yes i cried for a while. and then at those sleep. but why why why why did it have to be a. cheat . to simper factor is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth it's a bit of i suppose the sufferers have brittle bones and are at risk of multiple fractures but there are mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college in is

the basis of the human skeleton more. to court mumbai least even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something you always have brother can hit her mate with fooling around well well here we have a person that we can already send to the anesthesiologist.

now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. but good morning i just tell you doing. with a good patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy the angle that if a mason and restore the limbs to

a normal links in the conditions. ok and how old are you seven seven wow what a big goal. i didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election my

father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over due to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how my childhood came to an abrupt end to a myth that. the will of god is omnipotent. which i found my soul mate. the woman who shares my interests and principles was legally god willing we will go through life together and if it. if we have to enjoy our

trials and tribulations well so be as good of us but then you don't import that given. us our first child was born on the first death february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a just you. that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was your decision to i think you want to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. we went through just staring at each other and shrugging our shoulders

that's how teenagers behave in similar situations. is our second child but. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a kitten like playing with a kitten i didn't pick up the disease did i. didn't. know you were a didn't know it but i did and i passed it on to maria and i said that's how it is . in the overwhelming majority of cases the failure of just one gene is enough for

all stewed genesis imperfecta to be inherited. the risk of those affected passing the disorder on to their children. that's. when i read french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and fractures. both arms. have fractured twice. oh happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. like that when i began chasing the cat she lost her balance fell over and broke her. that incident to lay treatment they even said that further treatment might be pointless but if none was

provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. what is a very painful. so what does it do. you. hear. that's where it's. hard yesterday to remember now ok it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything.

but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at to try to be honest but it took a little while. i didn't want a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture. oh are you. ok here i've got a present for you it's

a russian doll this time too but it is over a different kind it's made of crystal. thank you water it's quite heavy yeah i have your than my cast. i wish. as a rule i come here to meet the parents of other children suffering from auster genesis imperfecta did its first and last. when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of sitting up in the socio of parents with such children are not going as either time i treat this is on clinical psychology realized that some simple methods could make life

much easier for those parents. to me if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to have their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed. all together. it was almost center right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are

unlikely to be teased if they sense that the parents are also on a comfortable but i didn't i mean psychologically. our bush bush bush. world more or. less a push against. her but don't overdo it. would be gentle. can you prove the salk. can you reach out to. more of our right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jalen her bones were soft and flexible. we didn't tamper with her

limbs they just fixed and each time he got threat shirt she was in plaster for six weeks at a time she would simply fall down and break its. muscles don't support her spine. by half hour walk is not to make a spine show through the process of compression. i do exercises with her. and i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise but if yes. you grace. the board with the warmest of the children taint in the courtyard bowl it's a good they keep it to arms length then i can take part in simplified games because

there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration for. the rest of though. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to. graduates balancing this all the long time you miss him. very much.

wealthy british style. time to. market why not. come to. find out what's really happening to the global economy with max concert for a no holds barred look at the global financial headlines tune into cars a report on our. grid laboratory tim

curry was able to build a new most sophisticated robot which on fortunately doesn't give a darn about anything tim's mission to teach creation why it should care. this is why you should care only. speak your language. news programs and documentaries in spanish matters to you. keep the stories. spanish find out more visit.

and i. can usually see either cause both my parents were atheists it's a say they were among those people who built the soviet union realty and in those days it wasn't all that easy to express your faith the care in the twentieth century or the. of it when i started to live on my own then i was baptized if that's what i was twenty six years old. it was a fundamentally clear to me that if i had

a guardian angel who was looking over me and protecting i. and hurting his feelings would really not be a nice thing to do and most of the way i felt that i would offend him if i didn't join the orthodox church with the. whole nation. look at that across here and there. says he the entire family of royal mosses was murdered in nineteen eighteen it is that and their holy remains were. those of alexey the heir apparent and his sister's. that's why this is a holy place and the more they pray for us to understand.

i don't have to waste time. spend and the wild mind children on two problematic either. things on said drug phones are to have to complain and weep on the time. they want is a tough place to live and. i'd like the children to be more self-reliant zone being dependent on other people. just the front of the thing is that because see life as something beyond your reach

or something you can't cope with but that would if you're a human being in the proper sense of the word almost anything is within your powers but i just feel i may have become somewhat brave but i chose to rely on god's will who gave me here i had a dream that i wanted to visit some petersburg glow at the corners of the public they nurtured it for twenty five years i yearned to go that would give the girls and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals . that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going

to go to school ok like all children. i don't know what just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will be i don't like reading or writing writing takes too much time and says to take i am not particularly fond of reading them or. exe is more interesting for you we do exercises and drug patterns in our math isis new orleans. you get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes

she even chases other children as she drives her wheelchair around the room she chimes then when the boys or girls are discussing something she has friends and the certain fifth forms as well as her own also. discovered she copes pretty well without me sometimes she asks me to stir pick up books because she finds it difficult just desserts and i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job that's mine dream. only his turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values and now i communicate with an

entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder. they need to know that other children have been diagnosed with the same disease but the elite in normal life all the same. but here they can do what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a new group hours they are friendly to one another more than that girls know

communicate with boys for example i know that has a bit of a crush on the kid a searing heat. that was all it's so beautiful. thanks you're welcome. when the kids and i first met had planted to talk about always glad to own that there was somebody else like me. explain on line games. if i find a new game he placed with me was on the proceeds of. the sends me messages as soon as i am on the internet. love your children since with children in wheelchairs i would lead him into more people so that i could visit them for birthdays and other parties.

i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby bottle legit she would use it to feed them with my own. but a good bit of the good will she was only three years old and already she was trying to help me. i knew that. known as. well i wish you happiness and health care. i hope you'll be kind and well behaved. and i love you i love you. those thank you. my husband says when we're gone

the other children will take care of her no doubt about. the love it's a great to have such. it is such a blessing in syria. some kids don't move much but there's no stopping her she one sits in five minutes. and says far we're doing this concerns both the state of health and to state develop. i think we can convention and house the house and told her that she can have a good life. and she knows that does a good deal of interesting useful and into taining things in this world chill has never faced a situation when nobody needs her. honestly

if i had a child diagnosed with all student assisted perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay. here the reindeer is interesting for the herders. and when it suffers.

people do their best to help. but the distances are. and the roads are tough and unpredictable. will the roman need be and try. to. choose your language. because you know if they still some of us.

choose the the concerns you. choose the opinions that invigorating to. choose the stories that imply life choose be access to opportunity. r r r r r. r .