on disorders affecting children if we're talking about those that are present from birth it's a bit of i suppose the sufferers have brittle bones and are at risk of multiple fractures but there mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college in is the basis of the human skeleton move all. skinny a. quarter mile by least even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's

a swelling beneath the eye here did you hit something you always have brother can hit her mate with fooling around well well here we have a person that we can already sent to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our

fingers crossed for her. but good morning i just tell you doing. with a good patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pens to remedy the end of that information and restore the limbs to a normal links in the conditions. ok just how old are you seven seven wow what a big girl. i

didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother was ok too. much as my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived

he said just don't touch him don't touch him and that's how my childhood came to an abrupt end with. the will of god is omnipotent. in the initial search i've found my soul mate. the woman who shares my interests and principles it was legally god willing we will go through life together and it hit. the floor if we have to enjoy our trials and tribulations well but also be educated yes but then you don't import that given. us our first child was born on the first step february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a just told you. that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that this is to. in the

challenge of our sin he said to me you had been warned about everything it was stupid decision to i think you want to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. we went through just staring at each other and shrugging her shoulders that's how teenagers behave in similar situations. is our second child but yes. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any

chance to carry on with a cure like playing with a kitten i didn't because the disease did i. didn't. know you were a didn't know it but i did and i passed it on to maria and i said that's how it is . in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. in the riyadh franchise when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and fractures. both arms. have fractured

twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. like that when i began chasing the cat she lost her balance fell over and broke her. that incident to lay treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. what is a very painful. one does it hurt. you. here. that's where it's supposed. to hard yesterday to remember. it's best to forget

about it. murmur came with me to the lift. and that was it then they took me away. and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at a chart off to be honest but it's a little. i didn't want a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to meet

that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew i had to be and not the fracture. hi lisa how are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you water it's quite heavy yeah heavier than my cast. yes but as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and

faced a very bleak future with dr natale below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of sitting up in the socio of parents with such children are not going as by the time this is in clinical psychology realized that some simple methods could make life much easier for those parents. to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to have this so see. it . every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is odd they've removed it. all together. it was almost center right

angle loop and it had to be fixed somehow you. understand from my contact with children and their families but most. parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also on a comfortable but i do i mean psychologically are. scared. our bush bush bush. world more or. less a push against. her but don't overdo it go your way would be gentle. can you through with the salk. or can you reach out. for more of the right to do the same with the other hand do you need to rest against it closer to those now it's

like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with her limbs they just fixed and each time they got thread chert she was in plaster for six weeks at a time she would simply fall down and break its. muscles don't support a spine. by half hour walk is not to make a spine show through the process of compression. but i do exercises with her. so i think she feels more comfortable when i am by her

side. what's most difficult is making her realize that she must help herself by getting stronger through exercise yes bush league is. not bored with the warmest of the children tain in the courtyard oh boy it's good they keep it to arm's length when i can't take part in simplied games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration for. their author though. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all

of us will be there inside and. by the way coming to. grey it's balancing this all the time you miss him. very much.

wealthy british style. time buyers. market why not. come to. find out what's really happening to the global economy with max culture a no holds barred look at the global fund. headlines tune in to kaiser report on r g. we speak your language. news programs and documentaries in spanish matters to you breaking news a little tonnage of angles kiddies stories. you hear. the spanish find out more visit i.

hear the rain gear isn't everything for the herders and when it suffers people do their best to help. but the distances are. and the rooms are. unpredictable. and try. to use a secret laboratory to mccurdy was able to build a new most sophisticated robot which all unfortunately doesn't give a darn about anything tim's mission to teach creation why it should care about

humans and world this is why you should care only on the dot com. both my parents were atheists if they were among those people who built a savior to unionville it and in those days it wasn't all that easy to express your faith here in the twentieth century what. they had when i started to live on my own then i was. upsized that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting i had a free will because i'm hurting his feelings would really not be a nice thing to do and wish to believe that it was i felt that i would offend him if i didn't join the orthodox church with the new. fusion if

you. look at that across here in this holy place of the what the law says see the entire family of royal mottoes was murdered in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister's. that's why this is a holy place anymore as they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic i them things on said dreadfuls that i have to complain and we pause a time. i want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. yes but the dumped on the thing is that because see life as something beyond your reach or something you can't cope with the worst but if you're a human being in the proper sense of the word almost anything is within your powers but i've just if i may have become somewhat brave it was chose to rely on god's will i had a dream that i wanted to visit some petersburg at the constable that they nurtured

it for twenty five years i yearned to go that would give those and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going to go to school like all children. and then i was staying at home and studying on my own would be boring i don't have any bad grades only good and great going into. i don't like reading or writing writing takes too much time

and since i am not particularly fond of reading them or mathematics is more interesting for you we do exercises and draw our patterns in our math lessons new orleans. we get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. this. the children understand that these is not likely. they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in it go by sometimes she even chases other children as she drives her wheelchair around the room she chimes then when the boys or girls are discussing something that has friends and the surge and fifth forms as well as her own. i

discovered she copes pretty well without me sometimes she asks me to stack pick up books because she finds a desiccant there's original i fear for his safety because she might fall from the chair she leans over. a fine use that somebody was taking good care of her school i'd get a job that's my injury. only his turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception that i sensed that their problems provided me with a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they

weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite and normal life all the same. here they can do what they like it's very important for parents to know how they'd children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are. you can't buy. a new group hours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the keep the syrian eat. while it's so beautiful. thanks you're welcome.

when the kids and i first met had plenty to talk about always glad to read on that there was somebody else like me to the delight explained line games here for me if i find a new game he placed with me was on the proceeds to. circle the sends me messages as soon as i am on the internet. love your children since with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the

baby brother to legislate she would use it to feed them with my own. good day for the good of joys any three years old and already she was trying to help me this year i knew that for known as the. ill i wish you happiness and health. i hope that you'll be caught and well behaved. i love you i love you. thank you. but then my husband says where god the other children will take care of her no doubt about. the love it's a pray to have such. it is such a blessing in syria. some

kids don't move much but there's no stopping her she once it's been five minutes. and says all we're doing really this concerns both the state of our health and this day develop. i think we can convention and house the house and told her that she can have a good life. and she knows that does a good deal of interesting news for an entertaining things in this world chill has never faced a situation when nobody needs her. honestly if i had a child diagnosed with all students this perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such

a child i just wish that there were no tears and there was no pay. me gave it.

to me. you know sometimes you see a story and it seems so you think you understand it and then you glimpse something else you hear sees some other part of it and realize everything you thought you don't know i'm tom harpur welcome to the big picture. mission and free accreditation three times for charges free. arrangement free. free studio time free.

old free blog loaded video for your media projects and free media. dot com. your news a secret laboratory to mccurry was able to build a most sophisticated robot which will unfortunately doesn't give a darn about anything tim's mission to teach me the creation and why it should care about humans and world this is why you should care only on the.