why did it have to be. for the. g eight. to simper factor is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth to supervise the sufferers have brittle bones and are at risk of multiple fracture but there are mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton more. to court mumbai least even some

adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest. rakshas make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new is hamper out there you can hear her mate with fooling around well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with

the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker but we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just know of how you doing. with a good patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pens to remedy the angle that if i'm a sion and restore the limbs to a normal links in the conditions. well ok just how old are you seven seven well what

a big goal. i didn't think i was an outsider when you reached the elder twin brother totally healthy yet. my younger brother was ok to. win the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had

to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch it don't touch him what could you not tell my childhood came to an abrupt end with. the will of god is omnipotent. and the initial thoughts are found my soul mate. the woman who shares my interests and principles was originally god willing we will go through life together and it should. if we have to enjoy our trials and tribulations well but also be a bit of these but then you don't need that given.

us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with the disorder. that fortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was just sation to i think you want to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging her shoulders that's how teenagers behave in similar situations. is our second child. we have been under a great deal of pressure not to have

a second child especially considering that my wife. would be running the risk of dying during childbirth. argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a kid like playing with a kid and i didn't pick up the disease. you didn't. know you were a didn't either but i did but i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children.

had fractures when she was still in the womb the first months was the most difficult period she spent it all in an intensive care. and fractures. both arms. have fractured twice. oh happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in their playing around. was that when i began tracing the cat she lost her balance fell over and broke. that incident to lay treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with.

one is a very painful. one does it do. you. hear. that's where it's supposed. to heard yesterday to remember. it's best to forget about it. i came with me to the lift. and that was it then they took me away. and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you

think would have happened so gratian was successful but of course it's hard to look at to try to be honest but it's a little. i didn't want to a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another fracture. oh are you ok ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you for description it's quite heavy yeah i have a year then my cast. i wish. as

a rule i come here to meet the parents of other children suffering from austin genesis imperfecta and list. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook or they said the child was unlikely to be able to walk and faced a very bleak future with dr natale below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of setting up an association of parents with such children rob just going as a by the time i read in the piece is in clinical psychology realized that some simple methods could make life much easier for those parents. i need to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me but as this wasn't so i volunteered to have their so see.

every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed. all together. and. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also on a comfortable but i didn't i mean psychologically a. scam. our bush bush bush.

world more or. less a push against. her but don't overdo it go you know you would be gentle. can you prove the salk. can you reach out to me. now or i'll rise to do the same with the other hand do you need to rest against it closer to those now it's like a yogi exists. when the child was born i couldn't understand what was wrong with her she was like jabbing her burns were soft and flexible. we didn't tamper with her limbs they just fixed and each time it got fractured she was in plaster for six weeks at a time she would simply fall down and break its. muscles

taut supporter spine throw. off all walkers not to make a spine show through the process of compression. my do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise. you grace. the board with the might be more menace to the children taint in the courtyard bowl it's good they keep lending it to arms length then i can't take part in simpler games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work.

she has she has admirers and that's a source of inspiration for. there at the. world. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all of us will be there in saturday. by the way coming to. grey balancing each other for a long time you miss him. very much.

the official. cation to yourself choose your language stream quality and enjoy your

favorites from alzheimer's if you're away from your television. device if you can watch your auntie any time anywhere. in the post my parents were atheists it's a sin they were among those people who built the soviet union realty and in those days it wasn't all that easy to express your faith here in the twentieth century. but when i started to live on my own then i was baptized that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting. and hurting his feelings

would really not be a nice thing to do and most of it would leave i felt that i would offend him if i didn't join the orthodox church with the. fish and if. you look at that across here in this holy place. says he the entire family of royal masses was murdered in one thousand nine hundred eighteen and their holy remains were. those of alexy the heir apparent and his sister as. that's why this is a holy place and the more they pray for us to understand. i

don't have the worst husband and the wild mind children on two problematic either. things on said drag phones i had to have to complain and weep was a time. they want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. to set the front on the thing is that because see life as something beyond your reach or something you can't cope with but that would if you're

a human being in the proper sense of the word almost anything is within your powers but i just feel i may have become somewhat brave of what i chose to rely on god's will you gave me here i had a dream that i wanted to visit st petersburg a lot of the greatest of all like i nurtured it for twenty five years i yearned to go let it get the goals and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals with. that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going to go to school play all children. i don't know because staying at home and

studying on my own would be boring i don't have any bad grades only good and great going into will be school i don't like reading or writing. writing takes too much time and taking i am not particularly fond of reading mathematics is more interesting reading we do exercises and drug patterns in our math lessons or. we get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room she

chimes in when the boys or girls are discussing something and she has friends and the surgeon fifth forms as well as her own. speech she copes pretty well without me sometimes she asks me to stir pick up books because she finds it difficult to sing those are two goals i fear for his safety because she might fall from the chair she leans over. to me if i knew that somebody was taking good care of her school i'd get a droll bad dream. has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values. no i commute. with an entirely

different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the lead a normal life all the same. but here they can do what they like it's very important for parents to know how they children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a number of hours they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kids

a searing heat. that was all it's so beautiful. thanks you're welcome. when the kids and i first met i had planted to talk about always glad to own that there was somebody else like me. explain a line games. if i find a new game he placed it with me was on the proceeds of the. circle that i sends me messages as soon as i am on the internet. lover shouldn't since with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other potties.

i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby brought to legislate she would use it to feed them with. their good bit of the good but she was only three years old and already she was trying to help me . i knew. known as. el al i wish you happiness and health. in i hope you'll be cause i'm sick and well behaved. i love you i love you. my husband says when we're god the other children will take care of her no doubt

about. the love it's great to have such a large family it is such a blessing in syria. some kids don't move much but there's no stopping her she one sits in five minutes . and says all we're doing this concerns both the state of health and this day developed. i think we can convention eight ourselves and told her that she can have a good life. and she knows that there's a good deal of interesting news for the need to taining things in this world she was never faced a situation when nobody needs her. honestly if i had a child diagnosed with our studio. perfect i wouldn't have

a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a child i just wish that there were no tears and there was no pain.

choose your language. week you know if you're going to let us stay still some of. the concerns. to the opinions that you think. the story is that if i. choose access to. the british. market. can. find out what's really happening to the global economy.

for a no holds barred look at the global financial headlines two kinds of reports. that . the goal is. to clear cut. the speed. of her. with. a

good. luck. just sleep. in a. little. maybe. you need. to.