i probably fell from the chair and i was from the sofa and that didn't hurt at all but then i fell off the arm chair and i broke my leg. i cried for a while. and then at those sleep. but why why why why did it have to be. for the. sheet. to simper factor is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth it's a bit of i suppose the sufferers have brittle bones and are at risk of multiple fracture but there mineral metabolism is in good order the ailment is due to faulty

college information. as the main protein in connective tissue college in is the basis of the human skeleton more. to court mumbai least even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new is hamper out there you can hear her mate with fooling around well well here we have

a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just tell you doing. but still be patient he elizabeth elisa oestrogen this is simple fact she

wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy the angle that if i'm asian and restore the limbs to a normal links in the conditions. well ok just how old are you seven seven wow what a big girl. i

didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. as my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how my childhood came to an abrupt end to a myth that. the will of god is omnipotent. in the initial search i've

found my soul mates. the woman who shares my interests and principles it was legally god willing we will go through life together and it should he stands with the if we have to enjoy our trials and tribulations well but also be at these but then you don't import that given to. us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a disorder we knew. that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was a decision to i think you ought to terminate the pregnancy. my second

pregnancy was out of the blue none of us could figure out when it could have happened we went through just staring at each other and shrugging her shoulders that's how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a kitten like playing with a kitten i didn't pick up the disease. you didn't.

know you were a didn't either but i did and i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. in the riyadh franchise when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and fractured. both arms. have fractured twice. oh happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. when i began tracing

the cat she lost her balance fell over and broke. that incident to lay treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. you. here. that's where it's been. my addition to her and yesterday to remember. it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything.

but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so gratian was successful but of course it's hard to look at a child after being spent to so little. i didn't want a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture.

oh are you. ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you thank you for the description it's quite heavy yeah i have a year then my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook that they said the child was unlikely to be able to walk and faced a very bleak future. dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of sitting up

in the socio of parents with such children rob just not going as either time this isn't clinical psychology realized that some simple methods could make life much easier for those parents. i did to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to have their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is on dave from moved it. all together. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need

support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also on a comfortable but i didn't i mean psychologically. scared. our bush bush bush. world more or. less a push against. her but don't overdo it. would be gentle. can you prove the salk. can you reach out to. more of our right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when

the child was born i couldn't understand what was wrong with her she was like jalen her burns were soft and flexible. we didn't tamper with her limbs they just fixed and each time they got thread chert she was in plaster for six weeks at a time she would simply fall down and break its. muscles don't support a spine throw. half hour walk is not to make a spine show through the process of compression. i do exercises with her. and i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise yes wish you grace.

the board with the might be more menace to the children taint in the courtyard oh boy it's good they keep it to arm's length then i can't take part in simpler games because there aren't enough girls around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration for. the rest of though. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all of us will be there in saturday. by the way coming to.

grades balancing this all the long time you miss him or larry much. wealthier british scientists are. right on. market why not. find out what's really happening to the global economy with max cons are the no holds barred look at the global financial headlines tune

into kinds a report. here the reindeer is interesting for the herders. and when it suffers people do their best to help. the distant. and the roads are. predictable. you know sometimes you see a story and it seems so for langley you think you understand it and then you glimpse something else and you hear or see some other part of it and realize everything you thought you don't know i'm tom harpur welcome to the big picture.

more news today in harlem since once again flared up. these are the images the world has been seeing from the streets of canada. the giant corporations are today . and. why. both my parents were atheists it's a society they were among those people who are still to savior to union to live and in those days it wasn't all that easy to express your faith here in the twentieth

century. but when i started to live on my own then i was baptized that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting my. hurting his feelings would really not be a nice thing to do. and most of that of late i felt that i would offend him if i didn't join the orthodox church with the. fusion if the happiest i. look at that across here in this holy place is that the what the law says you the entire family of royal must as was murdered in nineteen eighteen it is there and their holy remains with. you those of alexey the heir apparent and his sister as. that's why this is a holy place any more they pray for us to understand. i

don't have the worst husband and the wild mind children on two problematic either. things on said dreadfuls that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people.

to set the from stone the thing is that because see life as something beyond your rachel is something you can't cope with but if you're a human being in the proper sense of the word like he'll on almost anything. it is within your powers but. i may have become somewhat brave it but chose to rely on god's will in me here i had a dream that i wanted to visit st petersburg a lot of the players the public by nurtured it for twenty five years i yearned to go that would give the dolphins finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. but gives you the courage to face unknown challenges .

mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. i don't know what just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and. i am not particularly fond of reading them or mathematics is more interesting for you we do exercises and drug patterns in our math classes new orleans. you get a yeah i'm going to be an artist over the years because drawing that's what i like most of all. this. the children understand that

these is not like that they know they better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room or else she try. then when the boys or girls are discussing something that has friends and the surge and fifth forms as well as her own. i discovered she told space he will without me sometimes she asks me to stack pick up books because she finds a desiccant and doesn't deserve to go so i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job bad my injury. has

turned my life around us before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite and normal life all the same question about here they can do what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run a risk by doing so but it's

a risk worth taking because you know why you are taking it for. a number of hours they are friendly to one another more than that girls know communicate with voice for example i know that has a bit of a crush on nikita siri. oh it's so beautiful. thanks you're welcome. when nikita and i first met had planted to talk about always glad to rebel and that there was somebody else like me to the delight explained in line games. if i find a new game he placed it with me was on the proceeds to. circle the sends me messages as soon as i am on the internet. loving children since with children

in wheelchairs i would love to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this would come from the kitchen carrying the baby brought to my defense she would use it to feed them with my own. good day for the good but she was only three years old and already she was trying to help me this year i knew that. known as the. hill i wish you happiness and health. i hope you'll be caught

and well behaved. i love you i love you. go out. my husband says that one where god and the other children will take care of her no doubt about that school. for the love of it's great to have such a large family it is such a blessing. some kids don't move much but there's no stopping her she once it's been five minutes. it's a fall we're doing well it's concerns both the state of our health and the state of our family i think we can convention eight house house and wish told her that she can have a good life. and she knows that does

a good deal of interesting news for the name to taining things in this world chill has never faced a situation when nobody needs her. honestly if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

oh. play. live.

live. live. live live. live. live. live live both. her mother. pretty. good speech.