it was born the doctors told us she had multiple fractures they also said lisa would be a difficult child to handle she was bedridden for the first year after she had to you can sleep on a cushion because she would cry when we touched her. yes i probably fell from the chair and i have from the sofa and that didn't hurt at all but then i felt the arm chair and i broke my leg. i cried for a while. and then at those sleep. but why why

why why did it have to be. what. she. needs to simper fact is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth to believe i suppose the sufferers have brittle bones and are at risk of multiple fractures but there are mineral metabolism is in good order to avoid the ailment is due to faulty college information like you as the main protein in connective tissue college in is the basis of the human skeleton more than god. was keenly at them.

even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fracture as. there is a swelling beneath the i hear that you hit something and you as a brother can hear her they were fooling around well well here we have a person that we can already sent to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on

the left shin but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn a little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just tell you doing. with the patients he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy that if i'm a sion and restore the limbs to a normal links. ok and how old are you

seven wow what a big girl. i didn't think i was an outsider when you reached the elder twin brother totally healthy yet. my younger brother was ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my

mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that morning when the doctor arrived he said just don't touch him don't touch him and would announce how much childhood came to an abrupt end with. the will of god is omnipotent. in the initial thoughts i found my soul mates. the woman who'd shares my interests and principles of legally god willing we will go through life together and it hit he stands with the thought if we have to enjoy our trials and tribulations well so be. but then you don't give.

us our first child was born on the first offense two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a just released. them but unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. geneticist who is in charge of our sin he said to me you had been warned about everything it was your decision to i think you ought to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging your shoulders that's how teenagers behave in similar situations. is our second child but yes.

we had been under a great deal of pressure not to have a second child especially considering that my wife and son would be running the risk of dying during child. it was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance to carry on with it carefully like playing with a kitten i didn't pick up the disease. you didn't. know you were a didn't either but i did and i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing

the disorder on to their children. i read french as when she was still in the womb the first months was the most difficult period for me she spent it all in intensive care. and fractures. both arms. have fractured twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them and they're playing around. like that when they began chasing the cat she lost her balance fell over. that incident to lay the treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening

over and over again then we would all of found it very difficult to deal with. and . this is what is a very painful. so what does it do. here. that's where it's supposed. to heard yesterday to remember. it's best to forget about it. came with me to the lift. and that was that then they took me away. and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself

anything could have happened so the operation was successful but of course it's hard to look at the trial to be honest but it's a little. i didn't want to feel out on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture. oh are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you

water it's quite heavy yeah i have a year then my cast. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last. hour when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future with dr natale below has spent years treating children afflicted with the disease is what she was the one who came up with the idea of sitting up in the socio of parents with such children are not going as by the time this is on clinical psychology realized that some simple methods could make life much easier for those parents. but i did to meet if i knew that sharing my knowledge with

others wouldn't be much of a burden to me. so i volunteered to have this so see. it. two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all together. it was almost trying to right angle. had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be. if they sense that the parents are also on a comfortable but i do i mean psychological a. scam. our bush

bush bush. world more or. less a push against. her but don't overdo it so it would be gentle. can you prove the salk. reach out to. the right do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when the child was born i couldn't understand it was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with her lanes they just fixed and each time they got thread chert she was in plaster for six weeks at a time she was simply fall down and break. muscles

don't support a spine throw. by half hour walk is not to make a spine show through the process of compression. i did exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realize that she must help herself by getting stronger through exercise yes wish you guys. the board with the libel more menace to the children taint in the courtyard bowl it's good they keep playing their arm's length when i can't take part in simplied games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work.

she knows she has admirers and that's a source of inspiration for. the rest of. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all of us will be there inside and. by the way coming to. grab a balancing issue all the time you miss him. very much .

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a no holds barred look at the global finance. headlines tune in to kaiser report on r t. two we speak your language will not advance. news programs and documentaries in spanish matters to you breaking news a little tonnage of angola's kittens stories. to try to alter the spanish find out more visit i. hear the reindeer isn't everything for the herders and when it suffers people do their best to help. but the distances are. and the roads are tough and i'm predicting the.

secret laboratory to mccurdy was able to build a new most sophisticated robot which all unfortunately doesn't give a darn about anything tunes mission to teach music creation why it should care about humans and. this is why you should care only on the dog. both my parents were atheists it's the same they were among those people who built the savior of the union realty and in those days it wasn't all that easy to express your faith here in the twentieth century. but when i started to live on my own

then i was baptized that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting my. hurting his feelings would really not be a nice thing to do and wished of i felt that i would offend him if i didn't join the orthodox church with them. fish and if the happiest i. look at that across here in this holy place is that the what the law says you the entire family of royal must as was murdered in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister as. that's why this is a holy place for you more they pray for us to understand. i

don't have the worst husband and the wild mind children on two problematic either. things on said dreadfuls that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people.

to set the from stone the thing is that because see life as something beyond your rachel is something you can't cope with but that if you're a human being in the proper sense of the word like here on almost anything is within your powers but i just feel i may have become somewhat braver when i chose to rely on god's will again i had a dream that i want. to visit some petersburg a lot of the players the public by nurtured it for twenty five years i yearn to go that would give those and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. but gives you the courage to face unknown challenges.

mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. i don't know what just staying at home and studying on my own would be boring i don't have any bad grades only good and great . i don't like reading or writing writing takes too much time and. i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. you get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. the children understand

that d.s. is not like that they know they better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room she chimes then when the boys or girls are discussing something she has friends and the surge and fifth forms as well as her own also. discovered she copes space he will about me sometimes she asks me to stir pick up books because she finds it difficult to sing those are two goals i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job bad my injury. has turned my life around before she was born i wasn't aware of what the world is like

for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is that they need to know that other children have been diagnosed with the same disease but delete a normal life all the same but here they can do. what they like it's very important for parents to know how they'd children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for.

a new group ours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kids a searing heat. while it's so beautiful. thanks you're welcome. when the kids and i first met you had plenty to talk about always glad to read on that there was somebody else like me with explain on line games here for if i find a new game he placed with me was on the proceeds of. the sounds to me messages as soon as i am on the internet. love you shouldn't since with children

in wheelchairs i would love to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby brother to legislate she would use it to feed them with. their good day for the good of his emmy three years old and already she was trying to help me. yeah i knew. known as. well i wish you happiness and health. i hope you'll be cause i'm sick and well behaved. and i love you i love you oh.

those thank. my husband where the other children will take care of her no doubt about. the love it's a great to have such as. it is set to blessing. some kids don't move much but there's no stopping her she once it's been five minutes. and says all we're doing this concerns both the state of our health and this day developed. they think we can convention a house house and told her that she can have a good life. and she knows that does a good deal of interesting useful and into taining things in this world she was

never faced a situation when nobody needs her. honestly if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with. i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know they're going to go very far in life that i did with any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

me evening it's. easy. to see a story and it seems so you think you understand it and then you glimpse something else you hear or see some other part of it and realize that everything is.

welcome to the big picture. mission and free accreditation free zones for charges free. range humans free. free studio time free. old free blog cloning video for your media projects a free media. tom. secret lover a tour to mccurry was able to build the most sophisticated robot which fortunately doesn't dorna found anything tim's mission to teach me the creation of life should care about humans and. this is why you should care only.

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