charge of our sin he said to me you had been warned about everything it was your decision to i think you ought to terminate the pregnancy. my second pregnancy was out of the blue none of us could. when it could have happened. just

staring at each other in shock you know it sure does that's how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance to carry on with a cure like playing with kittens i didn't pick up the disease. you didn't. know you were a didn't know it but i did and i passed it on to maria and i said that's how it is

. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. in the red french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and fractured. both arms. have fractured twice. happened when they were messing around the time i wasn't being attentive enough i didn't stop them in their playing around. when i began chasing the cat she lost her balance fell over i'm broke. that incident delayed treatment

they even said that further treatment might be pointless but if none was provided immediately then should be back to square one. if this kept happening over and over again and we would all of found it very difficult to deal with. this is what is a very painful. so you know what does it do but in my. view it is just i hear hear. that's where it's supposed to be it's my duty to heard yesterday to remember now ok it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything.

but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you think would have happened so gratian was successful but of course it's hard to look at to try to be honest but it's a little. i didn't want to feel mode on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid. but whenever i rolled the promo with or lying flat on her belly everybody knew i had to be and not the fracture.

oh are you. here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you water it's quite heavy yeah heavier than my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last. when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of sitting up in the socio of parents with such children are not going as by that time this is

in clinical psychology realized that some simple methods could make life much easier for those parents. to me if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to have their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all together. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are

unlikely to be teased if they sense that the parents are also on a comfortable but i didn't i mean psychologically. scared. our bush bush bush. feel like world war more or. less a push against. her but don't overdo it go you know you would be gentle. yeah . kill you through with the salk. can you reach out to. more of our right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with

hellenes they just fixed and each time he got thread chert she was in plaster for six weeks at a time she was simply fall down and break its. muscles don't support her spine close. by half hour walk is not to make her spine shot through the process of compression. and i do exercises with her. so i think she feels more comfortable when i am by her side. like a good girl what's most difficult is making her realized that she must help herself by getting stronger through exercise yes wish you grace. the board with the might be more menace to the children taint in the courtyard bowl it's good

they keep it arm's length then i can't take part in simple i'd games because there aren't enough girls around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work. she has she has admirers and that's a source of inspiration for her. there at the polo. listen i want to invite you to attend the events you have been looking forward to the place is called the museum of interest taining science all of us will be there inside and. by the way coming to. grey balancing each other for a long time you miss him. very much.

bit. older. little. goodspeed.

with. a little. thing. like. the cost both my parents were atheists it's the same they were among those people who with bills to save you had the union to live and in those days it wasn't all that easy to express your faith the adult here in the twentieth century what. they had when i started to live on my own then when i was baptized that's when i was twenty six years old. it was abundantly clear to me that if i

had a guardian angel who was looking over me and protecting my. views and hurting his feelings would really not be a nice thing to do and most of it would leave i felt that i would offend him if i didn't join the also doc's church with that. his nation. look at that cross here in this holy place. so. see the entire family of royal musses was murdered in nineteen eighteen it is theirs and their holy remains were. those of alexy the heir apparent and his sister as. that's why this is a holy place any more they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic either . things on say dreadfuls had to have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people.

to set the from stone the thing is that we can't see life as something beyond your rachel is something you can't cope with but that if you're a human being in the proper sense of the word like human almost anything is within your powers but i just feel i may have become somewhat braver but i chose to rely on god's will i had a dream that i wanted to visit some petersburg a lot of the kind of stuff like by nurtured it for twenty five years i yearned to go at it because they'll see finally my dream. came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges. murmured mamma told me either we're going to go to school or study at home i said

i'm going to go to school play all children. i don't know we're just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will be school i don't like reading or writing writing takes too much time and. i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math classes all if. we get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. this beautiful buffoon the children understand that lease is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in.

sometimes she even chases other children as she drives her wheelchair around the room she chimes then when the boys or girls are discussing something and the chairs friends and the certain fifth forms as well as her own person. to speak to cope space he will without me sometimes she asks me to stir pick up books because she finds it. doesn't deserve to go so i fear for his safety because she might fall from the chair she leans over. if i knew that somebody was taking good care of her school i'd get a job bad mine dream. only has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their

problems provided me with a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only one suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite and normal life all the same. but here they can do what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for.

a number of hours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kids a searing heat. that was all it's so beautiful. thanks air will come. when the kids and i first met. planted to talk about always glad to read on that there was somebody else like me who the feel like splay on line games. if i find a new game he placed with me was on the press to. circle the sends me messages as soon as i am on the internet. doing things with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties.

i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby brought to my defense she would use it to feed them with. their good bit of the good but she was only three years old and already as she was trying to help me . i knew that. known as. a little i wish you happiness and health. i hope you'll be caught and well behaved. i love you i love you.

go out. thank you. my husband says that when we're gone the other children will take care of her no doubt about that but the love it's a great to have such a large family it is such a blessing and syria. to . some kids don't move much but there's no stopping her she once it's self-raising five minutes. in the book but also says all we're doing well is concerned both the state of our health them to the state of our family i think we can convention and house sounds and most told her that she can have a good life. and she knows that does a good deal of interesting news for an entertaining things in this world chill has never faced a situation when nobody needs her. honestly

if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a childhood i just wish that there were no tears and there was no pay. hear the reindeer isn't everything for the herders and when it suffers

people do their best to help. but the distances are. and the roads are tough and unpredictable. secret laboratory to mccurry was able to build the most sophisticated robot which all unfortunately doesn't give a darn about anything tim's mission to teach the creation of life should care about humans and world this is why you should care watch only on the dog call.

and. i.

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